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Strengthen the Evidence for Maternal and Child Health Programs

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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 20 (27 total).

U.S. Maternal and Child Health Bureau, Genetic Services Branch. n.d.. Rules for the road: A handbook for consumers in leadership roles. Rockville, MD: U.S. Maternal and Child Health Bureau, Genetic Services Branch,

Annotation: This handbook captures the values and beliefs of health care consumers in leadership positions in human services organizations. The handbook, which is available online only and may be printed, sets forth principles to help guide health care consumers as they assume leadership positions and provides guidance or negotiating issues that may come with their new roles. The handbook delineates eight fundamentals for practice and discusses each of them.

Contact: U.S. Health Resources and Services Administration, 5600 Fishers Lane, Rockville, MD 20857, Telephone: (888) 275-4772 Secondary Telephone: (877) 464-4772 Fax: (301) 443-1246 E-mail: [email protected] Web Site: http://www.hrsa.gov Available from the website.

Keywords: Consumers, Health care, Leadership, Service delivery systems

U.S. Children's Bureau, Child Welfare Information Gateway, and FRIENDS National Center for Community-Based Child Abuse Prevention. (2019?). 2019/2020 prevention resource guide. Washington, DC: Child Welfare Information Gateway, 106 pp.

Annotation: This guide is designed to help individuals and organizations in every community strengthen families and prevent child abuse and neglect. Topics include strengthening individuals, families and communities; working with families using the protective factors; using protective factors as a framework for a community partnership; protecting children from abuse and maltreatment; tip sheets for parents and caregivers; and resources. The tip sheets are presented in English and Spanish.

Contact: Child Welfare Information Gateway, Administration on Children, Youth, and Families, Children's Bureau, 1250 Maryland Avenue, S.W., Eighth Floor, Washington, DC 20024, Telephone: (800) 394-3366 Secondary Telephone: E-mail: [email protected] Web Site: http://www.childwelfare.gov Available from the website.

Keywords: Child abuse, Child welfare, Community participation, Families, Maltreated children, Materials for consumers, Primary prevention, Spanish language materials

Centers for Disease Control and Prevention. 2016–. The 6 | 18 Initiative: Accelerating evidence into action. Atlanta, GA: Centers for Disease Control and Prevention, multiple items.

Annotation: This website provides resources from a national initiative to engage health care purchasers, payers, and providers in collaborating with the public health community to improve health and control health care costs. Topics include high-burden health conditions and associated interventions that prevent chronic and infectious diseases by increasing coverage, access, use, and quality; and how to align evidence-based preventive practices with emerging value-based payment and delivery models. Contents include a fact sheet and evidence summaries on reducing tobacco use, controlling high blood pressure, preventing health care-associated infections, controlling asthma, preventing unintended pregnancy, and controlling and preventing diabetes.

Contact: Centers for Disease Control and Prevention, 1600 Clifton Road, Atlanta, GA 30329-4027, Telephone: (800) 232-4636 Secondary Telephone: (888) 232-6348 E-mail: [email protected] Web Site: http://www.cdc.gov Available from the website.

Keywords: Access to health care, Chronic illnesses and disabilities, Coalitions, Collaboration, Consumers, Disease prevention, Health care delivery, Health care reform, Health care utilization, Health insurance, Infectious diseases, Intervention, Models, National initiatives, Preventive health services, Public private partnerships, Quality assurance, Reimbursement, Relationships, Third party payers

National Partnership for Women and Families. 2015-2017. Supporting informed decision-making in the health insurance marketplace: A progress report. Washington, DC: National Partnership for Women and Families, 3 v.

Annotation: This report looks at how well the health insurance marketplace, composed of the federally-facilitated marketplace (Healthcare.gov) and 14 state-run marketplaces, is providing consumers with key information about available health plans. The report also assesses tools and promising practices that marketplace websites are employing to enhance the consumer browsing experience and to support informed decision-making.

