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Strengthening the evidence for maternal and child health programs

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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 20 (29 total).

Hess C. n.d.. Primary Care Assistance and Accountability Project [Final report]. Washington, DC: Association of Maternal and Child Health Programs, 43 pp.

Annotation: The Primary Care Assistance and Accountability Project (PCAAP) was designed to identify the leadership roles of state Title V MCH and children with special health care needs (CSHCN) programs and address accountability for planning and ensuring the delivery of effective, comprehensive and coordinated services, especially in regard to primary health care services for children. The project was implemented by staff experienced in State Title V programs in consultation with a national advisory committee and workgroups, additional national MCH experts, the Association's Executive Council, and with the participation of interdisciplinary teams of State Title V directors. Activities included development of an information base on state Title V programs from surveys and analysis of state and national reports; in-depth study of Title V roles and activities through site visitation to 10 state programs; development of draft model guidance for state accountability documents and contributions to guidance and policy frameworks developed by federal agencies or other national policy entities; and assistance to states both on an individual basis and through information dissemination to all states through the AMCHP Updates, conference and training workshop presentations, and production of eight major publications. Information was provided on State Title V programs and local counterpart programs to over 9,000 individuals. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB94-161577.

Keywords: Coordination of Health Care, Data Collection, Data System, Financing of Health Care, Medicaid, Primary Care

Hess,C. n.d.. State MCH Director Program Development: Legal Assistance Project [Final report]. Washington, DC: Association of Maternal and Child Health Programs , 42 pp.

Annotation: This project was designed to improve the ability of State Maternal and Child Health Programs to: (1) effectively implement Title V of the Social Security Act; (2) coordinate with other related Federal programs; and (3) develop creative approaches for utilizing other such programs to meet the needs of mothers, children, adolescents, children with special health care needs, and families. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-196897.

Keywords: Access to Health Care, Coordination of Health Care, Data Collection, Information Dissemination, Medicaid, PL 99-457, Social Security Act, Title V, State MCH directors, WIC Program

Simmons E. n.d.. Youth in Transition—The Alabama Experience: [Final report]. Montgomery, AL: Alabama Department of Education, 32 pp.

Annotation: This project focused on developing a systematic approach to integrate medical, vocational, educational, psychosocial, and developmental services for adolescents with physical disabilities and/or chronic illness who are at risk in their transition to maturity. Project objectives were to (1) create an administrative structure at the State level and in two pilot sites for provision of an integrated continuum of health and education services; (2) enable service providers, through training and collaboration, to coordinate service planning for the target population; (3) enable the adolescent and family, through counseling and training, to function as their own "case manager"; and (4) monitor and evaluate the model to determine the feasibility for replication in Alabama and/or other states. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-147031.

Keywords: Adolescents with special health care needs, Advocacy, Chronic illnesses and disabilities, Community-Based Health Care, Coordination of Health Care, Data Bases, Interdisciplinary Teams, Rural Population, Urban Population

Gates A. n.d.. The Chronic Illness Program (CIP) [Final report]. New Orleans, LA: Children's Hospital, 21 pp.

Annotation: The goal of this project was to develop a regionalized system of care for chronically ill children and their families. To achieve this goal, the project identified the needs of children with chronic illnesses and their families, developed a network of existing resources for this population, and established new resources. Activities included developing a network of parents, community providers, and health professionals; conducting education/training sessions for school and Title V personnel, parents, and health professionals; producing educational packets and training materials; and developing a computerized information and referral system for state MCH and school system staff. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-147080.

Keywords: Chronically Ill, Coordination of Health Care, Families, Networking, Play Therapy, Referrals

Partridge S. n.d.. PROJECT AIMS [Final report]. Portland, ME: University of Southern Maine, 37 pp.

Annotation: Project AIMS worked to strengthen the capacity of Maine's service system (including P.L. 99-457 efforts) to meet the emotional health needs of young children (birth to 5 years old) and their families. The project objectives were to: (1) Establish a multidisciplinary network of project associates; (2) develop and field-test an emotional health brief assessment tool for children birth to 5 years old; (3) recommend to the service network methods of conducting comprehensive psychosocial assessments of children/families with emotional difficulties; and (4) strengthen treatment services which facilitate attachment, interaction, mastery, and support within families. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-158608.

