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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.

Displaying records 1 through 20 (78 total).

Medicaid | Medicare | CHIP Services Dental Association. 2023. 2023 MSDA national profile of state Medicaid dental programs. Washington, DC: Medicaid | Medicare | CHIP Services Dental Association, 89 pp.

Annotation: This profile provides information on state Medicaid dental programs. For each state, the following topics are discussed: category of care provided (e.g., diagnostic, exam, screen, preventive, restorative); diagnostic code; description of category; whether adults over age 21, adults with intellectual and developmental disabilities, and pregnant women are covered; adult fees; whether the category is part of the Early and Periodic Screening, Diagnostic, and Treatment (EPSDT) program; and EPSDT rates for pregnant women.

Contact: Medicaid | Medicare | CHIP Services Dental Association, 4411 Connecticut Avenue, N.W., #104, Washington, DC 20008, Telephone: (202) 855-3993 Fax: (202) 248-2315 E-mail: [email protected] Web Site: http://www.medicaiddental.org Available from the website.

Keywords: Adults, Costs, Developmental disabilities, Intellectual development, Medicaid, Oral health, Pregnant women, Prevention, Reimbursement, State information, State programs

Roux AM, Rast JE, Anderson KA, Shattuck PT. 2017. National autism indicators report: Develomental disability services and outcomes in adulthood. Philadelphia, PA: A. J. Drexel Autism Institute, Life Course Outcomes Research Program, 78 pp.

Annotation: This report focuses on the needs of adults with autism spectrum disorders who have more severe challenges, including those who have just left the special education system and those who are at the end of their working years, to look at differences in services and outcomes across the life course. It includes data on individuals with other forms of developmental disabilities. [Funded by the Maternal and Child Health Bureau]

Contact: Drexel Autism Institute, Drexel University, 3141 Chestnut Street, Philadelphia, PA 19104, E-mail: https://drexel.ed Web Site: https://drexel.edu/autisminstitute/ Available from the website.

Keywords: Autism, Developmental disabilities, Developmental disability programs, Special health care needs, Statistics

Perry J, Kaufman B, Vasquez E. 2015. Strategic thinking report: LEND and DBP programs. Silver Spring, MD: Association of University Centers on Disabilities, 17 pp.

Annotation: This report summarizes findings from interviews and meetings with maternal and child (MCH) health program directors and other stakeholders about future directions for the Leadership Education in Neurodevelopmental and Related Disabilities (LEND) and Developmental Behavioral Pediatrics (DBP) training programs. Contents include recommendations for strategic action in the following five areas: training pipelines for LEND and DBP programs; models of training and clinical care that are accessible and can be sustained; opportunities for trainees to learn and apply principles of MCH leadership training; collaboration with Title V and other partners; and policies and practices important to LEND and DBP programs, individuals with disabilities and their families, and the professionals who serve them. [Funded by the Maternal and Child Health Bureau]

Contact: Association of University Centers on Disabilities, 1010 Wayne Avenue, Suite 1000, Silver Spring, MD 20910, Telephone: (301) 588-8252 Fax: (301) 588-2842 E-mail: [email protected] Web Site: http://www.aucd.org Available from the website.

Keywords: Behavior development, Child development disorders, Collaboration, Developmental disabilities, Developmental pediatrics, Leadership, MCH training programs, Model programs, Pediatric neurology, Policy development, Strategic plans, Title V programs

U.S. Maternal and Child Health Bureau, Division of Maternal and Child Health Workforce Development. 2015. MCHB graduate education programs support Title V block grant transformation: Collaboration to advance shared goals. Rockville, MD: U.S. Maternal and Child Health Bureau, Division of Maternal and Child Health Workforce Development, 8 pp.

Annotation: This fact sheet provides an overview of the U.S. Maternal and Child Health Bureau's graduate education training programs. Topics include programs' areas of expertise and efforts to collaborate with state Title V programs to address regional, state, and local maternal and child health needs and priorities through technical assistance, consultation, continuing education and training, and work force and leadership development. Examples of collaborative activities are included.

