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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 20 (210 total).

Davidson L. n.d.. Demonstration Projects for Pediatric EMS Systems Components: [Final report]. Mobile, AL: University of South Alabama College of Medicine, 104 pp.

Annotation: The overall goal of the this project was to demonstrate effective models for the necessary components of an emergency medical services for children (EMSC) system and the integration of those components into currently operating adult-oriented systems. The project has outlined the six major components of an EMSC system: (l) System description, (2) prevention, (3) education, (4) standards of care, (5) quality assurance, and (6) research and development. The project comprised seven subprojects whose activities included educating the public, the prehospital care provider, and the rural physician about the assessment and management of pediatric emergencies; comparing the efficacy of ground versus air transport; defining the degree of psychological impairment caused by head injury; identifying the rehabilitation facilities available locally, regionally, and nationally; and increasing compliance with safety belt/child restraint legislation. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB92-103332.

Keywords: Cost-Benefit Analysis, Data Collection, Emergency Medical Services, Emergency medical technicians, Facilities For, First Aid, Head Injuries, Health Professionals, Paramedics, Rehabilitation, Seat Belts/Restraints for Children

Rocky Mountain Network of Oral Health. 2024. Rocky Mountain Network of Oral Health (RoMoNOH): Data dictionary. Denver, CO: Rocky Mountain Network of Oral Health, 28 pp.

Annotation: This data dictionary specifies elements required for data collection, analysis and reporting by the community health centers participating in the Rocky Mountain Network of Oral Health project (RoMoNOH). RoMoNOH focuses on primary prevention of dental caries in infants and children from birth to age 40 months and pregnant women who are receiving health care in participating community health centers (CHCs) throughout Arizona, Colorado, Montana, and Wyoming.

Contact: National Maternal and Child Oral Health Resource Center, Georgetown University, Washington, DC 20057, E-mail: [email protected] Web Site: https://www.mchoralhealth.org Available from the website.

Keywords: Community health centers, Data analysis, Data collection, Infant health, Oral health, Pregnant women, Prevention, Young children

American Lung Association. 2023. State of tobacco control. Washington, DC: American Lung Association, irregular.

Annotation: This report tracks progress on key tobacco control policies at the state and federal levels, and assigns grades based on tobacco control laws and regulations in effect as of January 1, 2023. The federal government, all 50 state governments, and the District of Columbia have been given grade to reflect the extent to which tobacco control laws are adequately protecting citizens. The report summarizes the results of its findings and describes major trends regarding tobacco control policy efforts at the state and federal levels. Details about the methodology and the criteria used to assess the effectiveness of tobacco control policies are included.

Contact: American Lung Association, 1300 Pennsylvania Ave., N.W., Suite 800, Washington, DC 20004, Telephone: (202) 785-3355 Secondary Telephone: (800) 548-8252 Fax: (202) 452-1805 E-mail: [email protected] Web Site: http://www.lungusa.org Available from the website.

Keywords: Comparative analysis, Data, Federal programs, Health status, Policy, Smoking, Smoking cessation, State programs, Tobacco, Trends

Tiwari N, Chojnacki G, Smith K, Deacon G, and Sandoval M. 2023. Guide to equitably co-interpreting data with community collaborators. Princeton, NJ: Mathematica , 19 pp.

Annotation: This resource is intended to guide an organization’s approach to data interpretation, with the goal of interpreting study data in collaboration with members of the community or communities where research is taking place. The guide explains how collaborative interpretation, or co-interpretation, can make an evaluation more equitable by disrupting dynamics that otherwise prevent community members from exercising agency over research about their own communities.

Contact: Mathematica , P.O. Box 2393, Princeton, NJ 08543-2393, Telephone: (609) 799-3535 Fax: (609) 799-0005 E-mail: [email protected] Web Site: http://www.mathematica-mpr.com

Keywords: , Collaboration, Community participation, Data analysis, Health equity

Latoya Hill L, Artiga S, and Ranji U. 2023. Racial disparities in maternal and infant health: Current status and efforts to address them. Menlo Park, CA ,

Annotation: This issue brief provides analysis of racial and ethnic disparities across selected measures of maternal and infant health, discusses the factors that drive these disparities, and provides an overview of recent efforts to address them. Statistics from federal data sets are included.

