Search Results: MCHLine

Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.

Displaying records 1 through 20 (466 total).

Hess C. n.d.. Primary Care Assistance and Accountability Project [Final report]. Washington, DC: Association of Maternal and Child Health Programs, 43 pp.

Annotation: The Primary Care Assistance and Accountability Project (PCAAP) was designed to identify the leadership roles of state Title V MCH and children with special health care needs (CSHCN) programs and address accountability for planning and ensuring the delivery of effective, comprehensive and coordinated services, especially in regard to primary health care services for children. The project was implemented by staff experienced in State Title V programs in consultation with a national advisory committee and workgroups, additional national MCH experts, the Association's Executive Council, and with the participation of interdisciplinary teams of State Title V directors. Activities included development of an information base on state Title V programs from surveys and analysis of state and national reports; in-depth study of Title V roles and activities through site visitation to 10 state programs; development of draft model guidance for state accountability documents and contributions to guidance and policy frameworks developed by federal agencies or other national policy entities; and assistance to states both on an individual basis and through information dissemination to all states through the AMCHP Updates, conference and training workshop presentations, and production of eight major publications. Information was provided on State Title V programs and local counterpart programs to over 9,000 individuals. [Funded by the Maternal and Child Health Bureau]

Keywords: Coordination of Health Care, Data Collection, Data System, Financing of Health Care, Medicaid, Primary Care

Hess,C. n.d.. State MCH Director Program Development: Legal Assistance Project [Final report]. Washington, DC: Association of Maternal and Child Health Programs , 42 pp.

Annotation: This project was designed to improve the ability of State Maternal and Child Health Programs to: (1) effectively implement Title V of the Social Security Act; (2) coordinate with other related Federal programs; and (3) develop creative approaches for utilizing other such programs to meet the needs of mothers, children, adolescents, children with special health care needs, and families. [Funded by the Maternal and Child Health Bureau]

Keywords: Access to Health Care, Coordination of Health Care, Data Collection, Information Dissemination, Medicaid, PL 99-457, Social Security Act, Title V, State MCH directors, WIC Program

Simmons E. n.d.. Youth in Transition—The Alabama Experience: [Final report]. Montgomery, AL: Alabama Department of Education, 32 pp.

Annotation: This project focused on developing a systematic approach to integrate medical, vocational, educational, psychosocial, and developmental services for adolescents with physical disabilities and/or chronic illness who are at risk in their transition to maturity. Project objectives were to (1) create an administrative structure at the State level and in two pilot sites for provision of an integrated continuum of health and education services; (2) enable service providers, through training and collaboration, to coordinate service planning for the target population; (3) enable the adolescent and family, through counseling and training, to function as their own "case manager"; and (4) monitor and evaluate the model to determine the feasibility for replication in Alabama and/or other states. [Funded by the Maternal and Child Health Bureau]

Keywords: Adolescents with special health care needs, Advocacy, Chronic illnesses and disabilities, Community-Based Health Care, Coordination of Health Care, Data Bases, Interdisciplinary Teams, Rural Population, Urban Population

Peter M. n.d.. Medical Home Project: [Final report]. Honolulu, HI: Hawaii Medical Association, 30 pp.

Annotation: The goals of this project were to: (1) Develop and demonstrate office-based models that assure comprehensive services through the medical home for all children, especially those served under Part H of P.L. 99-457; (2) promote effective linkages and coordination of care between the medical home and early intervention service providers through community forums; and (3) gather, develop, and disseminate nationally creative strategies that promote comprehensive care through the medical home. [Funded by the Maternal and Child Health Bureau]

Keywords: Children with Special Health care Needs, Early Intervention, Information dissemination, Medical Home, Minority Groups, PL 99-457, Service Coordination

Lindsley C. n.d.. Mid-America Pediatric Rheumatology Outreach Program: [Final report]. Kansas City, KS: University of Kansas Medical Center, Department of Pediatrics, 18 pp.

Annotation: The goal of this project was to establish a network of care that provided early and effective intervention for children with rheumatic disease in a four State area including Kansas, Western Missouri, Nebraska, and Iowa. Two specific components were clinical service and education. [Funded by the Maternal and Child Health Bureau]

Keywords: Arthritis Service coordination, Children with special health care needs, Infants with special health care needs, Pediatric rheumatology, Rheumatic diseases

Gates A. n.d.. The Chronic Illness Program (CIP) [Final report]. New Orleans, LA: Children's Hospital, 21 pp.