Contact: U.S. Maternal and Child Health Bureau, Division of Maternal and Child Health Workforce Development, Health Resources and Services Administration, 5600 Fishers Lane, Rockville, MD 20857, Telephone: (301) 443-2340 Web Site: http://mchb.hrsa.gov/maternal-child-health-initiatives/workforce-training Available from the website.

Keywords: Adolescent health, Collaboration, Continuing education, Developmental disabilities, Federal programs, Graduate education, Leadership, MCH training programs, Multidisciplinary approach, Nutrition, Technical assistance, Work force

State Public Health Autism Resource Center, Association of Maternal and Child Health Programs. 2015. National Landscape: Program and Initiative to Promote Developmental and Autism Screening. Washington, DC: State Public Health Autism Resource Center, 17 pp.

Annotation: This environmental scan describes national and federal programs and initiatives aimed at improving developmental and autism screening for children.

Contact: State Public Health Autism Resource Center, Association of Maternal & Child Health Programs , 2030 M Street, N.W., Suite 350 , Washington, D.C. 20036, Telephone: (202) 775-0436 Web Site: http://www.amchp.org/programsandtopics/CYSHCN/projects/spharc/Pages/default.aspx Available from the website.

Keywords: Autism, Developmental disabilities, Developmental screening, Federal initiatives , Federal programs, National programs

Special Olympics. 2014-. Project UNIFY toolkit. Washington, DC: Special Olympics,

Annotation: This toolkit provides resources to help schools implement Project UNIFY, an initiative that focuses on social inclusion that brings youth with and without intellectual disabilities together through sports and related activities. The resources describe Project UNIFY's vision, its major components, how to get started, implementation models, the connection to equal education and inclusion, evaluation reports, and the project's impact.

Contact: Special Olympics, 1133 19th Street, N.W., Washington, DC 20036-3604, Telephone: (202) 628-3630 Secondary Telephone: (800) 700-8585 Fax: (202) 824-0200 E-mail: [email protected] Web Site: http://www.specialolympics.org Available from the website.

Keywords: Physical fitness, Children with special health care needs, Chronic illnesses and disabilities, Developmental disabilities, Inclusive schools, Information services, Mental retardation, School health programs, Sports

Antosh AA, Blair M, Edwards K, Goode T, Hewitt A, Izzo M, Johnson DR, Raynor O, Riddle I, Shanley JL, Walker R, Wehmeyer M. 2014. A comprehensive approach to transition. Silver Spring, MD: Association of University Centers on Disabilities, 21 pp.

2014. Disability and health. Arlington, VA: Association of State and Territorial Health Officials,

Annotation: This web page links to resources that provide an overview of the barriers and challenges that people with disabilities face when accessing preventive health and health promotion services. Also included are 10 case studies developed by the Association of State and Territorial Health Officials (ASTHO) that provide a snapshot of what state public health departments are doing to address the health needs of people with disabilities.

Contact: Association of State and Territorial Health Officials, 2231 Crystal Drive, Suite 450, Arlington, VA 22202, Telephone: (202) 371-9090 Fax: (571) 527-3189 Web Site: http://www.astho.org Available from the website.

Keywords: Access to care, Barriers, Community programs, Developmental disabilities, Disabilities, Health promotion, Physical disabilities

Association of University Centers on Disabilities. 2014. Grant writing and grant management tool kit for self-advocates. Silver Spring, MD: Association of University Centers on Disabilities, 42 pp.

Zero to Three. (2013). Improving access to early identification and intervention: 211 LA County developmental screening and care coordination. [Washington, DC]: Zero to Three, 6 pp.

Annotation: This policy brief focuses on the efforts of 211 L.A. County's Developmental Screening and Care Coordination Program, which works to encourage partnerships between health professionals and community organizations to identify children at risk for developmental delays. The brief provides information about the program and about the importance of identifying developmental delays early. A personal story about a parent and child who received help from the program is also included.

