Skip Navigation

Strengthen the Evidence for Maternal and Child Health Programs

Sign up for MCHalert eNewsletter

Search Results: MCHLine

Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 20 (109 total).

Hess C. n.d.. Primary Care Assistance and Accountability Project [Final report]. Washington, DC: Association of Maternal and Child Health Programs, 43 pp.

Annotation: The Primary Care Assistance and Accountability Project (PCAAP) was designed to identify the leadership roles of state Title V MCH and children with special health care needs (CSHCN) programs and address accountability for planning and ensuring the delivery of effective, comprehensive and coordinated services, especially in regard to primary health care services for children. The project was implemented by staff experienced in State Title V programs in consultation with a national advisory committee and workgroups, additional national MCH experts, the Association's Executive Council, and with the participation of interdisciplinary teams of State Title V directors. Activities included development of an information base on state Title V programs from surveys and analysis of state and national reports; in-depth study of Title V roles and activities through site visitation to 10 state programs; development of draft model guidance for state accountability documents and contributions to guidance and policy frameworks developed by federal agencies or other national policy entities; and assistance to states both on an individual basis and through information dissemination to all states through the AMCHP Updates, conference and training workshop presentations, and production of eight major publications. Information was provided on State Title V programs and local counterpart programs to over 9,000 individuals. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB94-161577.

Keywords: Coordination of Health Care, Data Collection, Data System, Financing of Health Care, Medicaid, Primary Care

Levinson J. n.d.. Regional Comprehensive Care Program for Juvenile Connective Tissue Diseases [Final report]. Cinicinnati, OH: Children's Hospital Medical Center, Special Treatment Center for Juvenile Arthritis, 48 pp.

Annotation: This project provided comprehensive services (including early diagnosis, continuity of treatment, and case management by an interdisciplinary team) to juveniles with connective tissues diseases. Activities included providing services in forty-eight counties in Indiana, Kentucky, Ohio, and West Virginia; collecting clinical, treatment, and demographic data on all patients; and developing regional networks of health professionals. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-161883.

Keywords: Adolescents, Appalachians, Chronically Ill, Connective Tissue Diseases, Data Collection, Juvenile Rheumatoid Arthritis, Patient Education, Rehabilitation, Rheumatic Diseases, Systemic Lupus Erythematosus

Danielson C. n.d.. Healthy Foundations [Final report]. Des Moines, IA: Iowa Department of Public Health, 51 pp.

Annotation: The project's goals were to: (1) Develop and implement structures and processes in defined community areas to plan and implement a family-centered, community-based health care delivery system for children; (2) develop data system capacity and function statewide to ensure family-centered, community-based primary care services for children; and (3) share experiences in family-centered, community-based system change in the area of primary health care for children with other State, regional, and national maternal and child health providers. At the State level, strategies were directed toward developing a system of children's primary health care delivery that was family centered and community based. At the local level, child health steering committees in established projects were to continue to plan and implement child health system changes in their service areas. [Funded by the Maternal and Child Health Bureau]

Keywords: Access to Health Care, Child Mortality, Community Based Health Services, Databases, Family Centered Health Care, Information Systems, Primary Care, Standards of Care, State Programs

American Academy of Pediatrics and Dartmouth Institute of Health Policy and Clinical Practice. n.d.. AAP Child Health Mapping Project. Elk Grove Village, IL: American Academy of Pediatrics, 1 v.

Annotation: This resource provides a geographic representation of child health in the United States. Contents include national and state-specific data on pediatric health care delivery at the Primary Care Service Area level. A range of maps is available including the number of children under age 18 per pediatrician, the number of children in linguistically-isolated households, median household income, the number of pediatric residents and fellows, and estimated vaccine coverage rates. An interactive mapping tool is available to members of the American Academy of Pediatrics.

Contact: American Academy of Pediatrics, 345 Park Boulevard, Itasca, IL 60143, Telephone: 800/433-9016 Secondary Telephone: 202/347-8600 E-mail: https://www.aap.org/en/pages/contact-us/contact-national-headquarters/ Web Site: https://www.aap.org Available from the website.

