Skip Navigation

Strengthen the Evidence for Maternal and Child Health Programs

Sign up for MCHalert eNewsletter

Search Results: MCHLine

Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 20 (62 total).

Diaz de Ortiz M. n.d.. Caguas Crippled Children Service Network [Final report]. Caguas, PR: Caguas Regional Hospital, 33 pp.

Annotation: The goal of this project was to develop an optimum habilitation and/or rehabilitation process for children (ages birth to 21 years) with special health needs, within Puerto Rico's Caguas Health Region. The principal outcomes of this project were the development of an electronic central register for patients with special health needs in the Caguas Health Region, and the interagency work agreement and interagency referral form, which have enabled project staff and Pediatric Center personnel to share information and coordinate services with other government service providers from central and local levels. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-198901.

Keywords: Children with special health care needs, Chronically Ill, Collaboration of Care, Community-Based Health Care, Confidentiality, Families, Family-Based Health Care, Habilitation, Home Visiting, Referrals, Rehabilitation

2021. Ano ang Aasahan Mula sa Pagpapatingin sa Telehealth, Tagalog [What to Expect from a Telehealth Visit]. [Honolulu, HI]: Western States Regional Genetics Network, 10 m 30 s.

Annotation: This video was created by the Western States Regional Genetics Network (WSRGN) in response to the COVID-19 pandemic to help families navigate the transition to telehealth. WSRGN initially produced the video in English and Spanish, and later extended the series to include Vietnamese, Samoan, Chinese (Simplified and Traditional), and Tagalog with support from AMCHP through its CARES Act funding. WSRGN is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS). This video was created as a collaboration of the staff of the Hawaii Department of Health, Western States Regional Genetic Network, and Pacific Basin Telehealth Resource Center.

Contact: Western States Regional Genetics Network, Web Site: https://www.westernstatesgenetics.org/

Keywords: Covid-19 [suggested keyword], Telemedicine, Consumer education, Confidentiality, Medicare

2021. 远距医疗看诊须知 (普通话画外音,简体字), Chinese, Simplified [What to Expect from a Telehealth Visit]. [Honolulu, HI]: Western States Regional Genetics Network, 6 m 18 s.

Annotation: This video was created by the Western States Regional Genetics Network (WSRGN) in response to the COVID-19 pandemic to help families navigate the transition to telehealth. WSRGN initially produced the video in English and Spanish, and later extended the series to include Vietnamese, Samoan, Chinese (Simplified and Traditional), and Tagalog with support from AMCHP through its CARES Act funding.

Contact: Western States Regional Genetics Network, Web Site: https://www.westernstatesgenetics.org/

Keywords: Covid-19 [suggested keyword], Telemedicine, Consumer education, Confidentiality, Medicare

2021. 遠距醫療看診須知 (普通話配音,繁體文本), Chinese, Traditional [What to Expect from a Telehealth Visit]. [Honolulu, HI]: Western States Regional Genetics Network, 6 m 25 s.

Annotation: This video was created by the Western States Regional Genetics Network (WSRGN) in response to the COVID-19 pandemic to help families navigate the transition to telehealth. WSRGN initially produced the video in English and Spanish, and later extended the series to include Vietnamese, Samoan, Chinese (Simplified and Traditional), and Tagalog with support from AMCHP through its CARES Act funding.

Contact: Western States Regional Genetics Network, Web Site: https://www.westernstatesgenetics.org/

Keywords: Covid-19 [suggested keyword], Telemedicine, Consumer education, Confidentiality, Medicare

2021. Tapenapenaga mo se Talavai e Faia i le Telehealth, Samoan [What to Expect from a Telehealth Visit]. [Honolulu, HI]: Western States Regional Genetics Network, 10 m 51 s.

Annotation: This video was created by the Western States Regional Genetics Network (WSRGN) in response to the COVID-19 pandemic to help families navigate the transition to telehealth. WSRGN initially produced the video in English and Spanish, and later extended the series to include Vietnamese, Samoan, Chinese (Simplified and Traditional), and Tagalog with support from AMCHP through its CARES Act funding.

Contact: Western States Regional Genetics Network, Web Site: https://www.westernstatesgenetics.org/

Keywords: Covid-19 [suggested keyword], Telemedicine, Consumer education, Confidentiality, Medicare

2021. Những điều quý vị cần biết về cuộc khám bệnh qua Telehealth, Vietnamese [What to Expect from a Telehealth Visit]. [Honolulu, HI]: Western States Regional Genetics Network, 6 m 58 s.

