Search Results: MCHLine

Contact: Association of University Centers on Disabilities, 1010 Wayne Avenue, Suite 1000, Silver Spring, MD 20910, Telephone: (301) 588-8252 Fax: (301) 588-2842 E-mail: [email protected] Web Site: http://www.aucd.org Available from the website.

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Keywords: Adolescents with developmental disabilities, Adolescents with special health care needs, Self care, Transition to independent living, Young adults, Youth in transition programs

Annotation: This book is geared toward helping students, instructors, and professionals in rehabilitation programs define, plan, facilitate, and support transition for young people with disabilities into adulthood and independent living. The book is divided into three major sections: (1) defining and planning transition, (2) facilitating and supporting transition, and (3) designing and implementing individualized transition plans. Topics also include secondary school restructuring, college and other postsecondary alternatives, assistive technology to enhance transition and work, and recent legislative acts in the field. Each chapter contains a list of learning objectives, a conclusion, and study questions. Figures and tables throughout the book provide statistical data, sample forms and checklists, and additional information to illustrate needs and capabilities. Appendices are provided with selected chapters. References and an index conclude the book

Contact: Brookes Publishing, P.O. Box 10624, Baltimore, MD 21285-0624, Telephone: (800) 638-3775 Secondary Telephone: (410) 337-9580 Fax: (410) 337-8539 E-mail: [email protected] Web Site: http://www.brookespublishing.com Available in libraries. Document Number: ISBN 1-55766-476-5.

Keywords: Adolescents with developmental disabilities, Assessment, Assistive devices, Brain injuries, Careers, Children with special health care needs, Cognition disorders, College bound students, College students, Emotional instability, Families, High school students, Parent participation, Postsecondary education, School to work transitions, Transition planning, Transition to independent living, Vocational education

Annotation: This toolkit provides two booklets to help parents talk to their children with intellectual or developmental disabilities about topics related to puberty, one addressing girls and one addressing boys. Topics include encouraging good hygiene and appropriate behavior and how to deal with physiological manifestations of puberty. The publications may be individualized to include an organization's name and its most frequent referrals. Appendices with social stories and visual supports are also available. [Funded by the Maternal and Child Health Bureau]

Contact: Vanderbilt Kennedy Center for Excellence in Developmental Disabilities, PMB 40, 230 Appleton Place, Nashville, TN 37203-5721, Telephone: (615) 322-8240 E-mail: [email protected] Web Site: http://www.kc.vanderbilt.edu Available from the website.

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Keywords: , Adolescent health, Adolescents with special health care needs, Child health, Developmental disabilities, Psychosexual development, Puberty, Sex characteristics, Sexual development

Annotation: This series of booklets is designed to provide oral health professionals with information about oral health care for people with special health care needs (SHCN). Strategies for care, covering topics such as mobility, neuromuscular problems, behavior problems, and sensory impairment, are discussed in the context of the dental office. Individual booklets on oral health and autism, cerebral palsy, Down syndrome, and intellectual disability offer practical guidance on adapting standard practice to accommodate those with SHCN. A guide for caregivers and one on safe wheelchair transfer are included.

Contact: National Institute of Dental and Craniofacial Research, National Institutes of Health, 900 Rockvilled Pike, Bethesda, MD 20892, Telephone: (866) 232-4528 E-mail: [email protected] Web Site: https://www.nidcr.nih.gov Available from the website.

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Keywords: Adolescents with special health care needs, Adults, Autism, Children with special health care needs, Continuing education, Dental care, Developmental disabilities, Health care delivery, Oral health

Annotation: This report describes selected provisions of the Affordable Care Act (ACA) that have implications for children and adolescents with autism spectrum disorders or other developmental disabilities(ASD/DD). The report also describes how state Title V maternal and child health (MCH) programs can maximize opportunities under the ACA to develop and strengthen systems of care for children and adolescents with ASD/DD. The report provides background on gaps in coverage faced by children and adolescents with ASD/DD and discusses affordability and adequacy of health care coverage for this population, key provisions of the ACA, health care coverage and benefits, and implications for state Title V MCH and children and youth with special health care needs program leaders. [Funded by the Maternal and Child Health Bureau]

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org Available from the website.

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Keywords: , Adolescents with developmental disabilities, Adolescents with special health care needs, Autism, Children with developmental disabilities, Children with special health care needs, Costs, Health care systems, Health insurance, Legislation, MCH programs, Title V programs

Annotation: This instructional manual is designed to help parents and caregivers assist individuals with intellectual or developmental disabilities in their explorations of self and sexuality. The manual presents hints for family members, discusses adapting for different learning styles, and offers tips. The manual also offers ideas for addressing the following topics: understanding the differences between males and females (grades K-5), changes in the body (grades 4-8), becoming an adult (grades 9-12), beginning social skills (grades K-8 and ongoing), advanced social skills (grades 6-12 as ready), dating, and sexual or physical abuse. A companion resource guide for educators is also available.It is available in English and Spanish.

