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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.

Displaying records 1 through 18 (18 total).

American Academy of Pediatrics. 2019. Autism: Caring for children with autism spectrum disorders—A practical resource toolkit for clinicians, 3rd ed.. Elk Grove Village, IL: American Academy of Pediatrics,

Annotation: This digital toolkit assists clinicians in the recognition, diagnosis, and management of children with autism spectrum disorders (ASDs) across the life span. It contains American Academy of Pediatrics autism clinical reports and policy statements and expert ASD screening, surveillance, diagnosis, treatment, and referral guidelines. Fact sheets are provided along with coding and billing guidance, and a webinar with video and slides for additional clinician use. Family handouts, in English and Spanish, that discuss diagnosis, transition, financial assistance for families, school inclusion, medical home, adolescents and sexuality, teaching social skills, and child wandering are included.

Contact: American Academy of Pediatrics, 345 Park Boulevard, Itasca, IL 60143, Telephone: (630) 626-6000 Secondary Telephone: (847) 434-4000 Fax: (847) 434-8000 Web Site: https://www.aap.org Order from the website for a charge. Document Number: ISBN 978-1-61002-363-4.

Keywords: , Clinical coding, Adolescent development, Adolescents, Autism, Child development disorders, Children, Communication disorders, Developmental disabilities, Diagnosis, Psychosexual development, Psychosocial development, Resources for professionals, Screening, Spanish language materials, Special health care needs

Stredler Brown A, Kahn G, Houston T, DeMoss W, Quigley S, Hamren K, Peters Lalios A, Kravit D, Olsen S, Blaiser K, Edwards M, Behl D, White K, Callow-Heusser C, Ladner D. 2012-. A practical guide to the use of tele-intervention in providing listening and spoken language services to infants and toddlers who are deaf or hard of hearing. Logan, UT: National Center for Hearing Assessment and Management, 1 v.

Annotation: This resource guide provides information to programs and individuals interested in using tele-intervention (TI) to provide family-centered early intervention to families of children who are deaf/hard of hearing who have chosen a spoken language outcome. Topics include benefits and challenges, implementation of TI sessions, technology to support TI, privacy and security considerations, licensing issues, evaluating TI outcomes, and reimbursement issues for TI. Video examples and a list of related publications and resources are included.

Contact: National Center for Hearing Assessment and Management, Utah Sate University, 2615 Old Main Hill, Logan, UT 84322, Telephone: (435) 797-3584 Web Site: http://www.infanthearing.org Available from the website.

Keywords: Communication, Deafness, Early intervention, Hearing disorders, Infants, Language barriers, Language development, Language therapy, Service delivery, Telecommunication devices, Telemedicine

National Institute on Deafness and Other Communication Disorders. 2012. Communication problems in children with autism spectrum disorder (upd. ed.). Bethesda, MD: National Institute on Deafness and Other Communication Disorders, 4 pp. (NIDCD fact sheet)

Annotation: This fact sheet provides information about autism and communication. The fact sheet answers the following questions: (1) what is autism spectrum disorder (ASD)?, (2) who is affected by ASD?, (3) how does ASD affect communication?, (4) how are the speech and language problems of ASD treated?, (6) what research is being conducted to improve the communication in children with ASD?, and (7) where can I get more information?

Contact: National Institute on Deafness and Other Communication Disorders Information Clearinghouse, One Communication Avenue, Bethesda, MD 20892-3456, Telephone: (800) 241-1044 Secondary Telephone: (800) 241-1055 Fax: (301) 770-8977 E-mail: [email protected] Web Site: http://www.nidcd.nih.gov/Pages/default.aspx Available from the website. Document Number: NIH Pub. No. 12-4315.

Keywords: Autism spectrum disorders, Communication, Communication disorders, Developmental disabilities, Language disorders, Research, Speech disorders, Treatment

Gruttadaro D, Markey D. 2011. The family experience with primary care physicians and staff. Arlington, VA: National Alliance on Mental Illness, 14 pp.

Annotation: This report focuses on the experiences of parents and caregivers of children and adolescents living with mental illness related to discussing mental health concerns about their child with primary care physicians and staff. Topics include demographics, background information, primary care setting, initiating communication, effective communication and dialogue, and actions steps.

Contact: National Alliance on Mental Illness, 3803 N. Fairfax Drive, Suite 100, Arlington, VA 22203, Telephone: (703) 524-7600 Secondary Telephone: (800) 950-6264 Fax: (703) 524-9094 E-mail: [email protected] Web Site: http://www.nami.org Available from the website.

Keywords: Adolescent mental health, Child mental health, Communication, Mental disorders, Parent professional relations, Parents, Primary care

National Center on Birth Defects and Developmental Disabilities, Early Hearing Detection and Intervention Program. [2008]. Decision guide to communication choices. [Atlanta, GA: National Center on Birth Defects and Developmental Disabilities, Early Hearing Detection and Intervention Program], 2 p.

