Search Results: MCHLine

Annotation: This report presents an overview of major birth defects and developmental disabilities (autism spectrum disorders, cerebral palsy, intellectual disabilities, and learning disabilities), as well as an assessment of some recent public health successes and a look at several ongoing challenges. Conclusions, recommendations, and endnotes are included. Statistical information is presented in tables throughout the report. The report also includes one appendix: a glossary of terms and acronyms.

Contact: Trust for America's Health, 1730 M Street, N.W., Suite 900, Washington, DC 20036, Telephone: (202) 223-9870 Fax: (202) 223-9871 E-mail: [email protected] Web Site: http://healthyamericans.org Available from the website.

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Keywords: Autism, Cerebral palsy, Congenital abnormalities, Developmental disabilities, Learning disabilities, Public health

Annotation: This two-volume set examines evidence to determine if very-low-birthweight in infants, with or without other conditions, is associated with long-term disabling outcomes. Volume one reviews six primary outcomes of interest included in this report: (1) cerebral palsy and neurologic disability, (2) abnormal cognitive development and mental retardation, (3) hearing/speech/language impairments, (4) visual disability, (5) adverse pulmonary function, and (6) impaired growth. Report sections include a topic overview, reporting the evidence, study methods, an outline of the findings, and future research. Two additional sections review conclusions and future research. References and a bibliography are provided along with appendices including search strategies, a data abstraction form, acronyms and abbreviations, and acknowledgments. Statistics are included throughout the report. Volume two contains the evidence tables evaluating associations between low-birth-weight and 13 outcomes or disorders.

Contact: U.S. Agency for Healthcare Research and Quality, 5600 Fishers Lane, Rockville, MD 20857, Telephone: (301) 427-1364 Web Site: http://www.ahrq.gov Available in libraries.

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Keywords: Cerebral palsy, Congenital abnormalities, Growth disorders, Infants with developmental disabilities, Low birthweight infants, Physical disabilities, Pregnancy complications, Pregnancy outcome, Premature infants, Preterm birth, Research, Sensory impairments, Statistical data

Annotation: This set of 15 modules provides information to help oral health professionals care for individuals with developmental disabilities, mental retardation (MR), and mental illness. Each module contains a brief review of the purpose and learning objectives, an introduction, and references. Topics include reviews of MR and other conditions such as Down syndrome, cerebral palsy, maladaptive behaviors, genetic syndromes, and mental illness; the use of dental sedation, immobilization and positioning devices, and general anesthesia; clinical concerns in dental care; treatment planning for the severely disabled and the impact on prosthetic, restorative, and surgical services; the provision of services to disabled individuals residing in the community; administrative issues in the practice of dentistry in the MR or mental health (MH) institutional setting; and a review of research needs and opportunities in MH/MR facilities.

Contact: Special Care Advocates in Dentistry, 400 Olde Smithfield Road, Goldsboro, NC 27530, Web Site: http://saiddent.com Available from the website.

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Keywords: Cerebral palsy, Dental care, Dentistry, Developmental disabilities, Distance education, Down syndrome, Mental retardation, Oral health, Patient care management, Resources for professionals, Special health care needs, Training materials

Annotation: This report summarizes a literature review and a field survey related to the cost-effectiveness of nutrition services for children with special health care needs (CSHCN). The literature review concentrates on cystic fibrosis, cerebral palsy, and failure to thrive. It includes an overview of each illness and the outcome indicators cited in the literature. The survey analysis results are presented by agency setting (i.e., clinical, public health, or university setting) and by federal region. A report on the expert panel convened to identify nutrition indicators for CSHCN, a description of workshop participant projects, and a list of workshop participants are included. The report was prepared for the Maternal and Child Health Interorganizational Nutrition Group (MCHING). [Funded by the Maternal and Child Health Bureau]

Contact: Maternal and Child Health Library at Georgetown University, E-mail: [email protected] Web Site: https://www.mchlibrary.org Available from the website. Document Number: HRSA Info. Ctr. MCHM020.

