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Strengthen the Evidence for Maternal and Child Health Programs

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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 20 (111 total).

Sudden Unexplained Death in Childhood Program. n.d.. Help for families when an infant or young child dies. Hackensack, NJ: Sudden Unexplained Death in Childhood Program, 2 pp.

Annotation: This brochure is designed for coroners or medical examiners to give to families of an infant or a young child who has died suddenly. It outlines the roles of the professionals that may be involved in investigating the death, gives time estimates for the investigation process, and lists national resources. It can be used for all manners of sudden pediatric deaths. A sample of this brochure is available online; agencies can order a customized version that includes their local information. It is available in three versions: coroner only, medical examiner only, and coroner/medical examiner combined.

Contact: Sudden Unexplained Death in Childhood Foundation, 549 Pompton Avenue, Suite 197, Cedar Grove, NJ 07009, Telephone: (800) 620-SUDC Secondary Telephone: (973) 239-4849 Fax: (973) 559-6191 E-mail: [email protected] Web Site: http://www.sudc.org Available from the website.

Keywords: Consumer education materials, Coroners, Death scene investigation, Infants, Medical examiners, Role, Sudden death, Young children

Declercq E, Zephyrin L. 2021. Severe maternal morbidity in the United States: A primer. New York, NY: The Commonwealth Fund, 15 pp. (Issue Briefs)

Annotation: This data brief examines severe maternal morbidity in the United States, which affects approximately 50,000-60,000 women annually. It describes the scope and severity of maternal health complications before, during, and after childbirth, highlighting stark racial and socioeconomic disparities. The brief discusses different definitions and measurement approaches for severe maternal morbidity, common indicators and conditions, risk factors, and implications for health care costs and postpartum health. It also provides recommendations for improving maternal health outcomes and measurement, including expanding insurance coverage and adopting more comprehensive, culturally appropriate care models.

Contact: Commonwealth Fund, One East 75th Street, New York, NY 10021, Telephone: (212) 606-3800 Fax: (212) 606-3500 E-mail: [email protected] Web Site: http://www.commonwealthfund.org

Keywords: Data , Maternal death, Maternal morbidity, Maternal mortality, Childbirth

National Center for Fatality Review and Prevention. 2020. Parent interview guidance. Washington, DC: National Center for Fatality Review and Prevention, 465 pp. (National Center guidance report)

Annotation: This document describes the value of interviewing childbearing parents/families after the death of an infant, challenges, and steps in the process, including the parental interviewer; locating and contacting families; confidentiality, consent, and ethical considerations; conducting the interview; alternative methods; bereavement support and resources, and self-care. Appendices include sample position descriptions for interviewers, protocols, handouts and forms. [Funded by the Maternal and Child Health Bureau]

Contact: National Center for Fatality Review and Prevention, c/o Michigan Public Health Institute, 1115 Massachusetts Avenue, N.W., Washington, DC 20005, Telephone: (800) 656-2434 Secondary Telephone: (517) 614-0379 Fax: (517) 324-6009 E-mail: [email protected] Web Site: https://www.ncfrp.org/ Available from the website.

Keywords: Bereavement, Child death review, Infant death review committees, Interviews, Manuals

Medicaid and CHIP Payment and Access Commission. 2020. Medicaid's role in maternal health : Chapter 5 of the June 2020 Report to Congress on Medicaid and CHIP. Washington, DC: The Medicaid and CHIP Payment and Access Commission, 34 pp.

Annotation: This chapter examines Medicaid's role in providing maternity care and improving maternal health outcomes in the United States. It describes concerning trends in maternal mortality and morbidity, including racial and ethnic disparities. The chapter provides an overview of Medicaid eligibility and benefits for pregnant women, noting that Medicaid financed over 40% of U.S. births in 2018. It details state and federal efforts to improve maternal care and outcomes through Medicaid, including policies around eligibility, education and outreach, covered benefits, care delivery models, and payment initiatives. The chapter concludes by outlining areas for future Commission work on this topic, such as value-based purchasing and postpartum coverage.

Contact: Medicaid and CHIP Payment and Access Commission, 1800 M Street, N.W., Suite 360 South, Washington, DC 20036, Telephone: (202) 350-2000 Fax: (202) 273-2452 E-mail: [email protected] Web Site: http://www.macpac.gov

Keywords: Maternal death, Maternal morbidity, Maternal mortality, Childbirth, Medicaid

National Center for Fatality Review & Prevention. 2017. Guidance for reviewing deaths of infants/children with disabilities and/or special health care needs. Washington, DC: National Center for Fatality Review and Prevention, 23 pp.

