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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.


Displaying records 1 through 20 (350 total).

Pennsylvania Department of Health. n.d.. Local governance leads to strong families and strong communities. Harrisburg, PA: Pennsylvania Department of Health, 20 pp.

Annotation: This report looks at the philosophy of Pennsylvania's "Strong Families/Strong Communities" campaign, which stresses the importance of local governance and community strategies to state initiatives designed to preserve families and strengthen communities. It provides descriptions of state strategies and programs that involve community action designed to improve child and family outcomes.

Contact: Pennsylvania Department of Health, Health and Welfare Building, 625 Forster Street, Eighth Floor West, Harrisburg, PA 17120, Telephone: (877) 724-3258 Web Site: http://www.health.pa.gov Available from the website.

Keywords: Child advocacy, Community based services, Community programs, Families, Family preservation programs, Local initiatives, Outreach

Simmons E. n.d.. Youth in Transition—The Alabama Experience: [Final report]. Montgomery, AL: Alabama Department of Education, 32 pp.

Annotation: This project focused on developing a systematic approach to integrate medical, vocational, educational, psychosocial, and developmental services for adolescents with physical disabilities and/or chronic illness who are at risk in their transition to maturity. Project objectives were to (1) create an administrative structure at the State level and in two pilot sites for provision of an integrated continuum of health and education services; (2) enable service providers, through training and collaboration, to coordinate service planning for the target population; (3) enable the adolescent and family, through counseling and training, to function as their own "case manager"; and (4) monitor and evaluate the model to determine the feasibility for replication in Alabama and/or other states. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-147031.

Keywords: Adolescents with special health care needs, Advocacy, Chronic illnesses and disabilities, Community-Based Health Care, Coordination of Health Care, Data Bases, Interdisciplinary Teams, Rural Population, Urban Population

Williams S. n.d.. Improving Community-Based Services for Special Needs Children and Their Families in Rural Utah [Final report]. Salt Lake City, UT: Utah Department of Health, 19 pp. pp.

Annotation: The goal of the project was to improve the functioning of special needs children and their families by providing locally based clinic and care coordination services in a rural area in Utah. The program objectives were to: (1) Involve parents of special needs children in developing a service plan for their child, (2) improve the implementation of service plans for rural special needs children, (3) improve coordination of services to rural special needs children, and (4) improve adequacy of services to these children. While maintaining current multidisciplinary clinic services, Children's Special Health Services worked through the local health department to place a nurse coordinator, secretary, social worker, and trained parent advocates in the local community. This team built upon existing local systems to improve the functional outcomes of the children. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB97-121834.

Keywords: Access to Health Care, Advocacy, Children with Special Health care Needs, Chronic Illnesses and Disabilities, Community Based Health Services, Parents, Rural Population, Service Coordination

Hostler S. n.d.. Family Autonomy Project [Final report]. Charlottesville, VA: University of Virginia, 50 pp.

Annotation: The goal of this project was to ensure the successful transition to adulthood of adolescents with physical disabilities or chronic illnesses by means of interventions with families, the health care team, and the adolescents themselves. The project sought to encourage the involvement of families in planning for the health care of their children, to modify staff behaviors and institutional practices to promote family autonomy, and to broaden treatment goals so that they included health maintenance and future planning for adolescents with special needs. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-196962.

Keywords: ., Adolescents with special health care needs, Advocacy, Chronic illnesses and disabilities, Families, Family-Centered Health Care Transition, Support Groups

Camic N. n.d.. Families in the Changing Health Care Marketplace [Final report]. Madison, WI: Center for Public Representation, 21 pp.

Annotation: The goal of this project was to assist in the formation of a collaborative effort involving the government, providers, private payers, and families in order to reconcile the operational difficulties of achieving health care cost containment while retaining quality, access, and family-centeredness. The project sought to: develop approaches to health care financing that are sensitive to the needs of families with children who have special health care needs; assist families with special health care needs in dealing with financial problems which pose barriers to obtaining appropriate health services; and disseminate information regarding financing of care for children with special health care needs. Family health benefits counselors assisted approximately 1600 over the course of the project by conducting intake interviews, informing families about health care financing options, assisting in completing applications and/or filing appeals or denials of public or private benefits and facilitating negotiations with medical creditors. Consultation with legal backup and referral for legal intervention were distinguishing aspects of the project. Benefits counselors and project attorney worked with state and county administrative and regulatory agencies, private insurers and health care providers and associations to resolve systemic problems. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-199156.