Keywords: 99-457, Community-Based Health Services, Coordination of Health Care, Data Collection, Early Intervention, Emotional Health, High risk children, High risk groups: Families, L, P, Parent-Child Interaction, Screening Tools

Force J. n.d.. Project Copernicus [Final report]. Baltimore, MD: Maryland Department of Health and Mental Hygiene, 15 pp.

Annotation: Project Copernicus, a dual-State initiative for Maryland and Virginia, developed, demonstrated, and evaluated training programs in family-centered service coordination with target groups of professional service providers and parents in urban, rural, and suburban areas of Maryland and Virginia. Project Copernicus demonstrated how to provide family-centered care for families with children with special health needs by assisting both parents and professional service providers to develop and use family-centered service coordination activities (case management). [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB97-121859.

Keywords: Access to Health Care, CSHCN, Case Management, Chronic illnesses and disabilities, Coordination of Health Care, Disabled, Education of Health Professionals, Families, Family-Centered Health Care, Fragmentation of Services, Parent Education, Parents, programs

Epstein S. n.d.. New England SERVE: A Planning Network for Children with Special Health Care Needs [Final report]. Boston, MA: Massachusetts Health Research Institute, 29 pp.

Annotation: This network fostered collaboration among State programs for children with special health needs in New England. Activities included documenting quality assurance and monitoring activities; reviewing existing standards of care and developing new standards; facilitating interagency and public/private cooperation; and publishing the New England Status Report which covered legislation and program initiatives. The most concrete outcome has been the publication of Enhancing Quality: Standards and Indicators of Quality Care for Children with Special Health Care Needs. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-158681.

Keywords: Chronic illnesses and disabilities, Coordination of Health Care, Networking

Henry W. n.d.. PATHFINDER: A Project to Improve Systems of Care for Children with Chronic Health Conditions [Final report]. St. Paul, MN: Pathfinder Resources, Inc., 28 pp.

Annotation: This project sought to improve information sharing among public agencies, third-party payers, special projects of regional and national significance (SPRANS), and employers in Minnesota. Activities included an annual invitational workshop; technical assistance; a quarterly newsletter; a continuing education center; and the guidelines, *How to Develop a Community Network.* [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-163549.

Keywords: Chronic illnesses and disabilities, Community-Based Health Care, Continuing Education, Coordination of Health Care, Families, Financing Health Care, Medicaid, Networking

Valentine S. n.d.. Developing Community-Based Family Centered Care/Case Management and Family Support Services for Mississippi's Children with Special Health Care Needs [Final report]. Jackson, MS: Mississippi State Department of Health, 25 pp.

Annotation: This project sought to develop a statewide system of community-based, comprehensive care/case management and family support services. Program strategies included developing a training curriculum for the skilled delivery of home-based family support services by medical professionals, paraprofessionals, and parents; piloting a respite providers' network; providing statewide training on the provision of family support services; and developing and disseminating a statewide directory of trained family support service providers. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-158277.

Keywords: 99-457, Case Management, Chronically Ill, Community-Based Health Care, Coordination of Health Care, Family-Based Health Care, Financing Health Care, Fragmentation of Services, L, P, Parents, Rural Population

Davis J. n.d.. Improving Coordination of Services for Chronically Impaired Children and Their Families [Final report]. Santa Fe, NM: New Mexico Health and Environment Department, 18 pp.

Annotation: This project sought to increase coordination of service provision to chronically ill and disabled children, with a special focus on Native American children. Activities included organizing an annual conference, tracking legislation, establishing a committee which analyzed relevant portions of the state budget, and conducting a survey on the number of children receiving case management services. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB91-241935.

Keywords: American Indians, Chronically Ill, Coordination of Health Care, Families, Fragmentation of Services, PL 94-142

Malach R. n.d.. Case Management for Parents of Indian Children with Special Health Care Needs [Final report]. Bernalillo, NM: Southwest Communication Resources, 20 pp.