Annotation: The goal of this project was to develop a regionalized system of care for chronically ill children and their families. To achieve this goal, the project identified the needs of children with chronic illnesses and their families, developed a network of existing resources for this population, and established new resources. Activities included developing a network of parents, community providers, and health professionals; conducting education/training sessions for school and Title V personnel, parents, and health professionals; producing educational packets and training materials; and developing a computerized information and referral system for state MCH and school system staff. [Funded by the Maternal and Child Health Bureau]

Keywords: Chronically Ill, Coordination of Health Care, Families, Networking, Play Therapy, Referrals

Partridge S. n.d.. PROJECT AIMS [Final report]. Portland, ME: University of Southern Maine, 37 pp.

Annotation: Project AIMS worked to strengthen the capacity of Maine's service system (including P.L. 99-457 efforts) to meet the emotional health needs of young children (birth to 5 years old) and their families. The project objectives were to: (1) Establish a multidisciplinary network of project associates; (2) develop and field-test an emotional health brief assessment tool for children birth to 5 years old; (3) recommend to the service network methods of conducting comprehensive psychosocial assessments of children/families with emotional difficulties; and (4) strengthen treatment services which facilitate attachment, interaction, mastery, and support within families. [Funded by the Maternal and Child Health Bureau]

Keywords: 99-457, Community-Based Health Services, Coordination of Health Care, Data Collection, Early Intervention, Emotional Health, High risk children, High risk groups: Families, L, P, Parent-Child Interaction, Screening Tools

Force J. n.d.. Project Copernicus [Final report]. Baltimore, MD: Maryland Department of Health and Mental Hygiene, 15 pp.

Annotation: Project Copernicus, a dual-State initiative for Maryland and Virginia, developed, demonstrated, and evaluated training programs in family-centered service coordination with target groups of professional service providers and parents in urban, rural, and suburban areas of Maryland and Virginia. Project Copernicus demonstrated how to provide family-centered care for families with children with special health needs by assisting both parents and professional service providers to develop and use family-centered service coordination activities (case management). [Funded by the Maternal and Child Health Bureau]

Keywords: Access to Health Care, CSHCN, Case Management, Chronic illnesses and disabilities, Coordination of Health Care, Disabled, Education of Health Professionals, Families, Family-Centered Health Care, Fragmentation of Services, Parent Education, Parents, programs

Epstein S. n.d.. New England SERVE: A Planning Network for Children with Special Health Care Needs [Final report]. Boston, MA: Massachusetts Health Research Institute, 29 pp.

Annotation: This network fostered collaboration among State programs for children with special health needs in New England. Activities included documenting quality assurance and monitoring activities; reviewing existing standards of care and developing new standards; facilitating interagency and public/private cooperation; and publishing the New England Status Report which covered legislation and program initiatives. The most concrete outcome has been the publication of Enhancing Quality: Standards and Indicators of Quality Care for Children with Special Health Care Needs. [Funded by the Maternal and Child Health Bureau]

Keywords: Chronic illnesses and disabilities, Coordination of Health Care, Networking

Henry W. n.d.. PATHFINDER: A Project to Improve Systems of Care for Children with Chronic Health Conditions [Final report]. St. Paul, MN: Pathfinder Resources, Inc., 28 pp.

Annotation: This project sought to improve information sharing among public agencies, third-party payers, special projects of regional and national significance (SPRANS), and employers in Minnesota. Activities included an annual invitational workshop; technical assistance; a quarterly newsletter; a continuing education center; and the guidelines, *How to Develop a Community Network.* [Funded by the Maternal and Child Health Bureau]

Keywords: Chronic illnesses and disabilities, Community-Based Health Care, Continuing Education, Coordination of Health Care, Families, Financing Health Care, Medicaid, Networking

Valentine S. n.d.. Developing Community-Based Family Centered Care/Case Management and Family Support Services for Mississippi's Children with Special Health Care Needs [Final report]. Jackson, MS: Mississippi State Department of Health, 25 pp.