Contact: National Partnership for Women and Families, 1875 Connecticut Avenue, N.W., Suite 650, Washington, DC 20009, Telephone: (202) 986-2600 Fax: (202) 986-2539 E-mail: [email protected] Web Site: https://nationalpartnership.org/ Available from the website.

Keywords: Consumer education, Consumer protection, Consumers, Decision making, Federal health insurance programs, Health insurance

Vujicic M, Yarbrough C. 2014. Young adults most likely age group to purchase dental benefits in health insurance marketplace. Chicago, IL: American Dental Association, Health Policy Institute, 5 pp. (Research brief)

Annotation: This brief addresses the likelihood of individuals purchasing dental benefits (plans) in the health insurance marketplaces for specific age groups. It describes the number of individuals in each age group that selected a medical plan and a dental plan in the 36 states operating through the Federally Facilitated Marketplace, as well as the number of individuals under age 18 in California that selected a dental plan. The brief summarizes findings on the number of individuals that selected dental benefits within the health insurance marketplaces by age group and the total number of medical plans and dental plans selected in the health insurance marketplaces by age group.

Contact: American Dental Association, Health Policy Institute, 211 East Chicago Avenue, Chicago, IL 60611-2678, Telephone: (312) 440-2500 Web Site: http://www.ada.org/en/science-research/health-policy-institute Available from the website.

Keywords: Age groups, Consumers, Dental insurance, Enrollment, Health insurance programs, Individualized health plans, Market research, Oral health

Brennan PF, Valdez R, Rodriguez J; National Research Council, Committee on the Role of Human Factors in Home Health Care. 2011. Consumer health information technology in the home: A guide for human factors design consideration. Washington, DC: National Academies Press, 23 pp.

Annotation: This guide introduces information technology (IT) designers and developers to the practical realities and complexities of managing health at home. It provides guidance and human factors design considerations that will help designers and developers create consumer health IT applications that are useful resources to achieve better health. Topics include an overview of health and healthcare at home, including who is involved and what they do; encouragement to create new kinds of consumer health information technologies to help people reach their health goals; and strategies to make consumer health information technologies more acceptable and useful to people with different life situations. A design consideration checklist is provided.

Contact: National Academies Press, 500 Fifth Street, N.W., Keck 360, Washington, DC 20001, Telephone: (202) 334-3313 Secondary Telephone: (888) 624-8373 Fax: (202) 334-2451 E-mail: [email protected] Web Site: http://www.nap.edu Available from the website. Document Number: ISBN 978-0-309-21728-6.

Keywords: Consumers, Design, Home care, Information services, Information systems, Program development

De Rosa C, Cantrell J, Havens A, Hawk J, Jenkins L. 2007. Sharing, privacy, and trust in our networked world: A report to the OCLC membership. Dublin, OH: OCLC, ca. 280 pp.

Annotation: This report focuses on a study that explored the social networking attitudes and habits of users and librarians. The reports explored the following main areas: (1) user practices and preferences on their favorite social spaces; (2) the origins of social networking; (3) user attitudes about privace and trust online; (4) librarian online habits and attitudes vs. the habits and attitudes of the general public; and (5) attitudes about combining the benefits of social spaces with the offerings of libraries. The report also discusses in-depth interviews with information services professionals to gain insight into social networking, trust, and privacy online. Report highlights and conclusions are offered. The report includes six appendices: (1) college students' use of Internet services; (2) glossary, (3) people consulted, (4) readings and other sources, (5) about OCLC, and (6) comparative timeline.

Contact: OCLC Online Computer Library Center, 6565 Kilgour Place, Dublin, OH 43017-3395, Telephone: (614) 764-6000 Secondary Telephone: (800) 848-5878 Fax: (614) 764-6096 E-mail: [email protected] Web Site: http://www.oclc.org Available from the website. Document Number: ISBN 1-55653-370-5.

