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Strengthening the evidence for maternal and child health programs

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Annotated Lists of Organizations on Key Topics in Maternal and Child Health

This list of 677 organizations is drawn from the MCH Organizations online database. Contact information is the most recent known to the MCH Digital Library. To identify additional materials on this topic, search the Organizations database using our online search form.

The MCH Organizations Database lists government, professional, and voluntary organizations involved in maternal and child health activities, primarily at a national level. Information available to consumers is indicated where known.

Displaying 677 records.

24 Languages Project

Annotation: The 24 Languages Project was founded in 2000 as a joint endeavor of the Spencer S. Eccles Health Sciences Library and the Utah Department of Health, to digitize translated consumer health brochures for online access. The 24 Languages Project is now supported by several organizations and provides information in audio formats as well as pdf documents. Most of the materials are also available as sound recordings for downloading or immediate listening. Native speakers of the respective languages furnish the narrations, which are recorded, encoded, and linked to the project's Web site for access. Languages represented on the site include Arabic, Armenian, Cambodian, Chinese, Croatian, English, Farsi, French, German, Haitian Creole, Hmong, Japanese, Korean, Laotian, Portuguese, Romanian, Russian, Samoan, Serbo-Croatian, Somali, Spanish, Tagalog, Thai, Tongan, and Vietnamese.

Keywords: Asian language materials, Audiovisual materials, Consumer education materials, Foreign language materials, Spanish language materials

AARP (AARP)

Annotation: AARP, formerly the American Association of Retired Persons, serves people over age 50 by promoting their independence, purpose, and dignity through legislative advocacy, research, informative programs, and promoting community service. AARP has chapters in every state and over 2,500 local chapters. The association publishes AARP Magazine and the monthly AARP Bulletin. The AARP Web site provides online information, services and tools to help people 50+ get the most out of life. AARP's Web site offers information on a broad range of topics, including AARP's public policies, answers to financial planning questions, guidance on health and wellness, tips for coping with difficult life transitions, as well as opportunities to contact elected government officials, and participate in discussion groups and online courses. Publications on a variety of subjects such as health and fitness, financial and retirement planning, housing, and more are available free to both members and nonmembers. In addition to consumer education, AARP conducts and publishes research on aging issues and analyzes related national and state policies through its Public Policy Institute. AARP has a Research Information Center, which specializes in social gerontology, and an online database, AgeLine. AARP also produces "Prime Time Radio," a weekly interview program focusing on the interests of people 40 and over, and "Mature Focus Radio," which offers daily brief discussions on topics of interest to older people. Other broadcast activities include radio features in English and Spanish, educational documentaries and TV video news releases. AARP programs include: AARP Independent Living/Long-Term Care/End-of-Life Issue, AARP Driver Safety Program, Tax Aide, Senior Community Service Employment Program, and Volunteering. Some publications are also available in Spanish.

Keywords: Aging, Retirement

Academy of Nutrition and Dietetics (AND)

Annotation: The Academy of Nutrition of Dietetics (AND) is the advocate of the dietetics profession serving the public through the promotion of optimal nutrition, health, and well being. The association is involved in the credentialing of competent nutrition and dietetic professionals and provides continuing education for nearly 70,000 members. Key areas of interest include obesity and overweight (with a focus on children); healthy aging; nutrigenetics and nutrigenomics; Integrative medicine (including supplements and alternative medicine; and safe, sustainable, and nutritious food supply. Through its Knowledge Center, ADA provides current food and nutrition information for consumers, health professionals, and ADA members. Until 2012 it was known as the American Dietetic Association (ADA)

Keywords: Nutrition, Child nutrition, Consumer education, Dietetic technicians, Health promotion, Hotlines, Information sources, Maternal nutrition, Professional societies, Public health nutrition, Publications, Spanish language materials

Adolescent Employment Readiness Center (AERC)

Annotation: The Adolescent Employment Readiness Center (AERC) is a national program that helps adolescents with chronic illnesses or physical disabilities to obtain the skills required for successful employment. The center advocates early vocational guidance and education as a means of improving workforce readiness and employability among adolescents with chronic illnesses or disabilities. Services provided include referrals, publications, and reference information. Some materials are available in Spanish. An interpreter service is also available. AERC publishes a newsletter and sponsors conferences, workshops, and training programs.

Keywords: Youth, Adolescents, Chronic illnesses and disabilities, Disabilities, Employment services, Information services, Vocational education

Adolescent Pregnancy Prevention Coalition of North Carolina (APPCNC)

Annotation: The Adolescent Pregnancy Prevention Coalition of North Carolina (APPCNC) serves as a statewide clearinghouse and network for adolescent pregnancy prevention resources and helps local communities to develop prevention councils. The coalition maintains a library and resource center of more than 1,000 pamphlets, brochures, films, videotapes, curricula, national and state reports, and other materials on adolescent pregnancy issues. Services to consumers also include referrals. APPCNC sponsors conferences and training seminars, and publishes a catalog and newsletter. It also provides materials in Spanish.

Keywords: Adolescent pregnancy, Coalition, North Carolina, Prevention programs, Referals, Self help clearinghouses

AdoptUSKids

Annotation: AdoptUSKids works to raise public awareness about the need for foster and adoptive families and supports states, territories, and Tribes in their efforts to find families for children in foster care, particularly the most challenging to place. AdoptUSKids offers a variety of resources, services, and tools to both families and child welfare professionals. One of its core services is to provide technical assistance and resources to states, territories, and Tribes through the National Resource Center for Diligent Recruitment at AdoptUSKids (NRCDR).

Keywords: Adoptive parents, Adoption, . Collaboration, Children, Foster care, Foster parents, Information sources, Public service announcements

Advocacy Center for Persons with Disabilities (ACPD, Advocacy Center)

Annotation: The Advocacy Center for Persons with Disabilities, formerly the Governor's Commission on Advocacy, is a federally funded nonprofit corporation working to advance the dignity, equality, self-determination, and expressed choices of individuals with disabilities. The Center promotes, expands, protects, and seeks to assure the human and legal rights of the people through the provision of information and advocacy. The center administers five federally mandated programs: the Protection and Advocacy System for Persons with Developmental Disabilities, the Client Assistant Program, the Protection and Advocacy System for Individuals with Mental Illness, the Protection and Advocacy for Individual Rights, and the Technology Assistance Program. Services to consumers include advocacy and information. The center publishes a newsletter, sponsors training seminars, and provides materials in Spanish.

Keywords: Advocacy, Disabilities, Special health care needs

Advocates for Children and Youth (ACY)

Annotation: Advocates for Children and Youth (ACY) is a statewide nonprofit organization that educates Marylanders about the needs of children and encourages investment in good health, quality education, safe environment, and economic security of children. Activities include: educating and mobilizing Marylanders around the needs of children and their families; researching and providing information to public officials, the media, and statewide organizations on key issues affecting Maryland's children and families; identifying effective programs and services that meet the needs of children and their families and advocating for funds to implement these programs and services; and A providing legal representation to children who are having trouble staying in school. A publications list if available, and some materials are available in Spanish. The organization sponsors conferences.

Keywords: Advocacy, Children, Maryland, Public policies

Advocates for Youth (AFY)

Annotation: Advocates for Youth is dedicated to creating programs and advocating for policies that help young people make informed and responsible decisions about their reproductive and sexual health. Advocates provides information, training, and strategic assistance to youth-serving organizations, policy makers, youth activists, and the media in the United States and the developing world. Advocates publishes newsletters, as well as provider- and consumer-oriented publications on adolescent reproductive health. A publications catalog is available. Some materials are available in French, Spanish, and Portuguese.

Keywords: Adolescent pregnancy, Adolescents, Decision making skills, Information sources, Life skills, Peer education, Programs, Publications, Reproductive health, Sexual behavior, Sexuality education, Spanish language materials, Women

Agenesis of the Corpus Callosum Network (ACC Network)

Annotation: The Agenesis of the Corpus Callosum Network (ACC Network) has published The ACC Directory and has compiled a bibliography of articles about this disorder and others, including dysgenesis of the corpus callosum and disorders involving the underdevelopment or malformation of the corpus callosum. The organization sends information packets to individuals with these conditions, their families, and professionals. The packet includes a directory, bibliography, data analysis, articles, and other materials. The ACC Network publishes a newsletter, The Callosal Connection, and provides some materials in Spanish. The organization also provides support via telephone, mail, and electronic mail.

Keywords: Agenesis of the corpus callosum Developmental disabilities, Directories, Parent groups, Support groups

Aiding Mothers and Fathers Experiencing Neonatal Death (AMEND)

Annotation: Aiding Mothers and Fathers Experiencing Neonatal Death (AMEND) offers support and encouragement to parents who have lost an infant. Bereaved parents have one-to-one contact with a trained counselor who has also experienced a loss due to miscarriage, stillbirth, or neonatal death. Several local chapters exist without formal national affiliation. St. Louis AMEND was established in 1974. Los Angeles AMEND was established in 1977 and can be reached at P.O. Box 30, Harbor City, CA 90710-0030; (818) 887-7999. Services to consumers include publications and reference information. Some materials are available in Spanish.

Keywords: Grief, Neonatal death, Perinatal bereavement, Perinatal mortality, Pregnancy loss, Spontaneous abortion, Support groups, Parent support services

Al-Anon Family Groups (Al-Anon/Alateen)

Annotation: Al-Anon Family Groups (Al-Anon/Alateen) is a self-help fellowship that offers a program of recovery for the relatives and friends of alcoholics. Members share their experience, strength, and hope in order to solve their common problems. Al-Anon is not allied with any sect, denomination, political entity, organization, or institution. On behalf of the group it serves, the organization registers local meetings, sponsors training seminars, and develops education books, audiovisuals, booklets, and brochures about recovery from the effects of living with the disease of alcoholism. Some of these materials are available in Spanish and French. They also publish a newsletter and catalog.

Keywords: Alcoholism, Alcohol abuse, Educational materials, Family recovery, Substance abuse, Support groups

Alabama Department of Rehabilitation Services

Annotation: Materials are available in Spanish and Braille.

Allergy and Asthma Network/Mothers of Asthmatics (AAN/MA)

Annotation: The Allergy and Asthma Network/Mothers of Asthmatics, Inc. (AAN/MA) is a national nonprofit network of families working to overcome allergies and asthma. AANMA produces practical resources, educational materials, and programs to address the health and family needs of people with asthma and allergies. The organization provides reference information to consumers through its toll-free help line and publishes Allergy & Asthma Today magazine and the monthly newsletter MA Report. Some materials are available in Spanish.

Keywords: Allergies, Asthma, Respiratory diseases

Alliance for Healthy Homes

Annotation: The Alliance for Healthy Homes, formerly the Alliance to End Childhood Lead Poisoning, is a Washington-based national public interest organization working to protect children from lead poisoning and other housing-related health hazards. The Alliance alerts the public to the problem of childhood lead poisoning, develops strategies for prevention, oversees federal programs, and regulates and informs health professionals and political leaders of its health risks and available remedies. Areas of emphasis include primary prevention—removing sources of lead and other hazardous substances in the environment before children are exposed—and expansion of blood screening programs to identify at-risk children. The alliance also works with grassroots groups for social justice in low-income communities, providing resources through its Community Environmental Health Resource Center (see http://www.cehrc.org). Services to consumers include publications and reference information. Publications include a newsletter. Some materials are available in Spanish.

Keywords: Lead, Lead poisoning

Alstrom Syndrome International (ASI)

Annotation: Alstrom Syndrome International (ASI) provides information, networking, and emotional support for people afflicted with Alstrom Syndrome and their families. It also serves as an information resource for physicians, researchers, and any associated professionals who have an interest in Alstrom syndrome. ASI also promotes and encourages medical research with the hope of determining the cause and finding a cure for Alstrom Syndrome and related diseases. ASI publishes a quarterly newsletter and maintains a listserv for individuals (both professionals and family members) interested in Alstrom Syndrome. Materials are available in Portuguese, German, Italian, Spanish, Swedish, Dutch, Turikish and Japanese.

Keywords: Alstrom syndrome, Medical research, Support groups

Alzeimer's Association

Annotation: The Alzheimer's Association (formerly the Alzeimer's Disease and Related Disorders Association) works to conquer Alzheimer's disease, to increase public awareness of the disease, and to affect related policy decisions. The association's Library and Resource Center collects and disseminates educational materials, scientific journals, research reports, and other information in various formats (print, videotape, audiotape, microfilm, CD-ROM) for professionals in patient care, service delivery, policy development, and medical research. Publications include the quarterly Advances Newsletter. A publications catalog is available. Some publications are available in Spanish and Asian languages. ADRDA also provides referrals, and sponsors conferences and training seminars.

Keywords: Alzheimers disease, Information services

Alzheimer's Disease Education and Referral Center (ADEAR)

Annotation: Sponsored by the National Institute on Aging, the Alzheimer's Disease Education and Referral Center (ADEAR) offers referrals, information, and publications on Alzheimer's disease to patients and their families, health and service professionals, caregivers, and the public. The toll-free telephone number is answered in person by information specialists (Mon.-Fri., 8:30-5:00 p.m, EST). Publications include a catalog and a newsletter, and Spanish materials are available. Some publications are available on the Web site.

Keywords: Alzheimers disease

American Academy of Allergy, Asthma and Immunology (AAAAI)

Annotation: The American Academy of Allergy, Asthma, and Immunology (AAAAI) is a professional society of physicians specializing in allergy, asthma, and allergic diseases. The Academy enhances and supports allergy/immunology programs; fosters and disseminates research; provides advocacy and support for patients and the allergy/immunology specialists who provide their care; and provides education and information for members, other healthcare professionals, patients and the public. The Web site provides online access to brochures, allergy guides, tip sheets, research findings, and video guides. Included are school tools, parent resources, a food allergy library, The Virtual Allergist™ -- an interactive tool to help diagnose asthma and allergy symptoms -- and The National Allergy Bureau™ -- the section of the AAAAI's Aeroallergen Network that is responsible for reporting current pollen and mold spore levels to the public.

Keywords: Allergies, Asthma, Immunologic diseases, Respiratory diseases

American Academy of Child and Adolescent Psychiatry (AACAP)

Annotation: The American Academy of Child and Adolescent Psychiatry (AACAP) represents over 7,500 child and adolescent psychiatrists, physicians with at least five years of additional training beyond medical school in adult, child, and adolescent psychiatry. Academy members actively research, diagnose, and treat emotional, developmental, behavioral, and mental disorders affecting children, adolescents, and their families. The Academy provides public information, including a referral service that works with child advocacy groups, parents, teachers, and other medical and mental health professionals. Some family materials are available in Spanish, Arabic, Hebrew, Icelandic, Malaysian, Polish, Spanish, and Urdu. The academy publishes a catalog, a newsletter and a journal. The academy also sponsors conferences and training seminars.

Keywords: Psychiatry, Adolescent mental health, Adolescents, Advocacy, Behavior, Child mental health, Children, Conferences, Foreign language materials, Guidelines, Mental health, Mental health professionals, Mental health services, Professional societies, Public awareness campaigns, Publications, Referrals, Spanish language materials, Training

American Academy of Dermatology (AAD)

Annotation: Founded in 1938, the American Academy of Dermatology (AAD) is a professional society of medical doctors specializing in skin disease. The organization conducts educational programs, provides placement , and compiles statistics. Publications include a directory, a newsletter, and the Journal of the American Academy of Dermatology. Some materials are available in Spanish. ADD also maintains a listserv.

Keywords: Skin diseases

American Academy of Family Physicians (AAFP)

Annotation: The American Academy of Family Physicians (AAFP) is a national association representing family physicians, family medicine residents, and medical students that seeks to promote the science and art of family medicine and to ensure high-quality, cost-effective health care for clients of all ages. AAFP's website contains news and information on journals, continuing medical education, clinical care and research, running a practice, policy and advocacy, and careers. AAFP's patient Web site -- familydoctor.org -- features information for specific populations including women, men, parents and kids, and older adults; health tools such as a guide to over-the-counter medications; and tips for healthy living. The website can be viewed in English and Spanish.

Keywords: Child health, Conferences, Families, Immunization, Physicians, Preventive health services, Primary care, Professional societies, Professional training, Publications, Spanish language materials, Spanish language website

American Academy of Ophthalmology (AAO)

Annotation: The American Academy of Ophthalmology is a national association of ophthalmologists, Eye M.D.s who provide total eye care, including medical, surgical, and optical care. The organization is dedicated to helping the public maintain healthy eyes and good vision. It develops and disseminates a wide range of print and audiovisual instructional materials to assist ophthalmologists and other ophthalmic providers in the diagnosis and treatment of eye disease. The Academy also offers practice management programs, patient information materials, and a variety of publications including Ophthalmology, a monthly scientific journal, and EyeNet, a monthly clinical publication. A catalog is available. Some materials are available in other languages. The academy foundation also sponsors an annual meeting and consumer web site at www.eyesmart.org

Keywords: Eye care, Ophthalmologists, Professional societies, Vision disorders

American Academy of Otolaryngology-Head and Neck Surgery (AAO-HNS)

Annotation: The American Academy of Otoloaryngology-Head and Neck Surgery Foundation (AAO-HNS) is dedicated to the care of the ears, nose, throat and related structures of the head and neck. The academy provides continuing education programs that offer practitioners educational experiences that assist in broadening their understanding of otolaryngology-head and neck surgery, and also provide a foundation for continued learning. The Academy provides consumers with referrals and publishes a series of patient education leaflets on common ENT disorders, some of which are available in Spanish. Single copies are available free to the public. A catalog of products and services is published annually.

Keywords: Otolaryngology, Surgery

American Academy of Pediatric Dentistry (AAPD)

Annotation: The American Academy of Pediatric Dentistry (AAPD) advocates for policies, guidelines, and programs that promote optimal oral health and oral health care for infants, children, and adolescents, including those with special health care needs (SHCNs). AAPD’s website contains guidelines and policy statements and issues of the journal, Pediatric Dentistry.

Keywords: American Academy of Pediatric Dentistry, Child health, Children with special health care needs, Consumer education, Education, Guidelines, Medical research, Oral health, Pediatric dentistry, Professional societies, Publications, Spanish language materials

American Academy of Pediatrics (AAP)

Annotation: The American Academy of Pediatrics (AAP) develops policy and educates health professionals and the public on pediatric health needs, and serves as an advocate for children, adolescents, and families by promoting legislation and community-based programs that affect their health. Publications include Red Book: Report of the Committee on Infectious Diseases, AAP News, policy statements, manuals, patient education materials, and a monthly journal, Pediatrics, as well as a publications catalog. Some resources are available in Spanish and other languages. AAP also sponsors conferences and training seminars for members.

Keywords: Adolescents, Child abuse, Child advocacy, Child care, Child health, Conferences, Immunization, Injury prevention, Pediatrics, Preventive health services, Professional societies, Professional training, Publications, Resources for professionals, Spanish language materials, Young children

American Association of Blood Banks (AABB)

Annotation: The American Association of Blood Banks (AABB) promotes the highest standards of care and service to patients, donors, other health care professionals, and the public by providing leadership in blood procurement, distribution, and other activities related to blood banking and transfusion medicine. More than 2,000 institutional members (community and hospital blood banks and hospital transfusion services) collect the nation's blood supply and transfuse more than 80 percent of the supply. Individual members include 8,000 physicians, scientists, medical technologists, administrators, blood donor recruiters, nurses, and public-spirited citizens. AABB sponsors conferences and training seminars and publishes a newsletter and journal. Some materials are available in Spanish and French and one publication in available in Japanese.

Keywords: AIDS, Blood banks, Cardiovascular diseases, HIV, Hematologic diseases, Hepatitis

American Association of Kidney Patients (AAKP)

Annotation: The American Association of Kidney Patients (AAKP) works to educate and support kidney patients and their family members. Its mission is to improve the lives of fellow kidney patients and their families by helping them deal with the physical, emotional and social impact of kidney disease. Members are people on hemodialysis or peritoneal dialysis, people with kidney transplants, their families and friends, and professionals in the dialysis field. Publications include a newsletter, a bimonthly magazine and a magazine for those who may be at risk for kidney disease. Several materials are available in Spanish. The organization sponsors conferences and hosts an annual convention.

Keywords: Kidney diseases, Chronic kidney failure, Dialysis, Organ transplantation, Patient education

American Association of Nurse Anesthetists (AANA)

Annotation: American Association of Nurse Anesthetists offers services to consumers that include publications and reference information. Some materials are available in Spanish. The organization publishes a newsletter and a journal and sponsors conferences and training seminars.

Keywords: Anesthesiology, Nurses

American Association of Retired Persons, Grandparent Information Center (AARP GIC)

Annotation: The AARP Grandparent Information Center provides information and resources to help grandparents who are the primary caregivers to their grandchildren cope with their caregiving roles. Its goals are to provide grandparents with information and referrals; to increase public awareness about grandparents raising grandchildren and the obstacles facing these families; to work with and provide assistance to agencies and groups helping these families; to examine issues and seek solutions; and to facilitate cooperation between the aging, children, family, and legal systems to assist these families. The center publishes a quarterly newsletter, Grandcare News, and other materials (some in Spanish).

Keywords: Grandparents, Parenting

American Association of Suicidology (AAS)

Annotation: The American Association of Suicidology (AAS) is a nonprofit organization that strives to understand and prevent suicide through research, public awareness programs, and education and training for professionals and volunteers. Members include mental health professionals, researchers, suicide prevention and crisis intervention centers, school districts, crisis center volunteers, and survivors of suicide. Services to consumers include referrals, publications, and reference information. Some materials are available in Spanish. AAS also maintains a listserv and develops public service announcements and pamphlets on suicide prevention, and members work with the media as consultants and participants in stories involving suicide-related issues. Publications include a bi-monthly journal, Suicide and Life-Threatening Behaviors; a quarterly newsletter, Newslink; a quarterly newsletter, Surviving Suicide; and conference proceedings.

Keywords: Suicide prevention, Attempted suicide, Crisis intervention, Health education, Information services, Mental health, Public awareness campaigns, Suicide, Training

American Behcet's Disease Association (ABDA)

American Cancer Society (ACS)

Annotation: The American Cancer Society (ACS) is a nationwide community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer through research, education, advocacy, and service. The society provides educational materials and information for patients, their families, and professionals. Some publications are available in Spanish and in Asian languages (Chinese, Korean, and Vietnamese).

Keywords: Cancer, Information sources, Medical research, Public awareness materials

American Celiac Society, Dietary Support Coalition (ACS/DSC)

Annotation: The American Celiac Society/Dietary Support Coalition (ACS/DSC) provides educational and informational materials on lactose-free, gluten-free diets to patients, physicians, nutritionists, and others. The society responds to information requests, provides referrals to support groups, publishes a newsletter, hosts a list serve, sponsors educational conferences and meetings on celiac desease(Sprue, Non-Tropical Sprue, Tropical Sprue), Dermatitis Herpetiformis, Crohn's Disease, Lactose Intolerance, Wheat Intolerance, and various autoimmune diseases, and supports research on celiac sprue disease and other dietary disorders. Membership is open to all individuals with dietary problems, family and friends of these individuals, medical professionals, and anyone interested in learning more about these dietary problems and promoting the ideals of our organization. Materials are available in Spanish and Italian.

Keywords: Celiac disease, Diet therapy, Gluten intolerance, Lactose intolerance, Restricted diets, Support groups

American College of Nurse-Midwives (ACNM)

Annotation: The American College of Nurse-Midwives (ACNM) is the professional organization for nurse-midwives in the United States. It works to improve services for mothers and babies in cooperation with other allied groups. The organization publishes the Journal of Nurse-Midwifery and Women's Health and provides a list of accredited, university-affiliated nurse-midwifery education programs. Information is available in Spanish, French, and Asian languages, and ACNM sponsors an annual conference. ACNM also provides a Web site for consumers called mymidwife.org.

Keywords: Nurse midwives, Childbirth, Conferences, Ethics, Family planning, Foreign language materials, Labor, Postpartum care, Prenatal care, Professional societies, Publications, Reproductive health, Standards

American College of Obstetricians and Gynecologists (ACOG)

Annotation: The American College of Obstetricians and Gynecologists (ACOG) provides educational materials on pregnancy, birth, contraception, reproductive health, and women's issues such as violence against women, smoking cessation, and underserved women. Members and invited experts serve on various ACOG committees focusing on adolescent health care, gynecologic practice, obstetrics, American Indian affairs, and other topics. Statistics from a variety of resources are posted on the Web site, along with guides to selected internet resources on topics such as vaccines, cultural competency, adolescent/pediatric health, pregnancy, sexuality, and smoking cessation. Services to consumers include inquiry responses and publications. A resource catalog is also available. Some materials are available in Spanish.

Keywords: Prenatal care, American College of Obstetricians and Gynecologists, Childbirth, Contraception, Domestic violence, Gynecology, Legislation, Obstetrics, Pregnancy, Professional education, Professional ethics, Professional societies, Publications, Reproductive health, Women's health

American College of Physicians (ACP)

Annotation: The American College of Physicians (ACP) is a national organization of physician specialists who apply scientific knowledge and clinical expertise to the diagnosis, treatment, and compassionate care of adults across the spectrum from health to complex illness. Members comprise internists, internal medicine subspecialists, medical students, residents, and fellows. ACP works to enhance the quality and effectiveness of health care by fostering excellence and professionalism in the practice of medicine. The website provides information about membership, continuing medical education and maintenance of certification, and meetings and courses. Clinical information, practice resources, and advocacy services are also provided.

Keywords: Professional societies, Health services, Internal medicine, Physicians

American Council for Drug Education (ACDE)

Annotation: The American Council for Drug Education (ACDE) works to curb drug abuse by informing and motivating the public. The council has launched educational campaigns targeted to specific high-risk audiences and has developed and distributed more than 60 publications and five videotapes. In addition, it produces a catalog and newsletter and provides consumers with referrals and reference information, some available in Spanish.

Keywords: Substance abuse, Drug abuse, Drug education, High risk groups

American Dental Hygienists' Association (ADHA)

Annotation: The American Dental Hygienists’ Association (ADHA) works to advance the art and science of dental hygiene, promote standards of education and practice in the profession, and provide professional support and educational programs. ADHA’s website provides information about the association’s annual meeting and periodicals, Access and Journal of Dental Hygiene. These and other ADHA resources address issues and opportunities for public health advocacy, education, and research.

Keywords: Associations, Child health, Conferences, Dental health, Dental hygienists, Oral health, Professional education, Professional societies, Publications, Spanish language materials, Training materials

American Diabetes Association (ADA)

Annotation: The American Diabetes Association (ADA) promotes research on the prevention and cure of diabetes and works to improve the well-being of people with diabetes and their families. Publications include Clinical Diabetes, Diabetes, Diabetes Care, Diabetes Forecast, Diabetes Spectrum, andDiabetes Advisor. The association also publishes a catalog. Some materials are available in Spanish. ADA also sponsors conferences and workshops.

Keywords: Diabetes, Insulin, Metabolic diseases, Spanish language materials

American Foundation for AIDS Research (AmfAR)

Annotation: The American Foundation for AIDS Research (amfAR), founded in 1985, is an independent nonprofit organization dedicated to supporting AIDS research, AIDS prevention and treatment education initiatives, and advocacy for sound AIDS-related public policy. The public policy program is currently engaged in efforts to secure necessary increases in funding for HIV/AIDS research, including vaccine and microbicide research; implement a comprehensive national prevention strategy, including repeal of the current ban on federal funding for syringe exchange programs; expand access to care and treatment; and protect the civil rights of all people affected by HIV/AIDS. amfAR has awarded grants to research teams worldwide. It is funded by voluntary contributions from individuals, foundation, and corporations. The foundation publishes the twice-yearly amfAR Global Link, a comprehensive source of information on HIV/AIDS treatments and clinical trials, available in paperback and in an online interactive database format at amfAR's Web site. amfAR also sponsors conferences, seminars, and "think tanks." Materials are available in Spanish.

Keywords: AIDS, AIDS related complex , Foundations, HIV

American Heart Association (AHA)

Annotation: The American Heart Association (AHA) is a national voluntary health agency whose mission is to reduce disability and death from cardiovascular diseases and stroke. AHA provides services and resources for healthcare professionals as well as patients and families. The association compiles statistics, offers advocacy services, provides continuing education courses, promotes physical activity and healthy eating, sponsors conferences and Web sessions, and publishes information and educational materials, including scientific findings, heart-healthy cookbooks for consumers, and electronic PDA programs for healthcare professionals.

Keywords: Continuing education, Advocacy, Cardiovascular diseases, Consumer materials, Health promotion, Heart diseases, Legislation, Medical education, Nutrition, Physical activity, Prevention programs, Spanish language materials, Statistics

American Humane Association, Children's Services (AHA)

Annotation: The Children's Services of the American Humane Association (AHA) ensures that effective child protective service systems are in place in every part of America. The association provides comprehensive training for professionals (social workers, physicians, teachers, law enforcement personnel, nurses, and judges), provides expert evaluation and technical assistance to community and statewide child protective programs, and promotes national standards for programs to protect children from abuse and neglect. Publications include professional resources for frontline workers, child welfare professionals, administrators, legislators, and the general public. Some materials are available in Spanish.

Keywords: Child abuse, Child neglect, Child protection agencies, Child protective services, Information services, Technical assistance, Training

American Institute of Ultrasound in Medicine (AIUM)

Annotation: The American Institute of Ultrasound in Medicine (AIUM) was founded in 1951 to advance the art and science of ultrasound in medicine and research. Its annual convention offers educational courses, scientific sessions, and commercial and scientific exhibits. Publications include the monthly Journal of Ultrasound in Medicine, a monthly newsletter, guidelines for ultrasound examinations, catalogs, journals, and educational videotapes. AIUM provides some Spanish materials and sponsors conferences, seminars, and workshops.

Keywords: Medical research , Prenatal diagnosis, Ultrasonography

American Kidney Fund (AKF)

Annotation: The American Kidney Fund is a national, non-profit voluntary health organization providing direct financial aid to needy kidney patients, transplant recipients and donors to help cover the cost of treatment-specific expenses. Grants are available to assist patients afford medication, transportation, emergency transient dialysis, and special diet needs diet. In addition, the Fund supports public and professional education, kidney donor development and sponsors clinical scientist nephrology fellowship awards. AKF publishes a newsletter and many brochures about kidney diseases and its treatment, including selections in Spanish. The organization also sponsors conferences. Eligibility for financial assistance must be demonstrated by filing an application, available through the patient's renal social worker or nephrologist.

Keywords: Chronic kidney failure, Dialysis, Financial support, Kidney diseases, Organ transplantation

American Lung Association (ALA)

Annotation: The American Lung Association (ALA) is a voluntary health organization dedicated to the prevention, cure, and control of all types of lung disease through public health education, advocacy, and research. ALA monitors air quality and publishes reports that detail the effects of tobacco, pollutants, and other environmental factors on the air, our communities, and our world. The Web site provides access to downloadable reports; indepth resources related to lung health, lung disease, and air quality at home, at school, outdoors, and at work. Anyone can register to receive ALA's free electronic newsletters.

Keywords: Asthma, Infants, Public health education, Lung diseases, Prevention, Respiratory distress syndrome, SIDS, Smoking during pregnancy

American Lung Association of Wisconsin

Annotation: American Lung Association of Wisconsin provides referrals, Inquiry responses, reference Information, and publications, including a newsletter. Some resources are available in Spanish and Hmong. The association also sponsors conferences, training seminars, and workshops.

American Medical Association, Adolescent Health Program (AMA)

Annotation: The American Medical Association (AMA) Program on Child and Adolescent Health works to improve the health status of youth. Activities include the AMA National Coalition on Adolescent Health, adolescent health online Web site, Child Health Initiative, Healthy People 2010 activities, and a youth violence project. Services to consumers include reference information. Some materials are available in Spanish.

Keywords: Adolescent health, Prevention services, Professional societies

American Occupational Therapy Association (AOTA)

Annotation: The American Occupational Therapy Association (AOTA) meets the needs of people whose lives have been disrupted by injury or illness, developmental problems, the aging process, or social or psychological difficulties by promoting their involvement in therapeutic tasks to improve function, performance capacity, and the ability to cope with the demands of daily life. Members include occupational therapists, occupational therapy assistants, and occupational therapy students. The association conducts research, compiles statistics, publishes the American Journal of Occupational Therapy, and produces catalogs, books, monographs, and a semimonthly magazine, OT Practice. The association also sponsors conferences and training seminars, and workshops. Some materials are available in Spanish.

Keywords: Occupational therapy, Support groups, Professional societies

American Optometric Association (AOA)

Annotation: The American Optometric Association (AOA), founded in 1898, works to improve the quality, availability, and accessibility of eye care, vision care, and related health care. The association promotes standards of patient care and represents the optometric profession to government and other health care-related organizations. Publications include three periodicals: Journal of the American Optometric Association, American Optometric Association News, and Optometric Economics. The organization also sponsors conferences and training seminars. The association maintians offices in St. Louis, MO and metropolitan Washington, DC. Some materials are available in Spanish.

Keywords: Optometry, Eye care, Patient care, Standards, Vision screening

American Osteopathic Association (AOA)

Annotation: The American Osteopathic Association (AOA) is a membership organization for doctors of osteopathic medicine. It is organized to advance the philosophy and practice of osteopathic medicine by promoting excellence in education, research, and the delivery of quality and cost-effective health care in a distinct, unified profession. Services to consumers include referrals and publications. Some materials are available in Spanish. AOA publishes a journal and sponsors conferences.

Keywords: Osteopathic medicine, Health promotion, Primary Care

American Parkinson Disease Association (APDA)

Annotation: The American Parkinson Disease Association (APDA) funds medical research, organizes support group chapters, and provides information and referral services to patients, their families, and the public. Publications include Be Active, Good Nutrition and Coping with Parkinson Disease, Parkinson's Disease Handbook (in English and Spanish), Speaking Effectively, and a quarterly newsletter. The association also provides materials in Spanish, Italian, Chinese and Japanese languages. The association sponsors conferences. The association's West Coast office is located at 10850 Wilshire Boulevard, Suite 730, Los Angeles, CVA 90024, (800) 908-2732.

Keywords: Medical research, Support groups, Information services, Nervous system diseases, Parkinson disease

American Physical Therapy Association (APTA)

Annotation: The American Physical Therapy Association (APTA) is a professional organization of 70,000 physical therapists, physical therapist assistants, and students throughout the United States. The association helps physical therapists to maintain the quality and integrity of their profession by providing ways for them to exchange information and improve their skills. Activities include accreditation, professional development, quality assurance, research, and information dissemination. Services to consumers include publications and reference information. Spanish materials are available. The Association publishes a catalog, magazine, journal, newsletters, an e-mail news service, and reference materials, and also sponsors conferences and training seminars.

Keywords: ???Rehabilitation???, Information services, , Physical therapy

American Pseudo-Obstruction and Hirschsprung's Disease Society (APHS)

Annotation: The American Pseudo-Obstruction and Hirschsprung's Disease Society (APHS) was formed to answer the needs of families, patients, and health care professionals facing the many challenges posed by gastrointestinal motility disorders in infants and children. Since 1988, APHS, formerly the North American Pediatric Pseudoobstruction Society, has been developing programs to address its objectives of research, education, and family support. APHS promotes public awareness of gastrointestinal motility disorders; these include, but are not limited to, chronic intestinal pseudo-obstruction, Hirschsprung's disease, and gastroesophageal reflux (GER). Services to consumers include referrals, publications, and reference information. Publications include brochures and a newsletter (issued three times a year). Some materials are available in Spanish. APHS also sponsors an annual conference.

Keywords: Gastrointestinal Motility Disorder, Intestinal Pseudo-Obstruction Syndrome

American Psychological Association (APA)

Annotation: The American Psychological Association (APA) is a scientific and professional society of psychologists that works to advance psychology as a science, a profession, and a means of promoting health, education and the human welfare. Students may participate as affiliates. Publications include newsletters, catalogs, journals, abstracts, and many other materials. APA also sponsors conferences and workshops.

Keywords: Psychology, Advocacy, Behavioral sciences, Conferences, Consumer education, Information sources, Mental health, Mental health services, Professional societies, Psychologists, Publications, Resource centers, Spanish language materials, Training

American Red Cross (ARC)

Annotation: The American Red Cross (ARC) and its local chapters provide blood services, volunteer training for hospitals and other community agencies, and services for children and youth. Services to consumers include referrals, publications, and reference information. Publications include pamphlets, brochures, and books on health and safety education, community disaster preparedness, babysitting, and baby and child care. Some materials are available in Spanish. Local chapters offer water safety programs, first aid and emergency training, birth classes, adult and youth health and safety courses, and community involvement activities.

Keywords: Blood banks, Child care, Childbirth education, Educational materials, Emergency medical services for children, Emergency services, Health education, Information services, Training

American Sexual Health Association (ASHA)

Annotation: The American Sexual Health Association (ASHA) is a nonprofit organization that works to improve the health of individuals, families, and communities, with a focus on sexual health and sexually transmitted diseases (STDs). Through education, research, and public policy the association produces multifaceted programs addressing the most prevalent STDs. ASHA produces a variety of books, pamphlets, information packets, and other educational materials for patients, health providers, parents, teachers, and organizations.

Keywords: Sexually transmitted diseases, AIDS, Herpes genitalis, Hotlines, Human papillomavirus, Immunization, Prevention programs, Public health, Public policy, Sexual health

American Sickle Cell Anemia Association (ASCAA)

Annotation: The American Sickle Cell Anemia Association (ASCAA) provides education, testing, and counseling to populations at risk for sickle cell anemia and its hemoglobinopathy variants. Counseling, education, and testing are also provided to the bilingual population. Services to consumers include referrals, reference information, and publications. Materials are provided in Spanish and Asian languages.

Keywords: Hematologic diseases, Hemoglobinopathies, Sickle cell disease

American Sleep Association (ASA)

Annotation: The American Sleep Association (ASA) is a national organization that focuses on improving public awareness of sleep disorders and sleep health, promoting sleep medicine research, and providing a portal for communication between patients, healthcare professionals, and scientists. ASA provides online information for professionals, technologists, patients, and the general public, including material about sleep problems in children and the diagnosis and treatment of sleep disorders. The association also produces a newsletter, and provides access to research abstracts, a directory of sleep labs, and online support groups, chat rooms, and message boards. Information is available in Spanish. ASA is a member-driven public service project that depends on volunteer efforts. Membership is free to those who register online.

Keywords: , Sleep, Public awareness campaigns, Research, Sleep deprivation, Sleep disorders

American Society for Deaf Children (ASDC)

Annotation: The American Society for Deaf Children (ASDC) provides information and support to parents and families of deaf or hearing-impaired children. The society offers assistance with educational or legal problems related to rearing a hearing-impaired child. Services are also provided to the public. Publications include a journal and a quarterly newsletter, The Endeavor. Some materials are available in Spanish, and the ASDC sponsors a biennial convention, a "First Year Free" program, and a listserv.

Keywords: Civil rights, Deafness, Disabilities, Family support services, Hearing disorders, Information services, Parent groups

American Society for Reproductive Medicine (ASRM)

Annotation: The American Society for Reproductive Medicine (ASRM), formerly known as the American Fertility Society, seeks to extend knowledge of all aspects of fertility and reproduction. Members include gynecologists, obstetricians, urologists, reproductive endocrinologists, veterinarians, research workers, and others interested in the reproductive health of humans and animals. Services to consumers include referrals, publications, and reference information. ASRM sponsors conferences, training seminars, and workshops and publishes a newsletter and a journal. Some materials are available n Spanish.

Keywords: Fertility, Infertility, Pregnancy, Reproduction, Reproductive technologies

American Society of Dentistry for Children (ASDC)

Annotation: The American Society of Dentistry for Children (ASDC) is a professional organization of pediatric dentists and general practitioners. ASDC sponsors an annual conference and two educational seminars annually, conducts a fellowship program, leads and rewards professional development efforts, and supports research and education in pediatric dentistry through its foundation. Publications include the Journal of Dentistry for Children, the ASDC Newsletter, and a catalog of educational and marketing materials. They also provide materials in Spanish.

Keywords: Child health, Oral health, Pediatric dentistry, Pediatric dentists

American Speech-Language-Hearing Association (ASHA)

Annotation: The American Speech-Language-Hearing Association (ASHA) certifies professional speech-language pathologists and audiologists and accredits graduate school programs in these areas. The association conducts research in communication disorders and provides information and referrals to speech-language pathologists and audiologists. Publications include Journal of Speech and Hearing Research, American Journal of Audiology, American Journal of Speech-Language Pathology, Language, Speech and Hearing Services in the Schools, ASHA Leader and ASHA Magazine. Some publications are available in Spanish. ASHA also sponsors conference, training seminars and workshops.

Keywords: Communication disorders, Deafness, Hearing disorders, Language, Medical research, Speech, Speech disorders, Speech pathologists, Speech pathology, Speech therapy

American Tinnitus Association (ATA)

Annotation: The American Tinnitus Association (ATA) supports educational activities and conducts research on the treatment of tinnitus. The association offers information about self-help groups, provides referrals to professionals, maintains a tinnitus bibliography, provides materials in Spanish and publishes a quarterly magazine, Tinnitus Today. The ATA sponsors conferences and training seminars.

Keywords: Hearing disorders, Information services, Medical research, Spanish language materials, Tinnitus

Amputee Coalition

Annotation: The Amputee Coalition strives to empower people affected by limb loss to achieve their full potential through education, support and advocacy, and to promote limb loss prevention. The Coalition works to raise awareness about and increase practices to prevent limb loss and to ensure that no amputee feels alone through pre- and post amputation and recovery.Through its Limb Loss Resource Center, the Coalition responds to information requests, provides by topic, amputation level, and specific groups. Materials are available in English and Spanish.

Keywords: Amputees, Physical disabilities, Spanish language materials

Angelman Syndrome Foundation (ASF)

Annotation: The Angelman Syndrome Foundation (ASF)- works to advance the awareness and treatment of Angelman Syndrome. ASF provides education and information, research, and support for individuals with Angelman Syndrome, their families, and other concerned parties. Some materials are available in Spanish and in Hebrew. The Foundation hosts an electronic forum for members and sponsors a biennial National Conference to bring together Angelman families and professionals.

Keywords: Angelman syndrome

Any Baby Can (ABC)

Annotation: Established in 1982, Any Baby Can (ABC) is a networking effort to link all services for high-risk babies and children with developmental delays in San Antonio and Austin, Texas, and in the surrounding region. The organization also provides support services for families in crisis situations and sponsors A Vision for Children Center advocacy and networking coalition as well as training seminars. Any Baby Can has been nationally recognized for innovative efforts that include the ABC Baby Helpline, Crisis Fund for Infants, and intergenerational Family Friends. Any Baby Can created the Texas Respite Resource Network, Children's Transplant Association of Texas, the Sudden Infant Death Syndrome Support Group of San Antonio, and the Tiny Trax program for very low birth weight babies. Publications include a quarterly newsletter, brochures, and a childhood development checklist. Some materials are available in Spanish.

Keywords: High risk infants, Advocacy, Early intervention, Family support, Infant stimulation, Support groups, Texas

Aplastic Anemia & MDS International Foundation (AA&MDSIF)

Annotation: Founded in 1983, the Aplastic Anemia & MDS International Foundation (AA&MDSIF) is a nonprofit charitable organization with the following mission: to serve as a resource for patient assistance and emotional support; to provide educational materials and updated medical information; and to financially support research to find effective treatment for aplastic anemia (AA), myelodysplastic syndromes (MDS), and other related bone marrow failure diseases. Services to consumers include inquiry responses, publications, and reference information. Some materials are available in Spanish, French, and other languages. The foundation publishes a newsletter and sponsors conferences.

Keywords: Blood and lymphatic diseases, Fanconis anemia, Neural tube defects

Arc of the United States

Annotation: The Arc of the United States, formerly the Association for Retarded Citizens of the United States, works to prevent and ameliorate mental retardation and to improve the quality of life for children and adults with mental retardation and their families. The Arc's state and local chapters provide services or advocate for services for people with mental retardation throughout the United States. The association provides information, publications, and referrals to parents, organizations, and communities to assist them in meeting the needs of people with mental retardation.

Keywords: Mental retardation, Support groups, Information dissemination

Arkansas State Library (ADH)

Annotation: The Arkansas State Library provides referrals, publications and reference information to consumers. Some materials are available in Spanish. They also publish a newsletter and sponsor conferences, training seminars and workshops.

Keywords: Arkansas, Libraries, State agencies

Arthritis Answers/Arthritis Foundation (AF)

Annotation: The Arthritis Answers information line offers referrals, publications, and reference information to consumers. Some materials are available in Spanish. Publications include a magazine, a bulletin for health professionals, a newsletter for children with arthritis and their parents, booklets, and books. The Arthritis Foundation sponsors conferences, training seminars, and workshops.

Keywords: Arthritis, Musculoskeletal diseases, Skin diseases, Women's Health

ASPIRA Association

Annotation: ASPIRA Association is a national Hispanic leadership development organization that offers leadership and educational opportunities to Puerto Rican and other Latino adolescents. It sponsors a national health careers program that encourages Hispanic youth to prepare for careers in health-related fields, operates demonstration projects in Hispanic communities and has designed and implemented afterschool educational programs. Materials are available in Spanish.

Keywords: Adolescents, Child care, Hispanic Americans, Minority groups, Outreach

Association for Childhood Education International (ACEI)

Annotation: The Association for Childhood Education International (ACEI) is a not-for-profit professional educational organization whose mission is to promote and support in the global community the optimal education and development of children, from infancy through middle childhood, and to influence the professional growth of educators, and the efforts of others who are committed to the needs of children in a changing society. The association provides publications for consumers; some of the information is in Spanish. Publications include a catalogue, a newsletter, a journal, and several books. The association conducts conferences and workshops.

Keywords: Child care, Children rights, , Early childhood education

Association for Children with Down Syndrome (ACDS)

Annotation: The Association for Children with Down Syndrome (ACDS) Strives to provide an environment that helps infants, toddlers, and preschool children with Down syndrome to participate in mainstream school and community activities through its early intervention and pre-school service. In addition to conducting research, ACDS provides resources, referrals, and programs for children 5-21 with Down syndrome and helps educate the community through workshops, conferences, and publications (including the bimonthly ACDS Newsletter). A catalog of publications and audiovisual materials is available, and materials are provided in Spanish. ACDS also provides residential services to young adults with Down Syndrome and other developmental disabilities.

Keywords: Chromosome abnormalities, Down syndrome, Family support services, Geneticdisorders, Information services, Medical research, Mental retardation, Public awareness materials

Association of Pediatric Oncology Nurses (APON)

Annotation: Association of Pediatric Oncology Nurses offers pediatric oncology reference information to nurses, doctors and consumers. APON provides some materials in Spanish and publishes a catalog, newsletter, and journal. The association also sponsors conferences.

Keywords: Nurses, Pediatric oncology

Association of Reproductive Health Professionals (ARHP)

Association of SIDS and Infant Mortality Programs (ASIP)

Annotation: The Association of SIDS and Infant Mortality Programs (ASIP) is a multidisciplinary professional membership organization whose members provide community education, training programs, and consultation for health departments, hospitals, emergency responders, medical examiners and law enforcement. The SIDS/ID professionals in ASIP (whose work addresses Sudden Infant Death Syndrome and Other Infant Death) represent a majority of the states, in many cases including the State SIDS/ID program director. ASIP provides national leadership to establish and promote policy and practice for professionals who respond to infant and child death and is committed to bereavement support, risk reduction and prevention services.

Keywords: Infant health, Infant mortality, SIDS

Asthma and Allergy Foundation of America (AAFA)

Annotation: The Asthma and Allergy Foundation of America (AAFA) is a nonprofit organization that works to control and find a cure for asthma and allergic diseases. The foundation supports research projects, patient and public education programs, public policy and advocacy efforts, and a network of chapters and support groups. Services to consumers include referrals, reference information, and publications. AAFA produces three bimonthly newsletters—Advance (patient education), Healthlines (for adolescents with asthma), and Leader's Link for support group leaders), and provides pamphlets, books, and videotapes on asthma and allergic diseases. A catalog is also available. Some materials are available in Spanish.

Keywords: Allergies, Asthma, Medical research, Information services, , Respiratory diseases

ASTM International

Annotation: ASTM International is a nonprofit organization founded in 1898 that provides a forum for industry, consumers, government representatives, and academia to develop standards for materials, products, systems, and services. ASTM's consumer products committee develops standards for playground equipment, infant furniture, bunk beds, toys, high chairs, helmets, toy chests, toxicity testing, and safety characteristics for a variety of consumer products. The society publishes a catalog, newsletter and monthly magazine, Standardization News. Some materials are available in Spanish and Asian languages. The society sponsors workshops and training programs.

