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Strengthen the Evidence for Maternal and Child Health Programs

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Items in this list may be obtained from the sources cited. Contact information reflects the most current data about the source that has been provided to the MCH Digital Library.

Displaying records 1 through 20 (156 total).

Medicaid and CHIP Payment and Access Commission. 2024. MACstats: Medicaid and CHIP data book. Washington, DC: Medicaid and CHIP Payment and Access Commission, 155 pp.

Annotation: This data book presents data on Medicaid and the Children's Health Insurance Program (CHIP). Contents include an overview with key statistics on Medicaid and CHIP; trends in Medicaid; Medicaid and CHIP enrollment and spending with information on benefits, managed care, and program administration; Medicaid and CHIP eligibility; and measures of beneficiary health, use of services, and access to care. The final section of the data book contains a technical guide that describes the data sources used, the methods used to analyze the data, and guidance in interpreting how specific data may differ from each other or from those published elsewhere.

Contact: Medicaid and CHIP Payment and Access Commission, 1800 M Street, N.W., Suite 360 South, Washington, DC 20036, Telephone: (202) 350-2000 Fax: (202) 273-2452 E-mail: https://www.macpac.gov/contact-us/ Web Site: http://www.macpac.gov Available from the website.

Keywords: Children', Eligibility, Medicaid, Statistical data, Trends, s health insurance program

Joy Taylor K, Nelson T, Allen EH, Hinojosa S. 2024. Guide to equity for the uninsured . Washington, DC: Urban Institute, 8 pp.

Annotation: This guide presents an overview of inequities in access to health care and insurance coverage in the U.S. and highlights policy and accountability levers that advocates and other change-makers can use to advance equity. Among the topics addressed are providers and service delivery, financing, barriers to obtaining health insurance, barriers to accessing health care, disparities in coverage, accountability and oversight, and policies and actions that could lesson barriers. Links to additional sources of information are included.

Contact: Urban Institute, 500 L'Enfant Plaza, SW, Washington, DC 20024, E-mail: https://www.urban.org/about/contact-us Web Site: http://www.urban.org

Keywords: Access to care, Barriers, Health care disparities, Health equity, Health insurance, Initiatives, Policy, Uninsured persons

Taylor KJ, Hinojosa S, Allen EH, and Nelson T. 2024. Guide to equity in the children's health insurance program . Washington, DC: Urban Institute,

Annotation: This guide presents an overview of the Children's Health Insurance Program (CHIP), including system inequities, and highlights policy and accountability levers that advocates and other change-makers can use to advance equity. Among the topics addressed are financing, providers and service delivery, barriers to accessing and maintaining CHIP coverage, barriers to accessing health care services in CHIP, accountability and oversight, and policies and actions that could lesson barriers. Links to additional sources of information are included.

Contact: Urban Institute, 500 L'Enfant Plaza, SW, Washington, DC 20024, E-mail: https://www.urban.org/about/contact-us Web Site: http://www.urban.org

Keywords: Access to care, Barriers, Children', Health care disparities, Health equity, Initiatives, Policy, s Health Insurance Program

Insure Kids Now. 2023. Improving oral health. Baltimore, MD: U.S. Centers for Medicare & Medicaid Services, multiple items.

Annotation: These resources are designed to help health professionals promote oral health coverage in Medicaid and the Children’s Health Insurance Program (CHIP) and educate pregnant women and parents and other caregivers about good oral health habits. Contents include links to Medicaid and CHIP benefits for children by state and a tool to help families find a dentist. Additional contents include a fact sheet, a flyer, a poster, tear pads, web banners and buttons, social media messages, images for Facebook and Twitter, and newsletter templates in English and Spanish.

Contact: Insure Kids Now, Centers for Medicare and Medicaid Services, 7500 Security Boulevard, Baltimore, MD 21244, Web Site: https://www.insurekidsnow.gov Available from the website.