Contact: ZERO TO THREE: National Center for Infants, Toddlers and Families, 1255 23rd Street, N.W., Suite 350, Washington, DC 20037, Telephone: (202) 638-1144 Fax: (202) 638-0851 Web Site: http://www.zerotothree.org Available from the website.

Keywords: Access to health care, Child development, Children with developmental disabilities, Collaboration, Community programs, Early childhood development, Early intervention, Health services, Infant development, Infants, Infants with developmental disabilities, Screening, Diagnosis, Treatment, Service coordination, Young children

Autism Speaks. 2013. Leading the way: Autism-friendly youth organization guide. New York, NY: Autism Speaks, 65 pp.

Annotation: This guide provides information to help community youth organizations develop programs to ensure that youth with autism are offered the same formative opportunities that are made available to their typical peers. The guide is designed to prepare community organizations to serve youth and families with autism and to learn how to integrate youth with autism into existing youth programs. Included are results from a national survey of community youth organizations conduced by Youth Speaks in 2012; an overview of autism and the challenges it presents to community organizations; and strategies for communicating with families and training staff who work with this population.

Contact: Autism Speaks, 1 East 33rd Street, Fourth Floor, New York, NY 10016, Telephone: (212) 252-8584 Fax: (212) 252-8676 E-mail: [email protected] Web Site: http://www.autismspeaks.org Available from the website.

Keywords: Autism, Community programs, Developmental disabilities, Manuals, Program development, Youth

Spielberger J, Winje C, Gitlow E. 2013. Evaluation of the Capable Kids and Families program: Year 2 findings. Chicago, IL: Chapin Hall at the University of Chicago, 96 pp.

Annotation: This report provides findings from an 18-month evaluation to examine parent outcomes for families involved with the Community Partnership's Capable Kids and Families (CKF) program and for a comparison group of non CKF families who received services from other providers. CKF supports family functioning and fosters positive developmental outcomes for families raising children with disabilities or developmental delays from birth to age 6. The report discusses the following six broad domains: (1) understanding their child's strengths and needs, (2) helping their child learn and develop, (3) learning to advocate for their child, (4) support systems, (5) access to resources, and (6) positive interactions with their child. The report also provides information about the service experiences of CKF families and indicates other areas in which the CKF program could affect family well-being that could be explored in future research.

Contact: Chapin Hall at the University of Chicago, 1313 East 60th Street, Chicago, IL 60637, Telephone: (773) 753-5900 Fax: (773) 753-5940 Web Site: http://www.chapinhall.org Available from the website.

Keywords: Advocacy, Children with developmental disabilities, Children with special health care needs, Chronic illnesses and disabilities, Family support services, Infants with developmental disabilities, Infants with special health care needs, Parent child relations, Parenting skills, Program evaluation, Programs, Research, Service delivery systems

UPMC Insurance Services Division. 2013. Perspectives on the Allegheny County Maternal and Child Health Care Collaborative. Pittsburgh, PA: UPMC Insurance Services Division, 30 pp.

Annotation: This report discusses the involvement of key partners and presents the personal stories of those central to the efforts of the Allegheny County Maternal and Child Health Care Collaborative to address parental depression and child development delay. The collaborative aims to improve health care services and delivery and outcomes for Medicaid-eligible mothers in Allegheny County, Pennsylvania, and their children. The report discusses the evolution of the collaborative and its phases, presents results, discusses transforming systems of community care and elements that make the project sustainable, and presents caregivers' perspectives. [Record in process]

Contact: UPMC Insurance Services Division, US Steel Tower, 600 Grant Street, Pittsburgh, PA 15219, Web Site: http://www.upmchealthplan.com Available from the website.

