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Strengthen the Evidence for Maternal and Child Health Programs

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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.

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Genetic Alliance. 2009. Newborn screening summit: Envisioning a future for newborn screening. Washington, DC: Genetic Alliance,

Annotation: This web resource provides information from the 2009 Newborn Screening Summit held on December 7-8, 2009, in Bethesda, Maryland. Summit topics included family perspectives; technology; information and risk communication; advocacy; storage and use of residual blood spots; decision-making in public, population, and private health; childhood screening; effective follow-up; health information exchange; the newborn screening system clearinghouse, portal, and transitional network; pros and cons of consent; benefit in newborn and childhood screening; defining abnormal; and strategic thinking about newborn screening. The site provides links to the summit agenda, a webcast recording, and materials.

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Keywords: Advocacy, Children, Communication, Conference proceedings, Consent, Decision-making, Families, Health, Infants, Neonatal screening, Public health, Screening, Technology

The MCH Library is one of six special collections at Georgetown University, the nation's oldest Jesuit institution of higher education. The library is supported through foundation, private, university, state, and federal funding. This information or content and conclusions are those of the authors and should not be construed as the official position or policy of, nor should any endorsements be inferred by Georgetown University or the U.S. Government. Note: web pages whose development was supported by federal government grants are being reviewed to comply with applicable Executive Orders.