Keywords: Advocacy, Case Management, Chronic illnesses and disabilities, Families, Family health, Financial Counseling, Financing Health Care, Health Insurance, Health Maintenance Organizations (HMOs), Medicaid, Reimbursement

Page-Goertz S. n.d.. Kansas Breastfeeding Promotion Project [Final report]. Kansas City, KS: University of Kansas, 40 pp.

Annotation: The project objectives were to: (1) Develop community capability to increase breastfeeding incidence and duration through education and advocacy, specifically through Breastfeeding Action Teams composed of Title V and other health professionals; (2) incorporate breastfeeding promotion and lactation management into curriculums of student/resident health professionals; and (3) establish a clearinghouse of breastfeeding resources at the Best Beginnings Program at Kansas University Medical Center, to be available to health care providers statewide. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB97-121842.

Keywords: Advocacy, Breastfeeding, Breastfeeding Promotion, Curricula, Health Promotion, Information Services, Information Sources, Patient Education

Child Welfare League of America. n.d.. The history of White House conferences on children and youth. Arlington, VA: Child Welfare League of America, 78 pp.

Annotation: This report provides information on White House conferences on children and youth, beginning in 1909 and extending through 1970. A description of each conference is included.The report is primarily composed of multiple appendices that include supplementary documents pertaining to the conferences.

Contact: Child Welfare League of America, 1726 M Street, N.W., Suite 500, Washington, DC 20036, Telephone: (202) 688-4200 Fax: (202) 833-1689 Web Site: http://www.cwla.org Available from the website.

Keywords: Adolescents, Child advocacy, Children, Conferences, Federal initiatives, Government, History, Youth

Campaign to Save our Mothers and Babies. n.d.. 10 strategies for Illinois to have healthy babies. Chicago, IL: Illinois Maternal and Child Health Coalition,

Annotation: This fact sheet lists and describes ten strategies that can help increase the health of babies in the state of Illinois. Increasing access to family planning education and affordable health care across the life span; ensuring the quality of prenatal and general healthcare; offering maternity/paternity paid leave; developing comprehensive systems of care; maintaining effective and efficient health data systems; ending discriminatory policies and practices; and advocating for community development improvements are among the strategies outlined.

Contact: Illinois Maternal and Child Health Coalition, 1256 West Chicago Avenue, Chicago, IL 60642, Telephone: (312) 491-8161 Fax: (312) 491-8171 E-mail: [email protected] Web Site: http://www.ilmaternal.org Available from the website.

Keywords: Advocacy, Health promotion, Illinois, Infant health, Prevention programs, State programs

Action for Healthy Kids. n.d.. Classroom energizers and brain breaks. Chicago, IL: Action for Healthy Kids, 2 pp. (Tip sheet)

Annotation: This document provides tips on ways to include fitness breaks in school and resources available to help schools get started. Contents include ideas for classroom activity breaks, using music, suggestions for middle and high school students, tips on involving physical education teachers, and asking students to share their physical activity break ideas.

Contact: Action for Healthy Kids, 600 W. Van Buren Street, Suite 720, Chicago, IL 60607-3758, Telephone: (800) 416-5136 Fax: (312) 212-0098 E-mail: [email protected] Web Site: https://www.actionforhealthykids.org Available from the website.

Keywords: Academic achievement, Advocacy, Learning, Participation, Physical activity, Resources for professionals, School age children, School health, Schools, Students

Le C, Gabra M. n.d.. LGBTQ+ oral health: Disparities and opportunities for change. Boston, MA: Community Catalyst, 2 pp.

Annotation: This fact sheet provides information on barriers that lesbian, gay, bisexual, transgender, queer or questioning, intersex, asexual, and more (LGBTQ+) people face in accessing oral health care. Topics include discrimination and mistreatment, prevalence of this population who have chronic health conditions and other risk factors, and lack of coverage of LGBTQ+-specific topics in oral health professional training programs. The fact sheet also discusses what oral health advocates can do to improve access to oral health care for the population and lists talking points and sample tweets.

Contact: Community Catalyst, 30 Winter Street, 10th Floor, Boston, MA 02108, Telephone: (617) 338-6035 Fax: (617) 451-5838 E-mail: [email protected] Web Site: https://www.communitycatalyst.org Available from the website.

Keywords: Access to health care, Advocacy, Discrimination, Homosexuality, Oral health, Sexuality

Tennessee Department of Health. n.d.. Tennessee state oral health plan: 2022-2027 plan. Nashville, TN: Tennessee Department of Health, 48 pp.