Annotation: This pamphlet for parents of a child who is deaf or hard of hearing helps guide parents through the steps of deciding which communication method(s) are best for their child. Steps include (1) finding a starting point, (2) identify and explore decision-making needs, and (3) plan next steps based on needs. Forms and tables to help with the process are included.

Contact: National Center on Birth Defects and Developmental Disabilities, Early Hearing Detection and Intervention Program, 1600 Clifton Road, Mailstop E-88, Atlanta, GA 30333, Telephone: (404) 498-3032 Secondary Telephone: (800) 232-4636 Fax: (404) 498-3060 E-mail: [email protected] Web Site: https://www.cdc.gov/ncbddd/hearingloss/ehdi-programs.html Available at no charge; also available from the website.

Keywords: Children, Communication, Consumer education materials, Deafness, Facilitated communication, Hearing disorders

National Center on Birth Defects and Developmental Disabilities, Early Hearing Detection and Intervention Program. [2005]. A parent's guide to hearing loss: Choices available for families of children with hearing loss. Atlanta, GA: National Center on Birth Defects and Developmental Disabilities, Early Hearing Detection and Intervention Program, 1 CD-ROM.

Annotation: This CD-ROM, which is intended for parents of children with newly diagnosed hearing loss, provides information about hearing loss and communication options. The CD-ROM answers questions frequently asked by parents, such as at what age parents should teach their child language, what is a cochlear implant, when is a child old enough for a cochlear implant or other assistive device, how to communicate with a child with hearing loss, and where to go for answers. The CD-ROM also includes information about programs and services for children with hearing loss.

Contact: National Center on Birth Defects and Developmental Disabilities, Early Hearing Detection and Intervention Program, 1600 Clifton Road, Mailstop E-88, Atlanta, GA 30333, Telephone: (404) 498-3032 Secondary Telephone: (800) 232-4636 Fax: (404) 498-3060 E-mail: [email protected] Web Site: https://www.cdc.gov/ncbddd/hearingloss/ehdi-programs.html Available from the website.

Keywords: CD-ROMS, Child health, Communication, Consumer education materials, Diagnosis, Hearing disorders, Infant health

National Center on Birth Defects and Developmental Disabilities, Early Hearing Detection and Intervention Program. 2005. Just in time for families: Early hearing detection and intervention (EHDI). Atlanta, GA: National Center on Birth Defects and Developmental Disabilities, Early Hearing Detection and Intervention Program, 25 pp.

Annotation: This booklet provides an overview of the early hearing detection and intervention (EHDI)process, including screening before ages 1, 3 and 6 months; communication choices for families with infants who have hearing loss; and working with the infant's health care provider. A list of Web sites for more information is included. It is available in English and in Spanish.

Contact: National Center on Birth Defects and Developmental Disabilities, Early Hearing Detection and Intervention Program, 1600 Clifton Road, Mailstop E-88, Atlanta, GA 30333, Telephone: (404) 498-3032 Secondary Telephone: (800) 232-4636 Fax: (404) 498-3060 E-mail: [email protected] Web Site: https://www.cdc.gov/ncbddd/hearingloss/ehdi-programs.html Available at no charge; also available from the website.

Keywords: Consumer education materials, Communication, Deafness, Hearing disorders, Hearing screening, Infants, Parent professional relations, Spanish language materials

National Center on Birth Defects and Developmental Disabilities, Early Hearing Detection and Intervention Program. 2005. Just in time for pediatric primary care providers: Early hearlng detection and intervention (EHDI). Atlanta, GA: National Center on Birth Defects and Developmental Disabilities, Early Hearing Detection and Intervention Program, 25 pp.

Annotation: This booklet provides an overview of the EHDI process, the timing or care before1, 3, and 6 months of age, communication choices, the primary care provider's role as a medical home,and risk factors for hearing loss. A list of Web sites for further information is included.

Contact: National Center on Birth Defects and Developmental Disabilities, Early Hearing Detection and Intervention Program, 1600 Clifton Road, Mailstop E-88, Atlanta, GA 30333, Telephone: (404) 498-3032 Secondary Telephone: (800) 232-4636 Fax: (404) 498-3060 E-mail: [email protected] Web Site: https://www.cdc.gov/ncbddd/hearingloss/ehdi-programs.html Available at no charge; also available from the website.

Keywords: Communication, Deafness, Hearing disorders, Hearing screening, Infants, Parent professional relations

Minnesota Department of Health, Community and Family Health Division. 2005. Minnesota guidelines of care for families with children who have a hearing loss: A guide to information and resources. St. Paul, MN: Community and Family Health Division, Minnesota Department of Health, 91 pp.

