Search Results: MCHLine

Annotation: This manual is intended as a guide for health professionals to establish a new health care delivery system for transitioning adolescents with chronic illness to adult health care. Health professionals learn about eight objectives: exploring one's commitment to transition, identification of initial partners; securing institutional support; assuring economic feasibility, developing a structure, developing a successful partnership, and achieving a successful transfer of patients. A self-assessment form is included.

Contact: Georgetown University Center for Child and Human Development, Box 571485, Washington, DC 20057-1485, Telephone: (202) 687-5503 Secondary Telephone: (202) 687-5000 Fax: (202) 687-8899 E-mail: [email protected] Web Site: http://gucchd.georgetown.edu Price unknown.

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Keywords: Access to health care, Adolescents with special health care needs, Chronic illnesses and disabilities, Health services, Special health care needs, Transition planning, Transitions, Young adults

Annotation: This project focused on developing a systematic approach to integrate medical, vocational, educational, psychosocial, and developmental services for adolescents with physical disabilities and/or chronic illness who are at risk in their transition to maturity. Project objectives were to (1) create an administrative structure at the State level and in two pilot sites for provision of an integrated continuum of health and education services; (2) enable service providers, through training and collaboration, to coordinate service planning for the target population; (3) enable the adolescent and family, through counseling and training, to function as their own "case manager"; and (4) monitor and evaluate the model to determine the feasibility for replication in Alabama and/or other states. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-147031.

Keywords: Adolescents with special health care needs, Advocacy, Chronic illnesses and disabilities, Community-Based Health Care, Coordination of Health Care, Data Bases, Interdisciplinary Teams, Rural Population, Urban Population

Annotation: The goals of this project were to disseminate information and to provide technical assistance on case management services for children with special health care needs and their families. The project served organizations engaged in the design, implementation, and assessment of case management activities. Activities included the collection of documents, the creation of a case management database, an analysis of case management services, and the development of a working paper "Focus and Functions of Case Management." [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-147106.

Keywords: Case Management, Chronic illnesses and disabilities, Data Bases, Data Collection

Annotation: This project sought to strengthen family-centered care for Iowa children with special health care needs by expanding parent participation in CHSC services development, by creating a statewide parent consultant network, and by enhancing community opportunities for parents to meet with one another and with professionals in a family-oriented experience. Program plans included an annual statewide issues forum; a regional parent consultant network composed of 2 parents from each of the 13 CHSC service regions; and family enrichment weekends designed to bring together parents and children for discussion, reflection, and recreation. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-146777.

Keywords: Chronic illnesses and disabilities, Developmental disabilities, Families, Family-Centered Health Care, Parent Networks, Parent-Professional Communication, Parents

Annotation: This project developed a model for care and services, a services resource network and coordinated education and training resources. The project worked with over 40 families, published a book, Homeward Bound: Resources for Living at Home with a Chronically Ill Child, and produced training videotapes for health care providers. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-152957.

Keywords: Chronic illnesses and disabilities, Dependence, Home-Based Health Care, Technology, Ventilator Dependence

Annotation: Project Copernicus, a dual-State initiative for Maryland and Virginia, developed, demonstrated, and evaluated training programs in family-centered service coordination with target groups of professional service providers and parents in urban, rural, and suburban areas of Maryland and Virginia. Project Copernicus demonstrated how to provide family-centered care for families with children with special health needs by assisting both parents and professional service providers to develop and use family-centered service coordination activities (case management). [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB97-121859.

Keywords: Access to Health Care, CSHCN, Case Management, Chronic illnesses and disabilities, Coordination of Health Care, Disabled, Education of Health Professionals, Families, Family-Centered Health Care, Fragmentation of Services, Parent Education, Parents, programs

Annotation: This network fostered collaboration among State programs for children with special health needs in New England. Activities included documenting quality assurance and monitoring activities; reviewing existing standards of care and developing new standards; facilitating interagency and public/private cooperation; and publishing the New England Status Report which covered legislation and program initiatives. The most concrete outcome has been the publication of Enhancing Quality: Standards and Indicators of Quality Care for Children with Special Health Care Needs. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-158681.

Keywords: Chronic illnesses and disabilities, Coordination of Health Care, Networking

Annotation: This project sought to improve information sharing among public agencies, third-party payers, special projects of regional and national significance (SPRANS), and employers in Minnesota. Activities included an annual invitational workshop; technical assistance; a quarterly newsletter; a continuing education center; and the guidelines, *How to Develop a Community Network.* [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-163549.

Keywords: Chronic illnesses and disabilities, Community-Based Health Care, Continuing Education, Coordination of Health Care, Families, Financing Health Care, Medicaid, Networking

Annotation: This project sought to demonstrate that a system of reimbursable, cost-effective, home-based support services can be implemented for families with chronically ill children. The project objectives were to facilitate the provision of home-based care for chronically ill children through the following activities: (1) Developing a regional network of medically skilled respite providers; (2) establishing self-help mutual support groups for chronically ill children and their parents and siblings; (3) training professionals, paraprofessionals, and volunteers; and (4) disseminating project findings and recommendations. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-158699.

