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Strengthening the evidence for maternal and child health programs

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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 20 (1,400 total).

Trauma Foundation, Center for Injury Prevention. n.d.. Here's looking at you, kid. San Francisco, CA: Trauma Foundation, 1 videotape (60 minutes, VHS).

Annotation: This videotape focuses on the impact of severe burns to the patient and the medical and psychological aftermath. We are shown the journey of a young male burn victim through rehabilitation and numerous medical procedures as well as the psychological impact on the victim and his family. A psychiatrist provides some insight into the psychiatric aspects of burn care as well as statistics on burn admissions and fatalities.

Contact: Trauma Foundation, San Francisco General Hospital, Building One, Room 300, San Francisco, CA 94110, Telephone: (415) 821-8209 Fax: (415) 821-8202 E-mail: tf@traumaaf.org Web Site: http://www.traumaf.org

Keywords: Audiovisual materials, Burns, Data, Hot water heaters, Psychological effects, Rehabilitation, Videotapes

Green G. n.d.. Systems development project integrated cost reporting system for Children and Youth projects: System users' documentation–Appendix to: Comment series no. 21—Calculating the cost of delivering health care in children and youth projects–A conceptual model and a case study. Minneapolis, MN: [University of Minnesota, School of Public Health], Systems Development Project, ca. 75 pp. (Comment series no.: 0-4 (21))

Annotation: This appendix to Comment Series no. 21 includes specimen reports, data collection documents with instructions, and sample instructions. These are designed for personnel involved in the data collection process for generating cost data to assist in the application of cost-benefit and cost-effectiveness studies in health care delivery and planning new health care facilities and programs for Children and Youth Program projects. This paper is part of the documentation and assessment of the effect of P.L. 89-97, Title II. [Funded by the Maternal and Child Health Bureau]

Keywords: Children and Youth Projects, Comprehensive health care, Cost effectiveness, Data collection, Health care delivery

Ertel PY, Chase RC, Notestine JC, Ambuel JP. n.d.. A multi-purpose outpatient data system. Minneapolis, MN: [University of Minnesota, School of Public Health], Systems Development Project, 10 pp. (Comment series no.: 9-6 (19))

Annotation: This paper shares the development of an outpatient data system by the Columbus [Ohio] Children's Hospital which was revised at the time their Children and Youth project was initiated in June, 1966. The data system describe complies with the Children and Youth Program reporting requirements but is of broader scope. This is part of a series to document and asses the effect of P.L. 89-97, Title II. [Funded by the Maternal and Child Health Bureau]

Keywords: Administration, Adolescent health programs, Child health programs, Children and Youth Projects, Comprehensive health care, Data collection, Ohio, Outpatients

Davidson L. n.d.. Demonstration Projects for Pediatric EMS Systems Components: [Final report]. Mobile, AL: University of South Alabama College of Medicine, 104 pp.

Annotation: The overall goal of the this project was to demonstrate effective models for the necessary components of an emergency medical services for children (EMSC) system and the integration of those components into currently operating adult-oriented systems. The project has outlined the six major components of an EMSC system: (l) System description, (2) prevention, (3) education, (4) standards of care, (5) quality assurance, and (6) research and development. The project comprised seven subprojects whose activities included educating the public, the prehospital care provider, and the rural physician about the assessment and management of pediatric emergencies; comparing the efficacy of ground versus air transport; defining the degree of psychological impairment caused by head injury; identifying the rehabilitation facilities available locally, regionally, and nationally; and increasing compliance with safety belt/child restraint legislation. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB92-103332.

Keywords: Cost-Benefit Analysis, Data Collection, Emergency Medical Services, Emergency medical technicians, Facilities For, First Aid, Head Injuries, Health Professionals, Paramedics, Rehabilitation, Seat Belts/Restraints for Children

Fiser D. n.d.. Demonstration Project: Emergency Medical Services for Children: [Final report]. Little Rock, AR: University of Arkansas for Medical Sciences, 44 pp.

Annotation: The Arkansas Demonstration Project utilized a broad-based approach to evaluate and improve the outcome of pediatric emergencies in Arkansas. It involved interaction with many statewide agencies, including various offices of the Arkansas Department of Health and the Area Health Education Centers (AHECs) of the University of Arkansas for Medical Sciences. The project was designed with four primary purposes: (1) Increase the level of knowledge regarding the consequences of critical illness and injury in children in the State of Arkansas; (2) improve the emergency medical services provided to those children during the project period and after, particularly to handicapped and minority children; (3) determine the effectiveness of the proposed methodologies for the reduction of morbidity and mortality associated with childhood illness and injury; and (4) determine effective methods of imparting the knowledge gained to other States in a manner resulting in the adoption of effective programs by those States. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-196947.

