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Strengthening the evidence for maternal and child health programs

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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 20 (21 total).

Simmons E. n.d.. Youth in Transition—The Alabama Experience: [Final report]. Montgomery, AL: Alabama Department of Education, 32 pp.

Annotation: This project focused on developing a systematic approach to integrate medical, vocational, educational, psychosocial, and developmental services for adolescents with physical disabilities and/or chronic illness who are at risk in their transition to maturity. Project objectives were to (1) create an administrative structure at the State level and in two pilot sites for provision of an integrated continuum of health and education services; (2) enable service providers, through training and collaboration, to coordinate service planning for the target population; (3) enable the adolescent and family, through counseling and training, to function as their own "case manager"; and (4) monitor and evaluate the model to determine the feasibility for replication in Alabama and/or other states. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-147031.

Keywords: Adolescents with special health care needs, Advocacy, Chronic illnesses and disabilities, Community-Based Health Care, Coordination of Health Care, Data Bases, Interdisciplinary Teams, Rural Population, Urban Population

Magrab P. n.d.. Networking and Community-Based Services for Children with Special Needs: [Final report]. Washington, DC: Georgetown University Medical Center, 45 pp.

Annotation: This project sought to achieve comprehensive, coordinated, community-based services for children with special health needs and their families through improved collaboration among parents and public and private agencies at all levels within the service delivery system. Activities included maintaining a network of States, facilitating coalitions within States, brokering technical assistance, organizing conferences, and developing materials on topics such as the financing of services, service provision to culturally diverse groups, rural services, and collaboration between mental health professionals and other health care providers. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-147130.

Keywords: Child Care, Chronically Ill, Collaboration of Care, Community-Based Health Care, Families, Family-Based Health Care, Financing, Grandparents, Medicaid, Networks, Parent Support Groups, Parents, Rural Population

Nelson R. n.d.. Analysis and Expansion of Community-Based Interagency Collaborative Efforts: [Final report]. Iowa City, IA: University of Iowa, 51 pp.

Annotation: This study sought to document, evaluate, and disseminate information about two community-based projects designed as models of collaborative interagency service provision for children and families. The project developed a set of recommendations for collaborative efforts, addressing procedure as well as policy and organization. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-152890.

Keywords: Children with special health care needs, Collaboration, Community-Based Health Care, Family centered, Fragmentation of Services, Health Professionals, Interagency cooperation, community based care

Partridge S. n.d.. PROJECT AIMS [Final report]. Portland, ME: University of Southern Maine, 37 pp.

Annotation: Project AIMS worked to strengthen the capacity of Maine's service system (including P.L. 99-457 efforts) to meet the emotional health needs of young children (birth to 5 years old) and their families. The project objectives were to: (1) Establish a multidisciplinary network of project associates; (2) develop and field-test an emotional health brief assessment tool for children birth to 5 years old; (3) recommend to the service network methods of conducting comprehensive psychosocial assessments of children/families with emotional difficulties; and (4) strengthen treatment services which facilitate attachment, interaction, mastery, and support within families. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-158608.

Keywords: 99-457, Community-Based Health Services, Coordination of Health Care, Data Collection, Early Intervention, Emotional Health, High risk children, High risk groups: Families, L, P, Parent-Child Interaction, Screening Tools

Perrin J. n.d.. Home Care for Chronically Ill Children: Policy Analysis [Final report]. Boston, MA: Massachusetts General Hospital, Wang Ambulatory Care Center, 171 pp.

Annotation: The goal of this project was to improve the knowledge base from which policymakers and program directors make decisions regarding implementation of community-based and home-based services for children with long-term health care needs. Strategies included a literature review, a review of current innovative home and community-based programs, and the dissemination of findings and recommendations by means of publications and a state-of-the-art conference. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB94-106358.

Keywords: Children, Chronically Ill, Community-Based Health Services, Data Collection from, Home-Based Health Care, Primary Care Centers, Technology Dependence

Henry W. n.d.. PATHFINDER: A Project to Improve Systems of Care for Children with Chronic Health Conditions [Final report]. St. Paul, MN: Pathfinder Resources, Inc., 28 pp.

Annotation: This project sought to improve information sharing among public agencies, third-party payers, special projects of regional and national significance (SPRANS), and employers in Minnesota. Activities included an annual invitational workshop; technical assistance; a quarterly newsletter; a continuing education center; and the guidelines, *How to Develop a Community Network.* [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-163549.

