Search Results: MCHLine

Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.

Displaying records 1 through 20 (221 total).

Bronheim S, Fiel S, Schidlow D, MagrabP, Boczar K, Dillon C. n.d.. Crossings: A manual for transition of chronically ill youth to adult health care. Harrisburg, PA: Pennsylvania Department of Health, 52 pp.

Annotation: This manual is intended as a guide for health professionals to establish a new health care delivery system for transitioning adolescents with chronic illness to adult health care. Health professionals learn about eight objectives: exploring one's commitment to transition, identification of initial partners; securing institutional support; assuring economic feasibility, developing a structure, developing a successful partnership, and achieving a successful transfer of patients. A self-assessment form is included.

Contact: Georgetown University Center for Child and Human Development, Box 571485, Washington, DC 20057-1485, Telephone: (202) 687-5503 Secondary Telephone: (202) 687-5000 Fax: (202) 687-8899 E-mail: [email protected] Web Site: http://gucchd.georgetown.edu Price unknown.

Link

Keywords: Access to health care, Adolescents with special health care needs, Chronic illnesses and disabilities, Health services, Special health care needs, Transition planning, Transitions, Young adults

Simmons E. n.d.. Youth in Transition—The Alabama Experience: [Final report]. Montgomery, AL: Alabama Department of Education, 32 pp.

Annotation: This project focused on developing a systematic approach to integrate medical, vocational, educational, psychosocial, and developmental services for adolescents with physical disabilities and/or chronic illness who are at risk in their transition to maturity. Project objectives were to (1) create an administrative structure at the State level and in two pilot sites for provision of an integrated continuum of health and education services; (2) enable service providers, through training and collaboration, to coordinate service planning for the target population; (3) enable the adolescent and family, through counseling and training, to function as their own "case manager"; and (4) monitor and evaluate the model to determine the feasibility for replication in Alabama and/or other states. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-147031.

Keywords: Adolescents with special health care needs, Advocacy, Chronic illnesses and disabilities, Community-Based Health Care, Coordination of Health Care, Data Bases, Interdisciplinary Teams, Rural Population, Urban Population

Hostler S. n.d.. Family Autonomy Project [Final report]. Charlottesville, VA: University of Virginia, 50 pp.

Annotation: The goal of this project was to ensure the successful transition to adulthood of adolescents with physical disabilities or chronic illnesses by means of interventions with families, the health care team, and the adolescents themselves. The project sought to encourage the involvement of families in planning for the health care of their children, to modify staff behaviors and institutional practices to promote family autonomy, and to broaden treatment goals so that they included health maintenance and future planning for adolescents with special needs. [Funded by the Maternal and Child Health Bureau]

Contact: National Technical Information Service, O.S. Department of Commerce, 5301 Shawnee Road, Alexandria, VA 22312, Telephone: (703) 605-6050 Secondary Telephone: (888) 584-8332 E-mail: [email protected] Web Site: http://www.ntis.gov Document Number: NTIS PB93-196962.

Keywords: ., Adolescents with special health care needs, Advocacy, Chronic illnesses and disabilities, Families, Family-Centered Health Care Transition, Support Groups

Puritz A, Carmody MA. n.d.. Sexuality and children and youth with special health care needs: Information and education. Washington, DC: D.C. Resource Center for Children with Special Health Care Needs, 3 pp. (Fact sheet)

Annotation: This fact sheet gives recommendations for supporting children and families about sexuality, discusses sexual abuse and assault and reproductive health, and gives resources in the District of Columbia.

Contact: D.C. Resource Center for Children with Special Health Care Needs, Washington, DC Web Site: http://dccshcn.org Available from the website.

Keywords: Adolescents with special health care needs, Children with special health care needs, Sexuality education

D.C. Resource Center for Children with Special Health Care Needs. n.d.. Sexuality information resource list. Washington, DC: D.C. Resource Center for Children with Special Health Care Needs, 3 pp.