Annotation: This document provides guidance to Child Death Review (CDR) and Fetal Infant Mortality Review (FIMR) teams on conducting effective reviews of the deaths of infants and children who had a disability or chronic illness. Contents include definitions of disability and special health care needs; preparing for the review meeting; background and questions for discussion at the review; medical death or natural causes; maltreatment as a factor; death in foster care, group home, institution, or jail/detention facility; mental health services for children in care; death at school or on a school bus; injury deaths; and risk factors. A structure for identifying and addressing gaps in services, policies, or protocols and model recommendations is included. [Funded by the Maternal and Child Health Bureau]

Contact: National Center for Fatality Review and Prevention, c/o Michigan Public Health Institute, 1115 Massachusetts Avenue, N.W., Washington, DC 20005, Telephone: (800) 656-2434 Secondary Telephone: (517) 614-0379 Fax: (517) 324-6009 E-mail: [email protected] Web Site: https://www.ncfrp.org/ Available from the website.

Keywords: Child death review, Children with special health care needs, Infant death review committees, Infants with special health care needs, Models

Clevenger AA. 2017. Overdose poisoning deaths to children in Virginia, 2009-2013. Richmond, VA: Virginia Department of Health, Office of the Chief Medical Examiner, 57 pp.

Annotation: This report presents findings, conclusions, and recommendations from case reviews of overdose poison deaths among infants, children, and adolescents up to age 17 in Virginia for the five year period between 2009 and 2013. Topics include how overdose is impacting infants and children and their families in Virginia, which children are at risk, where are they at risk, how are they at risk, and what can be done to further promote health and safety in their lives. [Funded in part by the Maternal and Child Health Bureau]

Contact: Virginia Department of Health, Office of the Chief Medical Examiner, 400 East Jackson Street, Richmond, VA 23219, Telephone: (804) 786-3174 Fax: (804) 371-8595 E-mail: [email protected] Web Site: http://www.vdh.virginia.gov/medical-examiner Available from the website.

Keywords: Adolescents, Case studies, Child death review, Child safety, Children, Health promotion, High risk groups, Household safety, Infants, Injury prevention, Opiates, Poisoning, Prescription drugs, Virginia

National Center for Fatality Review and Prevention. 2016-2018. Keeping kids alive: A report on the status of child death review in the United States, 2015 [2016, 2017]. Washington, DC: National Center for Fatality Review and Prevention, 3 v.

Annotation: This report presents findings from a national survey of state Child Death Review (CDR) program leaders to assess the status of their programs. Tables provide a synopsis of the responses and represent the status of the programs. Trends in child death review are also discussed. Topics include administration, the review process, reporting, and coordination with other reviews. [Funded by the Maternal and Child Health Bureau]

Contact: National Center for Fatality Review and Prevention, c/o Michigan Public Health Institute, 1115 Massachusetts Avenue, N.W., Washington, DC 20005, Telephone: (800) 656-2434 Secondary Telephone: (517) 614-0379 Fax: (517) 324-6009 E-mail: [email protected] Web Site: https://www.ncfrp.org/ Available from the website.

Keywords: Administration, Child death, Child death review, Injury prevention, Outcome and process assessment, Prevention programs, Program coordination, State programs, Trends

Commission to Eliminate Child Abuse and Neglect Fatalities. 2016. WIthin our reach: A national strategy to eliminate child abuse and neglect fatalities. Washington, DC: U.S. Government Publishing Office, 167 pp.

Annotation: This final report presents a vision for realigning organizations, communities, and priorities to identify and support children at highest risk of abuse or neglect fatality. Contents include recommendations for addressing the needs of American Indian/Alaska Native children and reducing child abuse and neglect deaths in disproportionately affected communities, improving leadership and accountability, grounding decisions in better data and research, and enhancing multidisciplinary support for families. A report fact sheet, social media toolkit, public meeting materials, deliberations, and resources on child abuse and neglect fatalities and National Child Abuse Prevention Month are also available.

Contact: U.S. Government Publishing Office, 732 North Capitol Street, N.W., Washington, DC 20401, Telephone: (202) 512-1800 Secondary Telephone: (866) 512-1800 Fax: (202) 512-2104 E-mail: [email protected] Web Site: http://www.gpo.gov Available from the website.

