Search Results: MCHLine

Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.

Displaying records 1 through 20 (284 total).

Bronheim S, Fiel S, Schidlow D, MagrabP, Boczar K, Dillon C. n.d.. Crossings: A manual for transition of chronically ill youth to adult health care. Harrisburg, PA: Pennsylvania Department of Health, 52 pp.

Annotation: This manual is intended as a guide for health professionals to establish a new health care delivery system for transitioning adolescents with chronic illness to adult health care. Health professionals learn about eight objectives: exploring one's commitment to transition, identification of initial partners; securing institutional support; assuring economic feasibility, developing a structure, developing a successful partnership, and achieving a successful transfer of patients. A self-assessment form is included.

Link

Keywords: Access to health care, Adolescents with special health care needs, Chronic illnesses and disabilities, Health services, Special health care needs, Transition planning, Transitions, Young adults

Simmons E. n.d.. Youth in Transition—The Alabama Experience: [Final report]. Montgomery, AL: Alabama Department of Education, 32 pp.

Annotation: This project focused on developing a systematic approach to integrate medical, vocational, educational, psychosocial, and developmental services for adolescents with physical disabilities and/or chronic illness who are at risk in their transition to maturity. Project objectives were to (1) create an administrative structure at the State level and in two pilot sites for provision of an integrated continuum of health and education services; (2) enable service providers, through training and collaboration, to coordinate service planning for the target population; (3) enable the adolescent and family, through counseling and training, to function as their own "case manager"; and (4) monitor and evaluate the model to determine the feasibility for replication in Alabama and/or other states. [Funded by the Maternal and Child Health Bureau]

Keywords: Adolescents with special health care needs, Advocacy, Chronic illnesses and disabilities, Community-Based Health Care, Coordination of Health Care, Data Bases, Interdisciplinary Teams, Rural Population, Urban Population

Freedman S. n.d.. Case Management Information/Consultation Base for Services to Children with Chronic Illnesses and Disabilities: [Final report]. Gainesville, FL: Institute for Child Health Policy, 49 pp.

Annotation: The goals of this project were to disseminate information and to provide technical assistance on case management services for children with special health care needs and their families. The project served organizations engaged in the design, implementation, and assessment of case management activities. Activities included the collection of documents, the creation of a case management database, an analysis of case management services, and the development of a working paper "Focus and Functions of Case Management." [Funded by the Maternal and Child Health Bureau]

Keywords: Case Management, Chronic illnesses and disabilities, Data Bases, Data Collection

Nelson R. n.d.. CHSC Parent Partnership Project: [Final report]. Iowa City, IA: University of Iowa , 46 pp.

Annotation: This project sought to strengthen family-centered care for Iowa children with special health care needs by expanding parent participation in CHSC services development, by creating a statewide parent consultant network, and by enhancing community opportunities for parents to meet with one another and with professionals in a family-oriented experience. Program plans included an annual statewide issues forum; a regional parent consultant network composed of 2 parents from each of the 13 CHSC service regions; and family enrichment weekends designed to bring together parents and children for discussion, reflection, and recreation. [Funded by the Maternal and Child Health Bureau]

Keywords: Chronic illnesses and disabilities, Developmental disabilities, Families, Family-Centered Health Care, Parent Networks, Parent-Professional Communication, Parents

Gates A. n.d.. Interagency Home Care Model for Ventilator Assisted Individuals in Louisiana: [Final report]. New Orleans, LA: Children's Hospital, 17 pp.

Annotation: This project developed a model for care and services, a services resource network and coordinated education and training resources. The project worked with over 40 families, published a book, Homeward Bound: Resources for Living at Home with a Chronically Ill Child, and produced training videotapes for health care providers. [Funded by the Maternal and Child Health Bureau]

Keywords: Chronic illnesses and disabilities, Dependence, Home-Based Health Care, Technology, Ventilator Dependence

Force J. n.d.. Project Copernicus [Final report]. Baltimore, MD: Maryland Department of Health and Mental Hygiene, 15 pp.