Annotation: This state oral health plan for 2022–2027 summarizes goals of the Tennessee Department of Health related to improving the oral health of Tennessee residents. The report discusses the importance of oral health, the department's past oral-health-related accomplishments, and the department's role in providing oral health care. Also discussed are access to oral health care, oral health education and advocacy, oral disease prevention, oral health resources, and the oral health workforce. The state's Healthy Smiles Initiative is described, along with the future of oral health in Tennessee.

Contact: Tennessee Department of Health, Oral Health Services Section, 710 James Robertson Parkway, Andrew Johnson Tower, Nashville, TN 37243, Telephone: (615) 741-3111 E-mail: [email protected] Web Site: https://tn.gov/health/section/oralhealth Available from the website.

Keywords: Access to health care, Advocacy, Dental caries, Dental sealants, Fluoride varnish, Health education, Oral health, Prevention, Silver diamine fluoride, State initiatives, State materials, Tennessee, Workforce

Maternal Health Learning and Innovation Center. 2024. The practical playbook III: Working together to improve maternal health . Chapel Hill, NC: Maternal Health Learning and Innovation Center, 665 pp.

Annotation: This resource for professionals provides actionable guidance that encourages collaboration across diverse sectors to address and improve inequities and maternal health outcomes. It provides examples of partnerships that leverage new ideas and resources, including innovative approaches to gathering and using data; highlights policies and practices that are improving the health and well-being of birthing people and children across the United States; and includes stories from birthing people and women about their pregnancy and childbirth experiences. Graphics and sample text for social media posts are also provided.

Contact: Maternal Health Learning and Innovation Center , University of North Carolina at Chapel Hill, Chapel Hill, NC Web Site: https://maternalhealthlearning.org/

Keywords: Prenatal care, Advocacy, Childbirth, Colllaboration, Community action, Data, Health equity, Maternal health, Models, Policy, Pregnancy, Resources for professionals

Arizona Oral Health Coalition Advocacy Committee. 2024. Advocacy toolkit. [no place]: Arizona Oral Health Coalition, 18 pp.

Annotation: This toolkit, which is geared toward oral health advocates in Arizona, is a collection of resources that can help with advocating for oral heath policies at the Arizona legislature. The toolkit is divided into three sections. The first section provides information about the Arizona legislature. The second discusses how a bill becomes a law. The third provides tools and tips related to the following topics: advocacy vs. lobbying, finding a lawmaker, the request-to-speak system, creating a message, and meeting with a legislator.

Contact: Arizona Oral Health Coalition, Web Site: https://azohc.org Available from the website.

Keywords: Advocacy, Arizona, Legislation, Legislatures, Lobbying, Oral health, State government

National Network for Oral Health Access. 2024. A health guide and support for dental visits. Denver, CO: National Network for Oral Health Access, 2 pp.

Annotation: This brochure provides information for consumers about dental visits. Topics include what do do after a dental visit, advocating for oneself during a visit, caring for oneself before and after a visit, how to address barriers to visiting the dentist, determining goals for a dental visit, how to prepare for a visit, and other ways to access oral health care. A companion guide for oral health professionals is also available.

Contact: National Network for Oral Health Access, 181 East 56th Avenue, Suite 410, Denver, CO 80216, Telephone: (303) 957-0635 E-mail: [email protected] Web Site: http://www.nnoha.org Available from the website.

Keywords: Access to health care, Advocacy, Consumer education materials, Financial barriers, Oral health

Association of State and Territorial Dental Directors. 2024. Oral health coalitions & community advocates: A key element of state and local oral health infrastructure. Reno, NV: Association of State and Territorial Dental Directors, 2 pp.

Annotation: This tip sheet discusses the reliance of oral health programs on health coalition members and community advocates to create and implement state plans, promote evidence-based prevention and public health approaches, and advocate for new policies and laws. It also provides 10 recommendations for what these coalition members and advocates can do to support state oral health infrastructure and capacity building.

Contact: Association of State and Territorial Dental Directors, 3858 Cashill Boulevard, Reno, NV 89509, Telephone: (775) 626-5008 Fax: (775) 626-9268 E-mail: [email protected] Web Site: https://www.astdd.org Available from the website.

Keywords: Advocacy, Oral health, Public health infrastructure, Public policy, State legislation, State programs

Wilson K, Haber J, Casamassimo PS, Russell B, Glicken A. 2024. Championing minimally invasive care: Aligning advocacy to transform oral health. Boston, MA: CareQuest Institute for Oral Health and Association and Territorial Dental Directors, 25 pp.

