Skip Navigation

Strengthen the Evidence for Maternal and Child Health Programs

Sign up for MCHalert eNewsletter

Search Results: MCHLine

Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.

Displaying records 1 through 18 (18 total).

American Academy of Pediatrics . 2024 . Medical home . Itasca, IL: National Resource Center for Patient/Family-Centered Medical Home,

Annotation: This website offers a collection of resources focused on improving the health and well-being of children and youth with special health care needs and their families by enhancing the patient/family-centered medical home. Included are tools for medical home implementation; care coordination materials, health equity resources; Information for families and caregivers; state and national initiatives; and promising program models.

Keywords: Care coordination, Family centered care, Federal initiatives, Health equity, Medical home, Patient education materials, Professional education, State initiatives

Washington State Department of Health . 2023. Children and youth with special health care needs care coordination toolkit. Olympia, WA: Washington State Department of Health, 58 pp.

Annotation: This toolkit consolidates resources and guidance across multiple systems of care for children and youth with special healthcare needs in Washington state. There are three main components to the toolkit: (1) The Washington systems of care for CYSHCN: Resource referral guide provides thorough descriptions of pertinent CYSHCN agencies and programs, while the (2) Shared Plan of Care: Resource Referral Guide and (3) the Life Course Transitions and Eligibilities sections offer initial grounding guidance followed by tables with consolidated and organized resources for quick reference. The guide is geared to support the needs of care coordinators and the CYSHCN clients that they serve, but it is also available for distribution to other pertinent CYSHCN partners and families.

Keywords: Adolescents with special health care needs, Children with special health care needs, Service coordination, State initiatives, Washington

Randi O, Gould Z. 2022. Medicaid financing of care coordination services for children and youth with special health care needs . Portland, ME: National Academy for State Health Policy , 12 pp.

Annotation: This resource identifies key components and themes across five states’ approaches to financing care coordination for children and youth with special health care needs (CYSHCN) through Medicaid, which can be used to support high-quality care coordination as outlined in the National Care Coordination Standards for Children and Youth with Special Health Care Needs. The resource describes three types of Medicaid service delivery models and highlights the approaches to Medicaid financing of care coordination for CYSHCN in Texas, Georgia, Florida, California, and Wisconsin.

Keywords: Child health, Children with special health care needs, Medicaid, Service coordination

Schober M, Harburger DS, Sulzbach D, Zabel M. 2022. A safe place to be: Crisis stabilization services and other supports for children and youth. Alexandria, VA: National Association of State Mental Health Program Directors, 29 pp. (Technical assistance collaborative paper; no. 4)

Annotation: This paper reviews the need for and components of crisis stabilization services for children, youth, young adults, and their families. Crisis stabilization services focus on de-escalation and stabilization within the home and community. The paper provides recommendations for policy makers, practitioners, and thought leaders. This document can be used in conjunction with the National Guidelines for Child and Youth Behavioral Health Crisis.

Keywords: Adolescent mental health, Child mental health, Crisis intervention, Families, Mental health, Mental health agencies, Mental health services

McLellan SE, Mann MY, Scott JA, Brown TW . 2022. A blueprint for change: Guiding principles for a system of services for children and youth with special health care needs and their families. Pediatrics, Jun 1;149 (Suppl 7), 9 pp.

Annotation: This article presents the principles and strategies behind the Blueprint for Change-- a national framework for a system of services for children and youth with special health care needs (CYSHCN) where they can enjoy a full life and thrive in their community from childhood through adulthood. Included is a discussion of the comprehensives needs of CYSHCH, the changing health care system, and the disparities experienced by CYSHCN. The critical areas that drive the Blueprint for Change-- health equity, access to services, finanancing of services, and family and child well-being and quality of life-- are described as being inherently interconnected and intend to move the field forward at the community, state, and federal levels.

Keywords: , Adolescents with special health care needs, Children with special health care needs, Families, Federal initiatives

Barovechio P, Easterly G, Hall K, Outhuse A. 2022. Care coordination toolkit: A guide to implementing care coordination elements into clinic workflow . New Orleans: Louisiana Department of Health, Bureau of Family Health, 27 pp.

