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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 20 (198 total).

Magrab P, Elder J, Kazuk E, Pelosi J, Wiegerink R. n.d.. Developing a community team: A companion to the community workbook for collaborative services to preschool handicapped children. Washington, DC: American Association of University Affiliated Programs for the Developmentally Disabled, 39 pp. (Workbook series for providing services to children with handicaps and their families)

Annotation: This book explains the steps needed to plan and implement collaboration between community programs, agencies and individuals who provides services to children with disabilities and their families. This book was reprinted by the Georgetown University Child Development Center as a part of the Workbook Series for Providing Services to Children with Handicaps and Their Families.

Keywords: Children with special health care needs, Collaboration, Community based services, Interagency cooperation

MetroHealth Medical Center, Pediatric Service Coordination Program. n.d.. Working with your health insurance. Cleveland, OH: MetroHealth Medical Center, Pediatric Service Coordination Program, 16 pp.

Annotation: This booklet provides information and forms to help families work with their health insurance companies. It includes questions to ask the insurance company and billing office, tips for keeping records of bills and claims, and who to talk with for assistance. A glossary of terms and list of publications on health insurance are included. Resource organizations in Cuyahoga County and the state of Ohio are also listed. [Funded by the Maternal and Child Health Bureau]

Keywords: Children with special health care needs, Family centered, community based care, Health care financing, Insurance, Medical records

National Maternal and Child Health Resource Center. n.d.. A national goal: Building service delivery systems for children with special health care needs and their families—Family centered community based coordinated care. Iowa City, IA: National Maternal and Child Health Resource Center, 9 pp.

Simmons E. n.d.. Youth in Transition—The Alabama Experience: [Final report]. Montgomery, AL: Alabama Department of Education, 32 pp.

Annotation: This project focused on developing a systematic approach to integrate medical, vocational, educational, psychosocial, and developmental services for adolescents with physical disabilities and/or chronic illness who are at risk in their transition to maturity. Project objectives were to (1) create an administrative structure at the State level and in two pilot sites for provision of an integrated continuum of health and education services; (2) enable service providers, through training and collaboration, to coordinate service planning for the target population; (3) enable the adolescent and family, through counseling and training, to function as their own "case manager"; and (4) monitor and evaluate the model to determine the feasibility for replication in Alabama and/or other states. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-147031.

Keywords: Adolescents with special health care needs, Advocacy, Chronic illnesses and disabilities, Community-Based Health Care, Coordination of Health Care, Data Bases, Interdisciplinary Teams, Rural Population, Urban Population

Nelson R. n.d.. Analysis and Expansion of Community-Based Interagency Collaborative Efforts: [Final report]. Iowa City, IA: University of Iowa, 51 pp.

Annotation: This study sought to document, evaluate, and disseminate information about two community-based projects designed as models of collaborative interagency service provision for children and families. The project developed a set of recommendations for collaborative efforts, addressing procedure as well as policy and organization. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-152890.

Keywords: Children with special health care needs, Collaboration, Community-Based Health Care, Family centered, Fragmentation of Services, Health Professionals, Interagency cooperation, community based care

Nicol P. n.d.. Coordinated Community-Based Services: [Final report]. Frankfort, KY: Division of Maternal and Child Health, Department for Health Services, Kentucky Cabinet for Human Resources, 39 pp.

Annotation: The principle aim of this project was to demonstrate a coordinated, community-based program model for the screening, evaluation, and treatment of children from birth to five years of age with developmental disabilities, children at risk for them, and for their families. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-152932.

Keywords: Children with special health care needs, Collaboration, Developmental disorders, Early intervention, Family centered care, Interagency cooperation, community based care

Kaufman J. n.d.. A Model for Home and Community Care for Children who are Technology Assisted [Final report]. Baltimore, MD: Children's Medical Services , 13 pp.

Annotation: This project developed a model for public/private sector collaboration in the financing and case management of home care for technology-assisted children. The project also developed a methodology for educating professionals in case management for family-centered care; identified and analyzed options to hospitalization; and provided family-centered case management services. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-158269.