Annotation: This fact sheet lists resources on sexuality education, education curricula, health conditions and disabilities, online learning, educators and counselors, and national resources related to sexuality and children and adults with disabilities. Resources also cover parenting with a disability, reproductive health, sexual violence, and screening for abuse or violence.

Contact: D.C. Resource Center for Children with Special Health Care Needs, Washington, DC Web Site: http://dccshcn.org Available from the website.

Keywords: Adolescents with special health care needs, Adults, Children with special health care needs, Disabilities, Sexuality education

Family Voices; IMPACT. n.d.. Transitions--Growing up and away. Albuquerque, NM: Family Voices, IMPACT, 3 pp.

Annotation: This fact sheet provides tips to help parents of adolescents with special health care needs support their sons' and daughters' transition into adulthood.

Contact: Family Voices, P.O. Box 37188, Albuquerque, NM 87176, Telephone: (505) 872-4774 Secondary Telephone: (888) 835-5669 Fax: (505) 872-4780 Web Site: http://www.familyvoices.org Available from the website.

Keywords: Adolescent development, Adolescents with special health care needs, Parenting, Transition planning, Transitions, Young adults

Gould Z, Buskey R, Smith H. 2024. State policy considerations to support equitable systems of care for children and youth with special health care needs . Portland, ME: National Academy for State Health Policy,

Annotation: This brief highlights state approaches and innovations to support equitable systems of care for children and youth with special health care needs (CYSHCN).

Contact: National Academy for State Health Policy, 10 Free Street, Second Floor, Portland, ME 04101, Telephone: (207) 874-6524 Secondary Telephone: (202) 903-0101 Fax: (207) 874-6527 E-mail: [email protected] Web Site: http://www.nashp.org

Link

Keywords: Adolescents with special health care needs, Children with special health care needs, Health equity, Policy development, Public policy, State initiatives

Child and Adolescent Health Measurement Initiative. 2024. Shared care planning for children with special health care needs. Baltimore, MD: Child and Adolescent Health Measurement Initiative,

Annotation: This online resource includes shared care planning tool for families of children with special health care needs (CSHCN) and a 5-item screening tool to identify CSHCN based on the definition provided by the federal Maternal and Child Health Bureau. A searchable library contains reports, data and research briefs, presentations, project summaries, and additional materials aimed at promoting lifelong health for children, youth, and families using family-centered measurement, data and tools.

Contact: Child and Adolescent Health Measurement Initiative, The Johns Hopkins Bloomberg School of Public Health, Department of Population, Family, and Reproductive Health, 615 North Wolfe Street, Baltimore, MD 21205, E-mail: [email protected] Web Site: http://www.cahmi.org

Link

Keywords: Adolescent health, Adolescents with special health care needs, Child health, Children with special health care needs, Data , Family centered care, Screening tests, Surveys

National Center for a System of Services for Children and Youth with Special Health Care Needs. 2024. National Survey of Children’s Health Indicators by Blueprint Critical Area. Itasca, IL: National Center for a System of Services for Children and Youth with Special Health Care Needs,

Annotation: This online tool presents National Survey of Children's Health (NSCH) indicators aligned with the Blueprint for Change--a national framework for a system of services for children and youth with special health care needs (CYSHCN). Developed through collaboration between the Altarum Institute and the National Center for a System of Services for CYSHCN, the tool arranges the indicators according to four critical areas as outlined in the Blueprint: health equity, family and child well-being and quality of life, access to services and supports, and financing of services. State/jurisdiction Title V programs are invited to use the tool to better understand how their work aligns with the Blueprint for Change and to monitor their progress during ongoing needs assessment activities. [Funded in part by the Maternal and Child Health Bureau]

Contact: American Academy of Pediatrics, National Center for a System of Services for Children and Youth with Special Health Care Needs, 345 Park Boulevard, Itasca, IL Web Site: https://www.aap.org/en/patient-care/national-center-for-a-system-of-services-for-children-and-youth-with-special-health-care-needs/

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Keywords: , Adolescents with special health care needs, Children with special health care needs, Evaluation methods, Families, Federal initiatives, Indicators, Needs assessment

American Academy of Pediatric Dentistry. 2023. Fluoride therapy (rev. ed.). Chicago, IL: American Academy of Pediatric Dentistry, 7 pp. (The Reference Manual of Pediatric Dentistry)

Annotation: This document provides recommendations to help health professionals and parents make decisions concerning appropriate use of fluoride as part of comprehensive oral health care for infants, children, adolescents, and individuals with special health care needs. Methods are presented, and background information about fluoride (community water fluoridation, fluoride supplements, topical fluoride treatments, and silver diamine fluoride) is included.