Contact: Florida Disabilities Development Council, 124 Marriott Drive, Suite 203, Tallahassee, FL 32301-2981, Telephone: (850) 488-4180 Secondary Telephone: (850) 488-0956 Fax: (850) 922-6702 E-mail: [email protected] Web Site: http://www.fddc.org Available from the website.

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Keywords: Adolescent sexuality, Adolescents with developmental disabilities, Adolescents with special health care needs, Children with developmental disabilities, Children with special health care needs, Dating, Families, Parents, Physical abuse, Sexual abuse, Sexuality, Social skills, Spanish language materials

Annotation: This guide explains how to use the Cultural and Linguistic Competence Family Organization Assessment (CLCFOA) Instrument developed by the National Center for Cultural Competence to address the unique functions of family organizations concerned with children and youth with mental, emotional, and behavioral health disorders, special health care needs, and disabilities. The guide provides a detailed description of the CLCFOA; describes a four-phase approach to self assessment; and offers practical steps to help make the self assessment process work for family organizations. It explains how to score the CLCFOA, how to analyze and report data from it, and how to develop an implement an action plan. [Funded by the Maternal and Child Health Bureau]

Contact: National Center for Cultural Competence, Georgetown University Center for Child and Human Development, P.O. Box 571485, Washington, DC 20057-1485, Telephone: (202) 687-5387 Secondary Telephone: (800) 788-2066 Fax: (202) 687-8899 E-mail: [email protected] Web Site: http://nccc.georgetown.edu Available from the website.

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Keywords: Adolescents with developmental disabilities, Assessment, Children with developmental disabilities, Children with special health care needs, Culturally competent services, Family centered services, Self evaluation

Annotation: This guide assists the training director in implementing interdisciplinary training in LEND (Leadership Education in Neurodevelopmental and related Disabilities) Programs and UCEDDs (University Centers for Excellence in Developmental Disabilities). Contents include an introduction to interdisciplinary training, components of a core curriculum, training director roles and mentorship, resources for outcome evaluation, the content of disability studies, and lessons learned. The appendices provide a definition of interdisciplinary practice; sample core curricula from Arkansas, Georgia, Missouri, and Utah; and a chart of common funding sources for training. [Funded by the Maternal and Child Health Bureau]

Contact: Association of University Centers on Disabilities, 1010 Wayne Avenue, Suite 1000, Silver Spring, MD 20910, Telephone: (301) 588-8252 Fax: (301) 588-2842 E-mail: [email protected] Web Site: http://www.aucd.org Available from the website.

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Keywords: Adolescents, Children with special health care needs, Curricula, Developmental disabilities, Evaluation, Infants, Interdisciplinary training

Annotation: This brief discusses the challenges faced by youth and young adults with mental health needs during their transition to adulthood and describes strategies used by youth service professionals to avoid age-related transition barriers and to prevent service interruptions during this critical stage of development. Included are detailed guidelines to help professionals achieve success for youth with mental health needs in the following general areas of (1) school-based preparation; (2) career preparation and work-based learning experiences; (3) youth development and leadership; (4) connecting activities: (5) and family involvement and support. The brief is based on previous research about transition-age youth with mental health needs published in early reports, including two produced by the National Collaborative on Workforce & Disability for Youth (NCWD/Youth).

Contact: National Collaborative on Workforce and Disability for Youth, c/o Institute for Educational Leadership, 4455 Connecticut Avenue, N.W., Stuie 310, Washington, DC 20008, Telephone: (877) 871-0744 Secondary Telephone: (877) 871-0665 Web Site: http://www.ncwd-youth.info Available from the website.

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Keywords: Adolescents with developmental disabilities, Guidelines, Mental health, Mental health programs, Resources for professionals, Young adults, Youth development, Youth in transition programs

Annotation: The purpose of this manual is to assist families of young adults with developmental disabilities with the transition from the school system and services for children to the world of work and adult services. Topics include special education and transition planning; children's waiver for developmental disabilities; straight talk on the PUNS (Illinois waiting list); the world of adult services and supports; adult waiver for developmental disabilities; health insurance and employment; services, supports, options, and trends; and who can help with advocacy for children and adults with developmental disabilities.

Contact: Arc of Illinois, Family to Family Health Information Center, 20901 LaGrange Road, Suite 209, Frantfort, IL 60423, Telephone: (815) 464-8247 Secondary Telephone: (866) 931-1110 Fax: (815) 464-5292 E-mail: [email protected] Web Site: http://familyvoicesillinois.org Available from the website.