Keywords: Access to health care, Children, Data sources, Geographic regions, Health care disparities, Immunization, Integrated information systems, Interactive media, Language barriers, Low income groups, Patient care planning, Pediatricians, Statewide planning, Work force

Big Cities Health Coalition. n.d.. Winnable battles case studies. Washington, DC: National Association of County and City Health Officials, Big Cities Health Coalition, 115 pp.

Annotation: These 12 case studies report on cutting-edge programs and innovative approaches to address the leading causes of death and disease in cities.

Contact: National Association of County and City Health Officials, 1100 17th Street, N.W., Seventh Floor, Washington, DC 20036, Telephone: (202) 783-5550 Fax: (202) 783-1583 E-mail: [email protected] Web Site: http://www.naccho.org Available from the website.

Keywords: Barriers, Case studies, Cities, Data sources, Health status, Health status disparities, Healthy People 2020, Public health infrastructure, Systems development

Minnesota Department of Health, Oral Health Program. [2021]. Minnesota state oral health plan 2020-2030: Building collaboration for collective action. St. Paul, MN: Minnesota Department of Health, 78 pp.

Annotation: This report outlines goals and strategies for advancing oral health equity, increasing access to oral health care, preventing oral disease, and improving oral health in Minnesota. It included five key focus areas: oral health infrastructure; access to oral health care; health systems integration; disability, special health care needs, and inclusion; and data. Oral health disparities in Minnesota, work and achievements since Minnesota’s first state oral health plan, best practices, and future directions are also discussed.

Contact: Minnesota Department of Health, P.O. Box 64975, St. Paul, MN 55164-0975, Telephone: (651) 201-5000 Secondary Telephone: (888) 345-0823 Web Site: http://www.health.state.mn.us Available from the website.

Keywords: Access to health care, Data, Health care systems, Health equity, Minnesota, Oral health, Prevention, Service integration, Special health care needs, State planning

Association of State and Territorial Dental Directors. 2021. Best practice approach: Dissemination of data from state-based surveillance systems. Reno, NV: Association of State and Territorial Dental Directors, 15 pp. (Best practice approaches for state, community, and territorial oral health programs)

Annotation: This report includes information about the purpose of oral health surveillance systems and the value for health jurisdictions in establishing such systems that take into account six general topics: primary audience, communication message, communication channel, message marketing, cultural sensitivity, and evaluation. The importance of translating data into clear, understandable language while also interpreting and revealing the meaning of the results is emphasized. Other topics include background and rationale, guidelines and recommendations, best practice criteria, research evidence, and practice examples.

Contact: Association of State and Territorial Dental Directors, 3858 Cashill Boulevard, Reno, NV 89509, Telephone: (775) 626-5008 Fax: (775) 626-9268 E-mail: [email protected] Web Site: https://www.astdd.org Available from the website.

Keywords: Communications, Health systems, Oral health, Statistical data, Surveillance

Ruderman M. 2020. Children's vision and eye health: A snapshot of current national issues (2nd ed.). Chicago, IL: National Center for Children's Vision & Eye Health at Prevent Blindness, 47 pp.

Annotation: This report is a compilation of research, survey data, and best practices that outlines the landscape for children's vision and eye health in the United States. Contents include information about the prevalence and impact of vision disorders in U.S. children, receipt of vision screening for infants and children from birth through age 17, and state approaches to ensuring children's vision and eye health. Additional topics include vision screening rates and requirements by state, pediatric vision benefits available under the Affordable Care Act, what is included in a strong vision health system of care, and model children's vision legislation. [Funded by the Maternal and Child Health Bureau]

Contact: Prevent Blindness America, 211 West Wacker Drive, Suite 1700, Chicago, IL 60606, Telephone: (800) 331-2020 E-mail: [email protected] Web Site: http://www.preventblindness.org Available from the website.

Keywords: Access to health care, Adolescents, Children, Costs, Health care reform, Health insurance, Health status, Policy development, Prevalence, Preventive health services, Primary care, Reimbursement, Research, Screening, Service integration, Standards, State programs, State surveys, Statistical data, Systems development, Vision, Vision disorders

Brenes L, Darsie B. 2019. California oral health surveillance plan 2019-2023. Sacramento, CA: California Department of Public Health, Office of Oral Health, 26 pp.