Keywords: Children with special health care needs, Community based care, Financing, Home care, Technology dependent, Ventilator dependent

Schaller J. n.d.. The Affiliated Children's Arthritis Centers of New England [Final report]. Boston, MA: New England Medical Center, Department of Pediatrics, 52 pp.

Annotation: The purpose of this project was to improve the health care delivered to children with rheumatic diseases in New England. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-158707.

Keywords: Arthritis, Children with special health care needs, Community based services, Coordinated care, Interdisciplinary teams, Rheumatic diseases

Diaz de Ortiz M. n.d.. Caguas Crippled Children Service Network [Final report]. Caguas, PR: Caguas Regional Hospital, 33 pp.

Annotation: The goal of this project was to develop an optimum habilitation and/or rehabilitation process for children (ages birth to 21 years) with special health needs, within Puerto Rico's Caguas Health Region. The principal outcomes of this project were the development of an electronic central register for patients with special health needs in the Caguas Health Region, and the interagency work agreement and interagency referral form, which have enabled project staff and Pediatric Center personnel to share information and coordinate services with other government service providers from central and local levels. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-198901.

Keywords: Children with special health care needs, Chronically Ill, Collaboration of Care, Community-Based Health Care, Confidentiality, Families, Family-Based Health Care, Habilitation, Home Visiting, Referrals, Rehabilitation

Williams S. n.d.. Improving Community-Based Services for Special Needs Children and Their Families in Rural Utah [Final report]. Salt Lake City, UT: Utah Department of Health, 19 pp. pp.

Annotation: The goal of the project was to improve the functioning of special needs children and their families by providing locally based clinic and care coordination services in a rural area in Utah. The program objectives were to: (1) Involve parents of special needs children in developing a service plan for their child, (2) improve the implementation of service plans for rural special needs children, (3) improve coordination of services to rural special needs children, and (4) improve adequacy of services to these children. While maintaining current multidisciplinary clinic services, Children's Special Health Services worked through the local health department to place a nurse coordinator, secretary, social worker, and trained parent advocates in the local community. This team built upon existing local systems to improve the functional outcomes of the children. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB97-121834.

Keywords: Access to Health Care, Advocacy, Children with Special Health care Needs, Chronic Illnesses and Disabilities, Community Based Health Services, Parents, Rural Population, Service Coordination

n.d.. Handicapped Children's Resource Center [Final report]. Saipan, MP: Northern Mariana Islands Department of Public Health and Environmental Services, 12 pp.

Annotation: The goal of this project was to reduce the barriers to obtaining health and educational services for children with special health needs by providing a community-based, family-oriented system of comprehensive and coordinated services. Strategies included increasing community awareness of services; establishing interagency collaboration; and developing a centralized data collection system related to health status, service, and educational needs. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-196954.

Keywords: Children with special health care needs, Community-Based Health Care, Data Collection, Family-Based Health Care

Perinatal Periods of Risk Work Group. n.d.. Perinatal Periods of Risk approach: The U.S. urban experience—A new community approach to fetal and infant mortality. [Omaha, NE: CityMatCH], 33 pp.

Annotation: These annotated slides outline a presentation on prevention efforts to improve fetal and infant mortality using an approach, called Perinatal Periods of Risk (PPOR), developed by the World Health Organization for developing countries and applying concepts to urban efforts in the United States. It highlights five major steps: (1) engaging community partners, (2) mapping feto-infant mortality, (3) focusing on reducing the overall feto-infant mortality rate, (4) examining potential opportunity gaps, and (5) targeting further investigations and prevention efforts. [Funded in part by the Maternal and Child Health Bureau]

Contact: CityMatCH, University of Nebraska Medical Center, Department of Pediatrics, 982170 Nebraska Medical Center, Omaha, NE 68198-2170, Telephone: (402) 552-9500 E-mail: [email protected] Web Site: http://www.citymatch.org Available from the website.