Contact: American Academy of Pediatric Dentistry, 211 East Chicago Avenue, Suite 1600, Chicago, IL 60611-2637, Telephone: (312) 337-2169 Fax: (312) 337-6329 Web Site: http://www.aapd.org Available from the website.

Keywords: Adolescents with special health care needs, Children with special health care needs, Fluoride, Infants with special health care needs, Oral health, Special health care needs

Breuner CC, Alderman EM, Jewell JA; American Academy of Pediatrics Committee on Adolescence, Committee on Hospital Care . 2023. The hospitalized adolescent . Itasca, IL: American Academy of Pediatrics, 16 pp.

Annotation: This clinical report provides pediatricians evidence-based information on the developmentally appropriate, comprehensive clinical care for hospitalized adolescents, including those who may have learning, intellectual, or developmental disabilities. Topics addressed include opportunities and challenges when caring for specific hospitalized adolescent populations and the evaluation of patients' ability to participate in their own care and assent to decision-making. The companion policy statement, "The Hospitalized Adolescent, includes descriptions of adolescent hospital admission demographics, personnel recommendations, and hospital setting and design advice, as well as sections on educational services, legal and ethical matters, and the transition to adult facilities.

Contact: American Academy of Pediatrics, 345 Park Boulevard, Itasca, IL 60143, Telephone: (630) 626-6000 Secondary Telephone: (847) 434-4000 Fax: (847) 434-8000 Web Site: https://www.aap.org

Keywords: Adolescent health, Adolescents, Children with special health care needs, Guidelines , Hospitalization, Patient care

Catalyst Center. 2023. Leverage opportunities + speak the Medicaid language: A workbook for Title V. Boston, MA: Catalyst Center,

Annotation: This workbook for Title V program staff focuses on the importance of Medicaid in the system of services for children and youth with special health care needs (CYSHCN). It provides an overview of the Medicaid program, including chapters on Medicaid managed care; the Early and Periodic Screening Diagnostic and Treatment (EPSDT) benefit; and pathways to Medicaid coverage for children who require an institutional level of care. The purpose of the resource is to increase Title V program staff identification and knowledge of finance-related services for CYSHCN, particularly Medicaid. It includes questions to guide users through the process of mapping a Medicaid system and building a strategy for their own state.

Contact: Catalyst Center, the National Center for Health Insurance and Financing for Children and Youth with Special Health Care Needs, Boston University School of Public Health, Center for Advancing Health Policy and Practice, 801 Massachusetts Avenue, Boston, MA 02218-2526, Telephone: (617) 638-1930 E-mail: [email protected] Web Site: https://ciswh.org/project/the-catalyst-center/

Link

Keywords: Adolescents with special health care needs, Children with special health care needs, Children', Medicaid, Medicaid managed care, Title V, Youth, s Health Insurance Program

Medicaid and CHIP Payment and Access Commission. 2023. Medicaid access in brief: Children and youth with special health care needs . Washington, DC: Medicaid and CHIP Payment and Access Commission, 14 pp.

Annotation: This issue brief uses data from the 2018 and 2019 National Survey of Children’s Health (NSCH) to examine differences in health status, access to care, referrals, needed care, and the cost of care for children and youth with special health care needs (CYSHCN) covered by Medicaid with those covered by private insurance and those without insurance. Included are selected demographic and socioeconomic characteristics of CYSHCN (Ages 0-17); their health status, use of care, and quality of care according to insurance status; and the percentage of CYSHCN in each state and the source of their health insurance coverage (Medicaid, private only, or both).

