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Strengthening the evidence for maternal and child health programs

Search Results: MCHLine

Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 20 (277 total).

Bronheim S, Fiel S, Schidlow D, MagrabP, Boczar K, Dillon C. n.d.. Crossings: A manual for transition of chronically ill youth to adult health care. Harrisburg, PA: Pennsylvania Department of Health, 52 pp.

Annotation: This manual is intended as a guide for health professionals to establish a new health care delivery system for transitioning adolescents with chronic illness to adult health care. Health professionals learn about eight objectives: exploring one's commitment to transition, identification of initial partners; securing institutional support; assuring economic feasibility, developing a structure, developing a successful partnership, and achieving a successful transfer of patients. A self-assessment form is included.

Contact: Georgetown University Center for Child and Human Development, Box 571485, Washington, DC 20057-1485, Telephone: (202) 687-5503 Secondary Telephone: (202) 687-5000 Fax: (202) 687-8899 E-mail: gucdc@georgetown.edu Web Site: http://gucchd.georgetown.edu Price unknown.

Keywords: Access to health care, Adolescents with special health care needs, Chronic illnesses and disabilities, Health services, Special health care needs, Transition planning, Transitions, Young adults

Simmons E. n.d.. Youth in Transition—The Alabama Experience: [Final report]. Montgomery, AL: Alabama Department of Education, 32 pp.

Annotation: This project focused on developing a systematic approach to integrate medical, vocational, educational, psychosocial, and developmental services for adolescents with physical disabilities and/or chronic illness who are at risk in their transition to maturity. Project objectives were to (1) create an administrative structure at the State level and in two pilot sites for provision of an integrated continuum of health and education services; (2) enable service providers, through training and collaboration, to coordinate service planning for the target population; (3) enable the adolescent and family, through counseling and training, to function as their own "case manager"; and (4) monitor and evaluate the model to determine the feasibility for replication in Alabama and/or other states. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-147031.

Keywords: Adolescents with special health care needs, Advocacy, Chronic illnesses and disabilities, Community-Based Health Care, Coordination of Health Care, Data Bases, Interdisciplinary Teams, Rural Population, Urban Population

Freedman S. n.d.. Case Management Information/Consultation Base for Services to Children with Chronic Illnesses and Disabilities: [Final report]. Gainesville, FL: Institute for Child Health Policy, 49 pp.

Annotation: The goals of this project were to disseminate information and to provide technical assistance on case management services for children with special health care needs and their families. The project served organizations engaged in the design, implementation, and assessment of case management activities. Activities included the collection of documents, the creation of a case management database, an analysis of case management services, and the development of a working paper "Focus and Functions of Case Management." [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-147106.

Keywords: Case Management, Chronic illnesses and disabilities, Data Bases, Data Collection

Nelson R. n.d.. CHSC Parent Partnership Project: [Final report]. Iowa City, IA: University of Iowa , 46 pp.

Annotation: This project sought to strengthen family-centered care for Iowa children with special health care needs by expanding parent participation in CHSC services development, by creating a statewide parent consultant network, and by enhancing community opportunities for parents to meet with one another and with professionals in a family-oriented experience. Program plans included an annual statewide issues forum; a regional parent consultant network composed of 2 parents from each of the 13 CHSC service regions; and family enrichment weekends designed to bring together parents and children for discussion, reflection, and recreation. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-146777.

Keywords: Chronic illnesses and disabilities, Developmental disabilities, Families, Family-Centered Health Care, Parent Networks, Parent-Professional Communication, Parents

Gates A. n.d.. Interagency Home Care Model for Ventilator Assisted Individuals in Louisiana: [Final report]. New Orleans, LA: Children's Hospital, 17 pp.

Annotation: This project developed a model for care and services, a services resource network and coordinated education and training resources. The project worked with over 40 families, published a book, Homeward Bound: Resources for Living at Home with a Chronically Ill Child, and produced training videotapes for health care providers. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-152957.

Keywords: Chronic illnesses and disabilities, Dependence, Home-Based Health Care, Technology, Ventilator Dependence

Force J. n.d.. Project Copernicus [Final report]. Baltimore, MD: Maryland Department of Health and Mental Hygiene, 15 pp.

Annotation: Project Copernicus, a dual-State initiative for Maryland and Virginia, developed, demonstrated, and evaluated training programs in family-centered service coordination with target groups of professional service providers and parents in urban, rural, and suburban areas of Maryland and Virginia. Project Copernicus demonstrated how to provide family-centered care for families with children with special health needs by assisting both parents and professional service providers to develop and use family-centered service coordination activities (case management). [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB97-121859.