Keywords: Access to health care, Child development, Children with developmental disabilities, Collaboration, Community programs, Depression, Developmental disabilities, Families, Fathers, Health services, Interagency cooperation, Low income groups, Medicaid, Mental health, Mothers, Parents, Programs

Association of Maternal and Child Health Programs and Catalyst Center. 2012. The Affordable Care Act and children and youth with autism spectrum disorder and other developmental disabilities (rev.). Washington, DC: Association of Maternal and Child Health Programs, 12 pp. (AMCHP issue brief)

Annotation: This report describes selected provisions of the Affordable Care Act (ACA) that have implications for children and adolescents with autism spectrum disorders or other developmental disabilities(ASD/DD). The report also describes how state Title V maternal and child health (MCH) programs can maximize opportunities under the ACA to develop and strengthen systems of care for children and adolescents with ASD/DD. The report provides background on gaps in coverage faced by children and adolescents with ASD/DD and discusses affordability and adequacy of health care coverage for this population, key provisions of the ACA, health care coverage and benefits, and implications for state Title V MCH and children and youth with special health care needs program leaders. [Funded by the Maternal and Child Health Bureau]

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org Available from the website.

Keywords: , Adolescents with developmental disabilities, Adolescents with special health care needs, Autism, Children with developmental disabilities, Children with special health care needs, Costs, Health care systems, Health insurance, Legislation, MCH programs, Title V programs

Association of Maternal and Child Health Programs. 2012. Roles for state Title V programs in building systems of care for children and youth with autism spectrum disorders. Washington, DC: Association of Maternal and Child Health Programs,

Annotation: This webcast highlights the roles for state Title V programs in building systems of care for children and youth with Autism Spectrum Disorder and Other Developmental Disabilities (ASD/DD). It outlines a range of roles for Title V as a leader, partner and facilitator; provides opportunities for peer-to-peer technical assistance; highlights ongoing challenges in data and financing and opportunities for collaborative approaches; and provides state resources and examples of leadership, outreach, and family participation to share with policy makers. The presenters provided examples from state programs to demonstrate the depth of involvement from state Title V programs and their partners. The purpose of the webcast was to help states (primarily Title V programs) determine appropriate roles and approaches to building systems of care for children and youth with ASD/DD. The full webcast recording and presenters' powerpoint slides can be downloaded from the website.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org Available from the website.

Keywords: Autism, Children, Developmental disabilities, Multimedia, State programs, Title V programs, Youth

Center for Law and Social Policy, Charting Progress for Babies in Child Care. 2012. Promote access to early, regular and comprehensive screenings. Washington, DC: Center for Law and Social Policy, 10 pp.

Annotation: This electronic resource focuses on describing what infants and young children in child care need and offers 15 recommendations to help states move toward ensuring that these needs are met. The resource explains what infant screening is and why it is needed and discusses how states can ensure that infants and young children are screened for developmental delays. A bibliography, policy ideas, state examples, and online resources are included.

Contact: Center for Law and Social Policy, 1200 18th Street, N.W., Suite 200, Washington, DC 20036, Telephone: (202) 906-8000 Fax: (202) 842-2885 E-mail: http://www.clasp.org/about/contact Web Site: http://www.clasp.org Available from the website.

Keywords: Child care, Child health, Children with developmental disabilities, Developmental disabilities, Developmental screening, Early childhood development, High risk children, High risk infants, Infant development, Infant health, Infants with developmental disabilities, Public policy, Resource materials, State programs, Young children

Spears H, Carman R. [2011]. Increasing trainee survey responses: Best practice methods for obtaining high response rates from trainees. [Silver Spring, MD]: Association of University Centers on Disabilities, 5 pp.

