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Strengthen the Evidence for Maternal and Child Health Programs

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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 20 (336 total).

Sells C. n.d.. High Priority Infant Tracking Project [Final report]. Olympia, WA: Washington State Office of Parent Child Health Services, 53 pp.

Annotation: Washington State developed and established a system for identifying and tracking high risk infants from birth to age three years. It was an integrated service of the community health care system, including hospitals, health departments, and primary care providers. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-196715.

Keywords: Early intervention, High risk infants, Identification, Tracking system

Berman C. n.d.. Project Zero to Three: [Final report]. Washington, DC: National Center for Clinical Infant Programs, 48 pp.

Annotation: The main goal of this project was to improve services for infants and toddlers with disabilities (or at risk for disabililties) and for their families by developing an interstate network for early identification and intervention services for this population. Activities included a national network meeting, two regional conferences, an intensive course, small topical meetings, consultations, publications, and a newsletter. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB92-103373.

Keywords: American Public Welfare Association, Children', Collaboration of Care, EPDST, Early Intervention, Environmental Risk, Families, Family-Based Health Care, Healthy Mothers Healthy Babies Coalition, High risk infants, Networking, PL 99-457, WIC Program, s Defense Fund

Calkins R. n.d.. Planning and Establishment of a Parent-Child Development Center=Family Based Education Centers: [Final report]. Honolulu, HI: Kamehameha Schools/Bishop Estate Center for Development of Early Education, 50 pp.

Annotation: This project developed a model integrated service system of educational, health, and social service programs for families of Hawaiian children (prenatal to age 5 years) who are disproportionately at risk for health, social, and educational handicaps. Four Native Hawaiian Family Based Education Centers were established, with three core educational components: A home visiting program, a traveling preschool program, and a center-based preschool. Activities included conducting an extensive assessment of community needs and developing ongoing ties with institutions of higher learning in the State. Strong health promotion and social service programs complemented the educational focus, and a case management system helped families assess their own goals in each of these areas. Community participation and ownership of the program were critical components. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-147023.

Keywords: Community-Based Education Programs, Data Collection, Early Intervention, Education, Family-Based, Hawaiians, Home Visiting, Infant Mortality, Learning Disabilities, Low Birthweight, Parents, Prenatal Care

Peter M. n.d.. Medical Home Project: [Final report]. Honolulu, HI: Hawaii Medical Association, 30 pp.

Annotation: The goals of this project were to: (1) Develop and demonstrate office-based models that assure comprehensive services through the medical home for all children, especially those served under Part H of P.L. 99-457; (2) promote effective linkages and coordination of care between the medical home and early intervention service providers through community forums; and (3) gather, develop, and disseminate nationally creative strategies that promote comprehensive care through the medical home. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB97-121-891.

Keywords: Children with Special Health care Needs, Early Intervention, Information dissemination, Medical Home, Minority Groups, PL 99-457, Service Coordination

Nicol P. n.d.. Coordinated Community-Based Services: [Final report]. Frankfort, KY: Division of Maternal and Child Health, Department for Health Services, Kentucky Cabinet for Human Resources, 39 pp.

Annotation: The principle aim of this project was to demonstrate a coordinated, community-based program model for the screening, evaluation, and treatment of children from birth to five years of age with developmental disabilities, children at risk for them, and for their families. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-152932.

Keywords: Children with special health care needs, Collaboration, Developmental disorders, Early intervention, Family centered care, Interagency cooperation, community based care

Partridge S. n.d.. PROJECT AIMS [Final report]. Portland, ME: University of Southern Maine, 37 pp.

Annotation: Project AIMS worked to strengthen the capacity of Maine's service system (including P.L. 99-457 efforts) to meet the emotional health needs of young children (birth to 5 years old) and their families. The project objectives were to: (1) Establish a multidisciplinary network of project associates; (2) develop and field-test an emotional health brief assessment tool for children birth to 5 years old; (3) recommend to the service network methods of conducting comprehensive psychosocial assessments of children/families with emotional difficulties; and (4) strengthen treatment services which facilitate attachment, interaction, mastery, and support within families. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-158608.