Keywords: Alaska Natives, American Indians, Child abuse, Child death, Child neglect, Children, Decision making, Family centered care, Injury prevention, Leadership, Multidisciplinary approach, National initiatives, Program improvement, Resources for professionals, Strategic plans, Systems development, Welfare reform

National Center for Fatality Review and Prevention. 2016. Guidance for CDR and FIMR teams on addressing vicarious trauma. Washington, DC: National Center for Fatality Review and Prevention, 15 pp.

Annotation: This guidance is designed to help partners engaged in the fetal infant mortality review (FIMR) or child death review (CDR) process address the vicarious trauma (VT) that can result from exposure to child deaths. Contents include the definition, signs, and symptoms of VT; VT and fatality review; the risk factors for VT; and steps to mitigate the impact of VT. Topics include positive ways to respond to VT including what the FIMR/CDR team, can do, what the FIMR/CDR coordinator can do, and how the agency can support the FIMR or CDR program; what individuals can do for themselves; negative ways to respond to VT including what a state FIMR/CDR coordinator can do if a team resists discussion or activities concerning VT or thinks it doesn't need them. Descriptions of articles, self-inventory checklists, presentations, and other resources are also provided. [Funded by the Maternal and Child Health Bureau]

Contact: National Center for Fatality Review and Prevention, c/o Michigan Public Health Institute, 1115 Massachusetts Avenue, N.W., Washington, DC 20005, Telephone: (800) 656-2434 Secondary Telephone: (517) 614-0379 Fax: (517) 324-6009 E-mail: [email protected] Web Site: https://www.ncfrp.org/ Available from the website.

Keywords: Child death review, Infant mortality, Leadership, Resources for professionals, Risk factors, Role, Teamwork, Trauma, Trauma care

National Center for Fatality Review & Prevention. 2016. Guidance for reviews of Zika-related fatalities. Washington, DC: National Center for Fatality Review and Prevention, 15 pp.

Annotation: This document is intended to inform Child Death Review and Fetal and Infant Mortality Review teams' reviews of fetal, infant, and child deaths known to be related, or potentially related, to Zika virus infection. Contents include an overview of Zika, including transmission, prevalance, and risk factors for pregnant women; preparing for review of cases; questions for teams to consider; and recommendations to health professionals and systems for preventing or mitigating Zika virus infection. Information about the clinical management of a pregnant woman with suspected Zika virus infection is included. [Funded by the Maternal and Child Health Bureau]

Contact: National Center for Fatality Review and Prevention, c/o Michigan Public Health Institute, 1115 Massachusetts Avenue, N.W., Washington, DC 20005, Telephone: (800) 656-2434 Secondary Telephone: (517) 614-0379 Fax: (517) 324-6009 E-mail: [email protected] Web Site: https://www.ncfrp.org/ Available from the website.

Keywords: Child death review, Infant death review committees, Virus diseases

U.S. Department of Health and Human Services. 2014. The health consequences of smoking: 50 years of progress–A report of the Surgeon General. Atlanta, GA: National Center for Chronic Disease Prevention and Health Promotion, Office on Smoking and Health, 943 pp., exec. summ. (22 pp.).

Annotation: This report chronicles the consequences of 50 years of tobacco use in the United States. Topics include the relationship between smoking and health outcomes; smoking-attributable morbidity, mortality, and economic costs; patterns of tobacco use among children, adolescents, and adults; status of and future directions in tobacco control; and a vision for ending tobacco-caused death and disease.

Contact: National Center for Chronic Disease Prevention and Health Promotion, Office on Smoking and Health, Centers for Disease Control and Prevention, 1600 Clifton Road, Atlanta, GA 30329-4027, Telephone: (800) 232-4636 Secondary Telephone: (888) 232-6348 Fax: E-mail: [email protected] Web Site: http://www.cdc.gov/tobacco Available from the website.

Keywords: Adolescents, Adults, Cause of death, Children, Costs, Disease prevention, Morbidity, Mortality, Progress reports, Smoking, Spanish language materials, Tobacco use

Children's Safety Network . 2014. Firearm-related injuries among children ages 0 through 14. Newton, MA: Children's Safety Network , 7 pp.