Contact: Henry J. Kaiser Family Foundation, 2400 Sand Hill Road, Menlo Park, CA 94025, Telephone: (650) 854-9400 Secondary Telephone: (202) 347-5270 Fax: (650) 854-4800 Web Site: http://www.kff.org

Keywords: Barriers, Access to health care, Alaska natives, Blacks, Data, Ethnic factors, Health equity, Native Americans, Racial factors, Statistical analysis

Massachusetts Department of Public Health, Office of Health Equity. 2023. Racial equity data road map: Data as a tool towards ending structural racism. Boston, MA: Massachusetts Department of Public Health, Office of Health Equity, 68 pp.

Annotation: This road map outlines how data can be used as a tool to help end structural racism. It consists of a collection of guiding questions, tools, and resources to assist programs in taking concrete steps to better identify, understand, and act to address racial inequities. The road map contains seven sections: (1) Looking at health issues with a focus on the impact of racism; (2) Determining if a program is ready to use data to address racism; (3) Understanding what the data says about differences in health outcomes by race and ethnicity; (4) Using other sources of data to uncover causes of the differences; (5) Making plans to act on differences that are unjust or avoidable; (6) Presenting data in ways that help people make sense of the numbers; and (7) Moving from data to action.

Contact: Massachusetts Department of Public Health, Office of Health Equity, 250 Washington St., 5th Floor, Boston, MA 02108, Telephone: (617) 624-5590 Web Site: https://www.mass.gov/orgs/office-of-health-equity

Keywords: Data, Data analysis, Data collection, Data sources, Ethnic factors, Health equity, Outcome evaluation, Racial factors, Racism, State initiatives

Allen C; Alliance for Innovation on Maternal Health. 2023. Knowing better, doing better: Hurdles of measuring equity in care. Washington, DC: Alliance for Innovation on Maternal Health , (AIM for Safer Birth Podcast Series)

Annotation: In this podcast episode, host Christie Allen and Dr. Gillispie-Bell delve into the difficulties of measuring equity and addressing barriers in maternal-child health data. They discuss the challenges of capturing accurate data in a fragmented healthcare system, the limitations of electronic medical records (EMRs) in measuring quality metrics, and the importance of contextualizing data within the broader landscape of social determinants of health. The two share insights from their experiences in quality improvement and offer a candid conversation about the need for continuous quality improvement, sustainability of positive changes, and the potential for data-driven innovation in addressing severe maternal morbidity and mortality rates in the United States. This episode is part of the AIM for Safer Birth series of podcasts that dive deeper into the rising severe maternal morbidity and maternal mortality rates in the United States through a data-driven, quality improvement lens.

Contact: Alliance for Innovation on Maternal Health, 409 12th Street, S.W., Washington, DC 20024, E-mail: [email protected] Web Site: https://saferbirth.org/

Keywords: Barriers, Data, Data analysis, Data collection, Health equity, Maternal and child health research, Quality improvement

Actionable Intelligence for Social Policy . 2021. A toolkit for centering racial equity throughout data integration. Philadelphia, PA: Actionable Intelligence for Social Policy ,

Annotation: This toolkit outlines strategies to center race equity across data integration projects, incuding data collection, data access, analysis, reporting, and dissemination. Available in English, Spanish, and French.

Contact: Actionable Intelligence for Social Policy , University of Pennsylvania, 3701 Locust Walk, Philadelphia , PA 19104, Telephone: (215)573-5827 E-mail: [email protected] Web Site: https://aisp.upenn.edu/

Keywords: Data, Data analysis, Data collection, Health equity, Racial factors

Kaiser Family Foundation . 2020. Births financed by Medicaid . , 1

Annotation: This table presents a list of the number and percentage of births financed by Medicaid in each of the 50 united states. The analysis is based on data from the CDC Wonder Online Database.