Annotation: The toolkit provides guidelines, action steps, and resources to help health providers integrate care coordination elements into their practice. Using a quality improvement framework, it is divided into actionable steps and arranged for ease of use at any (or various) stages of implementation. The toolkit is intended for use by pediatric medical providers and staff (physicians, nurses, social workers, clinic managers, support staff, etc.) who want to maximize their capacity to make care coordination services as efficient and effective as possible in their clinic. This includes improving existing services, or integrating new services, into the regular clinic practice.

Keywords: Adolescents with special health care needs, Children with special health care needs, Louisiana , Quality improvement, Service coordination, Service integration, State initiatives

Strengthen the Evidence for MCH Programs. 2020-. MCH best: bank of evidence-linked strategies and tools. Washington, DC: Strengthen the Evidence for MCH Programs, multiple items.

Annotation: The database aggregates sample evidence-based/informed strategies that can be used as-is or adapted to develop Evidence-based or informed Strategy Measures (ESMs) for each of the MCH National Performance Measures (NPMs). The strategies are listed by National Performance Measure, from NPM 1-Well Woman VIsit throught NPM 15-Continuous and Adequate Insurance. [Funded by the Maternal and Child Health Bureau]

Keywords: Evidence based medicine, Model programs

National Academy for State Health Policy. 2020. National care coordination standards for children and youth with special health care needs. Portland, OR: National Academy for State Health Policy, 31 pp.

Annotation: This report is an update of the 2014 report by the same name, created by by the Association of Maternal and Child Health Programs (AMCHP) and the National Academy for State Health Policy (NASHP). To create the standards for coordinated care of CYSHCN, a literature review was conducted to establish the best standards of care for both adults and children, and over 80 documents were consulted. The report describes six domains of care, including screening procedures to determine the special health care needs of children and youth. (Appendices list terms and key informants.)

Keywords: Care coordination, Children with special health care needs, Medical home, Service coordination, Standards

McManus M, White P, Borden C. 2019. Incorporating pedatric-to-adult transition into NCQA patient-centered medical home recognition: 2019 update. Washington, DC: Got Transition™/Center for Health Care Transition Improvement, 13 pp. (Practice resource)

Annotation: This resource is intended to facilitate the application of nationally-recognized transition tools to address specific criteria developed by the National Committee for Quality Assurance (NCQA) in their 2017 Patient-Centered Medical Home standards. Contents include NCQA criteria and guidance cross-walked with relevant sample tools. Topics include team-based care and practice organization, knowing and managing patients, patient-centered access and continuity, care management and support, care coordination and care transitions, and performance measurement and quality improvement. Descriptions of the tools are also provided. [Funded by the Maternal and Child Health Bureau]

Keywords: Children, Measures, Medical home, Patient care management, Patient care teams, Program coordination, Program improvement, Quality assurance, Special health care needs, Standards, Transitions, Youth

Morrison C, Sparr M. 2019. Strengthening service coordination between home visitors and pediatric primary care providers . Arlington, VA: James Bell Associates,

Annotation: This brief summarizes the research on service coordination between home visiting programs and pediatric primary care providers, including co-located services. The following four questions are addressed: (1) Why should home visiting programs coordinate with pediatric primary care providers? (2) What are common obstacles to service coordination? (3) How can providers work around common obstacles? (4) What are implications for practice and future research? Promising strategies to promote awareness, establish effective communication, and develop policies and mechanism in support of service coordination are included.

Keywords: Home visits, Pediatric care, Primary care, Service coordination, Service integration

Barbara Wirth, Karen VanLandeghem, Becky Normile, Erin Kim and Miara Handler. 2018. State strategies for shared plans of care to improve care coordination for children and youth with special health care needs. Portland, ME: National Academy for State Health Policy, 12 pp.

Stewart KA, Bradley KWV, Zickafoose JS, Hildrich R Ireys HT, Brown RS. 2018. Care coordination for children with special needs in Medicaid: Lessons from Medicare. The American Journal of Managed Care Am J Manag Care. 2018;24(4):197-202, 6 pp.

Association of Maternal & Child Health Programs and the National Academy for State Health Policy. 2017 . National standards systems of care for children and youth with special health care needs (rev ed). Washington, DC: Association of Maternal and Child Health Programs; Portland, ME: National Academy for State Health Policy, 36 pp.

