Search Results: MCHLine

Annotation: This recorded webinar from August 18, 2022, features Molly Martzke, Senior Program Manager at the National Genetics Education and Family Support Center at Expecting Health, sharing insights on their shift to virtual family engagement programming during the pandemic and the sustainable practices that emerged. Martzke provides an overview of HRSA's Division of Services for Children with Special Health Needs (DSCHSN) genetics programs, including their educational initiatives, the coordination between seven regional genetics networks, and the function of the national coordinating center. The presentation highlights Expecting Health's collaborative approach with partner organizations like Parent to Parent, while introducing participants to valuable Family Center Resources including their website, podcast series, and ongoing webinars designed to support families navigating genetic conditions and services across different regions of the country.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Disaster planning, Family support services, Genetic screening, Regional genetics networks, Deafness, Hearing disorders

Annotation: This August 4, 2022 recording features a comprehensive panel discussion on telehealth applications within Early Hearing Detection and Intervention (EHDI) programs, showcasing diverse perspectives from across North America. Bill Campbell presents on Remote Infant Auditory Brainstem Response Assessment in Ontario, highlighting improved service access despite technological challenges, while Todd Houston discusses findings from a Journal of EHDI monograph emphasizing telehealth benefits and the need for specialized training. Arlene Stredler Brown shares Colorado research on telehealth equity considerations, revealing provider and family feedback indicating a need for enhanced training in family-centered early intervention approaches. Alex Meibos provides technical insights on audiology telehealth platforms, noting that many hearing aid manufacturers offer online solutions adaptable for early intervention. Pamela Dawson contributes telehealth resource information specific to the Northeast region, and Julie Purdy rounds out the presentation with California survey data on implementing Oticon hearing aid online platforms and affordable home otoscopy options using smartphone applications, collectively demonstrating how telehealth is transforming accessibility and delivery of pediatric audiology services nationwide.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Telemedicine, Audiology, Deafness, Hearing tests, Hearing screening, Infant health, Children', s health, Program evaluation, Canada, Ohio, Colorado, Maine, New Hampshire, Vermont, California

Annotation: This May 31, 2022 recording features Candace Lindow-Davies, Outreach Director for Hands & Voices, detailing the organization's nationwide virtual family engagement initiatives within Early Hearing Detection and Intervention (EHDI) programs, showcasing adaptations made during and after the pandemic. Lindow-Davies comprehensively outlines their multilingual resources, including English and Spanish literature, printable Family Activity Plans for home use, and various digital tools and applications designed to support families with children who are deaf or hard of hearing. The presentation highlights a robust calendar of live virtual opportunities specifically developed to cultivate parent leadership skills, alongside ongoing virtual support systems and events that maintain community connections while addressing the unique needs of these families through accessible, remote engagement strategies that evolved from pandemic-era necessity into sustainable programming models. The slides from the presentation are available for download.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Telemedicine, Family support services, Disaster planning, Deafness, Hearing tests, Hearing screening

Annotation: This videorecording documents a multi-state roundtable discussion on telehealth applications for individuals with hearing impairments, drawing participation from 31 states and territories. The presenters—McVicar (Utah), Stone (Massachusetts), Kirschner (Montana), Culpepper (Georgia), and Messersmith (South Dakota)—share diverse perspectives on teleaudiology implementation within Early Hearing Detection and Intervention (EHDI) programs, including universal newborn screening initiatives. Their presentations highlight both successes and persistent challenges: while telehealth expands access to specialized audiological services, barriers remain including geographic isolation, transportation costs, equipment accessibility, parental hesitation to engage with public health systems, and technical limitations for certain procedures like cochlear implant testing. The interactive format allowed participants to pose questions directly to presenters, and concluded with the sharing of a comprehensive resource website to support ongoing telehealth advancement for hearing-impaired populations across diverse regional contexts.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Telemedicine, Deafness, Developmental screening, Children with special health care needs, Youth with special health care needs, Utah, Massachusetts, Montana, Family support services, Georgia, South Dakota, Staff development