Keywords: Community coordination, Developing countries, Fetal mortality, Infant mortality, International health, Needs assessment, Prevention, Risk assessment, Statistical analysis

Cofano L, Isman B, Jacob M, Payne K, Wood C. 2024. Guidebook for policy consensus tool: Steps to create a successful oral health consensus-building session (Rev. ed.). Washington, DC: Children's Dental Health Project; Reno, NV: Association of State and Territorial Dental Directors, 33 pp.

Annotation: This two-part policy tool is designed to support a facilitated process for state oral health stakeholders to collectively make decisions about priorities based on suggested criteria. It also provides a planning checklist to move forward strategically. Part one assists state oral health programs in assessing opportunities for socio-political, policy, and systems change. It considers scientific data collection, professional judgment, community input, and feasibility in needs assessment and policy development to improve oral health resources and services. Part two focuses on developing policy actions or systems-development plans to take advantage of or create new opportunities to advance the public’s oral health. The guidebook contains a series of templates that can be reproduced and adapted to meet specific project needs. This tool was previously issued as "The policy tool guidebook: Steps for creating a successful oral health policy tool session" (2009).

Contact: Association of State and Territorial Dental Directors, 3858 Cashill Boulevard, Reno, NV 89509, Telephone: (775) 626-5008 Fax: (775) 626-9268 E-mail: [email protected] Web Site: https://www.astdd.org Available from the website.

Keywords: Children, Collaboration, Community coordination, Health policy, Manuals, Needs assessment, Oral health, Public health programs, Strategic plans

Bhaskara S, Isman B, Phipps K. 2024. Assessing oral health needs: ASTDD seven-step model (3rd. ed.). Reno, NV: Association of State and Territorial Dental Directors, 41 pp.

Annotation: This report, which focuses on oral health needs assessment, is intended to serve as a step-by-step guide that can be adapted to specific and diverse community needs, objectives, resources, and policies. In addition to the seven steps, the report explains what needs assessments are and why they are important.

Contact: Association of State and Territorial Dental Directors, 3858 Cashill Boulevard, Reno, NV 89509, Telephone: (775) 626-5008 Fax: (775) 626-9268 E-mail: [email protected] Web Site: https://www.astdd.org Available from the website.

Keywords: Community health, Needs assessment, Oral heath, Public policy

Association of State and Territorial Dental Directors. 2023. MCH Title V national performance measure for oral health (2nd ed.). Reno, NV: Association of State and Territorial Dental Directors, 6 pp.

Annotation: This summary discusses changes to the Title V Maternal and Child Health Services Block Grant application, needs assessment, and reporting process and resulting opportunities to promote oral health in states. It describes the national performance measure on oral health, a national outcome measure for oral health, and recommended strategies for action. State performance measures are also discussed.

Contact: Association of State and Territorial Dental Directors, 3858 Cashill Boulevard, Reno, NV 89509, Telephone: (775) 626-5008 Fax: (775) 626-9268 E-mail: [email protected] Web Site: https://www.astdd.org Available from the website.

Keywords: Block grants, Community action, Measures, Needs assessment, Oral health, Outcome and process assessment, Program improvement, Quality assurance, Title V programs

U.S. Department of Health and Human Services. 2021. Health workforce strategic plan. Washington, DC: U.S. Department of Health and Human Services, 80 pp.

Annotation: This strategic plan provides a framework for health workforce improvements, focusing on four key goals: expanding supply, ensuring equitable distribution, improving quality, and enhancing the use of data and evidence to improve program outcomes. This plan is Section 3402 of the Coronavirus Aid, Relief, and Economic Security (CARES) Act, enacted in March 2020, to address barriers to strengthening the health work force. The plan aligns with Presidential Executive Orders related to the Coronavirus Disease 2019 (COVID-19) pandemic. The American Rescue Plan (ARP) of 2021 invests resources in the health care, public health, and mental health work force in alignment with the goals of this strategic plan.

Contact: U.S. Department of Health and Human Services, 200 Independence Avenue, S.W., Washington, DC 20201, Telephone: (202) 619-0257 Secondary Telephone: (877) 696-6775 Web Site: http://www.hhs.gov Available from the website.

