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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.

Displaying records 1 through 19 (19 total).

Gould Z, Buskey R, Smith H. 2024. State policy considerations to support equitable systems of care for children and youth with special health care needs . Portland, ME: National Academy for State Health Policy,

Annotation: This brief highlights state approaches and innovations to support equitable systems of care for children and youth with special health care needs (CYSHCN).

Contact: National Academy for State Health Policy, 10 Free Street, Second Floor, Portland, ME 04101, Telephone: (207) 874-6524 Secondary Telephone: (202) 903-0101 Fax: (207) 874-6527 E-mail: [email protected] Web Site: http://www.nashp.org

Keywords: Adolescents with special health care needs, Children with special health care needs, Health equity, Policy development, Public policy, State initiatives

Hinton E, Diana A. 2024. Medicaid authorities and options to address social determinants of health. Menlo Park, CA: Kaiser Family Foundation,

Annotation: This brief explains how state Medicaid programs can be used to address social determinants of health, including economic stability, education, neighborhood and physical environments, employment, social support networks, and access to health care. It describes how states have been given flexibility through managed care programs and Section 1115 demonstration waivers to address non-clinical aspects of care such as case management, housing supports, employment supports, and peer support services. Included is a summary of the new guidance issued by the Centers for Medicare and Medicaid (CMS) in 2023 on the expansion of opportunities to address health related social needs.

Contact: Henry J. Kaiser Family Foundation, 2400 Sand Hill Road, Menlo Park, CA 94025, Telephone: (650) 854-9400 Secondary Telephone: (202) 347-5270 Fax: (650) 854-4800 Web Site: http://www.kff.org

Keywords: Managed care, Medicaid, Social determinants of health, State programs

Children's Defense Fund. 2023. The state of America's children. Washington, DC: Children's Defense Fund, irregular.

Annotation: This series of reports is a compilation and analysis of national and U.S. state-by-state data on child population, child poverty, family structure, family income, housing and homelessness, hunger and nutrition, health, early childhood, education, child welfare, juvenile justice, and gun violence. Changes in key child and national well-being indicators are included.

Contact: Children's Defense Fund, 25 E Street, N.W., Washington, DC 20001, Telephone: (202) 628-8787 Secondary Telephone: (800) 233-1200 E-mail: [email protected] Web Site: http://www.childrensdefense.org Available from the website.

Keywords: Child health, Child nutrition, Child welfare, Data, Early childhood development, Education, Ethnic groups, Family characteristics, Gun violence, High risk groups, Population surveillance, Poverty, Statistics, Trends

Centers for Disease Control and Prevention . 2023. Improving access to children’s mental health care. Atlanta, GA: Centers for Disease Control and Prevention ,

Annotation: This online resource presents strategies to help connect families to children's mental health care; addresses gaps in the mental health workforce; and investigates how funding issues affect mental health care. It also addresses social determinants of health and how they affect mental health care; offers guidance on identifying children who need more support; and provides tools to help support healthy child development and the well-being of families.

Contact: Centers for Disease Control and Prevention , 1600 Clifton Road, Atlanta, GA 30333, Telephone: 1-800-CDC-INFO (232-4636 Web Site: http://www.cdc.gov

Keywords: Access to health care, Barriers, Child mental health, Health equity, Policy, Services for families

Medicaid and CHIP Payment and Access Commission. 2023. Medicaid access in brief: Children and youth with special health care needs . Washington, DC: Medicaid and CHIP Payment and Access Commission, 14 pp.

Annotation: This issue brief uses data from the 2018 and 2019 National Survey of Children’s Health (NSCH) to examine differences in health status, access to care, referrals, needed care, and the cost of care for children and youth with special health care needs (CYSHCN) covered by Medicaid with those covered by private insurance and those without insurance. Included are selected demographic and socioeconomic characteristics of CYSHCN (Ages 0-17); their health status, use of care, and quality of care according to insurance status; and the percentage of CYSHCN in each state and the source of their health insurance coverage (Medicaid, private only, or both).