Keywords: Children with special health care needs, Children', Consumer education materials, Medicaid, Oral health, Pregnant women, Public awareness campaigns, Resources for professionals, Spanish language materials, Young children, s Health Insurance Program

U.S. Centers for Medicare & Medicaid Services. 2023. Connecting kids to coverage national campaign: Outreach strategies and materials. [Baltimore, MD]: U.S. Centers for Medicare & Medicaid Services, multiple items.

Annotation: This website provides strategies and materials from a national outreach and enrollment initiative. The purpose of the initiative is to raise awareness about health coverage available under Medicaid and the Children's Health Insurance Program; create opportunities for families to get their eligible children and adolescents signed up for coverage; motivate parents to enroll their children and adolescents and renew their coverage; and help states, community organizations, schools, health professionals, and others organize and conduct successful outreach activities. Contents include customizable fact sheets, palmcards, posters, public service announcements, webinars, and a newsletter. Links to campaign partners; a video library; tools for using technology to facilitate outreach; and strategies for businesses, community health centers, schools, and youth sports are also included. Some materials are available in Spanish.

Contact: U.S. Centers for Medicare & Medicaid Services, 7500 Security Boulevard, Baltimore, MD 21244, Telephone: (800) 633-4227 Secondary Telephone: (877) 267-2323 Fax: Web Site: https://www.cms.gov Available from the website.

Keywords: Adolescents, Children, Children', Enrollment, Federal initiatives, Health insurance, Medicaid, Multimedia, Outreach, Public awareness campaigns, Spanish language materials, s Health Insurance Program

Genetic Alliance, Parent to Parent USA, Family Voices. 2023. Advocacy ATLAS: Accessible Tools for Leadership and Advocacy Success. Washington, DC: Genetic Alliance, multiple items.

Annotation: This resource provides individuals with special health care needs and their families with tools and strategies to advocate for whatever they may need. Topics include access to health care, accessible communities, advocacy and leadership skills, communicating about health, education services and support, insurance and financial assistance, legislation and political action, steps to employment success, transition to adulthood, and youth leadership.

Contact: Genetic Alliance, 4301 Connecticut Avenue, N.W., Suite 404, Washington, DC 20008-2369, Telephone: (202) 966-5557 Secondary Telephone: (800) 336-GENE Fax: (202) 966-8553 E-mail: [email protected] Web Site: http://www.geneticalliance.org Available from the website.

Keywords: Access to health care, Advocacy, Communication, Family support services, Leadership, Life course, Special health care needs, Transitions

Catalyst Center. 2023. Leverage opportunities + speak the Medicaid language: A workbook for Title V. Boston, MA: Catalyst Center,

Annotation: This workbook for Title V program staff focuses on the importance of Medicaid in the system of services for children and youth with special health care needs (CYSHCN). It provides an overview of the Medicaid program, including chapters on Medicaid managed care; the Early and Periodic Screening Diagnostic and Treatment (EPSDT) benefit; and pathways to Medicaid coverage for children who require an institutional level of care. The purpose of the resource is to increase Title V program staff identification and knowledge of finance-related services for CYSHCN, particularly Medicaid. It includes questions to guide users through the process of mapping a Medicaid system and building a strategy for their own state.

Contact: Catalyst Center, the National Center for Health Insurance and Financing for Children and Youth with Special Health Care Needs, Boston University School of Public Health, Center for Advancing Health Policy and Practice, 801 Massachusetts Avenue, Boston, MA 02218-2526, Telephone: (617) 638-1930 E-mail: [email protected] Web Site: https://ciswh.org/project/the-catalyst-center/

Keywords: Adolescents with special health care needs, Children with special health care needs, Children', Medicaid, Medicaid managed care, Title V, Youth, s Health Insurance Program

mours Children's Health System. 2023. How to find affordable health care . Jacksonville, FL: Nemours Children's Health,

Annotation: This online resource describes pathways to children's health insurance for parents who can not afford adequate coverage or who have limited coverage under an employer's plan. The site includes information on Medicaid, the Children's Health Insurance Plan (CHIP), community health centers, and private insurance options. It also describes ways in which parents can reduce the cost of medications, physician care, and hospital services for children with and without special health care needs.