Annotation: This fact sheet provides information about firearm-related injuries and deaths among infants, children, and adolescents from birth through age 14 in the United States. Contents include data and information on the scope of the problem, the demographics of and circumstances surrounding firearm-related injuries to children, international comparison, and early prevention and safety education. Information on legislation and examples of state efforts to prevent firearm-related injuries to children is also included. A companion fact sheet addressing firearm injuries among adolescents and young adults ages 15 through 24 is also available. [Funded by the Maternal and Child Health Bureau]

Contact: Children's Safety Network, Education Development Center, 43 Foundry Avenue, Waltham, MA 02453-8313, Telephone: (617) 618-2918 Fax: (617) 969-9186 E-mail: [email protected] Web Site: http://www.childrenssafetynetwork.org Available from the website.

Keywords: Adolescents, Children, Death, Firearm injuries, Firearm safety, Firearms, Infants, Prevention programs, Protective factors

U.S. Department of Health and Human Services. 2014. Let's make the next generation tobacco-free: Your guide to the 50th anniversary Surgeon General's report on smoking and health. Atlanta, GA: National Center for Chronic Disease Prevention and Health Promotion, Office on Smoking and Health, 20 pp.

Annotation: This consumer guide details the effects of smoking including nicotine addiction and serious disease. It also contains facts on the benefits of quitting smoking and free resources that are available to smokers who want to quit. The guide is available in English and Spanish.

Contact: National Center for Chronic Disease Prevention and Health Promotion, Office on Smoking and Health, Centers for Disease Control and Prevention, 1600 Clifton Road, Atlanta, GA 30329-4027, Telephone: (800) 232-4636 Secondary Telephone: (888) 232-6348 Fax: E-mail: [email protected] Web Site: http://www.cdc.gov/tobacco Available from the website.

Keywords: Adolescents, Adults, Cause of death, Children, Consumer education materials, Costs, Disease prevention, Morbidity, Mortality, Progress reports, Smoking, Smoking cessation, Spanish language materials, Tobacco use

Connecticut Office of the Child Advocate, and Connecticut Child Fatality Review Panel. 2014. Alert: Unsafe sleep related deaths are the leading cause of preventable deaths of infants in Connecticut. Hartford, CT: Connecticut Office of Governmental Accountability, Office of the Child Advocate, 8 pp.

Annotation: This public health alert outlines infant fatalities and unsafe sleep conditions in Connecticut and provides recommendations for prevention. Contents include risk factors associated with infant fatality including sudden unexplained or undetermined infant death, case examples, and a definition of an unsafe sleep-related infant fatality. Additional content includes information on how often infants die from unsafe sleeping conditions; the most common unsafe sleep environments in fatality cases; infant fatalities over time and trends; and the Connecticut Department of Children and Families' role in infant death prevention and policy development. The alert includes recommendations for policymakers, in-home service providers, child care providers, pediatricians, and hospitals, and safe sleep guidelines for parents.

Contact: Connecticut Office of Governmental Accountability, Office of the Child Advocate, 999 Asylum Avenue, 1st Floor, Hartford, CT 06105, Telephone: (860) 566-2106 Secondary Telephone: (800) 994-0939 Fax: (860) 566-2251 E-mail: [email protected] Web Site: http://www.ct.gov/oca Available from the website.

Keywords: Child death review, Connecticut, Infant death, Infant mortality, Policy development, Protective factors, Public awareness materials, Risk factors, SIDS, Safety, Sleep position, State programs, Trends

University of Arkansas for Medical Sciences, Network of Infant/Toddlers Research, U.S. Administration for Children and Families, Office of Planning, Research, and Evaluation. (2013). Sleeping safe?. Washington, DC: U.S. Administration for Children and Families, Office of Planning, Research, and Evaluation, 1 p.

Annotation: This fact sheet for parents and others who care for infants provides advice for improving baby's sleep environment and reducing the risks associated with sudden infant death syndrome (SIDS). Topics include healthy pregnancy; safe sleep surfaces; room sharing; placing baby on his/her back for sleep every time; prevent smoking, alcohol, and drug use near baby; and to breastfeed and later, a pacifier.

Contact: Children's Safety Network, Education Development Center, 43 Foundry Avenue, Waltham, MA 02453-8313, Telephone: (617) 618-2918 Fax: (617) 969-9186 E-mail: [email protected] Web Site: http://www.childrenssafetynetwork.org Available from the website.