Keywords: Access to Health Care, CSHCN, Case Management, Chronic illnesses and disabilities, Coordination of Health Care, Disabled, Education of Health Professionals, Families, Family-Centered Health Care, Fragmentation of Services, Parent Education, Parents, programs

Epstein S. n.d.. New England SERVE: A Planning Network for Children with Special Health Care Needs [Final report]. Boston, MA: Massachusetts Health Research Institute, 29 pp.

Annotation: This network fostered collaboration among State programs for children with special health needs in New England. Activities included documenting quality assurance and monitoring activities; reviewing existing standards of care and developing new standards; facilitating interagency and public/private cooperation; and publishing the New England Status Report which covered legislation and program initiatives. The most concrete outcome has been the publication of Enhancing Quality: Standards and Indicators of Quality Care for Children with Special Health Care Needs. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-158681.

Keywords: Chronic illnesses and disabilities, Coordination of Health Care, Networking

Henry W. n.d.. PATHFINDER: A Project to Improve Systems of Care for Children with Chronic Health Conditions [Final report]. St. Paul, MN: Pathfinder Resources, Inc., 28 pp.

Annotation: This project sought to improve information sharing among public agencies, third-party payers, special projects of regional and national significance (SPRANS), and employers in Minnesota. Activities included an annual invitational workshop; technical assistance; a quarterly newsletter; a continuing education center; and the guidelines, *How to Develop a Community Network.* [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-163549.

Keywords: Chronic illnesses and disabilities, Community-Based Health Care, Continuing Education, Coordination of Health Care, Families, Financing Health Care, Medicaid, Networking

Sherman B. n.d.. Home-Based Support Services for Chronically Ill Children and Their Families [Final report]. Albany, NY: New York State Department of Health, 35 pp.

Annotation: This project sought to demonstrate that a system of reimbursable, cost-effective, home-based support services can be implemented for families with chronically ill children. The project objectives were to facilitate the provision of home-based care for chronically ill children through the following activities: (1) Developing a regional network of medically skilled respite providers; (2) establishing self-help mutual support groups for chronically ill children and their parents and siblings; (3) training professionals, paraprofessionals, and volunteers; and (4) disseminating project findings and recommendations. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-158699.

Keywords: Arthritis, Asthma, Bronchopulmonary Dysplasia, Chronic illnesses and disabilities, Congenital Heart Disease, Cystic Fibrosis, Families, Feeding Disorders, Hemophilia, Home-Based Health Care, Kidney Disease, Leukemia, Low income groups, Muscular Dystrophy, Nurses, Respiratory Technologies, Respite Care, Sick Kids (Need) Involved People (SKIP), Sickle Cell Disease, Support Groups, Tay-Sachs Disease, Ventilator Dependence

Williams S. n.d.. Improving Community-Based Services for Special Needs Children and Their Families in Rural Utah [Final report]. Salt Lake City, UT: Utah Department of Health, 19 pp. pp.

Annotation: The goal of the project was to improve the functioning of special needs children and their families by providing locally based clinic and care coordination services in a rural area in Utah. The program objectives were to: (1) Involve parents of special needs children in developing a service plan for their child, (2) improve the implementation of service plans for rural special needs children, (3) improve coordination of services to rural special needs children, and (4) improve adequacy of services to these children. While maintaining current multidisciplinary clinic services, Children's Special Health Services worked through the local health department to place a nurse coordinator, secretary, social worker, and trained parent advocates in the local community. This team built upon existing local systems to improve the functional outcomes of the children. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB97-121834.

Keywords: Access to Health Care, Advocacy, Children with Special Health care Needs, Chronic Illnesses and Disabilities, Community Based Health Services, Parents, Rural Population, Service Coordination

Hostler S. n.d.. Family Autonomy Project [Final report]. Charlottesville, VA: University of Virginia, 50 pp.

Annotation: The goal of this project was to ensure the successful transition to adulthood of adolescents with physical disabilities or chronic illnesses by means of interventions with families, the health care team, and the adolescents themselves. The project sought to encourage the involvement of families in planning for the health care of their children, to modify staff behaviors and institutional practices to promote family autonomy, and to broaden treatment goals so that they included health maintenance and future planning for adolescents with special needs. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-196962.

Keywords: ., Adolescents with special health care needs, Advocacy, Chronic illnesses and disabilities, Families, Family-Centered Health Care Transition, Support Groups

Camic N. n.d.. Families in the Changing Health Care Marketplace [Final report]. Madison, WI: Center for Public Representation, 21 pp.

