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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 19 (19 total).

Breakey G. n.d.. Facilitation of Primary Care Physician Participation in Preventive Health Care of Children Age 0-5 from Underserved, Diverse Cultural Populations: [Final report]. Honolulu, HI: Hawaii Family Stress Center, 30 pp.

Annotation: This project aimed to reduce the incidence of poor health characteristics among low-income, culturally diverse populations by promoting the involvement of primary care physicians (pediatricians) in early screening and intervention. Project goals included increasing the level of preventive health care for underserved children, reducing the severity of psychosocial problems, increasing physicians' sense of involvement as part of a team in providing services to project children and their families, and demonstrating a practical process for accomplishing these goals which can be replicated across the nation. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-152833.

Keywords: American Academy of Pediatrics, Child Abuse and Neglect Preventive, Continuing Education, Developmentally Delayed/Disabled, EPSDT, Hawaiians, Health Care, Health Supervision Guidelines, High risk children, Low income groups, Medicaid, Primary Care, Psychological Problems, Well Child Care

Malach R. n.d.. Case Management for Parents of Indian Children with Special Health Care Needs [Final report]. Bernalillo, NM: Southwest Communication Resources, 20 pp.

Annotation: This project provided a model program for American Indian families and the professionals who served them. The program goals were to identify cultural, systemic, institutional, and policy barriers that inhibit Native American family participation in the "Western" health care/case management system; improve case management by facilitating effective communication between Native American families and the non-Native American health care professionals who serve them; and increase Native American family participation in health care policy development and planning forums in order to promote changes that improve services for Native American children and families. Activities included developing a videotape illustrating effective cross-cultural communication strategies for non-Indian health care providers and training an Indian parent advocate to help families seen at IHS special pediatric clinics. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-158251.

Keywords: American Indians, Case Management, Chronically Ill, Community-Based Health Care, Coordination of Health Care, Developmentally Delayed/Disabled, Family-Based Health Care, Indian Health Service (IHS), Low income groups, Parents, Rural Population

Benford M. n.d.. MATCH II: A Merged Database for Health and Developmental Disabilities [Final report]. Columbus, OH: Ohio Department of Health, 10 pp.

Annotation: The goal of this project was to improve coordination and continuity of early intervention and health related services to infants and young children who have, or are at risk for, developmental disabilities or delays. The project developed a collaborative mechanism via computer linkage for referring, tracking, and evaluating these children. A microbased computerized identification, referral, and tracking system has been developed for use at the local level. Through the merged database and tracking system, the project sought to improve child find, service coordination, follow-along, and program evaluation. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-161974.

Keywords: Case Management, Collaboration of Care, Computer Linkage, Data Bases, Data Collection, Developmentally Delayed/Disabled, EPDST, Early Intervention, Families, High risk infants, Medicaid, Referrals, WIC Program

van Dyck P. n.d.. Methods of Funding Nutrition Services for Children with Developmental Disabilities [Final report]. Salt Lake City, UT: Utah Department of Health, 16 pp.

Annotation: The purpose of this project was to develop and apply a model for providing comprehensive nutrition services for children in Utah who have certain developmental disabilities or disease conditions. The objectives of the project were to (1) provide comprehensive nutrition care and expand resources; (2) demonstrate the costs and benefits of providing nutrition services to those children with selected developmental disabilities using an economic model; and (3) obtain third-party reimbursement for nutrition services provided to children with selected special health needs. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-199172.

Keywords: Cystic Fibrosis, Developmentally Delayed/Disabled, Financing Health Care, Inborn Errors of Metabolism, Neonatal Intensive Care Unit(NICU), Nutrition, Reimbursement

Kessel R. n.d.. Diagnostic and Followup Project for Native American Children in Wisconsin with Special Health Care Needs = WINGS Project [Final report]. Madison, WI: Board of Regents of the University of Wisconsin at Madison , 42 pp.

Annotation: This project was part of an ongoing effort to identify and address issues related to developmental disabilities among Native American children in Wisconsin to assure that proper diagnostic and followup services are provided to this population. Tribes, State and local agencies, and volunteer organizations were involved in a collaborative effort to design and establish a long-term, community-based, high quality program in each tribal community in Wisconsin to serve the special health care needs of Native American children. The two main goals of the project were to: (1) Become an integral part of the tribal service systems, and (2) improve those systems in such a way that they address both the needs of developmentally disabled children and the issues related to the prevention of disabilities. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-161941.