Keywords: Ambulances, Child Education of Health Professionals, Data Bases, Data Collection, Disabled, Emergency Medical Services, Emergency Medical Technicians (EMTs), Emergency medical technicians, Minorities, Morbidity, Mortality, Networking

Newacheck P. n.d.. Improving Health Insurance Coverage for Adolescents: Analysis, Dissemination, and Technical Assistance [Final report]. San Francisco, CA: Institute for Health Policy Studies, 12 pp.

Annotation: The goals of this project were to: (1) Heighten awareness of adolescent health insurance problems and potential solutions among policymakers, health care professionals, educators, business groups, and parents; (2) strengthen State-level capacity to plan and implement strategies for improving financing of health services for adolescents; and (3) update and expand our knowledge base concerning the financing of health services for adolescents. Activities included conducting workshops, providing technical assistance, and publishing reports and educational materials. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB94-161536.

Keywords: Adolescents, Data Collection, Education of Health Professionals, Financing Health Care for Adolescents, Health Insurance, Medicaid, Minorities

Hess C. n.d.. Primary Care Assistance and Accountability Project [Final report]. Washington, DC: Association of Maternal and Child Health Programs, 43 pp.

Annotation: The Primary Care Assistance and Accountability Project (PCAAP) was designed to identify the leadership roles of state Title V MCH and children with special health care needs (CSHCN) programs and address accountability for planning and ensuring the delivery of effective, comprehensive and coordinated services, especially in regard to primary health care services for children. The project was implemented by staff experienced in State Title V programs in consultation with a national advisory committee and workgroups, additional national MCH experts, the Association's Executive Council, and with the participation of interdisciplinary teams of State Title V directors. Activities included development of an information base on state Title V programs from surveys and analysis of state and national reports; in-depth study of Title V roles and activities through site visitation to 10 state programs; development of draft model guidance for state accountability documents and contributions to guidance and policy frameworks developed by federal agencies or other national policy entities; and assistance to states both on an individual basis and through information dissemination to all states through the AMCHP Updates, conference and training workshop presentations, and production of eight major publications. Information was provided on State Title V programs and local counterpart programs to over 9,000 individuals. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB94-161577.

Keywords: Coordination of Health Care, Data Collection, Data System, Financing of Health Care, Medicaid, Primary Care

Hess,C. n.d.. State MCH Director Program Development: Legal Assistance Project [Final report]. Washington, DC: Association of Maternal and Child Health Programs , 42 pp.

Annotation: This project was designed to improve the ability of State Maternal and Child Health Programs to: (1) effectively implement Title V of the Social Security Act; (2) coordinate with other related Federal programs; and (3) develop creative approaches for utilizing other such programs to meet the needs of mothers, children, adolescents, children with special health care needs, and families. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-196897.

Keywords: Access to Health Care, Coordination of Health Care, Data Collection, Information Dissemination, Medicaid, PL 99-457, Social Security Act, Title V, State MCH directors, WIC Program

Pendley. n.d.. Native American Adolescent Injury Prevention Project: [Final report]. Santa Fe, NM: New Mexico Health and Environment Department (HED), 12 pp.

Annotation: This project sought to reduce the rate of unintentional injuries and deaths among Native American adolescents in New Mexico and the Southwest. Specific goals were to: (1) Improve existing data bases on deaths and disabilities from unintentional injuries among Native American teens; (2) improve culturally relevant injury prevention materials and methodologies for these teens; (3) improve the knowledge, attitudes, and prevention practices regarding unintentional injuries among this population; (4) increase the availability of injury prevention materials and methodologies in Native American junior and senior high schools; and (5) increase the quality and quantity of injury prevention services provided to these teens by health care and tribal agencies. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-199206.

Keywords: Southwestern United States, Adolescents, American Indians, Data Bases, Indian Health Service (IHS), Information Clearinghouses, Injuries, Injury Prevention, Mortality

Simmons E. n.d.. Youth in Transition—The Alabama Experience: [Final report]. Montgomery, AL: Alabama Department of Education, 32 pp.