Keywords: Attitudes, Consumers, Librarians, Libraries, Social behavior, Trust, World Wide Web

Lawton and Rhea Chiles Center for Healthy Mothers and Babies. [2004]. Building a Friendly Access program at the community level. Tampa, FL: Lawton and Rhea Chiles Center for Healthy Mothers and Babies, 20 pp.

Annotation: This report describes the Friendly Access program, a long-term research, education, and community development initiative designed to change maternal and child health care in ways that improve consumers' access, use, satisfaction, and outcomes. The report describes the program's core beliefs, mission, vision, and values; discusses the program's objectives; explains how the program is implemented at the community level; lists the expectations of founding partners; and discusses the role of the program office. The Laughton and Rhea Chiles Center for Health Mothers and Babies, which founded the program, as well as collaborating organizations, are also described. One appendix includes perinatal health care access and utilization guidelines.

Contact: Lawton and Rhea Chiles Center for Healthy Mothers and Babies, University of South Florida, College of Public Health, 3111 East Fletcher Avenue, Tampa, FL 33613-4660, Telephone: (813) 974-8888 Secondary Telephone: (877) 724-2359 Fax: (813) 974-8889 E-mail: [email protected] Web Site: http://health.usf.edu/publichealth/chilescenter/ Available from the website.

Keywords: Access to health care, Barriers, Child health, Childbirth, Community programs, Consumer satisfaction, Consumers, Demonstration programs, Education, Families, Health care systems, Health care utilization, Infant health, Initiatives, Low income groups, MCH programs, Maternal health, Medicaid, National programs, National programs, Postpartum women, Pregnancy, Prenatal care, Research, Women', s health

Lawton and Rhea Chiles Center for Healthy Mothers and Babies. [2004]. National Friendly Access Program begins community projects. Tampa, FL: Lawton and Rhea Chiles Center for Healthy Mothers and Babies, 8 pp. (Friendly Access)

Annotation: This newsletter issue describes the National Friendly Access Program, a long-term research, education, and community development initiative designed to change maternal and child health care in ways that improve consumers' access, use, satisfaction, and outcomes. The issue discusses community projects initiated by the program, program evaluation, communities selected to serve as demonstration sites, promoting strength-based partnerships, news and updates, and the program calendar. The back page of the newsletter includes an introduction to the program's principal investigator and a list of advisory council members.

Contact: Lawton and Rhea Chiles Center for Healthy Mothers and Babies, University of South Florida, College of Public Health, 3111 East Fletcher Avenue, Tampa, FL 33613-4660, Telephone: (813) 974-8888 Secondary Telephone: (877) 724-2359 Fax: (813) 974-8889 E-mail: [email protected] Web Site: http://health.usf.edu/publichealth/chilescenter/ Available from the website.

Keywords: Health care systems, Access to health care, Barriers, Child health, Childbirth, Community programs, Consumer satisfaction, Consumers, Demonstration programs, Education, Families, Health care utilization, Infant health, Initiatives, Low income groups, MCH programs, Maternal health, Medicaid, National programs, National programs, Postpartum women, Pregnancy, Prenatal care, Research, Women', s health

Bundorf MK, Baker L, Singer S, Wagner, T. 2004. Consumer demand for health information on the Internet. Cambridge, MA: National Bureau of Economic Research, 32 pp. (NBER working paper series no. 10386)

Annotation: This paper examines the demand for health care information on the Internet, which consumers are more likely to use the Internet, and why. Topics include background on healthcare consumers' need for information, the emerging role of the Internet as a source of health information, differences among consumers in their demand for health information, sources of health information, the role of health insurance on consumer's desire for information, and types of health information individuals access on the Internet. Sections include an introduction to the research, the basis of the theoretical framework, empirical models, study results, and conclusions. Tables at the end of the paper provide statistical information, demographics of searchers for information on the Internet, communication preferences, insurance status, and type of use during last visit.