Keywords: 99-457, Community-Based Health Services, Coordination of Health Care, Data Collection, Early Intervention, Emotional Health, High risk children, High risk groups: Families, L, P, Parent-Child Interaction, Screening Tools

Anderson B. n.d.. Collaboration Among Parents and Health Professionals (CAPP) [Final report]. Boston, MA: Federation for Children with Special Needs, 66 pp.

Annotation: This project worked with the Technical Assistance for Parent Programs Project and the U.S. Office of Special Education Resources in order to increase and enhance parent involvement in the health care of children with disabilities and special health needs. The project sought to (1) prepare parents to assume an integral role in the health care of their children with disabilities; (2) promote effective communication and collaboration among health care professionals and parents in order to enhance health services for children; and (3) develop a national support system to ensure that parents have access to essential information and peer support. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-152940.

Keywords: 99-457 Financing Intervention, Early Association for the Care of Children', Health Professionals, L, Parent Education Parent Professional Communication Peer Support P, Parents, s Health (ACCH) Parent Networks

Benford M. n.d.. MATCH II: A Merged Database for Health and Developmental Disabilities [Final report]. Columbus, OH: Ohio Department of Health, 10 pp.

Annotation: The goal of this project was to improve coordination and continuity of early intervention and health related services to infants and young children who have, or are at risk for, developmental disabilities or delays. The project developed a collaborative mechanism via computer linkage for referring, tracking, and evaluating these children. A microbased computerized identification, referral, and tracking system has been developed for use at the local level. Through the merged database and tracking system, the project sought to improve child find, service coordination, follow-along, and program evaluation. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-161974.

Keywords: Case Management, Collaboration of Care, Computer Linkage, Data Bases, Data Collection, Developmentally Delayed/Disabled, EPDST, Early Intervention, Families, High risk infants, Medicaid, Referrals, WIC Program

Nickel R. n.d.. Oregon Developmental Monitoring Project for High Risk Infants [Final report]. Eugene, OR: Oregon Health Sciences University , 38 pp.

Annotation: This project established a model program for the coordination of early identification and assessment services for infants 0-3 years of age at high risk for major handicaps. It aimed to make appropriate developmental screening available as close as possible to the infant's home community, to provide the necessary developmental screening training to local health and educational service providers, and to provide the regional coordination for the many agencies and professional involved. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-156693.

Keywords: Clinics, Coordination of Health Care, Early Intervention, Education of Health Professionals, High risk infants, Rural Population, Screening

Prenatal-to-3 Policy Impact Center . 2023. Evidence-based home visiting programs. Nashville, TN: Prenatal-to-3 Policy Impact Center ,

Annotation: This policy brief examines evidence-based home visiting programs as an effective strategy to support parents and young children from the prenatal period through age three. It describes how home visiting programs provide support and education to parents through trained professionals or paraprofessionals in home-based settings, with services now available both traditionally and virtually. The brief details the positive impacts on parenting skills, state variations in implementation approaches, funding mechanisms including Medicaid, and the percentage of eligible families served across states. It highlights leading states like Illinois, Iowa, Kansas, Maine, and New York, and summarizes recent state initiatives to enhance these programs through increased funding and expanded eligibility.

Contact: Prenatal-to-3 Policy Impact Center , Vanderbilt University , Peabody College of Education and Human Development, Nashville, TN 37203, E-mail: https://pn3policy.org/contact/ Web Site: https://pn3policy.org/

Keywords: Early intervention, Financing, Home Visits, Illinois, Iowa, Kansas, MCH programs, Maine, Medicaid, Model programs, New York, Parent support services, Policy, Prenatal care

Ferguson D, Smith S, Granja M, Lasala O, Cooper H. 2022. Child welfare and early intervention: Policies and practices to promote collaboration and help infants and toddlers thrive. New York, NY: National Center for Children in Poverty , 19 pp.