Annotation: This March 24, 2022 recording features presentations from Dr. Karl White, Director of the National Center for Hearing Assessment and Management (NCHAM), and Dr. Jessica Messersmith, Professor of Communicative Sciences and Disorders at the University of South Dakota, examining post-COVID advancements in tele-audiology technology and implementation. White and colleague Hoffman outline NCHAM's comprehensive tele-audiology support systems, including planning tools, training programs, and technical assistance provided via Zoom, while Messersmith details specialized applications for pediatric diagnosis utilizing a hub-and-spoke service model where central facilities with specialized expertise support satellite locations staffed by technicians. The presentation covers practical considerations for site selection and setup, including necessary equipment and software specifications, while frankly addressing rural healthcare barriers in South Dakota such as poverty, geographic isolation, and workforce shortages of qualified audiologists. The recording concludes by highlighting available training resources for healthcare providers seeking to establish or expand tele-audiology services in underserved communities.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Telemedicine, Deafness, Developmental screening, Children with special health care needs, Youth with special health care needs, Infant health, Infants with special health care needs, South Dakota, Utah

Annotation: This fact sheet provides an overview of some of the provisions of the Affordable Care Act (ACA) that help improve access to coverage and care for children who are deaf or hard of hearing (D/HH). Topics include how consumer protections in the ACA impact children who are D/HH, provisions that help children who are D/HH receive needed health benefits, how implementation of the ACA varies by state, how the ACA supports hearing screening of infants and young children, coverage for hearing screening, and how programs and families can help improve future policies. [Funded by the Maternal and Child Health Bureau]

Contact: National Center for Hearing Assessment and Management, Utah Sate University, 2615 Old Main Hill, Logan, UT 84322, Telephone: (435) 797-3584 Web Site: http://www.infanthearing.org Available from the website.

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Keywords: Children, Consumer protection, Deafness, Health care reform, Health insurance, Hearing disorders, Infants, Patient Protection and Affordable Care Act, Policy development, Screening, Special health care needs

Annotation: This resource guide provides information to programs and individuals interested in using tele-intervention (TI) to provide family-centered early intervention to families of children who are deaf/hard of hearing who have chosen a spoken language outcome. Topics include benefits and challenges, implementation of TI sessions, technology to support TI, privacy and security considerations, licensing issues, evaluating TI outcomes, and reimbursement issues for TI. Video examples and a list of related publications and resources are included.

Contact: National Center for Hearing Assessment and Management, Utah Sate University, 2615 Old Main Hill, Logan, UT 84322, Telephone: (435) 797-3584 Web Site: http://www.infanthearing.org Available from the website.

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Keywords: Communication, Deafness, Early intervention, Hearing disorders, Infants, Language barriers, Language development, Language therapy, Service delivery, Telecommunication devices, Telemedicine

Annotation: This report examines the extent of hearing loss among children, settings in which deaf and hard-of-hearing children are educated, factors that help them acquire language and literacy skills, and challenges to providing appropriate interventions for them. Background on the issue is also provided.

Contact: U.S. Government Accountability Office, 441 G Street, N.W., Washington, DC 20548, Telephone: (202) 512-3000 E-mail: [email protected] Web Site: http://www.gao.gov Available from the website.

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Keywords: Child health, Children, Children with special health care needs, Deafness, Early childhood education, Education, Hearing disorders, Language development, Literacy, Literacy education

Annotation: This pamphlet for parents of a child who is deaf or hard of hearing helps guide parents through the steps of deciding which communication method(s) are best for their child. Steps include (1) finding a starting point, (2) identify and explore decision-making needs, and (3) plan next steps based on needs. Forms and tables to help with the process are included.

Contact: National Center on Birth Defects and Developmental Disabilities, Early Hearing Detection and Intervention Program, 1600 Clifton Road, Mailstop E-88, Atlanta, GA 30333, Telephone: (404) 498-3032 Secondary Telephone: (800) 232-4636 Fax: (404) 498-3060 E-mail: [email protected] Web Site: https://www.cdc.gov/ncbddd/hearingloss/ehdi-programs.html Available at no charge; also available from the website.