Annotation: This project provided a model program for American Indian families and the professionals who served them. The program goals were to identify cultural, systemic, institutional, and policy barriers that inhibit Native American family participation in the "Western" health care/case management system; improve case management by facilitating effective communication between Native American families and the non-Native American health care professionals who serve them; and increase Native American family participation in health care policy development and planning forums in order to promote changes that improve services for Native American children and families. Activities included developing a videotape illustrating effective cross-cultural communication strategies for non-Indian health care providers and training an Indian parent advocate to help families seen at IHS special pediatric clinics. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-158251.

Keywords: American Indians, Case Management, Chronically Ill, Community-Based Health Care, Coordination of Health Care, Developmentally Delayed/Disabled, Family-Based Health Care, Indian Health Service (IHS), Low income groups, Parents, Rural Population

Cooper L. n.d.. Demonstration Project to Develop a Pediatric Service Coordination Model [Final report]. Cleveland, OH: MetroHealth Medical Center, 34 pp.

Annotation: The goal of this project was to enable families to provide home-centered care for their special needs children, when home was the best option, by establishing a service delivery system. This system: (1) Promoted the availability and accessibility of comprehensive quality services that address physical, psychosocial, spiritual, and developmental needs; (2) encouraged continuity and coordination of care among all components of the child and family's interdisciplinary team; (3) promoted communication among caregivers; and (4) was reimbursable, accountable, and responsive to changing needs. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-161891.

Keywords: 99-457, Chronically Ill, Coordination of Health Care, Families, Family-Centered Health Care, Home-Based Health Care, Interdisciplinary Teams, Interdisciplinary Teams, L, P, Pediatric Care Providers, Technology Dependence

Nickel R. n.d.. Oregon Developmental Monitoring Project for High Risk Infants [Final report]. Eugene, OR: Oregon Health Sciences University , 38 pp.

Annotation: This project established a model program for the coordination of early identification and assessment services for infants 0-3 years of age at high risk for major handicaps. It aimed to make appropriate developmental screening available as close as possible to the infant's home community, to provide the necessary developmental screening training to local health and educational service providers, and to provide the regional coordination for the many agencies and professional involved. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-156693.

Keywords: Clinics, Coordination of Health Care, Early Intervention, Education of Health Professionals, High risk infants, Rural Population, Screening

Branca P. n.d.. The Care of Bronchopulmonary Dysplasia In a System Encompassing Tertiary, Rehabilitative and Home Care [Final report]. Philadelphia, PA: Thomas Jefferson University Hospital, 13 pp.

Annotation: The goal of this project was the development of a multilevel model of care for infants with bronchopulmonary dysplasia that was cost effective, decreased length of hospital stays, and allowed for a physically, emotionally, socially, and developmentally healthier child. Inservice training for staff and parenting workshops were conducted as part of this project. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-161966.

Keywords: Bronchopulmonary dysplasia, Children with special health care needs, Coordination of services, Infants, Length of stay, Ventilator dependent

Thomas R. n.d.. Child and Family Support Project [Final report]. Seattle, WA: Children's Hospital and Medical Center, 144 pp.

Annotation: The Child and Family Support Project was designed to facilitate and support access to and coordination of health care services for children with chronic conditions and their families in order to strengthen family capacity to care for their child in the community setting. The project included activities to identify and develop models for services through: improvement of communication and coordination between community-based services; development of a data base of resources for the populations; enhancement of transition from institutional to community or least restrictive environment; and support for the families of children with chronic conditions. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB94-106291.

Keywords: Chronically Ill, Coordination of Health Care, Data Bases, Family Support, Family-Based Health Care, Networking

Kessel R. n.d.. Diagnostic and Followup Project for Native American Children in Wisconsin with Special Health Care Needs = WINGS Project [Final report]. Madison, WI: Board of Regents of the University of Wisconsin at Madison , 42 pp.

Annotation: This project was part of an ongoing effort to identify and address issues related to developmental disabilities among Native American children in Wisconsin to assure that proper diagnostic and followup services are provided to this population. Tribes, State and local agencies, and volunteer organizations were involved in a collaborative effort to design and establish a long-term, community-based, high quality program in each tribal community in Wisconsin to serve the special health care needs of Native American children. The two main goals of the project were to: (1) Become an integral part of the tribal service systems, and (2) improve those systems in such a way that they address both the needs of developmentally disabled children and the issues related to the prevention of disabilities. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-161941.

