Search Results: MCHLine

Annotation: This study sought to document, evaluate, and disseminate information about two community-based projects designed as models of collaborative interagency service provision for children and families. The project developed a set of recommendations for collaborative efforts, addressing procedure as well as policy and organization. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-152890.

Keywords: Children with special health care needs, Collaboration, Community-Based Health Care, Family centered, Fragmentation of Services, Health Professionals, Interagency cooperation, community based care

Annotation: Project Copernicus, a dual-State initiative for Maryland and Virginia, developed, demonstrated, and evaluated training programs in family-centered service coordination with target groups of professional service providers and parents in urban, rural, and suburban areas of Maryland and Virginia. Project Copernicus demonstrated how to provide family-centered care for families with children with special health needs by assisting both parents and professional service providers to develop and use family-centered service coordination activities (case management). [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB97-121859.

Keywords: Access to Health Care, CSHCN, Case Management, Chronic illnesses and disabilities, Coordination of Health Care, Disabled, Education of Health Professionals, Families, Family-Centered Health Care, Fragmentation of Services, Parent Education, Parents, programs

Annotation: The project's goals were to: (1) Develop and implement structures and processes in defined community areas to plan and implement a family-centered, community-based health care delivery system for children; (2) develop data system capacity and function statewide to ensure family-centered, community-based primary care services for children; and (3) share experiences in family-centered, community-based system change in the area of primary health care for children with other State, regional, and national maternal and child health providers. At the State level, strategies were directed toward developing a system of children's primary health care delivery that was family centered and community based. At the local level, child health steering committees in established projects were to continue to plan and implement child health system changes in their service areas. [Funded by the Maternal and Child Health Bureau]

Keywords: Access to Health Care, Child Mortality, Community Based Health Services, Databases, Family Centered Health Care, Information Systems, Primary Care, Standards of Care, State Programs

Annotation: This document encourages families to partner with health professionals on getting preventive health services and to take a lead role in promoting health at home and where they live, work, and play. Topics include how information sharing between families and health professionals can promote child health, the Affordable Care Act's preventive health services for children, the Bright Futures initiative, and tips for a healthy lifestyle. [Funded by the Maternal and Child Health Bureau]

Contact: Family Voices, IMPACT, 3701 San Mateo Boulevard, N.E., Suite 103, Albuquerque, NM 87110, Telephone: (505) 872-4774 Secondary Telephone: (888) 835-5669 Fax: (505) 872-4780 Web Site: http://www.fv-impact.org Available from the website.

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Keywords: Bright Futures, Child health, Children, Families, Family centered care, Health care reform, Health promotion, Parent professional relations, Patient Protection and Affordable Care Act, Preventive health services, Public private partnerships, Special health care needs

Annotation: This brief provides an overview of research-based practices and policies that state leaders can use to support meaningful family engagement in children's early learning, which ultimately improves child and family outcomes. The document provides links to Federal statutes and policies that require family engagement, evidence-based strategies for promoting family engagement, barriers to fostering family engagement, and problem-solving methods to overcome barriers. In addition, the brief provides examples of successful programs from different states.

Contact: SRI International, 333 Ravenswood Avenue, Menlo Park, CA 94025-3493, Telephone: (650) 859-2000 Web Site: https://www.sri.com

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Keywords: Early childhood education, Family centered services, Family health, Family support programs

Annotation: This report provides practical recommendations for providers, payers, and policy makers to consider in adopting approaches to transform child health care delivery. The report is a product of the Accelerating Child Health Transformation initiative, which works to identify, test, and disseminate a comprehensive and adaptable set of blueprints that can be used to transform child health care services to lead to improved child and family well-being, as well as racial equity. The Center for Health Care Strategies identified three key strategies that are integral to child health care transformation: adopting anti-racist practices and policies to advance health equity; co-creating equitable partnerships with patients, families, and providers; and identifying family strengths and addressing health-related social needs to promote resilience.