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Keywords: Children, Communication, Consumer education materials, Deafness, Facilitated communication, Hearing disorders

Annotation: This final report focuses on the Pediatric Deaf Access Program during the project period March 1, 2000, through February 28, 2005. The purpose of this project was to help address barriers that deaf children and hearing children of deaf parents experience in accessing primary health care. Report sections include the following: (1) purpose of project and relationship to Social Security Administration Title V maternal and child health programs, (2) goals and objectives, (3) methodology, (4) evaluation, (5) results and outcomes, (6) publication and products, (7) dissemination and utlization of results, (8) future plans and follow-up, and (9) type and amount of resources needed to replicate. The report includes six appendices: (1) a patient satisfaction survey, (2) newspaper and newsletter articles, (3) a PowerPoint presentation, (4) policies and procedures, (5) a health care survey, and (6) a deaf access program brochure. This project was part of the Healthy Tomorrows Partnership for Children program. [Funded by the Maternal and Child Health Bureau]

Contact: Access Community Health Network, 1501 South California Avenue, Chicago, IL 60608, Telephone: (773) 257-6770 Fax: (773) 257-6403 Web Site: http://www.accesscommunityhealth.net

Keywords: Access to health care, Arizona, Barriers, Child health, Communication, Deafness, Final reports, Parents, Primary care

Annotation: This booklet provides an overview of the early hearing detection and intervention (EHDI)process, including screening before ages 1, 3 and 6 months; communication choices for families with infants who have hearing loss; and working with the infant's health care provider. A list of Web sites for more information is included. It is available in English and in Spanish.

Contact: National Center on Birth Defects and Developmental Disabilities, Early Hearing Detection and Intervention Program, 1600 Clifton Road, Mailstop E-88, Atlanta, GA 30333, Telephone: (404) 498-3032 Secondary Telephone: (800) 232-4636 Fax: (404) 498-3060 E-mail: [email protected] Web Site: https://www.cdc.gov/ncbddd/hearingloss/ehdi-programs.html Available at no charge; also available from the website.

• In English
• In Spanish

Keywords: Consumer education materials, Communication, Deafness, Hearing disorders, Hearing screening, Infants, Parent professional relations, Spanish language materials

Annotation: This booklet provides an overview of the EHDI process, the timing or care before1, 3, and 6 months of age, communication choices, the primary care provider's role as a medical home,and risk factors for hearing loss. A list of Web sites for further information is included.

Contact: National Center on Birth Defects and Developmental Disabilities, Early Hearing Detection and Intervention Program, 1600 Clifton Road, Mailstop E-88, Atlanta, GA 30333, Telephone: (404) 498-3032 Secondary Telephone: (800) 232-4636 Fax: (404) 498-3060 E-mail: [email protected] Web Site: https://www.cdc.gov/ncbddd/hearingloss/ehdi-programs.html Available at no charge; also available from the website.

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Keywords: Communication, Deafness, Hearing disorders, Hearing screening, Infants, Parent professional relations

Annotation: These guidelines, which are intended as a resource tool for Minnesota families with a child who is deaf or has hearing loss, contain information about hearing, hearing loss, and medical and educational interventions; child development; tips for parents; definitions; and resources. The guidelines provide information about connecting with other families of children with hearing loss, understanding clinical procedures and health professionals' roles, choosing communication methods, understanding and finding services, locating financial assistance and insurance coverage, accessing educational services, understanding parents' and children's rights, and finding support systems and programs. [Funded in part by the Maternal and Child Health Bureau]

Contact: Minnesota Department of Health, Division of Community and Family Health, MN Telephone: (651) 201-3589 E-mail: [email protected] Web Site: http://www.health.state.mn.us/divs/cfh/program/cfh Available from the website.

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Keywords: Child development, Children, Children', Communication, Deafness, Educational programs, Families, Family support programs, Guidelines, Health care services, Health insurance, Hearing disorders, Intervention, Parent rights, s rights

Annotation: This guide for parents of children with hearing loss provides information that can help parents connect with other families, explore communication choices for their children, find out about services, locate possible financial assistance, learn how to access educational services, learn about their rights as a parent of a child with hearing loss, and find community support systems and programs. Background information is provided, as is information on universal newborn hearing screening, early intervention, and state and national resources. Five appendices include a glossary, information about hearing aids, a list of resource materials, a list of audiological assessment sites, a list of local resources, and a directory of educational services. An index of organizations and agencies is also included. The guide is also available from the Web site in Spanish.

Contact: Michigan Department of Health and Human Services, Capitol View Building, 201 Townsend Street, Lansing, MI 48913, Telephone: (517) 373-3740 Web Site: http://www.michigan.gov/mdhhs Available from the website.