Contact: Medicaid and CHIP Payment and Access Commission, 1800 M Street, N.W., Suite 360 South, Washington, DC 20036, Telephone: (202) 350-2000 Fax: (202) 273-2452 E-mail: [email protected] Web Site: http://www.macpac.gov

Keywords: Access to care, Adolescents with special health care needs, Children with special health care needs, Costs, Data, Health status, Medicaid, Statistics

Maternal Health Learning and Innovation Center . 2023. Increase access to and coverage of comprehensive high-quality maternal health services, Including behavioral health services. Chapel Hill, NC: Maternal Health Learning and Innovation Center , 13 pp. (White House blueprint evidence to action briefs)

Annotation: This brief highlights goal 1 of the White House blueprint for addressing the maternal health crisis, which is to increase access to and coverage of comprehensive high-quality maternal health services, including behavioral health services. The brief outlines the need to strengthen risk-appropriate care in rural and urban areas; improve quality of care provided to pregnant and postpartum women with or at risk for hypertensive disorders of pregnancy; expand capacity to screen, assess, treat, and refer for maternal depression and related behavioral disorders; and Integrate behavioral health supports in community settings. Evidence-informed strategies for improvement, criteria for states to consider when developing strategies, and additional resources are included. Statistics on the percentage of women ages 15-49 with health insurance (by source of coverage); percent of Medicaid coverage by race/ethnicity; and births covered by Medicaid are also provided.

Contact: Maternal Health Learning and Innovation Center , University of North Carolina at Chapel Hill, Chapel Hill, NC Web Site: https://maternalhealthlearning.org/

Keywords: Access to care, Barriers, Health insurance, Initiatives, Maternal health, Medicaid, Mental health services, Perinatal care, Service integration

Maternal Health Learning and Innovation Center. 2023. Expand and diversify the perinatal workforce. Chapel Hill, NC: Maternal Health Learning and Innovation Center, 14 pp. (White House blueprint evidence to action briefs )

Annotation: This action brief describes the need to expand and diversify the perinatal workforce to meet the nation's health care needs. Compounding the limited access to maternal health care professionals, the brief highlights the lack of racial and ethnic diversity in the workforce and recommends increasing the number of nurses, health aids, midwives, doulas, lactation consultants, and community health workers to help bridge the gap. Statistics on maternity care desserts and employment of obstetricians and gynecologists by state are included The brief also describes the numerous factors that influence the lack of maternal health care practitioners in the U.S. and includes a list of innovative projects and programs aimed at addressing the issue.

Contact: Maternal Health Learning and Innovation Center , University of North Carolina at Chapel Hill, Chapel Hill, NC Web Site: https://maternalhealthlearning.org/

Keywords: Access to care, Barriers, Healtah equity, Initiatives, Maternal health, Perinatal care, Statistics, Work force

USC Sol Price School of Public Health . 2023. How to improve access to health care: Issues & potential solutions. Los Angeles: USC Sol Price School of Public Health ,

Annotation: This article outlines barriers to health care access, including high health care costs, transportation barriers, and implicit bias and healthcare avoidance, and describes five potential solutions: (1) Expand insurance to cover health care costs; (2) Extend telehealth services; (3) Invest in mobile clinics; (4) Educate the public about multiple health care sites; and (5) Improve cultural responsiveness.

Contact: University of Southern California , Sol Price School of Public Health , Ralph and Goldy Lewis Hall , 311 , Los Angeles, CA 90089-0626, Telephone: (877)830-7625

Keywords: Access to care, Barriers

Health Resources and Services Administration, Maternal and Child Health Bureau. 2022. Rural children's health and health care. Rockville, MD: Health Resources and Services Administration, Maternal and Child Health Bureau, 3 pp. (NSCH data brief)

Annotation: This brief provides key findings from the National Survey of Children’s Health 2019–2020 about the health, including oral health, of children living in rural areas, as well as use of health care. Topics include receipt of preventive medical and oral health visits; adverse childhood experiences; and weight, physical activity, and food insecurity.

Contact: U.S. Maternal and Child Health Bureau, Health Resources and Services Administration, 5600 Fishers Lane, Rockville, MD 20857, Telephone: (301) 443-2170 Web Site: https://mchb.hrsa.gov Available from the website.