Keywords: American Indians, Community-Based Health Care, Coordination of Health Care, Data Collection, Developmentally Delayed/Disabled, Fetal Alcohol Syndrome

National Institute on Deafness and Other Communication Disorders. 2010. Speech and language developmental milestones. [Upd. ed.]. Bethesda, MD: National Institute on Deafness and Other Communication Disorders, 4 pp. (NIDCD fact sheet)

Annotation: This fact sheet discusses the child development milestones of speech and language development and describes for parents how to know if their child is reaching those milestones. An age appropriate checklist provides guidance on average developmental signs from birth to five years of age. Additional information is provided on what to do if speech or language appear to be delayed, research on developmental speech and language problems, and where to get more information.

Contact: National Institute on Deafness and Other Communication Disorders Information Clearinghouse, One Communication Avenue, Bethesda, MD 20892-3456, Telephone: (800) 241-1044 Secondary Telephone: (800) 241-1055 Fax: (301) 770-8977 E-mail: [email protected] Web Site: http://www.nidcd.nih.gov/Pages/default.aspx Available from the website. Document Number: NIH Pub. No. 10-4781.

Keywords: Child development, Delayed development, Language development, Parent education, Speech development, Young children

Reuland CP, Bethell C. 2005. Key measurement issues in screening, referral, and follow-up care for young children's social and emotional development. Portland, ME: National Academy for State Health Policy, 32 pp.

Annotation: This paper outlines methods and issues for state Assuring Better Child Health and Development Initiative (ABCD) II projects to consider as they develop and implement three common measures. They are (1) the percent of children 0-3 years of age screened to identify concerns related to social and emotional development; (2) the percent of children 0-3 years of age referred for services to prevent or treat concerns related to delays in social and emotional development; and (3) the percent of children 0-3 years of age treated for delays in social and emotional development, including treatment to prevent such delays, from primary care providers and other referred healthcare providers. The report contains additional sections on global measurement issues and next steps for the states in developing and implementing a measurement methodology.

Contact: National Academy for State Health Policy, 10 Free Street, Second Floor, Portland, ME 04101, Telephone: (207) 874-6524 Secondary Telephone: (202) 903-0101 Fax: (207) 874-6527 E-mail: [email protected] Web Site: http://www.nashp.org Available from the website.

Keywords: Child development, Child health, Delayed development, Developmental screening, Emotional development, Infant development, Mental health, Program development, Psychosocial development, State programs, Young children

Knight JR, Frazer C, Emans SJ, eds. 2001. Bright Futures case studies for primary care clinicians: Child development and behavior. Boston, MA: Bright Futures Center for Pediatric Education in Growth and Development, Behavior, and Adolescent Health, 269 pp. (xxx)

Annotation: This manual is part of a three volume set designed to provide information to teachers about the many facets of the Bright Futures Pediatric Education Project. The first section of this manual presents case studies in child development, specifically delays in development, Down syndrome, and an atypical behavior situation. Section two focuses on the school environment: school readiness, learning disorders, attention deficit/hyperactivity disorder, and recurrent abdominal pain. The third section addresses case studies in physical and sexual abuse, as well as child neglect. The resources section contains sample forms with evaluation questions. [Funded by the Maternal and Child Health Bureau and the Genentech Foundation for Growth and Development]

Contact: Maternal and Child Health Library at Georgetown University, Contact Fax: xxx E-mail: [email protected] Web Site: https://www.mchlibrary.org Contact for cost information. Document Number: HRSA Info. Ctr. MCHN100 (3 vol set.).

Keywords: Attention deficit disorder, Bright Futures, Case studies, Child behavior, Child development, Child health supervision, Child neglect, Delayed development, Diagnosis, Down syndrome, Educational materials, Hyperactivity, Learning disabilities, Physical abuse, Professional education, Program evaluation, School readiness, Sexual abuse

Shonkoff J. 2001. Early Intervention Collaborative Study: Age 10 Followup: [Final report]. Waltham, MA: Brandeis University, 24 pp.

Annotation: The broad goals of this study were to: 1) identify predictors and mediators of child development and family adaptation over time, and 2) construct an integrated, empirically validated conceptual framework to inform public policy, aid the design of service programs, and guide further research for children with special health needs and their families. The study also aimed to elucidate predictors of long-term vulnerability and resilience among recipients of early intervention services in order to inform policy decisions regarding short-term resource allocation and long-term service planning for children with special health needs and their families. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB2002-101956.

