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Strengthen the Evidence for Maternal and Child Health Programs

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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 20 (394 total).

Magrab P, Elder J, Kazuk E, Pelosi J, Wiegerink R. n.d.. Developing a community team: A companion to the community workbook for collaborative services to preschool handicapped children. Washington, DC: American Association of University Affiliated Programs for the Developmentally Disabled, 39 pp. (Workbook series for providing services to children with handicaps and their families)

Annotation: This book explains the steps needed to plan and implement collaboration between community programs, agencies and individuals who provides services to children with disabilities and their families. This book was reprinted by the Georgetown University Child Development Center as a part of the Workbook Series for Providing Services to Children with Handicaps and Their Families.

Keywords: Children with special health care needs, Collaboration, Community based services, Interagency cooperation

Pennsylvania Department of Health. n.d.. Local governance leads to strong families and strong communities. Harrisburg, PA: Pennsylvania Department of Health, 20 pp.

Annotation: This report looks at the philosophy of Pennsylvania's "Strong Families/Strong Communities" campaign, which stresses the importance of local governance and community strategies to state initiatives designed to preserve families and strengthen communities. It provides descriptions of state strategies and programs that involve community action designed to improve child and family outcomes.

Contact: Pennsylvania Department of Health, Health and Welfare Building, 625 Forster Street, Eighth Floor West, Harrisburg, PA 17120, Telephone: (877) 724-3258 Web Site: http://www.health.pa.gov Available from the website.

Keywords: Child advocacy, Community based services, Community programs, Families, Family preservation programs, Local initiatives, Outreach

Nelson R. n.d.. Analysis and Expansion of Community-Based Interagency Collaborative Efforts: [Final report]. Iowa City, IA: University of Iowa, 51 pp.

Annotation: This study sought to document, evaluate, and disseminate information about two community-based projects designed as models of collaborative interagency service provision for children and families. The project developed a set of recommendations for collaborative efforts, addressing procedure as well as policy and organization. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-152890.

Keywords: Children with special health care needs, Collaboration, Community-Based Health Care, Family centered, Fragmentation of Services, Health Professionals, Interagency cooperation, community based care

Partridge S. n.d.. PROJECT AIMS [Final report]. Portland, ME: University of Southern Maine, 37 pp.

Annotation: Project AIMS worked to strengthen the capacity of Maine's service system (including P.L. 99-457 efforts) to meet the emotional health needs of young children (birth to 5 years old) and their families. The project objectives were to: (1) Establish a multidisciplinary network of project associates; (2) develop and field-test an emotional health brief assessment tool for children birth to 5 years old; (3) recommend to the service network methods of conducting comprehensive psychosocial assessments of children/families with emotional difficulties; and (4) strengthen treatment services which facilitate attachment, interaction, mastery, and support within families. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-158608.

Keywords: 99-457, Community-Based Health Services, Coordination of Health Care, Data Collection, Early Intervention, Emotional Health, High risk children, High risk groups: Families, L, P, Parent-Child Interaction, Screening Tools

Schaller J. n.d.. The Affiliated Children's Arthritis Centers of New England [Final report]. Boston, MA: New England Medical Center, Department of Pediatrics, 52 pp.

Annotation: The purpose of this project was to improve the health care delivered to children with rheumatic diseases in New England. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-158707.

Keywords: Arthritis, Children with special health care needs, Community based services, Coordinated care, Interdisciplinary teams, Rheumatic diseases

Perrin J. n.d.. Home Care for Chronically Ill Children: Policy Analysis [Final report]. Boston, MA: Massachusetts General Hospital, Wang Ambulatory Care Center, 171 pp.

Annotation: The goal of this project was to improve the knowledge base from which policymakers and program directors make decisions regarding implementation of community-based and home-based services for children with long-term health care needs. Strategies included a literature review, a review of current innovative home and community-based programs, and the dissemination of findings and recommendations by means of publications and a state-of-the-art conference. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB94-106358.

Keywords: Children, Chronically Ill, Community-Based Health Services, Data Collection from, Home-Based Health Care, Primary Care Centers, Technology Dependence

Valentine S. n.d.. Developing Community-Based Family Centered Care/Case Management and Family Support Services for Mississippi's Children with Special Health Care Needs [Final report]. Jackson, MS: Mississippi State Department of Health, 25 pp.