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Keywords: Cerebral palsy, Children with special health care needs, Cost effectiveness, Cystic fibrosis, Failure to thrive, Federal regions, Literature reviews, Nutrition services, Nutrition surveys, Reports

Annotation: This manual, a product of an interagency project between the Virginia Departments of Health and Education, is a guide for parents and professionals on the management of nutrition problems of school children with special needs. It helps school personnel plan nutrition services for students who have special health needs or are chronically ill. The information included facilitates the management of special diets and the expansion of nutrition education in the school curriculum. It includes information on these topics: common nutrition problems and interventions during the school day; dietary considerations of specific conditions and related factors; and nutrition goals and objectives for the individualized education program. Dietary considerations and sources of information and/or nutrition education materials for the following conditions are discussed: cerebral palsy, cystic fibrosis, diabetes mellitus, Down syndrome, juvenile rheumatoid arthritis, phenylketonuria, seizure disorders, spina bifida, constipation, feeding abnormalities, and tube feeding. Nine case studies are presented. The appendix includes information on lunch menu ideas for special diets, nutritious snacks, textural modifications, arthritis diet and drugs, complications of tube feeding, and PKU diet free foods. [Funded by the Maternal and Child Health Bureau]

Contact: Maternal and Child Health Library at Georgetown University, E-mail: [email protected] Web Site: https://www.mchlibrary.org Available for loan. Document Number: HRSA Info. Ctr. MCHI113.

Keywords: Cerebral palsy, Children with special health care needs, Constipation, Cystic fibrosis, Diabetes mellitus, Down syndrome, Enteral nutrition, Epilepsy, Feeding disorders, Individualized education programs, Juvenile rheumatoid arthritis, Nutrition, Phenylketonuria, School food services, Spina bifida

Annotation: This report gives information on a technical assistance project for the North Carolina Department of Environment, Health, and Natural Resources Division of Maternal and Child Health. The project examined practice guidelines to promote health care quality for children with special health needs as their care was expected to migrate to a Medicaid managed care system. The report includes a summary of guidelines for children with the following conditions: asthma, attention deficit hyperactivity disorder, cerebral palsy, congenital deafness, cystic fibrosis, diabetes, sickle cell disease, and spina bifida. The report also identifies the sources of these guidelines. [Funded by the Maternal and Child Health Bureau]

Contact: Altarum Institute, 3520 Green Court, Suite 300, Ann Arbor, MI 48105, Telephone: (734) 302-4600 Secondary Telephone: (800) 879-6505 Fax: (734) 302-4991 Web Site: http://www.altarum.org/contact Available from the website.

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Keywords: Asthma, Attention deficit disorder, Cerebral palsy, Children with special health care needs, Cystic fibrosis, Deafness, Diabetes mellitus, Guidelines, Hyperactivity, North Carolina, Quality assurance, Sickle cell disease, Spina bifida, Standards, State health care reform, Technical assistance

Annotation: This 3-year study was designed to analyze how child, family, and program characteristics relate to child and family outcomes for three target groups served by publicly supported early intervention programs in Massachusetts and New Hampshire. The study sample included 180 children under 24 months of age with either Down syndrome, motor impairment/cerebral palsy, or developmental delay of an unknown etiology. Participants were recruited from 15 early intervention programs in Massachusetts and 3 programs in New Hampshire. Each child and his/her family were evaluated within 1 month of their entry into an early intervention program, and again after 12 months of service delivery. A series of child, family, and program variables were assessed and their relationships examined using both statistical and descriptive analyses. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB92-136217.

Keywords: Cerebral Palsy, Developmentally Delayed/Disabled, Down Syndrome, Early Intervention, Families

Annotation: This monograph describes the current approach to nonoral communication at the University Hospital School in Iowa City, a diagnostic/short-term rehabilitation facility, with emphasis on the methods they find most useful in developing functional interaction with nonspeaking individuals. Specific topics include preliminary nonoral communication criteria, neuromotor impairment affecting speech, positioning and communication, evaluation and selection of systems, developing interaction abilities, integrating communication systems into the classroom, and single subject designs. Case studies are also presented. [Funded by the Maternal and Child Health Bureau]

Keywords: Assistive devices, Cerebral palsy, Child health, Communication disorders, Disabilities, Motor skills, Special health care needs

Annotation: The purpose of this study was to validate the original screen for detection of cerebral palsy (CP) at six months on a separate sample of infants referred for developmental evaluation. It was intended to evaluate screen sensitivity and specificity in a referral population and to assess the screen efficacy by ultimate type and severity of CP. A total of 99 infants from 4 clinic sites were enrolled in the study. The project found that the screen, as originally defined, offered optimal sensitivity and specificity when compared to alternative definitions. The researchers recommended that the sensitivity of this and other instruments need to be demonstrated in clinical settings not staffed by fellowship-trained developmental pediatricians. In addition, since the screen is not 100 percent sensitive and specific at six months, the investigators recommended that organized followup of at-risk or abnormal infants extend to 18-24 months. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB87-199055.

Keywords: Cerebral palsy, Infants, Screening

Annotation: The purpose of this manual is to introduce physicians and therapists, at all levels of training, to the important role played by primitive reflexes in the evaluation of motor function. The first section of the manual focus on a historical perspective. The second section is devoted to a quantitative descriptive profile of selected reflexes. Some information is presented in figures and tables throughout the manual. The manual includes references and an index.

