Search Results: MCHLine

Annotation: This website includes information for families about changes that occur when a child with a disability or with special health care needs becomes a legal adult. Teaching your child how to navigate the health care system and encouraging them to become actively involved in their medical care are among the topics explored in video and e-publication formats.

• Link
• Teen Health Site

Keywords: Adolescents, Consumer education, School to work transitions, Special health care needs, Transition planning, Transition to independent living, Young adults

Annotation: This policy statement provides pediatricians with evidence-based information on caring for adolescents who are hospitalized for acute or chronic illnesses. The statement describes the impact that hospitalization may have on the development and emotional progress of teenagers and discusses the importance of confidentiality between patients and medical teams. Topics include adolescent hospital admission demographics, access to staff with adolescent health expertise; the hospital setting and design of services; staff interaction with patients and families; issues related to bias and institutional/systematic racism; and the transition from pediatric to adult care.

• Policy Statement
• Clinical Report

Keywords: Adolescent health, Adolescents, Guidelines , Hospitalization, Patient care

Annotation: This clinical report provides pediatricians evidence-based information on the developmentally appropriate, comprehensive clinical care for hospitalized adolescents, including those who may have learning, intellectual, or developmental disabilities. Topics addressed include opportunities and challenges when caring for specific hospitalized adolescent populations and the evaluation of patients' ability to participate in their own care and assent to decision-making. The companion policy statement, "The Hospitalized Adolescent, includes descriptions of adolescent hospital admission demographics, personnel recommendations, and hospital setting and design advice, as well as sections on educational services, legal and ethical matters, and the transition to adult facilities.

• Clinical Report
• Policy Statement

Keywords: Adolescent health, Adolescents, Children with special health care needs, Guidelines , Hospitalization, Patient care

Annotation: This report presents recommendations to strengthen the primary care workforce for young adults with medical complexity (YAMC) by promoting and increasing the supply of well-prepared adult primary care physicians for YAMC transitioning to adult care. Included is an overview of the YAMC population and the current care landscape, including health workforce and financing consideration. The recommendations were developed by a national advisory committee established by the National Alliance to Advance Adolescent Health/Got Transition and the George Washington University Fitzhugh Mullan Institute for Health Workforce Equity.

• PDF

Keywords: Adolescents, Chronic illnesses and disabilities, Primary care, Professional education, Professional training, Program improvement, Transition planning, Transitions, Young adults

Annotation: This tip sheet for professionals providing transition services in pediatric and adult primary and specialty care settings summarizes innovative transition payment models. Contents include alternative payment methodologies and transition-related CPT codes and corresponding Medicare fees. Enhanced fee-for-service payments, pay-for-performance, capitation, bundled payments, shared savings, and administrative or infrastructure payments are among the topics covered.

• 2022

Keywords: Adolescents, Financing, Model programs, Pediatric care, Primary care, Reimbursement, Transition planning, Young adults

Annotation: This guide contains a step-by-step approach for state Medicaid and managed care organizations (MCOs) as well as commercial payers interested in starting a value-based payment (VBP) initiative around pediatric-to-adult transitional care. The document presents six steps in establishing a VBP initiative, as well as issues and strategies to consider, tips, and examples from managed care organizations.

• PDF

Keywords: Access to health care, Adolescents, Medicaid, Transition planning, Transitions, Young adults

Annotation: This transition payment tip sheet is produced by Got Transition and the American Academy of Pediatrics in order to support the delivery of recommended transition services in pediatric and adult care settings. The tip sheet begins with a listing of transition-related CPT codes and corresponding Medicare fees and relative value units (RVUs), effective as of 2022. The resource also includes a set of clinical vignettes with recommended CPT and ICD coding, as well as detailed coding descriptions for each transition-related code.

• Link

Keywords: Adolescents, Financing, Model programs, Pediatric care, Primary care, Reimbursement, Special health care needs, Transition planning, Young adults

Annotation: This systematic review provides the results of an analysis of the evidence base for care interventions, implementation strategies, and between-provider communication tools among children with special health care needs who are making the transition from pediatric to adult medical care services. Several databases were searched to identify studies published through September 2021; gray literature searches were also conducted in order to identify additional resources relevant to the topic. The publication is divided into 12 chapters and includes tables, figures, and appendixes.

• PDF

Keywords: Adolescents, Literature reviews, Research reviews, Special health care needs, Transition planning, Transition to independent living, Transitions, Young adults

Annotation: This website provides a platform for the aging and disability communities to post information and resources about the home and community-based services (HCBS) settings rule and steps each state is making to comply with the rule. Contents include resources, dates and deadlines, documents, news, and other information organized by state. Additional contents include official resources and information from the federal government about the HCBS rule including guidance and a settings requirements and compliance toolkit.

• Link

Keywords: Advocacy, Community based services, Compliance, Disabilities, Federal legislation, Guidelines, Information sources, Medicaid, Networking, Public private partnerships, Transition planning

Annotation: This toolkit offers pediatric and adult medical professionals sample content that can be used to facilitate transfer to adult care, as well as a sample resource for the transferring young adult that explains the telehealth visit. The two tip sheets are designed to be used as a general guide for the agenda of the joint telehealth visit, and both can be customized to the practice and young adult and family situation. Additional resources include a practice script example and a link to Got Transition's Six Core Elements of Health Care Transition.