Keywords: Data Analysis, Data Collection, Delayed Development, Down Syndrome, Early Intervention, MCH Research, Parents, Research, School Age Children, School–age children

Feagans L. 1998. Otitis media in day care: Effects on language/attention [Final report]. University Park, PA: Pennsylvania State University,

Annotation: This 5-year study was designed to determine whether there was a causal relationship between otitis media observed in a day care setting and developmental delays in language and attention. Otitis media is the second most frequent reason parents take their children to a physician. Although antibiotic regimens have helped to reduce the acute phase of the disease, there is no really effective therapy for the fluid that often remains in the middle ear after the acute phase is over. This fluid is associated with a mild to moderate hearing loss. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB99-149221.

Keywords: Attention Deficit Disorders, Audiometry, Child Care, Delayed Development, Hearing Loss, Illnesses in Child Care, Language Disorders, MCH Research, Otitis Media, Preschool Children, Research

Ottenbacher K. 1998. Functional Assessment of Children: [Final report]. Amherst, NY: State University of New York at Buffalo, 57 pp.

Annotation: The Functional Independence Measure for Children (WeeFIM) was a new instrument that measured performance in activities of daily living for children ages 6–84 months. This study was designed to provide data on the reliability and validity of the WeeFIM when used with children who have a disability. All children sampled for this study had a developmental delay or physical disability (e.g., spina bifida, Down syndrome, amputations, neurodevelopmental disabilities) qualifying them for services at a local rehabilitation center. The assessment was scored by two independent raters. Inter-rater and test-rater reliability was assessed using the framework of Cronbach's generalizability implemented in a design similar to analysis of variance. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB99-109225.

Keywords: Children with Special Health care Needs, Delayed Development, Early Childhood Development, MCH Research, Research

Brown J. [1997]. Healthy Tomorrows for Denver [Final report]. Denver, CO: Denver Health and Hospitals, 19 pp.

Annotation: The goals of the Healthy Tomorrows for Denver Project were to (1) increase the number of infants and children referred by the Denver Department of Health and Hospitals to Child Find, (2) increase the proportion of families following through on recommended treatment options, (3) increase utilization by low-income and minority parents, and (4) create an automated tracking/management system. A case management system was implemented. [Funded by the Maternal and Child Health Bureau]

Keywords: Children with Special Health care Needs, Delayed Development, Early Intervention, Families, Healthy Tomorrows Partnership for Children, Individualized Family Service Plan, Low Income Population, Paraprofessional Personnel, Referrals

Lewis M. 1995. Predicting Preschool Function from Contingency Intervention [Final report]. New Brunswick, NJ: University of Medicine and Dentistry-Robert Wood Johnson Medical School, 61 pp.

Annotation: This project determined whether experience with a special early intervention program, focusing on the process of learning itself, was predictive of the cognitive, communicative, and adaptive functioning and motivation of developmentally delayed preschoolers. A group of more than 100 developmentally delayed preschoolers who participated in a special supplemental 3-month contingency intervention program during their first year were seen at 4 years of age. The study provided evidence of the long-term impact of learning to control environment early in life on subsequent functioning. The results have implications for the effective cognitive and physical therapy of the very young disabled child. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB96-177191.

Keywords: Delayed Development, Delayed Development, Early Intervention, Learning Disabilities, Learning Disabilities, MCH Research, Physical Therapy, Preschool Children, Preschool Children, Research

Greenberg M. 1993. Familial Adaptation to Developmentally Delayed Children [Final report]. Seattle, WA: University of Washington, 44 pp.

Annotation: This investigation had two major objectives: (a) Determining whether parents of a developmentally delayed child differ from control parents across measures of parent-child interaction attitudes, family status, coping resources, and perceived stress; and (b) identifying the degree of stress perceived by these families and the moderating effect of various coping resources on family adaptation. The hypothesis was that families with a developmentally delayed child report greater stress, and this stress adversely impacts both the family in general and its individual members. The findings reveal that there is great heterogeneity in the family life, stress levels, and coping ability of families with young children with non-specific developmental delays, and having a child with developmental delays is likely to place one at more risk under conditions that might already by challenging, such as single parenting. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB95-208641.