Contact: Nemours Children's Health System, 10140 Centurion Parkway North, Jacksonville, FL 32256, Telephone: (904) 697-4100 Web Site: http://www.nemours.org

Keywords: Child health, Children with special health care needs, Children', Costs, Health insurance, Medicaid, s Health Insurance Program

Medicaid and CHIP Payment and Access Commission. 2023. Medicaid access in brief: Children and youth with special health care needs . Washington, DC: Medicaid and CHIP Payment and Access Commission, 14 pp.

Annotation: This issue brief uses data from the 2018 and 2019 National Survey of Children’s Health (NSCH) to examine differences in health status, access to care, referrals, needed care, and the cost of care for children and youth with special health care needs (CYSHCN) covered by Medicaid with those covered by private insurance and those without insurance. Included are selected demographic and socioeconomic characteristics of CYSHCN (Ages 0-17); their health status, use of care, and quality of care according to insurance status; and the percentage of CYSHCN in each state and the source of their health insurance coverage (Medicaid, private only, or both).

Contact: Medicaid and CHIP Payment and Access Commission, 1800 M Street, N.W., Suite 360 South, Washington, DC 20036, Telephone: (202) 350-2000 Fax: (202) 273-2452 E-mail: https://www.macpac.gov/contact-us/ Web Site: http://www.macpac.gov

Keywords: Access to care, Adolescents with special health care needs, Children with special health care needs, Costs, Data, Health status, Medicaid, Statistics

Association of Maternal and Child Health Programs . 2022-. Get affordable health coverage for you and your family: Marketplace open enrollment season is here!. Washington, DC: Association of Maternal and Child Health Programs, 2 pp.

Annotation: This fact sheet for families explains when and how to enroll in the Health Insurance Marketplace to receive affordable coverage. It explains how Affordable Care Act (ACA) Open Enrollment is a critical time to promote the opportunity for affordable health care coverage; describes what is included in the marketplace plans and what they cost; and offers step-by-step enrollment instructions. A companion document describes the ways in which Title V maternal and child health programs can promote enrollment during the ACA open season (see unique #39525)

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org Available from the website.

Keywords: Access to health care, Children', Enrollment, Families, Health Insurance, Medicaid, Outreach, s Health Insurance Program

Medicaid and CHIP Payment and Access Commission. 2022. Report to the Congress on Medicaid and CHIP. Washington, DC: Medicaid and CHIP Payment and Access Commission, 196 pp.

Annotation: This report focuses on aspects of Medicaid's mission to ensure access to high-quality health services and the program's future as a major health care payer driving health system change toward value. The report focuses on topics of interest to Congress, including Medicaid’s responsiveness during economic downturns; concerns about high rates of maternal morbidity and mortality; improving hospital payment policy for the nation's safetynet hospitals, and the integration of care for people who are dually eligible for Medicaid and Medicare.

Contact: Medicaid and CHIP Payment and Access Commission, 1800 M Street, N.W., Suite 360 South, Washington, DC 20036, Telephone: (202) 350-2000 Fax: (202) 273-2452 E-mail: https://www.macpac.gov/contact-us/ Web Site: http://www.macpac.gov Available from the website.

Keywords: Access to health care, Adolescents, Children, Children', Costs, Financing, Health care reform, Health services delivery, Medicaid, Medications, Mental health, Oral health, Organizational change, Pregnant women, Reimbursement, Systems development, s Health Insurance Program

[Maternal and Child Health Bureau]. 2022. Federally available data (FAD) resource document (rev ed). [Rockville, MD: Maternal and Child Health Bureau], 173 pp.