Annotation: This video was created by the Western States Regional Genetics Network (WSRGN) in response to the COVID-19 pandemic to help families navigate the transition to telehealth. WSRGN initially produced the video in English and Spanish, and later extended the series to include Vietnamese, Samoan, Chinese (Simplified and Traditional), and Tagalog with support from AMCHP through its CARES Act funding.

Contact: Western States Regional Genetics Network, Web Site: https://www.westernstatesgenetics.org/

Keywords: Covid-19 [suggested keyword], Telemedicine, Consumer education, Confidentiality, Confidentiality, Medicare

2021. Qué esperar de una visita de telesalud, Spanish [What to Expect from a Telehealth Visit]. [Honolulu, HI]: Western States Regional Genetics Network, 9 m 00 s.

Annotation: This video was created by the Western States Regional Genetics Network (WSRGN) in response to the COVID-19 pandemic to help families navigate the transition to telehealth. WSRGN initially produced the video in English and Spanish, and later extended the series to include Vietnamese, Samoan, Chinese (Simplified and Traditional), and Tagalog with support from AMCHP through its CARES Act funding.

Contact: Western States Regional Genetics Network, Web Site: https://www.westernstatesgenetics.org/

Keywords: Covid-19 [suggested keyword], Telemedicine, Consumer education, Confidentiality, Medicare

2021. What to Expect from a Telehealth Visit, English. [Honolulu, HI]: Western States Regional Genetics Network, 6 m 54 s.

Annotation: This video was created by the Western States Regional Genetics Network (WSRGN) in response to the COVID-19 pandemic to help families navigate the transition to telehealth. WSRGN initially produced the video in English and Spanish, and later extended the series to include Vietnamese, Samoan, Chinese (Simplified and Traditional), and Tagalog with support from AMCHP through its CARES Act funding.

Contact: Western States Regional Genetics Network, Web Site: https://www.westernstatesgenetics.org/

Keywords: Covid-19 [suggested keyword], Telemedicine, Consumer education, Confidentiality, Medicare

Association of Maternal and Child Health Programs. 2020. Title V Data integration tip sheet: Data privacy and security. Washington, DC: Association of Maternal and Child Health Programs, 1 pp. (Tip Sheet)

Annotation: This tip sheet outlines essential guidelines for Title V programs when integrating their data into Early Childhood Integrated Data Systems (ECIDS), with a focus on data privacy and security measures. It contains key recommendations and guidance emphasizes for protecting sensitive information through proper administrative, physical, and technical safeguards while ensuring data accuracy and reliability. The document provides critical checkpoints for Title V programs to maintain data integrity and confidentiality when participating in integrated data systems, and includes references to additional privacy and security resources and tools for implementation.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

Keywords: Confidentiality, Data collection, Title V programs, Children with special health care needs

New Mexico AYAH CoIIN. 2017. So, you're telling me poster. [New Mexico]: New Mexico AYAH CoIIN, 1 pp.

Annotation: This poster of a woman and child illustrates the fact that 14-year-olds have the right to confidential mental health care. The poster was sponsored by New Mexico AYA COIIN (Adolescent and Young Adult Health Collaborative Improvement and Innovation Network).

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

Keywords: Adolescent health, Confidentiality, Adolescent mental health, Posters

University of Vermont, Vermont Child Health Improvement Program. 2017. We are here for you flyer. [Burlington, VT]: University of Vermont, Vermont Child Health Improvement Program, 1 pp.

Annotation: This poster sponsored by the Vermont Child Health Improvement Program highlights types of health care available to adolescents and young adults. The flyer was created by Vermont's CoIIN (Collaborative Improvement and Innovation Network) for schools, practices and other community areas to promote the well care visit.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

Keywords: Adolescent health, Clinics, Posters, Adolescents, Confidentiality, Vermont

Cheyne K. 2017. Webinar on consent and confidentiality. [Des Moines, IA]: Iowa CoIIN (Collaborative Improvement and Innovation Network) on School-based Health Services; Blank Children's Hospital Unity Point Health, 58 m 17 s.