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Keywords: Adolescents with developmental disabilities, Adolescents with special health care needs, Employment, Families, Health insurance, Illinois, School to work transition, Services, Transition planning, Trends, Young adults, Young adults

Annotation: This workbook, which is intended for young people with disabilities, presents information that readers can use to understand their disability, explain their disability to others, and decide whether and how to disclose their disability. The workbook is divided into eight units: (1) self-determination -- the big picture, (2) disclosure -- what is it and why is it so important?, (3) weighing the advantages and disadvantages of disclosure, (4) rights and responsibilities under law, (5) acommodations, (6) postsecondary disclosure, (7) disclosure on the job, and (8) disclosure in social and community settings. Each unit contains a general statement of purpose, useful terminology, a discussion section, and activities to allow the reader to understand and practice the ideas presented throughout the unit. The workbook also includes a glossary.

Contact: National Collaborative on Workforce and Disability for Youth, c/o Institute for Educational Leadership, 4455 Connecticut Avenue, N.W., Stuie 310, Washington, DC 20008, Telephone: (877) 871-0744 Secondary Telephone: (877) 871-0665 Web Site: http://www.ncwd-youth.info Available from the website.

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Keywords: Adolescents with developmental disabilities, Adolescents with special health care needs, Civil rights, Consumer education materials, Decision making, Disabilities, Education, Individual responsibility, Informed consent, Legal responsibility, Work force, Workplace, Young adults, Youth

Annotation: This report discusses a longitudinal study designed to investigate both the health and development of children with early developmental delays or disabilities, and the adaptation of their families to the challenges of parenting such a child, focusing on mid-adolescence. The report includes an executive summary, an outline of the research objectives, study design and methods, findings, and recommendations. Also included is a list of early intervention collaborative study publications, a review of the literature, and statistical data in tables is provided throughout the report. [Funded by the Maternal and Child Health Bureau]

Contact: Maternal and Child Health Library at Georgetown University, E-mail: [email protected] Web Site: https://www.mchlibrary.org Available from the website.

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Keywords: Adolescents, Children with special health care needs, Developmental disabilities, Early intervention, Family characteristics, Final reports, Parenting skills, Research

Annotation: This issue brief discusses the issue of bullying, harassment, and teasing in schools, with an emphasis on youth with disabilities, and describes two exemplary, comprehensive whole-school antibullying programs: (1) Dan Olweus's Intervention Program and (2) the Second Step Program. The brief concludes with additional resources on bullying and a list of references.

Contact: National Center on Secondary Education and Transition, University of Minnesota, Institute on Community Integration, 6 Pattee Hall, 150 Pillsbury Drive, S.E., Minneapolis, MN 55455, Telephone: (612) 624-2097 Fax: (612) 624-9344 E-mail: [email protected] Web Site: http://www.ncset.org Available from the website.

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Keywords: Adolescents with developmental disabilities, Adolescents with special health care needs, Bullying, Community programs, Prevention programs, School violence

Annotation: This notebook is a resource on transition from adolescence to young adulthood for young adults with special health care needs and disabilities.The notebook is geared toward families, students, school personnel, community agency workers, health professionals, and other groups working with adolescents and young adults in Washington State. The notebook is organized into the following sections: (1) transition overview, (2) the student, (3) school, (4) post-secondary education, (5) work, volunteering, community participation, (6) division of vocational rehabilitation, (7) community resources, (8) recreation, (9) legal matters, (10) Division of Developmental Disabilities, (11) Supplemental Security Income, (12) health, and (13) transition stories. The notebook contains one appendix that includes information on multicultural and translated resources, acronyms and definition, health insurance terms and definitions, sample forms, information on educational resources, and a transition guide for Washington State.

Contact: Washington State Department of Health, Office of Maternal and Child Health, Children with Special Health Care Needs Program, P.O. Box 47835, Olympia, WA 98504-7835, Telephone: (360) 236-3571 E-mail: [email protected] Available from the website.

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Keywords: Adolescents with special health care needs, Community participation, Developmental disabilities, Education, Health, Legislation, Recreation, School to work transition, Schools, Students, Supplemental security income, Transition to independent living, Vocational rehabilitation, Volunteers, Washington, Young adults, Youth

Annotation: This paper describes recent changes in the Supplemental Security Income (SSI) program affecting adolescents, what SSI work incentives are available to them, how they can maintain access to quality health care and benefits during their transition years, and key issues to consider during transition planning. This is the first of a series of working papers aimed at assisting service providers and families to ensure successful transitions to work and independence for youth with disabilities and chronic illnesses. [Funded by the Maternal and Child Health Bureau]

Contact: Institute for Child Health Policy, University of Florida, 1329 SW 16th Street, Room 5130 , Gainesville, FL 32608, Telephone: (352) 265-7220 Secondary Telephone: Contact Phone: (888) 433-1851 Fax: (352) 265-7221 Contact E-mail: [email protected] Web Site: https://ichp.ufl.edu Available from the website. Document Number: ISBN 0-9700909-0-0.