Annotation: The goal of this project was to assist in the formation of a collaborative effort involving the government, providers, private payers, and families in order to reconcile the operational difficulties of achieving health care cost containment while retaining quality, access, and family-centeredness. The project sought to: develop approaches to health care financing that are sensitive to the needs of families with children who have special health care needs; assist families with special health care needs in dealing with financial problems which pose barriers to obtaining appropriate health services; and disseminate information regarding financing of care for children with special health care needs. Family health benefits counselors assisted approximately 1600 over the course of the project by conducting intake interviews, informing families about health care financing options, assisting in completing applications and/or filing appeals or denials of public or private benefits and facilitating negotiations with medical creditors. Consultation with legal backup and referral for legal intervention were distinguishing aspects of the project. Benefits counselors and project attorney worked with state and county administrative and regulatory agencies, private insurers and health care providers and associations to resolve systemic problems. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB93-199156.

Keywords: Advocacy, Case Management, Chronic illnesses and disabilities, Families, Family health, Financial Counseling, Financing Health Care, Health Insurance, Health Maintenance Organizations (HMOs), Medicaid, Reimbursement

Olson L. n.d.. New Mexico Emergency Medical Services for Children [Final report]. Albuquerque, NM: University of New Mexico, 5 pp.

Annotation: The mortality, morbidity, and economic burden associated with childhood trauma and illness represent a serious public health problem in New Mexico. This is particularly true for rural and minority families. The long term goals of this project were to reduce the frequency and seriousness of negative outcomes for children and families who have suffered an emergency and to promote preventive activities directed at reducing injuries that generate pediatric emergencies. The project demonstrated progress in reaching these long term goals through: (1) increased childhood injury prevention programs statewide including promoting EMTs to be prevention advocates in their communities; (2) improved clinical care in the pediatric emergency medical system which includes prehospital and hospital care providers; (3) improved data collection and analysis for pediatric injury and illness; and (4) coalition building. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: customerservice@ntis.gov Web Site: http://www.ntis.gov Document Number: NTIS PB98-155716.

Keywords: American Indians, Bilingual Services, Chronic Illnesses and Disabilities, Data Collection, Emergency Medical Services for Children, Emergency Medical Technicians, Injury Prevention, Rural Population

American Lung Association. n.d.. Model policy for school districts: Stock bronchodilators. Washington, DC: American Lung Association, 5 pp.

Annotation: This document is designed to help school districts improve the health and academic outcomes of students with asthma. The document provides a framework for developing policies allowing use of stock bronchodilators in schools. Contents include information about implementing a model policy and creating a protocols and procedures document. A model policy template with definitions and conditions for administering, administering and storing, and obtaining stock bronchodilators is also included.

Contact: American Lung Association, 1300 Pennsylvania Ave., N.W., Suite 800, Washington, DC 20004, Telephone: (202) 785-3355 Secondary Telephone: (800) 548-8252 Fax: (202) 452-1805 E-mail: info@lungusa.org Web Site: http://www.lungusa.org Available from the website.

Keywords: Academic achievement, Asthma, Child health, Chronic illnesses and disabilities, Disease management, Models, Policy development, School age children, School districts, School nurses, Schools, Self care

Association of State and Territorial Dental Directors. 2018. White paper: Opportunities for improving oral health and chronic disease program collaboration and medical-dental integration. Reno, NV: Association of State and Territorial Dental Directors, 7 pp.

Annotation: This paper discusses missed opportunities resulting from state oral health programs’ and chronic-disease-prevention programs’ failure to make connections between oral health and chronic-disease-prevention interventions and health-promotion messages. The paper presents the problem, offers a framework for these programs to use in planning how to integrate oral-health-promotion strategies into chronic-disease and health-promotion initiatives, and provides examples of states that have tested innovative approaches to building communication between oral health and chronic-disease-prevention program staff.

Contact: Association of State and Territorial Dental Directors, 3858 Cashill Boulevard, Reno, NV 89509, Telephone: (775) 626-5008 Fax: (775) 626-9268 E-mail: info@astdd.org Web Site: http://www.astdd.org Available from the website.

Keywords: Chronic illnesses and disabilities, Oral health, Prevention, Program coordination, Service integration, State programs

Schubel J. 2017. Medicaid helps schools help children. Washington, DC: Center on Budget and Policy Priorities, 7 pp.

Annotation: This brief examines the role of Medicaid in funding critical health-related services for students with disabilities. Topics include providing reimbursement for health care services that are necessary for students with disabilities to succeed in school and ensuring schools' compliance with Individuals with Disabilities Education Act requirements, helping students to stay healthy and succeed academically, and connecting students to coverage. The brief also describes the long-term benefits of Medicaid for eligible children and the potential impact of spending reductions on students, local communities, and state budgets. The appendix contains a table on state and federal Medicaid spending in schools.