Annotation: This project focused on developing a systematic approach to integrate medical, vocational, educational, psychosocial, and developmental services for adolescents with physical disabilities and/or chronic illness who are at risk in their transition to maturity. Project objectives were to (1) create an administrative structure at the State level and in two pilot sites for provision of an integrated continuum of health and education services; (2) enable service providers, through training and collaboration, to coordinate service planning for the target population; (3) enable the adolescent and family, through counseling and training, to function as their own "case manager"; and (4) monitor and evaluate the model to determine the feasibility for replication in Alabama and/or other states. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-147031.

Keywords: Adolescents with special health care needs, Advocacy, Chronic illnesses and disabilities, Community-Based Health Care, Coordination of Health Care, Data Bases, Interdisciplinary Teams, Rural Population, Urban Population

Freedman S. n.d.. Case Management Information/Consultation Base for Services to Children with Chronic Illnesses and Disabilities: [Final report]. Gainesville, FL: Institute for Child Health Policy, 49 pp.

Annotation: The goals of this project were to disseminate information and to provide technical assistance on case management services for children with special health care needs and their families. The project served organizations engaged in the design, implementation, and assessment of case management activities. Activities included the collection of documents, the creation of a case management database, an analysis of case management services, and the development of a working paper "Focus and Functions of Case Management." [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-147106.

Keywords: Case Management, Chronic illnesses and disabilities, Data Bases, Data Collection

Calkins R. n.d.. Planning and Establishment of a Parent-Child Development Center=Family Based Education Centers: [Final report]. Honolulu, HI: Kamehameha Schools/Bishop Estate Center for Development of Early Education, 50 pp.

Annotation: This project developed a model integrated service system of educational, health, and social service programs for families of Hawaiian children (prenatal to age 5 years) who are disproportionately at risk for health, social, and educational handicaps. Four Native Hawaiian Family Based Education Centers were established, with three core educational components: A home visiting program, a traveling preschool program, and a center-based preschool. Activities included conducting an extensive assessment of community needs and developing ongoing ties with institutions of higher learning in the State. Strong health promotion and social service programs complemented the educational focus, and a case management system helped families assess their own goals in each of these areas. Community participation and ownership of the program were critical components. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-147023.

Keywords: Community-Based Education Programs, Data Collection, Early Intervention, Education, Family-Based, Hawaiians, Home Visiting, Infant Mortality, Learning Disabilities, Low Birthweight, Parents, Prenatal Care

Partridge S. n.d.. PROJECT AIMS [Final report]. Portland, ME: University of Southern Maine, 37 pp.

Annotation: Project AIMS worked to strengthen the capacity of Maine's service system (including P.L. 99-457 efforts) to meet the emotional health needs of young children (birth to 5 years old) and their families. The project objectives were to: (1) Establish a multidisciplinary network of project associates; (2) develop and field-test an emotional health brief assessment tool for children birth to 5 years old; (3) recommend to the service network methods of conducting comprehensive psychosocial assessments of children/families with emotional difficulties; and (4) strengthen treatment services which facilitate attachment, interaction, mastery, and support within families. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-158608.

Keywords: 99-457, Community-Based Health Services, Coordination of Health Care, Data Collection, Early Intervention, Emotional Health, High risk children, High risk groups: Families, L, P, Parent-Child Interaction, Screening Tools

Shimizu H. n.d.. Identification of Hearing Loss in the Neonatal Intensive Care Unit at The Johns Hopkins Hospital [Final report]. Baltimore, MD: Johns Hopkins University School of Medicine, 27 pp.

Annotation: The goal of this project was to develop and recommend an appropriate hearing screening model to be used in Neonatal Intensive Care Units (NICUs) in the state or nation. The project was designed to compare three of the most commonly used screening procedures to determine the incidence of hearing loss, to identify the most predictive procedure or cluster of procedures for screening hearing loss in the NICU, to study the relationship between hearing screening procedures and the outcome of independent audiometric and developmental measures, and to identify the most cost effective mass hearing screening procedures. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-152825.

Keywords: Data Collection, Hearing, Hearing Loss, High risk infants Hearing Impaired, Neonatal Intensive Care Unit, Screening

Poisson S. n.d.. Maternal and Child Health Cooperative Agreement [Final report]. Rockville, MD: Reginald S. Lourie Center for Infants and Young Children, 52 pp.

Annotation: The goal of this project was to develop and implement comprehensive and family-centered approaches to early identification, assessment, and treatment of infants and young children who are at risk for or suffering from emotional and/or regulatory difficulties. To this end, the Regional Center for Infants and Young Children: (1) Monitored types of families and children referred to and receiving services from an agency specializing in the early detection of emotional disorders or potential risk; (2) developed principles and technology to identify infants and young children/families at risk for psychosocial and developmental difficulties; (3) developed comprehensive, family-centered approaches to assessment and diagnosis; (4) developed prevention-oriented, family-centered approaches to intervention; (5) developed and disseminated technical assistance and training approaches; (6) engaged State and local maternal and child health (MCH) agencies in the project; and (7) accessed multiple financial resources to support its efforts. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-158236.