Keywords: Consumers, Injury prevention, Product safety

Attention Deficit Information Network (AD-IN)

Annotation: The Attention Deficit Information Network, Inc., is a non profit volunteer organization that offers support and information to families of children with ADD, adults with ADD, and professionals through a network of AD-IN chapters. AD-IN was founded in 1988 by several parent support group leaders on the premise of parents helping parents deal with their children with ADD. AD-IN is a community resource for information on training programs and speakers for those who work with individuals with ADD. The organization also presents conferences and workshops for parents and professionals on current issues, research and treatments for ADD. Funding for activities is derived from proceeds, grants from foundations and corporations, donations, and contributions. Publications include a calendar of ADD/LD conferences. Materials are available in Spanish.

Keywords: Attention deficit disorder, Support groups, Information services, Learning disabilities

AUA Foundation (AAU Foundation)

Annotation: The AUA Foundation is a partnership of physicians, researchers, health-care professionals, patients, caregivers, families and the public established to support and promote research, patient/public education and advocacy. Originally established in 1987 as the American Foundation for Urologic Disease (AFUD), the organization entered a new era of service in 2005 when it consolidated its programs with the American Urological Association . Information for researchers, health professionals, and patients is available via the Web site.

Keywords: , Foundations, Health education, Sexual health, Urologic diseases, Advocacy, Consumer education, Fundraising, Infertility, Kidney diseases, Preventive health services, Reproductive health, Research

Autism Society

Annotation: The Autism Society (formerly the Autism Society of America) provides information and referral services, education, and increase awareness to parents and families of people with autism. The society sponsors an annual national conference on autism and promotes advocacy and education through various publications including the bimonthly newsletter Advocate. Some materials are available in Spanish, French, Chinese and Vietnamese.

Keywords: Autism, Developmental disabilities

Awake Project (AWAKE)

Annotation: The AWAKE Project (Advocacy for Women and Kids in Emergencies) provides broad based domestic violence intervention services to adult and adolescent victims of domestic/dating violence. AWAKE has initiated ongoing collegial relationships with a cadre of community agencies and individuals. Services include, but are not limited to, risk assessment and safety planning; individual counseling; assistance in securing emergency shelter; completing applications for public housing; criminal justice advocacy; support groups; ongoing outreach; and case consultation, education, and training. All services are available in English and Spanish, and interpreters are available to provide services to those who speak other languages, including ASL. All services are free of charge.

Keywords: Shelters, Battered women, Child abuse, Child neglect, Domestic violence

Batten Disease Support and Research Association (BDSRA)

Annotation: The Batten Disease Support and Research Association (BDSRA) sponsors research on Batten disease and provides support, referrals, and information to families affected by the disease. Publications include Batten Disease: Neuronal Ceroid Lipofuscinoses and a newsletter. Some materials are available in Spanish, French and other languages. BDSRA also sponsors conferences, training seminars, and workshops.

Keywords: Brain diseases, Batten disease, Medical research, Support groups, Nervous system diseases, Neuronal ceroid lipofuscinoses

Beach Center on Disability

Annotation: The Beach Center on Disability is a research and training center that focuses on families of people with disabilities. The center is funded in part by the National Institute on Disability and Rehabilitation Research, Office of Special Education and Rehabilitative Services, U.S. Department of Education, and by private endowments. Services to consumers include referrals, publications, and reference information. The center publishes a catalog and newsletter and sponsors conferences and training seminars. Some materials are available in Spanish and Asian languages. The center's Web site provides lists of groups and organizations in each state.

Keywords: Family support, Children, Developmental disabilities, Family resource centers, Technology dependence

Beginnings for Parents of Children who are Deaf or Hard of Hearing

Annotation: Beginnings for Parents of Children who are Deaf or Hard of Hearing serves families of children who are deaf or hard of hearing (0–21 years old) and concerned professionals. The organization provides parent support and information about hearing loss, including communication and educational options. Publications include videotapes, a parent manual, and brochures. Some materials are available in Spanish.

Keywords: Children, Deafness, Hearing disorders, Parent groups, Parent support services, Testing

Benign Essential Blepharospasm Research Foundation (BEBRF)

Annotation: The Benign Essential Blepharospasm Research Foundation (BEBRF) is an international clearinghouse for information on spasms of the facial musculature (blepharospasm, Meige's syndrome, and hemifacial spasms). The foundation works to eradicate blepharospasm and to support people with the disorder. Activities include sponsorship of continuing education and an annual international conference. The foundation provides referrals, publications, and reference information to consumers. Publications include Benign Essential Blepharospasm, Meige's and Other Related Disorders , a bimonthly newsletter, and a catalog of audiovisual materials. Some materials are available in Spanish. The Foundation also sponsors conferences and workshops.

Keywords: Benign essential blepharospasm, Facial dystonia, Meige syndrome, Neuromuscular diseases, Support groups, Information services, , Vision disorders

Best Start Social Marketing

Annotation: Best Start Social Marketing is a nonprofit organization which distributes breastfeeding promotion materials designed specifically for economically disadvantaged women to other organizations who serve this population. A personal counseling package is available and can be combined with other mass media and print materials to create a coordinated campaign. Promotional materials include television and radio public service announcements, videotapes, posters, catalogs, journals, pamphlets, and a magazine for teens. A catalog of materials is available. Materials are available in Spanish, English-low literacy, Native-American, Anglo-American, Hispanic-American, and African-American versions.

Keywords: Breastfeeding promotion

Bethesda Communities

Annotation: Bethesda Lutheran Communities offers Christian education and residential rehabilitation services to people with mental retardation. It also offers short term and respite care, a fully accessible camp, day services, and case management. In addition to its main campus in Watertown, WI, Bethesda operates 37 community living facilities in ten states. Through its National Christian Resource Center, Bethesda offers free information and referral services nationwide, systems advocacy, resources for special religious education, staff training video modules, and workshops for religious and secular providers. Conferences and training seminars are sponsored as well. Publications include a catalog and newsletter. Some materials are available in Spanish.

Keywords: Case management Religious organizations, Developmental disabilities, Family support, Mental retardation, Respite care

Better Hearing Institute (BHI)

Annotation: The Better Hearing Institute (BHI) is a nonprofit educational organization that implements national public information programs on hearing loss and available medical, surgical, hearing aid, and rehabilitation assistance for millions with uncorrected hearing problems. Its award winning series of television, radio, and print media public service messages include many celebrities who overcame hearing loss. BHI maintains a toll-free "Hearing HelpLine" service that provides information on hearing loss and hearing help to callers in the U.S. and Canada. Publications include a catalog and a newsletter. Some materials are available in Spanish.

Keywords: Hearing disorders, Screening

Blind Childrens Center

Annotation: The Blind Children's Center publishes booklets for parents of young children who are blind or visually impaired. The booklets are available in Spanish or English and cover a variety of topics. The center maintains a toll-free telephone service and a correspondence program to provide information, resources, referrals, and support. The Center also publishes a newsletter and a catalog.

Keywords: Blindness, Children, Vision disorders

Boston Women's Health Book Collective (BWHBC)

Annotation: The Boston Women's Health Book Collective (also known as Our Bodies Ourselves) is a non-profit education, advocacy, and consulting organization. Its Women's Health Information Center maintains a resource directory of local and international feminist and women's health groups, offers links to health information via its Web site, publishes a newsletter, and has developed a Women and Health Thesaurus used in several libraries. Materials are available in Spanish, French, Chinese (Mandarin), and Vietnamese.

Keywords: Women, Disabilities, Women's health

Brady Center to Prevent Gun Violence (CPHV)

Annotation: The Brady Center to Prevent Gun Violence (CPHV), established in 1983, is a nonprofit education and research organization that works to educate the public about the scope of handgun violence in the United States and the risks and responsibilities of handgun ownership. The center developed the nation's first K–12 curriculum on gun violence prevention, now used in several major school systems. CPHV publishes a newsletter and provides publications and reference information for consumers; some materials are available in Spanish. The center also sponsors conferences and training seminars. The center does not respond to individual inquiries.

Keywords: Injury prevention, Consumer education, Curricula, Firearms, Handguns, School health education, Violence prevention, Weapons

Brain Injury Association of America (BIAA)

Annotation: Founded in 1980, the Brain Injury Association of America seeks to create a better future through brain injury prevention, research, education and advocacy. Services to consumers include inquiry responses, information packets, and referrals to local resources. Publications include The National Directory of Brain Injury Rehabilitation Services, various brochures, including the eight-part "Road to Rehabilitation" series. Some materials are available in Spanish. The association also sponsors workshops, conferences, training seminars, and Brain Surgery Awareness Month in March.

Keywords: Advocacy, Brain injuries, Support groups, Education, Injury prevention, Intervention, Long term care, Rehabilitation, Research, Therapeutics, Trauma

Brain Injury Association of Massachusetts (BIA-MA)

Annotation: The Brain Injury Association of Massachusetts (BIAMA), an affiliate of the National Brain Injury Association, works to ensure appropriate services for the care and rehabilitation of Massachusetts residents who have sustained brain injuries and their families. The association develops support systems and promotes public awareness of traumatic brain injury and its consequences. BIAMA publishes a newsletter and sponsors training seminars and conferences. Some materials are available in Spanish.

Keywords: Brain injuries, Head injuries

Breast Cancer Action (BCA)

Annotation: Breast Cancer Action (BCA) seeks to inspire and encourage the changes necessary to end the breast cancer epidemic. The organization questions common assumptions and calls for corporate accountability. BCA conducts annual town meetings, publishes a variety of materials, including a newsletter (available in both English and Spanish) and electronic e-mail alerts, recruits volunteers, conducts fundraising campaigns, and advocates for support.

Keywords: , Advocacy, Breast cancer, Public awareness campaigns, Women's health

Breast Cancer Network of Strength

Annotation: The Breast Cancer Network of Strength (formerly the Y-ME National Breast Cancer Organization) offers breast cancer information, publications, peer support, survivor-staffed hotlines (interpreters available in 150 languages), a newsletter, and conferences. It publishes a newsletter and and distributes For Single Women with Breast Cancer and When the Woman You Love Has Breast Cancer, a booklet that addresses the emotional issues of men whose wives, partners, or other loved ones are diagnosed with breast cancer. A Spanish hotline and Spanish-language publications are available. The organization sponsors conferences, workshops, and training seminars.

Keywords: Breast cancer, Women's health

Breast Cancer Resource Committee (BCRC)

Annotation: The Breast Cancer Resource Committee (BCRC) is a nonprofit organization that works to educate all African-American women—urban and rural, poor and middle class, and of all educational levels—about breast cancer. The committee sponsors educational seminars and an annual symposium for 500 representatives of major black women's social and service organizations, develops motivational videos and peer counseling sessions to increase its volunteer base and to disseminate general information on breast cancer, and testifies before Congress about mammography quality assurance, increased funding for research, and access to services for low-income women. The Committee has launched the first Afrocentric support group for women with Breast cancer, Rise-Sister-Rise. This free support group meets on a monthly basis to discuss both the medical and psycho-social ramifications of having breast cancer from an African American woman's perspective. Referrals and reference information are also available in Spanish.

Keywords: Breast cancer, Women's health

Bright Futures at Georgetown University

Annotation: Bright Futures at Georgetown University provides online and print access to the Bright Futures child health supervision materials sponsored by the Maternal and Child Health Bureau, Health Resources and Services Administration. The Georgetown project serves as liaison to the Bright Futures Distribution Center; provides access to content experts and to electronic training tools; maintains historical archives; and provides distance education for Early and Periodic Screening, Diagnostic and Treatment (EPSDT) services. Some materials are available in Spanish.

Keywords: Health supervision, Adolescents, Bright Futures, Children, Guidelines, Infants, Nutrition, Oral health, Physical activity, Spanish language materials

Buena Salud Club

Annotation: The Buena Salud Club promotes healthy lifestyles among its members by providing health information. Services include action alerts and referrals to community health services. The club also produces books on heart health and diabetes. Each book defines the health concern, discusses the changes that individuals and families can make to live healthier lives, and provides tools for doing so. The website and publications are available in English and Spanish.

Keywords: Diabetes, Health promotion, Heart diseases, Hispanic Americans, Information sources, Spanish language materials

California Health Decisions (CHD)

Annotation: California Health Decisions (CHD) serves as a forum for communicating public concerns about health care policies to policymakers and providers. Services to consumers include publications and reference information. Some materials are available in Spanish.

Keywords: Health insurance, Access to health care, California, Financing, Health policy

California Sudden Infant Death Syndrome (SIDS) Program

Annotation: The California Sudden Infant Death Syndrome (SIDS) Program is dedicated to Sudden Infant Death support, awareness, and risk reduction. Information is provided on grief and bereavement, SIDS facts, and infant care practices for reducing the risk of SIDS. Information is available for SIDS professionals, SIDS Coordinators, and families. Numerous materials are available in Spanish, and occasionally in Chinese, Japanese, Korean, Tagalog, and VIetnamese. The program is under the direction of the California Department of Public Health, Maternal, Child and Adolescent Health Division.

Keywords: Advocacy, California, Consumer education materials, Family support, Infant death, Infant mortality, Parent support, SIDS, Spanish language materials

Camp Fire USA

Annotation: Camp Fire USA, with national headquarters in Kansas City, Mo., provides coeducational programming for more than 670,000 participants annually, through 120 councils in 40 states and the District of Columbia. As a not-for-profit organization, Camp Fire provides programs that include mentoring opportunities through community clubs and environmental education through direct child care services. Other innovative activities include an in-school, community-service curriculum, gang peace programs, pregnancy prevention programs, and a course that teaches teens to provide respite care for children with disabilities. Publications include a catalog and newsletter. Some materials are available in Spanish. The organization sponsors some conferences and training seminars.

Keywords: Advocacy, Curricula, Mentors, Peer education, Peer support programs

Canadian Institute of Child Health (CICH)

Annotation: The Canadian Institute of Child Health (CICH) is a national multidisciplinary, nonprofit organization dedicated to promote the health and well-being of Canadian children. The institute seeks to promote and improve the health and well-being of mothers and infants in all settings; to promote healthy physical development of children in a safe environment and reduce childhood injuries; to promote healthy psycho-social development of children in supportive and nurturing environments; to facilitate empowerment of individuals and communities to achieve the above goals for Canadian children and their families; and to facilitate collaborative work between consumers, professional, nonprofessional, and government agencies that result in appropriate actions for identified needs. The Institute sponsors conferences and produces a variety of publications, including Our Promise to Children; The Health of Canada's Children; National Breastfeeding Guidelines; Child Sexual Abuse Prevention; Survey of Routine Maternity Care and Practices in Canada; National Guidelines for Neonatal Resuscitation; Moving and Growing Series; Losing a Baby; Dear Parents of Premature Babies; as well as a quarterly newsletter, Child Health. Materials are produced in French and Spanish (The publication, First Years Last Forever: How you can make a difference in the life of your child, is available in other non-English languages as well, including Ojibway )

Keywords: Child health, Injury prevention

Cancer Care

Annotation: Cancer Care is a nonprofit organization that helps people with cancer and their families to cope with the disease. The organization provides psychological, social, and educational services and financial assistance for people in New York, New Jersey, and Connecticut. Individual counseling, information, and referrals and group counseling and education programs are offered nationally through the Cancer Care Counseling Line (1 800 813-HOPE). Services are also offered online. Cancer Care also provides publications, including a newsletter, and sponsors conferences, training seminars, and workshops. Some materials are available in Spanish. All services are free of charge.

Keywords: Cancer, Family support services, Support groups, Financial support, New York, New jersey, Connecticut

Cancer Information Service (CIS)

Annotation: The Cancer Information Service (CIS) is a program of the National Cancer Institute (NCI), the Nation's lead agency for cancer research. Through its network of regional offices, the CIS serves the United States, Puerto Rico, the U.S. Virgin Islands, and the Pacific territories. The CIS provides cancer information to cancer patients and familes, the general public, and health professionals through its toll-free telephone service (1-800-4-CANCER)in English and Spanish, to deaf and hard of hearing callers through the toll-free TTY number (1-800-332-8615)and live, online assistance to users of NCI Web sites through LiveHelp, an instant messaging service. The CIS also works with organizations through its Partnership Program and participates in research efforts to find the best ways to help people adopt healthier behaviors. CIS cannot answer personal medical questions, make referrals to specific doctors or institutions, or give medical advice.

Keywords: Cancer, Medical research, Professional training

Carter Centers for Brain Research in Holoprosencephaly and Related Malformations

Annotation: The Carter Centers for Brain Research in Holoprosencephaly and Related Malformations were created to gather, store, organize, analyze, and share information about holoprosencephaly. The Carter Centers evaluate selected patients, participate in multiple research studies, and provide extensive education to families and health care providers. This organization is a collaboration among investigators in the fields of neurology, genetics, radiology, and related disciplines. Publications include a journal and a newsletter. Some materials are available in Spanish. The clinical research centers are : Texas Scottish Rite Hospital, Dallas, TX; Lucile Packard Children's Hospital at Stanford University Medical Center, Stanford, CA; Kennedy Krieger Institute, Baltimore, MD.

Keywords: Brain diseases, Children with special health care needs

Cato Institute

Annotation: The Cato Institute (named after the Cato's Letters, libertarian pamphlets circulated during the American Revolution) is a nonpartisan think-tank focused on issues of individual freedom, limited government, free markets and international affairs. The Institute, a nonprofit organization, publishes books, reports, a catalog, the Cato Journal and Regulation magazine. It also sponsors conferences and provides some resources in Spanish.

Keywords: Civil rights, Government role, Spanish language materials

CDC National STD and AIDS Hotlines

Annotation: The CDC National STD and AIDS Hotlines provide information on sexually transmitted diseases, AIDS and HIV; referrals to HIV test sites and medical, legal and support group referrals; and treatment information. The hotlines also offer Classroom Calls and Group Calls as a teaching tool, where students or groups have an opportunity to ask questions in a relaxed environment. The calls are free of charge and can be scheduled with flexibility. Print materials are also available, including a newsletter. Some materials are available in Spanish.

Keywords: AIDS, AIDS related complex , HIV

Center for Health Training/James Bowman Associates (CHT/JBA)

Annotation: The Center for Health Training/James Bowman Associates (CHT/JBA) is a nonprofit agency that provides training and technical assistance for early childhood program staff, parents of children in child care, health care providers, other professionals, and community members nationally. The curricula and training programs focus on child health and safety, and women's health. Some materials produced by the center are in Spanish or are designed for people with low literacy skills.

Keywords: Child care, Child care workers, Child health, Family child care, Health, Infection control, Safety, Training

Center for Injury Prevention Policy and Practice (CIPPP)

Annotation: The Center for Injury Prevention Policy & Practice (CIPPP) serves as a resource center for childhood injury prevention and is located within the Maternal and Child Health Division of the Graduate School of Public Health at San Diego University. The Center focuses on reducing child and adolescent injury, mortality, morbidity, and cost by facilitating increased capacity for childhood injury prevention at the state and local level. CIPPP hosts the Injury Prevention Web family of sites (see http://www.injuryprevention.org); provides a weekly update of injury research and prevention literature (see http://safetylit.org); provides technical assistance; conducts training workshops on injuries and prevention strategies; hosts an annual conference; and develops materials to assist government agencies, community organizations, and others with the development and implementation of injury prevention programs. Some materials are available in Spanish, Asian, and other languages.

Keywords: Injury prevention, Adolescent health, California, Child health, Data, Educational materials, Prevention programs, Program development, Research, Resources for professionals

Center for Law and Education

Annotation: The Center for Law and Education provides support services on education issues to advocates working on behalf of low-income students and parents. Its mission is to take a leadership role in improving the quality of public education for low-income students throughout the nation and to enable low-income communities to address their own public education problems effectively. Center activities include: advice and collaboration on cases, publications, training, litigation, and assisting parent and student involvement in education. Publications include a journal, and a quarterly newsletter that reports on legal developments in the field and several resources for special education advocates, such as Educational Rights of Children with Disabilities: A Primer for Advocates . A catalog is available. Some materials are available in Spanish, Asian languages and other languages.

Keywords: Education, Legal issues, Low income groups

Center for Limb Differences ( )

Annotation: The Center for Limb Differences is an outpatient program that manages and treats children and adolescents with congenital limb abnormalities and acquired amputations due to disease or trauma. Approximately 60 percent of these outpatients are from Michigan, although they serve patients from around the world. The center supports the philosophy that children with limb differences and amputations are best managed by a skilled team of specialty professionals. The center provides referrals, reference information, and publications (including a handbook). Some materials are available in Spanish.

Keywords: Amputation, Congenital limb deficiency, Disarticulation, Orthopedic devices, Prostheses

Center for Loss in Multiple Birth (CLIMB, Inc.)

Annotation: The Center for Loss in Multiple Birth (CLIMB, Inc.) is an organization of parents who have experienced the death of one or both twins (or higher multiple births) during pregnancy, birth, infancy, or childhood. The Center provides services to individuals in the U.S., Canada, and abroad which include referrals; a quarterly newsletter; an online discussion forum; a parent contact list; samples of birth/memorial announcements; a library; publications; and assistance to twins clubs, loss groups, authors, and researchers. Some materials are available in French, Spanish, Chinese, and Russian. Training seminars are sponsored upon request.

Keywords: Fetal death, Grief, Multiple births, Perinatal bereavement, Perinatal mortality, Pregnancy loss, Spontaneous abortion

Center for Media Education (CME)

Annotation: The Center for Media Education (CME) is a national nonprofit organization dedicated to improving the quality of electronic media, especially on behalf of children and families. CME fosters telecommunications policy making in the public interest and engages in research and public education on behalf of children's needs in the electronic media. CME was founded in 1991 to carry on the work of Action for Children's Television (now defunct). The Center's programs include (1) Action for Children in Cyberspace, an initiative created to ensure that Internet media serves the needs of all children; (2) the National Campaign for Kids' TV, which aims to improve the quality of children's television through public education and organizing; and (3) CME's Universal Service program, which provides direct technical assistance to state-based organizations. Through the latter program, child advocates contribute to the development of state-level policies that provide basic and advanced telecommunications to rural and low-income citizens. Services to consumers include referrals and publications. CME provides handbooks, reports, and fact sheets and publishes a quarterly newsletter exploring issues in children's media. Some materials are available in Spanish.

Keywords: Education, Mass media, Telecommunications, Television

Center for Oral Health (COH)

Annotation: The Center for Oral Health (COH) is a nonprofit, California-based organization, founded in 1985, dedicated to promoting public oral health, with a focus on children and vulnerable populations. Activities include elevating the importance of oral health among all populations, establishing a comprehensive dental public health infrastructure in California, advocating for policies and practices that improve oral health, eliminating barriers to care, and preventing disease. The website contains information on current oral health issues, programs, and legislation; news and events; products for public health dentistry; publications; and research. Topics include continuum of care, early intervention, fluoridation and fluoride varnish, health reform, needs assessment, oral health access, and school policy. It was formerly the Dental Health Foundation.

Keywords: Advocacy, California, Health promotion, Oral health, Public health infrastructure, Vulnerability, Young children

Center for Parent Information and Resources (CPIR)

Annotation: The Center for Parent Information and Resources (CPIR) serves as a central source of information and products for the community of Parent Training Information (PTI) Centers and the Community Parent Resource Centers (CPRCs) so that they can focus their efforts on serving families of children with disabilities. The Center also works to increase the coordination of parent training efforts throughout the network and to increase Parent Centers’ knowledge and capacity in specific domains. CPIR's online resource cover key topics, K-12 issues, early intervention/early childhood, and parent centers' 14 priorities. Users can customize their online searches by audience, format, language, and resource producer. Resources are available in English and Spanish. It is funded by the Office of Special Education Programs at the U.S. Department of Education. This center continues the work of the Technical Assistance ALLIANCE for Parent Centers.

Keywords: Children with special health care needs, Early intervention, Family centered services, Information sources, Parenting, Resource centers, Spanish language materials, Special education

Center for Reproductive Rights ( )

Annotation: The Center for Reproductive Rights (formerely the Center for Reproductive Law and Policy) is an independent, non-profit legal organization dedicated to promoting women's reproductive health and rights. Through litigation, research, policy analysis, and public education, The center's domestic and international programs seek to ensure that all women have access to appropriate and freely chosen reproductive health services. Areas of concern include abortion laws, access to new contraceptives and reproductive technologies, availability of age-appropriate and non-biased sex education for minors, and the pregnant woman's rights to privacy and bodily integrity. Publications include a newsletter, Reproductive Freedom News, and a variety of reports and updates on relevant issues and court cases. Some materials are available in Spanish and French.

Keywords: Women's health, Reproductive rights

Center for Rural Health and Social Service Development (CRHSSD)

Annotation: The Center for Rural Health and Social Service Development (CRHSSD) at Southern Illinois University at Carbondale is a part of the University's mandate to conduct public health policy research in southern Illinois. The CRHSSD addresses evaluative activities, creation of new programs and training for the system. Services to consumers include publications and reference information. Materials are available in Spanish. The CRHSSD publishes a quarterly newsletter and sponsors conferences and training seminars.

Keywords: Illinois, Public health, Rural health, Social services, Spanish language materials

Center for School Mental Health (CSMH)

Annotation: The Center for School Mental Health (CSMH) strengthens policies and programs in school mental health to improve learning and promote success for children and adolescents.

Keywords: Adolescents, Children, Clearinghouses, Conferences, Interdisciplinary training, Mental health, National MCH resource center, Publications, Referrals, Resource centers, School counseling, School health, School health programs, School personnel, School psychology, Spanish language materials, Technical assistance, Training

Center for Women Policy Studies (CWPS)

Annotation: The Center for Women Policy Studies works to help define women's needs in national policy debates and to influence policy development and implementation for women of color. The center maintains the National Resource Center on Women and AIDS Policy and provides programs on law and pregnancy, violence against women, work/family and workplace diversity, girls and violence, and welfare/poverty policy. Publications include a catalog and a newsletter. Some materials, including materials on HIV/AIDS, are available in Spanish.

Keywords: Domestic violence, Violence prevention, Women

Center on Human Policy, Law, and Disabilities Studies

Annotation: The Center on Human Policy, Law, and Disabilities Studies is an advocacy and research organization that promotes the rights of people with disabilities to be fully included in community life. The Center provides parents, consumers, and professionals with information on costs of local services and resources for parents of children with disabilities, deinstitutionalization research, and other related issues. Through its funded projects, the Center provides referrals, reference information, and publications, including a resource catalog. Some materials are available in Spanish and French. The Center also sponsors conferences, training seminars, and workshops.

Keywords: Inclusion, Public policies, Special health care needs

Center to Prevent Childhood Malnutrition

Centering Corporation

Annotation: The Centering Corporation provides grief literature, videotapes, workshops and referrals. The Centering Corporation offers literature through their publications catalog on a number of topics including premature infants, adoption, miscarriage, newborn and child death, and death of a parent. Some materials are available in Spanish. The organization also sponsors workshops and conferences, publishes a magazine, Grief Digest, and provides materials for children.

Keywords: Bereavement, Fetal death, Grief, Perinatal bereavement, Pregnancy loss, Premature infants, Spontaneous abortion

Centers for Disease Control and Prevention (CDC)

Annotation: The Centers for Disease Control and Prevention (CDC), a part of the U.S. Department of Health and Human Services, is the primary Federal agency responsible for conducting and supporting public health activities in the United States, including the prevention and control of infectious and chronic disease. The primary goals of the agency are to reduce health risks during every stage of life; spearhead efforts to improve global health; ensure that the places people live, work, and play have safe, healthy environments; and prepare for emerging health threats from mental health to environmental health. The Public Inquiries Office responds to inquiries in the areas of preventive medicine, immunization, disease control, and health education. The Web site covers a wide range of health & safety topics, including diseases & conditions, emergency preparedness, environmental health, life stages & populations, healthy living, injury and violence; travelers' health, and workplace health and safety. Also included are links to data and statistics, online access to CDC's journals and other publications; and tools & resources such as an image library, podcasts, and a Body Mass Index (BMI) calculator. A Spanish-language version of the Web site is available, and some materials are available in Spanish, French, Asian languages and other languages. CDC also sponsors conferences, training seminars and workshops.

Keywords: Preventive health services, Adolescents, Data analysis, Data collection, Disease prevention, Environmental health, Federal agencies, Guidelines, Health education, Health promotion, Immunization, Listservs, Nutrition, Occupational safety and health, Online databases, Population surveillance, Publications, Safety, Spanish language materials, Spanish language website, Standards, Technical assistance, Training

Centers for Disease Control and Prevention, Division of Oral Health (DOH)

Annotation: The Centers for Disease Control's Division of Oral Health (DOH) leads national efforts to prevent oral diseases and improve oral health. The Division seeks to improve the oral health of the nation by extending the use of proven strategies to prevent oral diseases, strenghtening the nation's oral health infrastructure, enhancing efforts to monitor oral diseases, and guiding infection control in dentistry. DOH develops national plans and guidelines in specific areas of oral health, including appropriate use of fluoride products and dental sealants as well as on dental infection control. DOH sponsors a Web site, the National Oral Health Surveillance System (NOHSS), which is designed to help public health programs monitor oral disease, use of the oral health care delivery system, and the status of community water fluoridation on both a state and national level. NOHSS includes indicators of oral health, guidelines for oral conditions and oral health care, information on state dental programs, and links to other sources of oral health information. In collaboration with the National Institute of Dental and Craniofacial Research, DOH also provides the Data Resources Center, which assembles data and other information needed to support research, program evaluation, and policy development. Materials are available in Spanish.

Keywords: Oral health

Charcot-Marie-Tooth Association (CMTA)

Annotation: Founded in 1983, the Charcot-Marie-Tooth Association (CMTA) supports research, provides public education, and works toward the ultimate treatment and cure of Charcot-Marie-Tooth (CMT) disease. The association sponsors regional patient/family support groups throughout the nation, conducts patient/family and medical/professional CMT educational conferences in major metropolitan areas and sponsors research. Services to consumers include referrals, reference information, and publications. Publications include a bi-monthly newsletter, The CMTA Report, and the only text devoted to CMT disorders: A Handbook for Primary Care Physicians. Some materials are available in Spanish.

Keywords: Charcot Marie disease, Health education, Hereditary motor sensory neuropathies, Medical research, Oral health, Peroneal muscular atrophy, Support groups

CHARGE Syndrome Foundation

Annotation: The CHARGE Syndrome Foundation is a nonprofit, nonpartisan, nonsectarian service organization offering information, parent to parent link networking, and support for research. Since 1989 the newsletter, CHARGE Accounts, has provided parents with a way to exchange information, experiences, and mutual support. Other publications include CHARGE Syndrome: A Management Manual for Parents (2 vols.), available in both English and Spanish. The Foundation also sponsors international conferences for families and professionals.

Keywords: Heart malformations, Atresia of the choanae, Developmental disabilities, Ear malformations, Genital hypoplasia, Information services

CHERUBS, the Association of Congenital Diaphragmatic Hernia Research, Advocacy and Support (CHERUBS)

Annotation: CHERUBS, the association of Congenital Diaphragmatic Hernia (CDH) Research, Advocacy, and Support, is an organization founded for the caregivers of children born with CDH. It offers information, parent-matches, updated research material, and newsletters at no cost to affected families. Somes materials are available in Spanish, German, and Hungarian. Members include the families of survivors, support groups, and medical professionals. Its mission is to support these families and doctors and to search for the cause and prevention of CDH.

Keywords: Hernia

Child Care Aware of America

Annotation: Child Care Aware© of America provides information for parents and child care providers. It helps families learn more about the elements of quality child care and how to locate programs in their communities. It also provides child care providers with access to resources for their child care programs. This organization changed its name from the National Association of Child Care Resource & Referral Agencies (NACCRRA) in 2012. The website can be viewed in English and Spanish.

Keywords: Child care, Spanish language materials, Spanish language website

Child Care Law Center (CCLC)

Annotation: The Child Care Law Center (CCLC) is a national non-profit legal services organization that focuses exclusively on complex legal issues concerning the establishment and provision of child care services. The Center's primary objective is to use legal tools to foster the development of quality, affordable child care programs. CCLC combines expert legal services with policy development, advocacy, training, and technical assistance education. The Center publishes a newsletter and sponsors workshops and training seminars. Referrals and publications are provided to consumers. Some materials are available in Spanish and Asian languages.

Keywords: Child care, Legal aid, Legal issues, Policy, Special health care needs

Child Health Foundation (CHF)

Annotation: The Child Health Foundation (CHF), formerly the International Child Health Foundation, is engaged in national and international efforts to improve the health of families through child health research, training, and emergency relief services, with an emphasis on nutrition and oral rehydration therapy, and other low-cost interventions. Services to customers include referrals and publications (a newsletter). Some materials are provided in Spanish.

Keywords: Child health, Diarrhea, Nutrition, Oral rehydration therapy, Prevention

Child Health Specialty Clinics (CHSC)

Annotation: The Child Health Specialty Clinics (CHSC) works to improve the health, development, and well-being of children and youth with special health care needs in partnership with families, service providers, and communities. CHSC's team of professionals and experienced parents provide families one-on-one problem solving and emotional support as they care for their children with special health care needs. Since children and youth with complicated health problems often need assistance from many different agencies, CHSC works to provide access to quality community-based services. CHSC provides referrals, inquiry responses, publications (including a newsletter), and reference Information. Some materials are available in Spanish.

Keywords: Home care, Child health services, Children with special health care needs, Information services, Management, Referrals, Resource materials, Service coordination, Technical assistance

Child Welfare Information Gateway (CWIG)

Annotation: The Child Welfare Information Gateway provides information services to child welfare and related professionals and the public as the clearinghouse for the Children’s Bureau, compiling, synthesizing, and disseminating resources to promote the safety, permanency, and well-being of children and families. The Information Gateway provides access to publications, websites, and online databases covering a range of topics, including child welfare, child abuse and neglect, foster care, adoption, and the content areas for which the Children's Bureau Training and Technical Assistance Network (TTA) members provide support.

Keywords: Adopted children, Adoptive parents, Biological parents, Child abuse, Child neglect, Children with special health care needs, Clearinghouses, Databases, Family violence, Information services, Information dissemination, Adoption, Injury prevention, Spanish language materials, Support groups

Childhelp National Child Abuse Hotline

Annotation: Childhelp National Child Abuse Hotline offers crisis intervention, information, and referrals to emergency, social service, and support resources. Dedicated to the prevention of child abuse, the hotline is staffed 24 hours a day, 7 days a week with professional crisis counselors who, through interpreters, can provide assistance in 170 languages, including Spanish. All calls are anonymous and confidential. The hotline number is (800) 4-A-CHILD (800) 422-4453.

Keywords: Child abuse, Crisis intervention, Hotlines, Non English language materials, Prevention, Spanish language materials

Children's Aid Society (CAS)

Annotation: The Children's Aid Society (CAS) was founded in 1853 to help children who are homeless in New York City. The website contains a timeline of historic highlights; photos, videos, and podcasts; publications, including a quarterly newsletter; employment and volunteer opportunities; and information about programs and services. Programs include the Carrera Adolescent Sexuality and Pregnancy Prevention Program and Go!Healthy, an initiative to educate children and adolescents about wellness and healthful cooking and eating. Other service areas include adoption and foster care, after-school and weekend programs, arts, camps, early childhood, family support, health and counseling, juvenile justice, legal advocacy, special initiatives, and youth development.

Keywords: Child health, Children, Community programs, Inner city

Children's Brain Tumor Foundation (CBTF)

Annotation: The Children's Brain Tumor Foundation (CBTF), a nonprofit organization, is dedicated to funding scientific research, and providing support and educational services to patients and families. The Foundation provides the following free support services: an extensive telephone information and referral service, a national parent-to-parent network, and educational teleconferences and telephone support groups for families and survivors. Publications include a newsletter and two free books, "A Resource Guide for Parents of Children with Brain and Spinal Cord Tumors", which is available in Spanish and "Parker's Brain Storm".

Keywords: Brain tumors, Cancer

Children's Foundation (CF)

Children's Health Fund

Annotation: The Children's Health Fund (CHF), founded in 1987, is committed to providing health care to the nation's medically underserved children through the development and support of innovative primary care pediatric programs and the promotion of guaranteed access to medical homes and appropriate health care for all children. CHF initiates health care programs for underserved children and creates low-literacy health education materials to assist children and their families in learning about a variety of health related topics.

Keywords: Children, Grants, Homeless persons, Immunization, Spanish language materials

Children's PKU Network (CPN)

Annotation: Founded in 1991, the Children's PKU Network (CPN) is a national nonprofit organization that addresses the special needs and concerns of people with phenylketonuria (PKU) and related metabolic disorders. The organization provides networking services, referrals, references information and resources, a hotline (during business hours), and support for people living with PKU and other rare inherited metabolic diseases. Publications include a newsletter and some materials are available in Spanish.

Keywords: Metabolic diseases, Phenylketonuria

Children's Television Resource and Education Center (C-TREC)

Annotation: The Children's Television Resource and Education Center (C-TREC) is a non-profit educational corporation dedicated to creating services and products that promote children's social development and academic success. As part of that commitment, C-TREC helps parents, teachers, and other professionals deal with issues related to children and electronic media. C-TREC analyzes the effect of television programming on children's social development, creativity, and academic success. It offers curriculum and technical assistance to parents, teachers, and researchers working to ensure that television is a positive rather than negative influence on children's development. Services include "Helping Children Survive Television" presentations, media consultations and social skills curricula for preschools, elementary schools, and after school programs. Publications include parent information sheets and research bibliographies. Materials are available in Spanish.

Keywords: Child health, Education, Parenting skills, Television

Children's Tumor Foundation (CTF )

Annotation: The Children's Tumor Foundation (CTF), formerly the National Neurofibromatosis Foundation, supports research on the causes, prevention, and treatment of neurofibromatosis. The foundation provides information on the disorder to patients and their families and helps them to find medical, social, and genetic counseling. It also provides information to health professionals and the public. Publications include Neurofibromatosis: A Handbook for Parents, Neurofibromatosis: Information for Kids, Neurofibromatosis: Information for Patients and Families, and a quarterly newsletter, neuro•fibroma•tosis news. Audiovisual materials include: The Many Faces of NF, video and also audiocassette of Information for patients and families. CTF also supports a Kids' Council for children to connect with other children with neurofibromatosis and to participate in running programs and fundraising activities. Materials are available in Spanish, French, Asian, and other select languages. The foundation also sponsors conferences.

Keywords: Neurofibromatosis, Information services, Medical research, Nervous system diseases

CHOICE

Annotation: CHOICE is a community-based organization dedicated to increasing awareness of and access to sexual health services, especially among underserved populations who traditionally experience barriers to care. CHOICE operates five bi-lingual (Spanish-English) hotlines and programs of community education and outreach. The hotlines include: the CHOICE Hotline for general reproductive and women's health information, serving the five-county Philadelphia area; the Pennsylvania Department of Public Health AIDS Fact Line for information about HIV/AIDS related issues which serves the entire state; the Children's Health Line which helps families obtain free or low cost health care and insurance coverage for their children; the CHOICE Teen Line, which provides sexual health counseling and education to young callers; and the Blueprint for a Safer Philadelphia Community Hotline that is part of a local effort to reduce youth homicides through a public health model. CHOICE is on the list of instructional resources recommended and approved by the Philadelphia School District to provide sexual health education in the City's public schools. CHOICE is currently active in 180 schools, after-school programs, community sites, hospitals, and churches. CHOICE offers online resources in English and Spanish.

Keywords: Gynecology, AIDS, Advocacy, Advocacy, Child care, Children, Family planning, HIV, Health education, Health insurance programs, Hotlines, Information services, Maternal care, Reproductive health, Sexuality education

Christopher Reeve Foundation (CRPF)

Annotation: The Christopher Reeve Paralysis Foundation (CRPF), formerly the American Paralysis Association, is a national nonprofit organization that is committed to funding research that develops treatments and cures for paralysis caused by spinal cord injury and cures for paralysis caused by spinal cord injury and other central nervous system disorders. The Foundation also vigorously works to improve the quality of life for people living with disabilities through its grants program, paralysis resource center, and advocacy efforts. CRPF publishes a newsletter and a resource guide, sponsors conferences, workshops, and training seminars, and provides inquiry responses, reference information, and publications for consumers. Some materials are available in Spanish.

Keywords: Paralysis, Spinal cord injuries

Chromosome Deletion Outreach (CDO)

Annotation: Chromosome Deletion Outreach, Inc. is a non-profit organization that provides support and information to families affected by rare chromosome disorders. These disorders include deletions, duplications, translocations, rings and inversions. CDO provides family matching, a quarterly newsletter, listservs and articles on rare disorders if available. Some materials are available in Spanish and French.

Keywords: Chromosomal deletion, Chromosome abnormalities, Listservs, Parent groups

Chronic Granulomatous Disease Association (CGDA)

Annotation: The Chronic Granulomatous Disease Association was founded in 1982. It is a non-profit international organization that provides information on treatment and research relative to chronic granulomatous disease and provides emotional support to afflicted and their families. The organization offers a newsletter and a worldwide registry of chronic granulomatous disease patients.

Keywords: Granulomatous disease, Hematologic disorders

Citizens Alliance for VD Awareness (CAVDA)

Annotation: The Citizens Alliance for VD Awareness (CAVDA) is a not-for-profit corporation established to provide accurate information to the public about the symptoms, treatment, and prevention of sexually transmitted diseases (STDs), to encourage more people to seek medical help, diagnosis, and treatment for STDs, to update educational materials currently used in public schools/clinics, and to provide high quality innovative vehicles to reach the public and health care professionals. CAVDA provides referrals and publications, including informative pamphlets for the general population and African-American and Hispanic populations; a quarterly newsletter STD Spotlight; and an AIDS monograph, AIDS, A Public Education Priority. Information about syphilis and gonorrhea may be obtained in Spanish. The organization also sponsors conferences.

Keywords: AIDS, Educational materials, Sexually transmitted diseases

CLAS Institute (CLAS)

Annotation: The CLAS Institute identifies, evaluates, and promotes effective and appropriate early intervention and preschool practices that are sensitive and respectful to children and families from culturally and linguistically diverse backgrounds. The Web site includes a searchable database of culturally and linguistically appropriate materials produced by child education and multicultural experts for use by early childhood/special education practitioners and administrators. The Institute reviews and acquires materals from various national, regional, state and local organizations, grant-funded projects, national, state and local programs, and publishers. The Web site is maintained by the Early Childhood and Parenting Collaborative at the University of Illinois.

Keywords: Cultural competence, Early childhood education, Linguistic competence, Spanish language materials

Cleft Palate Foundation (CPF)

Annotation: The Cleft Palate Foundation (CPF) is dedicated to optimizing the quality of life for individuals affected by facial birth defects. CPF operates a toll-free service providing information to callers about cleft palate/craniofacial teams and parent-client support groups in their local region. CPF’s website also provides information and resources for parents and individuals on team care, along with booklets, fact sheets, and a video on feeding. Additional resources include awards, scholarships, grants, and tips for health professionals. Information is available in English and Spanish.

Keywords: Cleft palate, Craniofacial abnormalities, Spanish language materials

Colorado Coalition Against Domestic Violence (CCADV)

Annotation: The Colorado Coalition Against Domestic Violence (CCADV) is dedicated to the elimination of domestic violence in all forms through community education, networking, and the empowerment of battered women and children. The coalition serves as a forum for social action and the development of services for battered women and their families by bringing membership and community together. It is a diverse network of rural and urban service providers who work together through the coalition to coordinate services, provide training, exchange information, and work on issues of common concern. Services to consumers include referrals and reference information. The coalition publishes a newsletter and provides some materials in Spanish. The coalition sponsors frequent conferences and training programs.

Keywords: Battered women, Domestic violence, Violence prevention

Compassionate Friends (TCF)

Annotation: Compassionate Friends is a non-profit self-help organization that offers friendship and understanding to families who have experienced the death of a child of any age, from any cause. The group provides support to bereaved parents, grandparents, and siblings. Compassionate friends was founded in 1969; the first of 600 U.S. chapters were organized in 1972. The organization offers brochures & videos. Some materials are available in Spanish. The organization also publishes a catalog and a national magazine, and sponsors several regional meetings and a conference each year. Contact the national office for chapter information in your area.

Keywords: Child death, Support groups, Fetal death, Grief, Perinatal bereavement, Perinatal mortality, Pregnancy loss, Spontaneous abortion

Consumer Product Safety Commission (CPSC)

Annotation: The Consumer Product Safety Commission (CPSC) evaluates the safety of products sold to the public, including children's furniture and toys. The commission receives safety-related complaints about these products through its toll-free hotline or its website. Safety-related publications can be downloaded from CPSC's Electronic Reading Room (searchable by subject) or ordered, free-of-charge, in print formats. Many materials are available in Spanish, Chinese, Tagalog, Korean, and Portuguese. The website also provides access to consumer product-related statistics and the National Electronic Surveillance System( a national probability sample of hospitals in the U.S.). A special section of the website is designed for children.

Keywords: Safety, Data, Data collection, Data profiles, Federal agencies, Hotlines, Injury prevention, Injury surveillance systems, NEISS, Product safety, Publications, Recreational injuries, Residential injuries, Spanish language materials, Toy injuries, Toy labeling, Toy safety, Transportation injuries

Coordinating Center for Home and Community Care

Annotation: The Coordinating Center for Home and Community Care (CCHCC) is a nonprofit organization that provides care management services for people with complex medical needs, special health care needs, and disabilities who are living in their own homes and communities. The Coordinating Center also provides technical assistance, training, and consultation to professionals who work in the community with people who have such needs. Services to consumers include referrals, reference information, and publications. The center publishes a catalog and a variety of brochures. Some materials are available in Spanish.

Keywords: Home care, Case management, Chronic illnesses and disabilities, Home care services, Refferals, Technical assistance

Cornelia de Lange Syndrome Foundation (CdLS)

Annotation: The Cornelia de Lange Syndrome (CdLS) Foundation is a family support organization which works to ensure early and accurate diagnosis of CdLS; promote research into the causes and manifestations of the syndrome; and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lifetime. Services to consumers include referrals, publications, and reference information. Publications include Facing the Challenge: A Parents' Guide to CdLS, Facts About Cornelia de Lange Syndrome, CdLS Foundation Album, and a bimonthly newsletter, Reaching Out. Some materials are available in Spanish. The foundation sponsors a conference every other year.

Keywords: De Langes syndrome, Developmental disabilities, Parent groups

Costello Syndrome Family Network (CSFN)

Annotation: The Costello Syndrome Family Network's main focus is parent-to-parent support. The network also helps qualified researchers learn about Costello syndrome by sharing research opportunities for parents to consent to include their children's information. Through a listserve, bi-annual conferences and the published peer-reviewed articles based on information shared by parents, network families can better understand their children's syndrome and refine the "best practice" toolkit to care for and raise them. The network offers referrals, inquiry responses, and reference information. The network operates in the United States and internationally. The Web site is available in French, German, Italian, Portuguese, and Spanish, in addition to English.

Keywords: Congenital abnormalities, Non-English language materials, Spanish language materials, Support groups, Syndromes

Council for Professional Recognition

Annotation: The Council for Professional Recognition works to improve the status of early childhood educators nationwide. The Council administers the Child Development Associate (CDA) National Credentialing Program, a collaborative effort between the early childhood profession and the Administration on Children and Families. The CDA Program establishes national standards for the evaluation and credentialing of center-based teachers, family child care providers, and home visitors. The Council's CDA Professional Preparation Program, a national one-year training program, will provide uniform and accessible training for people interested in becoming CDAs. Interested users may download a variety of free publications from the website. Many materials are available in Spanish. Anyone can subscribe to the council's electronic newsletter.

Keywords: Child Care, Child health, Early childhood education, Training

Council on Cardiovascular Disease in the Young (AHA)

Annotation: The American Heart Association (AHA) Council on Cardiovascular Disease in the Young, a national voluntary organization, works to reduce the incidence of mortality and disability among children with cardiovascular disease. It supports the Heart Power! the Heart Health Education Program for school Children. Publications include Safeguarding Your Heart During Pregnancy, Innocent Heart Murmurs, If Your Child Has a Congenital Heart Defect, Your Child and Rheumatic Fever, Feeding Infants with Congenital Heart Disease, Abnormal Heart Rhythms—What Parents Should Know, Dental Care for Children with Heart Disease, Children and Smoking: A Message to Parents, Kawasaki Disease, High Blood Pressure in Children and Teenagers—What Parents Should Know, and seven If Your Child Needs a Heart Test tear sheets. Some materials are available in Spanish. The association also publishes a catalog and sponsors conferences.