Contact: Henry J. Kaiser Family Foundation, 2400 Sand Hill Road, Menlo Park, CA 94025, Telephone: (650) 854-9400 Secondary Telephone: (202) 347-5270 Fax: (650) 854-4800 Web Site: http://www.kff.org

Keywords: Childbirth, Data, Health surveys , Medicaid, Statistical analysis, Statistical data, Statistics, United States

Annie E. Casey Foundation . 2020. Four principles to make advanced data analytics work for children and families . Baltimore, MD: Annie E. Casey Foundation, 24 pp.

Annotation: This brief looks at the rapid rise of advanced analytics and explores the controversies, ethical challenges, and opportunities that it creates for youth- and family-serving agencies. It also presents four principles for identifying effective and equitable advanced analytics tools and includes real-world examples of jurisdictions that are using data science in ways that live up to—or fall short of — the social sector’s quest to develop better and fairer solutions for children, families, and communities.

Contact: Annie E. Casey Foundation, 701 Saint Paul Street, Baltimore, MD 21202, Telephone: (410) 547-6600 Fax: (410) 547-6624 E-mail: [email protected] Web Site: http://www.aecf.org

Keywords: Advocacy, Community participation, Data analysis, Data collection, Family support services, Initiatives, Model programs, Social services, Youth services

2019. State Poster Presentations from 2019 SPHARC Peer-to-Peer Exchange. [Washington, DC]: State Public Health Autism Resource Center , 9 pp.

Annotation: Taken from the 2019 SPHARC (State Health Autism Resource Center) Peer-to-Peer Exchange, this poster presents state-by-state profiles of autism spectrum disorder (ASD) initiatives and programs across multiple U.S. states including Wisconsin, Washington, Rhode Island, Ohio, New Hampshire, Minnesota, Maryland, Georgia, and Delaware. Each state profile includes unique state facts, data collection methods, quality improvement (QI) initiatives, and community engagement strategies. Common themes across states include efforts to address disparities in ASD screening and diagnosis, particularly among underserved and diverse populations; implementation of family navigation programs; use of data-driven approaches to identify service gaps; development of culturally competent services; and strategies to improve early identification and intervention. The profiles highlight various successful approaches such as Wisconsin's rural service delivery models, Minnesota's ADDM Network participation, Georgia's insurance coverage expansion through "Ava's Law," and Delaware's M-CHAT-R provider training pilot, while also acknowledging challenges including provider shortages, language barriers, and geographic access disparities.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

Keywords: Autism, State CHSCN programs, Data analysis, Wisconsin, Washington, Rhode Island, Ohio, New Hampshire, Minnesota, Maryland, Georgia, Delaware

Bussanich P. 2019. Integrating Title V data into Early Childhood Integrated Data Systems (ECIDs) at the Help Me Grow Forum 2019. Washington, DC: Association of Maternal and Child Health Programs, 61 pp.

Annotation: This presentation focuses on integrating Title V data into Early Childhood Integrated Data Systems (ECIDS) to improve services for children and youth with special health care needs. It outlines the relationship between Title V MCH (Maternal and Child Health) programs and Help Me Grow initiatives, highlighting their shared focus on developmental screening and early intervention. The presenter, Paige Bussanich from the Association of Maternal & Child Health Programs (AMCHP), explains how data integration can enhance cross-system collaboration and improve outcomes for children. The slides cover the structure of Title V programs, performance measurement frameworks, and current state efforts in data integration. The presentation also includes information about AMCHP's Title V Data Integration Toolkit and available technical assistance resources, with examples of successful state collaborations between Title V and Help Me Grow programs in Alabama, Vermont, and Wyoming. The final portion introduces data storytelling as a method to effectively communicate findings from integrated data systems.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

Keywords: Title V programs, Data collection, Data analysis, State CHSCN programs, Developmental screening, Vermont

Bussanich P, Corona A, Leahy M, Taft K, Tage S. 2019. Learn the signs. Act Early. AMCHP's state systems grant: Eight years (2011-2018) in review. Washington, DC: Association of Maternal and Child Health Programs, 1 pp.