Annotation: Project Copernicus, a dual-State initiative for Maryland and Virginia, developed, demonstrated, and evaluated training programs in family-centered service coordination with target groups of professional service providers and parents in urban, rural, and suburban areas of Maryland and Virginia. Project Copernicus demonstrated how to provide family-centered care for families with children with special health needs by assisting both parents and professional service providers to develop and use family-centered service coordination activities (case management). [Funded by the Maternal and Child Health Bureau]

Keywords: Access to Health Care, CSHCN, Case Management, Chronic illnesses and disabilities, Coordination of Health Care, Disabled, Education of Health Professionals, Families, Family-Centered Health Care, Fragmentation of Services, Parent Education, Parents, programs

Epstein S. n.d.. New England SERVE: A Planning Network for Children with Special Health Care Needs [Final report]. Boston, MA: Massachusetts Health Research Institute, 29 pp.

Annotation: This network fostered collaboration among State programs for children with special health needs in New England. Activities included documenting quality assurance and monitoring activities; reviewing existing standards of care and developing new standards; facilitating interagency and public/private cooperation; and publishing the New England Status Report which covered legislation and program initiatives. The most concrete outcome has been the publication of Enhancing Quality: Standards and Indicators of Quality Care for Children with Special Health Care Needs. [Funded by the Maternal and Child Health Bureau]

Keywords: Chronic illnesses and disabilities, Coordination of Health Care, Networking

Henry W. n.d.. PATHFINDER: A Project to Improve Systems of Care for Children with Chronic Health Conditions [Final report]. St. Paul, MN: Pathfinder Resources, Inc., 28 pp.

Annotation: This project sought to improve information sharing among public agencies, third-party payers, special projects of regional and national significance (SPRANS), and employers in Minnesota. Activities included an annual invitational workshop; technical assistance; a quarterly newsletter; a continuing education center; and the guidelines, *How to Develop a Community Network.* [Funded by the Maternal and Child Health Bureau]

Keywords: Chronic illnesses and disabilities, Community-Based Health Care, Continuing Education, Coordination of Health Care, Families, Financing Health Care, Medicaid, Networking

Sherman B. n.d.. Home-Based Support Services for Chronically Ill Children and Their Families [Final report]. Albany, NY: New York State Department of Health, 35 pp.

Annotation: This project sought to demonstrate that a system of reimbursable, cost-effective, home-based support services can be implemented for families with chronically ill children. The project objectives were to facilitate the provision of home-based care for chronically ill children through the following activities: (1) Developing a regional network of medically skilled respite providers; (2) establishing self-help mutual support groups for chronically ill children and their parents and siblings; (3) training professionals, paraprofessionals, and volunteers; and (4) disseminating project findings and recommendations. [Funded by the Maternal and Child Health Bureau]

Keywords: Arthritis, Asthma, Bronchopulmonary Dysplasia, Chronic illnesses and disabilities, Congenital Heart Disease, Cystic Fibrosis, Families, Feeding Disorders, Hemophilia, Home-Based Health Care, Kidney Disease, Leukemia, Low income groups, Muscular Dystrophy, Nurses, Respiratory Technologies, Respite Care, Sick Kids (Need) Involved People (SKIP), Sickle Cell Disease, Support Groups, Tay-Sachs Disease, Ventilator Dependence

Williams S. n.d.. Improving Community-Based Services for Special Needs Children and Their Families in Rural Utah [Final report]. Salt Lake City, UT: Utah Department of Health, 19 pp. pp.

Annotation: The goal of the project was to improve the functioning of special needs children and their families by providing locally based clinic and care coordination services in a rural area in Utah. The program objectives were to: (1) Involve parents of special needs children in developing a service plan for their child, (2) improve the implementation of service plans for rural special needs children, (3) improve coordination of services to rural special needs children, and (4) improve adequacy of services to these children. While maintaining current multidisciplinary clinic services, Children's Special Health Services worked through the local health department to place a nurse coordinator, secretary, social worker, and trained parent advocates in the local community. This team built upon existing local systems to improve the functional outcomes of the children. [Funded by the Maternal and Child Health Bureau]

Keywords: Access to Health Care, Advocacy, Children with Special Health care Needs, Chronic Illnesses and Disabilities, Community Based Health Services, Parents, Rural Population, Service Coordination

Hostler S. n.d.. Family Autonomy Project [Final report]. Charlottesville, VA: University of Virginia, 50 pp.