Keywords: Affective Disorders, Behavioral Disorders, Data Collection, Family-Centered Health Care, High risk groups: Families, High risk infants, Parents, Regulatory Disorders, Screening Tools, Temperament

Perrin J. n.d.. Home Care for Chronically Ill Children: Policy Analysis [Final report]. Boston, MA: Massachusetts General Hospital, Wang Ambulatory Care Center, 171 pp.

Annotation: The goal of this project was to improve the knowledge base from which policymakers and program directors make decisions regarding implementation of community-based and home-based services for children with long-term health care needs. Strategies included a literature review, a review of current innovative home and community-based programs, and the dissemination of findings and recommendations by means of publications and a state-of-the-art conference. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB94-106358.

Keywords: Children, Chronically Ill, Community-Based Health Services, Data Collection from, Home-Based Health Care, Primary Care Centers, Technology Dependence

Levinson J. n.d.. Regional Comprehensive Care Program for Juvenile Connective Tissue Diseases [Final report]. Cinicinnati, OH: Children's Hospital Medical Center, Special Treatment Center for Juvenile Arthritis, 48 pp.

Annotation: This project provided comprehensive services (including early diagnosis, continuity of treatment, and case management by an interdisciplinary team) to juveniles with connective tissues diseases. Activities included providing services in forty-eight counties in Indiana, Kentucky, Ohio, and West Virginia; collecting clinical, treatment, and demographic data on all patients; and developing regional networks of health professionals. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-161883.

Keywords: Adolescents, Appalachians, Chronically Ill, Connective Tissue Diseases, Data Collection, Juvenile Rheumatoid Arthritis, Patient Education, Rehabilitation, Rheumatic Diseases, Systemic Lupus Erythematosus

Benford M. n.d.. MATCH II: A Merged Database for Health and Developmental Disabilities [Final report]. Columbus, OH: Ohio Department of Health, 10 pp.

Annotation: The goal of this project was to improve coordination and continuity of early intervention and health related services to infants and young children who have, or are at risk for, developmental disabilities or delays. The project developed a collaborative mechanism via computer linkage for referring, tracking, and evaluating these children. A microbased computerized identification, referral, and tracking system has been developed for use at the local level. Through the merged database and tracking system, the project sought to improve child find, service coordination, follow-along, and program evaluation. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-161974.

Keywords: Case Management, Collaboration of Care, Computer Linkage, Data Bases, Data Collection, Developmentally Delayed/Disabled, EPDST, Early Intervention, Families, High risk infants, Medicaid, Referrals, WIC Program

Keller A. n.d.. Services for Adults with Cystic Fibrosis [Final report]. Harrisburg, PA: Pennsylvania Department of Health, 37 pp.

Annotation: This project addressed the issue of transitioning of late adolescents and young adults with cystic fibrosis from pediatric care to the adult health care system. The project was developed in order to study the issue of transitioning in terms of the health care delivery system. The goal of the project was to develop an appropriate adult health care delivery model and to study this process and the process of transitioning patients from a pediatric hospital to an adult hospital in separate locations. The objectives of the project were to examine four issues: (1) The effect of the transition on patients and families; (2) determining what services are needed in the adult care setting to provide appropriate care; (3) determining whether interinstitutional issues can be overcome to successfully develop such a program; and (4) studying the financial impact on patients and institutions of this transition. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-198372.

Keywords: Adolescents, Chronically Ill, Cystic Fibrosis, Data Collection, Stress, Youth in Transition

Thomas R. n.d.. Child and Family Support Project [Final report]. Seattle, WA: Children's Hospital and Medical Center, 144 pp.

Annotation: The Child and Family Support Project was designed to facilitate and support access to and coordination of health care services for children with chronic conditions and their families in order to strengthen family capacity to care for their child in the community setting. The project included activities to identify and develop models for services through: improvement of communication and coordination between community-based services; development of a data base of resources for the populations; enhancement of transition from institutional to community or least restrictive environment; and support for the families of children with chronic conditions. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB94-106291.

Keywords: Chronically Ill, Coordination of Health Care, Data Bases, Family Support, Family-Based Health Care, Networking

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This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.