Search Results: MCHLine

Annotation: Project Copernicus, a dual-State initiative for Maryland and Virginia, developed, demonstrated, and evaluated training programs in family-centered service coordination with target groups of professional service providers and parents in urban, rural, and suburban areas of Maryland and Virginia. Project Copernicus demonstrated how to provide family-centered care for families with children with special health needs by assisting both parents and professional service providers to develop and use family-centered service coordination activities (case management). [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB97-121859.

Keywords: Access to Health Care, CSHCN, Case Management, Chronic illnesses and disabilities, Coordination of Health Care, Disabled, Education of Health Professionals, Families, Family-Centered Health Care, Fragmentation of Services, Parent Education, Parents, programs

Annotation: In an effort to improve statewide care coordination, Rhode Island's Title V Maternal and Child Health program utilized the National Standards for Systems of Care for Children and Youth with Special Health Care Needs (CYSHCN). This case study illustrates how the state implemented these standards through two main initiatives: the Patient-Centered Medical Home for Kids (PCMH-Kids) program launched in 2015, which adapted adult care models to better serve children's unique needs, and improvements to specialty care coordination through Medicaid managed care. The National Standards provided an evidence-based framework that helped stakeholders understand the importance of family-centered, comprehensive care coordination, identified key barriers (such as limited communication between coordinators and reimbursement issues), and guided policy changes. Rhode Island's experience demonstrates how the National Standards can serve as an effective tool for achieving shared understanding among partners and implementing improved care coordination systems, with particular emphasis on family engagement and access to community-based services.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Rhode Island, Title V programs, State CSHCN programs, Standards, Case studies, Children with special health care needs, Youth with special health care needs

Annotation: This resource provides a brief introduction to results-based accountability as a way to effectively measure Evidence-based or informed Strategy Measures (ESMs) as part of the 2017/2019 MCH Block Grant submission. It has been designed to start a process of quality improvement in advancing ESMs, both across the nation and in each Title V agency. It also describes sources for technical assistance. Similar reports are available for each individual state and territorial jurisdiction of the U.S.

Contact: Strengthen the Evidence for MCH Programs, National Center for Education in Maternal and Child Health, Washington, DC Web Site: https://www.mchevidence.org/ Available from the website.

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Keywords: Evidence based health care, Model programs, State CSHCN programs, State MCH programs, Technical assistance, Title V programs

Annotation: This poster illustrates how the Minnesota Act Early and the Minnesota Department of Health cooperated to increase early childhood developmental screenings in their state. It outlines how the project trained parent leaders from Hmong, Somali, and Latino communities to promote awareness of developmental milestones and early intervention services. The document highlights the project's components, including recruitment of community leaders, customized cultural materials, and outreach through various channels such as radio stations and community events. The project involved partnerships between the Minnesota Department of Health, University of Minnesota, and several community organizations to integrate culturally appropriate developmental screening messages across diverse communities.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Minnesota, Developmental screening, State CSHCN programs, Posters, Family support services, Children', s health

Annotation: These posters were presented at the 2018 annual SPHARC (State Public Health Autism Resource Center) Peer-to-Peer Exchange. 9 states discuss issues in telehealth, including their strengths, challenges, and strategies in their efforts to supply telehealth to their constituents. Each state panel is also given the opportunity to express an interesting fact about their state and what they hope to gain during this meeting.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Autism, Title V programs, CSHCN programs, Wisconsin, Washington, Virginia, Texas, Rhode Island, New Hampshire, Minnesota, Iowa, Delaware, Children', s health

Annotation: The posters in this document were presented at the 2017 SPHARC (State Public Health Autism Resource Center) Peer-to-Peer Exchange, hosted by Rhode Island's Autism Program. Eight states presented posters drawing attention to the challenges, strategies, and strengths concerning family navigation.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Autism, State CSHCN programs, Wisconsin, Ohio, Rhode Island, Washington, North Carolina, New Hampshire, Maryland, Iowa, Posters

Annotation: The Multi-Organization Statewide Systems of Care Analysis Tool is designed to help entities and partners serving CYSHCN assess their system's structure and capacity. This includes organizations such as state Title V, Medicaid, CHIP programs, health plans, provider groups, and family organizations. The tool helps stakeholders evaluate how well their organization or system ensures access and quality care for CYSHCN by measuring their ability to implement the policies and processes outlined in the National Standards. Once completed, the results of the assessment can be shared with team members to ensure transparency and collaboration. The tool also prompts organizations to reflect on their policies, procedures, and capacity to meet the standards.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: State CSHCN programs, Title V programs, Quality assessment, CSHN programs