Annotation: This webinar on consent and confidentiality issues for adolescent health care providers features Dr. Ken Cheyne, medical director of Blank Children's Hospital in Des Moines, Iowa. Dr. Cheyne discusses seven different hypothetical cases dealing with issues of confidentiality in adolescent and young adult healthcare. The examples illustrate how health practitioners and clinics can use policies and personal approaches when dealing with young people and their parents, while also keeping in mind the ethical and legal requirements of consent and confidentiality. These examples are somewhat specific to the state of Iowa, as they cite what is mandated by Iowa code, but can also be helpful to practitioners in other states.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

Keywords: Adolescent health services, Confidentiality, Consent

Minnesota Department of Health, Child and Teen Checkups and Minnesota Department of Education, Early Learning Services. 2016. Sharing child information to coordinate early childhood special education (ECSE) referrals: Guidance for clinics and schools. St. Paul, MN: Minnesota Department of Health, Child and Teen Checkups; Roseville, MN: Minnesota Department of Education, Early Learning Services, 2 pp.

Annotation: This document provides guidance for clinics and schools on the roles and responsibilities of medical providers and educational professionals in identifying and treating developmental and social-emotional concerns in young children from birth to age 5. Topics include communicating with families; referring for educational and medical evaluation; sharing evaluation results, including information about confidentiality and consent; and shared care planning. A link to a map of trained mental health professionals and a graphic showing a communication feedback loop are included.

Contact: Minnesota Department of Health, Child and Teen Checkups Program, P.O. Box 64882, St. Paul, MN 55164-0882, Telephone: (651) 201-3760 Web Site: https://www.health.state.mn.us/people/childrenyouth/ctc/index.html Available from the website.

Keywords: Child development, Clinics, Communication, Confidentiality, Early childhood, Early intervention, Emotional development, Family support, Legal issues, Mental health, Parent consent, Planning, Psychosocial development, Referrals, Role, School districts, Schools, Screening, Young children

2016. New Mexico consent & confidentiality flyer. [Santa Fe, NM: New Mexico Legislature] , 1 pp.

Annotation: This flier outlines the legal regulations in New Mexico regarding the ability of minors to consent to various types of medical care without parental knowledge or consent. It specifies the age at which adolescents can take responsibility for their own care in several scenarios, including: pregnancy-related care; sexually transmitted disease treatment; mental health services; and, other medical conditions.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

Keywords: New Mexico, Confidentiality, Adolescents, Patient Consent

University of Vermont, Vermont Child Health Improvement Program; Vermont Department of Public Health; . 2016. Vermont Dept. of Health adolescent and youth friendly resource guide. [Burlington, VT]: University of Vermont, Vermont Child Health Improvement Program; [Waterbury VT]: Vermont Department of Public Health, 2 pp.

Annotation: This resource guide from Vermont provides resources and materials to facilitate providing high quality care to adolescents and young adults in clinical practices. It lists recommended characteristics for clinics providing health care for young adults, as well as comments and recommendations to attain those characteristics.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

Keywords: Vermont, Adolescent health, Adolescent mental health, Confidentiality, Homosexuality, Pregnancy, Vaccines

Malvin J, Daniel S, Brindis CD. 2015. California's Confidential Health Information Act (SB 138): Implementation readiness among health insurers and health plans. San Francisco, CA: University of California, San Francisco, Philip R. Lee Institute for Health Policy Studies, 12 pp.

Annotation: This brief describes a study to identify operational issues and solutions related to the implementation of California's Confidential Health Information Act (Senate Bill 138), a law to address the privacy concerns of individuals insured as dependents on a parent's or partner's health plan. Topics include legal gaps that led to the new legislation, findings from telephone interviews with health insurance carriers and health plans, and an analysis of website content related to privacy practices.

Contact: University of California, San Francisco, Philip R. Lee Institute for Health Policy Studies, 513 Parnassus Avenue, San Francisco, CA 94143-0410, Telephone: (415) 476-5255 Web Site: http://healthpolicy.ucsf.edu Available from the website.

Keywords: Adolescent health, Adolescents, Confidentiality, Health insurance, Organizational change, Policy development, Social change, State legislation, Transition to independent living

Lee H, Warren A, Gill L. 2015. Cheaper, faster, better: Are state administrative data the answer? The Mother and Infant Home Visiting Program Evaluation-Strong Start second annual report. Washington, DC: U.S. Administration for Children and Families, Office of Planning, Research, and Evaluation, 3 items. (OPRE report 2015-09)

Annotation: This report details the Mother and Infant Home Visiting Program Evaluation-Strong Start (MIHOPE-Strong Start) process of acquiring administrative vital records and Medicaid data from 20 states and more than 40 state agencies. MIHOPE-Strong Start examines the effectiveness of home visiting services on improving birth and maternal health outcomes for women who are enrolled in Medicaid or the Children’s Health Insurance Program (CHIP), as well as their effectiveness at reducing costly health care encounters. The study relies on administrative data to measure infant and maternal health, health care use, and cost outcomes. The MIHOPE-Strong Start experience sheds light on the process of acquiring permission to access such data.