Keywords: Access to health care, Health services utilization, Nutrition, Oral health, Prevention, Rural population, Statistical data, Surveys

Association of Maternal and Child Health Programs. 2022. Virtual round table: Evaluating telehealth with an equity lens. Washington, DC: Association of Maternal and Child Health Programs,

Annotation: During this 20 minute virtual round table, presenters from the Association of Maternal and Child Health (AMCHP) discuss the role that telehealth played in addressing equity and access to care during the pandemic and how an equity lens can be used to evaluate telehealth practices moving forward.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

Keywords: Access to care, Evaluation , Health equity, Racial factors, Telehealth, Telemedicine

Association of Maternal and Child Health Programs. 2022. Virtual round table: Building equity-centered evaluations. Washington, DC: Association of Maternal and Child Health Programs,

Annotation: This webinar features three presenters who describe the Equitable Evaluation Framework and explain how equitable evaluation activities can be applied to telehealth work. Included are telehealth examples based on equitable evaluation. The recording is from the virtual roundtable presented on May 17, 2022 by the Association of Maternal and Child Health Program's Equity, Epidemiology, & Evaluation Team,

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

Keywords: Cultural sensitivity, Evaluation , Health equity, Telehealth, Telemedicine

Association of Maternal and Child Health Programs . 2020 . Equity in telehealth policy: A framework to evaluate how policy can support the use of telehealth to improve health equity in MCH public health systems . Washington, DC: Association of Maternal and Child Health Programs , 10 pp.

Annotation: This issue brief provides a definition of equity in telehealth, describes four dimensions of equity in telehealth policy, and provides case study examples of how these dimensions can be applied when assessing the equity impacts of a given maternal and child health (MCH) telehealth policy solution.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

Keywords: Health care delivery, Health equity, MCH services, Policy, Public health, Telecommunications, Telehealth, Telemedicine

Ward MM, Fox K, Merchant K, Burgess A, Ullrich F, Pearson K, Shaler G, Shea C, North S, Mena C. 2020. Process of identifying measures and data elements for the HRSA School-Based Telehealth Network Grant Program. Iowa City, IA: Rural Telehealth Research Center, 7 pp.

Annotation: This policy brief defines a set of measures for evaluating grants awarded under the School-Based Telehealth Network Grant Program, administered by the Health Resources and Services Administration Federal Office of Rural Health Policy (FORHP) Office for the Advancement of Telehealth. Grants were targeted to rural, frontier, and underserved communities providing telehealth services for school children, with a particular focus on five clinical areas: asthma, behavioral health, diabetes, health weight, and oral health. The goal of the project was to identify a common set of measures that could be collected from each of the grantees for a cross-grantee assessment of school-based telehealth services, utilization, process, and outcomes.

Contact: Rural Telehealth Research Center, N200 CPHB, 145 N. Riverside Drive, Iowa City, IA 52242, Telephone: (319) 384-3830 Web Site: https://ruraltelehealth.org/

Keywords: Access to healthcare, Health care delivery, Health care systems, Rural health, Telecommunications, Telehealth, Telemedicine

Association of Maternal and Child Health Programs . 2020. Telehealth capacity of maternal & child health public health systems in response to the COVID-19 pandemic: environmental scan . Washington, DC: Association of Maternal and Child Health Programs , 15 pp.

Annotation: This environmental scan summarizes themes that emerged during interviews with key informants on the implementation of telehealth solutions during the COVID-19 pandemic. The brief describes several themes that emerged across multiple programs: (1) There is significant variance in the level of telehealth implementation occurring across jurisdictions; (2) Systemic and widespread connectivity issues exist for families and some programs; (3) There is a lack of evidence by which to make decisions about if and how to continue or expand telehealth to best meet families’ needs; and (4) Improved mechanisms are needed to connect available educational and training resources with the providers and staff who need them, when they need them. Contributors include representatives from Title V and children and youth with special health care needs (CYSHCN) programs, newborn screening functions, and maternal, infant, and early childhood home visiting (MIECHV) services.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org

Keywords: Barriers, Child health, Children with special health needs, Health care delivery, Interviews, Maternal health, Telecommunications, Telemedicine, Youth

Laurore J, Baziyants G, Daily S. 2020. Health care access for infants and toddlers in rural areas . Bethesda, MD: Child Trends , 39 pp.

Annotation: This brief uses data from the State of Babies Yearbook: 2020 to examine state-level differences in how infants and toddlers living in rural areas are faring. It includes key findings on health care utilization among pregnant women and select infant/toddler outcome measures such as infant mortality, preterm birth, breastfeeding, vaccine uptake, and preventive checkups) Several recommendations for policy makers to help ensure equitable health care access for infants and toddlers living in rural areas are also provided.

