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Strengthen the Evidence for Maternal and Child Health Programs

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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.

Displaying records 1 through 3 (3 total).

Horsley JW, Allen ER, Daniel PW. 1996. Nutrition management of school age children with special needs: A resource manual for school personnel, families, and health professionals = Nutrition management of handicapped and chronically ill school children: A resource manual for school personnel, families and health professionals. (2nd ed.). Richmond, VA: Virginia Department of Health and Virginia Department of Education, 93 pp.

Annotation: This manual, a product of an interagency project between the Virginia Departments of Health and Education, is a guide for parents and professionals on the management of nutrition problems of school children with special needs. It helps school personnel plan nutrition services for students who have special health needs or are chronically ill. The information included facilitates the management of special diets and the expansion of nutrition education in the school curriculum. It includes information on these topics: common nutrition problems and interventions during the school day; dietary considerations of specific conditions and related factors; and nutrition goals and objectives for the individualized education program. Dietary considerations and sources of information and/or nutrition education materials for the following conditions are discussed: cerebral palsy, cystic fibrosis, diabetes mellitus, Down syndrome, juvenile rheumatoid arthritis, phenylketonuria, seizure disorders, spina bifida, constipation, feeding abnormalities, and tube feeding. Nine case studies are presented. The appendix includes information on lunch menu ideas for special diets, nutritious snacks, textural modifications, arthritis diet and drugs, complications of tube feeding, and PKU diet free foods. [Funded by the Maternal and Child Health Bureau]

Contact: Maternal and Child Health Library at Georgetown University, E-mail: [email protected] Web Site: https://www.mchlibrary.org Available for loan. Document Number: HRSA Info. Ctr. MCHI113.

Keywords: Cerebral palsy, Children with special health care needs, Constipation, Cystic fibrosis, Diabetes mellitus, Down syndrome, Enteral nutrition, Epilepsy, Feeding disorders, Individualized education programs, Juvenile rheumatoid arthritis, Nutrition, Phenylketonuria, School food services, Spina bifida

Shankaran S. 1996. Feeding Method and Fat Tolerance in Very Low Birthweight Neonates [Final report]. Detroit, MI: Wayne State University, 4 pp.

Annotation: Two approaches were available for providing very low birthweight neonates with adequate nutrition: (1) Parenteral nutrition, which was complicated by the limited tolerance of very low birthweight neonates for the various nutrients; or (2) enteral nutrition, complicated by the limited volume of intake. We allocated 90 very low birthweight neonates (750–1,499 grams) randomly to continuous gastric drip or intermittent bolus feeding as soon as their clinical condition allowed enteral feedings. We monitored intestinal tolerance to the formula, growth (by anthropometric measurements and estimation of body composition by total body electrical conductivity), rate of progression of feedings, and macronutrient balance studies. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB99-111973.

Keywords: Enteral Feeding, Low Birthweight, MCH Research, Newborn infants, Nutrition, Parenteral Feeding, Research

Moffitt K, Reiss J, Nackashi J, eds. 1992 (ca.). Special children, special care. Tallahassee, FL: Florida Developmental Disabilities Planning Council, ca. 350 pp.

Annotation: This training and resource manual for families and others who care for children with special health needs is intended to address the challenges and issues facing families as they care for their children at home. Part I, Care Management, includes information related to record keeping, emotional aspects, family affairs, financial assistance, legal issues, and educational needs. The second part, Care Provision, includes skills and techniques needed for using equipment, dispensing medication, meeting daily physical needs, and providing basic home health and first aid techniques. The manual includes forms, checklists and charts for parents to record information on the care of their child. Resource lists and bibliographies are provided at the end of each section.

Contact: USF Bookstores, 4202 East Fowler Avenue, BKS0269, Tampa, FL 33620, Telephone: (813) 974-2631 Web Site: http://sftampa.bncollege.com/webapp/wcs/stores/servlet/BNCBHomePage?storeId=15056&catalogId=10001&langId=-1 $28.95, make checks payable to USF.

Keywords: Catheterization, Children with special health care needs, Education, Emotional adjustment, Enteral nutrition, Families, Health care financing, Health insurance, Legal issues, Medical records, Respiratory therapy, Social services, Therapeutics, Training materials
   

This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.