Contact: U.S. Administration for Children and Families, Office of Planning, Research, and Evaluation, 370 L'Enfant Promenade, S.W., Seventh Floor West, Washington, DC 20447, Web Site: http://www.acf.hhs.gov/opre Available from the website.

Keywords: Administrative problems, Children', Confidentiality, Costs, Data collection, Health care utilization, Health status, High risk mothers, Home visiting, Infants, Measures, Medicaid, Multimedia, Outcome and process assessment, Program evaluation, s Health Insurance Program

English A, Summers R, Lewis J, Coleman C. 2015. Confidentiality, third-party billing, and the health insurance claims process: Implications for Title X. Washington, DC: National Family Planning and Reproductive Health Association,

Annotation: This white paper provides background on the importance of confidentiality in family planning settings, the role of Title X, and the health care delivery environment, particularly as a result of the Health Insurance Portability and Accountability Act (HIPAA) Privacy Rule and the Affordable Care Act (ACA). The paper discusses disclosure requirements and confidentiality protections in the HIPAA Privacy Rule and state medical privacy laws as well as in the laws related to the primary sources of revenue for Title X-funded health centers—the Ryan White HIV/AIDS Program, Section 330 federally qualified health centers (FQHCs) program, Medicaid, and commercial health insurance. The paper also highlights examples of targeted approaches in several states that may provide confidentiality protection in the billing and health insurance claims process, including existing laws and policies and pending legislation.

Contact: National Family Planning and Reproductive Health Association, 1627 K Street, N.W., 12th Floor, Washington, DC 20006, Telephone: (202) 293-3114 E-mail: [email protected] Web Site: http://www.nfprha.org Available from the website.

Keywords: Adolescents, Confidentiality, Health care reform, Health insurance, Patient Protection and Affordable Care Act, Public Health Service Act, Title X, Reimbursement, State legislation, Young adults

Office of the National Coordinator for Health Information Technology. 2015. Federal health IT strategic plan 2015–2020. Washington, DC: U.S. Department of Health and Human Services Office of the Secretary, 50 pp.

Annotation: This plan describes how the federal government views the health information technology (health IT) landscape and articulates federal values and priorities. It also identifies government actions that will be most impactful in the future. Topics include the federal health IT vision and mission, principles, and goals for improving health and well-being and progressing to a person-centered infrastructure; how health IT helps users manage systemic transformation; federal efforts to modernize the nation's health IT infrastructure; strategic plan development and implementation; and measurement and reporting.

Contact: U.S. Department of Health and Human Services, 200 Independence Avenue, S.W., Washington, DC 20201, Telephone: (877) 696-6775 Web Site: http://www.hhs.gov Available from the website.

Keywords: Communication, Confidentiality, Consumer protection, Federal initiatives, Health care delivery, Health information, Measures, Public health infrastructure, Standards, Strategic planning, Systems development, Technology

Office of the National Coordinator for Health Information Technology. 2015. Connecting health and care for the nation: A shared nationwide interoperability roadmap–Final version 1.0. [Washington, DC: U.S. Department of Health and Human Services], 166 pp.

Annotation: This document proposes critical actions that the public and private sector need to take to advance toward an interoperable health information technology (IT) ecosystem. Topics include the current context, the federal health IT strategic plan; guiding principles; business and technical requirements for a learning health system; process for updating the roadmap; rules of engagement and governance; supportive business, clinical, cultural, and regulatory environments; privacy and security protections for health information; certification and testing to support adoption and optimization of health IT products; core technical standards and functions; and tracking progress and measuring success.

Contact: U.S. Department of Health and Human Services, 200 Independence Avenue, S.W., Washington, DC 20201, Telephone: (877) 696-6775 Web Site: http://www.hhs.gov Available from the website.

Keywords: Community action, Confidentiality, Evaluation, Federal initiatives, Information systems, Measures, Organizational change, Role, Standards, Strategic planning, Systems development, Technology

    Next Page »

The MCH Digital Library is one of six special collections at Geogetown University, the nation's oldest Jesuit institution of higher education. It is supported in part by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under award number U02MC31613, MCH Advanced Education Policy with an award of $700,000/year. The library is also supported through foundation and univerity funding. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.