Annotation: The Single-Organization Statewide Systems of Care Assessment Tool is designed to help individual organizations assess their capacity to provide quality care for Children and Youth with Special Health Care Needs (CYSHCN). This tool is grounded in the National Standards for Systems of Care for CYSHCN, which outline the key components of a comprehensive system aimed at ensuring access to quality care. These standards are based on core outcomes established by the Maternal and Child Health Bureau and Health Resources and Services Administration, developed through extensive research and expert input. The tool is intended for members of a single organization, such as a state Medicaid office or a health plan. The goal is for each stakeholder group engaged in CYSHCN care to conduct this self-assessment. The results can then be shared with other organizations to collectively assess the broader system of care using the Multi-Organization Statewide Systems of Care Analysis Tool.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: State CSHCN programs, Title V programs, Quality assessment, CSHN programs

Annotation: This fact sheet provides an overview of the Title V Early Childhood Data Integration toolkit. The fact sheet includes tip sheets, use cases, and state examples on integrating data into Early Childhood Integrated Data Systems (ECIDS). It includes a link to the toolkit itself, and provides information on training sessions on the Title V Data Integration Toolkit. The toolkit was created in partnership with AEM Corporation.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Title V programs, CSHCN programs, Autism, Data collection, Data analysis

Annotation: This report presents findings from a nationwide survey conducted by AMCHP between late 2014 and early 2015, focusing on family engagement within Title V Maternal and Child Health (MCH) and Children and Youth with Special Health Care Needs (CYSHCN) programs. The survey included responses from 68% of MCH programs and 75% of CYSHCN programs across 59 states and territories with Title V funding. The report aims to evaluate the range, depth, and effectiveness of family engagement strategies in these programs and to identify areas for improvement. It underscores the need for improved evaluation methods and greater support for family engagement initiatives. It serves as a call to action for both AMCHP and its partners to address identified gaps and challenges in engaging families effectively.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Title V programs, State CSHCN programs, Surveys, Evaluation, Assessment, Family support programs,

Annotation: This report details findings from a nationwide survey conducted by AMCHP from late 2014 to early 2015, focusing on family engagement within Title V Maternal and Child Health (MCH) and Children and Youth with Special Health Care Needs (CYSHCN) programs. The survey, which achieved responses from 68% of MCH programs and 75% of CYSHCN programs, aims to assess the methods and frequency of family input, strategies for reaching diverse populations, and the challenges and successes in sustaining family engagement.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Title V programs, State CSHCN programs, Surveys, Evaluation, Assessment

Annotation: This report, published by the Association of Maternal & Child Health Programs (AMCHP) in July 2016, presents findings from a nationwide survey on the employment of family members within Title V Maternal and Child Health (MCH) and Children and Youth with Special Health Care Needs (CYSHCN) programs. The survey, conducted between late 2014 and early 2015, involved responses from 40 MCH and 44 CYSHCN programs across 59 states and territories. Insights are provided on employment mechanisms (82% of CYSHCN programs and 55% of MCH programs employ family members as staff, often through contracts with other agencies), roles and compensations (family members are employed in both full-time and part-time positions), and support mechanisms (rograms provide professional development opportunities, including training and leadership activities, as well as support for work-life balance through flexible schedules and telework options). The report emphasizes the importance of these employment practices in fostering meaningful family engagement in program planning and improvement activities.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Title V programs, State CSHCN programs, Surveys, Evaluation, Assessment

Annotation: This report provides an analysis of family engagement practices, highlighting effective strategies, identifying areas needing improvement, and offering recommendations for enhancing family involvement in MCH and CYSHCN Title V programs. Family engagement is assessed across four levels: minimal engagement; specific advisory roles; broad advisory roles; and leadership roles.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Title V programs, State CSHCN programs, Surveys, Evaluation, Assessment

Annotation: This report provides insights from a nationwide survey conducted between late 2014 and early 2015. This survey gathered data on family engagement practices within Title V maternal and child health (MCH) and children and youth with special health care needs (CYSHCN) programs. With responses from 68% of MCH and 75% of CYSHCN programs, the report reflects on the strategies and effectiveness of family engagement in these programs. It emphasizes the importance of creating an organizational culture that prioritizes family engagement to sustain and enhance these practices over time. It also discusses various methods Title V programs use to institutionalize family engagement, such as professional development for staff, integrating family engagement into contracts and grants, and supporting family organizations through formal agreements, in-kind services, and participation in conferences.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Title V programs, State CSHCN programs, Surveys, Evaluation, Assessment