Keywords: Arthritis, Asthma, Bronchopulmonary Dysplasia, Chronic illnesses and disabilities, Congenital Heart Disease, Cystic Fibrosis, Families, Feeding Disorders, Hemophilia, Home-Based Health Care, Kidney Disease, Leukemia, Low income groups, Muscular Dystrophy, Nurses, Respiratory Technologies, Respite Care, Sick Kids (Need) Involved People (SKIP), Sickle Cell Disease, Support Groups, Tay-Sachs Disease, Ventilator Dependence

Annotation: The goal of the project was to improve the functioning of special needs children and their families by providing locally based clinic and care coordination services in a rural area in Utah. The program objectives were to: (1) Involve parents of special needs children in developing a service plan for their child, (2) improve the implementation of service plans for rural special needs children, (3) improve coordination of services to rural special needs children, and (4) improve adequacy of services to these children. While maintaining current multidisciplinary clinic services, Children's Special Health Services worked through the local health department to place a nurse coordinator, secretary, social worker, and trained parent advocates in the local community. This team built upon existing local systems to improve the functional outcomes of the children. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB97-121834.

Keywords: Access to Health Care, Advocacy, Children with Special Health care Needs, Chronic Illnesses and Disabilities, Community Based Health Services, Parents, Rural Population, Service Coordination

Annotation: The goal of this project was to ensure the successful transition to adulthood of adolescents with physical disabilities or chronic illnesses by means of interventions with families, the health care team, and the adolescents themselves. The project sought to encourage the involvement of families in planning for the health care of their children, to modify staff behaviors and institutional practices to promote family autonomy, and to broaden treatment goals so that they included health maintenance and future planning for adolescents with special needs. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-196962.

Keywords: ., Adolescents with special health care needs, Advocacy, Chronic illnesses and disabilities, Families, Family-Centered Health Care Transition, Support Groups

Annotation: The goal of this project was to assist in the formation of a collaborative effort involving the government, providers, private payers, and families in order to reconcile the operational difficulties of achieving health care cost containment while retaining quality, access, and family-centeredness. The project sought to: develop approaches to health care financing that are sensitive to the needs of families with children who have special health care needs; assist families with special health care needs in dealing with financial problems which pose barriers to obtaining appropriate health services; and disseminate information regarding financing of care for children with special health care needs. Family health benefits counselors assisted approximately 1600 over the course of the project by conducting intake interviews, informing families about health care financing options, assisting in completing applications and/or filing appeals or denials of public or private benefits and facilitating negotiations with medical creditors. Consultation with legal backup and referral for legal intervention were distinguishing aspects of the project. Benefits counselors and project attorney worked with state and county administrative and regulatory agencies, private insurers and health care providers and associations to resolve systemic problems. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-199156.

Keywords: Advocacy, Case Management, Chronic illnesses and disabilities, Families, Family health, Financial Counseling, Financing Health Care, Health Insurance, Health Maintenance Organizations (HMOs), Medicaid, Reimbursement

Annotation: The mortality, morbidity, and economic burden associated with childhood trauma and illness represent a serious public health problem in New Mexico. This is particularly true for rural and minority families. The long term goals of this project were to reduce the frequency and seriousness of negative outcomes for children and families who have suffered an emergency and to promote preventive activities directed at reducing injuries that generate pediatric emergencies. The project demonstrated progress in reaching these long term goals through: (1) increased childhood injury prevention programs statewide including promoting EMTs to be prevention advocates in their communities; (2) improved clinical care in the pediatric emergency medical system which includes prehospital and hospital care providers; (3) improved data collection and analysis for pediatric injury and illness; and (4) coalition building. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB98-155716.

Keywords: American Indians, Bilingual Services, Chronic Illnesses and Disabilities, Data Collection, Emergency Medical Services for Children, Emergency Medical Technicians, Injury Prevention, Rural Population

Annotation: This roadmap presents goals and action steps to promote the ability of health professionals working in the areas of primary care, mental health, behavioral health, emergency care, sexual/reproductive health, and dentistry to serve people with intellectual and/or developmental disabilities (IDD) equitably and effectively. Topics include the need for a national strategy to improve health care for people with IDD, initiatives to improve training for health professionals, building the roadmap, building consensus, priority action steps, and accrediting bodies for health care facilities.

Contact: Institute for Exceptional Care, 1717 K Street, N.S., Suite 900, Washington, DC 20006, Telephone: (202) 843-9260 E-mail: [email protected] Web Site: https://www.ie-care.org Available from the website.

