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Strengthening the evidence for maternal and child health programs

Search Results: MCHLine

Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 20 (211 total).

Pittsburgh/Allegheny County Healthy Start. n.d.. Guidebook for healthy mothers, children, families. Pittsburgh, PA: Allegheny County Healthy Start Project, 70 pp.

Annotation: This directory lists a variety of programs and services in the Pittsburgh area that are available to mothers, children, and families. It also contains health tips and fact sheets for infant care. Topics include the following: 1) child health clinics; 2) dental health; 3) family health services; 4) family/home-based support services; 5) family planning services; 6) family support centers; 7) grief support; 8) health and safety programs; and 9) Women, Infants, and Children (WIC). [Funded by the Maternal and Child Health Bureau]

Contact: Pittsburgh/Allegheny & Fayette County Healthy Start, 400 North Lexington Avenue, Pittsburgh, PA Telephone: (412) 247-1000 Secondary Telephone: (412) 247-4009 Contact Phone: (412) 578-8003 Fax: (412) 578-8325 Contact E-mail: 104626@compuserv.com Web Site: http://healthystartpittsburgh.org/ Contact for cost information.

Keywords: Case management, Child care services, Community programs, Family centered services, Family planning, Family support services, Infant health, Outreach, Pittsburgh Healthy Start, Social services

Nelson R. n.d.. Analysis and Expansion of Community-Based Interagency Collaborative Efforts: [Final report]. Iowa City, IA: University of Iowa, 51 pp.

Annotation: This study sought to document, evaluate, and disseminate information about two community-based projects designed as models of collaborative interagency service provision for children and families. The project developed a set of recommendations for collaborative efforts, addressing procedure as well as policy and organization. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-152890.

Keywords: Children with special health care needs, Collaboration, Community-Based Health Care, Family centered, Fragmentation of Services, Health Professionals, Interagency cooperation, community based care

Force J. n.d.. Project Copernicus [Final report]. Baltimore, MD: Maryland Department of Health and Mental Hygiene, 15 pp.

Annotation: Project Copernicus, a dual-State initiative for Maryland and Virginia, developed, demonstrated, and evaluated training programs in family-centered service coordination with target groups of professional service providers and parents in urban, rural, and suburban areas of Maryland and Virginia. Project Copernicus demonstrated how to provide family-centered care for families with children with special health needs by assisting both parents and professional service providers to develop and use family-centered service coordination activities (case management). [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB97-121859.

Keywords: Access to Health Care, CSHCN, Case Management, Chronic illnesses and disabilities, Coordination of Health Care, Disabled, Education of Health Professionals, Families, Family-Centered Health Care, Fragmentation of Services, Parent Education, Parents, programs

Danielson C. n.d.. Healthy Foundations [Final report]. Des Moines, IA: Iowa Department of Public Health, 51 pp.

Annotation: The project's goals were to: (1) Develop and implement structures and processes in defined community areas to plan and implement a family-centered, community-based health care delivery system for children; (2) develop data system capacity and function statewide to ensure family-centered, community-based primary care services for children; and (3) share experiences in family-centered, community-based system change in the area of primary health care for children with other State, regional, and national maternal and child health providers. At the State level, strategies were directed toward developing a system of children's primary health care delivery that was family centered and community based. At the local level, child health steering committees in established projects were to continue to plan and implement child health system changes in their service areas. [Funded by the Maternal and Child Health Bureau]

Keywords: Access to Health Care, Child Mortality, Community Based Health Services, Databases, Family Centered Health Care, Information Systems, Primary Care, Standards of Care, State Programs

Family Voices, IMPACT. n.d.. The Affordable Care Act (ACA): Prevention and health promotion for everybody!. Albuquerque, NM: Family Voices, IMPACT, 2 pp.