Annotation: This project sought to develop a statewide system of community-based, comprehensive care/case management and family support services. Program strategies included developing a training curriculum for the skilled delivery of home-based family support services by medical professionals, paraprofessionals, and parents; piloting a respite providers' network; providing statewide training on the provision of family support services; and developing and disseminating a statewide directory of trained family support service providers. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-158277.

Keywords: 99-457, Case Management, Chronically Ill, Community-Based Health Care, Coordination of Health Care, Family-Based Health Care, Financing Health Care, Fragmentation of Services, L, P, Parents, Rural Population

Williams S. n.d.. Improving Community-Based Services for Special Needs Children and Their Families in Rural Utah [Final report]. Salt Lake City, UT: Utah Department of Health, 19 pp. pp.

Annotation: The goal of the project was to improve the functioning of special needs children and their families by providing locally based clinic and care coordination services in a rural area in Utah. The program objectives were to: (1) Involve parents of special needs children in developing a service plan for their child, (2) improve the implementation of service plans for rural special needs children, (3) improve coordination of services to rural special needs children, and (4) improve adequacy of services to these children. While maintaining current multidisciplinary clinic services, Children's Special Health Services worked through the local health department to place a nurse coordinator, secretary, social worker, and trained parent advocates in the local community. This team built upon existing local systems to improve the functional outcomes of the children. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB97-121834.

Keywords: Access to Health Care, Advocacy, Children with Special Health care Needs, Chronic Illnesses and Disabilities, Community Based Health Services, Parents, Rural Population, Service Coordination

Danielson C. n.d.. Healthy Foundations [Final report]. Des Moines, IA: Iowa Department of Public Health, 51 pp.

Annotation: The project's goals were to: (1) Develop and implement structures and processes in defined community areas to plan and implement a family-centered, community-based health care delivery system for children; (2) develop data system capacity and function statewide to ensure family-centered, community-based primary care services for children; and (3) share experiences in family-centered, community-based system change in the area of primary health care for children with other State, regional, and national maternal and child health providers. At the State level, strategies were directed toward developing a system of children's primary health care delivery that was family centered and community based. At the local level, child health steering committees in established projects were to continue to plan and implement child health system changes in their service areas. [Funded by the Maternal and Child Health Bureau]

Keywords: Access to Health Care, Child Mortality, Community Based Health Services, Databases, Family Centered Health Care, Information Systems, Primary Care, Standards of Care, State Programs

Dimperio D. n.d.. Interconceptional Support of Women at High Risk for Low Birthweight [Final report]. Gainesville, FL: North Central Florida Maternal and Infant Care Project, 36 pp.

Annotation: The goal of this project was to reduce the incidence of low birthweight by improving the preconceptional health of women who were at high risk for delivering a low birthweight infant. High-risk women were identified at delivery and were followed for 2 years. Client services were then provided by community health workers, who made home visits and developed a risk reduction plan for each client. Intervention protocols were developed for each risk factor and involved referral to the appropriate resource, followup to ensure client compliance, and reinforcement of professional counseling or supplemental teaching. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-196848.

Keywords: Community-Based Health Services, Florida, High risk groups, High risk mothers, High risk pregnancy, Indigent Patients, Infant Mortality, Intervention, Low Birthweight, WIC Program

Langley M. n.d.. Continuum's Minority Connection Project [Final report]. Atlanta, GA: CONTINUUM Alliance for Healthy Mothers and Children, 32 pp.

Annotation: This project aimed to reduce postneonatal mortality rates associated with inadequate parenting skills and poor utilization of prenatal and child health care services. Activities included establishment of a resource mothers program in which church women were trained to assist pregnant women in negotiating the health care and social services systems, and implementation of a teen peer counselor program. The project also established self-sustaining local coalitions to monitor and address problems that contribute to poor pregnancy outcomes. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-196889.

Keywords: Access to Health Care, Adolescents, Blacks, Clergy, Community-Based Health Services, High risk groups, High risk pregnancy, Infant Mortality, Low income groups, Postneonatal Mortality, Pregnant Women, Prenatal Care, Religious organizations, Rural Populations

Hannan C, Espinoza L. 2024. Statement on the evidence supporting the safety and effectiveness of community water fluoridation. Atlanta, GA: Centers for Disease Control and Prevention, 4 pp.