Keywords: Cardiovascular diseases, Children, , Congenital heart defects, Heart diseases

Council on Family Health

Annotation: The Council on Family Health is a nonprofit organization which works to educate consumers on the proper use of nonprescription and prescription medicines, dietary supplements, home safety, and personal health. The Council conducts educational campaigns on topics such as drug interactions, reading medicine labels, tampering education, safe medicine use for senior citizens, and health care information for low-literacy and non-English speaking populations. The Council produces public service announcements, news releases, brochures, and tip sheets. Services to consumers include reference information and Spanish language materials.

Keywords: Prescription drugs, Health education, Low literacy materials, Nonprescription drugs, Public awareness campaigns, Public awareness materials, Public service announcements, Safety programs, Spanish language materials

Couple to Couple League, International (CCL)

Annotation: The Couple to Couple League, International (CCL) is an interfaith, nonprofit organization that helps couples develop the art of natural family planning. The League teaches the symptothermal method (STM), in which measurements of the cervix, cervical mucus, and basal body temperature are cross-checked to determine fertility or infertility. Publications include a bimonthly newsletter, CCL Family Foundations, and CCL Manual: The Art of Natural Family Planning. Printed and online catalogs are available, and materials are available in Spanish, Slovak, Polish, and Russian. The organization also sponsors conferences and training seminars.

Keywords: Natural family planning, Pregnancy, Contraception, Fertility, Infertility

Crohn's and Colitis Foundation of America (CCFA)

Annotation: The Crohn's and Colitis Foundation of America (CCFA) works to establish a coordinated national research and education program to conquer Crohn's disease and ulcerative colitis. Publications include Inflammatory Bowel Diseases, Foundation Focus, Treating TBD, The New People...Not Patients, Managing Your Child's Crohn's Disease or Ulcerative Colitis, and various educational brochures. Some materials are available in Spanish. CCFA also sponsors workshops and training seminars.

Keywords: Colitis, Crohns disease, Gastrointestinal diseases, Ileitis

Cross Cultural Health Care Program (CCHCP)

Annotation: The Cross Cultural Health Care Program (CCHCP) serves as a bridge between communities and health care institutions to help ensure access to quality health care that is culturally and linguistically appropriate. CCHCP collaborates with institutions in outreach efforts to ethnic communities; maintains a center for cultural competence; undertakes and supports community-based research; provides training programs for interpreters and health care providers; and offers support and advocacy to help underserved communities achieve self-directed access and use of health care resources. The Program provides online resource guides on topics such as health disparities, cultural competence, and medical interpreter services, and maintains an online store. Materials include videos and publications on immigrant communities in the United States and bilingual medical glossaries in Amharic, Cambodian, Chinese, Korean, Lao, Russian, Somali, Spanish, Tigrignia, and Vietnamese.

Keywords: Cultural diversity, Asian language materials, Cultural sensitivity, Culturally competent services, Foreign language materials, Spanish language materials

Cyclic Vomiting Syndrome Association (CVSA )

Annotation: Cyclic Vomiting Syndrome Association provides services to families and professionals that include include referrals, publications, and reference information. CVSA provides materials in Spanish, French, Asian languages, and other languages; funds research; publishes a newsletter; sponsors conferences; and maintains a listserv for members.

Keywords: Cyclic vomiting syndrome

CYFERNet: Children, Youth, and Families Education and Research Network

Annotation: CYFERnet is a national network of land grant university faculty and county extension educators working to support community-based educational programs for children, youth, parents and families. CYFERnet is funded as a joint project of the U.S. Department of Agriculture's National Institute for Food and Agriculture (NIFA) and the Cooperative Extension System. Some materials are available in Spanish.

Keywords: Community based services, Child development, Educational programs, Family relations, Government programs, MCH programs, Parenting skills, Youth development

Cystic Fibrosis Foundation (CFF)

Annotation: The Cystic Fibrosis Foundation was established to assure the development of the means to cure and control cystic fibrosis (CF) and improve the quality of life for those with the disease. The CF Foundation supports a mail-order pharmacy, accredits specialized CF care centers throughout the country, and sponsors conferences. Publications include fact sheets, brochures and "Commitment," a newsletter published regularly. In addition, the CF Foundation offers videos and some Spanish materials .

Keywords: Cystic fibrosis, Foundations, Research

D.C. Community Prevention Partnership

Annotation: The D.C. Community Prevention Partnership is one of the District of Columbia's leading substance abuse and violence prevention agencies. The Partnership supports the efforts of residents and community groups to design and implement their own prevention initiatives. It also involves young people in prevention work, enabling them to plan community service activities that will reduce substance abuse and violence in their neighborhoods. In addition, the Partnership engages in technical assistance and training, coalition building and community organizing. The Partnership provides referrals, publications, and reference information (materials are available in Spanish and Asian languages). It also sponsors conferences and training seminars and publishes a newsletter.

Keywords: Community service, District of Columbia, Substance abuse prevention, Violence prevention

Danny Foundation for Crib and Child Product Safety

Annotation: The Danny Foundation is a nonprofit corporation that advocates crib and child product safety. The foundation's efforts focus on the role of baby products in preventing injuries and deaths among babies. Services to consumers include referrals, publications, and reference information. The organization publishes a newsletter and provides materials in Spanish.

Keywords: Injury prevention, Advocacy, CRIBNOTES, Child development, Infant products, Infants, Information services, Legislation, Product safety, Public education, Toddlers

DB-LINK: The National Information Clearinghouse on Children Who are Deaf-Blind

Annotation: DB-LINK: The National Information Clearinghouse on Children Who are Deaf-Blind identifies, coordinates, and disseminates information related to children and youth who have combined hearing and vision losses. DB-LINK is a collaborative effort of Helen Keller National Center, Perkins School for the Blind, and Teaching Research. DB-LINK is a co-sponsor of the publication Deaf-Blind Perspectives. Services to consumers include tailored responses to requests, referrals, and reference information. Publications include a catalog and a newsletter. Limited materials are available in Spanish.

Keywords: Blindness, Deafness, Hearing disorders

Delaware Academy of Medicine, G.P. Gill Consumer Health Library

Annotation: The Consumer Health Library located, within the Delaware Academy of Medicine's library, offers a wide range of health and medical information to consumers. Some materials are available in Spanish.

Keywords: Health sciences libraries

Dental Lifeline Network

Annotation: The Dental Lifeline Network (formerly the National Foundation of Dentistry for the Handicapped), an affiliate of the American Dental Association, works to arrange comprehensive oral health care for individuals with special needs through a national network of direct service programs involving volunteer dentists and laboratories. Programs include Donated Dental Services, Bridge/Campaign of Concern, and HouseCalls. The network publishes Dental Lifeline Network News and collaborates with dental suppliers to offer DentaCheques, a revenue-generating coupon book for dentists.

Keywords: Dental care, Dental hygiene, Older adults, Oral health, Special health care needs

Depression and Bipolar Support Alliance (DBSA)

Annotation: The Depression and Bipolar Support Alliance, formerly the National Depressive and Manic-Depressive Association is a nonprofit organization that works to educate patients, families, professionals, and the public as to the nature of depressive and manic-depressive illnesses as medical diseases; advocate for research; foster self-help for patients and families; eliminate discrimination and stigma; and improve access to care. Publications include brochures, newsletters, booklets, a bookstore catalog of more than 80 titles, and a chapter directory listing self-help groups. Some materials are available in Spanish. DBSA sponsors conferences.

Keywords: Depression, Access to health care, Advocacy, Bipolar disorder, Health education

Diabetes Insipidus Foundation

Annotation: The Diabetes Insipidus Foundation works to provide a greater public awareness and understanding of all forms of Diabetes Insipidus: Neurogenic/Central, Nephrogenic, Gestagenic, and Dipsogenic/Polydipsia. Diabetes Insipidus is a rare disorder primarily characterized by excreting excessive amounts of urine and drinking excessive amounts of water, leading to dehydration or water intoxication. The foundation serves patients of all ages, their families and the medical community with informational material and through the quarterly publication of Endless Water. The foundation works to promote Diabetes Insipidus as "A DIFferent Diabetes" so that people will know that there is another diabetes. The main goal of the Foundation is improved treatment and ultimately the prevention and cure of all forms of Diabetes Insipidus through research. The Foundation offers referral services, reference information, and publications (including a newsletter). Some materials are available in Spanish and French.

Keywords: Diabetes insipidus, Gestational diabetes

Disability Rights Education and Defense Fund (DREDF)

Annotation: Disability Rights Education and Defense Fund is a nonprofit organization run primarily by persons with disabilities to achieve the goals of the disability rights movement. It monitors legislative and educational efforts and conducts training and research programs. The organization trains persons with disabilities and their families in the application of their rights under laws such as the Individuals with Disabilities Education Act (IDEA), the Americans with Disabilities Act (ADA), and Section 504 of the Rehabilitation Act of 1973. It offers information on the civil rights of persons with disabilities to attorneys, federal agencies, and legislators and their staffs, and provides referrals and publications for consumers. The Disability Rights Education and Defense Fund News the organization's free quarterly newsletter, reports on legislative and judicial activities affecting disability rights. Some materials are available in Spanish.

Keywords: Civil rights, Disabilities, IDEA, Individuals with Disabilities Education Act, Research, Training

Disability, Abuse, and Personal Rights Project (DAPR)

Annotation: The Disability, Abuse, and Personal Rights Project (DAPR) provides educational and technical assistance to individuals with disabilities, family members, care providers, professionals, advocates, and community members on the identification, intervention, treatment, and prevention of abuse of children and adults with disabilities. The organization conducts research, presents seminars and workshops, coordinations a national conference, develops training curricula, and provides a variety of publications, including guide books for forensic interviewing, materials for parents and for individuals with disabilities, and a resource catalog. Materials are available in Spanish and Japanese.

Keywords: Advocacy, Education, Physical abuse, Special health care needs

Do It Now Foundation (DIN)

Annotation: Do It Now (DIN) Foundation is a national, nonprofit educational foundation working to provide adolescents and their families with timely, accurate information on a range of behavioral health issues, including alcohol and alcoholism, contraception, sexually transmitted diseases, drug use and abuse, parenting, eating disorders, suicide, and stress. Publications include pamphlets, booklets, books, reports, and posters. A publications catalog is available. Some publications are available in Spanish, Italian, French, German, and other languages. The DIN Web site is written for adolescents.

Keywords: Adolescent health, Depression, Eating disorders, Mental health, Rape, Sexually transmitted diseases, Substance abuse, Suicide

DRUGSTORE Information Clearinghouse (DAODAS)

Annotation: The DRUGSTORE Information Clearinghouse is South Carolina's communications resource center for alcohol and other drug information. It is part of the Regional Alcohol and Drug Awareness Resource Network (RADAR) developed by the Center for Substance Abuse Prevention and the National Clearinghouse for Alcohol and Drug Information. Services to consumers include referrals, publications and reference information. Some materials are available in Spanish. DAODAS also sponsors training seminars and publishes a newsletter.

Keywords: Substance abuse

Dystonia Medical Research Foundation

Annotation: The Dystonia Medical Research Foundation is a nonprofit organization that works to build awareness of dystonia, a neurological disorder characterized by involuntary muscle spasms that twist the body into painful and disabling postures. The foundation promotes research on the causes of dystonia and sponsors chapters and support groups for people with dystonia and their families. Services to consumers include referrals, publications and reference information. Publications include a newsletter, a quarterly magazine, and pamphlets and age-specific guide books for dystonia families. Audiovisual materials include documentaries, public service announcements on dystonia and a new children's video, I Am Not Dystonia. A catalog is available. Some materials are available in Spanish and French. The foundation sponsors conferences and training seminars.

Keywords: Dystonia, Medical research, Support groups, Information services, Neuromuscular diseases

Early Childhood Learning and Knowledge Center (ECLKC)

Annotation: The Early Childhood Learning and Knowledge Center (ECLKC), which is maintained by the U.S. Office of Head Start, is designed to help meet the needs of the early childhood community, including program providers, administrators, and families. The Web site provides information that supports parents' involvement in their children's lives; resources and information related to services for young children from birth to age five; policy information and program management tools; educational support materials; and directories containing contact and additional resource information. The Web site can be viewed in both English and Spanish.

Keywords: Child development services, Early Head Start, Early childhood education, Head Start, Resource centers

Early Childhood Research Institute on Culturally and Linguistically Appropriate Services (CLAS)

Annotation: The Early Childhood Research Institute on Culturally and Linguistically Appropriate Services (CLAS) was a federally-funded collaborative effort of the University of Illinois at Urbana-Champaign, the Council for Exceptional Children, the University of Wisconsin-Milwaukee, the ERIC Clearinghouse on Elementary and Early Childhood Education, and the ERIC Clearinghouse on Disabilities and Gifted Education. The CLAS Institute was funded by the Office of Special Education Programs of the U.S. Department of Education. During the life of the project, the CLAS Institute identified, collected, reviewed, abstracted, and described materials and practices developed for children and families from culturally diverse backgrounds and professionals who work with them. Although the funded project has ended, an archive of CLAS materials continues to be available at the CLAS Web site, maintained by the Early Childhood and Parenting Collaborative (ECAP) at the University of Illinois at Urbana-Champaign. Parts of the Web site are available in Spanish. Some materials are available in Spanish and other languages.

Keywords: Cultural competence, Early childhood education, Linguistic competence, Spanish language materials

Easy-to-Read Health and Medical Information

Educational Opportunities for Children and Families

Annotation: Educational Opportunities for Children & Families (EOCF) has been serving the southwest community of Washington state since 1967, when it was formed as a Community Action Agency to fight the War on Poverty. EOCF provides services to more than 2,000 low-income children and families in four southwest Washington counties through programs as Head Start, Early Head Start and Early Childhood Education and Assistance Program (ECEAP). EOCF offers a wide range of critical services to low-income children and families, including early childhood education; comprehensive health, mental health, nutrition, and disabilities; physical and developmental assessments; and support to families through case management, training and parent education. Translators are available for Russian, Spanish, and Vietnamese.

Keywords: Community health services, Child health services, Early childhood development, Family support services, Head Start, Low income groups, Screening, Washington

Emergency Medical Services for Children (EMSC) National Resource Center (EMSCNRC)

Annotation: The Emergency Medical Services for Children (EMSC) National Resource Center (EMSCNRC), funded by the U.S. Maternal and Child Health Bureau, provides technical assistance to Emergency Medical Services for Children (EMSC) projects. Areas of assistance include communication strategies, cooperation with advisory boards and task forces, conversion of grant proposal objectives into action plans, identification of potential collaborators among relevant national organizations, and networking to promote awareness and advocacy of EMSC issues, injury prevention strategies, programs for children with special health care needs, public awareness strategies, and issues associated with various health insurance models. The center monitors and researches relevant federal and state legislation and disseminates information on its status through EMS Systems, EMS provider education, media outreach, its website and quarterly newsletter, EMS News. The organization also sponsors conferences and offers some materials in Spanish.

Keywords: Injury prevention, Advocacy, Data, Emergencies, Emergency medical services, Emergency medical services for children, Legislation, National MCH resource center, Program evaluation, Publications, Resource centers, Resources for professionals, Rural health, Spanish language materials, Technical assistance, Training

Emergency Nurses Association (ENA)

Annotation: The Emergency Nurses Association (ENA) is a national membership association committed to excellence in emergency care. ENA works to define standards of excellence for emergency nurses, to promote the specialty of emergency nursing, to identify and address emergency care issues, and to serve as a resource for emergency nursing practice, professionalism, education, research, and consultation. The association also sponsors conferences, offers continuing education activities and collaborates with other health-related organizations in efforts to improve emergency care. Publications include the bimonthly Journal of Emergency Nursing and a newsletter, Etcetera., and a catalog. Some materials are available in Spanish.

Keywords: Emergency nurses, Emergency medical services, Health promotion, Nurses, Professional education

EngenderHealth ( )

Annotation: EngenderHealth is an international reproductive health organization working to improve the quality of health care in the world's poorest communities. EngenderHealth empowers people to make informed choices about contraception, trains health professionals to make motherhood safer, promotes gender equity, enhances the quality of HIV and AIDS services, and advocates for policy change. Publications and resources include training curricula, clinical guidelines, instructional videos, brochures, working papers, articles, and online information. The Maternal Health Task Force contributes to shaping collective efforts to improve maternal health worldwide.

Keywords: Contraception, Reproductive health, Sterilization, Vasectomy

Entertainment Industries Council (EIC)

Annotation: The Entertainment Industries Council, Inc. (EIC) is a professional and corporate council addressing substance abuse and other health/safety issues, particularly as depicted in entertainment. Most of its efforts are focused on outreach and education for the entertainment industry's creative community. Services to consumers include referrals, publications, and reference information. Some materials are available in Spanish. EIC publishes a newsletter, produces course oriented marketing campaigns and specialized video presentations. EIC offers a resource for the creative community at their website (eiconline.org). The Council also sponsors depiction briefing sessions for entertainment creatives; and the PRISM Awards (prismawards.com), which recognizes entertainment productions that accurately depict drug, alcohol, and tobacco use and addiction.

Keywords: Substance abuse

Epilepsy Foundation (EF)

Annotation: The Epilepsy Foundation (EF) formerly known as Epilepsy Foundation of America (EFA) is a national organization that works for people affected by seizures through research, education, advocacy, and service. It supports a broad range of programs of information and education, advocacy, research, and service delivery for people with epilepsy, families, professionals, and the general public, including a national toll-free information and referral service (800-332-1000) and a network of local affiliates. The Foundation's National Epilepsy Library identifies, collects, and disseminates information on current research findings, program practices, and other developments. Publications include a magazine, EpilepsyUSA, published 6 times a year, available through subscription. A catalog describing pamphlets, books, videos and other information materials, some of them in Spanish, is available free of charge upon request.

Keywords: Epilepsy, Research, Education, , Seizure disorders

ERIC Clearinghouse on Elementary and Early Childhood Education

ERIC Clearinghouse on Teaching and Teacher Education

ERIC Clearinghouse on Urban Education

ETR Associates (ETR)

Annotation: ETR Associates is a private, nonprofit health education organization, and one of the largest publishers of health education materials in the country. It develops and distributes maternal and child health pamphlets, booklets, videos, and charts, including more than 46 pamphlets on pregnancy and childbirth. Other topics include family life education, abstinence, birth control, reproductive health, sexual responsibility, self-esteem, drug use, and sexually transmitted disease. Publications include two baby care booklets in both English and Spanish; the Have a Healthy Baby bilingual pamphlet series,which is an innovative bilingual approach to prenatal education, with English on one side and Spanish on the reverse; a pamphlet on fetal alcohol syndrome; a series of Kid Care pamphlets for parents and caregivers of children ages 2 to 5; and illustrated childbirth charts and displays. A publication catalog is available.

Keywords: Adolescents, Reproductive health, Sexually transmitted diseases

Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)

Annotation: The Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) -- renamed by Congress in 2008 in honor of the Institute's founder -- supports and conducts research on topics related to the health of children, adults, families, and populations. The mission of the NICHD is to ensure that every person is born healthy and wanted; that women suffer no harmful effects from reproductive processes; that all children have the chance to achieve their full potential for healthy and productive lives, free from disease or disability; and to ensure the health, productivity, independence, and well-being of all people through optimal rehabilitation. Areas of emphasis include: events that happen prior to and throughout pregnancy and childhood, including infertility, pre-term birth, birth defects, developmental disabilities, and human learning and behavior; human growth and development across the lifespan, including nutrition, developmental biology, and congenital diseases; reproductive health and education about reproductive practices, including disorders affecting fertility and infertility, contraception, and sexually transmitted diseases/HIV/AIDS; and medical rehabilitation interventions for those affected by disabilities, including technology and assistive-device development, intervention evaluation, and health promotion and prevention of disabilities. The Center for Research for Mothers and Children, the Center for Population Research, the National Center for Medical Rehabilitation Research, the Division of Epidemiology, Statistics, and Prevention Research, and the Division of Intramural Research comprise the NICHD. The Institute offers a wide range of materials for various audiences, from researchers to parents; many publications are available in Spanish.

Keywords: Adolescent health, Child health, Congenital abnormalities, Infant health, Infant mortality, Maternal health, Medical research, Mental retardation, National Institutes of Health, Nutrition, Population dynamics, Publications, Reproductive health, Spanish language materials, Training

Eunice Kennedy Shriver National Institute of Child Health and Human Development, Information Resource Center (NICHD IRC)

Annotation: The National Institute of Child Health and Human Development (NICHD) Information Resource Center provides up-to-date, research-based information about heath issues for children, adults, families, and communities. The center offers a toll-free helpline staffed by trained information specialists. Information requests can also be submitted online via the center's website. The website also provides access to articles and publications and print materials.

Keywords: Child health, Clearinghouses, Research

Fairview Press

Annotation: Fairview Press is a publisher of maternal health materials for consumers/patient education. Sample publications include The Dad Book, The Expectant Family, The New Family, and The Nursing Mother's Herbal. A publications catalog is available. Some materials are available in Spanish.

FaithTrust Institute (CPSDV)

Annotation: FaithTrust Institute, formerly the Center for the Prevention of Sexual and Domestic Violence, is an educational resource that works primarily with religious communities to address issues of sexual abuse and domestic violence. The Institute's mission is to engage religious leaders in the task of ending sexual and domestic violence by preparing them to respond effectively and compassionately to victims, offenders, and their families. The services offered by the Institute include: organizing training workshops and seminars for religious and secular communities and organizations; producing high quality education video and written resources; and providing consultation to professionals seeking advice on specific cases of sexual abuse or domestic violence. The Institute publishes a quarterly newsletter, Working Together, and a new journal on religion and abuse. Limited materials are available in Spanish. The Institute also provides a national clearinghouse on religion and abuse that includes books, periodicals, videos and an extensive referral system.

Keywords: Domestic violence, Injury prevention, Sexual abuse, Training, Violence prevention

Families Anonymous (FA)

Annotation: Families Anonymous (FA) serves parents, concerned relatives, and friends of loved ones who abuse drugs and/or alcohol and have related behavior problems. Services to consumers include referrals to support groups, inquiry responses, publications, and reference information. FA publishes a newsletter and sponsors conferences and workshops. Some materials are available in Spanish and other languages can be made available through the organization's international groups.

Keywords: Families, Alcohol abuse, Bahavior problems, Drug abuse, Information services, Self help clearing houses, Substance abuse

Families of Spinal Muscular Atrophy (FSMA)

Annotation: Established in 1984, Families of Spinal Muscular Atrophy (FSMA) is a national organization that funds for research and promotes public awareness of Werdnig-Hoffmann disease, Kugelberg-Welander disease, and Aran-Duchenne adult progressive spinal muscular atrophy (SMA). Services include a referral system (in conjunction with the national SMA registry at Indiana University), a parent network, an equipment pool, and a resource library of print and audiovisual materials. Publications include a quarterly newsletter. The organization provides materials in Spanish and French. FSMA also sponsors conferences.

Keywords: Aran-Duchenne type (Adult progressive spinal muscular atrophy), Benign congenital hypotonia, Kugelberg-Welander disease, Neuromuscular diseases, Patient identification, Research, Education, Spinal muscular atrophy, Werdnig-Hoffmann disease

Family Center on Technology and Disability (FCTD )

Annotation: The Family Center on Technology and Disability (FCTD) is a resource designed to support organizations and programs that work with families of children and youth with disabilities. The Center offers a range of information and services on the subject of assistive and instructional technologies. The website provides access to fact sheets, presentations, monthly newsletters, online discussion and summer institute transcripts, a database of more than 3,500 organizations, a resource review database, and more. Through the site users can also access FCTD Family Information Guides as well as resources in Spanish.

Keywords: Children with special health care needs, Assistive devices, Disabilities

Family Network on Disabilities of Florida (FND)

Annotation: Family Network on Disabilities (FDN) is a national network of individuals of all ages who may be at-risk, have disabilities, or have special needs, together with their families, professionals, and concerned citizens. Their mission is to provide family-driven support, education, information, and advocacy. FDN provides online learning tools (including archived webinars), a digital library, and resources at the national library and Florida state level.

Keywords: , Special education, Advocacy, Children with special health care needs, Disabilities, Education, Florida, Information services, Parent education, Parenting, Support groups

Family Resource Center on Disabilities (FRCD)

Family Support Network of North Carolina (FSN-NC)

Annotation: The mission of the Family Support Network of North Carolina (FSN-NC) is to enhance the lives of North Carolina's children who have special needs or are at risk by providing support and information to families, by promoting family support, and by encouraging collaboration among families and service providers in the design and delivery of services. The Central Directory of Resources (CDR) provides printed information about disabilities and disability-related issues, and referrals to service agencies, support groups and advocacy organizations at the local, state and national level. Printed information is available to callers in North Carolina, and some materials are available in Spanish. Local Family Support Network programs provide a variety of community-based services, including peer support, workshops, NICU programs, sibling activities, and outreach to foster families with children with special needs throughout North Carolina. Family Support Network of North Carolina publishes a summer camp directory for children with special health needs in North Carolina.

Keywords: Family resource centers, Family support services, Medically fragile children, North Carolina, Stress management

Family Violence and Sexual Assault Institute, California Branch (FVSAI)

Annotation: The Family Violence and Sexual Assault Institute (FVSAI), formerly the Family Violence Research and Treatment Program Clearinghouse, is an independent nonprofit agency established in 1984. The institute maintains a library of books, videotapes, audiotapes, and unpublished papers concerning all aspects of family violence and sexual assault. It publishes the Family Violence and Sexual Assault Bulletin. Other services to consumers include referrals and reference information. The Institute sponsors conferences, training seminars and workshops. It maintains a book club, provides book and media reviews, conducts programs evaluation and other research. Some materials are available in Spanish.

Keywords: Child abuse, Child neglect, Family violence, Sexual abuse

Family Voices

Annotation: Family Voices aims to achieve family-centered care for children and adolescents with special health care needs. Family Voices provides families with tools to make informed decisions, advocate for improved public and private policies, build partnerships with professionals, and serve as trusted health care resources. Family Voices provides technical assistance, training, and connections among Family-to-Family Health Information Centers and partnering organizations. The website features health information and resources including publications, news, projects, events, and advocacy efforts.

Keywords: Parent groups, Advocacy, Children with special health care needs, Community programs, Consumer education, Family resource centers, Health insurance, Health policy, Legislation, Medicaid, Public awareness campaigns, Publications, Spanish language materials, State children's health insurance program, State programs

Fanconi Anemia Research Fund/Support Group (FA Research Fund)

Annotation: The Fanconi Anemia Research Fund Inc. raises funds for research to find effective treatments and a cure for Fanconi anemia and provides education and support services to affected families and their physicians worldwide. Publications include the biannual FA Family Newsletter and Science Letter, and a handbook for families and their physicians on Fanconi anemia. The organization also sponsors conferences. Some materials are available in Spanish and a telepone interpreters service is immediately available. F.A. Research Fund also maintains a restricted listserv (for those with Fanconi anemia or who are parents of a Fanconi anemia child).

Keywords: , Fanconis anemia, Parent groups

Farmworker Health Services, Inc. (FHSI)

Annotation: Funded by the Bureau of Primary Health Care, Farmworker Health Services seeks to empower migrant and seasonal farm workers and their families to take ownership of their lives through its provision of health care, its outreach social services, and its promotion of preventive health care. The project places health professionals and allied health personnel at over 30 Migrant and Community Health Centers (M/CHC's) along the east coast during times of peak agricultural activity. It also strives to raise the consciousness of business, health care, social service, educational, and religious entities about the plight of the farm workers and to solicit their support. Offers referrals to consumers and sponsors outreach seminars. Materials are available in Spanish and Creole.

Keywords: Farm workers, Migrant health, Migrants, Outreach, Social services

Fathers' Network

Annotation: The National Fathers Network advocates for fathers of children with special health needs through support and mentoring programs, conferences and training seminars, a newsletter, a Web page, development of curriculum, and ongoing work with professionals to enhance service delivery for all family members. Services to consumers include referrals, publications, and reference information. Some materials are available in Spanish.

Keywords: Children with special health care needs, Consumer education, Family centered services, Fathers, Information sources, Parenting, Public awareness materials, Publications, Referrals, Spanish language materials, Special education

FDI World Dental Federation

Annotation: The FDI World Dental Federation is a federation of national dental associations that works to bring together the world of dentistry, to represent the dental profession of the world, and to stimulate and facilitate the exchange of information across all borders with the aim of optimal oral health for all people. It issues policy statements, offers continuing education, publishes the International Dental Journal and other publications, and holds the World Dental Parliament once a year. The web site is available in English, German, Spanish, French, Japanese, Portuguese, and Russian with many of their publications offered in English and non-English languages.

Keywords: Advocacy, International organizations, Oral health, Statistics

Federal Trade Commission (FTC)

Annotation: The Federal Trade Commission (FTC) writes regulations that protect consumers from unfair or deceptive business practices in areas such as truth in advertising and product reliability, responds to inquiries from consumers, and produces publications. Some materials are available in Spanish.

Keywords: Consumer protection, Regulations

Federation for Children with Special Needs (FCSN)

FHI

Annotation: FHI is an international public health organization that works to improve lives worldwide through research, education, and services in family health. Working with research institutions, community groups, government and nongovernment organizations, and the private sector, FHI aims to prevent the spread of HIV / AIDS and sexually transmitted infections and care for those affected by them; improve people's access to quality reproductive health services, especially safe, effective, and affordable family planning methods; and improve the health of women and children, especially those who live in resource-constrained settings. More than 3,000 materials are available as full text on FHI's Web site, including books, reports, case studies, guides and tools, research briefs, periodicals, and training tools. The Web pages and some of the publications are available in Spanish and French. FHI was previously called Family Health International.

Keywords: Family health, Spanish language materials, Child health, Consumer education materials, Developing countries, Disease prevention, Electronic publications, Health promotion, International health, Non English language materials, Public health, Reproductive health, Women's health

First 5 Shasta, Shasta Children and Families First Commission

Annotation: The Shasta Children and Families First Commission was formed in March 1999 in response to the California passage of the Children and Families Act, Proposition 10. This initiative aims to promote, support and improve the development of all children from the prenatal period to five years of age in California so children are healthy and ready for school. This organization covers Shasta County.

Keywords: California, Chid development, Health promotion, Infants, Parent support, Young children

Foundation for Ichthyosis and Related Skin Types (FIRST)

Annotation: The Foundation for Ichthyosis and Related Skin Types (FIRST) is a national non-profit organization dedicated to helping individuals and familes affected by ichthyosis. Ichthyosis is a rare genetic skin disease characterized by very dry, cracked, scaling, and thickened skin. The Foundation provides support, information, education, and advocacy for its members. The Foundation supports research into causes, treatment, and cures for ichthyosis. Informational brochures and booklets are available in English and Spanish. The Foundation also publishes a newsletter and sponsors conferences.

Keywords: Ichthyosis, Chanarin-Dorfman Syndrome, Chondrodysplasia Punctata Syndromes, Colloidion baby, Darier disease, Epidermal Nevus syndrome, Epidermolytic Hyperkeratosis, Erythrokeratodermas, Keratitis-Ichthyosis-Deafness (KID) syndrome, Multiple Sulfatase Deficiency, Palmoplantar Keratoderma syndromes, Peeling skin syndrome, Pityriasis Rubra Pilaris, Refsum disease, Rud syndrome, Skin diseases, Tay Sachs disease

Futures Without Violence (FWV)

Annotation: Futures Without Violence (formerly the Family Violence Prevention Fund) works to prevent and end violence against women and children around the world through education, advocacy, and leadership programs. Focus areas include health, child wellbeing, leadership training, and policy. The website provides information and resources for women and girls, men and boys, tweens and teens, judges, and employers and employees. Several resources are available in Spanish and other languages.

Keywords: Advocacy, Battered women, Domestic violence, Public policy, Violence prevention

Genetic Alliance

Annotation: The Genetic Alliance works to build the capacity of advocacy groups and leverage the voices of the millions of individuals living with genetic conditions. The Alliance provides a forum for the discussion of cross-disability similarities and the identification of available resources; fosters a partnership among consumers and professionals to enhance education and service for and represent the needs of individuals affected by genetic disorders; and supports networking efforts of members with government agencies, professional groups, service providers, and organizations. The Alliance also provides technical assistance to genetic support groups and disseminates information to the public on available resources and referrals. Some materials are available in Spanish. The Alliance also hosts an online roundtable for genetics and health professionals; creates listservs for organizations and groups; publishes bulletins plus a quarterly e-newsletter; hosts monthly webinar series; offers the downloadable Guide to Understanding Genetics; hosts two Wiki's (WikiGenetics and WikiAdvocacy); and maintains Disease InfoSearch -- a continuously evolving online search tool and database of advocacy organizations and resources for genetic conditions.The Alliance was founded in 1986 as the Alliance of Genetic Support Groups.

Keywords: Genetic disorders, Genetic services, Genetics, Genetics education, Online databases, Support groups

Genetic and Rare Diseases Information Center (GARD)

Annotation: The Genetic and Rare Diseases Information Center (GARD) -- established by the National Human Genome Research Institute (NHGRI) and the National Institutes of Health Office of Rare Diseases (ORD) -- provides free access to reliable information about genetic and rare disorders (including specific conditions and illnesses) in both English and Spanish and responds to inquiries from patients and families, health professionals, and other interested parties.

Keywords: Genetic disorders, Genetics, Information services, Rare diseases, Special health needs

Genetics Network of the New York State, Puerto Rico and the Virgin Islands (GENES)

Annotation: The GENES represents providers and consumers of genetics services in New York State, Puerto Rico, and the Virgin Islands. The network promotes the availability and development of quality genetics services within the region and encourages public and private support for research and education in the field of clinical genetics. Services to consumers include referrals, publications, and reference information. Materials are available in Spanish, French, Asian, and other languages. GENES publishes a newsletter, directory and sponsors conferences.

Keywords: Regional genetics networks, Genetic counseling, Genetic services, Genetics, Health education, Medical research, New York, Spanish language materials, Virgin islands

Georgetown University, Institute for Reproductive Health (IRH)

Annotation: The Institute for Reproductive Health, formerly the Institute for International Studies in Natural Family Planning, located at Georgetown University, conducts research and provides technical assistance on improving access to natural methods and expanding family planning options for women and couples worldwide. The Institute's work focuses on developing simple new natural methods, providing technical assistance to strengthen service provision, developing appropriate training programs and teaching aids, conducting clinical and operations research, and collaborating with international organizations. The Institute has developed the "Standard Days Method" (SDM) - a natural method of family planning developed for women with menstrual cycles between 26 and 32 days (described in the results of a clinical trial published in the May 2003 issue of the journal Contraception). The Institute provides referrals and maintains an online resource library. Some materials are available in French and Spanish.

Keywords: Breastfeeding, Family planning, Family planning, Family planning education, Information services, Medical research, Natural family planning, Resource centers

Girl Scouts of the USA

Annotation: Girl Scouts of the USA provides recreational and developmental activities for girls ages 5-17. The Girl Scout program focuses on encouraging girls to develop to their full potential; relate to others with increasing understanding, skill, and respect; develop a meaningful set of values to guide their actions and to provide for sound decision-making; and contribute to the improvement of society. Through the Girl Scout Research Institute, the organization conducts studies, releases information, and provides resources for the well-being and safety of girls. Information is provided in English and Spanish.

Keywords: Adolescent development, Adolescent females, Associations, Child development, Female children, Recreation, Spanish language materials

Glaucoma Research Foundation (GRF)

Annotation: The Glaucoma Research Foundation (GRF) is a national, nonprofit organization dedicated to protecting the sight and independence of individuals with glaucoma through research and education, with the ultimate goal of finding a cure. The GRF is a leading non-government funder of glaucoma basic and clinical research in the United States. The foundation offers a wide variety of services, including referrals, reference information, education, and support for people living with glaucoma. GRF sponsors conferences and publishes a newsletter. Child health resources include a telephone parent support network and educational booklets. A limited number of resources are available in Spanish.

Keywords: Glaucoma

Gluten Intolerance Group® (GIG®)

Annotation: The Gluten Intolerance Group® (GIG®) offers assistance, counseling, and referrals to people with celiac sprue and/or dermatitis herpetiformis, their families, consumers, and health care professionals. Publications include diet instruction, gluten-free bread recipes, an introductory brochure, a resource guide, research reports, and the quarterly GIG® Newsletter. Materials are available in Braille and Spanish. A catalog of audiovisual materials is available. GIG® also sponsors conferences, training seminars, and workshops. GIG® was formerly called the Gluten Intolerance Group of North America.

Keywords: Celiac disease, Dermatitis herpetiformis, Gluten intolerance, Self help clearinghouses

Goodwill Industries International

Annotation: Goodwill Industries International, Inc. provides job skill training and job placement assistance to disabled and disadvantaged individuals. Services to consumers include referrals, reference information and publications. Some materials are available in English, Spanish, and other languages. Goodwill publishes newsletters and magazines. The organization also sponsors conferences and training seminars.

Keywords: Disabilities, Employment

Great Kids Inc.

Annotation: Great Kids Inc. is a nonprofit international training and consulting organization dedicated to developing early childhood and home based programs for families with children 0-5 years. It provides training materials, support services, and curricula for child care providers and program staff (including home visitors). Materials are available in both English and Spanish.

Keywords: Curricula, Early childhood, Home visiting, International programs, Parenting education, Pregnancy, Professional training, Spanish language materials, Young children

Grief Recovery Institute Educational Foundation (GRIEF)

Annotation: The Grief Recovery Institute provides services to consumers that include referrals and publications. GRIEF publishes a catalog, sponsors training seminars and workshops, and provides a list service which is available to both professionals and consumers. Some materials are available in Spanish.

Keywords: Perinatal bereavement, Grief, Listservs, Pregnancy loss

Group B Strep Association (GBSA)

Annotation: The Group B Strep Association is a nonprofit organization that educates the public about Group B strep (GBS) infections during pregnancy and promotes routine screening of mothers. The association offers medical contacts and parent support networking for parents of GBS handicapped babies. The association publishes an educational pamphlet and two to three newsletters per year. Services to consumers include referrals, publications and reference information. Materials are available in Spanish.

Keywords: High risk pregnancy, Infections, Parent groups, Prevention, Strep infections

Guillain-Barré Syndrome Foundation International

Annotation: Established in 1981, the Guillain-Barré Syndrome Foundation International helps people to deal with Guillain-Barré syndrome (GBS) and its effects. The foundation educates the public and medical communities, supports medical research, and sponsors symposia. Publications include newsletters and educational booklets such as GBS, An Overview for the Layperson. The foundation has more than 130 chapters in the United States, Canada, Europe, Australia, and South Africa. Materials are available in Spanish, French, Dutch, and German.

Keywords: Acute idiopathic polyneuritis, Guillain Barre syndrome, Landry's ascending paralysis, Nervous system diseases

Guttmacher Institute ( )

Annotation: The Guttmacher Institute is a nonprofit corporation for research, policy analysis, and public education in the field of reproductive health. Services to consumers include publications and reference information. The institute publishes Perspectives on Sexual and Reproductive Health, International Family Planning Perspectives, The Guttmacher Policy Review, fact sheets, briefing papers, and special reports. A publications catalog is available. Some materials are available in Spanish, French, Asian, and other languages. The institute also has a list service, accessible through its Web site. The International Data Center allows users to build, download, and print custom tables, graphs, and maps using information from countries and regions.

Keywords: Pregnancy, Adolescent pregnancy, Data, Family planning, Foreign language materials, Information services, Listservs, Medical research, Online systems, Policy analysis, Prenatal care, Public education, Publications, Reproductive health, Sexuality education

Hardin MD

Harvard Law School, Program on Negotiation (PON)

Annotation: The Program on Negotiation at Harvard Law School is an applied research center committed to improving the theory and practice of negotiation and conflict resolution. The program strives to change the way people, organizations, and nations resolve their disputes. Activities include research and theory building; postgraduate education and training; development of teaching materials; and publication of a newsletter, a quarterly journal, books, and papers. A variety of materials are available from the Program Clearinghouse. Spanish and French materials may be obtained.

Keywords: Conflict resolution, Negotiation, Research

Health and Literacy Special Collection

Annotation: The Health and Literacy Special Collection supports the integration of health and literacy education on adult basic education programs and health literacy awareness in health care settings. The collection also strives to provide direct access to easy-to-read health information , and health resources in languages other than English. The Web site includes links to online listings of health information in 27 different languages: Amharic, Arabic, Bosnian, Cambodian/Khmer, Croatian, Chinese, Farsi/Persian, Filipino, French, Haitian Creole, Hindi, Hmong, Italian, Khmer/Cambodian, Korean, Laotian, Nuer, Portuguese, Punjabi, Russian, Samoan, Somali, Spanish, Tagalog, Thai, Tongan, and Vietnamese.

Keywords: Non English language materials, Adult education, Health education, Health literacy, Literacy education

Health Hotlines

Annotation: Health Hotlines is a compilation of organizations with toll-free telephone numbers. It is derived from DIRLINE, the National Library of Medicine's Directory of Information Resources Online. This database contains descriptions of over 14,000 biomedical information resources, including organizations, databases, research resources, etc. Health Hotlines also lists a variety of groups disseminating information on a number of specific diseases and disorders. Organizations fall into many categories including Federal, State, and local government agencies, information and referral centers, professional societies, support groups and voluntary associations, and providers of information in Spanish.

Keywords: Hotlines, Emergencies, Information sources, National Library of Medicine

Health Information Translations

Annotation: This Web site provides health information in these languages: American Sign Language, Arabic, Bosnian, Chinese Simplified, Chinese Traditional, English, French, Hindi, Japanese, Korean, Marshallese, Portuguese Brazilian, Russian, Somali, Spanish, Tagalog, Ukrainian, and Vietnamese. Topics include disaster preparedness, diagnostic tests, diseases and conditions, exercise and rehabilitation, food and diet, general information, health and wellness, home care, pain and comfort, pediatrics, pregnancy and baby care, safety, stress and coping, and surgeries and treatments. It has been developed by nine Ohio-based and national health organizations.

Keywords: Asian language materials, Consumer health information, Non-English language materials, Spanish language materials

HealthCare.gov

Annotation: Healthcare.gov provides information for individuals, families, and small businesses on health coverage and the health insurance marketplace under the Affordable Care Act. Topics covered include the basics of health insurance; coverage for young adults; coverage for employees; rights, protections, and the law; health care options; prevention; and health insurance cost reduction. The website is available in English or Spanish (see https://www.cuidadodesalud.gov/es).

Keywords: Consumer education materials, Health care access, Health care delivery, Health care reform, Non English language materials, Spanish language materials, Spanish language website

healthfinder.gov

Annotation: Sponsored by the U.S. Department of Health and Human Services, healthfinder® is an on-line database of health information and health-related organizations that can provide health information. They include Federal and State agencies, voluntary associations, self-help and support groups, trade associations, and professional societies. The website can be viewed in English and Spanish.

Keywords: Consumer health, Clearinghouses, Federal agencies, Human services, Information sources, Internet, Online databases, Publications, Spanish language materials, Spanish language website, Support groups

HealthReach

Annotation: HealthReach (formerly Refugee Health Information Network) is a collaborative effort between the National Library of Medicine, Division of Specialized Information Services and health professionals. Librarians, health professionals, and refugee health professionals throughout the country and several consultants assist with the evaluation, review, and promotion of the website by helping to identify and provide health materials in many languages.

Keywords: Asian language materials, Consumer education materials, Health, Non English language materials, Refugees, Spanish language materials

Healthy Roads Media

Annotation: The Healthy Roads Media Web site contains free audio, written, and multimedia health education materials in a number of languages, including Arabic, Bosnian, Hmong, Khmer, Russian, Somali,Spanish, and Vietnamese. These materials are being developed in an effort to study the value of various formats in providing health information for diverse populations. Topics covered include domestic violence, asthma, cancer, dental health, diabetes, diseases and conditions, exercise, health services, heart health, immunization, nutrition, smoking, tuberculosis, and women's health. Partners in this project include Family HealthCare Center, Healthway Software, Fargo Cass Public Health, the Center for New Americans, the North Dakota State Data Center, and the North Dakota State University Library.

Keywords: Asian language materials, Audiovisual materials, Consumer education materials, Non English language materials, Spanish language materials

Healthy Teen Network

Annotation: Healthy Teen Network, formerly the National Organization on Adolescent Pregnancy, Parenting, and Prevention, is a national resource network of individuals and organizations focused on solving problems related to adolescent pregnancy prevention, sexuality, pregnancy, and parenting. The organization serves as a resource sharing and communication network to inform service providers and others about available resources and successful program models. Some materials are available in Spanish. It publishes a quarterly newsletter and also prepares alerts on funding opportunities and legislation. The organization also sponsors conferences. In 2010 it launched an evidence-based resource center.

Keywords: Adolescent pregnancy, Adolescent parents, Community programs, Parenting, Prevention programs, School based clinics, Self help clearinghouses, Sexuality

HealthyWomen ( HW)

Annotation: HealthyWomen (HW) -- formerly known as the National Women's Health Resource Center -- is a not-for-profit, national clearinghouse for women's health information, an advocate for women's health issues, and a source of professional support and education programs. The website includes health news updates, health tips, resources ,and ind epth coverage of hundreds of health topics. HealthyWomen also produces print publications in both English and Spanish. The Women’s Health Updates, Fast Facts for Your Health and specialty brochures offer information and guidance on topics ranging from cervical cancer to skin health to flu. In addition, HW publishes a monthly, lifestyle-focused e-newsletter and updates on new health programs and resources. The National Women’s Health Report provides an additional online, interactive resource for women that takes an in-depth look at specific health issues.

Keywords: Consumer education materials, Menopause, Spanish language materials, Women's health

Helen A. Keller Institute for Human disAbilities (KIHd)

Annotation: The Helen A. Kellar Institute for Human disAbilities, a part of the College of Education and Human Development at George Mason University, is an interdisciplinary campus-based organization that focuses on externally-funded activities related to improving the lives and productivity of persons with disabilities. The institute engages in projects including: policy analysis for local, state, and national needs; research and development; model program development and implementation, training (graduate and undergraduate) and technical assistance to professionals and parents. Major areas of emphasis include assistive and instructional technology, distance education, transition and post-secondary education, and severe disabilities. Services to consumers include referrals, publications and reference information. Some materials are available in Spanish. The center also publishes a newsletter and sponsors conferences, training seminars, and workshops.

Keywords: Disabilities, Policy analysis, Research, Technical assistance

Hemophilia and AIDS/HIV Network for the Dissemination of Information (HANDI)

Annotation: The Hemophilia and AIDS/HIV Network for the Dissemination of Information (HANDI) is a resource center of the National Hemophilia Foundation. Handi maintains a comprehensive resource collection of educational materials on hemophilia and AIDS/HIV. Areas of emphasis are HIV risk reduction (including outreach and strategies for promoting and maintaining behavioral change in people at risk), living with hemophilia and AIDS/HIV, treatments for HIV infection, and finance and reimbursement issues. Publications include HANDI Resource Update, HIV Treatment Information Exchange, and various bibliographies, resource packets, and fact sheets. Publications are available in Spanish.

Keywords: Hemophilia, AIDS, Educational materials, HIV, HIV infected patients, Information dessimination, Outreach

Hereditary Hemorrhagic Telangiectasia Foundation International (HHT)

Annotation: The Hereditary Hemorrhagic Telangiectasia Foundation International (HHT), founded in 1991, fosters exchange of information on this rare genetic blood vessel disorder (also known as Osler-Weber-Rendu syndrome) among patients, physicians, researchers, genetic counselors, organizations, and the public. The foundation raises funds for genetic and clinical research, maintains a registry of affected families, provides individualized information, and supports scholarships, research grants, and annual conferences. Publications include a newsletter and several brochures. Materials are available in Spanish, French, Italian, Dutch, German, and other languages. Services to consumers include inquiry responses, referrals, publications, and reference information.

Keywords: Hereditary hemorrhagic telangiectasia, Cardiovascular diseases, Family support services, Fundraising, Genetic disorders, Hereditary diseases, Information services, Information services, Medical research, Patient identification

Hermansky-Pudlak Syndrome Network

Annotation: The Hermansky-Pudlak Syndrome Network Inc. is a volunteer, self-help support group for persons and families dealing with Hermansky-Pudlak Syndrome. The Network is involved in connecting individuals, families, and doctors for the purpose of education and research. It publishes a newsletter and sponsors annual conferences. Some materials are provided in Spanish and French .