• English Version
• Spanish Version

Keywords: Child health, Consumer education materials, Deafness, Early intervention, Hearing disorders, Hearing screening, Infant health, Resource materials, Services, Spanish language materials

Annotation: This report gives information on a technical assistance project for the North Carolina Department of Environment, Health, and Natural Resources Division of Maternal and Child Health. The project examined practice guidelines to promote health care quality for children with special health needs as their care was expected to migrate to a Medicaid managed care system. The report includes a summary of guidelines for children with the following conditions: asthma, attention deficit hyperactivity disorder, cerebral palsy, congenital deafness, cystic fibrosis, diabetes, sickle cell disease, and spina bifida. The report also identifies the sources of these guidelines. [Funded by the Maternal and Child Health Bureau]

Contact: Altarum Institute, 3520 Green Court, Suite 300, Ann Arbor, MI 48105, Telephone: (734) 302-4600 Secondary Telephone: (800) 879-6505 Fax: (734) 302-4991 Web Site: http://www.altarum.org/contact Available from the website.

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Keywords: Asthma, Attention deficit disorder, Cerebral palsy, Children with special health care needs, Cystic fibrosis, Deafness, Diabetes mellitus, Guidelines, Hyperactivity, North Carolina, Quality assurance, Sickle cell disease, Spina bifida, Standards, State health care reform, Technical assistance

Annotation: This research was designed to investigate the impact of early deafness on the interaction of deaf infants and their normally hearing mothers in the first 18 months of the child's life. The purposes of the study were to provide basic developmental information to behavioral scientists and a basis for informed intervention to parents and educators responsible for the early care of hearing-impaired infants. Specifically, the study focused on the relationships between the face-to-face interaction of these mothers and infants and the infants' motivation to engage the physical environment, their ability to cope with interactive stress, and their developing communicative competence. These relationships were viewed within the context of family response to the diagnosis of deafness and available support from internal and external sources. Recommendations resulting from the study addressed policy, intervention, and research. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB92-136241.

Keywords: Stress, Deaf, Development, Early Intervention, Mother-Child Interaction, Mothers

Annotation: This goal of this project was to develop a model referral network and regionalized health care delivery system for children at high risk for hearing, speech, and language disorders resulting from otologic diseases. Project objectives were to: (1) Develop staff in the tri-State area of Arkansas, Mississippi, and Tennessee and create and maintain a tri-State referral network; (2) identify contributing factors which inhibit health care delivery to infants and children with otologic problems who live among rural, remote, economically disadvantaged, and culturally diverse population groups; (3) remove barriers to care for infants and children with otologic health care problems; and (4) identify infants and children with hearing disorders living among rural and remote, economically disadvantaged, and culturally diverse population groups. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-161917.

Keywords: Computerized Medial Records, Audiology, Case Management, Computerized Medical Billing, Computers, Coordination of Health Care, Deaf, Hearing Disorders, Indigent Patients, Indigent Patients, Language Disorders, Low income groups, Medicaid, Otology, Regionalized Care, Rural Population, Speech Disorders

Annotation: This project aimed to improve the Children's Medical Services capacity to enhance the family's role in the delivery of care and program development. Parents were trained in case management, program development, decision-making, and stress reduction. A system was designed for improved use and sharing of the resources of the agencies addressing the needs of these families. [Funded by the Maternal and Child Health Bureau]

Keywords: Case Management, Computers, Deaf, Developmentally Delayed/Disabled, Parents, Regionalization of Care

Annotation: This was the fourth wave of a longitudinal cohort study. The aim was to follow a cohort with congenital rubella as they became young adults. 119 survivors of the 1963-65 New York City rubella epidemic were interviewed along with their parents. A broad range of information was obtained including: (1) current level of functioning; (2) problems; (3) prospects for the future; (4) experience with services and with alternative residential and educational models; (5) need for services during different periods of their lives; (6) availability of services; and (7) utility of these services. In addition, burdens and benefits to the family, associated with having a child with congenital rubella, as well as coping mechanisms were assessed. The study determined that deaf youth in their young adult years seem surprisingly cut off from social resources and that there was a high level of distress and expressed need for help on the part of mothers of multihandicapped youth. In addition, the project found some potentially important differences between the responses of mainstreamed youth and their parents. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB89-220917.

Keywords: Adolescents, Deaf, Handicapped, Mental retardation, Rubella

Annotation: This longitudinal study describes findings about the first decade in the lives of forty deaf children and their families. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB94-105863.

Keywords: Deafness, Education, Intellectual development, Longitudinal studies, Pediatricians