Annotation: These guidelines, which are intended as a resource tool for Minnesota families with a child who is deaf or has hearing loss, contain information about hearing, hearing loss, and medical and educational interventions; child development; tips for parents; definitions; and resources. The guidelines provide information about connecting with other families of children with hearing loss, understanding clinical procedures and health professionals' roles, choosing communication methods, understanding and finding services, locating financial assistance and insurance coverage, accessing educational services, understanding parents' and children's rights, and finding support systems and programs. [Funded in part by the Maternal and Child Health Bureau]

Contact: Minnesota Department of Health, Division of Community and Family Health, MN Telephone: (651) 201-3589 E-mail: [email protected] Web Site: http://www.health.state.mn.us/divs/cfh/program/cfh Available from the website.

Keywords: Child development, Children, Children', Communication, Deafness, Educational programs, Families, Family support programs, Guidelines, Health care services, Health insurance, Hearing disorders, Intervention, Parent rights, s rights

Academy for Educational Development. 2005. Opening doors: Technology and communication options for children with hearing loss. Washington, DC: U.S. Office of Special Education and Rehabilitative Services, 8 pp.

Annotation: This brochure for parents of children with hearing loss is designed to help parents connect with services and groups that can help. The brochure provides facts about hearing loss in infants and children, discusses early intervention, and provides information about where to turn, about technological innovations that can help infants and children with hearling loss, and about exploring communication options. A list of groups that can help parents of children with hearing loss, along with contact information, is included.

Contact: U.S. Office of Special Education and Rehabilitative Services, Department of Education, , 400 Maryland Avenue, S.W., Washington, DC 20202-7100, Telephone: (202) 245-7468 Secondary Telephone: (800) 872-5327 Fax: E-mail: [email protected] Web Site: http://www.ed.gov/about/offices/list/osers/index.html Available from the website.

Keywords: Children with special health care needs, Communication, Consumer education materials, Early intervention, Health services, Hearing disorders, Infants with special health care needs, Support groups

Reyes C, Van de Putte L, Falcón AP, Levy RA. 2004. Genes, culture, and medicines: Bridging gaps in treatment for Hispanic Americans. Washington, DC: National Alliance for Hispanic Health, 32 pp.

Annotation: This report brings together a growing body of scientific research demonstrating substantial disparities in pharmaceutical therapy for Hispanic Americans. The report discusses disparities in relation to asthma and Hispanic children, mental illness, and status of research; genetics and individualized response to drugs in Hispanics in relation to asthma, diabetes, heart attack, and Alzheimers disease; clinical implications of variations in genes regulating drug metabolism; undertreatment of coexisting conditions; and communication, culture, and implications of optimal pharmaceutical care. Statistical information is presented in figures throughout the report. The report includes conclusions, recommendations, and references.

Contact: National Alliance for Hispanic Health, 1501 16th Street, N.W., Washington, DC 20036-1401, Telephone: (202) 387-5000 Secondary Telephone: (866) 783-2645 Fax: E-mail: Web Site: http://www.hispanichealth.org Available from the website.

Keywords: Alzheimers disease, Asthma, Children, Communication, Cultural factors, Culture, Diabetes, Drug therapy, Genetics, Heart diseases, Hispanic Americans, Mental disorders, Pharmaceuticals, Research, Treatment

U.S. Maternal and Child Health Bureau, Division of Research, Training and Education. 2000. Maternal and child health training program: [Fact sheets]. Rockville, MD: U.S. Maternal and Child Health Bureau, Division of Research, Training and Education, 15 pp.

Annotation: These fact sheets describe the fifteen leadership training programs in maternal and child health. The training programs are in the following areas: continuing education and development, social work, pediatric occupational therapy, pediatric physical therapy, graduate medical education in historically black colleges and universities, adolescent health, maternal and child health leadership education in neurodevelopmental and related disabilities, behavioral pediatrics, nursing, schools of public health, pediatric pulmonary centers, the maternal and child health training program, nutrition, communication disorders, and pediatric dentistry. [Funded by the Maternal and Child Health Bureau]

Keywords: Adolescent health, Behavioral sciences, Blacks, Communication disorders, Continuing education, Graduate education, Leadership training, Lung diseases, MCH training programs, Medical education, Neural development, Nursing, Nutrition, Pediatric dentistry, Pediatric occupational therapy, Physical therapy, Public health education, Social work

U.S. Maternal and Child Health Bureau. 1997. Maternal and Child Health Center for Leadership in Communication Disorders Education: Application kit for CFDA 93.110TC—Application guidance, including form PHS-6025-1. Rockville, MD: U.S. Maternal and Child Health Bureau, 25 pp.

Annotation: This document explains the communications disorders education grant application process. It includes Bureau directives, lists specific requirements and program elements for an MCH center for leadership in communication disorders education, and explains the application process. Appendices include additional instructions and guidelines. [Funded by the Maternal and Child Health Bureau]

Contact: Maternal and Child Health Library at Georgetown University, E-mail: [email protected] Web Site: https://www.mchlibrary.org Available from the website.