Annotation: This report describes a strategic approach for the development and implementation of California's first oral health surveillance system, the purpose of which will be to provide a consistent source of up-to-date valid information for use in developing, implementing, and evaluating programs to improve the oral health of California residents. The following aspects of the system are discussed: the framework, oral health indicators, operationalization, evaluation, data security, and data gaps.

Contact: California Department of Public Health, Office of Oral Health, MS Code 8305, P.O. Box 997377, MS 0500, Sacramento, CA 95899-7377, Telephone: (916) 558-1784 E-mail: [email protected] Web Site: https://www.cdph.ca.gov/Programs/CCDPHP/DCDIC/CDCB/Pages/OralHealthProgram/OralHealthProgram.aspx Available from the website.

Keywords: California, Evaluation, Information systems, Oral health, State information, State programs, Statistical data, Strategic plans, Surveillance

Corona A, Bussanich P. 2019. Using data and quality improvement to address health equity for children with autism spectrum disorder and other developmental disabilities. Washington, DC: Association of Maternal and Child Health Programs, 23 pp.

Annotation: This PowerPoint presentation discusses health equity considerations in autism spectrum disorder and developmental disabilities (ASD/DD) services, emphasizing the importance of understanding both how and why disparities affect different groups based on race, ethnicity, socioeconomic status, and geographic location. It presents two key takeaways: first, that prevalence data must be viewed through an equity lens using frameworks like the Equitable Evaluation Framework, and second, that solutions often already exist within communities and require input from compensated local context experts and impacted leaders. The presentation illustrates these points through Wisconsin's community-centered approach and emphasizes the value of community expertise in identifying and scaling up existing assets. The slides include embedded videos and links to additional resources.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

Keywords: Title V programs, Autism, State CHSCN programs, Staff development, Health care system, Process evaluation, Data collection, Wisconsin

King C, Perkins V, Nugent C, Jordan E. 2018. 2018 State of state early childhood data systems . Bethesday, MD: Early Childhood Data Collaborative, 47 pp.

Annotation: This report summarizes the results of a national survey to assess states' ability to link data systems related to government-funded early childhood education (ECE) programs and services. The updated information on states' progress in integrating their data systems is intended to help policy makers answer early childhood policy questions aimed at improving access to services, the quality of ECE programs, and the effectiveness of interventions.

Contact: Early Childhood Data Collaborative, c/o Child Trends, 7315 Wisconsin Avenue, Suite 1200, Bethesda, MD 20814, Telephone: (240) 223-9329 E-mail: [email protected] Web Site: http://www.ecedata.org Available from the website.

Keywords: Data linkage, Early childhood education, Health agencies, Integrated information systems, National surveys, School systems, Social service agencies, State programs

Oregon Health Authority. 2017. Oral health in Oregon's CCOs: A metrics report. Salem, OR: Oregon Health Authority, 34 pp.

Annotation: This report examines oral health care data in the context of Oregon’s health system transformation, including the launch of coordinated care organizations and expansion of the state Medicaid program, Oregon Health Plan. Topics include provider distribution, utilization, patient experience, care coordination, and oral health integration. Information about stakeholder groups, technical specifications, and a measure dashboard are included.

Contact: Oregon Health Authority, Public Health Division , 800 NE Oregon Street, Portland , OR 97232, Telephone: 971-673-0252 Secondary Telephone: Fax: (503) 947-2341 E-mail: [email protected] Web Site: https://www.oregon.gov/OHA/PH/Pages/index.aspx Available from the website.

Keywords: Coordination, Data analysis, Health care reform, Health care systems, Health insurance, Measures, Medicaid, Oral health, Oregon, Patient Protection and Affordable Care Act, Service integration, State programs, Statewide planning, Trends

Association of Maternal and Child Health Programs. 2017. National Title V children and youth with special health care needs program profile. Washington, DC: Association of Maternal and Child Health Programs, 15 pp.