Annotation: From late 2014 through early 2015, the Association of Maternal & Child Health Programs (AMCHP) conducted a nationwide survey about family engagement in Title V maternal and child health and special healthcare needs programs. This executive summary provides key findings from the survey, and is an overview of the other reports created using the same survey. It includes graphs and statistics about response rates from by region. Funding was provided by Lucile Packard Foundation for Children's Health; the U.S. Health Resources and Services Administration and the Maternal and Child Health Bureau also provided support for this project through cooperative agreement U01MC00001.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Title V programs, State CSHCN programs, Surveys, Evaluation, Assessment, Data collection, Data analysis

Annotation: This guide contains examples from states' health departments and nonprofits on the active use of data. Examples were selected to represent ways to collect, communicate, and use data to achieve desired outcomes and influence policy. The four main sections discuss: data collection, data analysis, data communication, and data-informed policy. The guide also contains abstracts of example programs from all around the country, with links to the full reports covering topics such as infant mortality, PRAMS (Pregnancy Risk Assessment Monitoring System) and families with children with special healthcare needs.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Title V programs, State CSHCN programs, Surveys, Evaluation, Assessment, Data collection, Data analysis, Epidemiology, Texas, Wisconsin, Alaska, Mississippi, Massachusetts, Louisiana, Nebraska, Delaware, Florida

Annotation: This Powerpoint presentation focuses on telepractice for autism in Michigan, the elements that are required, and the successes in telemedicine, along with barriers. Included is a color map of Michigan illustrating regional healthcare networks and graphs concerning insurance for autism from pre-2012 to 2016.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Autism, State CSHCN programs, Telemedicine, Michigan

Annotation: This presentation describes the Iowa Child Health Connections (ICHC) website, an online resource for children and youth with special health care needs (CYSHCN), their families, and providers. Developed through collaboration between Child Health Specialty Clinics (CHSC) and the Iowa Department of Public Health, the website launched in March 2016 as part of a HRSA-funded implementation grant focused on improving services for children with autism spectrum disorder and other developmental disabilities. The presentation highlights the website's interactive roadmaps for both families and providers; the information it offers on diagnosis, early childhood development, education, family support, assistive technology, and transitions; and its searchable database with over 2,000 resources available to Iowa families, which can be filtered by county, keyword, or category. The presentation slides highlights the website's user-friendly design with separate sections for parents/families and providers, and details plans for future enhancements including a YouTube channel for training videos and family stories.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Autism, State CSHCN programs, Iowa

Annotation: In response to the significant growth of Minnesota's immigrant population, which accounted for 30% of the state's population increase in 2016, and the rising rates of autism within the Somali and other immigrant communities, Minnesota launched the MN Act Early Outreach program. This PowerPoint presentation details the program's development by the University of Minnesota in collaboration with the MN Department of Health. The initiative trains community delegates to educate local populations about autism screening through culturally sensitive outreach efforts. These activities occur at cultural festivals, health clinics, schools, and daycare centers. Additionally, public service announcements are broadcasted in multiple languages, including Hmong, Somali, and Spanish, over radio programs targeting these communities. The presentation also provides access to websites, podcasts, and links to Act Early training materials, offering comprehensive resources for community education and engagement.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Autism, State CSHCN programs, Minnesota

Annotation: This presentation highlights essential objectives for understanding and navigating the distinctions between clinical diagnosis and educational disability determination. It provides a comparative analysis of the roles of mental health professionals—such as psychiatrists and counselors—with their counterparts in school settings, including school psychologists and social workers. The presentation emphasizes the different tools utilized in each setting, contrasting clinical interviews used in the medical model with IQ tests, achievement measures, and behavioral observations employed in the educational model. The presentation also covers two critical components of an Individualized Education Program (IEP): Present Level of Performance (PLOP), describing how a student’s disability affects their involvement and progress in the general education curriculum, as well as in specific areas of need; and Writing a Behavioral Objective (a Behavioral Objective articulates a specific educational outcome expected from students and consists of three key elements: student behavior, conditions of performance, and performance criteria). The presentation also provides examples of individualized behavioral observations and goal-setting, particularly for modifying the behavior of children on the autism spectrum. These components ensure that behavioral objectives are clear, measurable, and aligned with the student’s educational goals within the IEP.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

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Keywords: Autism, State CSHCN programs, Education, Educational policy