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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.

Displaying records 1 through 20 (51 total).

Bronheim S, Fiel S, Schidlow D, MagrabP, Boczar K, Dillon C. n.d.. Crossings: A manual for transition of chronically ill youth to adult health care. Harrisburg, PA: Pennsylvania Department of Health, 52 pp.

Annotation: This manual is intended as a guide for health professionals to establish a new health care delivery system for transitioning adolescents with chronic illness to adult health care. Health professionals learn about eight objectives: exploring one's commitment to transition, identification of initial partners; securing institutional support; assuring economic feasibility, developing a structure, developing a successful partnership, and achieving a successful transfer of patients. A self-assessment form is included.

Contact: Georgetown University Center for Child and Human Development, Box 571485, Washington, DC 20057-1485, Telephone: (202) 687-5503 Secondary Telephone: (202) 687-5000 Fax: (202) 687-8899 E-mail: [email protected] Web Site: http://gucchd.georgetown.edu Price unknown.

Keywords: Access to health care, Adolescents with special health care needs, Chronic illnesses and disabilities, Health services, Special health care needs, Transition planning, Transitions, Young adults

D.C. Resource Center for Children with Special Health Care Needs. n.d.. Sexuality information resource list. Washington, DC: D.C. Resource Center for Children with Special Health Care Needs, 3 pp.

Annotation: This fact sheet lists resources on sexuality education, education curricula, health conditions and disabilities, online learning, educators and counselors, and national resources related to sexuality and children and adults with disabilities. Resources also cover parenting with a disability, reproductive health, sexual violence, and screening for abuse or violence.

Contact: D.C. Resource Center for Children with Special Health Care Needs, Washington, DC Web Site: http://dccshcn.org Available from the website.

Keywords: Adolescents with special health care needs, Adults, Children with special health care needs, Disabilities, Sexuality education

Family Voices; IMPACT. n.d.. Transitions--Growing up and away. Albuquerque, NM: Family Voices, IMPACT, 3 pp.

Annotation: This fact sheet provides tips to help parents of adolescents with special health care needs support their sons' and daughters' transition into adulthood.

Contact: Family Voices, P.O. Box 37188, Albuquerque, NM 87176, Telephone: (505) 872-4774 Secondary Telephone: (888) 835-5669 Fax: (505) 872-4780 Web Site: http://www.familyvoices.org Available from the website.

Keywords: Adolescent development, Adolescents with special health care needs, Parenting, Transition planning, Transitions, Young adults

Missouri Department of Health and Senior Services, Office of Dental Health. [2021?]. ELKS report: Information on the oral health of individuals with intellectual/development disabilities 2019-2020. Jefferson City, MO: Missouri Department of Health and Senior Services, Office of Dental Health, 35 pp.

Annotation: This report provides information about the oral health of individuals with intellectual or developmental disabilities in Missouri. Topics include oral hygiene, dental sealants, treated and untreated tooth decay, treatment urgency, and history of rampant tooth decay. Information about survey participants’ ages, genders, races, and ethnicities, as related to these topics, is included.

Contact: Missouri Department of Health and Senior Services, Office of Dental Health, P.O. Box 570, Jefferson City, MO 65102-0570, Telephone: (573) 751-5874 E-mail: [email protected] Web Site: http://health.mo.gov/living/families/oralhealth/index.php Available from the website.

Keywords: Adults with special health care needs, Children with special health care needs, Chronic illnesses and disabilities, Dental caries, Dental hygiene, Missouri, Oral health, State surveys, Treatment

Association of State and Territorial Dental Directors and National Maternal and Child Oral Health Resource Center. 2021. Best practice approach: Oral health care of people with special health care needs. Reno, NV: Association of State and Territorial Dental Directors; Washington, DC: National Maternal and Child Oral Health Resource Center, 15 pp. (Best practice approaches for state and community oral health programs)

Annotation: This report offers information about the oral health of people with special health care needs (SHCN). It presents background information, including information on considerations for oral health care delivery, promising initiatives, the workforce, sites of care, financing of care, establishing comprehensive care, and data. Strategic calls to action for improving the oral health care of people with SHCN are also included. The report offers guidelines and recommendations, research evidence, and state practice examples illustrating strategies and interventions for people with SHCN. [Funded by the Maternal and Child Health Bureau]

Contact: Association of State and Territorial Dental Directors, 3858 Cashill Boulevard, Reno, NV 89509, Telephone: (775) 626-5008 Fax: (775) 626-9268 E-mail: [email protected] Web Site: https://www.astdd.org

Keywords: Access to health care, Adolescents with special health care needs, Adults with special health care needs, Children with special health care needs, Guidelines, Model programs, Oral health, Research

Stewart RE, Meisel B, Mathe G, Reddy M. 2021. The USCF Special Needs Dentistry Summit: A call to action for solving California's lack of oral health care for people with special health care needs. San Francisco, CA: University of California, San Francisco, School of Dentistry, 12 pp.