Annotation: This poster uses colorful maps and other graphics to summarize an eight-year review (2011-2018) of AMCHP's "Learn the Signs. Act Early" (LTSAE) state systems grant program, which aimed to strengthen early identification and service coordination for children with autism spectrum disorder and other developmental disabilities (ASD/DD). The analysis, based on an environmental scan of program documents and a survey of grant leads from 31 states (91% response rate), demonstrates the program's success in building state and community capacity through various approaches, including developing state autism plans, increasing legislative awareness, and creating multilingual educational programming. The initiative, part of the CDC's Act Early Initiative launched in 2007, has supported 34 states and jurisdictions through AMCHP's partnership with the Association of University Centers on Disabilities (AUCD), providing not only funding but also technical assistance and interstate collaboration opportunities, ultimately showing that while implementation approaches varied across states, successful strategies could be adapted and replicated to improve developmental monitoring and screening systems.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

Keywords: Title V programs, Autism, Data analysis, State grants, State CHSCN programs

Centers for Medicare & Medicaid Services. 2018. About the Technical Assistance and Analytic Support Program. Baltimore, MD: U.S. Centers for Medicare & Medicaid Services, 1 p. (Medicaid/CHIP health care quality measures)

Annotation: This fact sheet describes a program to support states in collecting, reporting, and using datafrom three core sets of quality measures in Medicaid and the Children's Health Insurance Program. Topics include technical assistance and analytic support vehicles such as issue briefs, fact sheets, analytic reports, and toolkits; one-on-one support; virtual learning opportunities; and hands-on information and networking opportunities.

Contact: U.S. Centers for Medicare & Medicaid Services, 7500 Security Boulevard, Baltimore, MD 21244, Telephone: (800) 633-4227 Secondary Telephone: (877) 267-2323 Fax: Web Site: https://www.cms.gov Available from the website.

Keywords: Adults, Children, Children', Data analysis, Measures, Medicaid, Medical home, Program improvement, Quality assurance, Technical assistance, s Health Insurance Program

Connecticut Department of Public Health. 2018. Oral health improvement plan for Connecticut 2019–2024. Hartford, CT: Connecticut Department of Public Health, 24 pp.

Annotation: This report provides information on oral health in Connecticut. Four focus areas are discussed: prevention, oral health and overall health systems integration, and data collection and analysis. For each focus area, goals and objectives are presented, many of which encompass health equity. A section on oral health equity in the state is included.

Contact: Connecticut Department of Public Health, 410 Capitol Avenue, Hartford, CT 06134-0308, Telephone: (860) 509-8000 E-mail: [email protected] Web Site: http://www.ct.gov/dph Available from the website.

Keywords: , Access to health care, Community programs, Connecticut, Data analysis, Data collection, Health care utilization, Oral health, Prevention, State planning

Association of Maternal and Child Health Programs. 2018. Title V data integration state example: Rhode Island. Washington, DC: Association of Maternal and Child Health Programs, 4 pp.

Annotation: This document describes Rhode Island's public health data integration systems as part of the Title V Data Integration Toolkit. It details two main systems: the RI DataHUB, a statewide longitudinal data system managed by the University of Rhode Island that integrates public health data with education and other social services data; and KIDSNET, a universal database for young children managed by the Rhode Island Department of Health that assigns unique identifiers at birth and tracks health services. The document explains how these systems facilitate data sharing across programs, manage privacy concerns through appropriate agreements and HIPAA compliance, and generate both individual-level reports for service providers and aggregate data for public use.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

Keywords: Title V programs, Data collection, Data analysis, Public health agencies, Rhode Island, MCH training, Children', s health

Association of Maternal and Child Health Programs. 2018. Title V data integration state example: North Carolina. Washington, DC: Association of Maternal and Child Health Programs, 4 pp.