• Link

Keywords: Access to health care, Adolescents, Telehealth, Telemedicine, Transition planning, Transitions, Young adults

Annotation: This report presents information about state Title V transition strategies and evidence-informed measures. Contents include an executive summary and recommendations, examples of innovative transition strategies, and information about a new transition measure from the National Survey of Children's Health that will be used to report state and national transition performance. [Supported by the Health Resources and Services Administration (HRSA), U.S. Department of Health and Human Services (HHS)]

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Keywords: Measures, Program development, Program planning, State programs, Transition planning, Transitions

Annotation: This report summarizes the health care transition (HCT) strategies that Title V agencies documented in their 2021 applications and 2019 annual reports. The document highlights examples of states' HCT innovations and offers recommendations for future health care transition strategies in state Title V action plans.

• Link

Keywords: Adolescents, Federal agencies, Maternal and Child Health Bureau, Transition planning, Transition to independent living, Transitions, Young adults

Annotation: This journal article reviews programs and literature on the transfer of care for children and youth with special health care needs (CYSHCN). Often these patients do not have adequate transition structure to adult health care, and it suggests that future research focus on patient and family transitions of care in the context of their social and community environment, and uncover knowledge about adequate services and payment structures and incentives to promote continuity of care and the need for family/youth and young adult-centered models of care across the life-span.

• Link

Keywords: Adolescents with special health care needs, Children with special health care needs, Transitions

Annotation: This fact sheet from the state of Oregon uses statistics to draw attention to the need for youth with special health care needs (YSHCN) to receive help in their transition to adult health care. It lists the benefits of adequate transition, and provides strategies to improve transition in the state of Oregon. [From the Oregon Center for Children and Youth with Special Health Needs (OCCYSHN), Oregon’s public health agency for children and youth with special health care needs. OCCYSHN is funded through the Oregon Health Authority, with a designated portion of the state’s annual US Maternal and Child Health Bureau (MCHB) Title V Block Grant.]

• PDF

Keywords: Adolescents with special health care needs, Oregon, Transitions

Annotation: The database aggregates sample evidence-based/informed strategies that can be used as-is or adapted to develop Evidence-based or informed Strategy Measures (ESMs) for each of the MCH National Performance Measures (NPMs). The strategies are listed by National Performance Measure, from NPM 1-Well Woman VIsit throught NPM 15-Continuous and Adequate Insurance. [Funded by the Maternal and Child Health Bureau]

• Link

Keywords: Evidence based medicine, Model programs

Annotation: This resource describes the basic components of a structured transition process and includes customizable sample tools for each core element and an implementation package for each type of practice. They are tailored to the type of practice facilitating the health care transition in these areas: (1) transitioning youth to an adult health care clinician, for use by pediatric, family medicine, and med-peds clinicians; (2) transitioning to an adult approach to health care without changing clinicians, for use by family medicine and med-peds clinicians; and (3) integrating young adults into adult health care, for use by internal medicine, family medicine, and med-peds clinicians. A summary chart describes the three sets of tools and six elements. The materials are available in English and Spanish. [Funded by the Maternal and Child Health Bureau]

• Link

Keywords: Access to health care, Adolescents, Coordination, Pediatric care, Spanish language materials, Transition planning, Transitions, Young adults

Annotation: This document describes contract language options states can use to provide for the availability of pediatric-to-adult transitional care, in the areas of definitions, member services and education, provider networks, covered services, care coordination, and quality and evaluation. Appendices list actual 2018/2019 contract language on the same topics from selected states. [Funded in part by the Maternal and Child Health Bureau]

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Keywords: Access to health care, Adolescents, Coordination, Pediatric care, Transition planning, Transitions, Young adults

Annotation: This webinar highlights the Bright Futures health supervision guidelines that correlate to national performance measure (NPM) 11-- the percent of children who have a medical home -- and NPM 12-- the percent of children who successfully transition to adult health care. Included are state implementation stories, collaborative efforts, statewide strategies, resources, and tools that address NPMs 11 and 12.

• Link

Keywords: Adolescent health, Child health, Disease prevention, Guidelines, Health promotion, Measures, Medical home, Transition planning

Annotation: This report from the CDC provides statistics and tables about transition for youth aged 12-17, with a particular focus youth with mental, behavioral, and developmental disorders (MBDDs). Statistics list details such as sex, ethnicity, and what disorders the patients were diagnosed with. It calls for improved access to to comprehensive and coordinated programs and services, as well as increasing provider training concerning adolescents’ unique mental and physical health care needs in the future.

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Keywords: Adolescents with special health care needs, Behavioral health issues, Depression, Mental disorders, Transition

Annotation: This resource is intended to facilitate the application of nationally-recognized transition tools to address specific criteria developed by the National Committee for Quality Assurance (NCQA) in their 2017 Patient-Centered Medical Home standards. Contents include NCQA criteria and guidance cross-walked with relevant sample tools. Topics include team-based care and practice organization, knowing and managing patients, patient-centered access and continuity, care management and support, care coordination and care transitions, and performance measurement and quality improvement. Descriptions of the tools are also provided. [Funded by the Maternal and Child Health Bureau]

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Keywords: Children, Measures, Medical home, Patient care management, Patient care teams, Program coordination, Program improvement, Quality assurance, Special health care needs, Standards, Transitions, Youth