Annotation: This report describes practices suggested by training centers on disabilities identified by the Association of University Centers on Disabilities (AUCD) as those that consistently report the highest survey response rates from their trainees. Based on interviews conducted by AUCD with training directors and former trainees from five network programs, the report lists four themes of best practice identified as key components in yielding high trainee survey response rates. The methodology used by AUCD is described in detail, and specific examples of practices that resulted in the highest survey response rates are explained. [Funded in part by the Maternal and Child Health Bureau]

Contact: Association of University Centers on Disabilities, 1010 Wayne Avenue, Suite 1000, Silver Spring, MD 20910, Telephone: (301) 588-8252 Fax: (301) 588-2842 E-mail: [email protected] Web Site: http://www.aucd.org Available from the website.

Keywords: Developmental disability programs, Disabilities, Federal programs, Professional training, Program improvement, Surveys

Association of Maternal and Child Health Programs and State Public Health Autism Resource Center. 2011. Roles for state Title V programs: Building systems of care for children and youth with autism spectrum disorder and other developmental disabilities. Washington, DC: Association of Maternal and Child Health Programs, 30 pp.

Annotation: This document presents a policy framework to help states (primarily Title V programs) determine appropriate roles and approaches to pursue in building systems of care for children and youth with autism spectrum disorders and other developmental disabilities (ASD/DD). The framework provides examples from state programs to demonstrate the breadth and depth of involvement from state Title V programs and their partners. It focuses on how state approaches to Title V programs can lead to comprehensive efforts to meet the needs of children and youth with ASD/DD and their families and how such approaches might improve systems of care for all children and youth with special health care needs (CYSHCN.) [Funded by the Maternal and Child Health Bureau]

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org Available from the website.

Keywords: Autism, Children with special health needs, Developmental disabilities, Developmental disabilities programs, State programs, Systems development, Title V programs, Youth

Association of Maternal and Child Health Programs and State Public Health Autism Resource Center. 2011. Environmental scan: How state Title V programs are responding to autism spectrum disorder and other developmental disabilities. Washington, DC: Association of Maternal and Child Health Programs, 7 pp. (AMCHP issue brief)

Annotation: This issue brief examines the approaches that state Title V programs are taking to address the growing incidence of autism spectrum disorder and other developmental disabilities (ASD/DD) and catalogues ASD/DD activities that fit within the framework of the Maternal and Child Health Bureau (MCHB) critical indicators for children and youth with special health care needs. These indictors include the medical home, insurance and financing, early and continuous screening, easy-to-use services, family-professional partnerships, and transition to adulthood. The Information presented in the brief was obtained from the 2010 Maternal and Child Health Block Grant State Narratives contained in the Title V Information System (TVIS) online database. [Funded by the Maternal and Child Health Bureau]

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org Available from the website.

Keywords: Autism, Data analysis, Developmental disabilities, Measures, State programs, Title V programs

Lyman DR, Holt W, Dougherty RH. 2010. State case studies of infant and early childhood mental health systems: Strategies for change. New York, NY: Commonwealth Fund, 28 pp.

Annotation: The study analyzes efforts in Colorado, Indiana, Massachusetts, and Rhode Island to conduct early identification and intervention strategies for children with developmental and mental health problems. The report focuses on strategies states have used to make infant and early childhood mental health systems more comprehensive and the process of change. It highlights different approaches, such as using frequent mental health screening tools in Medicaid's Early Periodic Screening, Diagnosis and Treatment program to improve the health of low-income children.

Contact: Commonwealth Fund, One East 75th Street, New York, NY 10021, Telephone: (212) 606-3800 Fax: (212) 606-3500 E-mail: [email protected] Web Site: http://www.commonwealthfund.org Available from the website.

Keywords: Child behavior, Child mental health, Children with developmental disabilities, Children with special health care needs, Colorado, EPSDT, Early intervention, Indiana, Low income groups, Massachusetts, Model programs, Rhode Island, Screening, State initiatives
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The MCH Digital Library is one of six special collections at Geogetown University, the nation's oldest Jesuit institution of higher education. It is supported in part by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under award number U02MC31613, MCH Advanced Education Policy with an award of $700,000/year. The library is also supported through foundation and univerity funding. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.