Annotation: This document encourages families to partner with health professionals on getting preventive health services and to take a lead role in promoting health at home and where they live, work, and play. Topics include how information sharing between families and health professionals can promote child health, the Affordable Care Act's preventive health services for children, the Bright Futures initiative, and tips for a healthy lifestyle. [Funded by the Maternal and Child Health Bureau]

Contact: Family Voices, IMPACT, 3701 San Mateo Boulevard, N.E., Suite 103, Albuquerque, NM 87110, Telephone: (505) 872-4774 Secondary Telephone: (888) 835-5669 Fax: (505) 872-4780 Web Site: http://www.fv-impact.org Available from the website.

Keywords: Bright Futures, Child health, Children, Families, Family centered care, Health care reform, Health promotion, Parent professional relations, Patient Protection and Affordable Care Act, Preventive health services, Public private partnerships, Special health care needs

Aspen Education & Society Program and Council of Chief State School Officers. 2017. Leading for equity: Opportunities for state education chiefs. Washington, DC: Council of Chief State School Officers, 32 pp.

Annotation: This guide defines educational equity and describes actions state education chiefs can take to create a more equitable education system in their state. Topics include setting and communicating an equity vision and measurable targets; focusing on the state education agency; creating accountability for equity; engaging local education agencies and providing tailored differentiated support; allocating resources to achieve fiscal equity; investing in the youngest learners; monitoring equitable implementation of standards and assessments; focusing on teachers and leaders; focusing on conditions of learning (school culture, climate, and social-emotional development); and ensuring families have access to high-quality educational options that align to community needs.

Contact: Council of Chief State School Officers, One Massachusetts Avenue, N.W., Suite 700, Washington, DC 20001-1431, Telephone: (202) 336-7000 Fax: (202) 408-8072 E-mail: info@ccsso.org Web Site: http://www.ccsso.org Available from the website.

Keywords: Accountability, Assessments, Communication, Educational change, Equal opportunities, Family centered services, Leadership, Learning, Measures, Policy development, Program development, Public education, Resource allocation, Schools, Standards, State education agencies, Students, Teachers, Teaching

American Academy of Pediatrics, Campaign for Dental Health. 2017. Pediatricians love babies and they love baby teeth!. [Elk Grove Village, IL]: American Academy of Pediatrics, Campaign for Dental Health, 3 items.

Annotation: These resources provide information to help parents of infants ask their pediatrician about how they can partner to ensure that the infant’s mouth is healthy. The resources discuss how to care for an infant’s teeth before they erupt. The resources are available in English and Spanish.

Contact: American Academy of Pediatrics, Campaign for Dental Health, 345 Park Boulevard, Itasca, IL 60143, Telephone: (847) 434-4000 Fax: (847) 434-8000 E-mail: fluoride@aap.org Web Site: http://www.ilikemyteeth.org Available from the website.

Keywords: Family centered care, Health literacy, Infants, Multimedia, Oral health, Parent professional relations, Pediatric care, Preventive health services, Primary care, Spanish language materials

Association of Maternal and Child Health Programs. 2017. National Title V children and youth with special health care needs program profile. Washington, DC: Association of Maternal and Child Health Programs, 15 pp.

Annotation: This report provides a snapshot of Title V Children and Youth with Special Health Care Needs (CYSHCN) programs across the United States. Contents include background and history of CYSHCN programs, recent changes affecting CYSHCN programs, and methods and results from an electronic survey of Title V CYSHCN directors to assess key characteristics of each state's CYSHCN program. Topics include program structure and strengths, roles in systems of care, CYSHCN program partnerships, financing of care for CYSHCN populations and emerging issues for CYSHCN programs.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: info@amchp.org Web Site: http://www.amchp.org Available from the website.

Keywords: Advocacy, Children with special health care needs, Community based services, Consultation, Cultural competency, Data, Family centered care, Financing, Health care delivery, Health care reform, Health care systems, Health insurance, Leadership, Medicaid managed care, Models, Networking, Pediatric care, Policy development, Program coordination, Program development, Public health infrastructure, Public private partnerships, Quality assurance, Reimbursement, Role, Standards, State MCH programs, Title V programs

Boots SW, Romano G, Hayes G. 2016. Engaging parents, developing leaders: A self-assessment and planning tool for nonprofits and schools. Baltimore, MD: Annie E. Casey Foundation, 8 pp.