Contact: National Bureau of Economic Research, 1050 Massachusetts Avenue, Cambridge, MA 02138-5398, Telephone: (617) 868-3900 Fax: (617) 868-2742 E-mail: [email protected] Web Site: http://www.nber.org Available from the website.

Keywords: Consumer education, Consumers, Health care utilization, Information sources, Internet, Needs assessment, Physician patient relations, Research, Self care, World Wide Web

Von Knoop C, Lovich D, Silverstein MB, Tutty M. 2003. Vital signs: E-health in the United States. Boston, MA: Boston Consulting Group, 40 pp.

Annotation: This report provides data from a survey of physicians and patients with chronic illnesses on their use of online medical information and tools. It provides data on physicians' use of online courses and conferences, access to Web sites for professional information, electronic prescribing, electronic medical records, remote disease monitoring, and electronic communications with patients. It also provides data on patients' use of the Internet to locate information about their health conditions, how they use that information, and their desires for electronic communication with their physicians. A final chapter provides suggestions for how health-related companies, including pharmaceutical companies, managed care organizations, health delivery systems, and e-health vendors, can use the Internet in developing their businesses.

Contact: Boston Consulting Group, One Exchange Place, Sixth Floor, Boston, MA 02109, Telephone: (617) 973-1200 Fax: (617) 973-1339 Web Site: http://www.bcg.com Available from the website.

Keywords: Consumers, Internet, Patients, Physicians, Surveys, World Wide Web

Lazarus W, Lipper L, Roberts K, Fireman R, Rose M. 2003. The search for high-quality online content for low-income and underserved communities: Evaluating and producing what's needed—An issue brief and action plan with research appendices. Santa Monica, CA: Children's Partnership, 61 pp.

Annotation: This document looks at questions about how to provide accessible, high-quality online information for individuals with low incomes, limited literacy or English skills, or one or more disabilities. The document examines a wide range of efforts to identify, sort, and/or create online information for different audiences--from health care consumers to teachers to non-English speakers. The document offers a set of starter guidelines for finding and creating high-quality, low-barrier content, as well as a set of specific recommendations for narrowing the content gap over the next few years. The document, which includes an executive summary, also contains the following main sections: (1) the Children's Partnership's research on content evaluation, (2) guidelines for content creation and evaluation, and (3) a blueprint for action: recommendations for key players. The document also includes five research appendices that contain supplemental information.

Contact: Children's Partnership, 811 Wilshire Boulevard, Suite 1000, Los Angeles, CA 90017, Telephone: (213) 341-1222 Fax: (213) 293-1483 E-mail: [email protected] Web Site: http://www.childrenspartnership.org Available from the website.

Keywords: Consumer education materials, Consumers, Disabilities, Guidelines, Internet, Limited English speakers, Low income groups, Low literacy, Teachers

Greenberg L, D'Andrea G, Lorence D. 2003. Setting the public agenda for online health search: A white paper and action agenda. Washington, DC: URAC, 21 pp.

Annotation: This document reviews the literature on factors influencing the results of health searches by consumers. Each section highlights research and development recommendations and presents an action agenda that could be implemented by various organizations. Contents include an executive summary, a review of how consumers use the Internet to locate information, how Web sites influence availability of quality health information, search engines as mediators of health information, and recommendations for action. Recommendations areas include leadership for health search improvement, consumer directed tools, research needs, an education agenda, a technology improvement agenda, and expanding the market for quality. A list of participants in stakeholder summits is also included.

Contact: Consumer Webwatch, 101 Truman Avenue, Yonkers, NY 10703-1057, Telephone: (914) 378-2600 E-mail: [email protected] Web Site: http://www.consumerwebwatch.org/ Available from the website.

Keywords: Consumers, Health education, Information sources, Internet, Literature reviews, Needs assessment, Research reviews

National Institute for Health Care Management Foundation and National Committee for Quality Health Care. 2003. Accelerating quality improvement in health care: Strategies to speed the diffusion of evidence-based innovations—Proceedings from a conference. Washington, DC: National Institute for Health Care Management Foundation, 27 pp.