Annotation: This paper provides information from a summit focusing on difficulties people with special health care needs face in accessing oral health care in California. Topics include oral health care for children vs. adults with special health care needs, financial considerations, and steps toward solutions.

Contact: University of California, San Francisco, School of Dentistry, 513 Parnassus Avenue, S 630, San Francisco, CA 94143, Web Site: https://dentistry.ucsf.edu/ Available from the website.

Keywords: Access to health care, Adults with special health care needs, California, Children with special health care needs, Conferences, Oral health, State information

Surdu S, Langelier M, Fosse C, Li Q. 2020. Contributions of general and specialty dentists to provision of oral health services for people with special needs. Rensselaer, NY: Oral Health Workforce Research Center, 50 pp.

Annotation: This report describes a study conducted to evaluate the attitudes and willingness of general and specialty dentists to treat people with special health care needs and to identify barriers that dentists face in caring for them. The report presents findings from a literature review and results and conclusions from the study.

Contact: Oral Health Workforce Research Center, New York Center for Health Workforce Studies, University of Albany, SUNY, School of Public Health, 1 University Place, Suite 220, Rensselaer, NY 12144-3445, Telephone: (518) 402-0250 Fax: (518) 402-0252 Web Site: http://www.oralhealthworkforce.org Available from the website.

Keywords: Adolescents with special health care needs, Adults with special health care needs, Children with special health care needs, Dentists, Oral health, Statistical data, Studies, Training

National Academy for State Health Policy. 2020. National standards for CYSHCN one-pagers showcase most utilized domains. Portland, ME: National Academy for State Health Policy, 1 web resource.

Annotation: The National Standards for Systems of Care for Children and Youth with Special Health Care Needs (CYSHCN) define the core components of a comprehensive, coordinated, and family-centered system of care for CYSHCN. These one-pagers highlight the five most utilized National Standards domains, including identification and assessment, access to care, transition to adult care, medical homes, and community-based services and supports. The downloadable one-pagers include standards language, relevant quality measures, and examples of state implementation.

Contact: National Academy for State Health Policy, 10 Free Street, Second Floor, Portland, ME 04101, Telephone: (207) 874-6524 Secondary Telephone: (202) 903-0101 Fax: (207) 874-6527 E-mail: [email protected] Web Site: http://www.nashp.org Available from the website.

Keywords: Adolescents with special health care needs, Children with special health care needs, Standards, Young adults

Barbara Aved Associates. 2020. Painful realities: General anesthesia access in Sacramento GMC dental managed care. Sacramento, CA: Sacramento County Department of Health Services, Public Health Division, Oral Health Program, 71 pp.

Annotation: This report describes a study conducted to determine the availability of general anesthesia (GA) for oral health care in Sacramento County, CA, particularly for individuals with special health care needs (SHCN). The report discusses the importance of GA for those with SHCN who may be unable to tolerate oral health care without it. Topics include process and data sources, background, findings, and recommendations.

Contact: Sacramento County Department of Health Services, Public Health Division, 7001-A East Parkway, Suite 600, Sacramento, CA 95823, Telephone: (916) 875-6259 Web Site: http://www.scph.com Available from the website.

Keywords: Access to health care, Adults with special health care needs, California, Children with special health care needs, Oral health, State programs

University of California, San Francisco, School of Dentistry. 2020. Special needs dentistry: Summit synopsis. San Francisco, CA: University of California, San Francisco, School of Dentistry, 8 pp.

Annotation: This report provides information from the Special Needs Dentistry Summit attended by stakeholders across community, education, government, and industry sectors to develop consensus on the conditions necessary to improve access to care for people with special health care needs and steps to address the problem of poor access. Report topics include barriers to accessing care and causes of the problem. Goals for progress in the short, medium, and long term are presented.

Contact: University of California, San Francisco, School of Dentistry, 513 Parnassus Avenue, S 630, San Francisco, CA 94143, Web Site: https://dentistry.ucsf.edu/ Available from the website.