Keywords: Children, Developmentally Delayed, Parent-Child Interaction, Parents, Stress

Gordon L. 1989 (ca.). Partnerships Project [Final report]. Santa Fe, NM: New Mexico Health and Environment Department, 14 pp.

Annotation: This project aimed to improve the Children's Medical Services capacity to enhance the family's role in the delivery of care and program development. Parents were trained in case management, program development, decision-making, and stress reduction. A system was designed for improved use and sharing of the resources of the agencies addressing the needs of these families. [Funded by the Maternal and Child Health Bureau]

Keywords: Case Management, Computers, Deaf, Developmentally Delayed/Disabled, Parents, Regionalization of Care

Shonkoff J. 1989. The Early Intervention Collaborative Study: Phase One [Final report]. Waltham, MA: University of Massachusetts Medical School, 278 pp.

Annotation: This 3-year study was designed to analyze how child, family, and program characteristics relate to child and family outcomes for three target groups served by publicly supported early intervention programs in Massachusetts and New Hampshire. The study sample included 180 children under 24 months of age with either Down syndrome, motor impairment/cerebral palsy, or developmental delay of an unknown etiology. Participants were recruited from 15 early intervention programs in Massachusetts and 3 programs in New Hampshire. Each child and his/her family were evaluated within 1 month of their entry into an early intervention program, and again after 12 months of service delivery. A series of child, family, and program variables were assessed and their relationships examined using both statistical and descriptive analyses. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB92-136217.

Keywords: Cerebral Palsy, Developmentally Delayed/Disabled, Down Syndrome, Early Intervention, Families

Pierce P. 1988 (ca.). Prescribed Pediatric Extended Care: Medical day care, a cost effective alternative for families of medically dependent children--Final report. Gainesville, FL: Family Health and Habilitative Services, Inc., 143 pp.

Annotation: This project addressed the complex service needs of children who require sophisticated technological interventions and an environment which fosters developmental progress. Activities included: providing medical services to children; establishing a licensure category for Prescribed Pediatric Extended Care (PPEC) centers; disseminating information on the project through monographs, workshops, conferences, and publications; providing ongoing staff training and family support and educational services; establishing third-party reimbursement policies which will make the center financially self-supporting; and conducting a cost-effectiveness evaluation comparing the PPEC centers to other forms of care. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB92-103423.

Keywords: Apnea, Chronically Ill, Cystic Fibrosis, Developmentally Delayed/Disabled, Gastrostomy, Injuries, Reimbursement, Technology-Dependence, Uninsured persons, Vater', Ventilator Dependence, s Syndrome

1986. Perinatal Follow-Up Project [Final report]. Honolulu, HI: Hawaii Department of Health, 62 pp.

Annotation: The purpose of this project was to provide comprehensive screening and referral services for infants, birth through 3 years of age, who by virtue of physical and medical conditions during the neonatal period are at very high risk for future developmental sequelae. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-198737.

Keywords: Assessment Referrals, Developmental screening, Developmentally delayed, High risk infants

Ross Conference on Pediatric Research (26th: 1957: San Francisco, CA). 1958. Physical and behavioral growth. Columbus, OH: Ross Laboratories, 104 pp. (Report of the Twenty-sixth Ross Conference on Pediatric Research )

Annotation: This conference report discusses physical and behavioral growth in infancy, the preschool child, physiologic variabilities during childhood, and preadolescence and adolescence. The section on infancy discusses neurological development, prenatal and paranatal factors on behavior, and maternal anxiety during pregnancy in relation to fetal behavior. The section on the preschool child discusses abstract thinking, discipline and behavior, and parent-child interaction. The section on childhood discusses temperature recordings, longitudinal evaluation of skeletal maturation, blood pressure, mental test scores, and intelligence quotient in relation to personality variation. The section on preadolescence and adolescence discusses competitive athletics and physical fitness, early or late maturation, motor development and coordination, adolescent aggressive disorders, normal emotional patterns, and the philosophy of growth.

Keywords: Adolescent development, Behavior, Child development, Conferences, Delayed development, Early childhood development, Infant development

   

The MCH Digital Library is one of six special collections at Geogetown University, the nation's oldest Jesuit institution of higher education. It is supported in part by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under award number U02MC31613, MCH Advanced Education Policy with an award of $700,000/year. The library is also supported through foundation and univerity funding. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.