Keywords: Chronic illnesses and disabilities, Community-Based Health Care, Continuing Education, Coordination of Health Care, Families, Financing Health Care, Medicaid, Networking

Valentine S. n.d.. Developing Community-Based Family Centered Care/Case Management and Family Support Services for Mississippi's Children with Special Health Care Needs [Final report]. Jackson, MS: Mississippi State Department of Health, 25 pp.

Annotation: This project sought to develop a statewide system of community-based, comprehensive care/case management and family support services. Program strategies included developing a training curriculum for the skilled delivery of home-based family support services by medical professionals, paraprofessionals, and parents; piloting a respite providers' network; providing statewide training on the provision of family support services; and developing and disseminating a statewide directory of trained family support service providers. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-158277.

Keywords: 99-457, Case Management, Chronically Ill, Community-Based Health Care, Coordination of Health Care, Family-Based Health Care, Financing Health Care, Fragmentation of Services, L, P, Parents, Rural Population

Pratt S. n.d.. Montana Project for Children with Special Health Care Needs [Final report]. Helena, MT: Montana Department of Health and Environmental Sciences, 16 pp.

Annotation: The overall goal of this project was to develop a replicable system of family-centered, community-based case management for children with special health care needs in a frontier State. Targeted communities were under 20,000 in population and served areas at least 50 miles from a level II facility. The project objectives were to: (1) Upgrade case management and assessment skills of local public health nurses; (2) develop family-centered, community-based case management programs that address the needs of the family and the child with special needs; and (3) develop community-based teams that empower families to actively participate in identifying and meeting educational, social, psychological, health, and financial needs for themselves and the child with special needs. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-158640.

Keywords: Case Management, Chronically Ill, Community-Based Health Care, Education of Health Professionals, Families, Family-Centered Health Care, Public Health Nurses, Rural Populations

Malach R. n.d.. Case Management for Parents of Indian Children with Special Health Care Needs [Final report]. Bernalillo, NM: Southwest Communication Resources, 20 pp.

Annotation: This project provided a model program for American Indian families and the professionals who served them. The program goals were to identify cultural, systemic, institutional, and policy barriers that inhibit Native American family participation in the "Western" health care/case management system; improve case management by facilitating effective communication between Native American families and the non-Native American health care professionals who serve them; and increase Native American family participation in health care policy development and planning forums in order to promote changes that improve services for Native American children and families. Activities included developing a videotape illustrating effective cross-cultural communication strategies for non-Indian health care providers and training an Indian parent advocate to help families seen at IHS special pediatric clinics. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-158251.

Keywords: American Indians, Case Management, Chronically Ill, Community-Based Health Care, Coordination of Health Care, Developmentally Delayed/Disabled, Family-Based Health Care, Indian Health Service (IHS), Low income groups, Parents, Rural Population

Diaz de Ortiz M. n.d.. Caguas Crippled Children Service Network [Final report]. Caguas, PR: Caguas Regional Hospital, 33 pp.

Annotation: The goal of this project was to develop an optimum habilitation and/or rehabilitation process for children (ages birth to 21 years) with special health needs, within Puerto Rico's Caguas Health Region. The principal outcomes of this project were the development of an electronic central register for patients with special health needs in the Caguas Health Region, and the interagency work agreement and interagency referral form, which have enabled project staff and Pediatric Center personnel to share information and coordinate services with other government service providers from central and local levels. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-198901.

Keywords: Children with special health care needs, Chronically Ill, Collaboration of Care, Community-Based Health Care, Confidentiality, Families, Family-Based Health Care, Habilitation, Home Visiting, Referrals, Rehabilitation

Kessel R. n.d.. Diagnostic and Followup Project for Native American Children in Wisconsin with Special Health Care Needs = WINGS Project [Final report]. Madison, WI: Board of Regents of the University of Wisconsin at Madison , 42 pp.

Annotation: This project was part of an ongoing effort to identify and address issues related to developmental disabilities among Native American children in Wisconsin to assure that proper diagnostic and followup services are provided to this population. Tribes, State and local agencies, and volunteer organizations were involved in a collaborative effort to design and establish a long-term, community-based, high quality program in each tribal community in Wisconsin to serve the special health care needs of Native American children. The two main goals of the project were to: (1) Become an integral part of the tribal service systems, and (2) improve those systems in such a way that they address both the needs of developmentally disabled children and the issues related to the prevention of disabilities. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-161941.