Contact: Medicaid and CHIP Payment and Access Commission, 1800 M Street, N.W., Suite 360 South, Washington, DC 20036, Telephone: (202) 350-2000 Fax: (202) 273-2452 E-mail: [email protected] Web Site: http://www.macpac.gov

Keywords: Access to care, Adolescents with special health care needs, Children with special health care needs, Costs, Data, Health status, Medicaid, Statistics

National Academies of Sciences, Engineering, and Medicine. 2023. The Future pediatric subspecialty physician workforce: Meeting the needs of infants, children, and adolescents. Washington, DC: National Academies Press,

Annotation: This report outlines strategies and actions that can be taken to help ensure an adequate pediatric subspecialty physician workforce to support broad access to high quality subspecialty care and a robust research portfolio to advance the health and health care of infants, children, and adolescents. The recommendations come from the Committee on the Pediatric Subspecialty Workforce and Its Impact on Child Health and Well-Being, formed by the National Academies and a coalition of sponsors.

Contact: National Academies Press, 500 Fifth Street, N.W., Keck 360, Washington, DC 20001, Telephone: (202) 334-3313 Secondary Telephone: (888) 624-8373 Fax: (202) 334-2451 E-mail: [email protected] Web Site: http://www.nap.edu

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Keywords: Access to care, Adolescent health, Adolescents with special health care needs, Child health, Children with special health care needs, Pediatrics, Tertiary care, Work force

Washington State Department of Health . 2023. Children and youth with special health care needs care coordination toolkit. Olympia, WA: Washington State Department of Health, 58 pp.

Annotation: This toolkit consolidates resources and guidance across multiple systems of care for children and youth with special healthcare needs in Washington state. There are three main components to the toolkit: (1) The Washington systems of care for CYSHCN: Resource referral guide provides thorough descriptions of pertinent CYSHCN agencies and programs, while the (2) Shared Plan of Care: Resource Referral Guide and (3) the Life Course Transitions and Eligibilities sections offer initial grounding guidance followed by tables with consolidated and organized resources for quick reference. The guide is geared to support the needs of care coordinators and the CYSHCN clients that they serve, but it is also available for distribution to other pertinent CYSHCN partners and families.

Contact: Washington State Department of Health, P.O. Box 47890, Olympia, WA 98504-7890, Telephone: (800) 525-0127 Secondary Telephone: (360) 236-4030 Web Site: http://www.doh.wa.gov

Keywords: Adolescents with special health care needs, Children with special health care needs, Service coordination, State initiatives, Washington

Balzer J, Holt K. 2022. Strategies for improving the oral health system of care for children and youth with special health care needs (2nd ed.). Washington, DC: National Maternal and Child Oral Health Resource Center, 6 pp.

Annotation: This tip sheet outlines strategies for health professionals in planning, developing, and implementing state and local efforts to ensure access to oral health care for children and adolescents with special health care needs. Topics include working with parents and other caregivers to provide oral hygiene care, work force issues, health care financing, the importance of dental and medical homes, and a review of state and local programs addressing these issues. [Funded in part by the Maternal and Child Health Bureau]

Contact: National Maternal and Child Oral Health Resource Center, Georgetown University, Washington, DC 20057, E-mail: [email protected] Web Site: https://www.mchoralhealth.org Available from the website.

Keywords: Adolescents with special health care needs, Children, Children with special health care needs, Dental care, Dental hygiene, Health care systems, Oral health

McLellan SE, Mann MY, Scott JA, Brown TW . 2022. A blueprint for change: Guiding principles for a system of services for children and youth with special health care needs and their families. Pediatrics, Jun 1;149 (Suppl 7), 9 pp.

Annotation: This article presents the principles and strategies behind the Blueprint for Change-- a national framework for a system of services for children and youth with special health care needs (CYSHCN) where they can enjoy a full life and thrive in their community from childhood through adulthood. Included is a discussion of the comprehensives needs of CYSHCH, the changing health care system, and the disparities experienced by CYSHCN. The critical areas that drive the Blueprint for Change-- health equity, access to services, finanancing of services, and family and child well-being and quality of life-- are described as being inherently interconnected and intend to move the field forward at the community, state, and federal levels.