Annotation: This project sought to develop a statewide system of community-based, comprehensive care/case management and family support services. Program strategies included developing a training curriculum for the skilled delivery of home-based family support services by medical professionals, paraprofessionals, and parents; piloting a respite providers' network; providing statewide training on the provision of family support services; and developing and disseminating a statewide directory of trained family support service providers. [Funded by the Maternal and Child Health Bureau]

Keywords: 99-457, Case Management, Chronically Ill, Community-Based Health Care, Coordination of Health Care, Family-Based Health Care, Financing Health Care, Fragmentation of Services, L, P, Parents, Rural Population

Davis J. n.d.. Improving Coordination of Services for Chronically Impaired Children and Their Families [Final report]. Santa Fe, NM: New Mexico Health and Environment Department, 18 pp.

Annotation: This project sought to increase coordination of service provision to chronically ill and disabled children, with a special focus on Native American children. Activities included organizing an annual conference, tracking legislation, establishing a committee which analyzed relevant portions of the state budget, and conducting a survey on the number of children receiving case management services. [Funded by the Maternal and Child Health Bureau]

Keywords: American Indians, Chronically Ill, Coordination of Health Care, Families, Fragmentation of Services, PL 94-142

Malach R. n.d.. Case Management for Parents of Indian Children with Special Health Care Needs [Final report]. Bernalillo, NM: Southwest Communication Resources, 20 pp.

Annotation: This project provided a model program for American Indian families and the professionals who served them. The program goals were to identify cultural, systemic, institutional, and policy barriers that inhibit Native American family participation in the "Western" health care/case management system; improve case management by facilitating effective communication between Native American families and the non-Native American health care professionals who serve them; and increase Native American family participation in health care policy development and planning forums in order to promote changes that improve services for Native American children and families. Activities included developing a videotape illustrating effective cross-cultural communication strategies for non-Indian health care providers and training an Indian parent advocate to help families seen at IHS special pediatric clinics. [Funded by the Maternal and Child Health Bureau]

Keywords: American Indians, Case Management, Chronically Ill, Community-Based Health Care, Coordination of Health Care, Developmentally Delayed/Disabled, Family-Based Health Care, Indian Health Service (IHS), Low income groups, Parents, Rural Population

Cooper L. n.d.. Demonstration Project to Develop a Pediatric Service Coordination Model [Final report]. Cleveland, OH: MetroHealth Medical Center, 34 pp.

Annotation: The goal of this project was to enable families to provide home-centered care for their special needs children, when home was the best option, by establishing a service delivery system. This system: (1) Promoted the availability and accessibility of comprehensive quality services that address physical, psychosocial, spiritual, and developmental needs; (2) encouraged continuity and coordination of care among all components of the child and family's interdisciplinary team; (3) promoted communication among caregivers; and (4) was reimbursable, accountable, and responsive to changing needs. [Funded by the Maternal and Child Health Bureau]

Keywords: 99-457, Chronically Ill, Coordination of Health Care, Families, Family-Centered Health Care, Home-Based Health Care, Interdisciplinary Teams, Interdisciplinary Teams, L, P, Pediatric Care Providers, Technology Dependence

Nickel R. n.d.. Oregon Developmental Monitoring Project for High Risk Infants [Final report]. Eugene, OR: Oregon Health Sciences University , 38 pp.

Annotation: This project established a model program for the coordination of early identification and assessment services for infants 0-3 years of age at high risk for major handicaps. It aimed to make appropriate developmental screening available as close as possible to the infant's home community, to provide the necessary developmental screening training to local health and educational service providers, and to provide the regional coordination for the many agencies and professional involved. [Funded by the Maternal and Child Health Bureau]

Keywords: Clinics, Coordination of Health Care, Early Intervention, Education of Health Professionals, High risk infants, Rural Population, Screening

Branca P. n.d.. The Care of Bronchopulmonary Dysplasia In a System Encompassing Tertiary, Rehabilitative and Home Care [Final report]. Philadelphia, PA: Thomas Jefferson University Hospital, 13 pp.