Annotation: This report summarizes the proceedings of a conference convened to explore (1) why the slow diffusion of many health care and medical innovations persists and (2) how to accelerate the adoption of clinical technologies and health service innovations that have been shown to improve the quality and/or cost effectiveness of health care. The report, which includes an executive summary, focuses on the following issues: (1) devices and drugs: obstacles to timely product uptake, (2) innovation in the hospital and at the bedside, (3) innovation in public health, prevention, and disease management, (4) the imperative of information technology and e-health, and (5) better quality through informed consumer choice. The report also includes synopses of three papers commissioned for the conference. Statistical information is presented in figures throughout the report. The appendix lists conference faculty with contact information.

Contact: National Institute for Health Care Management Foundation, 1225 19th Street, N.W., Suite 710, Washington, DC 20036, Telephone: (202) 296-4426 Fax: (202) 296-4319 E-mail: http://www.nihcm.org/contact Web Site: http://www.nihcm.org Available from the website.

Keywords: Conference proceedings, Consumers, Cost effectiveness, Diffusion of innovation, Disease management, Disease prevention, Health care, Hospitals, Information systems, Internet, Management, Medical devices, Medical research, Prescription drugs, Prevention, Public health, Technology

National Governors' Association Center for Best Practices, Health Policy Studies Division. 2000. Managed care regulation and oversight in nine states. Washington, DC: National Governors' Association Center for Best Practices, Health Policy Studies Division, 62 pp. (Issue brief)

Contact: National Governors Association, Center for Best Practices, Hall of the States, 444 North Capitol Street, Suite 267, Washington, DC 20001-1512, Telephone: (202) 624-5300 Contact Phone: (202) 624-5306 Fax: (202) 624-5313 E-mail: [email protected] Contact E-mail: torloffnga.org OR jharrisnga.org Web Site: http://www.nga.org/cms/center Available from the website.

Keywords: California, Consumers, Florida, Georgia, Health maintenance organizations, Health services delivery, Managed care, Missouri, New Jersey, New York, Program evaluation, Quality assurance, Texas, Vermont, Virginia

National Governors' Association Center for Best Practices, Health Policy Studies Division. 1998. State strategies to improve managed care quality and oversight in a competitive market. Washington, DC: National Governors' Association Center for Best Practices, Health Policy Studies Division, 8 pp. (Issue brief)

Annotation: This issue brief summarizes observations and lessons learned from a National Governors' Association Center for Best Practices conference on managed care quality held in Washington, DC, on December 4-5, 1997. Four issues are addressed: providing consumer protections, enhancing the quality of care, coordinating state regulatory administrative structures, and developing performance measurement systems. Key conclusions from the conference are outlined. Discussion of efforts in Missouri, New Jersey, Ohio, Texas and Vermont to protect health care consumers and enhance the quality of health services is also included. The work of the National Committee for Quality Assurance and the Foundation for Accountability is also described.

Contact: National Governors Association, Center for Best Practices, Hall of the States, 444 North Capitol Street, Suite 267, Washington, DC 20001-1512, Telephone: (202) 624-5300 Contact Phone: (202) 624-5306 Fax: (202) 624-5313 E-mail: [email protected] Contact E-mail: torloffnga.org OR jharrisnga.org Web Site: http://www.nga.org/cms/center Available from the website.

Keywords: Conferences, Consumer protection, Consumers, Health maintenance organizations, Health services delivery, Managed care, Missouri, New Jersey, Ohio, Program evaluation, Quality assurance, Texas, Vermont

Gormley WT. 1997. Assessing health care report cards. Washington, DC: Georgetown University, Public Policy Institute, 36 pp.