Contact: Center for Health Care Strategies, 300 American Metro Boulevard, Suite 125, Hamilton, NJ 08619, Telephone: (609) 528-8400 Fax: (609) 586-3679 Web Site: http://www.chcs.org

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Keywords: Access to health care, Child health, Family centered services, Family health, Family support programs, Health care disparities, Health status disparities, Policy development

Annotation: This document outlines the Association of Maternal and Child Health Programs' (AMCHP's) guiding principles and values for family engagement and partnership, structured in two main sections. The first section describes key principles about family leaders, recognizing them as essential partners who bring unique expertise, visionary perspectives, and the ability to question the status quo while looking beyond their own family's experiences. The second section details AMCHP's responsibilities in fostering authentic partnerships, emphasizing the organization's commitment to respectful listening, mutual respect, open communication, comprehensive support (including training and accommodations), and the integration of family leaders in decision-making at program and policy levels.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: MCH programs, Family centered health care, Family centered services, Collaboration, Social values, Family engagement

Annotation: Through a series of three connected video interviews, current and former family representatives on AMCHP's Board of Directors share their experiences serving in these dedicated board positions, which are a key component of AMCHP's commitment to family engagement and partnership. The interviewees discuss their enthusiasm for the role, highlighting both the opportunities they've encountered and the vital importance of incorporating family perspectives at the board level. Their testimonials emphasize how these designated family representative seats ensure that family voices actively contribute to AMCHP's organizational governance and decision-making processes, while also exploring potential ways to further strengthen these partnerships.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Family engagement, Collaboration, MCH programs, Family centered services, Administrative policies, Title V programs, Arkansas,

Annotation: This document outlines AMCHP's guiding principles and values for family engagement and partnership, structured in two main sections. The first section describes key principles about family leaders, recognizing them as essential partners who bring unique expertise, visionary perspectives, and the ability to question the status quo while looking beyond their own family's experiences. The second section details AMCHP's responsibilities in fostering authentic partnerships, emphasizing the organization's commitment to respectful listening, mutual respect, open communication, comprehensive support (including training and accommodations), and the integration of family leaders in decision-making at program and policy levels.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Family engagement, Collaboration, MCH programs, Family centered services, Administrative policies, Title V programs

Annotation: This issue brief from the Association of Maternal & Child Health Programs examines the intersection of housing instability, mental health, and substance use disorders (SUD) among maternal and child health populations. It highlights how homelessness disproportionately affects women and children, with 33% of the U.S. homeless population being families with children, and describes how housing instability both contributes to and is exacerbated by mental illness and SUD. The document outlines various housing intervention models, from prevention to permanent supportive housing, including Recovery Housing and Housing First approaches, and emphasizes the importance of cross-system collaborations between healthcare and housing partners. It presents successful state initiatives and partnerships between Title V programs, Medicaid agencies, child welfare departments, and housing authorities, such as Massachusetts' FOR Families program and North Carolina's Healthy Opportunities Pilot. The brief concludes with specific strategies for Title V programs to address these intersecting challenges, including promoting housing instability screening in healthcare settings, partnering with housing authorities, and ensuring home visitors are equipped with appropriate tools and resources.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Mental health, Title V programs, Block grants, Housing, Homelessness, Substance abuse, Family centered services

Annotation: This FES toolkit is designed to inspire and support child- and family-serving organizations working to engage families and family-led organizations in systems-level initiatives. It is designed to work with the Family Engagement in Systems Assessment (FESAT) tool to be used to assess and improve family engagement. It provides strategies in the domains of commitment, transpoarency, representation, and impact. Related documents include the Family Engagement in Systems Assessment Tool (FESAT), a user's guide, and a score sheet.

Contact: Family Voices, P.O. Box 37188, Albuquerque, NM 87176, Telephone: (505) 872-4774 Secondary Telephone: (888) 835-5669 Fax: (505) 872-4780 Web Site: http://www.familyvoices.org Available from the website.