Keywords: American Indians, Community-Based Health Care, Coordination of Health Care, Data Collection, Developmentally Delayed/Disabled, Fetal Alcohol Syndrome

n.d.. Handicapped Children's Resource Center [Final report]. Saipan, MP: Northern Mariana Islands Department of Public Health and Environmental Services, 12 pp.

Annotation: The goal of this project was to reduce the barriers to obtaining health and educational services for children with special health needs by providing a community-based, family-oriented system of comprehensive and coordinated services. Strategies included increasing community awareness of services; establishing interagency collaboration; and developing a centralized data collection system related to health status, service, and educational needs. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-196954.

Keywords: Children with special health care needs, Community-Based Health Care, Data Collection, Family-Based Health Care

Langley M. n.d.. Continuum's Minority Connection Project [Final report]. Atlanta, GA: CONTINUUM Alliance for Healthy Mothers and Children, 32 pp.

Annotation: This project aimed to reduce postneonatal mortality rates associated with inadequate parenting skills and poor utilization of prenatal and child health care services. Activities included establishment of a resource mothers program in which church women were trained to assist pregnant women in negotiating the health care and social services systems, and implementation of a teen peer counselor program. The project also established self-sustaining local coalitions to monitor and address problems that contribute to poor pregnancy outcomes. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-196889.

Keywords: Access to Health Care, Adolescents, Blacks, Clergy, Community-Based Health Services, High risk groups, High risk pregnancy, Infant Mortality, Low income groups, Postneonatal Mortality, Pregnant Women, Prenatal Care, Religious organizations, Rural Populations

Advisory Committee on Training in Primary Care Medicine and Dentistry. 2014. Training health professionals in community settings during a time of transformation: Building and learning in integrated systems of care–Eleventh annual report to the Secretary of the U.S. Department of Health and Human Services and to Congress. [Rockville, MD]: U.S. Health Resources and Services Administration, 31 pp.

Annotation: This report discusses principles of interprofessional education with the building of community-based collaborations and partnerships in primary care practice. Topics include integrating behavioral health care and other services into primary care, collaborative training in community settings, linking oral health care and primary care, and investing in the future of primary care and dentistry.

Contact: U.S. Health Resources and Services Administration, 5600 Fishers Lane, Rockville, MD 20857, Telephone: (888) 275-4772 Secondary Telephone: (877) 464-4772 Fax: (301) 443-1246 E-mail: ask@hrsa.gov Web Site: http://www.hrsa.gov Available from the website.

Keywords: Collaboration, Community-based services, Dentistry, Interdisciplinary approach, Medicine, Multidisciplinary teams, Oral health, Patient care teams, Primary care, Professional education, Service integration, Training

Community Care Coordination Learning Network. 2010. Connecting those at risk to care: A guide to building a community "HUB" to promote a system of collaboration, accountability, and improved outcomes. Rockville, MD: Agency for Healthcare Research and Quality, 92 pp.

Annotation: This guide is intended to help community systems of care identify at-risk individuals and connect them to appropriate health care and social services. It contains background information on current challenges in serving at-risk populations and offers step-by-step guidelines for building a Pathways Community HUB, which employs community health workers to connect at-risk individuals to evidence-based care. The guide includes information on how to plan, create tools and resources, and launch such a HUB.

Contact: U.S. Agency for Healthcare Research and Quality, 5600 Fishers Lane, Rockville, MD 20857, Telephone: (301) 427-1104 Secondary Telephone: (301) 427-1364 Web Site: http://www.ahrq.gov Available from the website. Document Number: AHRQ Pub. No. 09(10)-0088.

Keywords: Community programs, Community-based services, Health care systems, High risk groups, Model programs, Referrals, Service delivery systems, Systems development

Weissman G, Mitchell M, eds. 2010. Celebrate 2010: A decade of progress for children and youth with special health care needs. Boston, MA: Catalyst Center, 91 pp.

Annotation: This book is designed to serve as a commemorative reflection on the Maternal and Child Health Bureau's efforts between 2000-2010 to achieve a community-based system of services for all children and youth with special needs. The book offers an overview of family professional partnerships; looks at early and continuous screening efforts; addresses health insurance and financing; and discusses the evolution of the medical home and community-based services. The transition from childhood to adulthood is also addressed. [Funded by the Maternal and Child Health Bureau]

Contact: Catalyst Center, the National Center for Health Insurance and Financing for Children and Youth with Special Health Care Needs, Boston University School of Public Health, Center for Advancing Health Policy and Practice, 801 Massachusetts Avenue, Boston, MA 02218-2526, Telephone: (617) 638-1930 E-mail: mcomeau@bu.edu Web Site: http://cahpp.org/project/the-catalyst-center Available from the website.