Keywords: Applications, Audiologists, Communication disorders, Federal grants, Graduate education, Leadership, MCH training programs, Speech pathologists

Munson JH, Nordquist CL, Thuma-Rew SL. 1987. Communication systems for persons with severe neuromotor impairment: An Iowa interdisciplinary approach. Iowa City, IA: University Hospital School, Division of Developmental Disabilities, 253 pp.

Annotation: This monograph describes the current approach to nonoral communication at the University Hospital School in Iowa City, a diagnostic/short-term rehabilitation facility, with emphasis on the methods they find most useful in developing functional interaction with nonspeaking individuals. Specific topics include preliminary nonoral communication criteria, neuromotor impairment affecting speech, positioning and communication, evaluation and selection of systems, developing interaction abilities, integrating communication systems into the classroom, and single subject designs. Case studies are also presented. [Funded by the Maternal and Child Health Bureau]

Keywords: Assistive devices, Cerebral palsy, Child health, Communication disorders, Disabilities, Motor skills, Special health care needs

1975. Program planning in MCH and CC: Bi-regional conference, regions 9 and 10, October 29-31, 1975, Seattle, Washington. No place: No publisher, 130 pp.

Annotation: These proceedings of a conference sponsored by the Maternal and Child Health Service and the MCH Program at the University of California School of Public Health at Berkeley discusses requirements of the state MCH plans and plans for children with special health needs (CSHN) and developmental disabilities. The federal viewpoint is discussed, followed by discussion of the potential for the future of state MCH and CSHN plans; a proposed model for data required in state-level MCH and CSHN planning; responsibility and accountability; the communicative disorders program in Alaska; the maternity and infant care project in Idaho; the Children and Youth Project experience in Hawaii; the Washington state MCH program; medical eligibility, case finding, and quality control in CSHN programs; the identity crisis facing CSHN; national planning for MCH and CSHN; issues in national health insurance; and national health insurance and the health care of mothers and children. [Funded by the Maternal and Child Health Bureau]

Keywords: Alaska, Child health, Child health programs, Children and Youth Projects, Children with developmental disabilities, Children with special health care needs, Communication disorders, Conferences, Federal legislation, Hawaii, Health insurance, Idaho, Maternal health, State MCH programs, Washington

Daniel WA. 1970. The adolescent patient. Saint Louis, MO: C.V. Mosby, 444 pp.

Annotation: This book offers guidelines for dealing with adolescent patients based on a philosophy of comprehensive care. The author surveys the adolescent's development, role in society, health needs and major medical problems, sex education, substance abuse, rock-related deafness, obesity, skin problems, sexually transmitted diseases, communication problems, and rehabilitation.

Keywords: Adolescent development, Adolescent health, Adolescent medicine, Communication disorders, Deafness, Obesity, Sexuality education, Sexually transmitted diseases, Skin rashes, Substance abuse

Hardy WG, ed. 1970. Communication and the disadvantaged child. Baltimore, MD: Williams and Wilkins, 195 pp.

Annotation: This is a collection of papers presented at a conference held at the Johns Hopkins Medical Institutions, June 16-18, 1969, sponsored by the Children's Bureau. These papers discuss biologic and social aspects of communicative problems, communication and academic achievement in inner city children, the pediatric generalist and defective communication skills, the reflections of a special educator, the approach of the state of Maryland to meeting its responsibilities in child care, a family child care program, a training session presented by three child care mothers of the Family Day Care Program Friends' Association for Children, a mandate for change in child care programs, the philosophy and attitudes of the Children's Bureau regarding communication disorders, early language programming for preschool culturally disadvantaged children in child care settings, and a community program for child development. [Funded by the Maternal and Child Health Bureau]

Keywords: Child care, Child development, Children, Children', Communication disorders, Cultural factors, Education, Family child care, Inner city, Language development, Maryland, Poverty, s Bureau

American Public Health Association, Program Area Committee on Child Health, and U.S. Children's Bureau. 1967. Services for children with communicative disorders: A guide for public health personnel. New York, NY: American Public Health Association, 61 pp.

Annotation: This guide defines communicative disorders to include hearing, speech, and language impairments. It discusses the nature and size of the problem; case finding and prevention; diagnosis and causes; prevention, treatment, and training; organization and administration; and research. An appendix lists national organizations with special interest in problems of hearing and speech. A selected bibliography is provided.

Contact: Maternal and Child Health Library at Georgetown University, E-mail: [email protected] Web Site: https://www.mchlibrary.org Available from the website.

Keywords: Communication disorders, Hearing disorders, Language disorders, Public health services, Speech disorders
   

This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.