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB83-165357.

Keywords: Cerebral palsy, Children with special health care needs, Infants, Motor development

Annotation: This document focuses on the nutritional management of children and adults with mental or physical disabilities. Major nutritional problems with Down syndrome and cerebral palsy patients are highlighted. Guidelines for feeding, and nutritional assessment are presented.

Contact: Ross Laboratories, Consumer Relations, 625 Cleveland Avenue, Columbus, OH 43215-1724, Telephone: (800) 227-5767 Secondary Telephone: (614) 624-7485 Contact Phone: (614) 227-3333 Web Site: http://www.ross.com Price unknown.

Keywords: Down syndrome, Cerebral palsy, Children with special health care needs, Feeding disorders, Nutrition

Annotation: This book introduces physicians and therapists to the important role played by primitive reflexes in the evolution of motor function. The book contains two major sections. The first presents a historical perspective and reviews how reflexes have been the subject of detailed study by a variety of medical professionals. The second describes a quantitative descriptive profile of selected reflexes that has been developed to provide a clear, structured approach to more sophisticated analyses of reflexes and a more complete understanding of the role reflexes play in inhibiting the development of voluntary motor functioning. The book is extensively illustrated with charts, diagrams, and tables. It includes a bibliography and an index. [Funded in part by the Maternal and Child Health Bureau]

Keywords: Cerebral palsy, Infant development, Infants, Motor development, Motor skills, Pediatric neurology

Annotation: This booklet is intended as an aid to nurses in recognizing signs of disease and anomalies in infants. Although the guide is addressed primarily to nurses, other professionals concerned with the health of infants and children may also find it useful. Special attention is given to the incidence of neurological disorders and anomalies in infants and to the factors which help to identify infants at risk. The focus is placed on the vulnerable child, the evolution of basic neurological reflex patterns, and the maturation of the central nervous system. No attempt is made to cover fundamental principles and practices presented in basic texts. A device is included (inside back cover) to assist with assessment of the rate at which a child achieves developmental milestones, and criteria indicated as to whether an index of suspicion exists. A special procedure is suggested for assessing the child's stage of development and behavior when circumstances indicate that particular discretion is needed to avoid parental anxiety.

Keywords: Assessment, Cerebral palsy, Child development disorders, Developmental screening, Diagnosis, Early childhood development, Infant development, Infants, Infants with developmental disabilities, Mental retardation, Neonatal morbidity, Neurologic tests, Nurses, Nursing services, Public health nursing

Annotation: This report presents an epidemiologic survey of congenital malformations that occurred in single-born children who took part in the Collaborative Study of Cerebral Palsy, Mental Retardation and Other Neurological and Sensory Disorders of Infancy and Childhood. The report includes a complete listing of all observed major and minor malformations. Comparisons are made of malformation incidences at birth and age 1; in liveborn children, fetal deaths, and deaths in children up to age 1; in males and females; and in blacks and whites. The question of institutional heterogeneity is examined. Statistical information is presented in figures and tables throughout the report.

Keywords: Cerebral palsy, Children with special health care needs, Congenital abnormalities, Epidemiology, Fetal mortality, Infant mortality, Infants with special health care needs, Mental retardation, Neurologic manifestations, Racial factors, Sensory impairments

Annotation: This report consists of papers delivered at two symposia sponsored the University of Pennsylvania, the Journal of the American Physical Therapy Association, and the Children's Bureau of the U.S. Department of Health, Education, and Welfare. The report discusses children with central nervous system deficit, dual sensory role of muscle spindles, basic mechanisms of motor learning, postural integration at spinal levels, predisposing genetic and metabolic factors in developmental defects of the central nervous system, perinatal problems and the central nervous system, attitudinal reflex, normal motor development, variations and abnormalities of motor development, some considerations of muscle activity, plasticity of the nervous system of early childhood, mental retardation and the child with central nervous system deficit, patient evaluation, evaluation in the assessment of motor performance, tests and evaluation tools for the child with central nervous system deficit, cerebral palsy, physiology of sensation, and mechanisms in the control of movement. It is a publication of the U.S. Department of Labor, Children's Bureau.

Contact: Maternal and Child Health Library at Georgetown University, E-mail: [email protected] Web Site: https://www.mchlibrary.org Available from the website.

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Keywords: Assessment, Central nervous system diseases, Cerebral palsy, Children, Evaluation, Genetic disorders, Mental retardation, Metabolic diseases, Motor skills, Movement disorders, Neuromuscular diseases, Perinatal influences, Sensory impairments