Annotation: The goal of this project was to ensure the successful transition to adulthood of adolescents with physical disabilities or chronic illnesses by means of interventions with families, the health care team, and the adolescents themselves. The project sought to encourage the involvement of families in planning for the health care of their children, to modify staff behaviors and institutional practices to promote family autonomy, and to broaden treatment goals so that they included health maintenance and future planning for adolescents with special needs. [Funded by the Maternal and Child Health Bureau]

Keywords: ., Adolescents with special health care needs, Advocacy, Chronic illnesses and disabilities, Families, Family-Centered Health Care Transition, Support Groups

Camic N. n.d.. Families in the Changing Health Care Marketplace [Final report]. Madison, WI: Center for Public Representation, 21 pp.

Annotation: The goal of this project was to assist in the formation of a collaborative effort involving the government, providers, private payers, and families in order to reconcile the operational difficulties of achieving health care cost containment while retaining quality, access, and family-centeredness. The project sought to: develop approaches to health care financing that are sensitive to the needs of families with children who have special health care needs; assist families with special health care needs in dealing with financial problems which pose barriers to obtaining appropriate health services; and disseminate information regarding financing of care for children with special health care needs. Family health benefits counselors assisted approximately 1600 over the course of the project by conducting intake interviews, informing families about health care financing options, assisting in completing applications and/or filing appeals or denials of public or private benefits and facilitating negotiations with medical creditors. Consultation with legal backup and referral for legal intervention were distinguishing aspects of the project. Benefits counselors and project attorney worked with state and county administrative and regulatory agencies, private insurers and health care providers and associations to resolve systemic problems. [Funded by the Maternal and Child Health Bureau]

Keywords: Advocacy, Case Management, Chronic illnesses and disabilities, Families, Family health, Financial Counseling, Financing Health Care, Health Insurance, Health Maintenance Organizations (HMOs), Medicaid, Reimbursement

Olson L. n.d.. New Mexico Emergency Medical Services for Children [Final report]. Albuquerque, NM: University of New Mexico, 5 pp.

Annotation: The mortality, morbidity, and economic burden associated with childhood trauma and illness represent a serious public health problem in New Mexico. This is particularly true for rural and minority families. The long term goals of this project were to reduce the frequency and seriousness of negative outcomes for children and families who have suffered an emergency and to promote preventive activities directed at reducing injuries that generate pediatric emergencies. The project demonstrated progress in reaching these long term goals through: (1) increased childhood injury prevention programs statewide including promoting EMTs to be prevention advocates in their communities; (2) improved clinical care in the pediatric emergency medical system which includes prehospital and hospital care providers; (3) improved data collection and analysis for pediatric injury and illness; and (4) coalition building. [Funded by the Maternal and Child Health Bureau]

Keywords: American Indians, Bilingual Services, Chronic Illnesses and Disabilities, Data Collection, Emergency Medical Services for Children, Emergency Medical Technicians, Injury Prevention, Rural Population

Make America Healthy Again Commission. 2025. Make our children healthy again: Assessment. Washington, DC: White House, 72 pp. (The MAHA report)

Annotation: This report outlines a strategic approach for executive actions to address the childhood chronic disease crisis through advancing research, realigning incentives, increasing public awareness, and fostering private sector collaborations. The goal of the strategic approach is to translate the work of the Make America Healthy Again movement to policies that make a transformative and lasting impact for American and end the crisis.

Keywords: Chronic illnesses and disabilities, Collaboration, Oral health, Public awareness, Public heath, Public policy, Research

Make America Healthy Again Commission. 2025. Make our children healthy again: Strategy report. Washington, DC: White House, 19 pp. (Recommendations of the MAHA Commission to Donald J. Trump)

Annotation: This report outlines a strategic approach to address the childhood chronic disease through advancing research, realigning incentives, increasing public awareness, and fostering private sector collaborations. For each topic, the report highlights current activities and identifies proposed activities.

Keywords: Chronic illnesses and disabilities, Collaboration, Oral health, Public awareness, Public heath, Public policy, Research

National Association of Chronic Disease Directors. [2024]. The connection between poor oral health and chronic disease. Atlanta, GA: National Association of Chronic Disease Directors, 43 pp.