Keywords: Albinism, Hermansky-Pudlak Syndrome

Hesperian

Annotation: Hesperian is a non-profit publisher of books and educational materials that help people take the lead in their own health care and organize to improve health conditions in their communities. Herperian collaborates with health workers, grassroots groups, and community organizations around the world to develop books that are practical, accessible, and appropriate across varied conditions and cultures. The books are written to be understood by people with little formal education. The foundation's "open-copyright" policy encourages organizations to reproduce, translate, and adapt the materials for distribution on a not-for-profit basis. All materials are published in both English and Spanish, and the foundation's Translations Fund give small grants to help organizations translate Hesperian's books and newsletters into other languages. Their website has numerous links to useful organizations in its Action for Health section.

Keywords: International organizations, Public health, Community programs, Cultural sensitivity, Foundations, Spanish language materials, Underserved communities

Histiocytosis Association of America

Annotation: The Histiocytosis Association of America provides support to people with any of the histiocytoses and their families, encourages research into the causes and treatment of and serves as an information resource center. The Association offers referrals to consumers, maintains a parent/patient directory, and sponsors regional meetings for patients and leading physicians in the field. Publications include a quarterly newsletter and educational brochures. Some materials are available in Spanish. The association also sponsors conferences.

Keywords: Histiocytosis X, Information services, Medical research, Support groups

HMA Associates

Annotation: HMA Associates provides immunization and other public health messages to major media networks that serve the information needs of the Spanish-speaking public. These culturally relevant public service announcements are also available to local community-based organizations and health departments. Publications are also provided to consumers, and some materials are available in Asian languages, as well as Spanish. HMA Associates also sponsors conferences.

Keywords: Hispanic Americans, Immunization, Minority groups, Public service announcements

Human Growth Foundation (HGF)

Annotation: The Human Growth Foundation (HGF) disseminates information on short stature and its causes, supports medical research on growth disorders, and sponsors educational and parent support activities. Publications include Achondroplasia, Growth Hormone Deficiency, Intrauterine Growth Retardation, Patterns of Growth, Turner's Syndrome,and many more. HGF hosts a list serv and publishes a quarterly newsletter. Patient advocacy information, training, and assistance is also an evolving area of Foundation activity, given increasingly difficulty in obtaining medical insurance coverage for Idiopathic Short Stature with underlying etiologies. These activities take place principally through the HGF Internet support Lists (HGF-PEDS and HGF-ADULTS). Limited resources may be obtained in Spanish. The organization also sponsors Annual conferences.

Keywords: Achondroplasia, Fetal growth retardation, Growth disorders, Growth hormone, Hypopituitarism, Russell-Silver syndrome, Short stature, Turners syndrome

Huntington's Disease Society of America (HDSA)

Annotation: The Huntington's Disease Society of America (HDSA) is an organization of over 30 chapters and affiliates nationwide, plus 17 Centers of Excellence, which fosters research on the treatment and cure of Huntington's disease and provides services to people with Huntington's disease and their families. The society offers fellowship grants and seed money to qualified research scientists, and it supports and coordinates a brain donor program that enlists the help of families in donating tissue essential for research. The society's information and referral services tap a nationwide network of physicians, scientists, social workers, and other professionals. HDSA maintains a listserv, publishes a newsletter, The Marker, three times a year, and provides catalogs of publications and audiovisual materials on all aspects of Huntington's Disease. Spanish-language materials are available.

Keywords: Huntingtons disease, Financial support, Information services, Medical research, Nervous system diseases

Hydrocephalus Association

Hysterectomy Educational Resources and Services (HERS Foundation)

Annotation: Hysterectomy Educational Resources and Services (HERS Foundation) provides information about the alternatives to hysterectomy, the risks of the alternatives, and the adverse effects of the surgery. HERS provides telephone counseling by appointment and referral to gynecologists who specialize in the conditions for which hysterectomy is most frequently recommended. Telephone counseling by appointment is provided in all countries. The HERS Foundation houses a free lending library of books, video tapes, and audio tapes which circulate via mail. Some materials are available in Spanish. A newsletter is published quarterly. HERS also provides copies of medical journal articles; hosts annual conferences; provides referrals to gynecologists; and helps women seeking support by networking on a one-to-one basis in their community. [The HERS Foundation provides information on uterine artery embolization on an additional Web site: www.uterinearteryembolization.org]

Keywords: Hysterectomy, Women's health

Illinois Caucus for Adolescent Health (ICAH)

Annotation: Established in 1977, the Illinois Caucus for Adolescent Health (ICAH) is a statewide membership organization that provides public education, policy advocacy, training, and technical assistance on issues related to the health and well-being of adolescents. Services to consumers include publications, and some materials are available in Spanish. ICAH publishes a newsletter and sponsors conferences, workshops, and training seminars.

Keywords: Adolescent parents, Adolescent pregnancy

Illinois Early Childhood Intervention Clearinghouse

Annotation: The Illinois Early Childhood Intervention Clearinghouse provides resource materials on issues related to young children with special needs and their families. The clearinghouse provides referrals and reference information, operates a statewide lending library, maintains a bibliographic database of more than 33,000 citations, and publishes a catalog and a quarterly newsletter, Early Intervention. Some materials are available in Spanish.

Keywords: Early intervention, Children, Developmental disabilities, Illinois, Self help clearinghouses

Immunization Action Coalition (IAC)

Annotation: The Immunization Action Coalition works to increase immunization rates and prevent disease by creating and distributing educational materials for health professionals and the public that enhance the delivery of safe and effective immunization services. The Coalition publishes periodicals for health professionals (Needle Tips, Vaccinate Adults, and Vaccinate Women), and distributes two electronic newsletters (IAC Express provides weekly information about all vaccines and HEP Express is devoted to hepatitis issues). The coalition also develops print materials about immunization for providers and patients and offers these materials free-of-charge (many in multiple languages). The Coalition develops print materials about immunization for providers and patients and offers these materials free-of-charge, some in up to 33 languages. IAC has four websites. The site for health professionals, www.immunize.org, is a source of practical immunization information featuring a collection of vaccine-preventable disease photos and videos. The website for the public, www.vaccineinformation.org, presents straightforward information about vaccine-preventable diseases and their vaccines. The hepatitis prevention programs website, www.hepprograms.org, serves as a national database for model viral hepatitis prevention programs that address the needs of adult and adolescent populations at risk. The fourth website, www.izcoalitions.org, provides access to an interactive database of local, state, regional, national, and international immunization coalitions.

Keywords: Hepatitis B, Immunization, Non English language materials, Spanish language materials

Incontinentia Pigmenti International Foundation (IPIF)

Annotation: The Incontinentia Pigmenti International Foundation provides referrals and reference information for consumers. Articles are available on the Web site in English, Spanish, French, German, Italian, and Portuguese. The organization also publishes a newsletter.

Keywords: Incontinentia Pigmenti

Indoor Air Quality Information, Office of Radiation and Indoor Air ( )

Annotation: Indoor Air Quality Information, within the Environmental Protection Agency's Office of Radiation and Indoor provides information, resources, and health tools on various aspects of indoor air quality, including asthma, mold and moisture, air toxins, air quality in homes and schools, green guildings, disaster response, and related areas. The Web site also provides news updates. funding announcements, and information on air quality programs. Publications can be ordered by phone or downloaded from the Wed site. Some materials are available in Spanish and Asian languages.

Keywords: Air pollution, Smoke

Institute for Child Health Policy (ICHP)

Annotation: The Institute for Child Health Policy works to improve the health status of infants and children by integrating intellectual and organizational resources of the state university system to assist in the formulation and evaluation of health policies, programs, and systems. A major division of the Institute is the Center for Policy and Program Coordination, funded by the Maternal and Child Health Bureau, U.S. Department of Health and Human Services. The institute sponsors conferences and training seminars and publishes a newsletter. Topics include Children's Medical Services, Florida's Healthy Kids, Florida KidCare, child health financing and reimbursement, and telehealth. Some materials are available in Spanish.

Keywords: Public policies, Child health, Child health services, Children with special health care needs, Conferences, Distance education, Florida, Health care financing, Health insurance, Health policy, Infant health, Managed care, Outreach, Program development, Public awareness campaigns, Publications, Spanish language materials, Training

Institute for Healthcare Advancement (IHA)

Annotation: The Institute for Healthcare Advancement publishes easy to read health materials written at the 3rd to 5th grade level, along with training manuals to help organizations help their clients get the most out of the publications. Publications in the What To Do For Health series are available in English, Spanish, and some in Vietnamese, Korean, and Chinese. The Institute for Healthcare Advancement also publishes a newsletter and sponsors conferences.

Institute for Mental Health Initiatives (IMHI)

Annotation: The Institute for Mental Health Initiatives (IMHI) is a nonprofit foundation that promotes mental health by building bridges between mental health professionals and the public. The Institute works to reduce problems caused by emotional disorders through information, education, and positive role models. Services to consumers include referrals, publications, and reference information. IMHI publishes a newsletter, sponsors conferences and training seminars, and provides some materials in Spanish.

Keywords: Aggression, Anger, Conflict resolution, Counseling, Curricula, Mental health, Parenting, Violence prevention

Insurance Institute for Highway Safety (IIHS)

Annotation: The Insurance Institute for Highway Safety (IIHS) is an independent nonprofit research and communications organization dedicated to reducing highway deaths, injuries, and property damage. The Institute conducts crash tests and produces films, research reports and other publications on traffic and motor vehicle safety that are available to consumers. Some materials are available in Spanish.

Keywords: Data, Injury prevention, Motor vehicle injuries, Research

Insure Kids Now

Intercultural Cancer Council (ICC)

Annotation: The Intercultural Cancer Council (ICC) is funded both by government and private grants to confront the problem of addressing the dissemination of cancer information among minorities and the encouragement of medical education among minorities. Services to consumers include cancer education resource materials. Some materials are available in Spanish. The council sponsors conferences and the 7th Biennial Symposium on Minorities, the Medically Underserved and Cancer (2000).

Keywords: Cancer, Minorities

International Baby Food Action Network (IBFAN)

Annotation: The International Baby Food Action Network (IBFAN) consists of public interest groups working around the world to reduce infant and young child morbidity and mortality. IBFAN aims to improve the health and well being of babies and young children, their mothers and their families through the protection, promotion and support of breastfeeding and optimal infant feeding practices. Information and publications are available online through IBFAN's Resource Center. Materials are available in English, French, German, Spanish, and Portuguese.

Keywords: Breastfeeding, Associations, Breastfeeding promotion, Child health, Health promotion, Infant feeding. Infant health, International health

International Center for Research on Women (ICRW)

Annotation: Founded in 1976, the International Center for Research on Women (ICRW) is a private nonprofit organization dedicated to improving the lives of women in poverty, advancing women's equality and human rights, and contributing to broader economic and social well being. We accomplish this, in partnership with others, through research, capacity building, and advocacy on issues affecting women's economic, health, and social status in low- and middle-income countries. ICRW's advocacy agenda is driven by research; currently the center is focusing on three policy areas: Child Marriage, Gender and AIDS, and Millennium Development Goals. Services to consumers include referrals and publications (with materials available in Spanish and French). ICRW also sponsors seminars and publishes a newsletter and research reports.

Keywords: Women's health

International Child Resource Institute (ICRI)

Annotation: The mission of International Child Resource Institute (ICRI) is to improve the lives of children and families throughout the world, enabling them to survive and succeed. ICRI provides services for families and children locally and around the world through technical assistance and consultation to a wide variety of national and international organizations, businesses, governments, non-profits and others interested in such children's issues as child care, child abuse prevention, child survival, maternal and child health, placement alternatives for abandoned and traumatized children and the promotion of children's rights.

Keywords: Child care, Adoption, Child abuse prevention, Child health, Cultural competence, Developing countries, Development, Early childhood education, Information services, Maternal health

International Childbirth Education Association (ICEA)

Annotation: The International Childbirth Education Association (ICEA) consists of groups and individuals interested in family-centered maternity and infant services. The association publishes a journal and pamphlets on topics relating to the childbearing years, certifies teachers, provides referrals, sponsors conventions and training seminars, and sells books and pamphlets on a wide range of topics, including pregnancy loss and bereavement. Some materials are available in Spanish, Asian languages and other languages. A catalog is available.

Keywords: Bereavement, Childbirth education, Family centered services, Pregnancy, Pregnancy loss

International Diabetes Center

Annotation: The International Diabetes Center provides education, clinical research, patient care, referrals, publications, and dissemination of information, technology, and service delivery programs for people with diabetes, their families, and concerned health professionals. The center sponsors conferences and training seminars and publishes a catalog and a newsletter. Some materials are available in Spanish. The center is a division of the Institute for Research and Education, Health System Minnesota and is designated a World Health Organization Collaborating Center for Diabetes Education Translation and Computer Technology.

Keywords: Diabetes, Health education, Information dissemination, Medical research, Metabolic diseases, Patient care

International Dyslexia Association (IDA)

Annotation: The International Dyslexia Association (IDA), formerly known as the Orton Dyslexia Society (ODS), promotes research and education of dyslexia and encourages appropriate teaching techniques. Publications include a quarterly newsletter, Perspectives, a journal, and many publications useful for parents, professionals, and individuals with dyslexia. A publications catalog is available. Some materials are available in Spanish. IDA provides information and referral services for testing, tutoring, and effective teaching programs and sponsors conferences, training seminars and workshops.

Keywords: Dyslexia, Health education, Language disorders, Learning disabilities, Medical research

International Fibrodysplasis Ossificans Progressiva Association (IFOPA)

Annotation: The International Fibrodysplasia Ossificans Progressive Association (IFOPA) is a non-profit organization which supports education, clinical care, and research on FOP. The IFOPA was founded in 1988 by Jeannie Peeper to end the social isolation imposed by this rare, debilitating disease. The IFOPA sponsors medical symposia where scientists and physicians discuss issues of importance to FOP research and the clinical care of patients with FOP. The IFOPA operates the IFOPA Resource Center, a library where families and physicians can turn for information about FOP. The Association publishes books and a quarterly newsletter The FOP Connection which provides information on coping with a severe and chronic disability, as well as research updates. Services to consumers include referrals and reference information. Some materials are available are in Spanish. The organization sponsors conferences.

Keywords: Fibrodysplasis Ossificans Progressiva

International Food Information Council Foundation (IFIC)

Annotation: The International Food Information Council (IFIC) is a nonprofit organization that serves as an information and educational resource on nutrition and food safety. IFIC provides science-based information to journalists, health professionals, government officials, and other opinion leaders who communicate with the public. Wherever possible, IFIC works in partnership with leading nutrition organizations. IFIC programs receive support from a broad base of food, beverage and agricultural companies. Services to consumers include referrals, publications and reference information. The council also publishes a newsletter. Some materials are available in Spanish. The foundation produces a Web site for children and parents called Kidnetic.com, which provides activities for children and information for parents to promote physical activity, exercise, and good eating.

Keywords: Consumer education materials, Exercise, Food safety, Materials for children, Nutrition, Physical activity

International Lactation Consultant Association (ILCA)

Annotation: The International Lactation Consultant Association (ILCA) promotes the professional development, advancement, and recognition of International Board Certified Lactation Consultants (IBCLC) worldwide for the benefit of breastfeeding women, infants, and children. ILCA publishes a newsletter and a journal, sponsors workshops and conferences, and provides referrals, publications, database access, and inquiry responses for consumers.

Keywords: Breastfeeding, Infant nutrition, Information dissemination, Lactation

International Life Sciences Institute (ILSI)

Annotation: The International Life Sciences Institute (ILSI) conducts and supports research on nutrition, toxicology, food safety, and environmental safety. Its divisions include the Human Nutrition Institute, Risk Science Institute, Health and Environmental Sciences Insitute, ILSI North America and ILSI Center for Health Promotion (Atlanta, GA). ILSI sponsors workshops, international conferences, and a research awards program, and produces publications including a catalog, newsletter, and journal. Services to consumers include referrals, inquiry responses, reference information, searchable databases, and publications. Some materials are available in Spanish, Asian, and other languages.

Keywords: Food safety, Nutrition research, Public health, Toxicology

International Tremor Foundation (IETF)

Annotation: Services to individuals diagnosed with ET. Include physician referrals, educational publications, funding for research, and development of support groups. Some materials are available in Spanish. IETF also hosts conferences and publishes a quarterly newsletter.

Keywords: Tremor

International Union for Health Promotion and Education (IUHPE)

Annotation: The International Union for Health Promotion and Education (IUHPE) is a global association of people and organizations working in the fields of health promotion and health education which is dedicated to improving world health through education, community action, and the development of healthy public policies. The union is in official relationship and cooperates closely with WHO, UNESCO, UNICEF, and governmental and non-governmental organizations in developing and improving the theoretical and practical aspects of health promotion and education. Its goals are to influence and support the development of the fields of health promotion and health education and to promote broader worldwide participation in the union. The organization publishes a catalog, newsletter and a journal and sponsors conferences, workshops and training seminars.

Keywords: Health education, Health promotion, International health

Intersex Society of North America (ISNA)

Annotation: The Intersex Society of North America (ISNA) is a public awareness, education, and advocacy organizations that works to create a world free of shame, secrecy, and unwanted surgery for intersex people (individuals born with anatomy or physiology that differs from cultural ideals of male and female). ISNA publishes a newsletter and offers referrals, publications, and reference information to consumers. Spanish-language materials are available.

Keywords: Congenital adrenal hyperplasia, Consumers, Endocrine sexual disorders, Gonadal dysgenesis, Hermaphroditism, Informatoin sources, Klinefelters syndrome, Reference materials, Sex differentiation disorders, Testicular feminization

Interstitial Cystitis Association (ICA)

Annotation: The Interstitial Cystitis Association (ICA) is a national organization for people with interstitial cystitis (IC). Activities and services include public and professional education about the disease, research on the treatment and cure of IC, and a support network for patients, families, and friends. The association publishes a quarterly newsletter, ICA Update, and produces videotapes. Some materials are available in Spanish. The association also sponsors conferences and workshops.

Keywords: Bladder disorders, Education, Medical research, Interstitial cystitis, Urogenital diseases

Job Accommodation Network (JAN)

Annotation: The Job Accommodation Network (JAN) is an national information network and consulting resource for individuals with disabilities. The network provides information on compliance with the Americans With Disabilities Act and on the equipment and methods that have proven effective for a wide range of accommodations for employees and applicants with disabilities. Services to consumers include referrals, publications, and reference information. The network offers a variety of publications, and materials are available in Spanish and alternative formats.

Keywords: Disabilities, Personnel,

Job Corps

Annotation: The Job Corps is a national training and employment program administered by the Department of Labor to address barriers to employment faced by disadvantaged youth ages 16-24 throughout the United States. The purpose of Job Corps is to assist young people who need and can benefit from an intensive program, operated primarily in the residential setting of a Job Corps center, to become more responsible, employable, and productive citizens. The program targets severely disadvantaged youth and provides total support, including basic education and vocational classes; dental, medical, mental health and vision care; social and recreational programs; counseling; and student leadership activities. Services to consumers include referrals, publications and reference information. Some materials are available in Spanish, and some Asian languages. The program publishes an annual report. The program also sponsors conferences and training seminars.

Keywords: Adolescents, Education, Employment, Training

John Tracy Clinic

Annotation: The John Tracy Clinic, founded in 1942, offers families with young children up to the age of six correspondence education courses to help them meet the challenges of deafness. All courses are offered in both English and Spanish. (Materials are also available in French, Asian and 25 other languages as well). The clinic sponsors conferences, training seminars and workshops and offers intensive three-week summer courses for parents, their young deaf child, and siblings from age 6-12 to show them how to communicate with their sibling. For families in the Southern California, there is a parent/infant program, a preschool, parent classes and support groups, full audiological testing and graduate education for teachers of the deaf. All services are offered without charge. The organization also publishes a bulletin.

Keywords: Advocacy, Civil rights, Deafness, Disabilities, Hearing disorders, Information services

Johns Hopkins Center for Communications Programs, Media/Materials Clearinghouse (M/MC)

Annotation: The Media/Materials Clearinghouse (M/MC) at the Johns Hopkins University Center for Communication Programs is an international resource for health professionals who seek samples of pamphlets, posters, videos, and other media/materials designed to promote public health. The clearinghouse provides access to Mediabank, a database of health communications materials; Netlinks, a database of internet health resources for public health; Photoshare, a database of health-related photographs available for nonprofit use; and Videoshare, a database of videos for public health. The M/MC also manages the Health Communications Materials Network (HCMN), an international network of professionals specializing in the development of health communication materials. HCMN serves as a forum for health communication specialists to share ideas, information, and samples of health communication materials with colleagues, and to seek advice and suggestions from others working in the field. HCMN also has an online database of clip art which can be used in developing health communication materials. The clearinghouse provides publications in both electronic and print form, and materials are available in Spanish, French, Asian, and other languages. M/MC publishes a newsletter.

Keywords: Audiovisual materials, Clearinghouses, Health promotion, Listservs

Journeyworks Publishing

Annotation: Journeyworks Publishing produces health education promotion materials including pamphlets, brochures, posters, and bookmarks, in these topic areas: tobacco prevention, smoking cessation, secondhand smoke, sexual abstinence, pregnancy prevention, male involvement, HIV and STD prevention, birth control, prenatal care, child health and parenting, drugs and alcohol, violence prevention, stress, mental wellness, fitness and nutrition, date rape, gay youth, women's health, Alzheimer's disease, and materials in Spanish, Vietnamese, and Chinese. It also produces the Luann health series designed for the adolescent audience. Materials are directed at diverse audiences, and some are for low literacy audiences.

Keywords: Cultural competence, Adolescent health, Brochures, Consumer education materials, Health education, Low literacy materials, Minority groups, Posters

Judge David L. Bazelon Center for Mental Health Law

Annotation: The Judge David L. Bazelon Center for Mental Health Law works to ensure the rights of people with mental disabilities. The center advocates for home support and integrated systems of care for children with physical or mental disabilities in low-income families, increased housing and employment opportunities for adults with disabilities, and community-based alternatives to nursing homes and hospitals. The center provides technical assistance to advocates and publications are made available to consumers. A resource catalog is available. Some materials are available in Spanish.

Keywords: Legislation, Mental health, Public policies

Kentucky Commission for Children with Special Health Care Needs (CCSHCN)

Annotation: The Kentucky Commission for Children with Special Health Care Needs (CCSHCN) provides diagnosis and treatment for children under age 21 who have specific chronic illnesses or physical disabilities and whose family incomes meet financial eligibility requirements. The Commission ensures accessibility, availability, and quality of health care. Medical, surgical, habilitative, and rehabilitative services are offered through outpatient clinics and hospitals. The Commission also administers the state's Universal Newborn Hearing Screening program. In addition to medical care provided under the Title V/CSHCN program other services include a hearing conservation program, occupational therapy, physical therapy, speech pathology and audiology services,and a high risk registry for deafness. CCSHCN also administers the Hemophilia Program, a statewide program for detection, diagnosis and treatment for individuals with hemophilia. Through its KY Youth Transitioning to Education and Adult Healthcare (KY TEACH) Project, an MCHB Healthy and Ready to Work grant, the Commission has become a national leader in transition services. The mission of the Commission is to enhance the quality of life for Kentucky's children with special health care needs through direct service, leadership, education, and collaboration. The Commission provides referrals and sponsors training seminars. Some materials are available in Spanish.

Keywords: Access to health care, Disabilities, Health care financing

KidSafety of America

Annotation: KidSafety of America produces child health, safety, and family education programs and provides posters, videos, and health and safety products. A catalog is available. Some materials are available in Spanish.

Keywords: Child health, Consumer education materials

KidsHealth

Kiwanis International, Young Children: Priority One

Annotation: Young Children: Priority One is a program of Kiwanis International that supports children ages 0–5 years in the areas of maternal and infant health, child care and development, parent education and support, and safety and pediatric trauma. Local clubs conduct projects on topics such as prenatal care, immunization, child care, and parenting. Some Kiwanis clubs provide services to consumers that include referrals, publications, and reference information. Some materials are available in Spanish, French, Italian and other languages. A catalog is available.

Keywords: Outreach, Public awareness, Public health

Klinefelter Syndrome and Associates ( )

Annotation: Klinefelter Syndrome and Associates, founded in 1989, is a nonprofit educational organization that works to increase public awareness of Klinefelter syndrome and its variations and to provide support and information to people with the syndrome. They also have families with 47XYY, and 47XXX plus variants of these conditions. The organization conducts workshops; holds an annual national conference and periodic regional meetings; and provides referrals, reference information, and publications (including a brochure on Klinefelter syndrome, a list service, and a newsletter). Some materials are available in Spanish.

Keywords: Klinefelter syndrome, Chromosome abnormalities, Family support groups, Genetic disorders, Listservs

Klippel-Trenaunay (K-T) Support Group (K-T Support Group)

Annotation: The Klippel-Trenaunay (K-T) Support Group serves people with Klippel-Trenaunay syndrome and their families. The group facilitates correspondence between members, collects and disseminates current medical literature pertaining to K-T, and and provides referrals. A Spanish-language translator is available. The group also publishes a newsletter and sponsors conferences.

Keywords: Cardiovascular diseases, Family support services, Klippel Trenaunay Weber syndrome, Parent groups, Parent support services

La Leche League International (LLLI)

Annotation: La Leche League International (LLLI) offers a variety of services for parents and professionals. Monthly support group meetings are available for pregnant women and nursing mothers and babies. A phone line, 800 LA LECHE, helps callers find ttheir local La Leche Leader who can answer questions and provide meeting information. International conferences, lactation specialist workshops, physicians' seminars, and area conferences are available. Products include books, pamphlets, nursing supplies, gifts, and more. All or parts of the website have been translated into Chinese, Dutch, French, German, Hebrew, Japanese, Italian, Russian, Spanish, Turkish, and Ukrainian. Membership is available to mothers, families, and health professionals. The Center for Breastfeeding Information (CBI) provides research help on lactation topics. Peer counselor training is available and independent study modules for at-home professional learning. Subscriptions to member publications are available as well. LLLI's Web site provides information about services and contact information for groups all over the world.

Keywords: Breastfeeding, Infant nutrition, Lactation, Mothers, Spanish language materials

Lamaze International

Annotation: The mission of Lamaze International is to promote, support and protect normal birth through education and advocacy. The organization’s vision is “a world of confident women choosing normal birth”. Lamaze International offers free educational information on normal birth on its Web site, including: (1) easy to read, evidenced-based information on the six care practices that support normal birth at the Lamaze Institute for Normal Birth web site link.; (2) recommended books on pregnancy, birth and early parenting; (3) tips for a healthy pregnancy and normal birth; and (4) information on birth networks developing in many communities. Consumers can locate an Lamaze Certified Childbirth Educator (LCCE) or a Lamaze Approved Provider in their area using the online locator service or by calling the administrative office at (800) 368-4404. The Lamaze Certification Program is accredited by the National Commission for Certifying Agencies (NCCA), the accrediting body of the National Organization for Competency Assurance (NOCA). Lamaze International provides referrals, inquiry responses, publications, reference information, and searchable databases to consumers; some materialis available in Spanish, Chinese and Korean. The organization publishes a newsletter and a journal, and offers conferences, training seminars, workshops, and other activities.

Keywords: Asian language materials, Childbirth education, Lamaze method, Pregnancy, Spanish language materials

Learning about Diabetes

Annotation: Learning about Diabetes ia nonprofit corporation that provides consumers and health care professionals with information on diabetes care. The corporation develops low literacy health education programs and conducts research on the role of art and design in creating effective health care communications. Booklets in both English and Spanish, downloadable patient handouts, and visual education aids are available from the Web site. Free programs on this Web site can be translated to any additional language to non-profit organizations at cost.

Keywords: Spanish language materials, Consumer education, Diabetes, Patient education

Learning Disabilities Association of America (LDA)

Annotation: The Learning Disabilities Association of America (LDA) is a national organization of parents, professionals, and people with specific learning disabilities. The association works to accurately identify and remediate people with learning disabilities and to share innovative ideas and teaching techniques. It also disseminates data, evaluates programs, promotes research, and works to increase awareness of the problems of people with learning disabilities, providing consumers with referrals and publications. The newsletter LDA Newsbriefs is published six times a year. Other publications include a journal and a resource catalog. Some materials are available in Spanish. The association also sponsors conferences and training seminars.

Keywords: Dyslexia, Information services, Medical research, , Learning disabilities

Leukemia and Lymphoma Society ( LLS)

Annotation: The Leukemia and Lymphoma Society is a national voluntary health agency dedicated to finding cures for leukemia, lymphoma, Hodgkin's lymphoma, and myeloma and improving the quality of life of patients and their families. The Society supports medical research and provides health educational materials, as well as the following services: patient financial aid for specified treatment expenses and transportation, family support groups, First Connection (a professionally supervised peer support program), information and referrals, school re-entry materials, and public and professional education. Audiotapes in English and some Spanish language publications are available.

Keywords: Cancer, Children, Financial support,, Leukemia, Lymphomas, Medical research, Multiple myeloma

Lighthouse International

Annotation: Lighthouse International works with the families of children who are visually impaired and blind, professionals and the general public. The Lighthouse main purpose is to establish connections among the many people who can enhance the early development of children who are visually impaired and blind. The staff design and offer individualized training programs in parent education, eye/vision care, special education, and resource development for people working with children and adolescents who are blind and visually impaired. The Lighthouse provides referrals and reference information and develops print and audio/visual products about vision and child development for families, professionals and the general public. A catalog and newsletter are published by the organizationr and some materials are available in Spanish. The Lighthouse also sponsors conferences, workshops, and training seminars.

Keywords: Blindness, Vision disorders

Lissencephaly Network

Annotation: The Lissencephaly Network seeks to provide parents with accurate information on lissencephaly. The network is developing a database of information on families of children with lissencephaly to facilitate communication between parents who live in the same region or who have children with similar medical problems. In addition, the Network publishes a newsletter and sponsors conferences. Some materials are available in Spanish.

Keywords: Lissencephaly, Parent groups

Little People of America (LPA)

Annotation: Little People of America (LPA) works to help people of short stature and their families through fellowship, moral support, and the exchange of ideas and information. The organization offers educational and social programs, workshops, and discussion groups for short-statured individuals, their families, and the public. The LPA Medical Advisory Board helps members to become better informed about their particular type of short stature. Publications include Little People in America, It's A Whole New View (English and Spanish), and a newsletter produced six times a year, LPA Today. Audiovisual materials include Little People (PBS documentary, 1984). Some materials are available in Spanish.

Keywords: Achondroplasia, Dwarfism, Growth disorders, Short stature

Louis de la Parte Florida Mental Health Institute (FMHI)

Annotation: Created by the state legislature, the Louis de la Parte Florida Mental Health Institute (FMHI) works to strengthen mental health services through training, research, and demonstration. The Institute designs and evaluates innovative prevention and treatment techniques, and it trains agencies and mental health professionals statewide to implement similar techniques and programs. Target populations include children, adolescents, and adults with severe mental illnesses. The Institute Library maintains a large collection of fact sheets, brochures, technical publications, and audiovisual materials. Some materials are available in Spanish. FMHI also sponsors conferences and provides online training and certificate programs.

Keywords: Mental disorders, Adolescents, Affective disorders, Children, Florida, Mental health, Mental health professionals, Mental health programs, Psychiatric hospitals, Research, Substance abuse, Training

Lupus Foundation of America (LFA)

Annotation: The Lupus Foundation of America (LFA) is a nonprofit voluntary health organization dedicated wholly to lupus. LFA's mission is to improve the diagnosis and treatment of lupus, support individuals and families affected by the disease, increase awareness among public and health professionals, and find the causes and cure for lupus. LFA conducts research and provides education, advocacy, and support through its nationwide network of chapters, branches and support groups.

Keywords: Autoimmune diseases, Immunologic diseases, Support groups, Systemic lupus erythematosus

Lyme Disease Association (LDA)

Annotation: The Lyme Disease Association (LDA), an all volunteer 501(c)(3) non-profit, raises money for Lyme disease (LD) research and education. LDA provides programs with doctors who speak about LD, and has a video of an accredited medical conference for doctors on LD in adolescents and children. A free brochure called ABCs of Lyme Disease is designed for parents and educators, and a brochure called Lymer Primer discusses symptoms and prevention. Doctor referrals are avavilable. LDA published a book for adolescents entitled "Lyme Disease is No Fun - Let's Get Well," by Mary Walsh. The LDA also conducts a medical conference each year. Some information in Spanish is provided on the Web site. General questions are answered online as time permits - referral lists are not given out. LDA's street address is 5019 Megill Rd, Farmingdale, NJ 07727.

Keywords: Bacterial diseases, Infectious arthritis, Lyme borreliosis, Lyme disease

Lyme Disease Foundation (LDF)

Annotation: The Lyme Disease Foundation (LDF) operates the National Lyme Disease 24 hour Hotline for people with Lyme disease, their families and friends, and concerned health professionals. The foundation serves as a patient and health care referral network, distributes educational materials in English and Spanish, sponsors scientific conferences and national public forums, trains community educators, conducts public awareness campaigns, and funds research to develop direct detection methods and a vaccine. The foundation has sponsored the National Tick Testing Project, the national Lyme Disease and Pregnancy Registry, and the Congenital Lyme Disease Registry. Publications include a newsletter and a peer reviewed scientific journal.

Keywords: Bacterial diseases, Infectious arthritis, Lyme borreliosis, Lyme disease

M.I.S.S. Foundation

Annotation: The MISS Foundation is a volunteer based organization committed to providing crisis support and long term aid to families after the death of a child from any cause. MISS also participates in legislative and advocacy issues, community engagement and volunteerism, and culturally competent, multidisciplinary, education opportunities. The Web site provides discussion forums, resources for families, professionals, caregivers, and bereaved children; downloadable publications concerning infant safety and survival; support-group location services; links to research projects; a bimonthly newsletter; and an online store. Spanish-language materials are available.

Keywords: Infant health, Bereavement, Emotional adjustment, Family support, Grief, Infant mortality, SIDS, Support groups

MaapServices

Annotation: Maap Services is a nonprofit organization dedicated to providing information and advice to families of more advanced individuals with autism, Asperger's syndrome, and pervasive developmental disorder. MaapServices also provides a quarterly newsletter and sponsors conferences. Some materials are available in Spanish.

Keywords: Autism, Developmental disabilities, Health education

Make-A-Wish Foundation of America (MAWFA)

Annotation: The Make-A-Wish Foundation of America provides operating guidance and resource support for all chapters of the Make-A-Wish Foundation. The Make-A-Wish Foundation, established in 1980, grants wishes to children with life-threatening illnesses. The foundation handles all financial and logistic arrangements for the child and his or her family. Requests for wishes come from parents or guardians, medical professionals, and children themselves. MAWFA publishes a newsletter and provides some materials in Spanish.

Keywords: Family support, Financial support, Terminally ill children

Malignant Hyperthermia Association of the United States (MHAUS)

Annotation: The Malignant Hyperthermia Association of the United States (MHAUS) provides information and referrals to families susceptible to malignant hyperthermia (MH) and also provides information to their physicians. Publications include the pamphlets What Is MH?, What Is MHAUS?, Managing Malignant Hyperthermia, and Preventing Malignant Hyperthermia; a poster, Suggested Therapy for MH Emergency; a booklet, Understanding Malignant Hyperthermia; and a newsletter produced four times a year, The Communicator. Some materials are available in Spanish.

Keywords: Malignant Hyperthermia, Information services

March of Dimes (MOD)

Annotation: The March of Dimes (MOD) works to prevent birth defects and infant mortality through research, education, and advocacy programs. MOD's Pregnancy and Newborn Health Education Center provides information and referral services for the general public and professionals on topics such as preconception health, pregnancy, childbirth, genetics, and birth defects. MOD also produces educational materials on these and other topics such as prematurity, baby care, adolescent pregnancy, folic acid, nursing, and bereavement. A publications catalog is available, and some materials are available in Spanish. Anyone can subscribe to MOD's free electronic newsletter. MOD also sponsors the Prematurity Research Initiative, which provides funding for research into the causes of prematurity, and has developed PeriStats -- an online source for maternal, infant, and child health-related data at the state level and for many indicators at the county and national level (available at http://peristats.modimes.org/). The website can be viewed in English and Spanish.

Keywords: Congenital abnormalities, Adolescent pregnancy, Advocacy, Childbirth education, Genetic disorders, Genetics education, Infant mortality, Information services, Medical research, Patient education, Prenatal care, Preterm birth, Professional education, Public awareness materials, Spanish language materials, Spanish language website

March of Dimes Maryland, National Capital Area Chapter (MOD)

Mary-Helen Mautner Project for Lesbians with Cancer (MHMPLC)

Annotation: The Mary-Helen Mautner Project for Lesbians with Cancer is a national organization dedicated to women who partner with women/lesbians with cancer, their families and caregivers. The Mautner Project's mission is to deliver direct services and support to lesbians with cancer, their families and caregivers; educate the lesbian community about cancer; educate the health care community about the needs and concerns of lesbians; and promote lesbian health issues in national and local arenas. The project publishes a monthly newsletter; the Web site provides links to some materials in Spanish. The project sponsors conferences, and does training seminars, workshops, phone support, support groups, and community care. A list serve is also available. Training seminars and phone support are available nationwide; some services are available only in the District of Columbia metro area.

Keywords: Breast cancer, Homosexuality, Support groups, Women's health

Maryland Family Network (MFN)

Annotation: Maryland Family Network (MFN), formerly Friends of the Family, is a nonprofit organization that provides funding, training, technical assistance, and quality assurance services to Maryland's network of Family Support Centers; advocates for the establishment of policies and programs that strengthen families with young children; and provides training for professionals and paraprofessionals who work with parents and children from birth through age three. Resources for parents and professionals are provided on the website.

Keywords: Advocacy, Child development, Family support

Massachusetts Department of Public Health, Division of Violence and Injury Prevention

Medical Institute for Sexual Health (MISH)

Annotation: The Medical Institute for Sexual Health is a nonprofit organization that identifies, evaluates and communicates scientific information to promote healthy sexual decisions and behavior to medical professionals, educators, government officials, parents, and the media. It provides an electronic newsletter, an annual conference, and medical e-mail advisories that highlight recent research. It also publishes brochures, videos, reports, national guidelines for sexuality and character education, and a comparison of abstinence vs. safer sex sexuality education. Spanish-language brochures are available.

Keywords: Abstinence, Disease prevention, Sexuality education, Sexually transmitted diseases

MedlinePlus

Meeks Heit Publishing Company

Annotation: The Meeks Heit Publishing Co., Inc. is dedicated to the development of innovative and quality curricula, materials, and programs, and the implementation of state-of-the-art training in comprehensive health education. The organization provides training seminars focusing on topics that include comprehensive school health education, creative teaching strategies, the new National Health Education Standards, health literacy, HIV/AIDS, sexually transmitted diseases, health services, violence prevention, relationships, marriage and family living, women's health, and drugs, alcohol, and tobacco. A catalog is available and a multimedia program, Abstinence Only is now used in schools throughout the country to fulfill the title V abstinence education guidelines. Some materials are available in Spanish.

Keywords: Curricula, Health education, School health education, Training

Megaskills Education Center (HSI)

Annotation: The MegaSkills Education Center is dedicated to enhancing achievement in students by developing "megaskills," which include confidence, motivation, effort, responsibility, initiative, perseverance, caring, teamwork,common sense, problem solving, andfocus. The MegaSkills Education Center offers resources to help develop partnerships with schools and communities and to build success for children, parents and teachers through books, trainings, and conference presentations. The MegaSkills programs, now in over 4000 schools in 48 states, serve diverse communities by training teachers to conduct workshops and provide home learning "recipes" for families.

Keywords: Child development, Child health, Literacy, Parents, Schools

MELD

Annotation: Meld -- which has merged with the Parents as Teachers National Center -- is a program to enhance the capacity of those who parent to raise nurtured, competent children. Meld offers educational and support services for parents, trains family service providers to apply best practices in their work with families, and publishes a broad range of resource materials for parents and the people who work with them. Most Meld programs serve families during pregnancy and the child's first two years. The programs operate on a peer, self-help model, and have been replicated in over 100 sites in the U.S. and abroad. Services to consumers include publications and reference information, some of which is in Spanish.

Keywords: Adolescent parents, Children with special health care needs, Deaf parents, Hispanic Americans, Hmong parents, Minority groups, Parenting, Parenting

Mental Health America

Annotation: Formerly known as the National Mental Health Association, Mental Health America is a voluntary advocacy organization concerned with all aspects of mental health and mental illness. The association provides information on a broad range of mental illnesses and related issues through descriptions of programs and other resources to prevent mental-emotional disability. It also has a grassroots education initiative on children's mental health called Children's Mental Health Matters and promotes Children's Depression Awareness Day. Mental Health America offers information, referrals and publications, including a newsletter and a resource catalog through its resource center. Materials are available in Spanish. The association also provides public education, research, and advocacy services and sponsors conferences and training seminars.

Keywords: Children, Adolescents, Advocacy, Clearinghouses, Conferences, Consumer education, Information sources, Mental health, Program descriptions, Publications, Spanish language materials

MHE (Multiple Hereditary Exostoses) Coalition (MHE (Multiple Hereditary Exostoses))

Annotation: The MHE Coalition is a non-profit organization dedicated to providing support and information to families living with Multiple Hereditary Exostoses, and to finding the causes, treatments, and ultimately the cure for this rare bone disorder. The Coalition provides inquiry responses, referrals, publications, and reference Information. Some materials are available in German, Italian, and Spanish.

Keywords: Multiple Hereditary Exostoses

Michigan Department of Health and Human Services, Family Health Programs

Mid-Atlantic Regional Human Genetics Network (MARHGN)

Annotation: Established in 1982, the Mid-Atlantic Regional Human Genetics Network (MARHGN) is a consortium of providers and consumers of genetics services in Delaware, the District of Columbia, Maryland, New Jersey, Pennsylvania, Virginia, and West Virginia. Members include representatives of state health departments and genetics centers. The network promotes the availability and development of quality genetics services within the region and encourages public and private support for research and education in the field of genetics and congenital disabilities. MARHGN provides referrals, publications, and reference information to consumers. Publications include a catalog and a newsletter. Some materials are available in Spanish, Portuguese, French, and Arabic.

Keywords: Regional genetics networks, Consortia, Delaware, District of Columbia, Genetic counseling, Genetic services, Genetics, Information services, Maryland, Medical research, New Jersey, Pennsylvania, Virginia, West virginia

Migrant Health Promotion

Annotation: Migrant Health Promotion works to improve health and build on community strengths in farmworker and border communities. Its programs provide peer health education, increase access to health resources, and bring community members together with health providers, employers, and policymakers to create positive changes. A variety of materials in English and Spanish, including manuals, implementation guides, evaluations and program development tools, and assembly instructions can be downloaded from the website. Webcasts on migrant health promotion; training tools; and program models are also provided. (Physical offices are located in Michigan, Texas, Florida, Ohio, and Washington state.)

Keywords: , Health promotion, Migrant health, Migrant health programs, Spanish language materials

Minnesota Department of Health, Barr Library

Annotation: The Minnesota Department of Health's Barr Library provides lending, reference, and interlibrary loan services to Minnesota Department of Health, local tribal, county, or city public health professionals, school health practitioners, and the Minnesota Board of Nursing, the Minnesota Department of Human Services, and the Minnesota Department of Agriculture. Resources include a school nursing toolkit.

Keywords: Health sciences libraries, Minnesota, State agencies

Missouri Department of Health and Senior Services, Missouri Head Injury Advisory Council

MiVIA

Annotation: MiVIA is an electronic and therefore transportable, Personal Health Record (PHR) designed for use for migrant and seasonal farmworkers. Its goal is to improve health outcomes of migrant and seasonal workers in California. MiVIA, a scalable program, can be replicated on a regional, statewide and even national level contributing to the health and well being of farm workers throughout the United States, resulting in improved health outcomes while decreasing duplicative medical costs. A pilot project was conducted in Sonoma Valley, California, (2002- 2004). The Web site is available in English and Spanish.

Keywords: Farm workers, Medical records, Migrants, Spanish language materials

Mother, Child & Adolescent HIV Program

Annotation: The UCSD Mother-Child-Adolescent HIV Program provides a comprehensive multidisciplinary approach to HIV disease in women, pregnant women, children, and adolescents. The program provides perinatal HIV consultation, comprehensive obstetric care, infant screening, comprehensive HIV care for women, children and adolescents, counseling and education. The program offers perinatal transmission studies and therapeutic clinical trials. As a Title IV Ryan White program, the UCSD Mother, Child & Adolescent HIV Program is an active participant in a community-wide partnership that advocates services for children, adolescents, and families. Resources are available in Spanish. The program sponsors conferences, training seminars, and workshops.

Keywords: AIDS, HIV, Pediatric AIDS, Pediatric HIV

MotherNet America

Annotation: MotherNet America (formerly The Resource Mothers Development Project) is a national support network for community-based maternal and child programs. It works to strengthen at-risk families, help parents give their children a healthy start in life, and increase the capacity of underserved communities to sustain positive change. MotherNet America's own model programs -- MotherNet L.A. in Compton, California and MotherNet Loudoun in Loudoun County, Virginia -- offer culturally and linguistically appropriate programs including intensive perinatal home visiting and case manangement; case management for chronic conditions including asthma, obesity and diabetes; mentoring for children with a parent in prison; center-based classes on parenting, nutrition, family strengthening, domestic violence, health-focused English as a Second Language and health literacy-focused computer skills; school-based adolescent sexual health classes; community health fairs; immunization outreach; and health coverage application assistance. Publications produced by MotherNet America include the Women's Wellness Sourcebook, a guide for training outreach workers about a broad range of women's health issues; Curriculum Sourcebook, a guide for training outreach workers; and Home Visitors Handbook, a training text and field resource for outreach workers. The Home Visitors Handbook is available in Spanish and English.

Keywords: Home visiting, Outreach, Pregnancy, Resource mothers

Mountain States Genetics Regional Collaborative (MSGRCC )

Annotation: The Mountain States Genetics Regional Collaborative (MSGRC) -- formerly the Mountain States Genetic Network -- is a consortium of providers and consumers of genetic services in Arizona, Colorado, Montana, New Mexico, Texas, Utah, Wyoming, and Nevada. Members include representatives of state health departments, university medical schools, genetic services laboratories, hospitals, private medical practices, and various consumer organizations. The group is a regional network that provides a forum for problem sharing and solving, provides referrals, promotes efficient use of resources, and facilitates improvement of the quality and quantity of genetic services offered in the Mountain States region. The network maintains an online events calendar and provides links to genetics centers and resources.

Keywords: Genetics, Arizona, Colorado, Consortia, Data collection, Genetic counseling, Genetic services, Information services, Montana, New Mexico, Problem solving, Regional genetics networks, Utah, Wyoming

Mountain States Group (MSG)

Annotation: Established in 1974, Mountain States Group is a private nonprofit organization that works to enhance the quality and availability of human services through creative program development, with a focus on underserved rural areas. The group conducts ongoing projects in health, education, and social services. Its activities promote the goal of community responsibility for the planning, implementation, and maintenance of human services programs. Services to consumers include referrals, publications, and reference information. Some materials are available in Spanish. MSG sponsors conferences and training seminars and publishes a newsletter and program materials.

Keywords: Access to health care, Community-based health services, Health education, Human services, Information services, Rural population, Social services

Muscular Dystrophy Association (MDA)

Annotation: The Muscular Dystrophy Association (MDA) provides a comprehensive patient and community service program. MDA's nationwide network of over 200 hospital affiliated clinics provides access to top health professionals who can advise about the medical management of neuromuscular diseases affecting children and adults. Other services include assistance with the purchase and repair of wheelchairs or leg braces and a summer camp for youngsters. The Association also supports an international research program seeking treatments and cures for neuromuscular disorders. Referrals, reference information, and publications are provided to consumers. Publications include a wide variety of brochures and a bi-monthly newsletter, Quest.. Audiovisual materials are available. Some materials are available in Spanish. The Association also sponsors conferences and workshops.