Annotation: The goal of this project was the development of a multilevel model of care for infants with bronchopulmonary dysplasia that was cost effective, decreased length of hospital stays, and allowed for a physically, emotionally, socially, and developmentally healthier child. Inservice training for staff and parenting workshops were conducted as part of this project. [Funded by the Maternal and Child Health Bureau]

Keywords: Bronchopulmonary dysplasia, Children with special health care needs, Coordination of services, Infants, Length of stay, Ventilator dependent

Williams S. n.d.. Improving Community-Based Services for Special Needs Children and Their Families in Rural Utah [Final report]. Salt Lake City, UT: Utah Department of Health, 19 pp. pp.

Annotation: The goal of the project was to improve the functioning of special needs children and their families by providing locally based clinic and care coordination services in a rural area in Utah. The program objectives were to: (1) Involve parents of special needs children in developing a service plan for their child, (2) improve the implementation of service plans for rural special needs children, (3) improve coordination of services to rural special needs children, and (4) improve adequacy of services to these children. While maintaining current multidisciplinary clinic services, Children's Special Health Services worked through the local health department to place a nurse coordinator, secretary, social worker, and trained parent advocates in the local community. This team built upon existing local systems to improve the functional outcomes of the children. [Funded by the Maternal and Child Health Bureau]

Keywords: Access to Health Care, Advocacy, Children with Special Health care Needs, Chronic Illnesses and Disabilities, Community Based Health Services, Parents, Rural Population, Service Coordination

Thomas R. n.d.. Child and Family Support Project [Final report]. Seattle, WA: Children's Hospital and Medical Center, 144 pp.

Annotation: The Child and Family Support Project was designed to facilitate and support access to and coordination of health care services for children with chronic conditions and their families in order to strengthen family capacity to care for their child in the community setting. The project included activities to identify and develop models for services through: improvement of communication and coordination between community-based services; development of a data base of resources for the populations; enhancement of transition from institutional to community or least restrictive environment; and support for the families of children with chronic conditions. [Funded by the Maternal and Child Health Bureau]

Keywords: Chronically Ill, Coordination of Health Care, Data Bases, Family Support, Family-Based Health Care, Networking

Johnson C. n.d.. Making It Work for Children with Special Needs: The Family, the Community, the State [Final report]. Morgantown, WV: W. G. Klingberg Center for Child Development, 17 pp.

Annotation: The goal of this project was to improve the overall system of health care delivery for West Virginia children with special health needs. Specific goals were to: (1) Provide individualized family empowerment training with specific emphasis on skills in case management; (2) strengthen the Handicapped Children's Services system of case management; (3) provide coordinated, comprehensive medical and educational evaluations for children with special health needs; (4) establish a movement recognizing parents as equal partners within the professional team; (5) enhance networking through a parent-provider interdisciplinary, interagency conference; (6) identify a primary medical home for every child with special health needs; (7) emphasize the role of the primary care physician as a member of the community team; (8) assure continuation of the project beyond the funding period; and (9) expand services to all children with special health needs in West Virginia. [Funded by the Maternal and Child Health Bureau]

Keywords: Access to Health Care, Case Management, Children with Special Health care Needs, Families, Family Professional Collaboration, Interagency Cooperation, Medical Home, PL 99-457, Parent Professional Communication, Parents, Primary Care, Service Coordination

Kessel R. n.d.. Diagnostic and Followup Project for Native American Children in Wisconsin with Special Health Care Needs = WINGS Project [Final report]. Madison, WI: Board of Regents of the University of Wisconsin at Madison , 42 pp.

Annotation: This project was part of an ongoing effort to identify and address issues related to developmental disabilities among Native American children in Wisconsin to assure that proper diagnostic and followup services are provided to this population. Tribes, State and local agencies, and volunteer organizations were involved in a collaborative effort to design and establish a long-term, community-based, high quality program in each tribal community in Wisconsin to serve the special health care needs of Native American children. The two main goals of the project were to: (1) Become an integral part of the tribal service systems, and (2) improve those systems in such a way that they address both the needs of developmentally disabled children and the issues related to the prevention of disabilities. [Funded by the Maternal and Child Health Bureau]

Keywords: American Indians, Community-Based Health Care, Coordination of Health Care, Data Collection, Developmentally Delayed/Disabled, Fetal Alcohol Syndrome