Annotation: This brief examines promising strategies used in three states (Texas, Colorado, and Rhode Island) to address the developmental and mental health needs of infants and toddlers involved in Child Welfare (CW). The brief focuses primarily on the roles of state and local CW and Part C of the federal Individual with Disabilities Education Act (IDEA) that establishes requirements for providing Early Intervention (EI) services to infants and toddlers with disabilities. Additional support from other sectors and settings (e.g., mental health and home visiting) are also highlighted.

Contact: National Center for Children in Poverty, 215 West 125th Street, Third Floor, New York, NY 10027, Telephone: (646) 284-9600 Fax: (646) 284-9623 E-mail: [email protected] Web Site: http://www.nccp.org Available from the website.

Keywords: Child development, Children, Early intervention, Ethnic groups, Infants, Low income groups, Mental health, Model programs , Poverty, State programs, Toddlers

2021. Learn the signs. Act Early. AMCHP's State Systems Grant: Eight Years in Review. [Washington, DC]: Association of Maternal and Child Health Programs, 17 pp. (Issue Brief)

Annotation: This report discusses the "Learn the Signs. Act Early" (LTSAE) state systems grant program's impact on improving early identification and intervention for children with Autism Spectrum Disorder and developmental disabilities. It examines three key impact areas: 1) engaging stakeholders and strengthening partnerships across 29 states, 2) training and raising awareness among key stakeholders in 28 states, and 3) developing statewide systems improvements. The document provides detailed case studies from multiple states, including Virginia's success in developing diagnostic teams, Mississippi's statewide coordination efforts, and Massachusetts' multilingual outreach program. While states faced challenges like budget constraints and system coordination, the grant program successfully built state capacity for early identification and service coordination through formalized developmental monitoring, stakeholder engagement, and increased awareness among caregivers and providers.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

Keywords: MCH programs, State grants, Autism, Developmental screening, Developmental disabilities, Early intervention

Corona A, Leahy M, Taft K. 2021. Roadmap of Collaboration among Title V, Home Visiting, and Early Childhood Systems Programs: Accelerating Improvements in Early Childhood Outcomes. [Washington, DC]: Association of Maternal and Child Health Programs, 44 pp.

Annotation: This report outlines AMCHP's framework for collaboration among Title V, Maternal, Infant, and Early Childhood Home Visiting (MIECHV), and Early Childhood Systems (ECS) programs, which was developed with HRSA MCHB and updated in 2021-2023. The resource includes analysis of facilitators and barriers to collaboration, a refined framework for program alignment, case studies from Guam, Indiana, Louisiana, and Mississippi, and tools for implementing collaborative strategies. It's designed for program administrators and public health professionals, focusing on systems-building approaches to optimize statewide early childhood systems through improved coordination between Title V MCH Services Block Grant, MIECHV Program, and ECCS Program initiatives.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

Keywords: MCH programs, Title V programs, Block grants, Children', s health, Home visiting programs, Early intervention, Guam, Louisiana, Mississippi, Indiana

Wood K, Olson K, Sharpe J, Fleck M, Hine J, Bussanich P (facilitator). 2021. 2021 Autism Acceptance Month Coffee Talk Recording: Reaching Families Through Telemedicine [Title on resource: SPHARC Coffee Talk #1: Reaching Families Through Telemedicine: Vanderbilt's Early Assessment, Intervention, and Part C Mentorship Program for ASD]. [Washington, DC]: Association of Maternal and Child Health Programs, SPHARC; Nashville, TN: Vanderbilt University Medical Center, Vanderbilt Kennedy Center, 1 h 00 m 18 s. (SPHARC Coffee Talk)