Annotation: This document provides federally available data, detailed data notes, stratifier information, and Statistical Analysis System coding for national maternal and child health–related outcome and performance measures. Topics include preventive medical and dental visits, cesarean deliveries, perinatal regionalization, breastfeeding, safe infant sleep, developmental screening, hospitalization for nonfatal injuries, physical activity, bullying, medical home, transitions to adult health care, smoking, and adequate insurance.

Contact: U.S. Maternal and Child Health Bureau, Health Resources and Services Administration, 5600 Fishers Lane, Rockville, MD 20857, Telephone: (301) 443-2170 Web Site: https://mchb.hrsa.gov Available from the website.

Keywords: Clinical coding, Data sources, Measures

U.S. Centers for Medicare & Medicaid Services. 2022. Overview of the dental and oral health service measures in the 2022 child core set. Baltimore, MD: U.S. Centers for Medicare & Medicaid Services, 4 pp. (Medicaid & CHIP health care quality measures, Technical assistance resource)

Annotation: This resource provides an overview of the three oral health care measures in the 2022 Core Set of Children’s Health Care Quality Measures for Medicaid and the Children’s Health Insurance Program (Child Core Set) and highlights differences in the measure specifications. The three measures are sealant receipt on permanent first molars; oral evaluation, dental services; and topical fluoride for children. Links to resources to help states calculate the dental and oral health services measures for Child Core Set reporting are included.

Contact: U.S. Centers for Medicare & Medicaid Services, 7500 Security Boulevard, Baltimore, MD 21244, Telephone: (800) 633-4227 Secondary Telephone: (877) 267-2323 Fax: Web Site: https://www.cms.gov Available from the website.

Keywords: Children', Dental sealants, Fluoride, Health services, Medicaid, Oral health, s Health Insurance Program

Association of Maternal and Child Health Programs . 2022. Promoting the 2023 ACA marketplace open enrollment: The role of state Title V programs. Washington, DC: Association of Maternal and Child Health Programs, 1 p.

Annotation: This fact sheet describes the ways in which Title V maternal and child health programs can promote enrollment during the Affordable Care Act (ACA) open season. A companion fact sheet for families explains when and how to enroll in the Health Insurance Marketplace to receive affordable coverage (see unique #39524).

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org Available from the website.

Keywords: Access to health care, Enrollment, Health insurance: Children', Health promotion , Title V programs, s Health Insurance Program

Association of Maternal and Child Health Programs. 2022. The Unwinding of the COVID-19 public health emergency: Opportunities for Title V programs to protect coverage for children and families during the Medicaid redetermination process. Washington, DC: Association of Maternal and Child Health Programs, 5 pp.

Annotation: This fact sheet explains how Title V maternal and child health (MCH) programs can actively engage state Medicaid agencies and work with state and local partners to ensure that Medicaid-eligible recipients continue to receive adequate health coverage once the COVID-19 federal public health emergency (PHE) funding ceases. The fact sheet focuses on the challenges posed by the required redetermination of Medicaid eligibility; the staff-intensive enrollment process; and the number of at-risk recipients whose job status changed during the pandemic.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org Available from the website.

Keywords: Access to care, Communicable diseases, Emergencies, Enrollment, Federal programs, Health Insurance, Medicaid, Public health, Title V, Virus diseases

Schiff J, Manning L, VanLandeghem K, Langer CS, Schutze M, Comeau M. 2022. Financing care for CYSHCN in the next decade: Reducing burden, advancing equity, and transforming systems . Pediatrics. 2022 Jun 1;149(Suppl 7), 9 pp.

Caffrey E, Tate AR, Cashion SW, Lee JY, Casamassimo P, Wright R, Litch CS, Essling M. 2021. Are your kids covered? Medicaid coverage for the essential oral health benefits (2nd ed.). Chicago, IL: American Academy of Pediatric Dentistry, 16 pp.