Annotation: This statement focuses on the safety and benefits of community water fluoridation (CWF). Contents include evidence showing that CWF programs are an effective, cost-saving, and safe intervention for preventing tooth decay and promoting oral health across the lifespan. The effectiveness of CWF compared with other methods of fluoride delivery is discussed, along with the return on investment of CWF, both for families and for the health care system as a whole. Risks that may accompany CWF are addressed.

Contact: Centers for Disease Control and Prevention, 1600 Clifton Road, Atlanta, GA 30329-4027, Telephone: (800) 232-4636 Secondary Telephone: (888) 232-6348 E-mail: [email protected] Web Site: http://www.cdc.gov Available from the website.

Keywords: Community based services, Cost effectiveness, Disease prevention, Fluorides, Life course, Oral health, Safety, Water

Association of University Centers on Disabilities, National Association of Councils on Developmental Disabilities, National Disability Rights Network. 2021-. HCBS advocacy. Silver Spring, MD: Association of University Centers on Disabilities, multiple items.

Annotation: This website provides a platform for the aging and disability communities to post information and resources about the home and community-based services (HCBS) settings rule and steps each state is making to comply with the rule. Contents include resources, dates and deadlines, documents, news, and other information organized by state. Additional contents include official resources and information from the federal government about the HCBS rule including guidance and a settings requirements and compliance toolkit.

Contact: Association of University Centers on Disabilities, 1010 Wayne Avenue, Suite 1000, Silver Spring, MD 20910, Telephone: (301) 588-8252 Fax: (301) 588-2842 E-mail: [email protected] Web Site: http://www.aucd.org Available from the website.

Keywords: Advocacy, Community based services, Compliance, Disabilities, Federal legislation, Guidelines, Information sources, Medicaid, Networking, Public private partnerships, Transition planning

Community Preventive Services Task Force. 2021. Methods manual for Community Guide systematic reviews. Atlanta, GA: Community Preventive Services Task Force, Community Guide, 38 pp.

Annotation: This manual provides a comprehensive overview of the Community Guide systematic review methods that serve as the basis for Community Preventive Services Task Force (CPSTF) recommendations and findings. The manual was developed to broadly explain how the CPSTF and the Community Guide Office conduct the Community Guide reviews. The manual is divided into two parts that include links to sample materials and full-text publications for more information. Part one describes the ten steps in the effectiveness review process; part two outlines the nine steps in the economic review process.

Contact: Community Preventive Services Task Force, Centers for Disease Control and Prevention, Community Guide Branch, 1600 Clifton Road, N.E., MSE69, Atlanta, GA 30329, Telephone: (404) 498-6595 E-mail: [email protected] Web Site: https://www.thecommunityguide.org/task-force/community-preventive-services-task-force-members

Keywords: Community based services, Community programs, Evaluation methods, Model programs, Program evaluation, Research reviews

Shawky H; Orange County Perinatal Mood and Anxiety Disorder Collaborative Steering Committee. 2021. Orange County perinatal mental health toolkit. First 5 Orange County Children's and Family Commission , 54 pp.

Annotation: This Orange County, California toolkit contains local resources, evidence-based tools, and recommendations to assist healthcare and service providers in offering perinatal mental health education, preventive interventions, screening, referrals, and treatment for new and expecting parents. Mental health and substance use screening tools, referral pathways, links to online training for professionals , information on mental health insurance coverage, and parent handouts in English, Spanish, Chinese, and Vietnamese are among the tools provided.

Contact: First 5 Orange County , Children & Families Commission of Orange County , 1505 E 17th Street, Suite 230, Santa Ana, CA 92705, Telephone: (714) 834-5310 E-mail: [email protected] Web Site: https://first5oc.org/

Keywords: Community based services, Maternal mental health, Mental health services, Parent support services, Perinatal care, Perinatal services, Resources for professionals, Screening

Williams E, and Musumeci MB. 2021. Children with Special Health Care Needs: Coverage, Affordability, and HCBS Access. Menlo Park, CA: Henry J. Kaiser Family Foundation,

Annotation: This issue brief describes key characteristics of children with special health care needs and explores insurance affordability, adequacy of coverage, and benefits for children covered by Medicaid/CHIP compared to those with private insurance only. The brief provides a context for ongoing policy discussions around additional investments in Medicaid, including home and community-based services (HCBS), for children with special health care needs.

