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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.

Displaying records 1 through 5 (5 total).

2017. National standards for systems of care organizational analysis tool: Multiple-organization. [Rockville, MD]: Health Resources and Services Administration, Maternal and Child Health Bureau, 96 pp.

Annotation: The Multi-Organization Statewide Systems of Care Analysis Tool is designed to help entities and partners serving CYSHCN assess their system's structure and capacity. This includes organizations such as state Title V, Medicaid, CHIP programs, health plans, provider groups, and family organizations. The tool helps stakeholders evaluate how well their organization or system ensures access and quality care for CYSHCN by measuring their ability to implement the policies and processes outlined in the National Standards. Once completed, the results of the assessment can be shared with team members to ensure transparency and collaboration. The tool also prompts organizations to reflect on their policies, procedures, and capacity to meet the standards.

Keywords: State CSHCN programs, Title V programs, Quality assessment, CSHN programs

2017. National standards for systems of care organizational analysis tool: Single-organization. [Rockville, MD]: Health Resources and Services Administration, Maternal and Child Health Bureau, 48 pp.

Annotation: The Single-Organization Statewide Systems of Care Assessment Tool is designed to help individual organizations assess their capacity to provide quality care for Children and Youth with Special Health Care Needs (CYSHCN). This tool is grounded in the National Standards for Systems of Care for CYSHCN, which outline the key components of a comprehensive system aimed at ensuring access to quality care. These standards are based on core outcomes established by the Maternal and Child Health Bureau and Health Resources and Services Administration, developed through extensive research and expert input. The tool is intended for members of a single organization, such as a state Medicaid office or a health plan. The goal is for each stakeholder group engaged in CYSHCN care to conduct this self-assessment. The results can then be shared with other organizations to collectively assess the broader system of care using the Multi-Organization Statewide Systems of Care Analysis Tool.

Keywords: State CSHCN programs, Title V programs, Quality assessment, CSHN programs

Wells N, Anderson B. 2006. Families in Program and Policy FiPPs CSHCN report: Interviews on family participation with State Title V children with special health care needs programs. [Rev. ed.]. Albuquerque, NM: Family Voices, 53 pp.

Annotation: This report presents information about the ways families and family organizations are involved with Title V children with special health care needs (CSHCN) state programs. The report is based on information collected through telephone interviews with Title V CSHCN programs. The report includes a background section, an executive summary, findings, and a conclusion. Findings are categorized as follows: (1) family involvement in CSHCN and MCH programs, 1992 and 2002, (2) overall family involvement in CSHCN programs, (3) family involvement in advisory committees and task force groups, (4) family involvement in addressing state performance measures and special initiatives, (5) family involvement in the block grant process, (6) family members employed by CSHCN programs, (7) family involvement in in-service trainings, (8) support provided to family organizations and families, (9) support provided to families and family organizations, (10) strategies for the involvement of underserved populations, and (11) from the viewpoint of family leaders. The report includes five appendices: (1) Title V toolbox for family participation, (2) suggested strategies for family involvement, (3) state-by-state tables, (4) CSHCN questionnaire, and (5) family leader questionnaire. [Funded by the Maternal and Child Health Bureau]

Keywords: Block grants, CSHN programs, Children with special health care needs, Community participation, Families, Family support, Initiatives, MCH programs, Parent participation, State programs, Title V programs, Training, Underserved communities

Freedman L, Saffian S. 1957. Public programs for crippled children, 1955. Washington, DC: U.S. Children's Bureau, 28 pp. (Children's Bureau statistical series; no. 40)

U.S. Children's Bureau. 1950-1953. Diagnoses of children served in the crippled children's program. Washington, DC: U.S. Children's Bureau, 3 v. (Children's Bureau statistical series; no. 21, 25, 29)
   

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