Annotation: This resource provides a set of system standards that can be used or adapted for use by various systems and organizations that serve CYSHCN. This includes state Title V programs, state Medicaid and CHIP programs, private and public health plans, pediatricians and other health care providers, family/consumer groups, as well as families themselves. Topics include (1) identification, screening, assessment, and referral; (2) eligibility and enrollment in health coverage; (3) access to care; (4) medical home; (5) community-based services and supports; (6) transition to adulthood; (7) health information technology; and (8) quality assurance and improvement.

Keywords: Adolescents with special health care needs, Children with special health care needs, Standards, Young adults

National Center for Medical Home Implementation. 2015. Building your medical home: An introduction to pediatric primary care transformation. Elk Grove Village, IL: American Academy of Pediatrics, Division of Children with Special Needs,

Annotation: This resource provides direction, resources, and tools to pediatric medical home clinicians and practices seeking to advance their knowledge and understanding of the medical home concept as it relates to practice transformation. Contents include resources and strategies for starting medical home transformation, integrating key functions of a medical home into practice, and sustaining changes. [Funded by the Maternal and Child Health Bureau]

Keywords: Children with special health care needs, Health care reform, Medical home, Model programs, Resources for professionals, Service integration, Sustainability

Bachman SS, Comeau M, Jankovsky KM. 2015. The care coordination conundrum and children and youth with special health care needs. Boston, MA: Catalyst Center, the National Center for Health Insurance and Financing for Children and Youth with Special Health Care Needs, 16 pp.

Annotation: This paper provides an analysis of issues related to care coordination for children and youth with special health care needs and recommendations for moving the field forward. Topics include various definitions of care coordination, persistent barriers to adequate financing and reimbursement, and financing and payment reform to support care coordination. [Funded by the Maternal and Child Health Bureau]

Keywords: Adolescents, Barriers, Care coordination, Children, Financing, Health care reform, Health services delivery, Reimbursement, Young adults: Special health care needs

Albritton E, Petersen D, Edmunds M. 2014. How are CHIPRA quality demonstration states supporting use of care coordinators?. Rockville, MD: U.S. Agency for Healthcare Research and Quality, 8 pp. (National evaluation of the CHIPRA Quality Demonstration Grant Program: Evaluation highlight no. 9)

Annotation: This document focuses on how six states (Alaska, Idaho, Massachusetts, Oregon, Utah, and West Virginia) are using grant funds to support practices' use of care coordinators by providing training, technical assistance, and/or funding as practices implement client-centered medical home models. Topics include state-level requirement, care coordinator approach, funding source, hiring responsibility, employer, and hours worked.

Keywords: Children's Health Insurance Program, Demonstration programs, Program coordination, Program evaluation, Quality assurance, State programs

Centers for Medicare & Medicaid Services. 2014. Making connections: Strategies for strengthening care coordination in the Medicaid benefit for children and adolescents. Baltimore, MD: Centers for Medicare & Medicaid Services, 27 pp.

Annotation: This guide presents proven strategies for strengthening care coordination to increase the effective use of services covered by Early and Periodic Screening, Diagnostic, and Treatment (EPSDT) and Children's Health Insurance Programs (CHIP). The guide describes four strategies that have been implemented by multiple states and have produced outcomes demonstrating the value of improved care coordination. The strategies include building care coordination into provider standards for medical homes, supporting primary care providers through care coordination entities, building care coordination requirements into managed care contracts, and implementing a multifaceted intervention to improve coordination across systems. Examples and resources for states are included.

Keywords: Children's Health Insurance Program, Coordination, EPSDT, Health care systems, Health care utilization, Managed care, Medical home, Primary care, Program improvement, State programs

Antonelli RC, Browning DM, Hackett-Hunter, McAllister JW, Risko W, Huntington N. 2013. Pediatric care coordination curriculum (rev.). Boston, MA: Boston Children's Hospital , 5 pp.

   

The MCH Library is one of six special collections at Georgetown University, the nation's oldest Jesuit institution of higher education. The library is supported through foundation, private, university, state, and federal funding. This information or content and conclusions are those of the authors and should not be construed as the official position or policy of, nor should any endorsements be inferred by Georgetown University or the U.S. Government. Note: web pages whose development was supported by federal government grants are being reviewed to comply with applicable Executive Orders.