Perrin J. 1993. Coordinated care and case management for children with special health needs [Final report]. Boston, MA: Massachusetts General Hospital, 49 pp.
Annotation: This study was designed to examine families' perceptions of the processes and results of care coordination provided by Title V programs. Although no significant differences in hospital, physician, emergency room, or other health care utilization by provision or type of care coordination were expected, it was hypothesized that certain types or availability of care coordination would diminish perceived unmet needs and would be associated with improved psychological functioning of children and parents and increased satisfaction with health services in general. Analysis of survey responses, received from 562 families with children with special health care needs in 6 States, revealed major differences in the types of services that families perceived they obtained from care coordinators. Family perceptions of whether or not they received case management services appeared to vary substantially from those of the relevant agencies and many families reported receiving case management services from other agencies in addition to the Title V agency. Little or no association was found between the presence, absence, or type of care coordination and such outcome variables as utilization of services, maternal mental health, child functioning, or satisfaction. [Funded by the Maternal and Child Health Bureau]
Contact: National Technical Information Service, U.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: firstname.lastname@example.org Web Site: http://www.ntis.gov Document Number: NTIS PB94-218641.
Keywords: Bronchopulmonary Dysplasia, Case Management, Chronic illnesses and disabilities, Community-Based Health Care, Coordination of Health Care, Data Collection, Families, Spina Bifida