Annotation: This document is designed to help schools and other nonprofit organizations evaluate their parent engagement efforts and chart a path toward deeper partnerships with parents and other caregivers. Contents include an assessment and planning tool with instructions on how to use it and how to assess its results. Topics include building a culture of respect, inclusion, and equity; coaching parents; forming partnerships with parents; and partnering with others to serve the whole family. Examples of real-world strategies and programs are also included.

Contact: Annie E. Casey Foundation, 701 Saint Paul Street, Baltimore, MD 21202, Telephone: (410) 547-6600 Fax: (410) 547-6624 E-mail: webmail@aecf.org Web Site: http://www.aecf.org Available from the website.

Keywords: Assessment, Competence, Culturally competent services, Equal opportunities, Family centered services, Leadership, Nonprofit organizations, Parents, Planning, Schools

TeethFirst!. 2016. Good dental health: A partnership between you & me. Providence, RI: TeethFirst!, 8 pp.

Annotation: This flip book for health professionals to share with parents and other caregivers covers the basics of good oral health in infants and young children. Each page is double-sided and designed as a teaching tool. The patient-facing pages feature clear, simple text (in English and Spanish) and pictures and illustrations to educate families. On the back of the patient-facing pages are helpful conversation guidelines (in English) for health professionals. The flip book also includes a chart to help health professionals establish self-management goals for families to work on at home.

Contact: TeethFirst!, Rhode Island KIDS COUNT, One Union Station, Providence, RI 02903, Telephone: (401) 351-9400 Fax: (401) 351-1758 E-mail: info@TeethFirstRI.org Web Site: http://www.teethfirstri.org Available at no charge.

Keywords: Dental caries, Disease prevention, Family centered care, Health education, Health promotion, Infants, Nutrition, Oral health, Oral hygiene, Patient education materials, Preventive health services, Spanish language materials, Young children

Heider F, Wirth B, Kuznetsov RD. 2016. Medicaid managed care: Challenges and opportunities for pediatric medical home implementation and children and youth with special health care needs. Elk Grove Village, IL: National Center for Medical Home Implementation, 5 pp.

Annotation: This fact sheet for Title V programs, clinicians, and family leaders provides information about the potential effect of Medicaid and Children's Health Insurance Program (CHIP) managed care on children and youth with special health care needs (CYSHCN) and their families. Topics include requirements for managed care organizations in CHIP and opportunities to mitigate potential unintended negative consequences of Medicaid managed care for CYSHCN and their families. Promising practices and strategies from states are included. [Funded by the Maternal and Child Health Bureau]

Contact: National Center for Medical Home Implementation, American Academy of Pediatrics, 345 Park Boulevard, Itasca, IL 60143, Telephone: (847) 434-7605 Secondary Telephone: (800) 433-9016, ext. 7605 Web Site: https://medicalhomeinfo.aap.org/Pages/default.aspx Available from the website.

Keywords: Children, Contract services, Enrollment, Family centered care, Health care delivery, Health care reform, Medicaid managed care, Medical home, Model programs, Primary care, Service delivery systems, Special health care needs, State MCH programs, Youth

American Dental Association. 2016. Choosing Wisely®: Five things dentists and patients should question. [Philadelphia, PA]: ABIM Foundation, 3 pp.

Annotation: This list is intended to spur conversations between oral health professionals and their patients about how to choose the most appropriate care based on a patient’s specific situation. Contents include information about when procedures may be appropriate, as well as the methodology used to develop the list. Topics include the benefit of fluoride-containing toothpaste for infants and children, applying dental sealants to minimize the need for restorative care later, informed consent best practice, managing temporomandibular joint disorders, and criteria for replacing restorations.