Contact: Henry J. Kaiser Family Foundation, 2400 Sand Hill Road, Menlo Park, CA 94025, Telephone: (650) 854-9400 Secondary Telephone: (202) 347-5270 Fax: (650) 854-4800 Web Site: http://www.kff.org

Keywords: Children with special health care needs, Community based services, Health care costs, Health insurance, Home care, Medicaid, Public assistance, Special health care services, Statistics

National Association of County and City Health Officials; United States Breastfeeding Committee. . 2021. The continuity of care in breastfeeding support blueprint . Washington, DC: National Association of County and City Health Officials,

Annotation: This resource povides information on breastfeeding barriers and support services centered on the needs of populations disproportionately impacted by structural barriers that lead to low rates of breastfeeding. The resource underscores the importance of breastfeeding support services that are continuous, accessible, and coordinated, and provides recommendations and strategies that are consistently supportive of chest/breastfeeding families. The targetedd audience is local-level organizations and individuals that interacts with pregnant and postpartum families.

Contact: National Association of County and City Health Officials, 1100 17th Street, N.W., Seventh Floor, Washington, DC 20036, Telephone: (202) 783-5550 Fax: (202) 783-1583 E-mail: [email protected] Web Site: http://www.naccho.org

Keywords: Barriers, Breast feeding promotion, Community based services, Lactation management, Public health

Bakst C, Moore JE, George KE, Shea K. 2020 . Community-based maternal support services: The role of doulas and community health workers in Medicaid. Washington, DC: Institute for Medicaid Innovation , 23 pp.

Annotation: This report explores how community-based maternal support services provided by community-based doulas and maternity community health workers can improve maternal health outcomes. It also highlights the results of a national environmental scan of organizations that are actively working toward eliminating maternal health disparities and building community connections through the community-based maternal support model. Common barriers to implementing this model are identified, and opportunities for Medicaid stakeholders to provide support and increased access to these services are highlighted.

Contact: Institute for Medicaid Innovation, 1150 18th Street, N.W., Suite 1010, Washington, DC 20036, E-mail: [email protected] Web Site: http://www.medicaidinnovation.org

Keywords: , Barriers, Childbirth, Community based services, Maternal health, Medicaid, Model programs, Public health, Risk factors, Social support, initiatives

Spain AK, Anderson M, McCrae JS. 2020. Getting connected: Referrals for family support in early childhood. Chicago, IL: Chapin Hall at the University of Chicago, 9 pp.

Annotation: This brief reports on the functions of a central referral system, the Help Me Grow model, as a resource for families, community-based organizations, and health care providers to connect families to a variety of services and local resources that benefit young children. Based on interviews and focus groups with parents, pediatric primary care providers, community providers, and Help Me grow local staff, the brief offers perspectives on first steps in the referral process, identifying needs, and asking for help. It is one in a series of briefs evaluating community approaches to preventing or mitigating toxic stress.

Contact: Chapin Hall at the University of Chicago, 1313 East 60th Street, Chicago, IL 60637, Telephone: (773) 753-5900 Fax: (773) 753-5940 Web Site: http://www.chapinhall.org

Keywords: Community based services, Families, Models, Referrals, Service delivery systems, Social support, Young children

National Partnership for Women and Families. 2019. Tackling maternal health disparities: A look at four local organizations with innovative approaches . Washington, DC: National Partnership for Women and Families, 18 pp.

Annotation: This issue brief highlights four community-based maternal care programs from across the country and describes how these model programs can help reduce maternal health disparities. The brief includeds background information, a description of the care model, and outcome measures for each of the model programs and offers recommendations to support and expand such programs.

Contact: National Partnership for Women and Families, 1875 Connecticut Avenue, N.W., Washington, DC 20009, E-mail: [email protected] Web Site: http://www.childbirthconnection.org

Keywords: Community based services, Community programs, Health care disparities, Health equity, Initiatives, Maternal health, Models , Perinatal care

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This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.