Keywords: Community needs, Personnel, Public health, Public health services, Work force

Transforming Oral Health for Families. 2021. Transforming oral health for families: Policy assessment matrix for community health centers. Albany, NY: HealthEfficient, 3 pp.

Annotation: This policy assessment matrix is one of a set of seven assessments gauging aspects of the operations and services of community health centers (CHCs) participating in the Transforming Oral Health for Families project, part of the federally funded Networks for Oral Health Integration (NOHI) Within the Maternal and Child Health Safety Net program. The assessment matrix includes questions about health center goals and about barriers to achieving these goals. The assessments are intended to inform efforts to integrate oral health care into primary care in the CHCs. [Funded by the Maternal and Child Health Bureau]

Contact: National Maternal and Child Oral Health Resource Center, Georgetown University, Washington, DC 20057, E-mail: [email protected] Web Site: https://www.mchoralhealth.org Available from the website.

Keywords: Community health centers, Needs assessment, Oral health, Questionnaires, School age children, Service integration

Williams E, and Musumeci MB. 2021. Children with Special Health Care Needs: Coverage, Affordability, and HCBS Access. Menlo Park, CA: Henry J. Kaiser Family Foundation,

Annotation: This issue brief describes key characteristics of children with special health care needs and explores insurance affordability, adequacy of coverage, and benefits for children covered by Medicaid/CHIP compared to those with private insurance only. The brief provides a context for ongoing policy discussions around additional investments in Medicaid, including home and community-based services (HCBS), for children with special health care needs.

Contact: Henry J. Kaiser Family Foundation, 2400 Sand Hill Road, Menlo Park, CA 94025, Telephone: (650) 854-9400 Secondary Telephone: (202) 347-5270 Fax: (650) 854-4800 Web Site: http://www.kff.org

Keywords: Children with special health care needs, Community based services, Health care costs, Health insurance, Home care, Medicaid, Public assistance, Special health care services, Statistics

Alameda County Public Health Department, Office of Dental Health. 2020. Curriculum on dental care coordination (for community dental care coordinator workforce)--Guide for trainers. San Leandro, CA: Alameda County Public Health Department, Office of Dental Health, 170 pp.

Annotation: This curriculum provides information on oral health care coordination for community oral health care coordinators in Alameda County, California. It encompasses a training plan and modules focusing on basic dental terminology; oral health care for infants, children, and adolescents from birth through age 20, including those with special health care needs, and for pregnant women; oral health education; effective communication; privacy, confidentiality, and security; principles of oral health care coordination; protocols and tools; and data collection, data entry, and reporting.

Contact: Alameda County Public Health Department, Office of Dental Health, 1100 San Leandro Blvd., San Leandro, CA 94577, Telephone: (510) 208-5910 E-mail: [email protected] Web Site: https://dental.acphd.org/ Available from the website.

Keywords: Adolescent health, Adolescents, California, Care coordination, Children, Community health, Data collection, Health education, Infant health, Infants, Oral health, Special health care needs, State materials

Midwest Network for Oral Health Integration. 2020. Participating community health center needs assessment. [Lansing, MI]: Midwest Network for Oral Health Integration, 7 pp.

Annotation: This needs assessment is intended for use with community health centers (CHCs) participating in the Midwest Network for Oral Health Integration project, part of the federally funded Networks for Oral Health Integration (NOHI) Within the Maternal and Child Health Safety Net program. The needs assessment poses questions about integration of oral health care and primary care, oral health representation on the executive team, presence of clinical champions, care coordination and other services for oral health, CHC culture, tracking of oral health measures, and other issues related to CHC needs. [Funded by the Maternal and Child Health Bureau]

Contact: National Maternal and Child Oral Health Resource Center, Georgetown University, Washington, DC 20057, E-mail: [email protected] Web Site: https://www.mchoralhealth.org Available from the website.

Keywords: Community health centers, Needs assessment, Oral health, School age children, Service integration

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This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.