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Keywords: Chronic illnesses and disabilities, Health equity, Oral health, Oral health equity, Special health care needs, Training

Annotation: This annual report commissioned by Delta Dental provides data on and an analysis of oral health and overall health behaviors among adults and children across the United States. The report also discusses consumers’ understanding of the link between oral health and chronic conditions, the connection between oral hygiene and mental health, and the benefits of receiving preventive oral health care. Also addressed are adults' adherence to preventive oral health behaviors, trends in preventive oral health care visits, and dental insurance coverage among adults.

Contact: Delta Dental Plans Association, 1515 West 22nd Street, Suite 450, Oak Brook, IL 60523, Web Site: https://www.deltadental.com Available from the website.

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Keywords: Chronic illnesses and disabilities, Data, Health care utilization, Mental health, Oral health, Prevention

Annotation: This report provides information on a study of oral health professionals conducted to explore factors and policy incentives that influence their decisions on treating people with intellectual and developmental disabilities and on participating in government programs that provide oral health care coverage for this population. Topics includes research questions, input from the population, input from health professionals, demonstrating a return on investment, and promising practices.

Contact: National Council on Disability, 1331 F Street, N.W., Suite 850, Washington, DC 20004-1107, Telephone: (202) 272-2004 Secondary Telephone: (202) 272-2074 Fax: (202) 272-2022 E-mail: [email protected] Web Site: http://www.ncd.gov/ Available from the website.

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Keywords: Chronic illnesses and disabilities, Costs, Developmental disabilities, Intellectual development, Oral health, Public policy, Research, Special health care needs

Annotation: This report presents recommendations to strengthen the primary care workforce for young adults with medical complexity (YAMC) by promoting and increasing the supply of well-prepared adult primary care physicians for YAMC transitioning to adult care. Included is an overview of the YAMC population and the current care landscape, including health workforce and financing consideration. The recommendations were developed by a national advisory committee established by the National Alliance to Advance Adolescent Health/Got Transition and the George Washington University Fitzhugh Mullan Institute for Health Workforce Equity.

Contact: George Washington University , Fitzhugh Mullan Institute for Health Workforce Equity , 2175 K Street, NW, Suite 250, Washington, DC 20037, Telephone: (202) 994-3423 Web Site: https://www.gwhwi.org/

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Keywords: Adolescents, Chronic illnesses and disabilities, Primary care, Professional education, Professional training, Program improvement, Transition planning, Transitions, Young adults

Annotation: This report describes Improving Care Coordination and Health Outcomes for Diabetic Patients Through Medical and Dental Integration, a program run by CommUnityCare (CUC). The program’s purpose is to increase access to oral health care and general health care for people with diabetes to help improve chronic disease outcomes. It discusses how the program started, what happens during a patient visit, what CUC learned while launching the program, and plans for the future. Data showing the increase in the percentage of patients with diabetes who received care as well as of those who had a current A1c test are included.

Contact: National Network for Oral Health Access, 181 East 56th Avenue, Suite 410, Denver, CO 80216, Telephone: (303) 957-0635 E-mail: [email protected] Web Site: http://www.nnoha.org Available from the website.

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Keywords: Access to health care, Chronic illnesses and disabilities, Diabetes mellitus, Oral health, Service integration, State programs, Texas

Annotation: These presentations are designed for caregivers of people with disabilities or older adults. The goal of the presentations is to increase caregivers’ ability to work with people with a broad range of support needs, as well as to make caregivers feel more confident about doing so. The presentations explain how to help support a daily oral care routine for a family member or client. Translations of original English material are available in Arabic, Chinese, Korean, Spanish, Vietnamese, and Tagalog. The presentations are written in simple language.

Contact: Pacific Center for Equity in Oral Health Care, Arthur A. Dugoni School of Dentistry, University of the Pacific, 155 Fifth Street, San Francisco, CA 94103, E-mail: [email protected] Web Site: https://dental.pacific.edu/dental/faculty-and-research/research-facilities/pc#:~:text=The%20Pacific%20Center%20for%20Equity,access%20to%20oral%20health%20care.

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Keywords: Caregivers, Chronic illnesses and disabilities, Non English language materials, Older adults, Oral health, Spanish language materials, Special health care needs

Annotation: This report provides information about the oral health of individuals with intellectual or developmental disabilities in Missouri. Topics include oral hygiene, dental sealants, treated and untreated tooth decay, treatment urgency, and history of rampant tooth decay. Information about survey participants’ ages, genders, races, and ethnicities, as related to these topics, is included.

Contact: Missouri Department of Health and Senior Services, Office of Dental Health, P.O. Box 570, Jefferson City, MO 65102-0570, Telephone: (573) 751-5874 E-mail: [email protected] Web Site: http://health.mo.gov/living/families/oralhealth/index.php Available from the website.

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Keywords: Adults with special health care needs, Children with special health care needs, Chronic illnesses and disabilities, Dental caries, Dental hygiene, Missouri, Oral health, State surveys, Treatment