Keywords: Access to health care, Adults with special health care needs, California, Children with special health care needs, Oral health, State initiatives

Virginia Department of Health. 2019. Virginia's individuals with special health care needs oral health basic screening survey 2019 results. Richmond, VA: Virginia Department of Health, 20 pp.

Annotation: This report provides information about Virginia’s first Special Health Care Needs Oral Health Basic Screening Survey. The report describes results in the following areas: whether the respondent has a special health care need, respondent age and living situation, respondent health insurance and dental insurance status, whether the respondent had a problem with their teeth or mouth during the past 12 months, whether the respondent had a dentist to go to regularly and whether they had their teeth cleaned in the last 12 months, how confident the respondent or their caregiver is about caring for teeth at home, and whether anything prevented the respondent from receiving dental care in the past 12 months.

Contact: Virginia Department of Health, P.O. Box 2448, Richmond, VA 23218, Telephone: (804) 864-7000 E-mail: [email protected] Web Site: https://www.vdh.virginia.gov Available from the website.

Keywords: Adolescents with special health care needs, Adults with special health care needs, Children with special health care needs, Chronic Illnesses and disabilities, Oral health, State initiatives, Surveys, Virginia

Honsberger K, Eichner H. 2018. How states use the national standards for CYSHCN to strengthen Medicaid managed care for children with special health care needs. Portland, ME: National Academy for State Health Policy,

Annotation: This fact sheet provides examples of state actions to use the National Standards for Children and Youth with Special Health Care Needs (CYSHCN) to strengthen their managed care systems for CYSHCN. Topics include analyzing and enhancing specialized managed care plans, providing a framework to design and strengthen care delivery systems, strengthening contract language to address the needs of CYSHCN, and improving care coordination and transition to adult care. The various state examples outlined here resulted from a 12-month learning collaborative facilitated by NASHP, in partnership with the Association of Maternal & Child Health Programs (AMCHP), with support from the Lucile Packard Foundation for Children’s Health (LPFCH).

Contact: National Academy for State Health Policy, 10 Free Street, Second Floor, Portland, ME 04101, Telephone: (207) 874-6524 Secondary Telephone: (202) 903-0101 Fax: (207) 874-6527 E-mail: [email protected] Web Site: http://www.nashp.org Available from the website.

Keywords: Adolescents with special health care needs, Children with special health care needs, Managed care, Medicaid, Standards, State programs, Title V programs, Young adults

Eichner H, Handler M, Honsberger K, Normile B, Bussanich P. 2018. The national standards for children and youth with special health care needs: A compendium of national data and quality measure sets. Portland, ME: National Academy for State Health Policy, 12 pp.

Annotation: This measures compendium provides states and other key stakeholders with a reference tool that highlights relevant quality measures aligned with key domains of the National Standards for Children and Youth with Special Health Care Needs (CYSHCN). Topics include family-professional partnerships, cultural competence, indentification, screening, assessment, referral, insurance coverage, access to care, medical home, community-based services and supports, transition to adulthood, and health information technology.

Contact: National Academy for State Health Policy, 10 Free Street, Second Floor, Portland, ME 04101, Telephone: (207) 874-6524 Secondary Telephone: (202) 903-0101 Fax: (207) 874-6527 E-mail: [email protected] Web Site: http://www.nashp.org Available from the website.

Keywords: Adolescents with special health care needs, Children with special health care needs, Data sources, Standards, Young adults

Wong A, Sands W. 2018. Quality resource guide: Introduction to patients with special healthcare needs. New York, NY: Metropolitan Life Insurance Company, 8 pp.

Annotation: This document for oral health professionals provides information about dental treatment and prevention of oral disease for people with special health care needs (SHCN). Topics include oral health needs among those with SHCN, delivery of care and principles to guide it, developing the oral health care team, scheduling, desensitizing, decreasing acids, additional assistance, special concerns, fluoride and tooth remineralization, and caries arrest with silver diamine fluoride.

Contact: Metropolitan Life Insurance Company, 200 Park Avenue, New York, NY 10166, Web Site: http://www.metlife.com Available from the website.

Keywords: Adolescents with special health care needs, Adults with special health care needs, Children with special health care needs, Dental caries, Infants with special health care needs, Oral health, Prevention, Treatment

National Academy for State Health Policy. 2017 (ca.). Toolkit: National standards for children and youth with special health care needs. Portland, ME: National Academy for State Health Policy,

Annotation: This toolkit provides a portal to critical tools, fact sheets, and other resources that states can use to design, strengthen, and improve health care systems serving children and youth with special health care needs and their families. Materials include publications, managed care, tools and tips, webinars, and quality measurement.