Contact: ABIM Foundation, 510 Walnut Street, Suite 1700, Philadelphia, PA 19106, Web Site: http://www.abimfoundation.org Available from the website.

Keywords: Children, Communication, Decision making, Dental care, Dental caries, Dental sealants, Family centered care, Fluorides, Infants, Informed consent, Oral health, Preventive health services

American Academy of Pediatrics. 2016. Blueprint for children: How the next president can build a foundation for a healthy future. Elk Grove Village, IL: American Academy of Pediatrics, 58 pp.

Annotation: This document outlines a vision for what the federal government can do to improve the lives of children. Contents include a child health policy agenda followed by specific recommendations for each of the relevant federal agencies and departments. Recommendations for administrative and congressional actions and funding priorities are included.

Contact: American Academy of Pediatrics, 345 Park Boulevard, Itasca, IL 60143, Telephone: (630) 626-6000 Secondary Telephone: (847) 434-4000 Fax: (847) 434-8000 Web Site: https://www.aap.org Available from the website.

Keywords: Advocacy, Child health, Family centered care, Federal agencies, Financing, Health insurance, Health services, Legislation, Pediatric care, Policy development, Strategic plans

Damiano PC, Reynolds JC, McKernan SC, Mani S, Kuthy RA. 2015. The need for defining a patient-centered dental home model in the era of the Affordable Care Act. Iowa City, IA: University of Iowa, Public Policy Center, 32 pp.

Annotation: This report describes medical home and dental home models of care, Affordable Care Act–related health care system changes, and options for integrating oral health services and other health care services. Topics include medical-dental integration approaches, features of highly integrated systems, oral health integration into medical and health home models, integration in training programs, advantages and barriers to integration, and future directions for the patient-centered dental home.

Contact: University of Iowa, Public Policy Center, 310 South Grand Avenue, 209 South Quadrangle, Iowa City, IA 52242, Telephone: (319) 335-6800 Fax: (319) 335-6801 Web Site: http://ppc.uiowa.edu Available from the website.

Keywords: Dental care, Family centered services, Health care delivery, Health care reform, Health insurance, Medical home, Model programs, Oral health, Patient Protection and Affordable Care Act, Patient care, Service coordination, Service delivery systems, Service integration

Lorenzo SB. 2014. Kids and teens with special health care needs: Resources for families (2nd ed., upd.). Washington, DC: National Center for Education in Maternal and Child Health, 1 p.

Annotation: This brief is designed to help families find care, services, and support and websites about kids and teens with special health care needs. Resources about communicating online are included. [Funded by the Maternal and Child Health Bureau]

Contact: National Center for Education in Maternal and Child Health, Georgetown University, Box 571272, Washington, DC 20057-1272, Telephone: (202) 784-9770 E-mail: mchgroup@georgetown.edu Web Site: https://www.ncemch.org Available from the website.

Keywords: Adolescents with special health care needs, Bibliographies, Children with special health care needs, Electronic publications, Families, Family centered services

National Center for Family / Professional Partnerships. 2014. Family-centered care assessment. Albuquerque, NM: National Center for Family / Professional Partnerships, multiple items.

Annotation: This resource describes a tool to help pediatricians and other health professionals improve family-centeredness of their care. The quality measurement questionnaire comprises 24 validated questions on topics such as decision-making interactions, family support, community services, and cultural competence. The resource includes information about using the Family-Centered Care Assessment (FCCA) for families, health care providers, and researchers; a FCCA fact sheet and project timeline; and links to a self-assessment tool and user guide for families and providers. Additional resources on family-centered care are included. [Funded by the Maternal and Child Health Bureau]

Contact: National Center for Family / Professional Partnerships, Family Voices, 3701 San Mateo Boulevard, N.W., Suite 103, Albuquerque, NM 87110, Telephone: (505) 872-4774 Secondary Telephone: (888) 835-5669 Fax: (505) 872-4780 Web Site: http://www.fv-ncfpp.org Available from the website.