Annotation: This report describes North Carolina's Early Childhood Integrated Data System (NC ECIDS) as part of the Title V Data Integration Toolkit. It details how the state built this advanced data system with Race to the Top - Early Learning Challenge funding in 2012 and later secured ongoing state funding. The system integrates data from multiple public programs including early childhood education, social services, and public health sources such as SNAP and Child Protective Services, with plans to add WIC data in the future. The report explains the governance structure, which includes an Executive Committee and Program Management Committee with representation from contributing agencies, and outlines the data request and approval process. NC ECIDS generates standard and customizable reports that show unduplicated counts of children receiving services, allowing users to analyze program participation patterns and demographic data.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

Keywords: Title V programs, Data collection, Data analysis, Public health agencies, North Carolina, MCH training, Children', s health.

2018. Title V data integration state example: Kentucky. Washington, DC: Association of Maternal and Child Health Programs, 3 pp.

Annotation: This report discusses the Title V Data Integration Toolkit, focusing on Kentucky's experience with integrating early childhood and public health data into their state's longitudinal data system. In 2015, KCEWS (Kentucky Center for Education and Workforce Statistics) collaborated with GOEC (Governor’s Office of Early Childhood) and the Early Childhood Advisory Council to develop a county-level "Early Childhood Profile" using KLDS (Kentucky’s Longitudinal Data System) data. This profile combines integrated data with data planned for future integration, covering areas such as kindergarten readiness, child care capacity, and early childhood indicators on family, health, and social services. It includes public health data from programs like HANDS home visitation, WIC, and First Steps early intervention. Key takeaways from Kentucky's experience include demonstrating the value of integrated data early, prioritizing privacy and confidentiality, ensuring data sources understand how their data will be used, and learning from other states' experiences with public health data integration.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

Keywords: Title V programs, Data collection, Data analysis, Public health agencies, Kentucky, MCH training, Children', s health

2018. Title V data integration use case: Developmental screening. Washington, DC: Association of Maternal and Child Health Programs, 13 pp.

Annotation: This report outlines a use case for Title V programs to leverage Early Childhood Integrated Data Systems (ECIDS) to analyze developmental screening data for children from birth through age 5. The document is part of the Title V Data Integration Toolkit and focuses on two key questions: how many children are receiving developmental screenings using parent-completed tools, and how many are achieving five-domain developmental health based on these screenings. The document provides detailed guidance on analytic considerations, including the importance of defining which screening tools to analyze, understanding data sources within the ECIDS, and determining how to handle multiple screenings for individual children. A comprehensive list of recommended data elements is provided, including child identifiers, demographic information, and screening-related data. Examples of data visualization are provided using fictitious data, showing how to present overall screening rates and breakdowns by age categories.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

Keywords: Title V programs, Data collection, Data analysis, Public health agencies, Developmental screening, Data integration, MCH training, Children', s health

Association of Maternal and Child Health Programs. 2018. Title V data integration use case: Community-based services. Washington, DC: Association of Maternal and Child Health Programs, 38 pp.

Annotation: This report focuses on the Title V Data Integration Toolkit's use case for analyzing community-based services data through Early Childhood Integrated Data Systems (ECIDS). It emphasizes the importance of coordinated and integrated community-based services for children and families, highlighting how data integration can help Title V programs track referrals, monitor progress, and inform decision-making. The report suggests that Title V programs should request a current list of data sources from ECIDS to understand what data can be included in each analysis, and encourages Title V programs to adapt the information to fit their state's specific needs and potentially analyze data by various factors such as time, geographic area, or demographic variables. Overall, this use case aims to help Title V programs leverage ECIDS data to gain insights into community-based services, their utilization, and their impact on children's readiness for kindergarten and overall well-being.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

Keywords: Title V programs, Data collection, Data analysis, Public health agencies, Community based services, Children', s health, MCH training

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The MCH Digital Library is one of six special collections at Geogetown University, the nation's oldest Jesuit institution of higher education. It is supported in part by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under award number U02MC31613, MCH Advanced Education Policy with an award of $700,000/year. The library is also supported through foundation and univerity funding. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.