Annotation: One of a series of four Coffee Talks given in April 2021, this presentation discusses Vanderbilt's TRIAD (Treatment and Research Institute for Autism Spectrum Disorders) program. The presentation covers the implementation and evaluation of telemedicine services for autism assessment and intervention, particularly focusing on reaching underserved rural communities. It outlines the program's development from 2014-2019, including their tele-diagnostic consultation service model, the TELE-ASD-PEDS assessment tool (Telemedicine-based ASD Assessment in Toddlers), and outcome data comparing in-person, hybrid, and telemedicine-only service delivery methods. Data from a satisfaction survey compares effectiveness across all delivery methods in terms of treatment fidelity, communication improvements, the discussion covers the benefits of telemedicine services, such as reduced wait times, increased accessibility, and cost savings for families. The program's TEAM Opp initiative specifically focuses on building capacity in rural and under-resourced areas by partnering with local agencies and training developmental therapists, with satisfaction surveys indicating strong positive feedback from both providers and caregivers regarding the telehealth services.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

Keywords: Autism, Early intervention, Telemedicine, Assessment, Underserved communities, Tennessee, Mentors

National Maternal and Child Oral Health Resource Center. 2020. Preventive dental visits for children and adolescents are important!. Washington, DC: National Maternal and Child Oral Health Resource Center, 2 pp.

Annotation: This infographic provides information about benefits of and barriers to receiving preventive dental visits for children and adolescents. It emphasizes the importance of these visits to reduce oral health problems and promote overall health throughout life. It discusses integration of oral health care into primary care, the cost savings that early intervention can confer, and disparities in oral health status and in access to oral health services. The infographic is available in English and in Spanish. [Funded by the Maternal and Child Health Bureau]

Contact: National Maternal and Child Oral Health Resource Center, Georgetown University, Washington, DC 20057, E-mail: [email protected] Web Site: https://www.mchoralhealth.org Available from the website.

Keywords: Access to health care, Early intervention, Income factors, Low income groups, Medicaid, Non English language materials, Oral health, Prevention, Racial factors, Service integration, Spanish language materials

Baker SD, Lee JY, Wright R. 2019. The importance of the age one dental visit. Chicago, IL: American Academy of Pediatric Dentistry, Pediatric Oral Health Research and Policy Center, 16 pp.

Annotation: This report focuses on the importance of taking a child to the dentist by age 1 to prevent oral disease. It discusses the prevalence of tooth decay in children, the effectiveness of prevention and early intervention, the consequences of delaying treatment, and barriers to accessing care early. It also discusses the benefits of integrating oral health care into primary care.

Contact: American Academy of Pediatric Dentistry, Research and Policy Center, 211 East Chicago Avenue, Suite 1600, Chicago, IL 60611-2637, Telephone: (312) 337-2169 Secondary Telephone: (800) 544-2174 Fax: (312) 337-6329 E-mail: [email protected] Web Site: https://www.aapd.org/research/policy-center/ Available from the website.

Keywords: Access to health care, Costs, Early intervention, Oral health, Prevention, Service integration, Young children

American College of Rheumatology, Lupus Foundation of America. 2017. Be Fierce. Take Control™. Atlanta, GA: American College of Rheumatology; Washington, DC: Lupus Foundation of America, multiple items.

Annotation: This public health campaign website was launched with the goal of educating and empowering young African American and Latino women (including those ages 15-18), who are most at-risk for developing lupus, to be aware of it signs and symptoms. The campaign uses the web, social media, digital advertising, and audience engagement to reach young women and educate them about the signs and symptoms of lupus. The campaign website also provides tools and resources such as the Lupus Foundation of America’s “Could it Be Lupus?” interactive questionnaire so those with possible symptoms can learn how to take that next step and talk to their health care provider.

Contact: Lupus Foundation of America, 2000 L Street, N.W., Suite 410, Washington, DC 20036, Telephone: (202) 349-1155 Secondary Telephone: (800) 558-0121 Fax: (202) 349-1156 Web Site: http://www.lupus.org Available from the website.