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Keywords: Families, Family centered care, Family centered services, Manuals, Parent participation

Annotation: This article discusses the origins and history of patient- and family-centered care; provides as overview of several existing frameworks for patient-centeredness; and highlights several strategies for promoting coproduction in Hospital Medicine, organized around 4 key tenets (cocommissioning, codesign, c-delivery, and coassessment).

Contact: Elsevier, Health Sciences Division, 1600 John F. Kennedy Boulevard, Suite 1800, Philadelphia, PA 19103-2822, Telephone: (215) 239-3900 Fax: (215) 239-3990 Web Site: http://www.us.elsevierhealth.com

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Keywords: Child health, Family centered care, Hospital services, Patient care

Annotation: This tip sheet for providers supporting parents or caregivers offers guidance on selecting appropriate telehealth providers, particularly for specialized services like pediatric psychiatry for children with autism. It emphasizes the importance of thorough provider vetting through licensing boards, health plan networks, and specific board guidelines for telehealth services. The document pays special attention to autism diagnosis via telehealth, comparing different assessment tools: the M-CHAT (Modified Checklist for Autism in Toddlers) and CARS (Childhood Autism Rating Scale) screenings are noted as being well-suited for telehealth delivery, while the ADOS-2 (Autism Diagnostic Observation Schedule-Second Edition) diagnostic tool presents more challenges due to its interactive nature, requiring additional preparation and parent training to be administered remotely. Considerations for selecting providers-- e.g., technical setup quality and ability to maintain effective rapport with young patients-- are included.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Resources for professionals, Telemedicine, Title V programs, Family support services, Family centered care, Autism

Annotation: This guide defines educational equity and describes actions state education chiefs can take to create a more equitable education system in their state. Topics include setting and communicating an equity vision and measurable targets; focusing on the state education agency; creating accountability for equity; engaging local education agencies and providing tailored differentiated support; allocating resources to achieve fiscal equity; investing in the youngest learners; monitoring equitable implementation of standards and assessments; focusing on teachers and leaders; focusing on conditions of learning (school culture, climate, and social-emotional development); and ensuring families have access to high-quality educational options that align to community needs.

Contact: Council of Chief State School Officers, One Massachusetts Avenue, N.W., Suite 700, Washington, DC 20001-1431, Telephone: (202) 336-7000 Fax: (202) 408-8072 E-mail: [email protected] Web Site: http://www.ccsso.org Available from the website.

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Keywords: Accountability, Assessments, Communication, Educational change, Equal opportunities, Family centered services, Leadership, Learning, Measures, Policy development, Program development, Public education, Resource allocation, Schools, Standards, State education agencies, Students, Teachers, Teaching

Annotation: These resources provide information to help parents of infants ask their pediatrician about how they can partner to ensure that the infant’s mouth is healthy. The resources discuss how to care for an infant’s teeth before they erupt. The resources are available in English and Spanish.

Contact: American Academy of Pediatrics, Campaign for Dental Health, 345 Park Boulevard, Itasca, IL 60143, Telephone: (847) 434-4000 Fax: (847) 434-8000 E-mail: [email protected] Web Site: http://www.ilikemyteeth.org Available from the website.

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Keywords: Family centered care, Health literacy, Infants, Multimedia, Oral health, Parent professional relations, Pediatric care, Preventive health services, Primary care, Spanish language materials

Annotation: This report provides a snapshot of Title V Children and Youth with Special Health Care Needs (CYSHCN) programs across the United States. Contents include background and history of CYSHCN programs, recent changes affecting CYSHCN programs, and methods and results from an electronic survey of Title V CYSHCN directors to assess key characteristics of each state's CYSHCN program. Topics include program structure and strengths, roles in systems of care, CYSHCN program partnerships, financing of care for CYSHCN populations and emerging issues for CYSHCN programs.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org Available from the website.