Annotation: This report provides information about minimally invasive care (MIC) and the importance of advocating for its use in the treatment of oral disease. The report provides background information on how MIC can increase access to oral health treatment, ease anxiety about receiving oral health treatment, and help people achieve good oral health throughout life. Topics include implementing advocacy messaging, audiences for advocacy, evaluation of MIC and considerations for its use, and key messages. A talking points summary is included.

Contact: CareQuest Institute for Oral Health, 465 Medford Street, Boston, MA 02129-1454, Telephone: (617) 886-1700 Web Site: https://www.carequest.org Available from the website.

Keywords: Access to health care, Advocacy, Health care utilization, Oral health, Treatment

Genetic Alliance, Parent to Parent USA, Family Voices. 2023. Advocacy ATLAS: Accessible Tools for Leadership and Advocacy Success. Washington, DC: Genetic Alliance, multiple items.

Annotation: This resource provides individuals with special health care needs and their families with tools and strategies to advocate for whatever they may need. Topics include access to health care, accessible communities, advocacy and leadership skills, communicating about health, education services and support, insurance and financial assistance, legislation and political action, steps to employment success, transition to adulthood, and youth leadership.

Contact: Genetic Alliance, 4301 Connecticut Avenue, N.W., Suite 404, Washington, DC 20008-2369, Telephone: (202) 966-5557 Secondary Telephone: (800) 336-GENE Fax: (202) 966-8553 E-mail: [email protected] Web Site: http://www.geneticalliance.org Available from the website.

Keywords: Access to health care, Advocacy, Communication, Family support services, Leadership, Life course, Special health care needs, Transitions

National Academies of Sciences, Engineering, and Medicine. 2022. Civic engagement and civic infrastructure to advance health equity: Proceedings of a workshop. Washington, DC: National Academies Press, 98 pp.

Annotation: These proceedings are from a workshop convened by the National Academies of Sciences, Engineering, and Medicine's roundtable on Population Health Improvement. The workshop explored the link between measures of civic engagement and quantitative and qualitative measure of health equity and the roles that civic infrastructure, narrative, and media play in shaping civic engagement. The document provides additional readings and resources.

Contact: National Academies Press, 500 Fifth Street, N.W., Keck 360, Washington, DC 20001, Telephone: (202) 334-3313 Secondary Telephone: (888) 624-8373 Fax: (202) 334-2451 E-mail: [email protected] Web Site: http://www.nap.edu

Keywords: Access to health care, Advocacy, Health care disparities, Health equity, Health policy, Health status disparities, Policy analysis, Policy development, Public health infrastructure

Center for Science in the Public Interest. 2022. Pouring rights: A toolkit for advocates. Washington DC: Center for Science in the Public Interest, 10 pp.

Annotation: This toolkit was created to support student-led advocacy to end or amend pouring rights contracts at public universities and create a healthier beverage environment on campus. The toolkit provides information about contracts and discusses the path forward and how to make the case for reforming pouring rights on campus. Sample communication materials are included.

Contact: Center for Science in the Public Interest, 1220 L Street, N.W., Suite 300, Washington, DC 20005, Telephone: (202) 332-9110 Fax: (202) 265-4954 E-mail: [email protected] Web Site: http://www.cspinet.org Available from the website.

Keywords: Advocacy, Campaigns, College students, Health promotion, Nutrition

Center for Science in the Public Interest. 2022. Healthy school meals for all: A toolkit for advocates. Washington DC: Center for Science in the Public Interest, 19 pp.

Annotation: This toolkit provides information and resources to help advocates to improve the quality of school meals. It discusses the history of school meals; school meals today; the Healthy, Hunger-Free Kids Act of 2010, and lawsuits over a 2018 U.S. Department of Agriculture rule that weakened sodium, whole grain, and flavored milk standards for school meals. Also discussed are the effect of the COVID-19 pandemic on the importance of school meals, the Center for Science in the Public Interest's vision for school meals, and what advocates can do to help realize this vision. Fact sheets on key priorities are included, along with information on state and local model legislation and policy, messaging guidance, and sample communication materials.

Contact: Center for Science in the Public Interest, 1220 L Street, N.W., Suite 300, Washington, DC 20005, Telephone: (202) 332-9110 Fax: (202) 265-4954 E-mail: [email protected] Web Site: http://www.cspinet.org Available from the website.

Keywords: Advocacy, Legislation, Nutrition, Public policy, School age children, School health

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This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.