Annotation: This report provides a snapshot of Title V Children and Youth with Special Health Care Needs (CYSHCN) programs across the United States. Contents include background and history of CYSHCN programs, recent changes affecting CYSHCN programs, and methods and results from an electronic survey of Title V CYSHCN directors to assess key characteristics of each state's CYSHCN program. Topics include program structure and strengths, roles in systems of care, CYSHCN program partnerships, financing of care for CYSHCN populations and emerging issues for CYSHCN programs.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org Available from the website.

Keywords: Advocacy, Children with special health care needs, Community based services, Consultation, Cultural competency, Data, Family centered care, Financing, Health care delivery, Health care reform, Health care systems, Health insurance, Leadership, Medicaid managed care, Models, Networking, Pediatric care, Policy development, Program coordination, Program development, Public health infrastructure, Public private partnerships, Quality assurance, Reimbursement, Role, Standards, State MCH programs, Title V programs

Murphy C, Grannemann K. 2017. Title V data integration toolkit. Washington, DC: Association of Maternal and Child Health Programs,

Annotation: This toolkit is a collection of resources that aims to assist states as they integrate Title V data into Early Childhood Integrated Data Systems (ECIDS). The toolkit consists of tip sheets, data integration use cases, and state examples.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org Available from the website.

Keywords: Case studies, Data linkage, Early childhood development, Early childhood education, Integrated information systems, Interagency cooperation, Program coordination, Program improvement, State programs, Systems development, Title V programs

Lombardi J, Harding JF, Connors MC, Friednam-Krauss AH, Dichter H, Ponder K, Sells J, Wolfe RB, Tarrant K, Scott-Little C, Maxwell KL, Jordan E, King C, Mathias D. 2016–. Rising to the challenge: Building effective systems for young children and families, a BUILD e-book. Boston, MA: Build Initiative, multiple items.

Annotation: This e-book highlights lessons learned from the initial implementation of a federal initiative to support states in their efforts to align, coordinate, and improve the quality of existing early learning and development programs across multiple funding streams that support children from birth through age five. Contents include experience, trends, and reflections captured through interviews with state leaders. Topics include state systems building through governance, local systems building through coalitions, early learning-health connections, trends and innovations in early childhood education work force development, reform in vision and practice, improving systems of learning through the use of child standards and assessments, integrated data strategies, and the impact of the initiative on state Quality Rating Improvement Systems (QRIS).

Contact: Build Initiative, 89 South Street, Suite 700, Boston, MA 02111, Telephone: (617) 523-6565 E-mail: [email protected] Web Site: http://www.buildinitiative.org Available from the website.

Keywords: Access to health care, Assessments, Child health, Coalitions, Data, Early childhood development, Early childhood education, Federal initiatives, Financing, Learning, Program coordination, Program improvement, Quality assurance, Service coordination, Service delivery systems, Standards, State government, Systems development, Trends, Work force

Love HL, Soleimanpour S, Schelar E, Even M, Carrozza M, Grandmont J. 2016. The children's health and education mapping tool. Washington, DC: School-Based Health Alliance, 1 v.

Annotation: This tool contains county-level information on child health, education, and socioeconomic status that can be searched, mapped, downloaded, and compared to national averages. Users can also map, filter, and display key characteristics of public school and school-based health center locations. A user manual and video tutorials are provided.

Contact: School-Based Health Alliance, 1010 Vermont Avenue, N.W., Suite 600, Washington, DC 20005, Telephone: (202) 638-5872 Secondary Telephone: (888) 286-8727 Fax: (202) 638-5879 E-mail: [email protected] Web Site: https://www.sbh4all.org Available from the website.

Keywords: Child health, Data, Education, Information systems, Integrated information systems, Maps, School based clinics, Schools, Socioeconomic status

Association of State and Territorial Health Officials. 2016. State health assessment guidance and resources. Arlington, VA: Association of State and Territorial Health Officials, 132 pp.