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Keywords: Advocacy, Children with special health care needs, Community based services, Consultation, Cultural competency, Data, Family centered care, Financing, Health care delivery, Health care reform, Health care systems, Health insurance, Leadership, Medicaid managed care, Models, Networking, Pediatric care, Policy development, Program coordination, Program development, Public health infrastructure, Public private partnerships, Quality assurance, Reimbursement, Role, Standards, State MCH programs, Title V programs

Annotation: This document is designed to help schools and other nonprofit organizations evaluate their parent engagement efforts and chart a path toward deeper partnerships with parents and other caregivers. Contents include an assessment and planning tool with instructions on how to use it and how to assess its results. Topics include building a culture of respect, inclusion, and equity; coaching parents; forming partnerships with parents; and partnering with others to serve the whole family. Examples of real-world strategies and programs are also included.

Contact: Annie E. Casey Foundation, 701 Saint Paul Street, Baltimore, MD 21202, Telephone: (410) 547-6600 Fax: (410) 547-6624 E-mail: [email protected] Web Site: http://www.aecf.org Available from the website.

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Keywords: Assessment, Competence, Culturally competent services, Equal opportunities, Family centered services, Leadership, Nonprofit organizations, Parents, Planning, Schools

Annotation: This flip book for health professionals to share with parents covers the basics of good oral health in infants and young children. Each page is double-sided and designed as a teaching tool. The patient-facing pages feature simple text (in English and in Spanish) and pictures and illustrations to educate families. On the back of the intended to complement the materials that home visitors use with families and can be incorporated into topics that home visitors address with families. Topics include the importance of primary teeth, brushing and flossing, eating healthy foods, drinking water, and visiting the dentist. Setting and reaching oral health goals and addressing oral health problems or emergencies are also discussed.

Contact: TeethFirst!, Rhode Island KIDS COUNT, One Union Station, Providence, RI 02903, Telephone: (401) 351-9400 Fax: (401) 351-1758 E-mail: [email protected] Web Site: http://www.teethfirstri.org Available from the website.

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Keywords: Dental caries, Disease prevention, Family centered care, Health education, Health promotion, Infants, Nutrition, Oral health, Oral hygiene, Patient education materials, Preventive health services, Spanish language materials, Young children

Annotation: This fact sheet for Title V programs, clinicians, and family leaders provides information about the potential effect of Medicaid and Children's Health Insurance Program (CHIP) managed care on children and youth with special health care needs (CYSHCN) and their families. Topics include requirements for managed care organizations in CHIP and opportunities to mitigate potential unintended negative consequences of Medicaid managed care for CYSHCN and their families. Promising practices and strategies from states are included. [Funded by the Maternal and Child Health Bureau]

Contact: National Resource Center for Patient/Family-Centered Medical Home, American Academy of Pediatrics, 345 Park Boulevard, Itasca, IL 60143, Telephone: (847) 434-7605 Secondary Telephone: (800) 433-9016, ext. 7605 Web Site: https://www.aap.org/en/practice-management/medical-home Available from the website.

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Keywords: Children, Contract services, Enrollment, Family centered care, Health care delivery, Health care reform, Medicaid managed care, Medical home, Model programs, Primary care, Service delivery systems, Special health care needs, State MCH programs, Youth

Annotation: This list is intended to spur conversations between oral health professionals and their patients about how to choose the most appropriate care based on a patient’s specific situation. Contents include information about when procedures may be appropriate, as well as the methodology used to develop the list. Topics include the benefit of fluoride-containing toothpaste for infants and children, applying dental sealants to minimize the need for restorative care later, informed consent best practice, managing temporomandibular joint disorders, and criteria for replacing restorations.

Contact: ABIM Foundation, 510 Walnut Street, Suite 1700, Philadelphia, PA 19106, Web Site: http://www.abimfoundation.org Available from the website.

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Keywords: Children, Communication, Decision making, Dental care, Dental caries, Dental sealants, Family centered care, Fluorides, Infants, Informed consent, Oral health, Preventive health services