Contact: American Academy of Pediatrics, 345 Park Boulevard, Itasca, IL 60143, Telephone: (630) 626-6000 Secondary Telephone: (847) 434-4000 Fax: (847) 434-8000 Web Site: https://www.aap.org

Keywords: , Adolescents with special health care needs, Children with special health care needs, Families, Federal initiatives

Barovechio P, Easterly G, Hall K, Outhuse A. 2022. Care coordination toolkit: A guide to implementing care coordination elements into clinic workflow . New Orleans: Louisiana Department of Health, Bureau of Family Health, 27 pp.

Annotation: The toolkit provides guidelines, action steps, and resources to help health providers integrate care coordination elements into their practice. Using a quality improvement framework, it is divided into actionable steps and arranged for ease of use at any (or various) stages of implementation. The toolkit is intended for use by pediatric medical providers and staff (physicians, nurses, social workers, clinic managers, support staff, etc.) who want to maximize their capacity to make care coordination services as efficient and effective as possible in their clinic. This includes improving existing services, or integrating new services, into the regular clinic practice.

Contact: Louisiana Department of Health, Bureau of Family Health, 1450 Poydras Street, Room 2035, New Orleans, LA 70112, Telephone: (504) 568-3504 Secondary Telephone: (800) 251-BABY (2229) Fax: (504) 568-3503 E-mail: [email protected] Web Site: http://new.dhh.louisiana.gov/index.cfm/page/936

Keywords: Adolescents with special health care needs, Children with special health care needs, Louisiana , Quality improvement, Service coordination, Service integration, State initiatives

Association of State and Territorial Dental Directors and National Maternal and Child Oral Health Resource Center. 2021. Best practice approach: Oral health care of people with special health care needs. Reno, NV: Association of State and Territorial Dental Directors; Washington, DC: National Maternal and Child Oral Health Resource Center, 15 pp. (Best practice approaches for state and community oral health programs)

Annotation: This report offers information about the oral health of people with special health care needs (SHCN). It presents background information, including information on considerations for oral health care delivery, promising initiatives, the workforce, sites of care, financing of care, establishing comprehensive care, and data. Strategic calls to action for improving the oral health care of people with SHCN are also included. The report offers guidelines and recommendations, research evidence, and state practice examples illustrating strategies and interventions for people with SHCN. [Funded by the Maternal and Child Health Bureau]

Contact: Association of State and Territorial Dental Directors, 3858 Cashill Boulevard, Reno, NV 89509, Telephone: (775) 626-5008 Fax: (775) 626-9268 E-mail: [email protected] Web Site: https://www.astdd.org

Keywords: Access to health care, Adolescents with special health care needs, Adults with special health care needs, Children with special health care needs, Guidelines, Model programs, Oral health, Research

Girmash E, Creveling E. 2021. Strengthening Title V - Medicaid managed care collaborations to improve care for CYSHCN. Boston, MA: Catalyst Center, 8 pp.

Annotation: This issue brief discusses how state Title V programs, Medicaid agencies, and Medicaid managed care organizations can work collaboratively to strengthen supports for children and youth with special health care needs. The brief enumerates the essential steps in the Medicaid managed care procurement process and provides strategies and considerations for collaboration between Title V and managed care programs.

Contact: Catalyst Center, the National Center for Health Insurance and Financing for Children and Youth with Special Health Care Needs, Boston University School of Public Health, Center for Advancing Health Policy and Practice, 801 Massachusetts Avenue, Boston, MA 02218-2526, Telephone: (617) 638-1930 E-mail: [email protected] Web Site: https://ciswh.org/project/the-catalyst-center/ Available from the website.

Keywords: Access to care, Adolescents with special health care needs, Children with special health care needs, Health insurance, Medicaid, State programs, Title V programs, Youth with special health care needs