Contact: Center on Budget and Policy Priorities, 820 First Street N.E., Suite 510, Washington, DC 20002, Telephone: (202) 408-1080 Fax: (202) 408-1056 E-mail: center@cbpp.org Web Site: http://www.cbpp.org Available from the website.

Keywords: Academic achievement, Chronic illnesses and disabilities, Eligibility, Enrollment, Medicaid, Reimbursement, Role, School health services, Schools, Special health care needs, State programs, Students

Chen A, Wilson D. 2017. How Medicaid expansion benefits maternal and child health. Washington, DC: National Health Law Program, 5 pp.

Annotation: This brief explains how the Affordable Care Act (ACA), through Medicaid expansion and expanded Medicaid coverage criteria for children, has improved maternal and child health (MCH). Topics include the impact of expanded coverage for women of reproductive age, particularly for preconception and interconception health care, and eligibility criteria for children ages 6 to 19 on MCH.

Contact: National Health Law Program, 1441 I Street, N.W., Suite 1105, Washington, DC 20005, Telephone: (202) 289-7724 E-mail: nhelp@healthlaw.org Web Site: http://www.healthlaw.org Available from the website.

Keywords: Child health, Children, Chronic illnesses and disabilities, Health care reform, Health insurance, Health status, Maternal health, Maternal health services, Medicaid, Patient Protection and Affordable Care Act, Preconception care, Pregnant women, Prenatal care, Reproductive health, Women's health

National Center for Chronic Disease Prevention and Health Promotion, Division of Population Health. 2017. Managing chronic health conditions in schools: The role of the school nurse. Atlanta, GA: Centers for Disease Control and Prevention, 3 pp.

Annotation: This fact sheet describes the role of school nurses in improving student academic achievement and decreasing absenteeism by helping students with chronic health conditions manage their condition. Topics include providing direct care such as giving children medications, providing case management, and advocating for students and their families to help them get the resources and support they need.

Contact: National Center for Chronic Disease Prevention and Health Promotion, Division of Population Health, Centers for Disease Control and Prevention, 1600 Clifton Road, Atlanta, GA 30329-4027, Telephone: (800) 232-4636 Secondary Telephone: (888) 232-6348 E-mail: cdcinfo@cdc.gov Web Site: http://www.cdc.gov/NCCDPHP/dph Available from the website.

Keywords: Academic achievement, Case management, Chronic illnesses and disabilities, Disease management, Elementary schools, Families, Family support services, Health services delivery, Homeless persons, Program coordination, Role, School age children, School nurses, Students

Children's Dental Health Project. [2016]. Talking points on ending cavities for oral health advocates. Washington, DC: Children's Dental Health Project, 2 pp.

Annotation: This document provides talking points on ways to eliminate dental caries in children. Topics include the consequences of poor oral health on children and their families; costs for families and states; the role of primary care health professionals and other health professionals in providing oral health care; and the need for affordable, comprehensive dental coverage.

Contact: Children's Dental Health Project, 1020 19th Street, N.W., Suite 400, Washington, DC 20036, Telephone: (202) 833-8288 Fax: (202) 331-1432 E-mail: info@cdhp.org Web Site: https://www.cdhp.org Available from the website.

Keywords: Advocacy, Children, Chronic illnesses and disabilities, Dental care, Dental caries, Dental insurance, Disease prevention, Oral health

Children's Dental Health Project. 2016–. EndCavities. Washington, DC: Children's Dental Health Project, multiple items.

Annotation: These resources for policymakers, health professionals, and health advocates provide information about and strategies for preventing dental caries in young children. Contents include talking points, fact sheets, an issue brief, infographics, and videos. Topics include risk-based care, oral health during pregnancy, and what states can do to prevent dental caries in early childhood. Findings on adults’ knowledge of oral health and prevention, strategies for reducing caries in a Medicaid population, and tips for encouraging local media to cover early childhood caries are also included.

Contact: Children's Dental Health Project, 1020 19th Street, N.W., Suite 400, Washington, DC 20036, Telephone: (202) 833-8288 Fax: (202) 331-1432 E-mail: info@cdhp.org Web Site: https://www.cdhp.org Available from the website.

Keywords: Advocacy, Chronic illnesses and disabilities, Costs, Dental care, Dental caries, Dental insurance, Disease prevention, Low income groups, Medicaid, Oral health, Policy development, Pregnancy, Pregnant women, Risk factors, Safety, Young children

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This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.