Contact: Child Trends , 7315 Wisconsin Avenue, Suite 1200 W, Bethesda, MD 20814, Telephone: (240) 223-9200 E-mail: Web Site: http://www.childtrends.org

Keywords: Access to health care, Birthing centers, Data, Health insurance, Home births, Infant health, Outcome evaluation, Policy development, Prenatal care, Rural health, Toddlers

Schroeder, Shawnda. 2019. Rural health research recap: Healthcare access and status among rural children. Grand Forks, ND: Rural Health Research Gateway, 2 pp.

Annotation: This research recap discusses the many areas in which rural children face significant health status disparities compared to urban children. These areas include healthcare provider access, obesity rates, tobacco use, and oral health status. The document provides links for more information, as well as a list of resources.

Contact: Rural Health Research Gateway, University of North Dakota Center for Rural Health, School of Medicine & Health Sciences, Suite E231, 1301 North Columbia Road, Stop 9037, Grand Forks, ND 58202-9037, E-mail: [email protected] Web Site: https://www.ruralhealthresearch.org/

Keywords: Access to health care, Adolescents, Child health, Health care disparities, Health status disparities, Rural health, Rural populations

Catalyst Center . 2018 . Fundamentals of financing the system of care for children and youth with special health care needs (CYSHCN). Boston, MA: Catalyst Center, 10 pp.

Annotation: This document describes various pathways to financing systems of care for children and youth with special health care needs (CYSHCN). Topics addressed include Medicaid coverage, Early and Periodic Screening, Diagnostic and Treatment, inequities in coverage and financing, financial hardship experienced by families raising CYSHCN and the importance of forming partnerships to advance financing and health coverage.

Contact: Catalyst Center, the National Center for Health Insurance and Financing for Children and Youth with Special Health Care Needs, Boston University School of Public Health, Center for Advancing Health Policy and Practice, 801 Massachusetts Avenue, Boston, MA 02218-2526, Telephone: (617) 638-1930 E-mail: [email protected] Web Site: https://ciswh.org/project/the-catalyst-center/

Keywords: Adolescents with special health care needs, Children with special health care needs, EPSDT, Financing, Medicaid

Vigil J, Kattlove J, Litman R, Marcin J, Calouro C, Kwong MW. 2015. Realizing the promise of telehealth for children with special health care needs. Palo Alto, CA: Lucile Packard Foundation for Children's Health, 31 pp., fact sheet (1 p.)

Annotation: This report outlines how telehealth is used to meet the needs of children with special health care needs, barriers to wider adoption of telehealth, and recommendations for wider inclusion of telehealth as a care delivery option.

Contact: Lucile Packard Foundation for Children's Health, 400 Hamilton Avenue, Suite 340, Palo Alto, CA 94301, Telephone: (650) 497-8365 E-mail: [email protected] Web Site: http://www.lpfch.org Available from the website.

Keywords: Barriers, Children with special health care needs, Health care delivery, Medical home, Telemedicine

Edmunds M, Coye MJ , eds. 1998. America's children: Health insurance and access to care. Washington, DC: National Academy Press, 198 pp.

Annotation: This report analyzes the relationship between health insurance and access to care by addressing three broad questions: How is children's health care currently financed? Does insurance equal access to care? How should the nation address the health needs of this vulnerable population? The book explores the changing role of Medicaid under managed care; state-initiated and private sector children's insurance programs; specific effects of insurance status on the care children receive; and the impact of chronic medical conditions and special health care needs. It also examines the status of safety net health providers, including community health centers, children's hospitals, school based health centers, and others, and reviews the changing patterns of coverage and tax policy options to increase coverage of private sector, employer based health insurance.

Contact: National Academies Press, 500 Fifth Street, N.W., Keck 360, Washington, DC 20001, Telephone: (202) 334-3313 Secondary Telephone: (888) 624-8373 Contact Phone: (800) 624-6242 Fax: (202) 334-2451 E-mail: [email protected] Web Site: http://www.nap.edu $47.95; also available at no charge from the website. Document Number: ISBN 0-309-06560-7.

Keywords: Access to health care, Child health services, Children with special health care needs, Chronic illnesses and disabilities, Financing, Health insurance, Medicaid managed care, Uninsured persons, United States
   

This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.