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Keywords: Access to health care, Adolescents with developmental disabilities, Adolescents with special health care needs, Supplemental security income, Transition planning, Transitions

Annotation: This annotated bibliography focuses on published materials that deal with cultural competence in serving children with special health care needs. Materials cited were published after 1991, and they were selected to add to the body of information published in *Race and Ethnicity: Issues for Adolescents with Chronic Illnesses and Disabilities* (1991). Citations cover materials related to epidemiology and demography, cultural competence, cultural competence and children and youth with disabilities, family systems, cultural competence and service delivery, and cultural competence and health care policy. [Funded by the Maternal and Child Health Bureau]

Contact: University of Minnesota, Division of General Pediatrics and Adolescent Health, University of Minnesota Gateway, 200 Oak Street, S.E., Suite 260, Minneapolis, MN 55455, Telephone: (612) 624-2820 Secondary Telephone: (800) 276-8642 Contact Phone: (612) 624-3939 (V/TTY) Fax: (612) 624-0097 E-mail: [email protected] Web Site: https://med.umn.edu/pediatrics/divisions/general-pediatrics-and-adolescent-health Price unknown.

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Keywords: Adolescents with developmental disabilities, Adolescents with special health care needs, Bibliographies, Children with developmental disabilities, Children with special health care needs, Cultural competence, Culturally competent services, Demography, Epidemiology, Ethnic factors, Families, Health policy, Racial factors, Young adults

Annotation: This newsletter focuses on training people with disabilities to use public transportation safely and independently. It describes the essential components of a successfully travel training program, the specific skills that travelers need to have in place to assure safe and independent travel, and the issues that arise with specific disabilities, such as physical, cognitive and visual impairments. An overview of the Americans with Disabilities Act (ADA) is also provided. The newsletter concludes with a listing of resources for further information including resources for people living in small and/or rural communities.

Contact: Education Resources Information Center, Institute of Education Sciences, U.S. Department of Education, 555 New Jersey Avenue, N.W., Washington, DC 20208, Telephone: (202) 219-1385 E-mail: Web Site: http://www.eric.ed.gov Available from the website.

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Keywords: Adolescents with developmental disabilities, Adolescents with special health care needs, Life skills, Training, Transportation, Travel

Annotation: This document broadens the scope of an earlier document on standards of nursing practice for early intervention. It covers care of individuals and population-based care. Topics in standards of care include assessment, nursing diagnosis, outcome identification, planning, implementation, and evaluation. Topics in professional performance include quality of care, performance appraisal, education, collegiality, ethics, collaboration, research, and research utilization. Standards for agencies, a glossary, and a bibliography are included. The cover shows a drawing of the globe with the legend "The Wonderful World Where Everyone Is Different" inscribed around the perimeter. [Funded by the Maternal and Child Health Bureau]

Contact: Maternal and Child Health Library at Georgetown University, E-mail: [email protected] Web Site: https://www.mchlibrary.org Available in libraries. Document Number: HRSA Info. Ctr. MCHI080.

Keywords: Adolescents with special health care needs, Children with special health care needs, Developmental disabilities, Nursing, Standards

Annotation: This casebook discusses social work in the areas of adolescent health and pregnancy, families with AIDS, homelessness, children and adolescents with chronic illnesses and disabilities, and child abuse and neglect. [Funded by the Maternal and Child Health Bureau]

Keywords: AIDS, Adolescent health, Adolescent pregnancy, Adolescents with developmental disabilities, Case studies, Child abuse, Child neglect, Children with developmental disabilities, Chronic illnesses and disabilities, Homelessness, Social work

Annotation: This document describes the proceedings from two conferences sponsored by a federally funded project, the National Network for Professional Development in Vocational Special Education. The major objectives of the National Network Project are: 1) to train and update teacher educators and state education agency personnel regarding current and emerging trends in vocational special education, particularly as it relates to improving the transition from school to the workplace for handicapped youth; 2) to develop and disseminate innovative personnel development models and resource materials in vocational special education; and 3) to facilitate collaboration among teacher educators, and state and local education personnel in the planning and delivery of personnel development programs.

Contact: University of Illinois at Urbana at Champaign, College of Education, 1310 South Sixth Street, Champaign, IL 61820, Telephone: 217-333-0960 Fax: 217-333-5487 E-mail: [email protected] Web Site: http://www.ed.uiuc.edu/ Price unknown.

Keywords: Adolescents with special health care needs, Developmental disabilities, Employment, Special education, Special health care needs, Transitions, Vocational education, Young adults