Contact: National Academy for State Health Policy, 10 Free Street, Second Floor, Portland, ME 04101, Telephone: (207) 874-6524 Secondary Telephone: (202) 903-0101 Fax: (207) 874-6527 E-mail: [email protected] Web Site: http://www.nashp.org Available from the website.

Keywords: Adolescents with special health care needs, Children with special health care needs, Standards, Young adults

Association of Maternal & Child Health Programs and the National Academy for State Health Policy. 2017 . National standards systems of care for children and youth with special health care needs (rev ed). Washington, DC: Association of Maternal and Child Health Programs; Portland, ME: National Academy for State Health Policy, 36 pp.

Annotation: This resource provides a set of system standards that can be used or adapted for use by various systems and organizations that serve CYSHCN. This includes state Title V programs, state Medicaid and CHIP programs, private and public health plans, pediatricians and other health care providers, family/consumer groups, as well as families themselves. Topics include (1) identification, screening, assessment, and referral; (2) eligibility and enrollment in health coverage; (3) access to care; (4) medical home; (5) community-based services and supports; (6) transition to adulthood; (7) health information technology; and (8) quality assurance and improvement.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org Available from the website.

Keywords: Adolescents with special health care needs, Children with special health care needs, Standards, Young adults

National Council on Disability. 2017. Neglected for too long: Dental care for people with intellectual and developmental disabilities. Washington, DC: National Council on Disbility, 10 pp. (Issue brief)

Annotation: The brief provides information on inadequate access to oral health care for people with intellectual and developmental disabilities (IDD). The brief introduces the issue and discusses ethics and professional conduct, training, dental school curricula requirements, and Medicaid coverage for this population. A list of programs that train dental students in providing care for people with IDD is included, along with recommendations on how to address the problem of lack of access to care and highlights from the brief.

Contact: National Council on Disability, 1331 F Street, N.W., Suite 850, Washington, DC 20004-1107, Telephone: (202) 272-2004 Secondary Telephone: (202) 272-2074 Fax: (202) 272-2022 E-mail: [email protected] Web Site: http://www.ncd.gov/ Available from the website.

Keywords: Access to health care, Adults with special health care needs, Children with special health care needs, Medicaid, Oral health

Washington State Department of Health, Oral Health Program. 2016. Oral health promotion cards. Olympia, WA: Washington State Department of Health, Oral Health Program, 26 items.

Annotation: This series of cards provides oral health messages for health professionals to share with clients and their families. Each card addresses a specific population (pregnant women, infants, children, adolescents, children with special health care needs, adults, and older adults) and is accompanied by a brochure listing messages and resources. The cards and brochures are available in English and in Spanish.

Contact: Washington State Department of Health, P.O. Box 47890, Olympia, WA 98504-7890, Telephone: (800) 525-0127 Secondary Telephone: (360) 236-4030 Web Site: http://www.doh.wa.gov Available from the website.

Keywords: Adolescents, Adults, Children with special health care needs, Educational materials, Health promotion, Infants, Life course, Oral health, Pregnant women, Resources for professionals, Spanish language materials, Young children

Association of Maternal and Child Health Programs and Family Voices. 2016. Stories of the newly enrolled: How new ACA coverage options are impacting women and families raising children with special health care needs. Washington, DC: Association of Maternal and Child Health Programs, 7 pp.

Annotation: This brief presents five case studies of women, young adults, and families, including those raising children and youth with special health care needs (CYSCHN), about enrolling in and receiving care through the Affordable Care Act (ACA) health insurance coverage. The contents illustrate some of the benefits of the ACA's new coverage options for women and families with CYSCHN and challenges that remain in closing gaps in care and ensuring appropriate coverage for vulnerable populations. Topics include ACA provider networks, autism treatment coverage; and coverage for Native Americans; immigrant and refugee women, and young adult women. [Funded by the Maternal and Child Health Bureau]

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org Available from the website.

Keywords: Access to health care, American Indians, Case studies, Children with special health care needs, Family centered care, Financing, Health care reform, Health insurance, Immigrants, Patient Protection and Affordable Care Act, Program improvement, Refugees, Women, Young adults

Antosh AA, Blair M, Edwards K, Goode T, Hewitt A, Izzo M, Johnson DR, Raynor O, Riddle I, Shanley JL, Walker R, Wehmeyer M. 2014. A comprehensive approach to transition. Silver Spring, MD: Association of University Centers on Disabilities, 21 pp.

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This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.