Keywords: Children with special health care needs, Community-based services, Federal MCH programs, Health care systems, History

Mayer R, Anastasi J, Clark EM, Lorenzo S, Richards J. 2006. Where to seek help: A Bright Futures referral tool for providers. Washington, DC: National Technical Assistance Center for Children's Mental Health, Georgetown University Center for Child and Human Development, with National Center for Education in Maternal and Child Health, 4 pp.

Annotation: This Bright Futures tool for health professionals provides information about creating a referral network for developmental, behavioral, and family support services. Information is presented about locating community-based services to support children and families. The tool includes a referral and contact list, divided into the following categories: (1) education and special needs, (2) health and wellness, (3) mental health and well-being, (4) family support and parenting, (5) child care and early childhood education, and (6) other. Each catetory is divided into subcategories, with space for health professionals to fill in contact information. The tool is available in English and Spanish.

Contact: Bright Futures at Georgetown University, Box 571272, Washington, DC 20057-1242, Telephone: (202) 784-9772 E-mail: brightfutures@ncemch.org Web Site: http://www.brightfutures.org/georgetown.html Available from the website.

Keywords: Child care, Child development, Child health, Children, Children with special health care needs, Collaboration, Community-based services, Early childhood education, Education, Families, Family support services, Health supervision, Mental health, Parenting, Referrals, Spanish language materials

Pipes P, Lucas B. 2005. Guidelines for the development and training of community-based feeding teams in Washington State. (Upd. ed.). Olympia, WA: Washington State Department of Health, Office of Children with Special Health Care Needs, 26 pp.

Annotation: This manual provides guidelines for coordinating activities among community-based nutrition services in Washington State that care for children with special health needs. Since many different services are involved in this process, these guidelines use a team approach to resolve conflicts that result from other service models. The authors provide an overview of the team approach and review the steps involved in establishing and training the community feeding teams. Appendixes include models, training agendas, mission statements, and other materials related to establishing the teams.

Contact: Washington State Department of Health, Office of Maternal and Child Health, Children with Special Health Care Needs Program, P.O. Box 47835, Olympia, WA 98504-7835, Telephone: (360) 236-3571 E-mail: cshcn.support@doh.wa.gov Available from the website.

Keywords: Children with special health care needs, Community-based services, Guidelines, Interagency cooperation, Nutrition, Service coordination

Perrin J. 1993. Coordinated care and case management for children with special health needs [Final report]. Boston, MA: Massachusetts General Hospital, 49 pp.

Annotation: This study was designed to examine families' perceptions of the processes and results of care coordination provided by Title V programs. Although no significant differences in hospital, physician, emergency room, or other health care utilization by provision or type of care coordination were expected, it was hypothesized that certain types or availability of care coordination would diminish perceived unmet needs and would be associated with improved psychological functioning of children and parents and increased satisfaction with health services in general. Analysis of survey responses, received from 562 families with children with special health care needs in 6 States, revealed major differences in the types of services that families perceived they obtained from care coordinators. Family perceptions of whether or not they received case management services appeared to vary substantially from those of the relevant agencies and many families reported receiving case management services from other agencies in addition to the Title V agency. Little or no association was found between the presence, absence, or type of care coordination and such outcome variables as utilization of services, maternal mental health, child functioning, or satisfaction. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB94-218641.

Keywords: Bronchopulmonary Dysplasia, Case Management, Chronic illnesses and disabilities, Community-Based Health Care, Coordination of Health Care, Data Collection, Families, Spina Bifida

Garell D. 1991. ACMS/Community-Based Care Coordination Project for CCS Children and Their Families in Los Angeles County [Final report]. Los Angeles, CA: California Children's Services of Los Angeles County, 58 pp.

Annotation: The goals of this project were to: (1) Develop and implement an automated case management system in Los Angeles County to improve and enhance the existing California Children's Services (CCS) system; (2) establish a CCS community-based care coordinator program within Los Angeles County to coordinate and implement an individual service plan for children with special needs and their families; and (3) test the feasibility and desirability of these goals in Los Angeles County, California, and other States. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-147098.

Keywords: American Academy of Pediatrics, Case Management, Chronic illnesses and disabilities, Community-Based Health Care, Coordination of Health Care, Data Bases, Data Collection, Families, Family-Centered Health Care, Medicaid, School Based Health Services, University Affiliated Facility

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This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.