Annotation: This document for state health departments provides guidance on developing a state health assessment. Contents include four modules on identifying and engaging system stakeholders; collecting and analyzing health status data; collecting and analyzing stakeholder and community input data; and summarizing, presenting, and communicating findings. Each module provides information about relevant Public Health Accreditation Board standards, measures, and guidance; ideas for structuring the process and conducting assessment activities; specific examples and lessons learned from states; sample tools and links to additional resources; and a summary of key products, deliverables, or processes resulting from the module activities.

Contact: Association of State and Territorial Health Officials, 2231 Crystal Drive, Suite 450, Arlington, VA 22202, Telephone: (202) 371-9090 Fax: (571) 527-3189 Web Site: http://www.astho.org Available from the website.

Keywords: Assessment, Communication, Data analysis, Data collection, Health status, State health agencies, Statewide planning, Systems development

Association of State and Territorial Dental Directors, Children's Dental Health Project, and DentaQuest Foundation. 2016. Improving oral health measurement systems: Stakeholder feedback project summary report. Washington, DC: Children's Dental Health Project, 16 pp.

Annotation: This report describes a project to enlist the advice of advocacy and health professional groups on ways data can help improve the nation's oral health. The report also summarizes recommendations for collecting oral health data on the U.S. population. Contents include background; information about the project process, including participant feedback on the methods and outcomes; and next steps for improving health-measurement systems. A matrix of key oral health measures across the lifespan and a list of participating organizations are also included.

Keywords: Barriers, Data collection, Health status, Measures, Needs assessment, Oral health, Policy development, Population surveillance, Process evaluation, Program improvement, Quality assurance, Surveys, Systems development

Martinez A. 2016. School attendance, chronic health conditions and leveraging data for improvement: Recommendations for state education and health departments to address student absenteeism. Atlanta, GA: National Association of Chronic Disease Directors, 23 pp.

Annotation: This document for state education and health departments focuses on ways state school nurse consultants and other state school health personnel can support schools in reducing absences for students with chronic health conditions. Topics include the context and definitions of attendance as a measure, national efforts aimed at improving school attendance, challenges and opportunities related to collecting and using data on school attendance and chronic health conditions, collecting causes of school absence including chronic conditions, and recommendations for connecting school attendance and chronic health conditions to address absenteeism. Examples from Connecticut, Kentucky, and Massachusetts are included.

Contact: National Association of Chronic Disease Directors, 2200 Century Parkway, Suite 250, Atlanta, GA 30345, Telephone: (770) 458-7400 Web Site: https://chronicdisease.org Available from the website.

Keywords: Chronic illnesses and disabilities, Community action, Data analysis, Data collection, Leadership, Management information systems, Measures, Nursing, Program improvement, School attendance, School health services, School nurses, Schools, State departments of education, State health agencies, Students

Woolf SH, Aron L, Chapman DA, Dubay L, Zimerman E, Snellings LC, Hall L, Haley AD, Holla N, Ayers K, Lowenstein C, Waidmann TA. 2016. The health of the states: How U.S. states compare in health status and the factors that shape health–Summary report. Richmond, VA: Virginia Commonwealth University Center on Society and Health; Washington, DC: Urban Institute, 53 pp.

Annotation: This report, and accompanying supplemental reports, present findings on the status of Americans' health at the state level, along with the diverse factors associated with health. The report examines how state-level variations in health outcomes correlate with variations in factors thought to shape or influence health (health determinants) from five domains including health behaviors, health systems, economic and social factors, physical and social environmental factors, and public policies and social spending. Contents include research and policy priorities emerging from the analysis. Maps and charts are included.

Contact: Urban Institute, 500 L'Enfant Plaza, SW, Washington, DC 20024, E-mail: https://www.urban.org/about/contact-us Web Site: http://www.urban.org Available from the website.

Keywords: Data analysis, Decision making, Economics, Geographic factors, Health behaviors, Health status, Health systems, Life course, Protective factors, Public policy, Risk factors, Social factors

    Next Page »

The MCH Digital Library is one of six special collections at Geogetown University, the nation's oldest Jesuit institution of higher education. It is supported in part by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under award number U02MC31613, MCH Advanced Education Policy with an award of $700,000/year. The library is also supported through foundation and univerity funding. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.