Keywords: Child safety, Infant care, Infant death, Prevention, SIDS, Sleep position

Centers for Disease Control and Prevention. 2013- . Sudden unexpected infant death case registry. [Atlanta, GA]: Centers for Disease Control and Prevention,

Annotation: This website collects comprehensive data to characterize sudden unexpected infant death (SUID) cases and to determine which sleep environment factors contribute to SUID. The site shows a map of SUID Case Registry (SUID-CR) state grantees, explains the purpose of the SUID-CR Pilot Program, describes activities of the Centers for Disease Control and Prevention in collaboration with the National Center for Child Death Review, and outlines quality-improvement goals and case-registry successes and progress.

Contact: Centers for Disease Control and Prevention, 1600 Clifton Road, Atlanta, GA 30329-4027, Telephone: (800) 232-4636 Secondary Telephone: (888) 232-6348 E-mail: [email protected] Web Site: http://www.cdc.gov Available from the website.

Keywords: Child death review, Prevention, Programs, SIDS, Safety, Sleep position, Statistical data, Sudden infant death

Philadelphia Child Death Review Teams. 2013. Child death review report 2009-2010. [Philadelphia, PA]: Philadelphia Department of Public Health, Medical Examiner's Office, 41 pp.

Annotation: This report describes and discusses child deaths that occurred in Philadelphia in 2009 and 2010 and that were reviewed by the Philadelphia Child Death Review Team. The report provides background and an overview of child deaths reviewed during the period and discusses infant deaths, natural deaths, unintentional injury deaths, and intentional injury deaths.

Contact: Philadelphia Department of Public Health, 1401 JFK Boulevard, Philadelphia, PA 19102, Telephone: (215) 686-45200 Fax: (215) 686-5212 Web Site: http://www.phila.gov/health/index.html Available from the website.

Keywords: Asthma, Cancer, Child abuse, Child death, Child death review, Cause of death, Child neglect, Drowning, Firearm injuries, Infant death, Intentional injuries, Poisoning, SIDS, Unintentional injuries

Lowrimore L. 2013. Books for children on dealing with death. Washington, DC: National SUID/SIDS Resource Center,

Annotation: This bibliography lists books intended to help parents or caregivers navigate children's questions that are likely to come up after the death of a younger sibling from sudden infant death. The list includes picture books, books for older children, and activity books that help children express emotions. [Funded by the Maternal and Child Health Bureau]

Contact: Maternal and Child Health Library at Georgetown University, E-mail: [email protected] Web Site: https://www.mchlibrary.org Available from the website.

Keywords: Bereavement, Bibliographies, Children', Funerals, Grief, Infant death, Materials for children, SIDS, s literature

National Center for Injury Prevention and Control, Division of Unintentional Injury Prevention. 2013. A national action plan for child injury prevention: Reducing suffocation injuries in children. Atlanta, GA: National Center for Injury Prevention and Control, Division of Unintentional Injury Prevention, 2 pp.

Annotation: This document outlines national goals and actions to further reduce suffocation-related injuries among infants and children. Examples of what can be done are organized within the following six domains: data and surveillance, research, communication, education and training, health systems and health care, and policy.

Contact: National Center for Injury Prevention and Control, Centers for Disease Control and Prevention, 4770 Buford Highway, N.E., Mailstop F-63, Atlanta, GA 30341-3717, Telephone: (800) CDC-INFO Secondary Telephone: (888) 232-6348 Fax: (770) 488-4760 E-mail: [email protected] Web Site: http://www.cdc.gov/injury/index.html Available from the website.

Keywords: Child death review, Children, Communication, Community action, Consumer education, Data, Goals, Health care systems, Infant death, Infant death review, Infants, Injuries, Injury prevention, National initiatives, Planning, Policy development, Population surveillance, Professional education, Research, Safety, Suffocation, Training

Lullaby Trust. 2013. When a baby dies suddenly and unexpectedly. London, England: Lullaby Trust, 31 pp.

Annotation: This booklet for parents offers a helpline number for residents in the United Kingdom and describes what happens after a baby has died, the post-mortem exam, registering the baby's death, funeral arrangements, memorials, inquests, child death review, financial assistance, grieving, mothers who are on their own, if a twin dies, returning to work, life after the baby's death, helping siblings, grandparents and other family members, if someone else's baby dies in your care, finding and giving support, and having another baby.

Contact: Lullaby Trust, 11 Belgrade Road, London, England SW1V 1RB, Telephone: (020) 7802-3200 E-mail: [email protected] Web Site: http://lullabytrust.org.uk Available from the website; contact for muiltple copy cost information.

Keywords: Bereavement, Child death, Child death review, Families, Infant death, Public awareness materials, SIDS

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This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.