Keywords: Acid Maltase Deficiency, Becker Muscular Dystrophy, Benign Congenital Hypotonia, Duchenne Muscular Dystrophy, Friedreichs Ataxia, Muscular Dystrophy, Spinal Muscular Atrophy, Werdnig-Hoffmann disease

Myasthenia Gravis Foundation (MGFA)

Annotation: The Myasthenia Gravis Foundation of America facilitates the timely diagnosis and optimal care of individuals affected by myasthenia gravis (a chronic neuromuscular, autoimmune disorder) and closely related disorders. The Foundation provides patient care and services (including support groups for patients and families), advocacy, professional education, a quarterly newsletter, literature on the disorder and its treatment, funds for medical research about myasthenia gravis, and public service announcements. Some resources are available in Spanish. At present, the cause of myasthenia gravis is unknown, and there is no cure.

Keywords: Myasthenia Gravis, Education, Neuromuscular diseases

Myelin Project

Annotation: The Myelin Project is an international grass roots organization whose mission is to accelerate medical research on myelin repair, in order to help individuals with multiple sclerosis, the leukodystrophies, and other myelin disorders. The project sponsors conferences and produces publications, including a newsletter. Some materials are available in Spanish and French.

Keywords: Central nervous system diseases, Leukodystrophies, Multiple sclerosis, Myelin sheath, Spinal diseases

NAADAC - The Association for Addiction Professionals (NAADAC)

Annotation: NAADAC --The Association for Addiction Professionals (formerly the National Association of Alcoholism and Drug Abuse Counselors) is a membership organization for addiction-focused health care professionals. Founded in 1972, NAADAC is committed to increasing general awareness of alcohol and drug disorders and enhancing care of individuals through treatment, education, and prevention programs. NAADAC offers educational and credentialing opportunities, as well as other support services for addiction professionals. Publications include a newsletter and magazine. NAADAC sponsors conferences and training seminars and offers materials in Spanish.

Keywords: Alcoholism, Substance abuse

Naitonal Center for Bullying Prevention

Annotation: The National Center for Bullying Prevention provides information on the prevention of bullying for elementary, middle and high school students, their parents, and their teachers. Its Web site includes contests for students, a lesson plan to be used in elementary schools which includes animated cartoons, games and other material; handouts; materials that can be purchased, including a curriculum for parents of children with disabilities; and information on the Bullying Prevention Awareness Week. Some of the information is available in Spanish and Somali.

Keywords: Bullying, Violence prevention

National Abortion Federation (NAF)

Annotation: The National Abortion Federation (NAF) is a nonprofit organization of more than 350 institutions that provide abortion services. It serves as a clearinghouse of information on abortion facility services and provides standards, guidelines, education, and training for its members. The federation monitors and seeks to influence educational, legislative, and public policy developments in reproductive health care, and it operates a consumer education hotline that provides reference information and referrals on the medical, legal, and psychological aspects of abortion. NAF sponsors conferences, training seminars, and workshops. Materials are available in Spanish.

Keywords: Abortion, Abortion clinics, Education, Reproductive health

National Adoption Information Clearinghouse (NAIC)

National Adrenal Diseases Foundation (NADF)

Annotation: The National Adrenal Diseases Foundation provides information about adrenal diseases, physician referrals, networking, and support groups. The Foundation hosts a list serve and publishes a quarterly newsletter. Some materials are available in Spanish.

Keywords: Congenital adrenal hyperplasia

National AfterSchool Association (NAA)

Annotation: The National AfterSchool Association (NAA), formerly the National School-Age Care Alliance, is an organization for professionals in the field of after school programs. NAA promotes national quality standards and has a voluntary program accreditation system. Information on accreditation is available in Spanish. The organization has a national network of 36 state affiliates and over 8,000 members and advocates for public policy that supports quality programs. The organization hosts annual national conference and publishes a professional journal.

Keywords: Public policies, School age child care, Training

National Alliance for Hispanic Health (NAHH)

Annotation: The National Alliance for Hispanic Health (NAHH) is a network of Hispanic health and human service providers that focuses on improving the health and well being of Hispanics. The alliance maintains the National Hispanic Family Health Helpline (866-783-2645) which offers Hispanic consumers free reliable and confidential health information in Spanish and English.Services to consumers includes referrals to local sources of information and medical services, inquiry responses, publications, and reference information.

Keywords: Hispanic Americans, Adolescent health, Child abuse, Child health, Education, Information services, Injury prevention, Minority health, Minority health promotion, Resources for professionals, Spanish language materials, Substance abuse, Training

National Alliance of Breast Cancer Organizations (NABCO)

National Alliance on Mental Illness (NAMI)

Annotation: The National Alliance on Mental Illness (NAMI) is a grass-roots, self-help, support and advocacy organization of people with serious mental illness and their families and friends. NAMI's mission is to eradicate mental illness and to improve the quality of life for those who suffer from these no-fault brain diseases. Services provided include: a helpline at (800) 950-NAMI to provide information between 8:30 a.m. and 5:30 p.m.; support for research into etiology, treatments, and a cure for neurobiological brain disorders; support groups for parents, siblings, and children of the mentally ill and consumers of mental health services; educational programs such as the "Family-to-Family" Education program presented in localities nationwide; and technical assistance to affiliates at local and state levels who wish to engage in advocating for the improved, non-discriminatory services for neurobiological brain disorders. Events include regional conferences, an annual convention held each July, and an annual Mental Illness Awareness Week in early October. Publications include a catalog, a bimonthly newsletter,The Advocate (available for the annual membership fee of $25), and Decade of the Brain, (a quarterly publication (available for an annual subscription fee of $20). Some materials are available in Spanish. A free publication, Because Kids Grow Up, focusing on children and adolescents is also available to parents by calling the helpline.

Keywords: Attention deficit disorder, Bipolar disorder, Depression, Hyperactivity, Mental disorders, Mental health, Schizophrenia, Spanish language materials

National Alopecia Areata Foundation (NAAF)

Annotation: The National Alopecia Areata Foundation (NAAF) serves as an international center for information on alopecia areata. The foundation provides services for people with alopecia areata, educates state and federal officials on the need for fairer insurance laws and more government-sponsored research, conducts public awareness programs, sponsors an annual international conference, offers a support group, and raises funds for research on the causes, treatment, and cure of alopecia areata. Publications include informational brochures and a bimonthly newsletter. Materials are available in Spanish, German, Greek, Chinese, Portuguese and French.

Keywords: Alopecia areata, Skin diseases

National Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse (NIAMS Information Clearinghouse)

Annotation: The NIAMS Information Clearinghouse is a public service sponsored by the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) that provides health information and information sources. NIAMS, a part of the National Institutes of Health (NIH), leads the Federal biomedical research efforts in arthritis and musculoskeletal and skin diseases. The Clearinghouse distributes NIAMS publications. Some materials are available in Spanish. Additional information and research updates can be found on the NIAMS web site.

Keywords: Arthritis, Alopecia, Arthroscopy, Ichthyosis, Information dissemination, Lyme disease, Musculoskeletal diseases, Self help clearinghouses, Skin diseases, Women's health

National Association for Continence (NAFC)

Annotation: The National Association for Continence (NAFC) is a nonprofit organization dedicated to improving the quality of life for people with incontinence. NAFC provides education, referrals, advocacy, and support to the public and to the health profession about the causes, prevention, diagnosis, treatment, and management alternatives for incontinence. NAFC produces a quarterly newsletter, resource guide, audiovisuals, books and educational leaflets. Some materials are available in Spanish.

Keywords: Enuresis, Incontinence, Women's Health

National Association for Family Child Care (NAFCC)

Annotation: The National Association for Family Child Care (NAFCC) promotes quality child care by strengthening the profession of family child care. The website provides information on association membership, annual conference, accreditation, and training.

Keywords: Child care, Child health, Family child care

National Association for the Education of Young Children (NAEYC)

Annotation: The National Association for the Education of Young Children (NAEYC) is the nation's largest membership organization of early childhood professionals and others dedicated to improving the quality of services for young children and their families. The Association hosts an annual conference, maintains searchable databases,provides policy-related information and legislative analyses, and administers the National Academy of Early Childhood Programs (a voluntary national accreditation system) and the National Institute for Early Childhood Professional Development. Publications include brochures, books, videotapes, posters, a catalog, a newsletter and the bimonthly journal Young Children. Some materials are available in Spanish.

Keywords: Child care, Child health, Early childhood education

National Association for Visually Handicapped (NAVH)

Annotation: The National Association for Visually Handicapped (NAVH) provides information, referrals, counseling, and guidance for people with partial sight, their families, and concerned professionals and paraprofessionals. Memberships to the association are available for a fee; however, no one is denied services due to inability to pay. The association maintains a large-print lending library with over 9,000 titles and sponsors training seminars. Publications include a quarterly update, catalogs and informational booklets and brochures (most in large print). Some materials are provided in Spanish, Russian, and Chinese.

Keywords: Blindness, Counseling, Information services, Visually impaired

National Association of Child Care Resource and Referral Agencies (NACCRRA)

Annotation: The National Association of Child Care Resource and Referral Agencies (NACCRRA), works with state and local child care resource and referral agencies (CCR&Rs) nationwide to ensure that all families have access to high-quality, affordable child care. NACCRRA's programs and services include training and technical assistance; the Quality Assurance Program, a national, voluntary certification system for CCR&Rs; Child Care Aware, a national toll-free information line and website for families available in English and Spanish; and an annual policy symposium. Products and resources include Early Childhood Focus, a website featuring daily news clippings about child care and child welfare issues; field studies and trend reports; and NACCRAware, an Internet-based child care referral and reporting software program that manages family, child care program, and community data. NACCRRA also hosts the Provider Appreciation Day website. NACCRRA changed its name to Child Care Aware of America in 2012.

Keywords: Child care, Child health, Online databases, Public policies, Referrals

National Association of Family-Based Services (NAFBS)

Annotation: The National Association for Family-Based Services (NAFBS), is a nonprofit, membership based organization committed to making innovative family-based services a permanent part of human services. The association promotes and supports effective, culturally appropriate service to families through advocacy, the exchange of knowledge and skills, and by effecting the design and implementation of humane public policy. Its primary goals are to facilitate the development of state associations and to sponsor and organize an annual conference. The association represents all aspects of the human service field, including public and private voluntary agencies, as well as state and national organizations. Publications are provided to consumers. Some materials are provided in Spanish. The organization publishes a newsletter.

Keywords: Families, Family centered services, Public policies

National Association of People with AIDS (NAPWA)

Annotation: This organization is in bankruptcy as of 2013 and has ceased operation. The website is still available as of 3/19/13.

National Association of School Psychologists (NASP)

Annotation: The National Association of School Psychologists (NASP) is a professional association that works to advance effective practices to improve students’ learning, behavior, and mental health. NASP promotes educationally and psychologically healthy environments for all children and youth by implementing research-based programs to help prevent problems, enhance independence, and promote optimal learning. The association provides training, advocacy, program evaluation, professional services, and an online library that includes a wide range of resources related to the administration of culturally competent services.

Keywords: Professional societies, School psychologists

National Audiovisual Center (NAC)

Annotation: The National Audiovisual Center (NAC) is the primary distribution point for federally produced audiovisual programs. The center responds to inquiries from consumers and professionals. The center's Web site offers online catalogs, product listings, product announcements, an online newsletter, and access to other sites. The Center's publications include a catalog and newsletter. Materials are also available in Spanish language.

Keywords: Audiovisual materials, Federal programs, Spanish language materials, Health education

National Brain Tumor Foundation (NBTF)

Annotation: The National Brain Tumor Foundation (NBTF) was established by a group of brain tumor patients and their families. The foundation supports research, provides information and support services, and sponsors a biennial conference. NBTF publications include Brain Tumors: A Guide, a quarterly newsletter called Search, a publication for parents Understanding your Child's Brain Tumor, Understanding Your Brain Tumor: Glioblastoma Multiforme, several fact sheets, and a directory of support groups in North America. NBTF sponsors conferences, training seminars, workshops, and teleconferences. Some materials are available in Spanish.

Keywords: Brain diseases, Cancer, Brain tumors, Information services, Medical research, Support groups

National Breast Cancer Foundation

National Campaign to Prevent Teen and Unplanned Pregnancy = Power to Decide (NCPTUP)

Annotation: The National Campaign to Prevent Teen and Unpllanned Pregnancy (NCPTUP), founded in 1996 as the National Campaign to Prevent Teen Pregnancy, is a nonprofit, nonpartisan organization which seeks to improve the well-being of children, youth, and families through reducing the rate of adolescent pregnancy by one third by the year 2005. In 2008, the mission was expanded to include unplanned pregnancies among 20-somethings. Resources for professionals include fact sheets, statistical compilations, journal articles, conference proceedings, and individual state data on adolescent pregnancy and adolescent pregnancy prevention. Services to consumers include publications addressed to parents, adolescents, and faith communities. Press releases are also provided to the media. The campaign has a resource bureau that fills requests for speakers, consultants, key contacts in each state, publications, and other resources; some materials are available in Spanish. It's name was changed in December 2017 to Power to Decide.

Keywords: Prevention programs, Abstinence, Adolescent pregnancy, Contraception, Family planning, Public awareness campaigns, Publications, Spanish language materials, Statistics, Young adults

National Cancer Institute (NCI)

Annotation: The National Cancer Institute's (NCI's) Web site Cancer.gov provides accurate, up-to-date information on many types of cancer, information on clinical trials, resources for people dealing with cancer, and information for researchers and health professionals. NCI offers referrals, inquiry responses, publications (including fact sheets, news updates, a journal, and an online catalog), reference information, searchable databases, and training seminars. Some materials are available in Spanish and Asian languages.

Keywords: Cancer, Government financing, Medical research, Online databases

National Capital Lactation Center

Annotation: The National Capital Lactation Center at Georgetown University offers in-hospital services for breastfeeding assistance. The lactation center provides consultation on nursing problems (by telephone) to new breastfeeding mothers. The center exists to support, encourage and clinically assist breastfeeding families from birth throughout the weaning process. Some materials are available in Spanish. Referrals are provided as appropriate.

Keywords: Breastfeeding, Lactation, Milk banks

National Center for Children Exposed to Violence (NCCEV)

Annotation: The National Center for Children Exposed to Violence (NCCEV), founded in 1999, works to increase public and professional awareness of the effects of violence on children and to build the capacity of individuals and communities to reduce the impact of violence. NCCEV offers a Web based resource center which provides access to an on-line library, statistics, publications, and presentations. Training, technical assistance, and consultation are also provided to community programs such as Safe Start, a federally funded initiative which addresses the needs of children ages 0-6 who have been exposed to violence and the Child Development-Community Policing Program (CD-CP), a community collaboration involving law enforcement and mental health agencies.

Keywords: Violence prevention, Child health, Community programs, Interagency cooperation, Mental health, University affiliated centers

National Center for Chronic Disease Prevention and Health Promotion, Office on Smoking and Health (OSH)

Annotation: Established in 1978, the Office on Smoking and Health is the principal federal office for tobacco and health activities. The office administers a national public information program on the hazards of tobacco use, responds to inquiries from consumers and professionals, offers bibliographic and reference services, and publishes and distributes materials on smoking and health. Some publications are available in Spanish. It serves as a World Health Organization Collaborating Center on Tobacco and Health. The Smoking and Health Database is a comprehensive online resource covering the scientific, policy, legal, and historical literature related to smoking and tobacco use. The database contains over 56,000 records and is accessed by researchers, librarians, medical professionals, and the public nationwide.

Keywords: Substance abuse, Health education, Information services, Nicotine, Online databases, Public health, Smokeless tobacco, Smoking, Tobacco

National Center for Cultural Competence (NCCC)

Annotation: The purpose of the National Center for Cultural Competence (NCCC) is to increase the capacity of health and mental health programs to design, implement, and evaluate culturally and linguistically competent service delivery systems. The Center provides technical assistance and consultation, networking opportunities, and information for health professionals and policymakers about designing, implementing, and evaluating culturally competent health services, including services for children with special health care needs and their families. Resources and publications include policy briefs, checklists, self assessments, promising practices, distance learning, and conference information. The center's Web site includes a Spanish language portal for families.

Keywords: Children with special health care needs, Cultural diversity, Cultural sensitivity, Culturally competent services, Guidelines, Infant care, Information networks, Information sources, Linguistic competence, National MCH resource center, Networking, Program development, Program evaluation, Publications, Resource centers, SIDS, Spanish language materials, Title V programs, Training

National Center for Education Statistics (NCES)

Annotation: The National Center for Education Statistics (NCES) provides consumers with referrals, publications, and reference information. It publishes a catalog and sponsors conferences and training seminars. Materials are available in Spanish, French, Asian, and other languages.

Keywords: Data, Education, Statistical surveys, Statistics

National Center for Environmental Health (NCEH)

Annotation: The National Center for Environmental Health (NCEH), a component of the Centers for Disease Control and Prevention (CDC), strives to promote health and quality of life by preventing or controlling those diseases or deaths that result from interactions between people and their environment. Programs and campaigns include vessel sanitation, healthy places, poisoning prevention, and air pollution and resipratory health. Information is also provided on asthma and emergency response. Services to consumers include referrals, reference information and publications, including a newsletter. The center also sponsor conferences and training seminars and workshops. Some materials are available in Spanish.

Keywords: Injury prevention, Congenital abnormalities, Data, Developmental disabilities, Environmental health, Environmental influences, Government financing, Hazardous materials, Lead poisoning, Medical research, Reproductive hazards, Teratology

National Center for Farmworker Health (NCFH)

Annotation: The National Center for Farmworker Health (NCFH) is a private, not-for-profit corporation dedicated to improving the health status of farmworker families by providing information services, training and technical assistance, and a variety of products to community and migrant health centers nationwide, as well as organizations, universities, researchers, and individuals involved in farmworker health. The website provides information about farmworkers and migrant health centers, a library, and training and health education resources. Resources are available in English and Spanish.

Keywords: Migrants, Farm workers, Health services, Information dissemination, Information systems, Migrant Health Centers, Migrant health programs

National Center for Fathering

Annotation: National Center for Fathering (NCF) seeks to inspire and equip men to be better fathers through seminars and small groups. It provides fathering resources through its newsletter and web page. NCF provides direct father training and resources as well as train-the-trainer seminars and resources for those who work with dads. Materials are available in Spanish and Asian languages.

Keywords: Fathers

National Center for Immunization and Respiratory Diseases (NCIRD)

National Center for Infectious Diseases (NCID)

Annotation: The CDC National Center for Infectious Diseases (NCID) is a research organization whose mission is to prevent illness, disability, and death caused by infectious diseases in the United States and around the world. It works with state and local public health agencies, other federal agencies, and international organizations on the prevention, control,and monitoring of infectious diseases. Services to consumers include publications and reference information. Some materials are available in Spanish and French. Publications are available on the Internet for most major infectious diseases of public health concern. NCID also publishes a journal and sponsors conferences and training seminars.

Keywords: Communicable diseases, Data, Disease prevention

National Center for Medical Home Implementation (NCMHI)

Annotation: The National Center for Medical Home Implementation (NCMHI) works to ensure that all children and youth, including children with special needs, have a medical home where health care services are accessible, family-centered, continuous, comprehensive, coordinated, compassionate, and culturally competent. NCMHI provides medical home resources and advocacy materials, technical assistance, and tools to physicians, families, and other medical and non-medical providers who care for children. The Center works in cooperation with federal agencies, particularly the Maternal and Child Health Bureau (MCHB) and other partners and stakeholders to meet its goals and objectives.

Keywords: Children with special health care needs, Medical home, National MCH resource center, Networking, Resource centers, Training

National Center for Missing and Exploited Children (NCMEC)

Annotation: The National Center for Missing and Exploited Children (NCMEC) provides professionals and the public with information and publications concerning missing children, child molestation, child pornography, and child prostitution. The center sponsors a hotline to assist the public in reporting missing and exploited children and in providing information leading to the location of these children. The center also maintains national statistics and information on the incidence of abductions; conducts a training and technical assistance programs; and provides news bulletins, fact sheets, and other resources for parents and guardians, childcare providers, law enforcement officers, and the media. Materials are available in Spanish, Asian languages, and other languages.

Keywords: Intentional injuries, Assault, Child abuse, Child pornography, Child sexual abuse, Family violence, Homicide, Information services, Injury prevention, Missing children, Public education

National Center for Nutrition and Dietetics (NCND)

Annotation: As the American Dietetic Association's public education center, the National Center for Nutrition and Dietetics (NCND) was established in 1990 to provide objective food and nutrition information to the public. NCND provides consumers with direct access to reliable food and nutrition information. Some materials are available in Spanish. Callers to (800) 366-1655 may listen to food and nutrition messages in English or Spanish or receive a referral to a registered dietitian in their area.

Keywords: Dietetics, Nutrition

National Center for School Crisis and Bereavement

Annotation: The National Center for School Crisis and Bereavement was created to promote an appreciation of the role schools can serve to support students, staff ,and families at times of crisis and loss; enhance the training of individuals in school-related professional education programs in the areas of crisis and loss; link efforts to provide trauma-related and bereavement support services within school settings; and collaborate with professional organizations, governmental and non-governmental agencies and community groups to further help students, staff and families at times of crisis and loss. The center provides information, training materials, consultation and technical assistance for school systems, professional training programs, professional organizations, governmental and non-governmental agencies, communities, children's groups and projects in the areas of crisis and loss. Web content can be viewed in both English and Spanish. The center was established in December 2005 with funding from the September 11th Children's Fund and the National Philanthropic Trust. 

Keywords: School health, Bereavement, Communication, Coping, Disasters, Emotional adjustment, Grief, Posttraumatic stress disorder, Professional education, Professional training Spanish language materials, School age children, Support groups, Trauma, Violence

National Center for Sexuality Educators

National Center for Victims of Crime (NCVC)

Annotation: The National Center for Victims of Crime (NCVC) is a nonprofit organization that works to promote the rights and needs of victims of a crime and to educate the public about the devastating effect crime has on society. Training activities and programs developed and executed by the Center include the Stalking Resource Center, which provides training, technical assistance, and information for professionals working with and responding to stalking victims and offenders; the DNA Resource Center, which is a source for training, technical assistance, and information about the use of DNA in the criminal justice system; and a youth initiative, which builds the nation's capacity to support youth victims while working to advance their rights and to ensure youth leadership on issues that affect youth. The center also hosts national conferences and maintains a library of online resource materials.

Keywords: Advocacy, Crime, Technical assistance, Victims

National Center for Youth Law (NCYL)

Annotation: The National Center for Youth Law (NCYL) is a nonprofit organization that provides legal assistance to attorneys and other professionals working on behalf of low-income children and youth. The Center engages in litigation, and provides a range of support services in foster care, juvenile justice, public benefits, and health. Publications include Youth Law News , a journal published six times a year. Some materials are available in Spanish. Services to consumers include referrals and publications. The Center's health care work focuses on mental and adolescent health, including issues in health privacy, access, health services for foster children, and minor consent issues. The center sponsors conferences and training seminars.

Keywords: Adolescents, AIDS, Access to health care, Advocacy, CSHN programs, Confidentiality, Drug affected infants, Financing, Foster care, Legal assistance, Low income groups, Public policies, Support groups

National Center on Birth Defects and Developmental Disabilities (NCBDDD)

Annotation: The National Center on Birth Defects and Developmental Disabilities (NCBDDD) is a federal agency within the Centers for Disease Control and Prevention. Activities include surveillance, research, technical assistance to states, and provision of information and education to the public. Topics include: causes of birth defects (including causes, having a healthy pregnancy, folic acid, and fetal alcohol syndrome); developmental disabilities (austism spectrum disorders, cerebal palsy, vision impairment, hearing loss, mental retardation), helping children develop and reach their full potential (child development, early hearing detection and intervention, attention deficit hyperactivity disorder, Duchenne Becker Muscular Dystrophy), and promoting health and well-being among people of all ages with disabilities (disability and health, hereditary blood disorders, and woment with disability). NCBDDD publishes a newsletter and a journal and sponsors conferences, training seminars, and workshops. Some publications and the Web site are available in Spanish.

Keywords: Congenital abnormalities, Data, Developmental disabilities, Disease prevention, Environmental health, Human development, Pregnancy, Prenatal care, Teratology

National Child Care Information and Technical Assistance Center (NCCIC)

Annotation: The National Child Care Information and Technical Assistance Center (NCCIC), established by the Child Care Bureau, Administration for Children and Families (ACF), DHHS, is a national resource that links information and people to complement, enhance and promote the child care delivery system, working to ensure that all children and families have access to high-quality comprehensive services. NCCIC's activities include dissemination of child care information in response to requests from states, territories and tribes, other policy makers, child care organizations, providers, business communities, parents, and the general public; outreach to ACF child care grantees and the broader child care community; publications on key child care issues; and coordination of National Leadership Forums, which provide an opportunity for experts from across the country to participate in one-day conferences on critical issues affecting children and families. Working closely with ACF Regional offices, the NCCIC also provides technical assistance to states through a network of state technical assistance specialists. Many materials produced and distributed by NCCIC are available in Spanish. The center also publishes a newsletter and sponsors conferences. The National Child Care Information Center Online Library contains summaries and availability information for publications of interest to policymakers, administrators, practitioners, parents, researchers, and other members of the child care community. The Online Library includes records of publications from the NCCIC Child Care Library and selected records from the ERIC Clearinghouse system. Links are provided to publications available on the Internet. Subject areas include: literacy and school readiness, center and family based child care, child development, curricula, child care funding, health and safety in child care settings, child care workforce, child care for children with special needs, the Head Start program, prekindergarten, issues related to family and child well-being, families and work, and impacts of welfare reform on child care. The Online Library contains records for documents dating from the 1970s to the present and is updated weekly.

Keywords: Child care, Access to health care, Child health promotion, Conferences, Family centered care, Federal agencies, Health care financing, Information services, Licensing, Outreach, Publications, State agencies, Statistics

National Clearinghouse for Alcohol and Drug Information (NCADI)

Annotation: A service of the Substance Abuse and Mental Health Services Administration (SAMHSA), SAMHSA’s National Clearinghouse for Alcohol and Drug Information (NCADI ) is the Nation’s primary resource for information about substance abuse prevention and addiction treatment. Free and low-cost information, publications, and multimedia resources are available 24 hours a day, 7 days a week, through toll-free phone service in English and Spanish. NCADI’s resources and Library databases are also accessible online. Materials are available in Spanish and Asian languages. Anyone can sign up to receive electronic news updates. The on-site Resource Library is open to the public, 9 a.m. to 5 p.m. Monday through Friday.

Keywords: Alcohol abuse, Drug abuse, Substance abuse prevention programs

National Clearinghouse on Family Support and Children's Mental Health

National Coalition Against Domestic Violence (NCADV)

Annotation: The National Coalition Against Domestic Violence (NCADV) is a network of shelters and support services for battered women and their children. The coalition's Washington office handles public policy, while the national office handles membership, publications, public relations, and fundraising activities. The Coalition sponsors conferences and training seminars; publishes a newsletter, catalog, and journal; and provides referrals (however, NCADV does not provide direct services; if you need to locate a shelter or specific service in your area, contact your state coalition, posted on the NCADV Web site). Some materials are available in Spanish, Portuguese, and Asian languages. For public policy information, contact the Washington, DC office at 1633 Q St, NW, Washington, DC, 20009, (202) 745-1211(phone), (202) 745-0088 (fax).

Keywords: Domestic violence, Battered women, Children, Support groups, Women

National Coalition for Cancer Survivorship (NCCS)

Annotation: The National Coalition for Cancer Survivorship (NCCS) is a survivor-led advocacy organization that works exclusively on behalf of the country's more than 9 million cancer survivors and the millions more touched by this disease. Founded in 1986, NCCS raises awareness of cancer survivorship through educational outreach efforts, works to empower cancer survivors, and advocates for quality cancer care for all Americans. Services to consumers include referrals and publications including the Cancer Survival Toolbox. Materials are available in Spanish. The oranization also sponsors workshops, conferences, and an open listserv (anyone can join by e-mailing membership@canceradvocacy.org).

Keywords: Cancer, Chronic illnesses and disabilities, Listservs, Support groups

National Coalition of Advocates for Students, Clearinghouse for Immigrant Education (NCAS / CHIME)

Annotation: Operated by the National Coalition of Advocates for Students (NCAS), the Clearinghouse for Immigrant Education (CHIME) is an interactive clearinghouse and networking service that facilitates access to educational materials, organizations, and individuals concerned with the effective education of immigrant students, students of color, low-income students or those with special needs. NCAS itself has a project on HIV/AIDS education with migrant farm workers. Publications include the Mobilization for Equity newsletter, free bibliographies on current educational topics, some articles, research reports on current education topics, and information on NCAS reports and projects. Some materials are available in Spanish, Haitian Creole, and Asian languages.

Keywords: Adolescents, Children, Education, Immigrant health, Psychosocial development

National Council For Adoption (NCFA)

Annotation: The National Council for Adoption (NCFA) is an adoption advocacy nonprofit organization serving adoptive parents, birthparents, adoptive professionals, and agencies by advocating for the positive option of adoption through education, research, and legislative action. NCFA serves as an adoption information clearinghouse, offering referrals, publications, reference information, and online training tools. Some materials are available in Spanish. NCFA also sponsors conferences.

Keywords: Adoption, Adoptive parents, Biological parents, Adopted children, Legislation

National Council of La Raza (NCLR)

Annotation: The National Council of La Raza (NCLR) is a civil rights and advocacy organization that works to improve the lives of Hispanic Americans, including their access to health care, education, financial independence, and home ownership. NCLR's activities include public policy analysis; applied research; health education; advocacy to influence policies and program that equitably address the needs of the Hispanic community; and public information efforts that present accurate, positive images of Hispanic Americans. The council sponsors conferences and training seminars,; publishes issue briefs, fact sheets, and reports; and provides referrals to consumers. Some materials are available in Spanish.

Keywords: Minority groups, Advocacy, Health promotion, Hispanic Americans, Information services, Mexican-Americans, Public policies

National Council of LaRaza's Center for Health Promotion

Annotation: The National Council of LaRaza's Center for Health Promotion (CHP) works to increase the access of Hispanics to health care and to provide health materials and capacity-building assistance to Hispanic community-based organizations. Maternal and Child Health Programs works to enhance and improve public information efforts concerning immunization to the Hispanic community and to disseminate its newly designed manual , which contains information on topics like breastfeeding, nutrition, child development, and child abuse. Services to consumers include referrals, reference information, and publications,and some materials are available in Spanish. MCH Programs sponsors conferences and publishes a catalog and newsletter.

Keywords: Health education, Hispanic Americans, Minority health, Outreach, Training

National Council on Patient Information and Education (NCPIE)

Annotation: The National Council on Patient Information and Education (NCPIE) is a nonprofit coalition of organizations working to stimulate and improve communication on the appropriate use of medicines to consumers and health care professionals. The Council provides materials in Spanish and Asian languages, publishes a catalog and a newsletter, and sponsors conferences.

Keywords: Drug education, Medicine, Prescription drugs

National Crime Prevention Council (NCPC)

Annotation: The National Crime Prevention Council (NCPC) is a private, nonprofit organization whose principal mission is to enable people to prevent crime and build safer, more caring communities. NCPC produces tools that communities can use to learn crime prevention strategies, engage community members, and coordinate with local agencies, including publications and teaching materials on a variety of topics; programs that can be implemented in communities and schools; local, regional, and national trainings; and public service announcements. NCPC manages the McGruff "Take a Bite Out of Crime" public service advertising campaign and other aspects of the National Citizens' Crime Prevention Campaign including publications, training, and technical assistance. Many of NCPC's publications can be downloaded from the Web site; others can be ordered through the online bookstore.

Keywords: Crime prevention

National Cytomegalovirus (CMV) Registry

Annotation: Services to parents and health care professionals include referrals, publications, and reference information. The CMV Registry publishes an annual newsletter and a general informational brochure What Everyone Should Know about CMV (available in English and Spanish). In addition, the CMV Registry offers a parent-to-parent support network.

Keywords: Cytomegalovirus

National Dairy Council (NDC)

Annotation: The National Dairy Council (NDC) is the nutrition marketing arm of Dairy Management Inc. devoted to nutrition education. It works to encourage food selection patterns that include dairy foods and other major food categories, in accordance with scientific recommendations. Services include nutrition education programs and materials. The council publishes a variety of print and audiovisual materials, including a scientific review newsletter available on-line, Dairy Council Digest , a pregnancy calendar, Great Beginnings, and a feeding guide, Airplane, Choo-Choo and Other Games Parents Play. A free catalog is available upon request. Some publications are available in Spanish.

Keywords: Nutrition, Adolescents, Educational materials, Food preferences, Nutrition education, Young children

National Diabetes Information Clearinghouse (NDIC)

Annotation: The National Diabetes Information Clearinghouse (NDIC) is an information and referral service of the National Institute of Diabetes and Digestive and Kidney Diseases, one of the National Institutes of Health. The clearinghouse responds to written inquiries, develops and distributes publications about diabetes, and provides referrals to diabetes organizations. The NDIC maintains a database of patient and professional educational materials from which literature searches are generated. The clearinghouse will provide bulk orders of publications to health and information professionals planning patient health education programs at a minimal cost. Some publications are available in Spanish. The organization also sponsors an email newsletter Diabetes Dateline.

Keywords: Diabetes, Digestive system diseases, Kidney diseases, Metabolic diseases, Self help clearinghouses

National Digestive Diseases Information Clearinghouse (NDDIC)

Annotation: The National Digestive Diseases Information Clearinghouse (NDDIC) is an information and referral service of the National Institute of Diabetes and Digestive and Kidney Diseases, one of the National Institutes of Health. A central information resource on the prevention and management of digestive diseases, the clearinghouse responds to written inquiries, develops and distributes publications about digestive diseases, and provides referrals to digestive disease organizations, including support groups. The NDDIC maintains a database of patient and professional educational materials from which literature searches are generated. The clearinghouse will provide bulk orders of publications at a minimal cost to health and information professionals planning patient health education programs. Publications include a catalog and newsletter. Some materials are available in Spanish.

Keywords: Digestive system diseases, Gastrointestinal diseases, Self help clearinghouses, Support groups

National Dissemination Center for Children with Disabilities (NICHCY)

Annotation: The National Dissemination Center for Children with Disabilities (NICHCY) assists parents, educators, caregivers, and others in ensuring that all children and youth with disabilities have better opportunities to reach their full potential. The center provides personal responses to specific questions in either English or Spanish, referrals to other organizations, information packets, publications (including eNews), and technical assistance to parent and professional groups. A catalog is available. There is a nominal fee for some publications. Some materials are available in Spanish. State resource sheets list agencies and organizations for parents and professionals that address disability-related issues in each state. A research-to-practice database extracts key findings from research studies, presents implications for practice, and includes additional resources on the topics of the research. Note: Funding ended Sept. 30, 2013. Website will remain available until Sept. 30, 2014. NOTE 2/13/14: This is an update about NICHCY and its resources. The Center for Parent Information and Resources (CPIR) is serving as the new hub of information and resources for the Parent Training Information (PTI) Centers and the Community Parent Resource Centers (CPRCs) in each state. Think of the PTIs and CPRCs (loosely) as the early intervention/special education equivalent of the Family to Family Health Information Centers. CPIR is building its collection of resources. According to Debra Jennings, Dir of CPIR (see correspondence below), the NICHCY resources are being moved to CPIR. But, it's still a work in progress.

Keywords: Early intervention, Adolescents, Children with special health care needs, Family centered services, Health promotion, Information sources, Nuvee, Parenting, Program descriptions, Publications, Research, Resource centers, Spanish language materials, Special education

National Down Syndrome Congress (NDSC)

Annotation: The National Down Syndrome Congress (NDSC) serves as a clearinghouse on all aspects of Down syndrome and provides inquiry responses and referrals to local parent organizations, statewide organizations, and agencies serving people with disabilities. Affiliated parent groups provide local parent support and enhance public awareness of Down syndrome. Publications include Facts About Down Syndrome; Down Syndrome, a bibliography of materials on Down syndrome; and Down Syndrome News, a newsletter produced 10 times a year. Some materials are available in Spanish. The organization sponsors an annual conference and training seminars.

Keywords: Chromosome abnormalities, Down syndrome, Genetic disorders, Information services, Mental retardation

National Down Syndrome Society (NDSS)

Annotation: The National Down Syndrome Society (NDSS) provides education, research, and advocacy in its efforts to ensure that all people with Down syndrome have the opportunity to achieve their full potential in community life. NDSS maintains an Information & Referral Center which responds to questions from parents, professionals, and other interested individuals. NDSS also maintains a List Serve for parents of children with Down Syndrome, sponsors workshops and an annual conference, and produces a quarterly newsletter and educational materials about Down syndrome. Some materials are available in Spanish.

Keywords: Mental retardation, Chromosome abnormalities, Down syndrome, Genetic disorders, Information services, Public awareness materials

National Eating Disorders Association (NEDA)

Annotation: The National Eating Disorders Association (NEDA) is a nonprofit eating disorders prevention and advocacy organization, which was formed when Eating Disorders Awareness and Prevention joined forces with the American Anorexia Bulimia Association in 2001. NEDA operates a toll-free information and referral helpline, linking callers to information and treatment programs. The association's searchable database of more than 600 treatment providers throughout the US and Canada is also available on the Web site. Spanish-language materials are available. NEDA distributes school-based programs and curricula, including Healthy Body Image GO Girls!, hosts National Eating Disorders Awareness Week, and sponsers 5-Day Lesson Plan, to school districts throughout the nation. NEDA also publishes a newsletter and sponsors an information clearning house and a national conference.

Keywords: Anorexia nervosa, Bulimia, Eating disorders, Spanish language materials

National Education Association (NEA)

Annotation: The National Education Association (NEA), a professional employee organization, works to advance public education. NEA's members work at every level of education—from pre-school to university graduate programs. NEA has affiliate organizations in every state and in communities across the United States.

Keywords: School health

National Education Association Healthy Futures (NEA Healthy Futures)

Annotation: NEA Healthy Futures is a nonprofit organization affiliated with the National Education Association (NEA). Originally founded in 1987 as the National Education Association Health Information Network (NEA HIN),NEA Healthy Futures provides health and wellness solutions, advocacy tools, and funding and resource opportunities for NEA members and the education community at large.

Keywords: School health

National Emergency Medicine Association (NEMA)

Annotation: The National Emergency Medicine Association (NEMA) provides information on a wide variety of health related topics. Its work is conducted through special programs including: National Heart Council, National Stroke Council, Seniors Life Council, and Kids Do Matter. NEMA is the producer of The Heart of the Matter, a daily radio health program. Through its special program, Kids Do Matter, it published The Little Book of Parenting. It also produced and distributes In A Flash, the youth gun violence prevention video and program targeted to middle school-aged youth. Brochures are available and some materials are available in Spanish. The organization also publishes a newsletter.

Keywords: Emergency medical services, Emergency medicine, Hospital emergency services, Prevention programs

National Eye Institute (NEI)

Annotation: The National Eye Institute (NEI) supports and conducts research on the prevention, diagnosis, rehabilitation, and treatment of eye disorders. NEI responds to consumer inquiries and produces publications include reports on research supported by the Institute, public education materials, and patient brochures. Some materials are available in Spanish.

Keywords: Blindness, Vision disorders

National Federation of Families for Children's Mental Health (FFCMH)

Annotation: The National Federation of Families for Children's Mental Health is a national parent-run organization focusing on the needs of children and youth with emotional, behavioral, or mental disorders and their families. The federation advocates for research, prevention, early intervention, family support, education, transition services, and other services needed by these children and youth and their families. Publications (a newsletter) are available to consumers, and some resources are available in Spanish. The organization sponsors conferences and training seminars.

Keywords: Adolescents, Advocacy, Children, Families, Mental health, Parent groups, Youth

National Fire Protection Association (NFPA)

Annotation: The National Fire Protection Association (NFPA) is a nonprofit organization dedicated to reducing the worldwide burden of fire and other hazards on the quality of life. The association produces fire and life safety publications for sale to the general public. Some materials are available in Spanish and French. NFPA publishes curriculum materials for classroom use including the Learn Not to Burn Curriculum, teaching fire and burn safety for preschool through grade eight, and Risk Watch, a curriculum designed to teach unintential injury prevention for preschool through grade eight. A catalog of materials and implementation tools for Risk Watch can be found on NFPA's Web site.

Keywords: Fire prevention, Safety

National Food Service Management Institute (NFSMI)

Annotation: The National Food Service Management Institute (NFSMI), part of the School of Applied Science at The University of Mississippi, is a federally-funded national center dedicated to applied research, education and training, and technical assistance for child nutrition programs. NFSMI offers onsite training seminars and online courses designed to support the professional development of child nutrition program and child care personnel at all levels of responsibility. The Institute also delivers free training resources that managers can use to train their staff. The Applied Research Division conducts comprehensive, needs-based studies that focus on areas that directly impact the success of child nutrition programs. NFSMI also operates a Help Desk that provides a direct link to experts who can answer a wide range of questions on all aspects of child nutrition program management.

Keywords: Child nutrition, Food safety, Food service

National Foundation for Ectodermal Dysplasias (NFED)

Annotation: The National Foundation for Ectodermal Dysplasias (NFED) empowers and connects people touched by ectodermal dysplasias through education, support, and research. NFED provides information to families, caregivers, researchers, teachers, coaches, and others. The foundation partners with universities and private practices across the United States to increase access to quality and affordable health care for individuals affected by ectodermal dysplasias including oral health care. NFED publishes a quarterly newsletter, a medical guide series, children's books, and more. The website includes news and information about events, programs, an international registry, research grants, and scientific meetings.

Keywords: Dental care, Ectodermal dysplasia, Financial support, Information services, Oral health, Skin diseases

National Foundation for Infectious Diseases (NFID)

Annotation: Established in 1973, the National Foundation for Infectious Diseases (NFID) is a nonprofit, nongovernmental organization that supports research and educational efforts to prevent infectious diseases. Provides information on Meningitis, Pertussis, Tetanus, Diphtheria, Influenza, Pneumococcal, and other infectious diseases; downloadable fact sheets on immunization and vaccinations for infants children, adolescents, and adults; online access to NFID publications including a newsletter and journal; and links to other resources. Some materials are available in Spanish. The foundation also sponsors conferences, workshops, and training seminars.

Keywords: AIDS, Communicable diseases, Hepatitis, Immunization, Infections

National Fragile X Foundation (NFXF)

Annotation: Established in 1984, the National Fragile X Foundation (NFXF) is a nonprofit organization that informs professionals, parents, and the public about the diagnosis and treatment of Fragile X syndrome. The foundation supports related research and clinical applications, organizes support groups for parents nationwide, provides referrals, holds biannual international conferences for professionals and parents, sponsors training seminars and publishes a quarterly newsletter. Some materials are available in Spanish.

Keywords: Chromosome abnormalities, Fragile X syndrome, Genetic disorders, Genetics, Biochemical genetics, Medical research, Mental retardation, X-linked mental retardation

National Gaucher Foundation (NGF)

Annotation: The National Gaucher Foundation (NGF) promotes and supports medical research and clinical programs to find a cure for Gaucher disease. The foundation works to increase public awareness of Gaucher disease through an educational campaign and provides information and assistance to self-help groups. Services to consumers include referrals, publications, and reference information. NGF sponsors regional programs and publishes the Gaucher Disease Newsletter. The Foundation also offers pamphlets, materials on genetic background, and audiovisual materials. Some materials are available in Spanish and Russian.

Keywords: Gauchers disease, Metabolic diseases

National Head Start Association (NHSA)

Annotation: The National Head Start Association (NHSA) is a private, nonprofit membership organization of parents, staff members, directors, and representatives from each of the 12 federal regions. The association represents 750,00 children, 139,000 staff members, and more than 2,050 Head Start programs. Services to consumers include referrals, publications, and reference information. NHSA publishes a catalog, newsletter, and journal and sponsors conferences and training seminars. The Association also advocates policies. Some materials are available in Spanish.

Keywords: Child care, Child health, Early childhood education, Head Start, Nuvee

National Health Information Center (NHIC)

Annotation: The National Health Information Center (NHIC) is a health information referral service that links people to organizations that provide reliable health information. The Health Information Resource Database includes organizations and government offices that provide health information upon request. Entries include contact information, short abstracts, and information about publications and services the organization provides. NHIC also provides key support for the healthfinder.gov website, a gateway to consumer health information in English and Spanish.

Keywords: Health education, Databases, Federal agencies, Health promotion, Information sources, Online databases, Publications, Reference materials, Referrals, Referrals, Self help clearinghouses

National Health Law Program (NHeLP)

Annotation: The National Health Law Program (NHeLP) is a national support center that provides technical assistance to advocates of low-income adults, minorities, the elderly, and people with disabilities. Attorneys provide expertise on Medicaid, managed care, EPSDT, rights of AIDS patients, insuring the uninsured, maternal and infant care access, and state and local government responsibility for care. Many of NHeLP's publications can be downloaded free of charge from the Web site. Services for consumers include referrals, reference information, and publications. Materials are available in Spanish and some Asian languages. NHeLP also maintains a consumer-oriented Web site, http://www.healthcarecoach.com, which provides information on keeping health care costs down, dealing with health insurance issues, and numerous health care issues. The program also has offices in Los Angeles, California (main office) and in Chapel Hill, North Carolina.

Keywords: EPSDT, Legislation, Managed care, Medicaid, Medicare, Public policies

National Health Law Program (NHeLP)

Annotation: The National Health Law Program (NHeLP) is a national support center that provides technical assistance to advocates of low-income adults, minorities, the elderly, and people with disabilities. Attorneys provide expertise on Medicaid, managed care, EPSDT, rights of AIDS patients, insuring the uninsured, maternal and infant care access, and state and local government responsibility for care. Many of NHeLP's publications can be downloaded free of charge from the Web site. Services for consumers include referrals, reference information, and publications. Materials are available in Spanish and some Asian languages. NHeLP also maintains a consumer-oriented Web site, http://www.healthcarecoach.com, which provides information on keeping health care costs down, dealing with health insurance issues, and numerous health care issues. The program also has offices in Chapel Hill, North Carolina and in Washington, DC.

Keywords: EPSDT, Legislation, Managed care, Medicaid, Medicare, Public policies

National Health Law Program, North Carolina Office (NHeLP)

Annotation: The National Health Law Program (NHeLP) is a national support center that provides technical assistance to advocates of low-income adults, minorities, the elderly, and people with disabilities. Attorneys provide expertise on Medicaid, managed care, EPSDT, rights of AIDS patients, insuring the uninsured, maternal and infant care access, and state and local government responsibility for care. Many of NHeLP's publications can be downloaded free of charge from the Web site. Services for consumers include referrals, reference information, and publications. Materials are available in Spanish and some Asian languages. NHeLP also maintains a consumer-oriented Web site, http://www.healthcarecoach.com, which provides information on keeping health care costs down, dealing with health insurance issues, and numerous health care issues. The program also has offices in Los Angeles, California (main office) and in Washington, DC.

Keywords: EPSDT, Legislation, Managed care, Medicaid, Medicare, Public policies

National Health Resource Center on Domestic Violence

Annotation: The National Health Resource Center on Domestic Violence focuses on strengthening health care response to domestic violence. The Center provides resources, training materials, and technical assistance to health care professionals, domestic violence experts, survivors, and policy makers at all levels. The center provides an online toolkit for health care providers and DV advocates to prepare a clinical practice to address domestic and sexual violence, including screening instruments, sample scripts for providers, patient and provider educational resources. The Center also hosts national conferences and produces an e-bulletin, an online materials index, and a webinar series. Materials are available in Spanish, Asian, and other languages.

Keywords: Asian language materials, Domestic violence, Foreign language materials, Information services, Injury prevention, Spanish language materials, Women's health

National Healthy Mothers, Healthy Babies Coalition (HMHB)

Annotation: The National Healthy Mothers, Healthy Babies Coalition (HMHB) improves the health and safety of mothers, infants, and families through education and collaborative partnerships of public and private organizations. Enhanced by a network of state and local coalitions, HMHB creates partnerships among community groups, nonprofit organizations, professional associations, businesses, and government agencies. Products include a weekly newsletter; educational materials on family planning, pregnancy, and parenting; Q &A articles with various authorities on health; and a maternal and child health webinar series. HMHB also sponsors the national public awareness campaigns Healthy Beginnings for Babies and text4baby -- free weekly messages delivered by mobile device in English or Spanish to help pregnant women and new parents through pregnancy and their baby's first year.

