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Strengthen the Evidence for Maternal and Child Health Programs

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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 6 (6 total).

Sherman B. n.d.. Home-Based Support Services for Chronically Ill Children and Their Families [Final report]. Albany, NY: New York State Department of Health, 35 pp.

Annotation: This project sought to demonstrate that a system of reimbursable, cost-effective, home-based support services can be implemented for families with chronically ill children. The project objectives were to facilitate the provision of home-based care for chronically ill children through the following activities: (1) Developing a regional network of medically skilled respite providers; (2) establishing self-help mutual support groups for chronically ill children and their parents and siblings; (3) training professionals, paraprofessionals, and volunteers; and (4) disseminating project findings and recommendations. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-158699.

Keywords: Arthritis, Asthma, Bronchopulmonary Dysplasia, Chronic illnesses and disabilities, Congenital Heart Disease, Cystic Fibrosis, Families, Feeding Disorders, Hemophilia, Home-Based Health Care, Kidney Disease, Leukemia, Low income groups, Muscular Dystrophy, Nurses, Respiratory Technologies, Respite Care, Sick Kids (Need) Involved People (SKIP), Sickle Cell Disease, Support Groups, Tay-Sachs Disease, Ventilator Dependence

Association of State and Territorial Health Officials. 2013. Critical congenital heart disease. Arlington, VA: Association of State and Territorial Health Officials, 6 pp.

Annotation: This brief discusses screening newborns for critical congenital heart disease (CCHD), including the role of state and territorial health agencies, and sample state strategies from Indiana and New Jersey. Also provided are a map and chart showing which states have passed CCHD legislation or are considering it.

Contact: Association of State and Territorial Health Officials, 2231 Crystal Drive, Suite 450, Arlington, VA 22202, Telephone: (202) 371-9090 Fax: (571) 527-3189 Web Site: http://www.astho.org Available from the website.

Keywords: Barriers, Congenital heart defects, Heart diseases, Newborn screening, State initiatives

Bi-Regional Institute on Earlier Recognition of Handicapping Conditions (1970: University of California, Berkeley). 1970. Proceedings. Berkeley, CA: University of California, School of Public Health, 159 pp.

Annotation: These proceedings discuss acrocephalosyndactyly, craniofacial dysotosis, and related syndromes; genetic counseling clinics; minor anomalies as indicators of altered morphogenesis; biochemical aspects of handicapping conditions; biochemical screening; evaluation of screening procedures; what happens after screening; children and computers; prevention of mental retardation; fetal and neonatal assessment; newborn hearing screening; congenital dislocated hip in the Navajo Indian; mass computer evaluation of school children for heart disease; implications of screening techniques for comprehensive care; prevention of behavior disorders in early childhood; remediation of learning disabilities; poverty; and delivery of health services to children in the inner city.

Keywords: Acrocephalosyndactylia, American Indians, Assessment, Behavior disorders, Biochemical genetics, Children, Computers, Congenital hip dislocations, Craniofacial abnormalities, Developmental screening, Diagnosis, Disabilities, Evaluation, Genetic counseling, Genetic screening, Health services delivery, Hearing screening, Heart diseases, Inner city, Learning disabilities, Mental retardation, Newborn infants, Poverty, Prevention

Pryor R, ed. 1966. Heart disease in children: Training program in cardiology: Proceedings—Denver, Colorado, December 3-6, 1962. Washington, DC: U.S. Department of Health, Education, and Welfare, Public Health Service, Heart Disease Control Program, 74 pp. (Public Health Service publication: no. 1374)

Annotation: These conference proceedings discuss the anatomy of congenital and acquired heart disease in children, the physiology of the cardiovascular system, epidemiology of congenital and rheumatic heart disease, the importance of history, techniques in physical diagnosis, the contribution of the laboratory to diagnosis in heart disease, the rheumatic fever diagnostic service, psychological aspects of heart disease, attitude and activity in the therapy of rheumatic fever, medical therapy in congenital heart disease, general aspects of congenital anomalies in children, surgery in heart disease, role of the field nurse and public health services in the care of heart diseases, and the role of the medical social worker.

Keywords: Children, Congenital abnormalities, Congenital heart defects, Diagnosis, Epidemiology, Heart diseases, Heart surgery, History, Home care services, Physiology, Psychology, Public health services, Rheumatic heart disease, Social workers

Biennial conference: Association of State Maternal and Child Health and Crippled Children's Directors (1962: Evergreen CO). 1962. A report of the biennial conference: Association of State Maternal and Child Health and Crippled Children's Directors—Scientific program: Evergreen Colorado, June 12-14, 1962. No place: Association of State Maternal and Child Health and Crippled Children's Directors, 45 pp.

Annotation: These proceedings discuss child health, neonatal research, prematurity, histopathologic changes in induced complications of pregnancy in the experimental animal, antepartum amniotic fluid, hypoglycemia metabolism in the newborn, respiratory distress syndrome, maternal fetal relationships and the development of the respiratory distress syndrome, maternal respiratory and metabolic acidosis in the rabbit fetus utero, adrenalin metabolism in the newborn, the effect of hypertonic and hypotonic solutions on the maternal and fetal rabbit, congenital heart disease, phenylketonuria, coagulation in premature infants, electroencephalograms on infants whose oxygen and acid-base gradients were measured at birth, neuropathology of prematurity, and progesterone tissue distribution and storage.

Keywords: Amniotic fluid, Animals, Child health, Conferences, Congenital heart defects, Hypoglycemia, Metabolism, Neonatal diseases, Phenylketonuria, Premature infants, Research, Respiratory distress syndrome

Chenoweth, AD, Saffian, S. 1960. Children with congenital heart disease served in regional centers, 1952-1956. Public Health Reports, Vol. 75, No. 5, May 1960 (377-386), 10 pp.

Annotation: This report summarizes federal and state efforts to treat children with congenital heart disease in regional centers, initiated by the Children's Bureau. Included are statistics on the number of children referred to regional centers with heart programs and the diagnoses and types of treatment they received during 1952-1956.

Keywords: Children with special health care needs, Congenital abnormalities, Diagnosis, Heart diseases, Public health programs, Statistical data, Treatment centers, Trends

   

The MCH Digital Library is one of six special collections at Geogetown University, the nation's oldest Jesuit institution of higher education. It is supported in part by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under award number U02MC31613, MCH Advanced Education Policy with an award of $700,000/year. The library is also supported through foundation and univerity funding. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.