Keywords: Adolescent health, Advocacy, African Americans, Autoimmune diseases, Early intervention programs, Empowerment, Ethnic factors, Hispanic Americans, Lupus erythematosus, Prevention programs, Public awareness campaigns, Reproductive health, Risk factors, Self care, Women', s health

U.S. Department of Education and U.S. Department of Health and Human Services. 2017. Collaboration and coordination of the Maternal, Infant, and Early Childhood Home Visiting Program and the Individuals with Disabilities Education Act Part C programs. Washigton, DC: U.S. Department of Education; Rockville, MD: U.S. Department of Health and Human Services, 27 pp.

Annotation: This joint statement sets a vision for stronger partnerships, collaboration, and coordination between awardees of the Maternal, Infant, and Early Childhood Home Visiting Program (MIECHV) and the Individuals with Disabilities Education Act, Part C Program (IDEA Part C Program). It provides recommendations to States, territories, and tribal entities to identify and enhance opportunities for collaboration and coordination between MIECHV and the IDEA Part C Program.

Contact: U.S. Department of Education, 400 Maryland Avenue, S.W., Washington, DC 20202, Telephone: (800) 872-5327 Secondary Telephone: (800) 437-0833 Web Site: http://www.ed.gov

Keywords: Collaboration, Early intervention, Federal programs, Home visiting, State programs

Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health and Autism Speaks. 2016. Experience matters: A view into the health and wellbeing of US children and families with autism spectrum disorder. Baltimore, MD: Data Resource Center for Child and Adolescent Health, 117 pp.

Annotation: This chartbook for families, advocates, policymakers, and researchers provides a national portrait of how children in the United States receive their diagnosis of autism spectrum disorder (ASD), how their daily lives are impacted, and how their families are doing. Topics include the prevalence of ASD, diagnosing ASD, the child's health, health care and related services, school and social wellbeing, and coping with ASD. The appendices contain information on the ASD data presented in the chartbook including a glossary, a crosswalk of the data sources, methodological information, and guidance for accessing the data. [Funded by the Maternal and Child Health Bureau]

Contact: Data Resource Center for Child and Adolescent Health, Child and Adolescent Health Measurement Initiative, The Johns Hopkins Bloomberg School of Public Health, 615 North Wolfe Street, Baltimore, MD 21205, E-mail: [email protected] Web Site: https://childhealthdata.org Available from the website.

Keywords: Adolescent health, Adolescents with special health care needs, Autism, Child health, Child with special health care needs, Coping, Data sources, Diagnosis, Early intervention services, Family health, Prevalence, Relationships, Special health care services, Statistical data

Schmit S, Walker C. 2016. Disparate access: Head Start and CCDBG data by race and ethnicity. Washington, DC: Center for Law and Social Policy, 30 pp.

Annotation: This brief highlights state-level data by race and ethnicity about differential access to Head Start preschool, Early Head Start, and Child Care and Development Block Grant (CCDBG)-funded child care. Contents include background on eligibility and funding of Head Start and CCDBG, racial and ethnic diversity of young children, and young children in poverty; data on the percentage of eligible children served by program, race/ethnicity, and state; and potential policy implications and data gaps.

Contact: Center for Law and Social Policy, 1200 18th Street, N.W., Suite 200, Washington, DC 20036, Telephone: (202) 906-8000 Fax: (202) 842-2885 E-mail: http://www.clasp.org/about/contact Web Site: http://www.clasp.org Available from the website.

Keywords: Block grants, Child care, Child development, Early Head Start, Early childhood education, Early intervention, Ethnic groups, Federal programs, Head Start, Infants, Low income groups, Service delivery, Statistics, Toddlers, Young children

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The MCH Digital Library is one of six special collections at Geogetown University, the nation's oldest Jesuit institution of higher education. It is supported in part by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under award number U02MC31613, MCH Advanced Education Policy with an award of $700,000/year. The library is also supported through foundation and univerity funding. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.