Keywords: Infant health, Advocacy, Child health, Health education, Maternal health, Pregnant women, Prenatal care, Spanish language materials

National Heart, Lung, and Blood Institute Health Information Center (NHLBI)

Annotation: The National Heart, Lung, and Blood Institute (NHLBI) Health Information Center is a federal information and referral resource that responds to inquiries and disseminates information and publications on cholesterol, high blood pressure, asthma, heart disease, exercise, obesity, sleep disorders, stroke, sarcoidosis, and Raynaud's phenomenon. Some materials are available in Spanish. Clinical practice guidelines for health professionals are available on high blood cholesterol, high blood pressure, asthma, and obesity. Serial publications include HeartMemo, which provides program updates for health professionals about cholesterol, high blood pressure, and heart attack, and AsthmaMemo, which describes the activities of the National Asthma Education and Prevention Program. Publications can be accessed using the online catalog or ordered from NHLB in print format.

Keywords: Hypertension, Asthma, Blood and lymphatic diseases, Blood pressure disorders, Cardiovascular diseases, Heart diseases, Hematologic diseases, Information dissemination, Lung diseases, Respiratory diseases, Sleep disorders, Smoking

National Highway Traffic Safety Administration (NHTSA)

Annotation: The National Highway Traffic Safety Administration (NHTSA) publishes brochures and conducts public education programs that promote child passenger safety. It operates a toll-free telephone service that handles consumer complaints on child safety seats and other automotive safety technologies and provides information on product recalls. NHTSA produces a traffic safety materials catalog. Some publications are available in Spanish. The organization maintains specialized sections for impaired driving, distracted driving, seat belts, teen driving, and child safety. The website can be viewed in English and Spanish.

Keywords: Injury prevention, Car seats, Child safety, Consumer education, Health promotion, Information services, Motor vehicle safety, Safety, Seat belts, Spanish language materials, Spanish language website.

National Highway Traffic Safety Administration, School Bus Safety Program (NHTSA)

National Hispanic Medical Association (NHMA)

Annotation: the National Hispanic Medical Association (NHMA) in a non profit association addressing the interests and concerns of licensed Hispanic physicians in the United States. NHMA provides policymakers and health care providers with information and support in strengthening health service delivery to Hispanic communities across the nation. The association hosts conferences, offers leadership programs and initiatives;,and provides access to online information and resources for health professionals and patients. NHMA also participates in an obesity and diabetes initiative in partnership with the Office of Minority Health, U.S. Department of Health and Human Services.

Keywords: Professional societies, Hispanic Americans, Medical education, Physicians, Spanish language materials

National Hospice and Palliative Care Organization (NHPCO)

Annotation: The National Hospice and Palliative Care Organization (NHPCO) is the largest national nonprofit membership organization representing hospice and pallative care. NHPCO works towards improving end of life care and expanding access to hospice care with the goal of enhancing quality of life for people dying in America and their loved ones. It also develops public and professional educational programs, technical assistance and training curricula. NHO produces a number of publications, and publishes a catalog, a newsletter, and a journal. Materials are available in Spanish. NHO also sponsors conferences and training seminars.

Keywords: Hospices, Terminal illness

National Information Center on Health Services Research and Health Care Technology (NICHSR)

Annotation: The National Information Center on Health Services Research and Health Care Technology (NICHSR) at National Library of Medicine (NLM) coordinates NLM's activities in health services research (HSR) by improving access to HSR results, including practice guidelines and technology assessments; by improving access to data and other information needed by the creators of HSR; and by contributing to the information infrastructure needed to foster computer-based patient record systems. The HealthSTAR (Health Services, Technology, Administration, and Research) database contains references to the published literature of health services research. The HSRProj (Health Services Research Projects in Progress) database contains data on research in progress, before results are available in published form. HSTAT (Health Services Technology Assessment Text) provides free electronic access to the full text of clinical practice guidelines, technology assessments, and related documents. Services to consumers include referrals, publications and reference information. Some materials available in Spanish, French, Asian and other languages.

Keywords: Health services, Information dissemination, Research

National Inhalant Prevention Coalition (NIPC)

Annotation: The National Inhalant Prevention Coalition (NIPC) is a public-private effort to promote awareness and recognition of the problem of inhalant use. NIPC serves as an inhalant referral and information clearinghouse, stimulates media coverage about inhalant issues, develops informational materials, produces ViewPoint (a quarterly newsletter), provides training and technical assistance, and leads a week-long national grassroots inhalant education and awareness campaign, the National Inhalants and Poisons Awareness Week. A spanish-language version of the website is also available.

Keywords: Inhalants, Consumer education, Prevention, Substance abuse prevention programs

National Institute for Occupational Safety and Health (NIOSH)

Annotation: The National Institute for Occupational Safety and Health (NIOSH) is the federal agency responsible for conducting research and making recommendations for the prevention of work-related injury and illness. NIOSH responds to inquiries from consumers for referrals and reference information and provides technical assistance for its research programs. Publications include an electronic newsletter, a science blog, and a variety of downloadable brochures and other documents (many materials are available in Spanish). The Institute also maintains a listserv and sponsors conferences, workshops, and training seminars.

Keywords: Occupational safety and health, Agricultural injuries, Data, Environmental exposure, Federal initiatives, Injury prevention, Prenatal care, Public education, Regulations, Reproductive hazards, Reproductive health, Resources for professionals, Women's health, Workplace health promotion

National Institute of Allergy and Infectious Diseases (NIAID)

Annotation: The National Institute of Allergy and Infectious Diseases (NIAID) conducts and supports research on allergic, immunologic, and infectious diseases and conditions, including those caused by possible agents of bioterrorism. Institute staff responds to inquiries from consumers and professionals and distributes information materials. Some materials are available in Spanish.

Keywords: AIDS, Allergies, Asthma, Communicable diseases, HIV, Immunology, Information dissemination, Medical research, Sexually transmitted diseases

National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)

National Institute of Dental and Craniofacial Research, National Oral Health Information Clearinghouse (NOHIC)

National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)

Annotation: The National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) supports a wide range of medical research through grants to universities and other medical research institutions across the country. The Institute also supports government scientists who conduct basic, translational and clinical research across a broad spectrum of research topics and serious, chronic diseases and conditions related to the institute's mission. In addition, the NIDDK supports research training for students and scientists at various stages of their careers and a range of education and outreach programs to bring science-based information to patients and their families, health care professionals and the public.

Keywords: Diabetes, Cystic fibrosis, Digestive system diseases, Endocrine disorders, Information dissemination, Kidney diseases, Medical research, Medical research, Metabolic diseases

National Institute of Environmental Health Sciences (NIEHS)

Annotation: The National Institute of Environmental Health Sciences (NIEHS) works to reduce the burden of human illness and disability by understanding how the environment nfluences the development and proression of human disease. NIEHS publishes the peer-reviewed journal Environmental Health Perspectives and provides online access to downloadable resources such as studies and eports. The NIEHS Library maintains a searchable online catalog and provides links to consumer health materials and resources for researchers. Some materials are available in Spanish and Chinese.

Keywords: Environmental health, Chemicals, Information services, Lead poisoning, Medical research, Public health, Toxicology

National Institute of General Medical Sciences (NIGMS)

Annotation: The National Institute of General Medical Sciences (NIGMS) supports research that increases the understanding of life processes and lays the foundation for advances in disease diagnosis, treatment, and prevention. NIGMS-funded researchers seek to answer important scientific questions in fields such as cell biology, biophysics, genetics, developmental biology, pharmacology, physiology, biological chemistry, bioinformatics, computational biology, selected studies in the behavioral sciences, and specific cross-cutting clinical areas that affect multiple organ systems. NIGMS also provides leadership in training the next generation of scientists to assure the vitality and continued productivity of the research enterprise. The organization responds to inquiries and provides reference information for consumers. NIGMS produces publications, including school resources, an image gallery, an electronic newsletter, fact sheets, and reports, (some materials are available in Spanish) and sponsors conferences, training seminars, and workshops.

Keywords: Biochemical genetics, Genetics, Medical research

National Institute of Mental Health (NIMH)

Annotation: The National Institute of Mental Health (NIMH), a component of the National Institutes of Health, conducts and supports research that seeks to understand, treat, and prevent mental illness. The Institute's public inquiries line is staffed with information specialists who respond to requests from the lay public, clinicians, and the scientific community with a variety of publications. These include printed materials on such subjects as basic behavioral research, neuroscience of mental health, rural mental health, children's mental disorders, schizophrenia, depression, bipolar disorder, attention deficit hyperactivity disorder, eating disorders, autism, Alzheimer's disease, and panic disorder, obsessive-compulsive disorder, post-traumatic stress disorder, social phobia and other anxiety disorders. Information on NIMH-sponsored meetings, workshops, and symposia, and a list of NIMH publications, including several in Spanish, is available on the institute's Web site. The public can subscribe to the NIMH E-News listserv on the Web site for periodic updates on NIMH activities, programs, and publications.

Keywords: Mental health, Education, Health promotion, Listservs, Mental disorders

National Institute of Neurological Disorders and Stroke (NINDS)

Annotation: The National Institute of Neurological Disorders and Stroke (NINDS) responds to inquiries from consumers and professionals, provides information and publications, and conducts and supports research and training on the causes, prevention, diagnosis, and treatment of neurological disorders. A publications list is available. Some materials are available in Spanish. The Institute also sponsors conferences.

Keywords: Nervous system diseases, Strokes

National Institute on Aging Information Center (NIA)

Annotation: The National Institute on Aging (NIA) Information Center responds to public inquiries and provides information and free publications on health issues related to the aging process and the special problems and needs of older people. Some publications are available in Spanish. A listing of all publications is available upon request.

Keywords: ???, ??Women's health, Aging, Alzheimers disease, Geriatrics

National Institute on Alcohol Abuse and Alcoholism (NIAAA)

Annotation: The National Institute on Alcohol Abuse and Alcoholism (NIAAA) conducts and supports biomedical and behavioral research on the causes, consequences, treatment, and prevention of alcohol-related problems. The institute disseminates research results through the Alcohol Epidemiologic Data System and ETOH, a bibliographic database of more than 100,000 records of alcohol research findings. Publications include the quarterly journal Alcohol Research and Health and reports, monographs, and bulletins such as Alcohol Alert for clinicians and other health professionals. Some materials are available in Spanish. A catalog is also available. The organization sponsors conferences and training seminars.

Keywords: Substance abuse, Alcohol related injuries, Alcoholism, Information dissemination, Medical research, Spanish language materials

National Institute on Deafness and Other Communication Disorders Information Clearinghouse (NIDCDIC)

Annotation: The National Institute on Deafness and Other Communication Disorders (NIDCD) conducts and supports biomedical and behavioral research and training on disorders of hearing, balance, smell, taste, voice, speech, and language. The NIDCD Information Clearinghouse disseminates information and resources on human communication processes. The clearinghouse operates an information service, develops and distributes materials, and maintains a computerized database. Publications include a newsletter and a catalog. Some materials are available in Spanish. The Institute also provides referrals.

Keywords: Deafness, Balance disorders, Communication disorders, Government financing, Hearing disorders, Information services, Language, Language development, Language disorders, Medical research, Medical research, Self help clearinghouses, Smell, Speech, Taste disorders, Voice disorders

National Institute on Drug Abuse (NIDA)

Annotation: The National Institute on Drug Abuse (NIDA) responds to inquiries from the community, professionals, and the media. NIDA supports more than 85 percent of the world's research on the health aspects of drug abuse and addiction. The institute produces and distributes information based on its own drug abuse research, maintains statistics and information on drug exposed infants, and provides support and technical assistance for efforts to increase public and professional awareness of the relationship between drug abuse and AIDS. Some materials are available in Spanish. The Web site includes a section, NIDA for Teens, that is geared to adolescents ages 11 to 15. The institute also sponsors conferences, training seminars, and workshops and publishes a catalog and a newsletter. The website and publications are available in English and Spanish.

Keywords: Drug abuse, AIDS, Adolescents, Research, Spanish language materials, Spanish language website, Statistics, Substance abuse prevention, Substance dependance, Technical assistance

National Institutes of Health (NIH)

Annotation: The National Institutes of Health (NIH) is the principal medical research arm of the federal government. Its programs focus on basic and applied research on the causes, diagnosis, prevention, treatment, and rehabilitation of human diseases and disabilities; the fundamental biological process of growth, development, and aging; and the biological effects of the environment. NIH conducts research in its own laboratories and supports research in universities, hospitals, and other institutions across the country; it also supports the training of career researchers, and promotes effective ways to communicate biomedical information to scientists, health practitioners, and the public. NIH is organized into 27 components, including 19 research institutes. It also encompasses the National Library of Medicine, the Warren Grant Magnuson Clinical Center, the John E. Fogarty International Center for Advanced Study in the Health Sciences, and the National Center for Research Resources. Services to consumers include publications and reference information. Publications include a catalog and Almanac. Some materials are available in Spanish. An A-Z index of NIH health resources, clinical trials, health hotlines, MEDLINEplus, and drug information is posted on the NIH Web site. A data tool, RePORT, provides access to reports, data, and analyses of NIH research activities.

Keywords: Medical research, Disabilities, Diseases, Nutrition, Public health

National Institutes of Health, Office of Research on Women's Health (ORWH)

Annotation: Established in 1990, the Office of Research on Women's Health (ORWH) works with the scientific community and advocacy groups to strengthen and enhance research on diseases and conditions that affect women. The office ensures that research conducted and supported by the National Institutes of Health adequately addresses women's health issues and that women are appropriately represented in research studies. It also directs initiatives to retain and promote women in science, sponsors conferences and scientific workshops on women's health research. Some materials are available in Spanish.

Keywords: Research, Women's health

National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC)

Annotation: The National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC) is an information and referral service of the National Institute of Diabetes and Digestive and Kidney Diseases, one of the National Institutes of Health. A central information resource on the prevention and management of kidney and urologic conditions, the clearinghouse responds to written inquiries, develops and distributes publications about kidney and urologic diseases, and provides referrals to kidney and urologic organizations. The NKUDIC maintains a database of patient and professional educational materials from which literature searches are generated. The clearinghouse will provide bulk orders of publications at a minimal cost to health and information professionals planning patient health education programs. Publications include a newsletter, and limited materials are available in Spanish.

Keywords: Kidney diseases, Clearinghouses, Diabetes, Digestive System diseases, Health education, Kidney diseases, Urologic diseases

National Kidney Foundation (NKF)

Annotation: The National Kidney Foundation, a voluntary health organization, is dedicated to preventing kidney and urinary tract diseases, improving the health and well being of individuals and families affected by these diseases and increasing the availability of all organs for transplantation. The foundation conducts programs in research, professional education, patient and community services, public education and donation. Publications include several newsletters and journals, and numerous pamphlets. Some materials are available in Spanish.

Keywords: Chronic kidney failure, Dialysis, Kidney diseases, Organ transplantation, Urologic diseases

National Latina Health Organization/Organización Nacional de la Salud de la Mujer Latina (NLHO/ONSML)

Annotation: The National Latina Health Organization/Organización Nacional de la Salud de la Mujer Latina (NLHO/ONSML) was formed after International Women's Day in 1986 to raise Latina consciousness of health and health problems. The NLHO works towards bilingual access to quality health care through self-empowerment, educational programs, health advocacy, outreach and developing public policy specifically aimed at Latinas. The NLHO provides referrals and reference information, conducts training sessions for self-help facilitators, and offers bilingual classes and workshops on a variety of health issues. The NLHO publishes a newsletter and position papers on health care policy and reform and sponsors conferences and forums on Latina health issues. Materials are available in Spanish.

Keywords: Hispanic Americans, Minority groups, Reproductive health, Reproductive rights, Self help programs, Women

National Latino Alliance for the Elimination of Domestic Violence

Annotation: The National Latino Alliance for the Elimination of Domestic Violence (Alianza) is part of a national effort to address the domestic violence needs and concerns of Latino communities and other underserved population. The alliance' work to promote understanding, initiate and sustain dialogue, and generate solutions that move toward the elimination of domestic violence affecting underserved populations. Services include training and technical assistance, research, community education and development, and policy development. Alianza publications include brochures, fact sheets, informational booklets, manuals, positions papers, a national directory, and an annotated bibliography of literature on the topic of domestic violence in Latino/Latina communities.

Keywords: Culturally competent services, Domestic violence, Hispanic Americans, Prevention programs, Spanish language materials

National Lead Information Center (NLIC)

Annotation: The National Lead Information Center (NLIC) operates an automated hotline that provides lead poisoning prevention information in English and Spanish. NLIC operates a clearinghouse that gathers and disseminates technical and nontechnical lead-related information and maintains the Lead Educational Materials Database that includes descriptions of materials from federal, state, local and non-profit lead programs nationwide.

Keywords: Lead, Lead poisoning

National League for Nursing (NLN)

Annotation: The National League for Nursing (NLN) is a nonprofit association of individuals and agencies working to ensure quality health care through the continuous improvement of nursing education. Services to consumers include publications and reference information, standardized tests, and online faculty development programs. Some materials are available in Spanish. NLN publishes nursing education data, newsletters, and a peer reviewed academic journal, and sponsors conferences, seminars, workshops, and web-based courses. The NLN advances quality education that prepares the nursing work force to meet the needs of diverse populations in an ever-changing health care environment.

Keywords: Nurses, Nursing, Education, Nursing services, Nursing education

National Library of Education (NLE)

Annotation: The National Library of Education is the federal government's centralized information and referral center on education. It provides information on program activities and publications of the U.S. Department of Education; resources and services of the 16 ERIC clearinghouses and support components; education-related materials from other federal agencies; services and resources available through the research institutes and the national education dissemination system; and statistics from the National Center for Education Statistics. A resource catalog is available, and Spanish-language materials are offered. The Library sponsors conferences and training seminars.

Keywords: Education

National Library Service for the Blind and Physically Handicapped (NLS/BPH)

Annotation: The National Library Service for the Blind and Physically Handicapped (NLS/BPH) works through local and regional libraries to distribute Braille and recorded materials for people with visual or physical impairments. The service provides information on blindness and physical disabilities for professionals and consumers. Some materials are available in Spanish and other languages. A list of participating libraries is available. The service also publishes a newsletter.

Keywords: Blindness, Braille, Libraries, Physical disabilities, Visually impaired

National Lymphedema Network (NLN)

Annotation: The National Lymphedema Network is a non profit organization founded in 1988 to provide education and support to patients, health care professionals, and the general public by disseminating information on the prevention and management of primary and secondary lymphedema. Some materials are available in Spanish and Asian languages The NLN provides an on-line homepage; a quarterly Newsletter containing educational articles, a Resource Guide, Support Groups, Pen Pals/Net Pals, and updates on conferences and professional training courses; a toll-free hotline to give emotional support, provide education, and offer referrals to health care professionals and treatment centers, local support groups and exercise programs; and a computer data bank. The NLN also sponsors a biennial conference focusing solely on lymphedema.

Keywords: Blood and lymphatic diseases

National Minority AIDS Council (NMAC)

Annotation: The National Minority AIDS Council (NMAC) was founded in 1987 to develop leadership within communities of color to address the challenges of HIV/AIDS. NMAC has developed programs aimed at enhancing the skills necessary to confront this health crisis, including a public policy education program, national and regional training conferences, a treatment research program and numerous publications. Some materials are available in Spanish.

Keywords: AIDS, Minority groups, Public policies

National MPS Society

Annotation: The National MPS Society, Inc., previously known as the National Mucopolysaccharidosis Society, serves parents of affected children through support, networking, physician referrals, professional and public education, and fundraising for research into mucopolysaccharidosis (MPS) disorders. Services to consumers include referrals, publications, and reference information. Publications include What Is MPS? , a newsletter, Courage, and booklets on MPS disorders. Some materials are available in Spanish.

Keywords: Mucopolysaccharidosis, Health education, Lipochondrodystrophy, Maroteaux-Lamy syndrome, Metabolic diseases, Mucolipidosis, Parent groups, Sanfilippo syndrome, Scheie syndrome, Support groups

National Multiple Sclerosis Society (NMSS)

Annotation: The National Multiple Sclerosis Society (NMSS) is a national voluntary health organization whose mission is to end the devastating effects of multiple sclerosis. Services to consumers include referrals, publications, and reference information. Publications include a magazine and newsletter. Spanish materials are available.

Keywords: Multiple Sclerosis, Neuromuscular diseases

National Network for Immunization Information (NNii )

Annotation: The National Network for Immunization Information (NNii) provides up-to-date information for healthcare professionals, the media, policy makers, and the public on vaccines, immunization issues, and immunization science. The NNii Web site provides newsbriefs, detailed information on vaccines and the diseases they prevent (in both English and Spanish), coverage of recent issues, immunization schedules, and links to studies, public policy, and research findings. The NNii Resource Kit for Healthcare Professionals, which can be downloaded free of charge from the Web site, provides information on everything from immunization recommendations to common questions and concerns, and includes site-specific information, CDC statements, immunization schedules and contraindications. NNii is an affiliate of the Infectious Diseases Society of America, the American Academy of Pediatrics, the American College of Obstetricians and Gynecologists, and other health organizations.

Keywords: immunization, Disease prevention, Vaccines

National Network of Libraries of Medicine, South Central Region (NN/LM SCR)

Annotation: The National Network of Libraries of Medicine, South Central Region (NN/LM SCR) encompasses Arkansas, Louisiana, New Mexico, Oklahoma, and Texas. The regional medical library serving the region is the Houston Academy of Medicine-Texas Medical Center Library. NN/LM SCR provides reference information and sponsors conferences, workshops, and training seminars. Publications include "Network News", an electronic newsletter. Some materials are available in Spanish.

Keywords: Libraries, Government programs, Region V, Regional programs, South central region

National Newborn Screening and Genetics Resource Center (NNSGRC)

Annotation: The National Newborn Screening and Genetics Resource Center (NNSGRC) is a cooperative agreement between the Maternal and Child Health Bureau (MCHB), Genetic Services Branch and the University of Texas Health Science Center at San Antonio (UTHSCSA), Department of Pediatrics. The mission of the NNSGRC is to: 1) provide a forum for interaction between consumers, health care professionals, researchers, organizations, and policy makers in refining and developing public health newborn screening and genetics programs; and 2) serve as a national resource center for information and education in the areas of newborn screening and genetics. The NNSGRC serves as a focal point for national newborn screening and genetics activities, and provides related resources to benefit health professionals, the public community, consumers, and government officials. The center also provides technical assistance to assist states in refining their newborn screening activities and enhancing their capacity to incorporate new developments in genetics, health promotion, and disease prevention. The NNSGRC coordinates and facilitates national discussions of pertinent topics in the areas of newborn screening and genetics, assists in developing and implementing related demonstration projects of national interest., and produces annual national information reports on state and territorial newborn screening activities. The Web site provides downloadable newborn screening and disease-specific brochures in various languages, a guide to regional genetics and newborn screening collaboratives as well as state-specific contact information; and the National Newborn Screening Information System, which services as a information collection and reporting system for capturing state and territorial newborn screening information. In September 2009 it was funded to create the National Newborn Screening Clearinghouse.

Keywords: Genetics, National MCH resource center, Neonatal screening, Online databases, Regional genetics networks, Resource centers

National Organization for Albinism and Hypopigmentation (NOAH)

Annotation: The National Organization for Albinism and Hypopigmentation (NOAH) provides information and support for people with albinism and their families. The organization promotes public and professional education about albinism, supports research on the diagnosis and management of this condition, and sponsors a conference every two years. Services to consumers include inquiry responses and reference information. Publications include the biannual NOAH News , and information bulletins and handouts on topics related to albinism. Some materials are available in Spanish.

Keywords: Albinism, Health promotion, Hypopigmentation, Medical research, Metabolic diseases, Support groups

National Organization for Disorders of the Corpus Callosum (NODCC)

Annotation: The National Organization for Disorders of the Corpus Callosum (NODCC) works to enhance the quality of life and promote opportunities for individuals with disorders of the corpus callosum and raise the profile, understanding and acceptance of these disorders through research, education, advocacy and networking. The organization publishes a newsletter; provides information and referral; maintains searchable databases.; and sponsors conferences. Publications are available in Spanish, French, German, Chinese, Japanese, and Korean.

Keywords: Special health care needs

National Organization of Circumcision Information Resource Centers (NOCIRC)

Annotation: The National Organization of Circumcision Information Resource Centers (NOCIRC) is a nonprofit educational organization that works to provide medical and legal information to health care professionals, lawyers, parents, and concerned individuals regarding routine male neonatal circumcision, female genital mutilation, and right of male, female, and intersex infants and children to keep their sex organs intact. The organization provides information on informed consent and other related legal issues, as well as information on the function, health, hygiene, and care of normal genitalia. Services to consumers include referrals, publications, and reference information. Some materials are available in Spanish. The organization publishes a newsletter and a series of pamphlets. It also offers continuing education classes for nurses and the International Symposia on Genital Integrity and Human Rights in the 21st Century.

Keywords: Circumcision, Genitalia, Health education, Information services

National Organization of Mothers of Twins Clubs (NOMOTC)

Annotation: The National Organization of Mothers of Twins Clubs, Inc. (NOMOTC) is a support group for parents of twins and higher order multiples. It is a network of local clubs nationwide whose basic purposes are research and education. As such, NOMOTC’s focus is to support parents as they face the challenges or joys of raising multiple birth children. As a means of accomplishing that goal, NOMOTC has published support materials for mothers of multiples and continues to publish its news magazine, NOMOTC’s Notebook. NOMOTC provides specialized Support Services in the areas of Special Needs, Single Parenting, Higher Order Multiples, and Bereavement. NOMOTC also completes its own organizational research on selected issues, and maintains a bibliography of books related to parenting multiples. Selected materials are available in Spanish.

Keywords: Child health, Health education, Information services, Medical research, Multiple births, Parent groups, Twins

National Organization of Parents of Blind Children (NOPBC)

Annotation: The organization's services include referrals, networking, advocacy, publications, and reference information. Publications include a magazine, a newsletter, and a catalog. Some materials are available in Spanish. The organization also hosts a list serve and sponsors conferences, training seminars, and workshops.

Keywords: Blindness, Vision disorders

National Osteoporosis Foundation (NOF)

Annotation: The National Osteoporosis Foundation (NOF) is a resource for patients, health care professionals, and organizations seeking current information and program materials on the causes, prevention, and treatment of osteoporosis. Publications include a catalog, quarterly newsletter, and electronic news updates. Some materials are available in Spanish. In addition to providing publications, referrals, and reference information, NOF sponsors conferences.

Keywords: Osteoporosis, Women

National Parent Teacher Association (NPTA)

Annotation: The National Parent Teacher Association (PTA) is a nonprofit association that works to support and speak on behalf of children and youth; assist parents in developing the skills they need to raise and protect their children; and to encourage parent and public involvement in the public schools of the nation. The PTA provides leadership training tools, as well as parent resources on topics such as child safety, health and wellness, student achievement, and media technology. The association hosts online forums, produces print and electronic publications, and sponsors a variety of meetings, conferences, and events.

Keywords: Adolescents, , Child advocacy, Child health programs Parenting, Children, Education

National Parkinson Foundation (NPF)

Annotation: The National Parkinson Foundation (NPF) sponsors research, treatment, and rehabilitation programs for Parkinson syndrome, disseminates information on current developments in research and treatment, and offers assistance in locating diagnostic and treatment services and establishing local support groups. Publications include The Parkinson Handbook, National Parkinson Foundation—Hope for the Afflicted (English and Spanish), The Parkinson Patient—What You and Your Family Should Know (English and Spanish), An Example to Us All—One Woman's Winning Battle, PATH—The Route to Better Management of Parkinson's Disease, How to Start a Support Group, Nutrition for Parkinsonians, Coping with Parkinson's Disease, and a quarterly newsletter, The Parkinson Report. Some materials are available in Spanish.

Keywords: Nervous system diseases, Parkinson disease, Rehabilitation programs,

National Partnership for Women and Families

Annotation: The National Partnership for Women and Families is a nonprofit, nonpartisan organization dedicated to improving the lives of women and families. Through public education and advocacy the National Partnership promotes fairness in the workplace, quality health care, and policies that help women and men meet the dual demands of work and family. Founded in 1971 as the Women's Legal Defense Fund, the National Partnership has grown in size and scope. Services to consumers include publications and reference information. Some materials are available in Spanish. The organization also publishes a newsletter and maintains a listserv.

Keywords: Advocacy, Health education, Health services, Women, Work, Work family issues, Workplace

National Pediculosis Association (NPA)

Annotation: The National Pediculosis Association (NPA)is a 501(c)3 organization working to educate parents, families and entire communities in advance of outbreaks to help them avoid inappropriate use and unnecessary risks associated with misuse and abuse of pesticidal shampoos and lotions for lice. The NPA sets the world standard for head lice management by putting prevention ahead of treatment and by developing a non-chemical approach to routine screening, early detection and thorough removal of lice and nits. The latest of NPA's resources is an educational video sold with the LiceMeister Kit and available in Enlish and Spanish. Written resources (some in Spanish) can be downloaded from NPA's Web site.

Keywords: Lice, Scabies

National Pesticide Information Center (NPIC)

Annotation: The National Pesticide Information Center (NPIC) provides information on a variety of pesticide-related topics, including toxicology, health and environmental effects, pesticide product information, information on the recognition and management of pesticide poisonings, treferrals for laboratroy analyses, investigation of pesticide incidents, emergency treatment information, safety information, and clean-up and disposal procedures. NPIC provides a toll-free telephone service available to anyone in the United States, Puerto Rico, and the Virgin Islands including the general public, the hearing impaired, Spanish speakers and medical, veterinary, and other health care professionals.

Keywords: Insecticides, Environmental exposures, Hotlines, Information services, Non English language materials, Spanish language materials, Teratogens, Teratology

National Prevention Information Network (NPIN)

Annotation: The National Prevention Information Network (NPIN) is the U.S. reference and referral service for information on HIV/AIDS, viral hepatitis, sexually transmitted diseases (STDs), and tuberculosis (TB). NPIN is a clearinghouse and collaborative community that collects and disseminates data and materials and enables prevention professionals on the international, national, state, and local levels to connect and share. Services are designed to facilitate program collaboration in sharing information, resources, published materials, research, and trends among the four diseases. Services include a social community, a database of providers, education materials, funding opportunities, research on health communication campaigns, campaign planning resources, training resources, and digital media tools.

Keywords: AIDS, Disease prevention, HIV, Hepatitis, Sexually transmitted diseases, Information services, Online databases, Resources for professionals, Spanish language materials, Tuberculosis

National Program for Playground Safety (NPPS)

Annotation: The National Program for Playground Safety at the University of Northern Iowa provides the following services: a National Clearinghouse for playground safety information; information as a global resource on its web page; an annual National Playground Safety Week; pamphlets about supervision, age appropriate design of playgrounds, falls to surfaces, and equipment maintenance; on-going research on injury prevention; a national action plan for the prevention of playground injuries; the largest compilation of playground-related publications and documents; a supervision kit: a quarterly newsletter and a resource list. The organization provides training programs, referral services and 6 videos about playground safety. Information in Spanish is available.

Keywords: Injury prevention, Playground safety

National Puerto Rican Coalition (NPRC)

Annotation: The National Puerto Rican Coalition (NPRC) works to strengthen and enhance the soecial, political, and economic well-being of Puerto Ricans throughout the United States. NPRC sponsors conferences and training seminars, hosts a blog, and publishes an electronic newsletter. Materials are available in Spanish.

Keywords: Minority groups, Minority Health, Puerto Ricans

National Resource Center for Childhood Rheumatic Diseases (NRCCRD)

National Resource Center for Health and Safety in Child Care and Early Education (NRC)

Annotation: The National Resource Center for Health and Safety in Child Care and Early Education (NRC) at the University of Colorado Denver promotes health and safety in out-of-home child care settings throughout the nation. NRC collaborates with the American Public Health Association, the American Academy of Pediatrics, and the Maternal and Child Health Bureau to produce national health and safety performance standards guidelines for out-of-home child care programs. The center's website provides resources for child care providers, parents, health consultants, regulators, and early childhood systems leaders including a database of state licensure regulations.

Keywords: Child health, Child care, Child care workers, Child safety, Consumer education, Information sources, Injury prevention, National MCH resource center, Online databases, Regulations, Resource centers, Spanish language materials, Standards, State programs, Technical assistance, Training

National Resource Center on Women and AIDS Policy

Annotation: The National Resource Center on Women and AIDS serves as a resource for researchers, policymakers, advocates, and caregivers. The Center publishes an annual Guide to Resources on Women and AIDS and an accompanying Action Kit. Through its Woman to Woman publications and workshops, the center assists national women's organizations to put women and AIDS on their agendas and to use their organizing and advocacy skills to serve women in the AIDS crisis. The center publishes a catalog, newsletter, and journal, and provides some materials in Spanish.

Keywords: AIDS, Women

National Retinoblastoma Parents Group

Annotation: The National Retinoblastoma Parents Group offers referrals, peer support, educational meetings, and information in Spanish and Braille. The group sponsors conferences and provides publications, including a newsletter.

Keywords: Parent groups, Retinoblastoma, Tumors, Vision Disorders

National Reye's Syndrome Foundation (NRSF)

Annotation: The National Reye's Syndrome Foundation, a not-for-profit health organization, was established in 1974 by parents of children with Reye's syndrome. The foundation works to provide guidance and emotional support for these children and their families, to encourage federal involvement in research, to coordinate prevention and treatment protocols, to promote education, and to raise funds for research on the causes and prevention of Reye's syndrome. The organization also provides materials and information for the public and medical communities, including referrals, reference information, and a newsletter. It also sponsors conferences and provides materials in Spanish and other select languages.

Keywords: Reyes syndrome, Children, Fundraising, Information services, Parent groups, Support groups

National Rural Health Association (NRHA)

Annotation: The National Rural Health Association (NRHA) is a nonprofit membership organization that works to improve the health and health care of rural Americans through advocacy, communications, education, and research. Services to consumers include referrals, publications, and reference information. NRHA publishes a newsletter, a magazine and a journal and provides some materials in Spanish. It also sponsors training seminars,conferences and workshops.

Keywords: Rural health, Advocacy, Health education, Information services

National Scoliosis Foundation (NSF)

Annotation: The National Scoliosis Foundation (NSF) is a nonprofit organization dedicated to the early detection and treatment of abnormal spinal curvatures such as scoliosis. NSF is focused on finding the cause, prevention, and cure of spinal deformities and seeks to minimize their affects through education, support, research, and advocacy. NSF provides physician referrals,public education, assists in school screening, and maintains a resource center on scoliosis. Publications include free information packets and a biannual newsletter, The Spinal Connection. NSF also hosts a Patient Forum on it's website. Some materials are available in Spanish, Asian, and other languages.

Keywords: Scoliosis

National Sexual Violence Resource Center (NSVRC)

Annotation: The National Sexual Violence Resource Center (NSVRC) is a comprehensive collection and distribution center for information, research, and emerging policy on sexual violence intervention and prevention. It provides online library and technical assistance and also coordinates National Sexual Assault Awareness Month initiatives. NSVRC is a project of the Pennsylvania Coalition Against Rape (PCAR) , which advocates for services for all sexual assault victims and works to increase public understanding of sexual violence. Through the coalition, the Pennsylvania Department of Public Welfare funds 52 centers that provide services for adult and child victim/survivors and their families in all Pennsylvania counties. These services include 24-hour hotlines, crisis counseling, education programs for schools and communities, systems advocacy, information and referral, and hospital, police, and court accompaniment. PCAR publishes a catalog and a newsletter and sponsors training seminars and workshops. Some materials are available in Spanish.

Keywords: Rape, Advocacy, Counseling, Education programs, Hotlines, Injury prevention, Pennsylvania, Sexual assault, Spanish language materials, Victims, Violence prevention

National Sleep Foundation

Annotation: The National Sleep Foundation (NSF) is an independent nonprofit organization dedicated to achieving a better understanding of sleep and sleep disorders and supporting education, sleep-related research, and advocacy. NSF's public awareness initiatives include Sleep Awareness Week and the "Drive Alert...Arrive Alive" campaign. The foundation produces education materials for the general public, including the news magazine, Sleepmatters, brochures, and videotapes. Web content is available in both English and Spanish.

Keywords: , Sleep, Advocacy, Public awareness campaigns, Research, Sleep deprivation, Sleep disorders

National Stroke Association (NSA)

Annotation: The mission of the National Stroke Association (NSA) is to reduce the incidence and impact of stroke. Publications are available for consumers. NSA publishes a catalog, newsletter, and journal, sponsors conferences, and provides limited materials in Spanish and French.

Keywords: Nervous system diseases, Strokes

National SUID/SIDS Resource Center (NSIDRC)

Annotation: The National SUID/SIDS Resource Center (NSIDRC) provides information on sudden unexpected infant death (SUID), sudden infant death syndrome (SIDS), miscarriage, stillbirth, other infant death, and related topics. The center maintains computerized databases of technical literature, public awareness materials, and information on SIDS-related organizations to meet the needs of state SIDS programs, policymakers, researchers, health care providers, families, and the public. Publications include bibliographies, information sheets, and other educational materials. Some publications are available in Spanish. It was previously named the National Sudden and Unexpected Infant/Child Death and Pregnancy Loss Resource Center, National SIDS / Infant Death Resource Center and the National Sudden Infant Death Resource Center. NSIDRC is funded by the U.S. Maternal and Child Health Bureau.

Keywords: Apnea, Bereavement, Infant health, Infant mortality, Miscarriage, National MCH resource center, Online databases, Public awareness materials, Publications, Referrals, Resource centers, SIDS, Spanish language materials, State programs, Stillbirth, Technical assistance

National Support Group for Arthrogryposis Multiplex Congenita (AVENUES)

Annotation: The National Support Group for Arthrogryposis Multiplex Congenita (AVENUES) is a support group for individuals, families, and medical professionals interested in Arthrogryposis Multiplex Congenita (AMC) -- a congenital condition characterized by multiple joint contractures. The Group shares information on therapy, surgeries, aids, and services for people with AMC and maintains a list of physicians with a special interest in the causes and treatment of AMC.

Keywords: Arthrogryposis multiplex congenita, Parent groups, Support groups, Listservs

National Technical Information Service (NTIS)

Annotation: The National Technical Information Service (NTIS) is a self-sustaining agency under the Department of Commerce. NTIS collects and disseminates scientific, technical, engineering, and business-related information from U.S. and international sources. The collection consists of over 3 million titles. Spanish-language materials are available. NTIS is the source for the National Library of Medicine publications and for the National Center for Health Statistics data and survey results. NTIS is also the source for health information electronically on FedWorld at www.fedworld.gov. Materials are distributed via the National Technical Reports Library.

Keywords: Government information, Information dissemination, Technical reports

National Technical Reports Library (NTRL)

Annotation: The National Technical Reports Library provides open and public access to all reports of the National Technical Information Service, which are provided by direct submission to or collected by NTIS from Federal agencies for permanent accessibility to industry, academia, and the public.

Keywords: Government information, Information dissemination, Technical reports

National Training Institute for Child Care Health Consultants (NTI CCHC)

Annotation: The National Training Institute for Child Care Health Consultants has developed and implemented a national standardized training program based on "Caring for Our Children: National Health and Safety Performance Standards: Guidelines for Out-of-Home Child Care Programs." The Institute works with child care and child health organizations to deliver the training program to child health and early childhood professionals nationwide, and monitors and evaluates the training program at the state and national levels.

Keywords: Child care, National MCH resource center, Resource centers

National Women's Health Information Center (NWHIC)

Annotation: The National Women's Health Information Center (NWHIC) is a service of the Office on Women's Health (OWH) in the U.S. Department of Health and Human Services. NWHIC provides a gateway to a wide variety of federal and other women's health information resources. Through its toll-free call center and Web site, NWHIC helps individuals in ordering, linking to, and downloading women's health-related material developed by the Department of Health and Human Services, other federal agencies, and private sector sources; some materials are available in Spanish. To reach NWHIC's breastfeeding helpline, dial 800/994-9662. NWHIC also provides a Web site for girls at www.girlshealth.gov and Quick Health Data Online, formerly the National Women's Health Indicators Database (NWHID), a free online tool containing extensive national health data from the year 2000 to the present. The database provides access to a breakdown of statistics on a national, regional, state and county level for various topics. The tool can be accessed at http://www.healthstatus2010.com/owh/index.html.

Keywords: Women's health, Federal agencies, Health statistics, Information sources, Online databases, Publications, Resource centers, Spanish language materials, Women's health services, Women's studies

National Women's Law Center (NWLC)

Annotation: The National Women's Law Center is a non-profit organization that has been working since 1972 to advance and protect women's legal rights. The Center focuses on major policy areas of importance to women and their families including employment, education, reproductive rights and health, and family economic security, with special attention given to the concerns of low income women. Services to consumers include publications. The center publishes a quarterly newsletter Update, various fact sheets, op-ed articles, special reports and testimonies. Some materials are available in Spanish.

Keywords: Health policy, Women

Nebraska Library Commission

Annotation: The Nebraska Library Commission provides services to consumers that include referrals, publications, and reference information. The commission publishes a newsletter, and sponsors conferences, training seminars and workshops. Some materials are available in Spanish.

Keywords: Libraries, Nebraska, State agencies

NERGG, Inc. (NERGG)

Annotation: NERGG, Inc., formerly known as the New England Regional Genetics Group, is a consortium of providers and consumers of genetic services in Connecticut, Maine, Massachusetts, New Hampshire, Rhode Island, and Vermont. Members include representatives of state health departments, university medical schools, genetic services laboratories, hospitals, private medical practices, and various consumer organizations. The group is a regional network that collects data, provides a forum for problem sharing and solving, promotes efficient use of resources, and facilitates improvement of the quality and quantity of genetic services offered in the New England region. The NERGG Web site was funded in part by a grant from the Maternal and Child Health Bureau.

Keywords: Regional genetics networks, Genetic counseling, Genetic services, Genetics, Spanish language materials

Neurofibromatosis, Inc. (NF, Inc.)

Annotation: Neurofibromatosis, Inc. provides coordinated educational, clinical, support, and research programs for people and families affected by neurofibromatosis. The organization distributes print materials, conducts symposia and an NF camp for children, and provides peer counseling and a speakers' bureau. Some materials are available in Spanish. The organization also publishes a semiannual newsletter, Neurofibromatosis Ink.

Keywords: Neurofibromatosis, Health education, Information dissemination, Nervous system diseases, Peer counseling, Support groups

Nevada State Library and Archives (NSLA)

Annotation: Services to consumers include referrals, publications, and reference information. Some materials are available in Spanish. NSLA also sponsors training seminars, and publishes a newsletter on their website.

Keywords: Libraries, Nevada, State agencies

Nevus Network (NN)

Annotation: The Nevus Network (NM) provides support for people with a large brown birthmark called a congenital nevus and a related condition called neurocutaneous melanosis through letters, telephone calls, a website, e-mail, and meetings. The network provides reference information and publications, including a newsletter on medical and psychosocial topics. Materials may be obtained in Spanish and French.

Keywords: Congenital Nevi, Moles

New England SERVE

Annotation: New England SERVE is a health policy research and planning organization that has been working with the six New England state Departments of Public Health, health care organizations, providers and families of children with special health care needs to promote family-centered system of care. With the support of a number of grants from the Maternal and Child Health Bureau over the past 15 years, New England SERVE has provided technical assistance to state leadership teams to enhance their capacity to assess the quality of health care delivery and financing systems for children with ongoing health conditions. Recent projects have linked families, state Title V programs, managed care organizations, state Medicaid programs and community based providers through a series of regional Task Forces. New England SERVE provides health policy research and consultation to states, health care organizations and communities outside of New England as well. Activities have included: design and implementation of quality measurement tools, community based needs assessments, strategies for building effective parent-professional collaboration and consumer leadership, and a set of tools for improving the quality of family-centered systems of care in managed care settings. Many of these materials are available on the Web site. Some materials are available in Spanish.

Keywords: Special health care needs

New Mexico State Library (NMSL)

Annotation: The state library serves state government, citizens, and other libraries through specialized collections emphasizing government and public policy issues. Some materials are available in Spanish.

Keywords: Libraries, New Mexico, State agencies

New Parents Network (NPN)

Annotation: New Parents Network is a non-profit organization founded in 1988 to serve as an engine to gather and to disseminate local and general parenting information. NPN's mission is to help children by increasing the distribution of local and general parenting information to all, but especially to those most in need and hardest to reach. New Parents Network maintains an Internet site giving parenting information in English and Spanish in multi-media formats specifically geared towards providing public health nurses and hospital doctors and nurses with localized and universal parenting information. Services to consumers include referrals, reference information, and access to searchable databases.

Keywords: Child health, First time parents, Infant health, Maternity care, Parent education, Parenting, Postpartum care

New South Wales Multicultural Health Communication Service

Annotation: The New South Wales Multicultural Health Communication Service provides information and services to help health professionals communicate with non-English speaking communities throughout New South Wales, Australia. Resources are provided in these languages: Albanian, Amharic, Arabic, Armenian, Assyrian, Bengali, Bosnian, Burmese, Chinese Simplified, Chinese Traditional, Creole, Croatian, Czech, Dari, Dinka, Dutch, English, Farsi, Fijian, Filipino, French, German, Greek, Hindi, Hmong, Hungarian, Indonesian, Italian, Japanese, Karen, Khmer, Kirundi, Koori, Korean, Kurdish, Lao, Macedonian, Malay, Maltese, Maori, Oromo, Polish, Portuguese, Punjabi, Pushto, Romanian, Russian, Samoan, Serbian, Sinhalese, Somali, Sorani, Spanish, Tamil, Tetum, Thai, Tigrigna, Tongan, Turkish, Ukrainian, Urdu, and Vietnamese. Materials include print, audio, and video.

Keywords: Asian language materials, Australia, Consumer education materials, Government agencies, International health, Non-English language materials, Spanish language materials

New York State Genetic Services Program and Newborn Screening Program ( )

Annotation: New York State Genetic Services Program and Newborn Screening Program coordinates state grants to comprehensive and noncategorical clinical genetics units throughout the state. This assures that all residents of the state can access genetic diagnosis, testing, counseling and treatment regardless of their social, economic, or geographic circumstances. The state newborn screening program tests all newborns born in New York State for 40 congenital diseases and HIV. Program follow-up assures that all children identified by the program are properly referred to specialty care centers. These centers are approved by New York state to provide quality medical care to all children identified by the program. Educational materials are available in Spanish, French, Chinese, and other languages.

Keywords: Regional genetics networks, Genetic counseling, Genetic services, Genetics, Health education, Medical research, New York, Spanish language materials, Virgin islands

NOAH: New York Online Access to Health (NOAH)

Annotation: The New York Online Access to Health (NOAH) provides access to high quality consumer health information in English and Spanish. The NOAH volunteer editors do not write this information. Librarians and health professionals find, select, and organize full-text consumer health information. NOAH is supported, in part, by Federal Library Services and Technology Act funds granted by The New York State Library. Web page only gives description, no actual access.

Keywords: Child health, Consumer education, Health promotion, Information sources, Internet, Spanish language materials, Women's health

North American Menopause Society (NAMS)

Annotation: The North American Menopause Society (NAMS) is a nonprofit organization that promotes the health and quality of life of women through an understanding of menopause. NAMS publishes materials for professionals and consumers. The Society also develops curriculum materials, surveys and questionnaires, position statements, and recommended reading lists, and publishes book reviews of publications about menopause. Some materials are available in Spanish. Consumers can sign up online to receive a free monthly newsletter.

Keywords: Aging, Consumer education materials, Curricula, Menopause, Resources for professionals, Women's health

North Carolina Healthy Start Foundation (NCHSF)

Annotation: The mission of the North Carolina Healthy Start Foundation is to reduce infant mortality and morbidity and to improve the health of young children in North Carolina. NC Healthy Start manages statewide public education and awareness campaigns and provides technical assistance and leadership to community leaders, organizations, and health and human health service professionals to accomplish its mission. Media campaigns include topics related to child health insurance enrollment, reducing the risk of Sudden Infant Death Syndrome; preventing birth defects; and promoting healthy birth weights and healthy birth dates in an effort to reduce pre-term and low birth weight births. The Foundation is home to several national award-winning maternal and child health related media campaigns. Services to consumers include referrals, inquiry responses, and publications, and workshops are offered. Some materials are available in Spanish.

Keywords: Healthy Start, Infant mortality, North Carolina, Prevention programs, State programs

North Dakota State Library (NDSL)

Annotation: The North Dakota State Library provides information to all North Dakota citizens, coordinates the interlibrary loan process for the state, assists the reference departments of other libraries of North Dakota, offers continuing education classes, administers Library Services Construction Act funds, offers services to the blind and physically handicapped populations, and assists with the development of libraries in North Dakota. Some materials are available in Spanish, French, Asian and other languages. The organization publishes a newsletter and sponsors training seminars.