Annotation: This report provides information on the link between poor oral health and chronic disease and on efforts of the National Association of Chronic Disease directors (NACDD) to develop a national framework for medical-dental integration (MDI) and discusses NACDD's work with five states (Colorado, Connecticut, North Dakota, South Carolina, and Virginia) on projects whose purpose was to document successful approaches for increasing the effectiveness of state oral health and chronic disease collaborations with dental clinics and community providers to screen for chronic conditions such as hypertension, pre-diabetes, and diabetes. Each project is discussed, along oral health outcomes for each state and future directions.

Keywords: Chronic illnesses and disabilities, Colorado, Connecticut, Diabetes, Hypertension, North Dakota, Oral health, Service coordination, Service integration, South Carolina, State programs, Virginia

Institute for Exceptional Care, Action to Build Clinical Confidence and Culture (ABC3) Coalition. 2024. A national roadmap for disability-inclusive healthcare: A plan for clinicians to learn how to give the best healthcare possible to people with intellectual and developmental disabilities (IDD). Washington, DC: Institute for Exceptional Care, 56 pp.

Annotation: This roadmap presents goals and action steps to promote the ability of health professionals working in the areas of primary care, mental health, behavioral health, emergency care, sexual/reproductive health, and dentistry to serve people with intellectual and/or developmental disabilities (IDD) equitably and effectively. Topics include the need for a national strategy to improve health care for people with IDD, initiatives to improve training for health professionals, building the roadmap, building consensus, priority action steps, and accrediting bodies for health care facilities.

Keywords: Chronic illnesses and disabilities, Health equity, Oral health, Oral health equity, Special health care needs, Training

Delta Dental Plans Association. 2024. The 2024 state of America's oral health and wellness report. Oak Brook, IL: Delta Dental Plans Association, 14 pp.

Annotation: This annual report commissioned by Delta Dental provides data on and an analysis of oral health and overall health behaviors among adults and children across the United States. The report also discusses consumers’ understanding of the link between oral health and chronic conditions, the connection between oral hygiene and mental health, and the benefits of receiving preventive oral health care. Also addressed are adults' adherence to preventive oral health behaviors, trends in preventive oral health care visits, and dental insurance coverage among adults.

Link

Keywords: Chronic illnesses and disabilities, Data, Health care utilization, Mental health, Oral health, Prevention

Nguyen AT, Curtis KM, Tepper NK, Kortsmit K, Brittain AW, Snyder EM, cohen MA, Zapata LB, Whiteman MK, . 2024. U.S. medical eligibility criteria for contraceptive use (U.S. MEC). Atlanta, GA: Centers for Disease Control and Prevention,

Annotation: This report provides evidence-based clinical practice recommendations for health care providers regarding the safe use of specific contraceptive methods by persons who have certain characteristics or medical conditions. The recommendations, which were updated by the Centers for Disease Control and Prevention (CDC) following a review of scientific evidence and a meeting with national experts in Atlanta, Georgia, during January 25–27, 2023, replace the 2016 U.S. MEC and are intended to remove unnecessary medical barriers to accessing and using contraception while supporting noncoercive, person-centered counseling. The guidance includes four classification categories (U.S. MEC 1 through 4) that health care providers can use to assess eligibility for methods like intrauterine devices (IUDs), combined hormonal contraceptives (CHCs), and permanent contraception. This report is also available in Spanish

Keywords: Chronic illnesses and disabilities, Contraception, Contraceptive devices, Family planning, Guidelines, Safety

National Council on Disability. 2023. Incentivizing oral health care providers to treat patients with intellectual and developmental disabilities. Washington, DC: National Council on Disability, 94 pp.

Annotation: This report provides information on a study of oral health professionals conducted to explore factors and policy incentives that influence their decisions on treating people with intellectual and developmental disabilities and on participating in government programs that provide oral health care coverage for this population. Topics includes research questions, input from the population, input from health professionals, demonstrating a return on investment, and promising practices.

Keywords: Chronic illnesses and disabilities, Costs, Developmental disabilities, Intellectual development, Oral health, Public policy, Research, Special health care needs