Keywords: American Indians, Community-Based Health Care, Coordination of Health Care, Data Collection, Developmentally Delayed/Disabled, Fetal Alcohol Syndrome

Heiman HJ, Artiga S. 2015. Beyond health care: The role of social determinants in promoting health and health equity. Menlo Park, CA: Henry J. Kaiser Family Foundation, 10 pp.

Annotation: This issue brief provides an overview of the broad factors that influence health and describes emerging efforts to address them. Topics include mapping and place-based approaches, health in all policies, and efforts to integrate social and environmental needs into the health care system such as the State Innovation Models Initiative, Medicaid delivery and payment reforms, and provider and health plan efforts.

Contact: Henry J. Kaiser Family Foundation, 2400 Sand Hill Road, Menlo Park, CA 94025, Telephone: (650) 854-9400 Secondary Telephone: (202) 347-5270 Fax: (650) 854-4800 Web Site: http://www.kff.org Available from the website.

Keywords: Coordination, Diffusion of innovation, Equal opportunities, Health care disparities, Health care reform, Health care systems, Health disparities, Health planning, Interdisciplinary approach, Medicaid, Policy development, Service integration, Work force

District of Columbia Department of Health. 2008. Oral health care for children with special health care needs: Action plan. Washington, DC: District of Columbia Department of Health, 24 pp.

Annotation: This action plan describes activities to be conducted as follow-up to a forum held on May 22, 2007, in Washington, DC. The plan discusses the forum goals to (1) identify strategies for increasing access and improving the oral health system of care for children with special health care needs (CSHCN) and (2) address barriers to oral health care for CSHCN. Contents also include an overview of the forum planning process and evaluation. Tables present short- and long-term goals, timelines, and partners for activities designed to address barriers in the following areas: education, finance and reimbursement, work force development, accessibility and care coordination, and information management and care coordination. [Funded by the Maternal and Child Health Bureau]

Contact: District of Columbia Department of Health, 899 North Capitol Street, N.E., Washington, DC 20002, Telephone: (202) 442-5955 Fax: (202) 442-4795 E-mail: doh@dc.gov Web Site: http://doh.dc.gov/ Available from the website.

Keywords: Barriers, Children, Children with special health care needs, District of Columbia, Health promotion, Meetings, Oral health, Reimbursement, Service coordination, Work force

Family Voices. [2002]. Parents partnering with managed care plans: A discussion guide on services for children with special health care needs. Boston, MA: Federation for Children with Special Needs, 7 pp.

Annotation: This brochure provides questions -- derived from interviews with 41 managed care plans across the nation conducted to learn about programs and policies and to share information about resources for children with special health care needs (CSHCN) -- that can be used as a starting point for discussions between families and managed care plans examining current systems of care and initiating improved programs and policies for CSHCN. Topics include identifying CSHCN, ensuring appropriate care, primary care and specialty care referrals, care coordination and case management, mental health and behavioral health services, resolving disagreements about care, and involving families of CSHCN in policy and program activities. For each topic, a list of questions is included.

Contact: Federation for Children with Special Needs, 529 Main Street, Suite 1102, Boston, MA 02120, Telephone: (617) 236-7210 Secondary Telephone: (800) 331-0688 Fax: (617) 241-0330 E-mail: fcsninfo@fcsn.org Web Site: http://www.fcsn.org Available at no charge; also available from the website.

Keywords: Behavior problems, Case management, Children with special health care needs, Conflict resolution, Families, Interviews, Managed care, Primary care, Programs, Referrals, Service coordination, Systems of care

Strobino D. 1995. Evaluation of the Guidelines for Maternal Transport [Final report]. Baltimore, MD: Johns Hopkins University, 46 pp.

Annotation: The object of this research study was to evaluate the most recent perinatal guidelines for maternal transport. The study evaluated the extent to which the guidelines are followed and, when followed, whether outcomes are improved for the mother and her newborn. The study sample was population based, including transported and nontransported mothers and their newborns from level I and II Southern New Jersey Perinatal Cooperative hospitals in 1984 and part of 1985. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB96-177225.

Keywords: Coordination of Health Care, Transport

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This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.