Keywords: Libraries, North Dakota, State agencies

Nutrition.gov

Obsessive Compulsive Foundation (OCF)

Annotation: The Obsessive Compulsive Foundation serves people with obsessive-compulsive disorder (OCD) their families, and friends. Services to consumers include referrals, publications, and reference information. The Treatment Providers List is available upon request. The foundation publishes a newsletter and pamphlets, sponsors training seminars and conferences, and provides some materials in Spanish.

Keywords: Obsessive-compulsive disorder, Trichotillomania

Office of Population Affairs Clearinghouse

Annotation: The Office of Population Affairs Clearinghouse (formerly the Family Life Information Exchange) provides referrals and distributes various federal publications on family planning, contraception, adolescent pregnancy, and adoption. Available materials include a catalog, manuals, directories, fact sheets, pamphlets, and summaries of Adolescent Family Life (AFL) projects. Some materials are available in Spanish and Asian languages

Keywords: Adolescent pregnancy, Adoption, Contraception, Family planning

Ohio Coalition for the Education of Children with Disabilities (OCECD)

Annotation: The Ohio Coalition for the Education of Children with Disabilities (OCECD) is a statewide, nonprofit organization that serves families of infants, toddlers, children, and youth with disabilities in Ohio, and the agencies who provide services to them. The coalition's mission is to ensure that every Ohio child with special needs receives a free, appropriate, public education in the least restrictive environment to enable that child to reach his/her highest potential. Programs are designed to help parents become informed and effective representatives for their children in all educational settings. PACER's Family-to-Family Health Information Center provides a single source of information, including resources and support, for families whose children have disabilities and complex health care needs. The coalition provides programs for Native American, African American, Hispanic/Latino, Somali and Southeast Asian communities, and many publications have been translated into Hmong, Somali and Spanish. Other programs focus on grandparents, housing, and bullying prevention. Through the Technical Assistance ALLIANCE for Parent Centers, PACER offers consultation and technical assistance to the over 100 parent centers across the nation funded under the federal Individuals with Disabilities Education Act (IDEA).

Keywords: Special education, Children with special health care needs, Early Intervention, Education programs, Family resource centers, Nuvee, Ohio, Parenting, Public policies, Support groups

Ohio Department of Health, Oral Health Program

Annotation: The Ohio Department of Health's Oral Health Program provides access to population-based oral disease prevention programs, along with data and information for communities and policymakers. The Web site contains data; reports; program and training resources; educational materials for professionals and consumers; and funding and job opportunities.

Operation Lifesaver (OLI)

Annotation: Operation Lifesaver is a non-profit, international, public education program, begun in 1972, to reduce the number of crashes, deaths, and injuries at highway-rail grade crossings and on railroad rights-of-way. Operation Lifesaver coordinators are located in every state and the District of Columbia. There also are Operation Lifesaver programs in Canada, Mexico, England, Argentina and Estonia. Operation Lifesaver's trained and certified volunteer speakers are available to provide free safety presentations for people of all professions and age groups to help them make safe decisions around tracks and trains. Services to consumers include referrals to safety speakers, safety publications, and safety speaker training. Materials are available in Spanish and French. For more information and to find newsletters and conference schedules, visit www.oli.org.

Keywords: Drivers, Injury prevention, Pedestrian safety, Railroads, Traffic safety

Opitz G/BBB Family Network

Oregon Department of Human Services, Office for Services to Children and Families (SCF)

Annotation: The State Office for Services to Children and Families (SCF) provides information on interagency/comanagement issues related to service provision for children with who cannot remain home and need treatment for their severe emotional and behavioral problems in Oregon. Referrals are available for consumers, and some materials may be obtained in Spanish. SCF also sponsors conferences and training seminars.

Keywords: Developmental disabilities, Oregon

Organic Acidemia Association (OAA)

Annotation: The Organic Acidemia Association (OAA) encourages communication and support among families and professionals dealing with organic acidemias and related rare metabolic disorders. Services to consumers include parent to parent networking and an internet listserv. Some materials are available in Spanish. The association publishes a newsletter three times a year and sponsors family conferences.

Keywords: Metabolic diseases, Argininosuccinic acidemia, Carbamyl phosphate synthetase deficiency, Citrullenemia, Ethylmalonic adipic acidemia, Homocystinuria, Methylmalonic acidemia, OTC deficiency, Organic acidemia, Propionic acidemia, Rare diseases, Support groups

Organization of Teratology Information Specialists (OTIS )

Annotation: The Organization of Teratology Information Specialists (OTIS) is an organization of teratology Information Services (TIS) located throughout the United States and Canada. OTIS provides pregnancy risk education prior to and during pregnancy in efforts to improve pregnancy outcomes, increase infant and child health, and decrease birth defects, mental retardation, and learning disabilities. The organization provides a toll-free 800 number of counseling and education and offers more than 60 fact sheets for consumers (some are available in Spanish and French) on topics such as flu, cancer, depression, chicken pox, alcohol, and the effects of drug exposure during pregnancy. A complete list of TIS sites is posted on the Web site.

Keywords: Spanish language materials, Teratology, Information services, Non-English language materials, Teratogens

Osteogenesis Imperfecta Foundation (OIF)

Annotation: The Osteogenesis Imperfecta Foundation (OIF) is a national voluntary organization that works to improve the quality of life for people with osteogenesis imperfecta through research, education, awareness, advocacy, and mutual support. Services to consumers include referrals, publications, and reference information. OIF sponsors conferences, workshops, and regional support groups and publishes a newsletter, books, brochures, and videotapes. OIF also provides a videotape and brochure on caring for infants and children with osteogenesis imperfecta available in English and Spanish. The video tape is also available open captioned. Some materials are available in Japanese. The Foundation also maintains a chat room.

Keywords: Osteogenesis imperfecta

Osteoporosis and Related Bone Diseases National Resource Center (NIH ORBD-NRC)

Annotation: ORBD-NRC links patients, health professionals, and the public with resources and information on osteoporosis and related bone diseases. The center helps educate the public about bone diseases and offers a variety of publications for specific audiences (women, men, seniors, and the visually impaired, for example), including materials in Spanish and Vietnamese. ORBD-NRC publishes a newsletter and maintains an open listserv.

Keywords: Bone diseases, Osteoporosis, Pagets disease

PACER Center

Annotation: The PACER Center is a parent training and information center for families of children and youth with all disabilities from birth through 21 years old. Located in Minneapolis, PACER provides information, support, workshops, and referrals to families and professionals in Minnesota and across the country. The organization sponsors conferences, produces a variety of publications (with some materials available in Spanish and Asian languages), and develops and develops specialized websites. PACER’s National Bullying Prevention Center provides resources designed to benefit all students, including those with disabilities.

Keywords: Assistive devices, Affective disorders, Behavior disorders, Children, Disabilities, Family resource centers, Mainstreaming, Parent education, Parenting, Parents, Special education, Supported employment, Training, Transitions, Young children

Pacific Northwest Regional Genetics Group (PacNoRGG)

Annotation: The Pacific Northwest Regional Genetics Group is no longer active. PacNoRGG was funded from 1984 - 2002 by grants from the Maternal and Child Health Bureau (MCHB), part of the federal Health Resources and Services Administration (HRSA). Staff from the Oregon Health & Science University (OHSU), Child Development and Rehabilitation Center (CDRC) continue to maintain the website and publications. The website and online versions of publications were last reviewed June 2004. Out-of-date materials were either removed or updated. The next review is planned for June 2005. Some materials are available in Spanish, Vietnamese, Cambodian, Chinese, Russian, Korean, Laotian

Keywords: Genetics, Data analysis, Data collection, Genetic counseling, Genetic services, Health education, Professional education, Regional genetics networks

Pacific Post Partum Support Society (PPPSS)

Annotation: The Pacific Post Partum Support Society offers support, referrals, and information for women and their families who are experiencing depression and/or anxiety during pregnancy or after the birth or adoption of a child. The society also works to promote public awareness of postpartum depression and its treatment. Publications include a newsletter, a book(Postpartum Depression and Anxiety: A Self-Help Guide for Mothers), and a training manual for those who want specific support information or are interested in facilitating a group. Some materials are available in Spanish, French, and Punjabi.

Keywords: Postpartum depression, Adoption, Anxiety, Childbirth, Health education, Health promotion, Pregnancy, Support groups

Pacific Southwest Regional Genetics Network (PSRGN)

Pan American Health Organization (PAHO)

Annotation: The Pan American Health Organization is an agency of the United Nations that works to promote health and prevent disease, to support country efforts to control or eradicate communicable diseases, to extend health services to underserved populations of its member countries, and to promote cooperation among governments in solving public health problems. The organization serves as the World Health Organization's regional office for the Americas. It sponsors conferences and seminars and publishes a catalog and a journal. Materials are available in Spanish, French, and Portuguese.

Keywords: Health education, Health promotion, International organizations

Parent Education Network of Pennsylvania (PEN)

Annotation: The Parent Education Network of Pennsylvania provides services for parents of children with disabilities from birth to adulthood in Pennsylvania. The network sponsors workshops on aspects of educating children with disabilities and maintains a resource center on specific disabilities, self-esteem, behavior problems, and parents' legal rights. Materials on special education for children with disabilities are available in Spanish. The organization publishes a newsletter and provides referrals, conferences, and training seminars.

Keywords: Children with special health care needs, Behavior problems, Chronic illnesses and disabilities, Education programs, Parent groups, Parenting, Pennsylvania, Self esteem, Spanish language materials

Parent Educational Advocacy Training Center (PEATC)

Annotation: The Parent Educational Advocacy Training Center (PEATC) is an independent nonprofit organization that provides training programs, information, referrals, and consultation services for parents of children with special educational needs in Virginia. Training program sponsors include state departments of education, local education agencies, community mental health and mental retardation services boards, private schools, and disability interest groups. Publications include Negotiating the Special Education Maze: A Guide for Parents and Teachers, Beginning with Families 3rd Edition, A Parent's Guide to Early Intervention Services, Managed Care Maze? What About the Children (video), Infusing Cultural Competence in Early Childhood Programs , A Challenge for Teen Parents: video and guide books, Fostering Health in the Foster Care Maze: video and guide books and The PEATC Press, a quarterly newsletter. Some materials are available in Spanish. The center receives funding from the Office of Special Education and Rehabilitative Services, U.S. Department of Education.

Keywords: Special education, Advocacy, Children with special health care needs, Education, Individualized education programs, PL 94-142, Referrals, Training

Parent-Child Relationship Programs at the Barnard Center

Annotation: NCAST Programs develops and disseminates research based workshops, assessments, and intervention programs to promote nurturing environments for young children ages 0-3. Target audiences include nurse home visitors, social workers, researchers, and other service providers. Topics include the Parent-Child Interaction (PCI) feeding and teaching scales, promoting first relationships, promoting maternal mental health during pregnancy, caregiving, personal environment assessments, promoting self regulation and attachment in infants and young children. Some materials are available in Spanish.

Keywords: Spanish language materials, Developmental screening, Infant behavior, Infant care, Maternal mental health, Nursing, Professional training, Technical assistance

Parents Action for Children

Annotation: Parent Action for Children (PACt) is a nonprofit organization that works to raise awareness about the importance of early childhood development and school readiness. PAC develops, produces, and distributes resources for parents, early childhood professionals, child advocates, health care providers, policymakers and the media. The organization promotes public policies that help ensure our children have the physical wellbeing and the social, emotional and cognitive abilities they need to enter school ready to succeed.

Keywords: Infant development, Caregivers, Child development, Developmental stages, Early childhood development, Health promotion, Information sources, Parent child relations, Parent education, Parent participation, Parenting skills, Public awareness campaigns

Parents Anonymous (PA)

Annotation: Founded in 1970, Parents Anonymous, Inc. is the nation's oldest and largest child abuse and neglect prevention, education, and treatment program. The organization's mission is to promote mutual support and parent leadership in order to build and support strong, healthy families. Today, Parent's Anonymous leads an extensive national network of neighborhood-based support groups for parents and their children. Services to consumers include referrals, publications, reference information and research publications. The organization publishes a newsletter, sponsors conferences and training seminars, and provides materials in Spanish.

Keywords: Injury prevention, Adolescents, Anticipatory guidance, Child abuse, Child neglect, Children, Counseling, Education, Family violence, Information services, Parenting, Spanish language materials

Parents as Teachers (PAT)

Annotation: Parent as Teachers (PAT) is a voluntary early childhood parent education and family support program designed to help parents give their children the best possible start in life. This home-school-community partnership provides parents with information on child development, from the prenatal period through age 5, and suggests learning opportunities that encourage language development, intellectual growth, and physical and social skills. Based on the philosophy that parents are their children's first and most influential teachers, PAT professionals provide information to all families through personal visits, training seminars and conferences, group meetings, screening, and a resource network. The Parents as Teachers National Center has offered training to improve the skills of its parent educators, including Issues in working with teen parents and supporting families facing critical issues. Resources for professionals who work with mothers and fathers include fact sheets, screening tools, curricula, and online help from experts. Some materials are available in Spanish.

Keywords: Adolescent parents, Parent education, Programs

Parents Engaged in Education Reform (PEER)

Annotation: Parents Engaged in Education Reform (PEER) is a national technical assistance project funded by the U.S. Department of Education, Office of Special Education Programs. PEER's purpose is to increase the participation of parents of children with disabilities and their organizations in school reform efforts. PEER Project activities are based on the premise that active participation of parents and communities is essential if the promise of school reform is to be fulfilled for all students. Through workshops, publications, and institutes, the PEER Project provides opportunities for parents, parent organizations, and professionals to learn from each other about school reform efforts occurring in states and local communities. In addition, to enhance opportunities for early literacy in reading for at-risk students, PEER is providing information and training to parent and community organizations in promising and best practices in literacy. Services to consumers include referrals, reference information and publications. Some materials are available in Spanish.

Keywords: Children with special health care needs, IDEA, Individuals with Disabilities Education Act, Parent support programs

Parents Helping Parents (PHP)

Annotation: Parents Helping Parents (PHP) is a nonprofit, family resource center that benefits children with special needs. This includes children of all ages (birth through life) and all backgrounds who have a need for special services due to any special need, including but not limited to illness, cancer, accidents, birth defects, neurological conditions, premature birth, learning or physical disabilities, mental health issues, and attention deficit (hyperactivity) disorder. PHP's mission is to help children with special needs receive the resources, love, hope, respect, health care, education, and other services they need to reach their full potential by providing them with strong families, dedicated professionals, and responsive systems to serve them. PHP provides assistive technology services through its iTech Center, hosts an online resource directory, and maintains the PHP Community Disability Library, which includes an online catalog.

Keywords: Disabilities, Children with special health care needs, Family resource centers, Health educaton, Learning disabilities, Mental disorders, Parent groups, Parents, Siblings, Spanish language materials, Support groups

Park Ridge Center for the Study of Health, Faith, and Ethics (PRC)

Annotation: The Park Ridge Center for the Study of Health, Faith, and Ethics is an independent not-for-profit organization supported by grants, foundations, and private and corporate contributors. The center explores the relationship between religious beliefs and health-related issues in collaboration with representatives from diverse cultures, religious communities, health care fields, and academic disciplines. Services provided to consumers include referrals, publications, and reference information. Some materials are available in Spanish, French, and Asian languages. The center also publishes a bulletin and a catalog and sponsors workshops.

Keywords: Bioethics, Ethics, Faith, Health, Information services, Religion, Religious organizations

PATH Vaccine Resource Library

Annotation: The PATH Vaccine Resource Library provides resources on immunization and vaccines, including materials for parents and adolescents, tools to assist in advocating for stronger immunization programs, training and clinical materials, publications focusing on service delivery issues, information on injection safety and immunization financing, and links to related organizations. Materials are available in some non-English languages, including Spanish and French.

Keywords: Immunization, Spanish language materials, Foreign language materials, International health, Vaccines

Pathways Awareness (PA)

Annotation: Pathways Awareness is a national, non-profit organization dedicated to raising awareness about the benefits of detecting early motor delays and encouraging physical therapy in very young children. It provides a set of standards for tummy time for infants that was developed by a medical round table; online materials for parents on tummy time and infant physical development, including brochures, handouts, and an video; and materials for purchase, including more videos and materials for professionals. Several items are available in Spanish, and the brochure on infant development is available in English, Spanish, French, Hebrew, Bosnian, Chinese, German, Japanese, Polish, Russian, and Brazilian Portuguese. It also provides a program Open Hearts, Open Minds, Open Doors, which helps faith communities be welcoming to individuals with disabilities

Keywords: Child development disorders, Developmental disabilities, Infant development, Motor skills

PAVE (PAVE)

Annotation: PAVE (Partnerships for Action Voices for Empowerment) is a parent-directed organization that provides information, training, and support for individuals with disabilities, parents, and professionals in Washington. PAVE staff comprise individuals with disabilities and parents of individuals with disabilities who have a good understanding of the challenges of accessing services. PAVE's resources include a quarterly newsletter (PAVE Pipeline), Web site, a Facebook page, You Are the Expert Conference, bilingual and bicultural staff, and free and low-cost materials in a variety of formats and languages. Programs cover a variety of areas and resources including the Family to Family Health Information Center.

Keywords: Children with special health care needs, Disabilities, Parent education programs, Parent professional relations, Parent support services, Parent training, Peer support programs

Pediatric Adolescent Gastroesophageal Reflux Association (PAGER)

Annotation: The Pediatric Adolescent Gastroesophageal Reflux Association (PAGER) is a parent-led children's health association offering information and support to parents of the 7 million children in the US with gastroesophageal reflux (GER) and related disorders. Services to consumers include an extensive web site with discussion boards, newsletters,and other materials. Some materials are available in Spanish. The association also conducts training seminars and workshops, particularly for agencies whose staff and volunteers need to learn about GERD in children which is easily missed and underdiagnosed.

Keywords: Children, Eating disorders, Gastroesophageal reflux, Gastrointestinal motility, Heartburn, Parent groups, Vomiting

Pediatric Family Resource Library

Annotation: The Pediatric Family Resource Library provides publications, reference information, and searchable databases to consumers. Spanish language materials are available. Books and videos can be borrowed for three weeks. Postage-paid mailers are supplied to return the books. The library also sponsors training seminars and workshops.

Keywords: Child health, Consumer education, Libraries, Pediatrics

Perspectives Network (TPN, Inc.)

Annotation: The Perspectives Network is an online organization that supports persons with acquired brain injury and their families with such things as online material archives, brain maps, and tools, as well as extensive resource listings. The network also provides brain injury survivor identification cards, and public awareness and education brochures. Frequently asked questions are available in Spanish, French, Italian, Dutch, Greek, German, Chinese, and Danish.

Keywords: Brain injuries, Head injury, Trauma

PKD Foundation (PKD Foundation)

Annotation: The PKD Foundation (formerly the Polycystic Kidney Research Foundation) promotes research to find a treatment and cure of polycystic kidney disease. It develops funding for peer-approved biomedical research projects and works to educate the public by promoting programs of research and fostering the public awareness among medical professional and the general public. Services to consumers include publications and reference information. The PKD Foundation publishes a newsletter and sponsors conferences and training seminars. Materials are available in English, Spanish, French, German, Italian, Korean, Chinese, and Japanese.

Keywords: Kidney diseases, Fundraising, Health education, Information services, Medical research, Polycystic kidney disease

Planned Parenthood Federation of America (PPFA)

Annotation: The Planned Parenthood Federation of America (PPFA) is dedicated to the principle that every person has the fundamental right to choose whether or when to have children. The federation works to ensure access to sexuality education and family planning services. Planned Parenthood health centers offer sexual and reproductive health care, including family planning, gynecological care, STI/STD testing and treatment, pregnancy testing, and abortion services. Its Web site offers information on birth control, emergency contraception, abortion, pregnancy, sexually transmitted infections and diseases, gynecological exams, teens, and sexuality. The website provides an A-to-Z guide to health information and services, which can be viewed in English or Spanish.

Keywords: Family planning, Abortion, Adolescent pregnancy, Advocacy, Contraception, Health education, Internet, Online databases, Public awareness materials, Publications, Reproductive health, Reproductive rights, Sexuality education, Spanish language materials

Planned Parenthood of Greater Northern New Jersey, Center for Sex Education

Annotation: The Center for Sex Education is the national education division of Planned Parenthood of Central and Greater Northern New Jersey. The center provides three core services in sexuality education: publishing sexuality education manuals, hosting the National Sex Ed Conference, and providing membership services through the Sex Ed Network, an online resource that allows access to downloadable lesson plans and the American Journal of Sexuality Education. The center also has a store and a blog, Sexually Smarter.

Keywords: Adolescent pregnancy, Contraception, Family planning, Reproductive health, Sexuality education

Planned Parenthood of Hawaii

Population Council (POPCOUNCIL)

Annotation: The Population Council is an international, nonprofit, nongovernmental organization founded in 1952. The council conducts biomedical, social science, and public health research and helps build research capacities in developing countries. The council is governed by an international board of trustees. Its New York headquarters supports a global network of regional and country offices. Services to consumers include referrals, inquiry responses, publications, reference information, and searchable databases. Materials are available in Spanish, French, and Asian languages, and the council has a listserv that is available to anyone. The council publishes a newsletter and a journal, and conducts conferences.

Keywords: Developing countries, Medicine, Population dynamics, Public health, Research, Social sciences

Population Reference Bureau (PRB)

Annotation: The Population Reference Bureau (PRB) is a private, nonprofit organization that gathers, interprets, and disseminates information about population. The goal of the bureau is to increase awareness and understanding of population trends and their implications by presenting information that is reliable, unbiased, and up-to-date. Its audience includes legislators and public officials, teachers and students, the business community, and individuals with interest and concern about U.S. and world affairs. Publications include a catalog, a newsletter, a journal, and special reports. Materials are available in Spanish and French. The bureau also sponsors conferences and training seminars.

Keywords: Demography, Developing countries, International health, Statistics, Trends

Positive Moves

Annotation: Positive Moves, a trademark of CWD International, is a national resource for educational materials, training, consulting and publications based on the Positive Prevention Model - a healthy, life-affirming approach to social issues such as drugs and violence. Its materials and programs are designed to provide the skills and knowledge that enable policy makers, educators, health professionals, service providers, parents, and communities to implement strategies for creating safe, healthy communities. The organization offers resource evaluation services and provides speakers and presenters for conferences, training, and continuing education. CWD publishes a newsletter and handbooks, including Positive Moves Campus Kit for colleges and Changing Times, Changing Minds: An Awareness Handbook for Understanding and Creating Influences for all audiences. Materials are available in French, Spanish and Portuguese.

Keywords: Drug education, Evaluation, Substance abuse prevention programs, Training

Postpartum Support, International (PSI)

Annotation: Postpartum Support, International (PSI) focuses on the mental health and social support needs of pregnant and postpartum women. The organization works to increase public and professional awareness of the emotional changes women often experience during pregnancy and after the birth of a baby. PSI provides referrals, reference information, and online resources for consumers, as well as training materials and tools for professionals. The organization also sponsors conferences, training seminars, and workshops. Materials are available in Spanish, French, German, and other languages.

Keywords: Postpartum depression

Power to Decide: The Campaign to Prevent Unplanned Pregnancy

Annotation: Power to Decide, previously the National Campaign to Prevent Teen and Unpllanned Pregnancy (NCPTUP), founded in 1996 as the National Campaign to Prevent Teen Pregnancy, is a nonprofit, nonpartisan organization which seeks to improve the well-being of children, youth, and families through reducing the rate of adolescent pregnancy by one third by the year 2005. In 2008, the mission was expanded to include unplanned pregnancies among 20-somethings. Resources for professionals include fact sheets, statistical compilations, journal articles, conference proceedings, and individual state data on adolescent pregnancy and adolescent pregnancy prevention. Services to consumers include publications addressed to parents, adolescents, and faith communities. Press releases are also provided to the media. The campaign has a resource bureau that fills requests for speakers, consultants, key contacts in each state, publications, and other resources; some materials are available in Spanish. The name was changed in December 2017.

Keywords: Prevention programs, Abstinence, Adolescent pregnancy, Contraception, Family planning, Public awareness campaigns, Publications, Spanish language materials, Statistics, Young adults

Prader-Willi Syndrome Association (USA) (PWSA-USA)

Annotation: The Prader-Willi Syndrome Association (PWSA) is a parent and professional support group that provides education and support for people dealing with Prader-Willi syndrome. Services to consumers include referrals and publications. Some materials are available in Spanish and French. The association offers videotapes (overviews, television programs, exercise tapes), audiotapes (past national conferences, guidelines for care providers), and a bimonthly newsletter, The Gathered View. PWSA also sponsors conferences.

Keywords: Family support services, Parent support services, Prader-Willi syndrome

Pregnancy and Infant Loss Center (PILC)

Pregnancy Foresight Project

Annotation: The Pregnancy Foresight Project is a March of Dimes sponsored project administered by Swedish Medical Center aimed at assessing the current practice and improving the nature and scope of Washington State primary care providers (PCPs) education in four key areas: (1) discussion of family history of birth defects/genetic disorders; (2) prenatal testing for birth defects/genetic disorders;  (3) benefits of folic acid in preventing birth defects; and  (4) effects of alcohol and smoking on babies. The project's Web site provides professional resources and patient education materials in numerous languages, including Arabic, Assyrian, Chinese, Croatian, Farsi / Persian, Greek, Indonesian, Italian, Japanese, Khmer / Cambodian, Korean, Laotian, Macedonian, Polish, Portuguese, Punjabi, Russian, Samoan, Serbian, Somali, Spanish, Thai, Tigrinya, Tongan, Turkish, Ukrainian, and Vietnamese.

Keywords: Asian language materials, Consumer education materials, Folic acid, Non English language materials, Preconception care, Prenatal education, Spanish language materials

President's New Freedom Commission on Mental Health

Annotation: The President's New Freedom Commission on Mental Health was established in 2002 to identify policies that could be implemented by Federal, State and local governments to maximize the utility of existing resources, improve coordination of treatments and services, and promote successful community integration for adults with a serious mental illness and children with a serious emotional disturbance. The commission's final report was disseminated in 2003 and the commission ended on April 29, 2003. The commission's Web site is posted in English, Spanish, and Korean.

Keywords: Mental health, Mental illness

Prevent Blindness America

Annotation: Prevent Blindness America is a volunteer eye health and safety organization dedicated to fighting blindness and saving sight. Focused on promoting a continuum of vision care, Prevent Blindness America touches the lives of millions of people each year through public and professional education, certified vision screening training, community and patient service programs and research. These services are made possible through the generous support of the American public. Together with a network of affiliates, divisions and chapters, it's committed to eliminating preventable blindness in America. Catalogs of publications, audiovisual materials, and posters are available to the public and health care professionals. Limited materials are available in Spanish.

Keywords: Blindness, Eye care, Health education, Medical research, Preschool children, Vision disorders, Vision screening

Prevent Child Abuse America (PCAA)

Annotation: Prevent Child Abuse America (PCAA), formerly the National Committee to Prevent Child Abuse, seeks to increase public awareness of the incidence, origins, nature, and effects of child abuse. The organization serves as a national advocate to prevent the neglect and physical, sexual, and emotional abuse of children. It sponsors their state chapters and the Healthy Families America home visitor prevention program. The organization sponsors conferences and training seminars and publishes a number of pamphlets and brochures on parenting for consumers. Some materials in Spanish.

Keywords: Advocacy, Child abuse, Injury prevention, Parent support services, Parenting, Peer support programs, Public education

Prevention First, Inc. (PFI)

Annotation: Prevention First, Inc. (PFI) provides current, comprehensive information and training on alcohol and other drug abuse prevention for Illinois residents. Through training, consultation, information services, and advocacy, PFI tries to promote health and wellness among individuals, organizations, and communities. Services to consumers include reference information and publications. Some materials are available in Spanish and Asian languages. PFI publishes a catalog and newsletter. The organization also sponsors conferences, training seminars and workshops.

Keywords: Substance abuse prevention, Advocacy, Alcoholism, Fetal alcohol syndrome, Health promotion, Illinois, Information services, Training

Program for Appropriate Technology in Health (PATH)

Annotation: Program for Appropriate Technology in Health (PATH) is a nongovernmental international organization that works to improve the health of women and children in developing countries by focusing on the effectiveness, availability, safety, and appropriateness of technologies for health and family planning. Its programs bridge the gap between technologies and potential users through research and development, field assessment, technology transfer, communication, and other activities. Program areas include emerging and epidemic diseases, health technologies, maternal and child health, reproductive health, and vaccines and immunization.. PATH offers a reproductive health newsletter, Outlook, available from its office in Seattle. Some publications are available in Spanish.

Keywords: Child health, Contraception, Counseling, Developing countries, Education, Immunization, Reproduction, Research, Training, Women's health

Project Inform National HIV/AIDS Treatment Hotline

Annotation: The Project Inform National HIV/AIDS Treatment Hotline provides referrals, printed information, and verbal information on treatments and clinical trials for people with HIV and their friends and families. The organization also sponsors conferences, training seminars and workshops and provides access to searchable databases. Publications include a newsletter and a list service. Spanish materials are available.

Keywords: AIDS, AIDS related complex , HIV, Listservs

Project Inform, Project WISE

Annotation: Project Wise is a program of Project Inform focused on HIV/AIDS treatment, information, and advocacy for women. The program includes the three-times yearly publication Wise Words, and provides regular contributions to the PI Perspective, the journal of Project Inform, as well as relevant fact sheets and discussion papers of interest to women living with HIV/AIDS. Materials are available in Spanish. Project Wise also sponsors conferences and workshops.

Keywords: AIDS, HIV, Women, Women's health

Prototypes, Centers for Innovations in Health, Mental Health and Social Services

Annotation: Prototypes, Centers for Innovations in Health, Mental Health and Social Services, is a nonprofit organization that provides services to over 10,000 women and children each year, including women who are homeless, those addicted to drugs and alcohol, those living with and at-risk for contracting HIV/AIDS, those who are diagnosed with mental illness, and women who are victims of violence. Prototypes demonstrates model outreach programs on AIDS education, prevention, and intervention, and provides services such as individual and group counseling, drop-in groups, networking, and behavioral research. Services to consumers include referrals, publications (some can be downloaded in pdf format from the Web site) and reference information and sponsors conferences, training seminars and workshops. Some materials are available in Spanish.

Keywords: AIDS, Education, Outreach

Public Health Foundation (PHF)

Annotation: The Public Health Foundation (PHF) is a national, non-profit organization dedicated to achieving healthy communities through research, training, and technical assistance. Building on over 32 years of experience, PHF assists health agencies and other community health system organizations by providing objective information in areas such as health improvement planning, understanding and using data, and improving performance. Through its Web-based Public Health Infrastructure Resource Center, PHF offers information and resources to help build the capacity of public health systems. PHF also provides training and resource materials via its online bookstore and sponsors TRAIN (TrainingFinder Real-time Affiliate Integrated Network) which provides a central database of training and education opportunities (including distance learning courses) for public health professionals of all disciplines. Spanish-language materials are available.

Keywords: Public health education, Databases, Distance education, Public health services

Publications.USA.Gov (FCIC)

Annotation: Publications.USA.Gov, formerly the Federal Consumer Information Center, is an online consumer information catalog that offers publications on topics such as parenting, nutrition, exercise, weight control, and child safety. It is one of the information channels maintained by the Federal Citizen Information Center (FCIC), in the U.S. Office of Citizen Services and Innovative Technologies.

Keywords: Child safety, Nutrition, Parenting, Patient education, Prenatal care, Weight management, Spanish language materials, Consumer education materials

PubMed Health

Quality Care for Children

Annotation: Quality Care for Children works to improve the quality, accessibility, and affordability for early care and education in Georgia. The organization works with parents to find appropriate child care for their children and with providers to improve the quality of their programs. This assistance includes providing training and educational brochures in Spanish; serving as a sponsor for the Federal Child Care Food Program; assisting families in crisis with child care needs and case management; and advocating on behalf of Georgia’s children for higher standards in child care. The organization publishes a newsletter and sponsors workshops and training seminars.

Keywords: Child care, Child health, Infant health

Rasmussen Syndrome and Hemispherectomy Support Group (RSHSN)

Annotation: The Rasmussen Syndrome and Hemispherectomy Support Group (RSHSN) services to consumers include referrals, reference information and they provide materials in Spanish, French languages. They publish newsletters and sponsor conferences.

Keywords: Rasmussen syndrome

Recovery, Inc.

Annotation: Recovery, Inc. is a self-help mental health organization which offers training in cognitive/behavioral techniques to prevent relapses in former mental patients and chronic suffering in nervous persons. Over 600 recovery groups meet weekly throughout the U.S. and Canada at no required cost to participants. In addition to English, many of their materials are available in Spanish, and some in French. Their publications include newsletters for consumers and mental health professionals, and a quarterly newsletter for members only. Recovery Inc. is a member managed organization.

Keywords: Mental health, Peer support programs

Reflex Sympathetic Dystrophy Syndrome Association of America (RSDSA)

Annotation: The Reflex Sympathetic Dystrophy Syndrome Association of America(RSDSA) supports research on the causes, treatment, and cure of reflex sympathetic dystrophy syndrome (RSDS)also known as Complex regional Pain Syndrome (CRPS). The association provides referrals to both treatment providers and support groups. Publications include Reflex Sympathetic Dystrophy Syndrome: Clinical Practice Guidelines and a quarterly newsletter, RSDSA Review. Some materials are available in Spanish. RSDSA sponsors conferences.

Keywords: Reflex Sympathetic Dystrophy syndrome, Information services, Medidal research, Nervous system diseases

REFORMA, the National Association to Provide Library and Information Services to Latinos and the Spanish Speaking

Annotation: REFORMA was established as an affiliate of the American Library Association to promote the development of library collections to include Spanish-language and Latino oriented materials; the recruitment of more bilingual and bicultural library professionals and support staff; the development of library services and programs that meet the needs of the Latino community; the establishment of a national information and support network among individuals who share the same goals; the education of the U.S. Latino population in regards to the availability and types of library services; and lobbying efforts to preserve existing library resource centers serving the interests of Latinos.

Keywords: Cultural diversity, Associations, Libraries, Library collection development, Library services, Recruitment, Spanish language materials

Region 4 Community Mental Health Center

Annotation: The Region 4 Community Mental Health Center provides outpatient mental health services to adults (18 and over) and seniors who are residents of southeast/far southwest Washington, D.C. Direct clinical services include personal, group, and family counseling, case management, rehabilitation day services, community outreach, general information and referral, and screening. Specialized services are available for persons with dual emotion/substance abuse problems; victims of violence, and the seriously mentally ill. Publications include a newsletter. The center provides materials in Spanish and sponsors conferences and training seminars.

Keywords: Mental health

Rehabilitation International (RI)

Annotation: Rehabilitation International is a federation of 185 organizations in 85 countries whose programs assist people with disabilities. The federation works to prevent disability and offers support for rehabilitation and community integration of people with disabilities. Some materials are available in Spanish, French, and Arabic. The organization publishes a newsletter, catalog and journal and sponsors conferences and training seminars.

Keywords: Rehabilitation, Disabilities, Support groups

Research and Training Center on Family Support and Children's Mental Health

Annotation: The Research and Training Center on Family Support and Children's Mental Health serves as a resource center for individuals and organizations working on behalf of children and youth with emotional/behavioral disorders and their families. Services to consumers include resource ideas, publications, and reference information. Some materials are available in Spanish. The Center's research, training, and technical assistance activities are guided by the philosophy that services should be community-based, family-centered and youth-guided, and culturally appropriate. The Center also maintains RTCUpdates, a monthly e-newsletter; publishes Focal Point, a twice-yearly journal; disseminates Data Trends, periodic summaries of current children's mental health research; and sponsors conferences.

Keywords: Adolescents, Affective disorders, Children, Clearinghouses, Mental health, Technical assistance

Resolve Through Sharing Bereavement Services (RTS)

Annotation: Resolve Through Sharing (RTS), also operated with the name Bereavement Services, is a comprehensive approach to caring for families whose babies have died during pregnancy or shortly after birth. RTS provides workshops and training, videos, and other educational materials. A free catalog is available that explains the program's history, support materials, and bereavement education programs. Some materials are available in French and Spanish.

Keywords: Fetal death, Grief, Perinatal bereavement, Perinatal mortality, Pregnancy loss, Spontaneous abortion

Resolve: The National Infertility Association

Annotation: Resolve: The National Infertility Association offers information, advocacy, and support for people experiencing infertility. Services include a national telephone helpline, referrals to medical specialists, literature on the emotional and medical aspects of infertility, a member contact network, medical updates, adoption information, and support groups. Publications include a quarterly newsletter. Some materials are available in Spanish. The organization holds conferences, workshops, and training seminars. RESOLVE has over 50 chapters in the United States.

Keywords: Infertility, Adoption, Advocacy, Health education, Information services, Support groups

Resource Center on Domestic Violence: Child Protection and Custody

Annotation: Established in 1993, the Resource Center on Domestic Violence: Child Protection and Custody, part of the Family Violence Department of the National Council of Juvenile and Family Court Judges, offers technical and training services to judges, court workers, advocates, lawyers, child protective workers, law enforcement personnel, and other professionals working in the field of domestic violence. The resource center is one of five domestic violence resource centers in the Domestic Violence Resource Network. The resource center publishes a newsletter and makes publications on family violence of the Family Violence Department available. Some materials are available in Asian and Spanish. The resource center also houses a library of videotapes available for loan.

Keywords: Family violence, Battered women, Child abuse, Child advocacy, Child custody, Child protective services, Domestic violence

Retinitis Pigmentosa International

Annotation: Retinitis Pigmentosa International offers referrals, peer support, and education. The organization has twenty chapters nationwide and operates a school for blind adults and sponsors conferences. Publications include a quarterly newsletter, brochures, research news items and videotapes. Through TheatreVision (description for the blind) major movies are becoming available to the blind community. RPI is actively involved nationally with organizations representing the blind, and offers a national radio program. Some materials are available in Spanish.

Keywords: Bassen-Kornzweig Syndrome, Best disease, Blindness, Choroideremia, Gyrate atrophy, Laurence Moon Biedl Syndrome, Leber congenital amaurosis, Refsum disease, Retinitis pigmentosa, Stargardt disease, Usher Syndrome, Vision disorders, Visually impaired

Rocky Mountain Center for Health Promotion and Education (RMC)

Annotation: The Rocky Mountain Center for Health Promotion and Education (RMC) is a private nonprofit corporation that trains educators to implement comprehensive sequential health education for children and youth. The center advocates a comprehensive, school-based approach focused on student-centered curricula, teacher training, and ongoing support. RMC provides other services to consumers include publications, referrals, and reference information. RMC publishes a newsletter and catalog, and some materials are available in Spanish. RMC provides health education, technical assistance, and training on leadership, facilitation, and standards and assessments.

Keywords: Curricula, Education, Health promotion

Safe Kids Worldwide (SKWW)

Annotation: Safe Kids Worldwide (SKWW) is a global effort to focus solely on unintentional childhood injury prevention. Each year, more than one million children ages 14 and under die from unintentional injuries such as fires, drownings, and traffic crashes, and many more are permanently disabled. Safe Kids Worldwide was created to meet this challenge by establishing a global network of organizations committed to the prevention of unintentional childhood injury. Services to consumers include inquiry responses, publications (some materials are available in Spanish), and reference Information. Safe Kids Worldwide publishes a catalog and newsletter, and sponsors conferences.

Keywords: Injury prevention, Advocacy, Bicycle helmets, Child health, International health, Intervention, Legislation, National organizations, Outreach, Public education, Safety equipment

Safe Schools Coalition

Annotation: The Safe Schools Coalition, founded in 1993 as the Safe Schools Coalition of Washington, aims to reduce bias-based bullying and violence in schools and to help schools better meet the needs of sexual minority youth and children with sexual minority parents or guardians in Washington state, nationally and internationally. The coalition provides information, referral, and advocacy for students, families, and educators; and offers training, model policies from Washington state school districts, posters, reports, handouts, and a resource guide.

Keywords: Bullying, Child safety, Coalitions, Homosexuality, School safety, School violence

SafetyBeltSafe U.S.A. (SBS USA)

Annotation: SafetyBeltSafe U.S.A. (SBS USA) is a national nonprofit organization that works to reduce the number of passengers, especially children, killed or injured as motor vehicle occupants. As a national resource center, the organization provides program and technical consultation, technical training, a speakers' bureau, and an audiovisual library. Other activities include the Safe Ride Helpline and a special annual event, Safety Seat Checkup Week. The Web site provides technically accurate material for both parents and professionals and offers subscription to a list service. Publications include a bimonthly newsletter,SafetyBeltSafe News, training materials, public information pieces, and other documents covering various aspects of child passenger safety. Some materials are available in other languages, including Spanish, Armenian, Asian languages, Farsi, and Russian.

Keywords: Occupant protection, Car seats, Injury prevention, Listservs, Seat belts

Salvation Army, Social Services for Children

Annotation: Salvation Army Social Services for Children brings together a variety of programs serving children, youth, and families in the greater New York area. The agency's resources are concentrated in child care, foster home and adoption services, residential treatment services for troubled youth, community residences for people with developmentaldisabilities, and community-based family preservation services. Some materials are available in Spanish.

Keywords: Youth services, Adoption, Child care, Disabilities, Foster care, Social services

SAMHSA's National Mental Health Information Center (NMHIC)

Annotation: The National Mental Health Information Center (formerly known as the National Mental Health Services Knowledge Exchange Network (KEN) provides easy access to information about mental health. Information on topics including addiction, anxiety, depression, and eating disorders is available from the innformation center. The Web site provides publications and other information, a state services locator, and a list of toll-free hotlines. Some materials are available in Spanish.

Keywords: Clearinghouses, Federal agencies, Hotlines, Mental health

San Francisco AIDS Foundation (SFAF)

Annotation: The San Francisco AIDS Foundation (SFAF) works to end the HIV epidemic and to mitigate its impact on society. The foundation educates the public on prevention of HIV transmission, helps people to make informed choices about HIV-related concerns and defends the human rights of people with HIV disease. The Foundation also provides client services, for people with HIV disease in San Francisco, that include housing, financial benefits counseling, treatment advocacy and support. In cooperation with other agencies, it provides leadership in the creation of direct services, public policy initiatives, and innovative, non duplicative educational programs. The Foundation also publishes a journal. Services to consumers include referrals and publications. Some materials are available in Spanish and Asian languages.

Keywords: AIDS, AIDS related complex, Financial support, HIV, Health education, Policy development, Prevention programs, Public education, Support groups

Save the Children (SC/US)

Annotation: Save the Children Federation/US (SC/US) is a nonprofit, nonsectarian organization with a mission to make lasting, positive change in the lives of children in need, both in the United States and abroad. SC/US's core development philosophy stresses the importance of engaging community members in problem analysis, action planning, and concerted community and family efforts to address the variety of obstacles inhibiting the successful development of children and society, working through these program areas: child protection, education, health and nutrition, HIV/AIDS, and livelihoods. Services to consumers include publications and reference information. Some materials are provided in Spanish, French and Asian languages. The organization also sponsors training seminars.

Keywords: Child health, Developing countries

School Nutrition Association (SNA)

Annotation: The School Nutrition Association (NSA), formerly the American School Food Service Association, is a national, non-profit professional organization representing more than 55,000 members who provide meals to students across the country. The association and its members are dedicated to feeding children affordable, safe, and nutritious meals. The association distributes information on school food and nutrition programs and child nutrition legislation and seeks to encourage and promote the maintenance and improvement of school food and nutrition programs. NSA offers certification and credentialing programs; sponsors conferences, workshops, and training seminars; and publishes a variety of materials, including a monthly magazine, an e-newsletter, training materials, and an online research journal. Some materials are available in Spanish.

Keywords: Nutrition, Certification, Child nutrition, Conferences, Group feeding, Nutrition programs, Online databases Professional societies, Publications, School food services, Spanish language materials

Scleroderma Foundation (SF)

Annotation: The Scleroderma Foundation (SF) formerly known as United Scleroderma Foundation (USF) provides emotional and educational support for people with scleroderma and their families in the United States and Canada. The foundation supports scleroderma-related research and publishes a quarterly newsletter. A publications list is available. It also provides consumers with referrals and reference information and sponsor s conferences. Some materials are available in Spanish.

Keywords: Scleroderma, Connective tissue diseases, Health education, Support groups

Scoliosis Association

Annotation: The Scoliosis Association provides support and nonmedical information for people with scoliosis and related spinal deformities, their families, and the community. The association supports research and helps its members to cope with the physical, psychological, and emotional problems associated with scoliosis and related spinal deformities through local chapters throughout the United States. Publications include Scoliosis Fact Sheet, Scoliosis—An Adult Perspective (audiovisual), 2001 Minneapolis Spinal Conference Video - 2 Videos, and a quarterly periodical, Backtalk. Available videos include: Dealing with Scoliosis: A Patient's Guide to Diagnosis and Treatment, and Preparing Yourself for Spinal Surgery: For Teenagers with Severe Scoliosis. Numerous book titles are also available, as well as other scoliosis-related materials. Online fact sheets are available in Spanish and French.

Keywords: Scoliosis, Information services, Medical research, Musculoskeletal diseases, Support groups

Search Institute

Annotation: Search Institute is a nonprofit organization that promotes the well-being and positive development of children and youth by conducting scientific studies and interpreting the findings to develop useful programs, resources, and services. Research emphases include at-risk behaviors, effective communities, family dynamics, alcohol and other drugs, values, spiritual development, and community and social change. Publications include research reports, newsletters, books, videotapes, study guides, workbooks and a quarterly magazine. A list of publications is available. Some materials are available in Spanish. The institute also maintains a listserv and sponsors conferences, workshops, and training seminars. SI offers Continuing Education Unit's (CEU's) to training participants through Augsburg College in Minneapolis, Minnesota.

Keywords: Adolescents

Seattle Children's Center for Children with Special Needs

Annotation: Seattle Children’s Center for Children with Special Needs is an information source for families and professionals. Focused on children and youth with special health needs who have physical, developmental, behavioral, or emotional conditions, the center provides information and resources, program evaluation and needs assessment, and health education and training. The center collaborates with a variety of health care organizations, state agencies, families, and health care providers to plan and implement grants and contracts that improve systems of care and increase access to health education and community resources. The center is funded through contracts and grants, endowments and Seattle Children’s. The Washington State Department of Health supports development and maintenance of this website.

Keywords: Children with special health care needs, Collaboration, Information dissemination, Information sources, Publications, State programs

Sexuality Information and Education Council of the United States (SIECUS)

Annotation: The Sexuality Information and Education Council of the United States (SIECUS) is a nonprofit organization that develops, collects, and disseminates information, promotes comprehensive education about sexuality, and advocates the right of individuals to make responsible sexual choices. SIECUS offers a community action kit for advocates and maintains a SexEd online library that provides resources and tools for educators who teach about sexuality. Lessons, curricula, research, and professional development opportunities are among the library's offerings. The council also produces a wide variety of resources for parents, teenagers, policymakers, healthcare providers ,and others in its efforts to ensure that everyone has access to accurate and up-to-date information about sexuality.

Keywords: Sexuality, Advocacy, Health promotion, Information dissemination, Reproductive health, Sexuality education

Share and Care Cockayne Syndrome Network

Annotation: Share and Care Cockayne Syndrome Network supports families of children with Cockayne syndrome. The organization provides referrals, reference information, and publications, including a quarterly newsletter. Some materials are provided in Spanish and German. The network also sponsors an annual retreat.

Keywords: Cockayne syndrome, Developmental disabilities, Parent groups, Support groups

Share Pregnancy and Infant Loss Support (SHARE)

Annotation: Share Pregnancy and Infant Loss Support serves those whose lives are touched by the death of an infant through early pregnancy loss, stillbirth, or in the first few months of life. SHARE contributes information packets, correspondence, and support free of charge to bereaved parents. Additional services include training and conferences, support resources such as a bimonthly newsletter, a chat room, online catalog, and message boards. Some materials are available in Spanish.

Keywords: Pregnancy loss, Ectopic pregnancy, Fetal death, Grief, Information services, Molar pregnancy, Perinatal bereavement, Perinatal mortality, Spontaneous abortion, Support groups

SHARE: Self-Help for Women With Breast or Ovarian Cancer (SHARE)

Annotation: SHARE: Self-Help for Women With Breast or Ovarian Cancer, formerly SHARE: Self-Help for Women With Breast Cancer, offers bilingual support to women affected by breast or ovarian cancer and their families and friends. Services to consumers include hotlines, support groups, wellness and education programs, referrals, publications, and reference information. SHARE provides some materials in Spanish, and publishes a newsletter and a quarterly calendar listing all programs.