Keywords: Assessment, Cultural competence, Decision making, Family centered care, Family support services, Measures, Pediatric care, Program improvement, Quality assurance, Special health care needs

Building Bridges Initiative. 2014. Supporting siblings when a brother or sister is receiving residential interventions: Key issues and tips for providers and families. [no place]: Building Bridges Initiative, 11 pp. (A Building Bridges Initiative tip sheet)

Annotation: This tip sheet provides an overview of key issues and tips for supporting siblings when a brother or sister is receiving residential interventions for behavioral and/or emotional challenges. Contents include background on why it is important to support siblings and strategies for families and other caregivers.

Contact: Building Bridges Initiative, U.S. Substance Abuse and Mental Health Administration, E-mail: gary.blau@samhsa.hhs.gov Web Site: http://www.buildingbridges4youth.org Available from the website.

Keywords: Behavior problems, Family centered services, Family support programs, Mental health, Residential care, Siblings

Hughes D. 2014. A review of the literature pertaining to family-centered care for children with special health care needs. Palo Alto, CA: Lucile Packard Foundation for Children's Health, 32 pp.

Annotation: This document summarizes findings from a review of selected research related to family-centered care (FCC) for children with special health care needs (CSHCN). Contents include highlights from studies that examine the following components of FCC: family-provider partnerships, coordinated care, racial/ethnic and linguistic barriers, and culturally competent care. It also examines access, unmet need and satisfaction for CSHCN and outcomes of FCC and medical homes.

Contact: Lucile Packard Foundation for Children's Health, 400 Hamilton Avenue, Suite 340, Palo Alto, CA 94301, Telephone: (650) 497-8365 E-mail: info@lpfch.org Web Site: http://www.lpfch.org Available from the website.

Keywords: Adolescents, Children, Culturally competent services, Ethnic factors, Families, Family centered care, Health care delivery, Language barriers, Literature reviews, Parent professional relations, Service coordination, Special health care needs

Center on the Developing Child at Harvard University. 2013. Building adult capabilities to improve child outcomes: A theory of change. Cambridge, MA: Center on the Developing Child at Harvard University, 1 video (5 min. 19 sec.).

Annotation: This 5-minute video depicts a theory of change from the Frontiers of Innovation community for achieving breakthrough outcomes for vulnerable children and families. It describes the need to focus on building the capabilities of caregivers and strengthening the communities that together form the environment of relationships essential to children’s lifelong learning, health, and behavior.

Contact: Center on the Developing Child at Harvard University, 50 Church Street, Fourth Floor, Cambridge, MA 02138, Telephone: (617) 496-0578 E-mail: developingchild@harvard.edu Web Site: http://www.developingchild.harvard.edu Available from the website.

Keywords: Audiovisual materials, Children, Community based services, Families, Family centered services, Family support services, Vulnerability

Nelson J, Yadrich D. 2013. Family caregivers of children with special health care needs: The need for caregiver support as truly family-centered care. Minneapolis, MN: University of Minnesota, Leadership Education in Neurodevelpomental and Related Disabilities Program, 4 pp.

Annotation: This fact sheet presents information on the importance of family caregiver support to the health and well-being of children and adolescents with special health care needs and their families throughout the life course. Topics include caregiving and the life course, parent perspectives, and recommendations for health professionals. [Funded by the Maternal and Child Health Bureau]

Contact: University of Minnesota, Leadership Education in Neurodevelpomental and Related Disabilities Program, University of Minnesota, 103 Pattee Hall, 150 Pillsbury Drive, S.E., Minneapolis, MN 55455, Telephone: (612) 624-6830 E-mail: fond0030@umn.edu Web Site: http://lend.umn.edu Available from the website.

Keywords: Caregivers, Children with special health care needs, Family centered care, Family support services, Parent professional relations

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This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.