Annotation: This brief evaluates Medicaid coverage for a select group of dental insurance codes that address barriers to optimal oral health care for children. The goal of the brief, which explains how these codes are created and why they are important, is to raise awareness of the codes and of the benefits of advocating for their inclusion in state fee schedules. For each code, the brief offers a rationale, a recommendation, and a list of states that reimburse for the code.

Contact: American Academy of Pediatric Dentistry, 211 East Chicago Avenue, Suite 1600, Chicago, IL 60611-2637, Telephone: (312) 337-2169 Fax: (312) 337-6329 Web Site: http://www.aapd.org Available from the website.

Keywords: Dental caries, Disease prevention, Insurance, Medicaid, Oral health

Girmash E, Creveling E. 2021. Strengthening Title V - Medicaid managed care collaborations to improve care for CYSHCN. Boston, MA: Catalyst Center, 8 pp.

Annotation: This issue brief discusses how state Title V programs, Medicaid agencies, and Medicaid managed care organizations can work collaboratively to strengthen supports for children and youth with special health care needs. The brief enumerates the essential steps in the Medicaid managed care procurement process and provides strategies and considerations for collaboration between Title V and managed care programs.

Contact: Catalyst Center, the National Center for Health Insurance and Financing for Children and Youth with Special Health Care Needs, Boston University School of Public Health, Center for Advancing Health Policy and Practice, 801 Massachusetts Avenue, Boston, MA 02218-2526, Telephone: (617) 638-1930 E-mail: [email protected] Web Site: https://ciswh.org/project/the-catalyst-center/ Available from the website.

Keywords: Access to care, Adolescents with special health care needs, Children with special health care needs, Health insurance, Medicaid, State programs, Title V programs, Youth with special health care needs

Association of Maternal and Child Health Programs . 2021. National Performance Measure (NPM) Implementation Toolkits. Washington, DC: Association of Maternal and Child Health Programs,

Annotation: This series of toolkits provides specific evidence-based practices, reports, publications, and resources that can be adapted and used by maternal and child health (MCH) professionals. Each toolkit focuses on a specific Title V National Performance Measure (NPM), including NPM 1 Well woman visit, NPM 2 Low-risk cesarean delivery, NPM 3 Perinatal regionalization, NPM 4 Breastfeeding, NPM 5 Safe sleep, NPM 6 Developmental screening, NPM 7 Injury prevention, NPM 8 Physical activity, NPM 9 Bullying, NPM 10 Adolescent well visit, NPM 11 Medical home, NPM 12 Transition, NPM 13 Preventative dental visit, NPM 14 Smoking cessation, and NPM 15 Adequate insurance. Each toolkit includes evidence-informed strategies that Title V programs can use to address their MCH priorities.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org Available from the website.

Keywords: Measures, Resources for professionals , State MCH programs, Title V programs

Association of Maternal and Child Health Programs; Georgia Health Policy Center. 2021. Medicaid options for states during COVID-19: Considerations for children and youth with special health care needs. Washington, DC: Association of Maternal and Child Health Programs,

Annotation: This fact sheet explores Medicaid policy options for states to meet the needs of children and youth with special health care eneds (CYSHCN) during the COVID-19 public health emergency (PHE) and discusses how future rollbacks of PHE modifications may affect CYSHCN populations.

Contact: Association of Maternal and Child Health Programs, 1825 K Street, N.W., Suite 250, Washington, DC 20006-1202, Telephone: (202) 775-0436 Fax: (202) 478-5120 E-mail: [email protected] Web Site: http://www.amchp.org Available from the website.

Keywords: Adolescents with special health care needs, Children with special health care needs, Children', Communicable diseases, Emergencies, Medicaid, Policy development, State health insurance programs, Virus diseases, Youth, s health insurance program
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The MCH Digital Library is one of six special collections at Geogetown University, the nation's oldest Jesuit institution of higher education. It is supported in part by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under award number U02MC31613, MCH Advanced Education Policy with an award of $700,000/year. The library is also supported through foundation and univerity funding. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.