Keywords: Breast cancer, Support groups, Women's health

Shriners Hospital for Children

Annotation: Shriners Hospital for Children operates 19 orthopedic hospitals, one hospital that provides orthopedic, burn and spinal cord injury care to and three burn hospitals serving children under the age of 18 in the U.S., Mexico, and Canada. Diagnosis and treatment are offered solely on the basis of medical need, at no charge to the patient's family. The burn hospitals accept children who need immediate care or those needing plastic surgery and rehabilitation (healed burns). Research on the causes of crippling and scarring and on methods of treatment is conducted at all 22 of the Shriners Hospitals. Eligibility for treatment is determined on the basis of applications completed by parents or guardians, the referring physician, and a local Shriner sponsor. Referrals, publications, and reference information are available to the Shriners Hospitals. Some resources are available in Spanish.

Keywords: Burns, Children with special health care needs, Hospitals, Orthopedics

Shwachman-Diamond Syndrome Foundation

Annotation: The Shwachman-Diamond Syndrome Foundation, formerly Shwachman-Diamond Syndrome International, provides referrals, networking/matching, research, and publications (including a newsletter). Some materials are available in Spanish, French, Italian and Dutch. The organization sponsors training seminars and workshops.

Keywords: Growth disorders, Shwachman Syndrome

Sickle Cell Disease Association of America (SCDAA)

Annotation: The Sickle Cell Disease Association of America (SCDAA), formerly the National Association for Sickle Cell Disease, is a voluntary membership organization that promotes the search for a cure for all people in the world with sickle cell disease while striving to improve the quality of health, life , and services for individuals, families, and communities affected by sickle cell disease and related conditions, SCDAA's national programs include education and awareness, research support, patient advocacy and technical assistance; conferences, training seminars, and workshops. Publications include educational materials (available in English and Spanish) and an online newsletter.

Keywords: Sickle cell disease, Health promotion, Hematologic diseases, Hemoglobinopathies, Information services

Sickle Cell Disease Scientific Research Group (SCDSRG)

Annotation: The Sickle Cell Disease Scientific Research Group is the main extramural administrative facility for the National Sickle Cell Disease Program. This office administers basic research and clinical trials in sickle cell disease sponsored by the National Heart, Lung and Blood Institute of the the NIH. Research is conducted at universities and medical centers around the U.S. The SCDSRG offers referrals to patients for care at ten NHLBI funded Comprehensive Sickle Cell Centers, and its other services to consumers include publications and reference information. Materials are available in Spanish. SCDSRG also sponsors conferences and workshops.

Keywords: Hemoglobinopathies, Medical research, Neonatal screening, Sickle cell disease

Sidelines National Support Network (Sidelines)

Annotation: The Sidelines National Support Network is a nonprofit organization offering education, referral, support, and advocacy services to women with complicated pregnancies. Services include trained peer telephone and e-mail counselors, information and suggestions for families and friends, and support for families experiencing pregnancy complications. Publications include a national magazine and information packets on high-risk pregnancy. Some materials are available in Spanish, and some bilingual volunteers are available to help consumers. Sidelines sponsors training for volunteers.

Keywords: Bed rest, High risk pregnancy, Pregnancy complications, Support groups

SIDS and Kids Australia

Annotation: SIDS and Kids, a nonprofit organization in Australia, is dedicated to saving the lives of babies and children during pregnancy, birth, infancy and childhood and supporting bereaved families. SIDS and Kids works to find answers for parents by funding and supporting vital research into stillbirth, SIDS and safe sleeping practices. Activities include world class research; evidence based education and bereavement support; and advocacy. Materials include a safe sleep app in Arabic, Chinese, English, Hindi, and Vietnamese and printed information in Arabic, Assyrian, Bosnian, Burmese, Cantonese (Chinese), Chin, Croatian, Dari, Dinka, English, Farsi, Greek, Hindi, Indonesian, Italian, Karen, Khmer, Korean, Laotian, Macedonian, Malay, Mandarin (Chinese), Maori, Nuer, Portuguese, Russian, Serbian, Sinhalese, Somali, Spanish, SudaneseArabic, Swahili, Thai, Tigrinya, Turkish, and Vietnamese.

Keywords: Advocacy, Australia, Fetal death, Grief, Bereavement counselors, Infant death, Infant mortality, Injury prevention, Research, SIDS

Sjogren's Syndrome Foundation (SSF)

Annotation: The Sjogren's Syndrome Foundation (SSF) helps people with Sjogren's syndrome and their families to cope with the problems and frustrations of this chronic disease. The foundation sponsors Local Support Groups and national symposia. Publications include The Sjogren's Syndrome Handbook: An Authoritative Guide for Patients and a newsletter, The Moisture Seekers, produced nine times a year. Some materials are available in Spanish. The foundation also provides referrals and reference information and sponsors conferences and workshops.

Keywords: Sjogrens syndrome, Immunologic diseases, Parent groups, Support groups, Women

Sleep Products Safety Council (SPSC)

Annotation: The Sleep Products Safety Council (SPSC) is a nonprofit service organization established in 1986, whose mission is to provide consumer safety information, support research and promote activities aimed at reducing hazards associated with sleep products. The council is primarily funded through sales of safety hangtags that warn consumers of the potential fire and bedroom safety hazards that may result from improper use of sleep products. The SPSC Web site includes a children's page with interactive games and quizzes, which targets the "at risk" population responsible for the majority of bedroom fires: children under age 14. It also contains information for teachers, parents, and caregivers. In recent years, the council has also supported open-flame mattress research, in cooperation with the U.S. Consumer Product Safety Commission, that will be utilized to develop a tougher standard for residential mattresses. Some materials are available in French or Spanish.

Keywords: Fires, Injury prevention, Non English language materials, Product safety, Sleep products, Spanish language materials

Smart Start

Annotation: Smart Start is a childhood initiative in the state of North Carolina designed to help ensure that young children enter school healthy and ready to succeed. This public-private initiative provides early education funding to all of the state's 100 counties through local nonprofit organizations. Smart Start works to improve the quality of child care, make child care more affordable and accessible, and provide access to health services and other family support, Smart Start's National Technical Assistance Center provides technical assistance to communities and states and offers a variety of publications, in both English and Spanish, describing start-up efforts, lessons learned, effective practices, and quality improvement.

Keywords: School readiness, Child care, Child health, Early childhood education, Local initiatives, North Carolina, Public private partnerships, Schools, Technical assistance

Smokefree.gov

Annotation: SmokeFree.Gov provides information and tools to help smokers of all ages quit the habit. Resources include an online guide to quitting; information on SmokefreeTXT, a free, smoking-cessation text messaging service designed for adolescents and young adults across the United States; separate websites for teens and women (including guidelines for pregnant women); and a separate Spanish language website. SmokeFree.Gov also provides resources for health professionals, including the QuitNowTXT Message Library developed by NCI's Tobacco Control Research Branch to provide health departments, academic institutions, and government agencies with an algorithm and database of messages designed to serve as smoking-cessation intervention for individuals who are ready to quit smoking.

Keywords: Prevention, Smoking, Smoking cessation, Smoking during pregnancy, Spanish language materials

Society for Women's Health Research (SWHR)

Annotation: Established in 1990, the Society for Women's Health Research is a national advocacy organization that works to improve the health of women through research. The society cooperates with other medical and advocacy groups to gather, analyze, and disseminate information about women's health research. Publications include a newsletter and brochures. Some materials are available in Spanish. The organization also sponsors conferences and workshops.

Keywords: Women's health, Women's health research

South Carolina Department of Health and Environmental Control, Division of WIC Services (SCDHEC)

Southern Early Childhood Association (SECA)

Annotation: The Southern Early Childhood Association (SECA), formerly the Southern Association on Children Under Six, serves the interests of professionals and paraprofessionals through its affiliates in 14 southern states. Members include university researchers and teacher educators, Head Start teachers and administrators, school administrators, proprietors of nursery schools and child care centers, and kindergarten, nursery school, and child care teachers. Publications include a quarterly journal, Dimensions of Early Childhood, a newsletter and a catalog. Some materials are available in Spanish. The association also provides training sessions and sponsors an annual conference.

Keywords: Child health, Child care, Information services, Young children

Special Olympics (SO)

Annotation: Special Olympics (SO) is an international organization that promotes understanding, acceptance, and inclusion between people with and without intellectual disabilities through year-round sports training and athletic competition and other related programming. SO provides children and adults with intellectual disabilities continuing opportunities to realize their potential, develop physical fitness, demonstrate courage, and experience joy and friendship. Resources include research reports, an e-newsletter, a fellowship program, and schools and youth outreach. SO also offers free health screenings and health information at local, regional, and World Games. SO's Project Unify is a school-based initiative in the United States that focuses on social inclusion, bringing youth with and without intellectual disabilities together through sports and related activities.

Keywords: Physical fitness, Children with special health care needs, Chronic illnesses and disabilities, Developmental disabilities, Inclusive schools, Information services, Mental retardation, School health programs, Sports

Spina Bifida Association of America (SBAA)

Annotation: The Spina Bifida Association of America (SBAA) is a national organization dedicated to increasing awareness and prevention of spina bifida and serving as an advocate in an effort to enhance the lives of all affected by spina bifida. In a continuing commitment to educate the public on preventing spina bifida and improving the quality of life for persons with spina bifida, SBAA is active in efforts to influence public policy to assist persons with disabilities. Among other services offered are a free information and referral service, a newsletter, publications, an annual national conference, a scholarship fund and a research fund. Some materials are available in Spanish.

Keywords: Spina Bifida, Advocacy, Health education, Information services, Meningocele, Meningomyelocele, Nervous system diseases, Neural tube defects

STAND! Against Domestic Violence

Annotation: STAND! Against Domestic Violence, (formerly the Battered Women's Alternatives) serves battered women and their families and strives to eliminate domestic violence and help families flourish. The organization provides technical assistance and resources to other programs across the country and offers referrals, reference information, and other services to battered women, their children, and abusive partners. Some of the services offered include legal assistance, family/couples counseling, employment assistance, transitional housing, emergency shelter, and treatment for abusive men. Publications include a newsletter, and resources are available in Spanish and some Asian languages. The organization also sponsors training seminars.

Keywords: Battered women, Domestic violence, Technical assistance, Violence prevention

State Library of Louisiana

Annotation: Services to consumers include referrals, publications, and reference information. The library sponsors conferences and training seminars, publishes a newsletter, and provides materials in Spanish, French, Asian languages, and other languages.

Keywords: Libraries, Louisiana, State agencies

STOMP (Specialized Training of Military Parents)

Annotation: STOMP (Specialized Training of Military Parents) is a parent-directed program working to assist military families who have children with special health or education needs. STOMP works to connect families to other families; provides a voice to raise awareness of issues faced by military families of children with disabilities; assists parents and professionals in developing their own community parent education/support groups; and provides information and training about laws, regulations and resources for military families of children with disabilities. STOMP, which began in 1985, is a project of Washington PAVE, a parent organization providing support, advocacy, training and informational resources to empower all families and individuals with disabilities.

Keywords: Children with special health care needs, Families, Family support, Federal programs, Parent support services, Special education

Stopbullying.gov

Annotation: StopBullying.gov provides information from various government agencies on what bullying is, what cyberbullying is, who is at risk, and how you can prevent and respond to bullying. The website is managed by the U.S. Department of Health & Human Services. The website can be viewed in English and Spanish.

Keywords: Bullying, Spanish language materials, Spanish language website, Violence prevention

Students Against Destructive Decisions (SADD)

Annotation: Students Against Destructive Decisions (SADD), previously known as Students Against Driving Drunk, is a national nonprofit organization founded in 1981. Its members include students in middle and high schools, college students, and concerned adults. The SADD mission is to provide students with the best prevention and intervention tools possible to deal with the issues of underage drinking, impaired driving, drug abuse and other destructive decisions. SADD publishes a newsletter and sponsors a National conference. Some materials are available in Spanish.

Keywords: Adolescents, Alcohol, Children, Impaired driving, Injury prevention

Sturge-Weber Foundation (SWF)

Annotation: The Sturge-Weber Foundation (SWF) serves as a clearinghouse for information on Sturge-Weber syndrome,Klippel-Trenaunay syndrome and port wine stain related conditions. The SWF facilitates and funds research on the syndromes, and maintains a support network for affected persons and families. SWF is also working to increase government's investment in research for a cure. Publications include medical papers, a 3x a year newsletter, and monthly E-news. Some materials are available in Spanish. SWF also sponsors local and national conferences.

Keywords: Congenital port wine stain, Nervous system diseases, Parent groups

Sudden Arrhythmia Death Syndromes Foundation (SADS Foundation)

Annotation: Sudden Arrhythmia Death Syndromes Foundation (SADS Foundation) works to help save the lives of children and young people who are genetically predisposed to sudden death due to cardiac arrhythmias. The SADS Foundation acts as an information clearinghouse for the Long QT Syndrome (an area of particular concern for the Foundation), and publishes a newsletter for patients and families. The organization offers research services, physician referrals, care coordination and support groups, and act as a networking service.

Keywords: Heart defects

Sudden Infant Death Services of the Mid-Atlantic (SIDS Mid-Atlantic)

Annotation: Sudden Infant Death Services of the Mid-Atlantic (SIDS Mid-Atlantic) has as its mission to support family members and others who have been affected by the sudden and unexpected death of an infant; and to educate the public and professional community about infant death, including sudden infant death syndrome and its risk factors. SIDS Mid-Atlantic serves Washington, DC, Maryland, and Virginia. SIDS Mid-Atlantic has also merged with Two Tiny Hands (www.twotinyhands.com) to provide support to siblings of babies who have died. A Spanish-speaking staff member and some materials in Spanish are provided.

Keywords: Bereavement, District of Columbia, Maryland, Prevention programs, SIDS, Spanish language materials, State organizations, Support groups, Virginia

Sugar Association

Annotation: The Sugar Association maintains an active role in communicating to the public accurate information about sugar and its contributions to foods and nutrition. By creating public education programs, the Association has worked to dispel misconceptions about sugar as well as provide opportunities for continued scientific research. Its resource list and order form offers 58 different publications on a wide range of nutrition and fitness topics including consumer brochures, medical fact sheets, professional materials and curriculum materials for teachers. The association produces publications (including a catalog) and offers some materials in Spanish.

Keywords: Food, Food additives, Nutrition, Sugar

Support Center for School-Based and School-Linked Health Care

Annotation: The Support Center for School-Based and School-Linked Health Care, a project of Advocates for Youth, is a national resource for school-based and school-linked health centers (SB and SLHCs). Open since 1985, the center assists in program development, consults on program operations, assesses public policy initiatives, and develops numerous materials. Publications include a five-volume Guide to school-based Health care, Update: A report on a survey of SBHC's, a newsletter and other materials. Some materials are available in Spanish. A catalog is available. The center also sponsors conferences.

Keywords: School health, Counseling, Evaluation, School based clinics, School linked programs

Support Organization for Trisomy 18, 13, and Related Disorders (SOFT)

Annotation: The Support Organization for Trisomy 18, 13, and Related Disorders (S.O.F.T.) supports and educates families and caregivers of children with trisomy 18 or 13 and related trisomy disorders. The organization provides referrals, reference information and the following publications: Trisomy 18: A Book for Families, Trisomy 13: A Book for Families, Care of the Infant and Child with Trisomy 18 and Trisomy 13 and a bimonthly newsletter, SOFT Times. SOFT also provides some Spanish materials and sponsors conferences and workshops.

Keywords: Trisomy 13, Chromosome abnormalities, Edwards syndrome, Family support services, Genetic disorders, Health education, Patau syndrome, Support groups, Trisomy 6

Susan G. Komen for the Cure

Annotation: Susan G. Komen for the Cure (formerly the Susan G. Komen Breast Cancer Foundation) was formed in 1982 to eradicate breast cancer as a life-threatening disease by advancing research, education, screening, and treatment. The organization funds education and screening projects for the medically underserved and awards grants for basic and clinical research. Services to consumers include publications and reference information. Some materials are available in Spanish. The organizations publishes a newsletter and a catalog, and sponsors conferences.

Keywords: Breast cancer, Grants, Research

Technical Assistance Alliance for Parent Centers, National Technical Assistance Center

Annotation: The Technical Assistance ALLIANCE for Parent Centers (the ALLIANCE) National Technical Assistance Center provides technical assistance to more than 100 parent centers funded under the Individuals with Disabilities Education Act (IDEA). The national center works with six regional centers across the country as a unified technical assistance system.

Keywords: Children with special health care needs, Family resource centers, Parent support services, Spanish language materials, Technical assistance

Texas Genetics Network (TEXGENE)

Annotation: The Texas Genetics Network (TEXGENE) works to decrease the impact of genetic diseases in Texas and to assist individuals and families affected by or concerned about genetic diseases. The goals of the network are to provide quality human genetic services statewide; to educate health care professionals, consumers of genetic services, and the public about genetic diseases and available genetic services; to coordinate the laboratory diagnostic capacity of existing genetics groups in the areas of biochemistry, cytogenetics, DNA diagnosis, and prenatal diagnosis; to collect data on the provision of genetic services; and to increase consumer involvement. TEXGENE provides consumers with referrals, publications, and reference information. Some materials are available in Spanish. The network also publishes a newsletter, and sponsors conferences and training seminars.

Keywords: Regional genetics networks, DNA, Data collection, Genetic counseling, Genetic services, Genetics, Health education, Information services, Professional education, Texas

Thalassemia Action Group (TAG)

Annotation: The Thalassemia Action Group (TAG) is a support group for people with thalassemia (major, intermedia, and sickle/thalassemia). It works to locate and identify people with thalassemia throughout the United States, to promote compliance with the treatment requirements of the disease, and to provide a better quality of life for people with thalassemia through the education of physicians, nurses, and patients. The group is sponsored by the Cooley's Anemia Foundation. Services to consumers include referrals and publications. Materials are available in Spanish and Asian languages. TAG publishes a newsletter and sponsors annual patient/parent conferences.

Keywords: Thalassemia, Anemia, Health education, Health promotion, Information services, Professional education, Support groups

ThinkFirst National Injury Prevention Foundation (ThinkFirst)

Annotation: ThinkFirst National Injury Prevention Foundation works to prevent brain, spinal cord, and other traumatic injuries through education, research, and advocacy. The foundation offers theory-based, evidence-based injury prevention programs for children, adolescents, and young adults; presentations through a chapter network; injury prevention facts; educational materials and resources; training for physicians and other health professionals; and speaker, volunteer, and support opportunities.

Keywords: Advocacy, Brain injuries, Child safety, Educational materials, Injury prevention, Multimedia, Prevention programs, Research, Resources for professionals, Spinal cord injuries, Traffic safety, Training

Through the Looking Glass (TLG)

Annotation: Through the Looking Glass (TLG) is a non-profit agency that provides services, training, materials, and research concerning families in which a child, parent or grandparent has a disability or medical issue. Direct services to local Bay Area families include in-home clinical intervention services, development of adaptive parenting equipment, parent support groups and other services geared to each family's unmet needs. Services provided at the national level include training, publications, scholarships, a parent blog, and a legal program that promotes justice and human rights for parents with disabilities and their children in child care custody cases.

Keywords: Children with special health care needs, Chronic illnesses and disabilities, Parenting, Pregnancy, Special health care needs, Women

Thyroid Foundation of America (TFA)

Annotation: The Thyroid Foundation of America (TFA) is a non-profit membership organization dedicated to increasing public awareness about thyroid disease, providing education and support for thyroid patients and the health providers and physician referrals to thyroid patients and their families. Publications include a newsletter. Limited materials are available in Spanish.

Keywords: Thyroid disorders

Tourette Syndrome Association (TSA)

Annotation: The Tourette Syndrome Association (TSA) promotes understanding and acceptance of Tourette syndrome (TS) among professionals and the public. The association disseminates information on TS, supports scientific research, and provides counseling and advocacy services. Publications include Questions and Answers about TS, Guide to Physicians, TS and the Law, Pharmacology, Facts You Should Know About the Genetics of Tourette Syndrome, Mini-Conference on TS and Associated Behaviors, and a quarterly newsletter, Tourette Gazette. Audiovisual materials include Stop It! I Can't, A Gift of Hope, I'm a Person Too!, A Panel of Experts, TS Guide to Diagnosis, and Talking About Tourette Syndrome. A publications catalog is available. TSA has more than 50 chapters around the United States. It sponsors national conferences, training seminars and workshops and publishes a newsletter four times a year. A number of publications are available in Spanish, French and Hebrew.

Keywords: Nervous system diseases, Health promotion, Information dissemination, Support groups, Tourette syndrome

Training and Technical Assistance Services (T/TAS)

Annotation: Training and Technical Assistance Services (T/TAS) at Western Kentucky University provides Head Start training and technical assistance, delivering comprehensive Head Start professional development training, consultation, products, and resources in all program content areas. It offers publications and reference information to consumers; some products are available in Spanish. An e-mail list is available for Head Start, Early Head Start, and child care providers. The organization also publishes a catalog and offers conferences and training seminars.

Keywords: Early Head Start, Early childhood education, Head Start, Spanish language materials, Technical assistance, Training

Trauma Foundation

Annotation: The Trauma Foundation is an independent nonprofit agency whose mission is to reduce the number of injuries and deths due to injuries, including those related to burns, domestic violence, firearms, transportation, the workplace, youth violence, and all injuries involving excess alcohol use, through prevention, improved trauma care, and improved rehabilitation. Its activities include data collection and research to support injury prevention policies; policy development and education; and information dissemination.

Keywords: Head injuries, Injury prevention, Public policies, Substance abuse, Therapeutics, Unintentional injuries, Violence prevention

Tuberous Sclerosis Alliance

Annotation: The Tuberous Sclerosis Alliance, formerly the National Tuberous Sclerosis Association, is a voluntary nonprofit organization formed in 1974 by concerned parents. Its mission is to provide a better quality of life for those affected by tuberous sclerosis (TS) and to encourage research and education which will prevent future generations from experiencing the tragedy of this disease. Services to consumers include referrals, publications, and reference information. Materials are available in Spanish. The alliance publishes brochures, fact sheets, and a newsletter and also sponsors training seminars, workshops, and regional and national conferences.

Keywords: Tuberous Sclerosis, Information services, Medical research, Nervous system diseases, Support groups

Tuberous Sclerosis International (TSI)

Annotation: Formed in 1986, Tuberous Sclerosis International (TSI) is a worldwide organization of national tuberous sclerosis associations. This organization seeks to increase the knowledge of Tuberous Sclerosis (TS) throughout the world, to stimulate and coordinate research on TS, interest statutory international organizations on the welfare of TS sufferers, support TS national associations in their efforts, and to exchange information among associations. Some materials are available in Spanish, Polish, other languages and video format.

Keywords: Tuberous sclerosis, Information services, Overseas organization, Spanish language materials

Turner's Syndrome Society of the United States (TSS-US)

Annotation: The Turner Syndrome Society of the United States is a nonprofit organization for women and girls with Turner syndrome and their families. The society promotes public education through television, newspapers, and a speakers' bureau, and it facilitates communication between local and state support organizations. Publications include a newsletter, and some materials are available in Spanish. TSS-US also provides chapter/support groups and sponsors workshops, training seminars, and annual conferences.

Keywords: Chromosome abnormalities, Genetic disorders, Public awareness materials, Turners syndrome, Women

Twin to Twin Transfusion Syndrome Foundation (TTTSF)

Annotation: The Twin to Twin Transfusion Syndrome Foundation is an international, nonprofit organization solely dedicated to saving babies afflicted with Twin to Twin Transfusion Syndrome (TTTS), improving their future health and care, and keeping them together the way twins are meant to be. The foundation provides educational, emotional, and financial support to families and caregivers before, during, and after pregnancies diagnosed with TTTS, and helps to further medical research into this disease and its related complications. Services are also provided to help families and caregivers with multiple birth loss deliveries and recoveries as well as multiple birth babies born with physical challenges. Participation in their international TTTS registry is encouraged and support and education is provided through parent packets, telephone contact, hospital and home visitation, parent to parent connections, a referral database, books and articles, assistance to authors, researchers and lawyers, conferences, workshops, public speaking and the Internet. Materials on the web site will be available in 12 languages including Spanish, French, Asian, Dutch and German.

Keywords: Fetofetal transfusion, Twins

U.S Pharmacopeia (USP)

Annotation: The United States Pharmacopeia (USP), formerly the United States Pharmacopeial Convention, is a non-government nonprofit organization that promotes the public health by establishing standards to ensure the quality of medicines and other health care technologies. These standards are developed by a unique process of public involvement and are recognized worldwide. USP has three additional public health programs focusing on promoting optimal health care, including the Dietary Supplement Verification Program (DSVP), Health Care Information, and Patient Safety. USP also conducts verification programs for dietary supplement ingredients and products. These programs involve independent testing and review to verify ingredient and product integrity, purity, and potency for manufacturers who choose to participate. USP publishes a catalog (some materials are available in Spanish) and sponsors conferences.

Keywords: Pharmaceutical societies

U.S. Center for Devices and Radiological Health (CDRH)

U.S. Administration for Children and Families (ACF)

Annotation: The U.S. Administration for Children and Families (ACF) administers programs focusing on the well-being of children and the self-sufficiency of families. Some services at ACF include programs involving persons with developmental disabilities, child care, child welfare services, prevention and treatment of child abuse and neglect, runaway and homeless youth, Head Start, Temporary Assistance for Needy Families (TANF), and child support enforcement issues. ACF also supports an Healthy Marriage Initiative which focuses on low-income married couples with children, the Fatherhood Initiative, and the Family Violence Prevention and Services Program. ACF provides consumers with referrals, publications, and reference information. Some materials are available in Spanish. The agency also publishes newsletters, and sponsors conferences and training seminars.

Keywords: Child abuse, Child care, Child support, Domestic violence, Family centered care, Family economics, Family relations, Family support programs, Fathers, Head Start, Spanish language materials, Training materials, Young children

U.S. Agency for Healthcare Research and Quality (AHRQ)

Annotation: The Agency for Healthcare Research and Quality (AHRQ) supports research designed to improve the quality of health care, reduce its cost, and broaden access to essential services. AHRQ supports the National Guideline Clearinghouse, a public resource for evidence-based clinical practice guidelines; the National Quality Measures Clearinghouse, a public resource for evidence-based quality measures and measure sets; the Patient Safety Network, a collection of patient safety news, literature, tools, and resources; and the Effective Health Care Program, a collection of research centers working to provide evidence on health care interventions.

Keywords: Health care delivery, Safety, Clearinghouses, Clinical medicine, Foreign language materials, Guidelines, Health disparities , Health policy, Medical technology, Patient care management, Program evaluation, Referrals, Research, Research, Service delivery, Spanish language materials, State Children's Health Insurance Program, Training, Treatment outcomes

U.S. Agency for Toxic Substances and Disease Registry (ATSDR)

Annotation: The Agency for Toxic Substances and Disease Registry (ATSDR) is the federal agency responsible for preventing exposure to, and adverse human health effects and diminished quality of life associated with exposure to, hazardous substances from waste sites, unplanned releases, and other sources of pollution present in the environment. ATSDR is directed by Congressional mandate to perform specific functions concerning the effect on public health of hazardous substances in the environment. These functions include public health assessments of waste sites, health consultations concerning specific hazardous substances, health surveillance and registries, response to emergency releases of hazardous substances, applied research in support of public health assessments, information development and dissemination, and education and training concerning hazardous substances. The agency publishes fact sheets and toxicological profiles on numerous hazardous substances. Their Web site includes materials about children living near hazardous waste sites and an extensive glossary of terms related to hazardous materials; a Spanish language version of the Web site is available.

Keywords: Environmental health, Environmental pollution, Hazardous materials, Spanish language materials

U.S. Bureau of Primary Health Care (BPHC)

Annotation: The Bureau of Primary Health Care (BPHC) funds Health Centers in underserved communities, providing access to high quality, family oriented, comprehensive primary and preventive health care for people who are low-income, uninsured or face other obstacles to getting health care. The Web site provides access to searchable databases, statistics, employment opportunities, document archives, and publications.

Keywords: HIV, Homeless persons, Immunization, Migrant health, Primary health care, Public health programs, Public health services, Public housing, Underserved communities

U.S. Center for Nutrition Policy and Promotion (CNPP)

Annotation: The Center for Nutrition Policy and Promotion (CNPP) under the U.S. Department of Agriculture develops the Dietary Guidelines for Americans, the Food Guide Pyramid, the Interactive Healthy Eating Index, Expenditures on Children by Families, the Cost of Food at Home, the Nutrient Content of the U.S. Food Supply, and the new ChooseMyPlate initiative. CNPP staff help to define and coordinate nutrition education policy within USDA and to translate nutrition research into information and materials for consumers; policymakers; and professionals in health, education, industry, and media. The Center publishes a journal, Family Economics and Nutrition Review, and distributes publications for health professionals and consumers. Some materials are available in Spanish. The Center also sponsors conferences.

Keywords: Nutrition, Child nutrition, Conferences, Coordination, Dietary guidelines, Family economics, Federal agencies, Food consumption, Health promotion, Information dissemination, Information sources, Information sources, Nutrition assessment, Nutrition education, Nutrition programs, Public policies, Public policy, Publications, Spanish language materials

U.S. Center for Substance Abuse Treatment (CSAT)

Annotation: The Center for Substance Abuse Treatment (CSAT) is a component of the Substance Abuse and Mental Health Services Administration, Department of Health and Human Services. The center works to improve and expand treatment and recovery programs for people with substance abuse addictions through a comprehensive approach involving treatment professionals as well as service providers in education, employment, housing, criminal justice, and primary health care. CSAT works with States and community-based groups to improve and expand existing substance abuse treatment services under the Substance Abuse Prevention and Treatment Block Grant Program. Its programs target major U.S. cities, critical populations (adolescents, racial and ethnic minorities, residents of public housing, the homeless, rural and migrant populations), the criminal justice system, and women, infants, and children. CSAT runs a 24 hour English and Spanish national help line for substance abuse information and treatment referral (800) 622-HELP. Publications, trainings and workshops are also provided through CSAT.

Keywords: Adolescent health, Substance abuse, Therapeutics

U.S. Centers for Medicare & Medicaid Services (CMS)

Annotation: The Centers for Medicare & Medicaid Services (CMS) is a consortia structure based on the agency's four key lines of business including (1) Medicare health plans operations, (2) financial management and fee for service operations, (3) Medicaid and children's health operations; and (4) quality improvement and survey and certification operations. Ten regional offices represent the agency in delivering key messages; putting into practice regulations, policy, and program guidance; and monitoring programs and evaluation of contractors/grantees. The website provides information on Medicare; Medicaid; the Children's Health Insurance Program; regulations and guidance; research, statistics, data, and systems; outreach and education; and tools. CMS was previously called the Health Care Financing Administration.

Keywords: Health care financing, Conferences, Data analysis, Diagnosis related groups, EPSDT, Federal agencies, Health insurance, Medicaid, Medicare, Program evaluation, Publications, Quality assurance, Spanish language materials, State agencies, State children's health insurance program, State programs, Statistics, Training, immunization

U.S. Department of Agriculture (USDA)

Annotation: The U.S. Department of Agriculture (USDA) is a federal agency that covers these topics: agriculture; education and outreach; food and nutrition; laws and regulations; marketing and trade; natural resources and environment; research and science; rural and community development; and travel and recreation. Agricultural Research Services (ARS) have offices around the country also reach out to students, educators, and the general public, including underserved groups, to help them learn more about agricultural research and how it affects their lives. Information is provided for consumers and for those in a wide variety of businesses related to agriculture and the rural environment. Some information is provided in Spanish.

Keywords: Nutrition, Agriculture, Federal agencies, Spanish language materials

U.S. Department of Health and Human Services, Office on Women's Health (OWH)

Annotation: The Office on Women's Health within the Department of Health and Human Services (OWH) was established in 1991 to improve the health of American women by advancing and coordinating a comprehensive women's health agenda throughout the U.S. Department of Health and Human Services (DHHS). OWH activities and programs are focusing on two priority areas: (1) reducing racial and ethnic gaps in health care for women and (2) supporting culturally sensitive educational and communications initiatives that encourage women to take an increasing role in their own health and wellness. OWH maintains the National Women's Health Information Center (NWHIC) which provides health information and referrals to consumers of health care services, health professionals, researchers, educators, and students. Publications include brochures, fact sheets, reports, and a set of frequently asked questions (many in easy reading formats and all consumer materials in Spanish).

Keywords: Consumer education materials, Spanish language materials, Women's health

U.S. Department of Justice, Office of Juvenile Justice and Delinquency Prevention (OJJDP)

Annotation: The Office of Juvenile Justice and Delinquency Prevention (OJJDP), a component of the Office of Justice Programs, U.S. Department of Justice, collaborates with professionals from diverse disciplines to improve juvenile justice policies and practices. OJJDP supports states, local communities, and tribal jurisdictions in their efforts to develop and implement effective programs for juveniles. The Office strives to strengthen the juvenile justice system's efforts to protect public safety, hold offenders accountable, and provide services that address the needs of youth and their families. Through its components, OJJDP sponsors research, program, and training initiatives; develops priorities and goals and sets policies to guide federal juvenile justice issues; disseminates information about juvenile justice issues; and awards funds to states to support local programming.

Keywords: Adolescent health, Adolescent parents, Homeless persons, Information services, Injury prevention, Juvenile delinquency, Runaways, School dropouts, Spanish language materials, Substance abuse, Violence prevention

U.S. Environmental Protection Agency (EPA)

Annotation: The Environmental Protection Agency (EPA) works to protect the natural environment -- air, water, and land -- and to preserve human health in the process. The EPA develops and enforces regulations, offers financial assistance to state environmental programs, conducts research, and sponsors voluntary partnerships and programs through its regional offices. Through its Office of Environmental Education, EPA works to advance and support educational efforts and to develop an environmentally conscious and responsible public. EPA also supports a variety of libraries, hotlines, and clearinghouses that respond to information requests from the public; they can be identified on the EPA Web site. Some materials are available in Spanish.

Keywords: Hazardous materials, Air pollution, Asbestos, Environmental exposure, Environmental health, Insecticides, Regulations, Water pollution

U.S. Environmental Protection Agency, Pollution Prevention Information Clearinghouse (PPIC)

Annotation: The Pollution Prevention Information Clearinghouse (PPIC) is primarily a distribution center for Environmental Protection Agency (EPA) documents and fact sheets dealing with source reduction and pollution prevention. The clearinghouse provides a reference and referral service for pollution prevention questions and focuses on industry based pollution. Publications include a catalog, and some materials are available in Spanish and Asian languages.

Keywords: Clearinghouses, Environmental pollution

U.S. Expanded Food and Nutrition Education Program (USDA)

Annotation: The Expanded Food and Nutrition Education Program (EFNEP) is a federally funded nutrition education program designed to assist low-income families and youth acquire the knowledge, skills, attitudes, and changed behaviors necessary for nutritionally sound diets and to contribute to their personal development and the improvement of total family diet and nutritional welfare. Extension professionals train and supervise paraprofessionals and volunteers who then teach food and nutrition information and skills to the participants. All nutrition education is tailored to the needs, interests, financial resources, ethnic backgrounds, and learning capabilities of EFNEP participants. Publications are available for consumers, and materials are available in Spanish, Asian languages, and other languages.

Keywords: Nutrition, Adolescent health, Diet, Education programs, Food handling, Health education, Infants, Low income groups, Maternal nutrition, Training

U.S. Food and Drug Administration (FDA)

Annotation: The U.S. Food and Drug Administration (FDA) is a federal agency that works to protect, promote and enhance the health of the American people. FDA is responsible for ensuring that: (1) foods are safe, wholesome and sanitary; human and veterinary drugs, biological products, and medical devices are safe and effective; cosmetics are safe; and electronic products that emit radiation are safe; (2) regulated products are honestly, accurately and informatively represented; and (3) these products are in compliance with the law and FDA regulations; noncompliance is identified and corrected; and any unsafe or unlawful products are removed from the marketplace.

Keywords: Health promotion, Drug education, Drugs, Federal programs, Food safety, Regulations, Spanish language materials

U.S. Food and Drug Administration, Office of Consumer Affairs (FDA)

Annotation: The Food and Drug Administration (FDA) Office of Consumer Affairs responds to inquiries and provides information, referrals, and publications on foods, drugs, medical devices, and medications. The FDA publishes a catalog and a newsletter. Some publications are available in Spanish.

Keywords: Nutrition, Information services, Nonprescription drugs, Prescription drugs

U.S. Food and Nutrition Information Center (FNIC)

Annotation: The Food and Nutrition Information Center (FNIC) provides on-line global nutrition information. FNIC is one of several information centers located at the National Agricultural Library (NAL), part of the United States Department of Agriculture (USDA) Agricultural Research Service (ARS). FNIC staff provide information on food, human nutrition, and food safety. FNIC's 1800+ links to nutrition information and databases can be accessed from the FNIC Web site. The organization also produces subject-specific bibliographies called Resource Lists that are available online at: http://www.nal.usda.gov/fnic/pubs_and_db.html. Services to consumers include inquiry responses, publications, reference information, and searchable databases. Some materials are available in Spanish and other languages.

Keywords: Nutrition, Adolescent pregnancy, Child nutrition, Food service, Food technology, Information services, Spanish language materials, Young children

U.S. Food and Nutrition Service (FNS)

Annotation: The U.S. Department of Agriculture Food and Nutrition Service (FNS), formerly called Food and Consumer Service, responds to inquiries and provides information and publications on federal maternal and child nutrition programs, including the Special Supplemental Nutrition Program for Women, Infants and Children (WIC), Child Nutrition Programs, Food Stamp Program, and Commodity Supplemental Food Program (CSFP). Some materials are available in Spanish. FNS publishes a newsletter, sponsors conferences, training seminars, and workshops, and offers a variety of resources and information online, including links to related nutrition programs and access to e-mail discussion groups.

Keywords: Nutrition, Child nutrition programs, Commodity food supplemental programs, Conferences, Federal programs, Maternal nutrition programs, Public awareness campaigns, Publications, Spanish language materials, Supplemental food programs, Training, WIC program

U.S. Food and Nutrition Service, Special Supplemental Nutrition Program for Women, Infants and Children (WIC)

Annotation: The Special Supplemental Nutrition Program for Women, Infants, and Children - better known as the WIC Program - serves to safeguard the health of low-income women, infants, & children up to age 5 who are at nutritional risk by providing nutritious foods to supplement diets, information on healthy eating, and referrals to health care. The WIC program provides numerous educational materials for consumers and studies and reports for professionals. Materials are available in Arabic, Cambodian, Chinese, Haitian Creole, Croatian, Dakota, English, French, Hmong, Khmer, Korean, Laotian, Mandarin Chinese, Russian, Serbian, Somali, Spanish, Tagalog, Thai, and Vietnamese. Topics include breastfeeding, infant and child nutrition and health, childhood overweight and obesity, counseling and education, dietary guidance, food buying and preparation, food safety, fruits and vegetables, medical and nutritional risk assessment, multicultural audiences, oral health, outreach and marketing, physical activity, pregnancy, and vitamins and minerals.

Keywords: Child nutrition, Federal agencies, Infant nutrition, Maternal nutrition

U.S. Government Publishing Office (GPO)

Annotation: The U.S. Government Publishing Office (GPO) provides product and services for all federal government agencies and organizations. Product lines and services focus on communication needs. The website contains information about official journals of government, customer services, security and intelligence documents, creative and digital media services, publication and information sales, library services and content management, and select forms and standards. Information for vendors, libraries, and the media are included.

Keywords: U, Information services, S, government publications

U.S. Health Resources and Services Administration (HRSA)

Annotation: The Health Resources and Services Administration (HRSA) is the lead U. S. Department of Health and Human Services agency for improving access to health care for individuals and families nationwide. The agency includes the Maternal and Child Health Bureau, which funds the Maternal and Child Health Block Grant, Special Projects of Regional and National Significance (SPRANS) activities and the Healthy Start Program. HRSA produces a catalog, and the HRSA Preview, which provides a comprehensive list of HRSA's competitive grant programs. The HRSA Geospatial Data Warehouse captures grants, scholarship and loan programs, designation of underserved areas, and service demonstration programs and integrates these with data acquired from external sources. The HRSA Information Center provides consumer information and referrals, a catalog of publications, and reference information. Some materials are available in Spanish.

Keywords: Public policies, Access to health care, Child health, Consumer education, Federal agencies, HRSA, Health insurance, Health promotion, Healthy start, Models, Outreach, Policy development, Program development, Public health, Publications, SPRANS, Spanish language materials, Women's health

U.S. National Health Service Corps (NHSC)

Annotation: The National Health Service Corps (NHSC) builds healthy communities by supporting qualified health professionals working in areas of the United States with limited access to care. NHSC is a federal government program administered by the Health Resources and Services Administration's Bureau of Clinical Recruitment and Service that provides scholarships and loan repayment to primary care health professionals in NHSC-eligible disciplines. NHSC providers, in turn, commit to serving for at least two years at an NHSC-approved site located in a Health Professional Shortage Area.

Keywords: Community service, Health personnel, Infant mortality, Poverty, Substance abuse, Primary health care, Underserved communities

U.S. Occupational Safety and Health Administration, Office of Information and Consumer Affairs (OSHA)

Annotation: Occupational Safety and Health Administration responds to inquires from consumers and professionals and prepares and distributes publications on a range of health and safety topics, including environmental exposures during pregnancy as they occur in the workplace. Services to consumers include referrals, publications, and reference information. Materials are available in Spanish.

Keywords: Injury prevention, Occupational safety and health, Prenatal care, Workplace health promotion

U.S. Office of Child Support Enforcement (OCSE)

Annotation: The Office of Child Support Enforcement (OCSE) of the Administration for Children and Families responds to inquiries from consumers and professionals and provides information and publications on child support enforcement. Some materials are available in Spanish.

Keywords: Child support, Information services

U.S. Office of Head Start (OHS)

Annotation: The Office of Head Start (OHS) advises the Assistant Secretary for Children and Families on issues regarding the Head Start program (including Early Head Start). The Office develops legislative and budgetary proposals; identifies areas for research, demonstration, and developmental activities; presents operational planning objectives and initiatives relating to Head Start; and oversees the progress of approved activities. OHS provides leadership and coordination for the activities of the Head Start program in the ACF Central Office including the Head Start Regional Program Units. The Office represents Head Start in inter-agency activities with other Federal and non-Federal organizations. Early Head Start promotes healthy prenatal outcomes, enhances the development of infants and toddlers, and promotes healthy family functioning.

Keywords: Child care, Child development services, Child health, Early childhood education, Federal agencies, Low income groups, Preschool children

U.S. Office of Healthy Homes and Lead Hazard Control (OHHLHC)

Annotation: Established in 1991, the Office of Healthy Homes and Lead Hazard Control provides direction to the Department of Housing and Urban Development (HUD) in lead-based paint activities. The office develops lead-based paint regulations, guidelines, and policies applicable to HUD and other federal housing programs to ensure that residents of housing HUD subsidizes, insures, or owns and resells are safe from the hazards of lead-based paint. Other activities include a grant program for state and local governments to develop cost-effective methods for the reduction of lead-based paint hazards, an evaluation of hazard reduction methods, and an on-going program of information dissemination on lead-based paint matters. Services to consumers include publications and reference information. The Office publishes a newsletter, and some materials are available in Spanish.

Keywords: Environmental hazards, Lead poisoning, Prevention

U.S. Social Security Administration (SSA)

Annotation: The Social Security Administration (SSA) administers the federal government's social security programs, including retirement benefits, disability benefits, survivors' benefits, and Supplemental Security Income (SSI). Publications are available on the Web site; some are available in Arabic, Armenian, Chinese, Farsi, French, Greek, Haitian Creole, Italian, Korean, Polish, Portuguese, Spanish, Russian, Tagalog, and Vietnamese.

Keywords: Disabilities, Retirement, Social Security, Supplemental security income

U.S. Substance Abuse and Mental Health Services Administration (SAMHSA)

Annotation: The Substance Abuse and Mental Health Services Administration (SAMHSA) is the agency within the U.S. Department of Health and Human Services that leads public health efforts to advance the behavioral health of the nation. SAMHSA's mission is to reduce the impact of substance abuse and mental illness on America's communities. The website provides information about strategic initiatives, health reform, prevention, treatment, and recovery;publications in English and Spanish; data; and grants.

Keywords: Alcohol abuse, Drug abuse, Mental health, Model programs, Substance abuse prevention programs, Substance abuse treatment services

Udall Center for Studies in Public Policy

Annotation: The Udall Center for Studies in Public Policy at the University of Arizona is concerned primarily with environmental issues and American Indian issues in public policy. Publications are available to consumers and some materials are available in Spanish. The Center publishes a catalog and sponsors conferences, workshops, and training seminars.

Keywords: Environment, Public policies, Spanish language materials

United Cerebral Palsy (UCP )

Annotation: United Cerebral Palsy (UCP) serves, supports, and advocates for persons with cerebral palsy and other similar developmental disabilities and their families. Over 100 state and local affiliates are active in the United States. The organization provides referrals and reference information to consumers, and promotes an active public education campaign. The Arc and UCP Public Policy Collaboration publishes Capital Insider, Washington Watch, a Federal Register Summary, and a newsletter for affiliates.

Keywords: Cerebral Palsy, Advocacy, Developmental disabilities, Support groups

United Leukodystrophy Foundation (ULF)

Annotation: The United Leukodystrophy Foundation (ULF) works to increase public awareness of the leukodystrophies. The foundation supports research and provides information, resource referrals, publications, and a communication network for affected families. Publications include Facts About Leukodystrophy, reprints on disease-specific subjects, a quarterly newsletter, and a catalog. Some materials are available in Spanish, Portuguese, and other languages. The Foundation holds an annual conference and is supported by donations.

Keywords: Adrenoleukodystrophy, Alexander's disease, Canavan's disease, Cerebrotendinous xanthomatosis, Globoid leukodystrophy (Krabbe disease), Metabolic diseases, Metachromatic leukodystrophy, Pelizaeus-Merzbacher disease, Refsum disease, Zellweger syndrome

United Mitochondrial Disease Foundation (UMDF)

Annotation: The United Mitochondrial Disease Foundation (UMDF) supports research for cures and treatment, and advocacy efforts for mitochondrial disorders. The foundation provides networking referrals, publications, and reference information to consumers; publishes a newsletter; and sponsors conferences. Some materials are available in Spanish.

Keywords: Mitochondrial diseases

United Nations Population Fund (UNFPA)

Annotation: The United Nations Population Fund (UNFPA) is an international source of funding for population and reproductive health programs that help women, men and young people plan their families and avoid unwanted pregnancies, undergo pregnancy and childbirth safely, avoid sexually transmitted infections(STIs), including HIV/AIDS, and combat violence against women. UNFPA also helps governments in the world's poorest countries and in other countries in need, to formulate population policies and strategies in support of sustainable development. UNFPA publications, exploring topics such as reproductive health, maternal mortality, gender equality and population and development strategies, can be downloaded from the Web site.

Keywords: Population dynamics, International health, Maternal health, AIDS, Funding, Gender discrimination, Health promotion, International development, Maternal mortality, Prevention, Preventive health services, Reproductive health, Sexuality education, advocacy

United States - Mexico Border Health Commission (USMBHC)

Annotation: The United States-Mexico Border Health Commission (USMBHC) provides international leadership in efforts to identify key health issues in the U.S.-Mexico border region and develop programs to address specific problems. USMBHC organizes work groups and conferences; advocates for health improvements; and promotes public awareness. The commission also provides news and information on legislative action, immunization efforts, and other relevant topics and provides an electronic newsletter. USMBHC is comprised of the federal secretaries of health, the chief health officers of the ten border states, and prominent community health professionals from both nations. The commission was created as a binational health commission in 2000 with the signing of an agreement by the Secretary of Health of Mexico and the Secretary of Health and Human Services of the United States. In Dec. 2004 the commission was designated as a Public International Organization by Executive Order of the President. Its publications are available in English and Spanish.

Keywords: Federal agencies, International health, Advocacy, Federal programs, Health promotion, Information dissemination, Legislation, Program development, Public health, Underserved communities

United States Conference of Catholic Bishops (USCC)

Annotation: The United States Conference of Catholic Bishops sponsors conferences and training seminars and publishes a newsletter. Some materials are available in Spanish.