Annotation: This paper examines report cards that hospitals, nursing homes, and health maintenance organizations should have. Six criteria for evaluation are listed: validity, comprehensiveness, comprehensibility, relevance, reasonableness, and functionality. The guide discusses why many health care report cards produced by public and private organizations fail to meet these criteria although this varies across states and health sectors. The quantity and quality of state government and magazine report cards for all three types of health care providers are assessed. The information systems that have been created in each of the three domains is characterized. An extensive reference list is included.

Contact: Georgetown University, McCourt School of Public Policy, Old North, Suite 100, Washington, DC 20057, Telephone: (202) 687-5932 Contact Phone: (202) 687-6817 Fax: (202) 687-5544 E-mail: [email protected] Web Site: http://mspp.georgetown.edu/ Price unknown.

Keywords: Assessment, Consumers, Health maintenance organizations, Hospitals, Nursing homes

Mollica R, Riley T, Horvath J, Kaye N. 1996. Transitioning to Medicaid managed care consumer protection: Lessons learned from states. Portland, ME: National Academy for State Health Policy, 26 pp. (The Kaiser-HCFA state symposia series)

Annotation: This symposium studied organizational aspects of the states' transition to Medicaid managed care. Topics considered included how enrollment and disenrollment were handled, especially whether by private brokers or state employees; methods of outreach to new clients; client satisfaction and the handling of complaints and grievances; and client education and advocacy. A table shows how 11 states handle enrollment, whether by broker or state employees, the broker's functions, and how the broker is paid.

Contact: National Academy for State Health Policy, 10 Free Street, Second Floor, Portland, ME 04101, Telephone: (207) 874-6524 Secondary Telephone: (202) 903-0101 Fax: (207) 874-6527 E-mail: [email protected] Contact E-mail: 73512.316.compuserve.com Web Site: http://www.nashp.org Available from the website. Document Number: Publication no. MMC24.

Keywords: Access to health care, Advocacy, Consumer education, Consumer satisfaction, Consumers, Delaware, Disenrollment, Enrollment, Indiana, Medicaid managed care, Minnesota, Missouri, New Jersey, New York, Ohio, Oregon, Quality assurance, Rhode Island, Utah, Washington

Hegner R, Markus A, Ladenheim K. 1994. Managed care: An overview of 1994 state legislative activity. Washington, DC: George Washington University, Intergovernmental Health Policy Project, 49 pp.

Annotation: This paper examines legislative initiatives relating to managed care in the states during 1994. The paper contains three sections: the first is an essay which analyzes the overall trends for the year, the second is a table summarizing the legislative activities by state and subject area, and the third contains the texts of the laws organized alphabetically by state. The major trends centered on any willing provider clauses, Medicaid managed care, and comprehensive utilization reviews; other legislative initiatives included providing consumer protection, and legislation relating to Section 1115 waivers.

Contact: George Washington University, Intergovernmental Health Policy Project, National Conference of State Legislators, 444 N. Capitol Street, N.W., Suite 515, Washington, DC 20001, Telephone: (202) 624-5400 Fax: (202) 737-1069 E-mail: [email protected] $35.00 plus $5.00 shipping and handling.

Keywords: Consumers, Health maintenance organizations, Managed care, Medicaid managed care, Preferred provider organizations, Provider participation, Regulations, State health care reform, State legislation, Utilization review, Waiver 1115

Ferguson T, Slack WV. 1993. Consumer health informatics: Bringing the patient into the loop. Austin, TX: Self-Care Productions, ca. 100 pp.

Annotation: This publication provides a summary of the First National Conference on Consumer Health Informatics held in July 1993. The meeting focused on progress in the study, development, and implementation of computer and telecommunications applications and interfaces designed to be used by health consumers. The book includes handouts from each of the presenters; statements from conference speakers and other experts on their visions for consumer health informatics; a list of key contacts in the field; and background materials on the topic.

Contact: MailComm Plus, 2729 Exposition Boulevard, Austin, TX 78703, Telephone: (512) 472-1296 Fax: (512) 476-3930 Available in libraries.

Keywords: Computers, Consumers, Health, Information systems, Information systems, Telecommunications

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This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.