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Annotated Lists of Organizations on Key Topics in Maternal and Child Health

This list of 100 organizations is drawn from the MCH Organizations online database. Contact information is the most recent known to the MCH Digital Library. To identify additional materials on this topic, search the Organizations database using our online search form.

The MCH Organizations Database lists government, professional, and voluntary organizations involved in maternal and child health activities, primarily at a national level. Information available to consumers is indicated where known.

Displaying 100 records.

24 Languages Project

Annotation: The 24 Languages Project was founded in 2000 as a joint endeavor of the Spencer S. Eccles Health Sciences Library and the Utah Department of Health, to digitize translated consumer health brochures for online access. The 24 Languages Project is now supported by several organizations and provides information in audio formats as well as pdf documents. Most of the materials are also available as sound recordings for downloading or immediate listening. Native speakers of the respective languages furnish the narrations, which are recorded, encoded, and linked to the project's Web site for access. Languages represented on the site include Arabic, Armenian, Cambodian, Chinese, Croatian, English, Farsi, French, German, Haitian Creole, Hmong, Japanese, Korean, Laotian, Portuguese, Romanian, Russian, Samoan, Serbo-Croatian, Somali, Spanish, Tagalog, Thai, Tongan, and Vietnamese.

Keywords: Asian language materials, Audiovisual materials, Consumer education materials, Foreign language materials, Spanish language materials

AARP (AARP)

Annotation: AARP, formerly the American Association of Retired Persons, serves people over age 50 by promoting their independence, purpose, and dignity through legislative advocacy, research, informative programs, and promoting community service. AARP has chapters in every state and over 2,500 local chapters. The association publishes AARP Magazine and the monthly AARP Bulletin. The AARP Web site provides online information, services and tools to help people 50+ get the most out of life. AARP's Web site offers information on a broad range of topics, including AARP's public policies, answers to financial planning questions, guidance on health and wellness, tips for coping with difficult life transitions, as well as opportunities to contact elected government officials, and participate in discussion groups and online courses. Publications on a variety of subjects such as health and fitness, financial and retirement planning, housing, and more are available free to both members and nonmembers. In addition to consumer education, AARP conducts and publishes research on aging issues and analyzes related national and state policies through its Public Policy Institute. AARP has a Research Information Center, which specializes in social gerontology, and an online database, AgeLine. AARP also produces "Prime Time Radio," a weekly interview program focusing on the interests of people 40 and over, and "Mature Focus Radio," which offers daily brief discussions on topics of interest to older people. Other broadcast activities include radio features in English and Spanish, educational documentaries and TV video news releases. AARP programs include: AARP Independent Living/Long-Term Care/End-of-Life Issue, AARP Driver Safety Program, Tax Aide, Senior Community Service Employment Program, and Volunteering. Some publications are also available in Spanish.

Keywords: Aging, Retirement

Academy of Nutrition and Dietetics (AND)

Annotation: The Academy of Nutrition of Dietetics (AND) is the advocate of the dietetics profession serving the public through the promotion of optimal nutrition, health, and well being. The association is involved in the credentialing of competent nutrition and dietetic professionals and provides continuing education for nearly 70,000 members. Key areas of interest include obesity and overweight (with a focus on children); healthy aging; nutrigenetics and nutrigenomics; Integrative medicine (including supplements and alternative medicine; and safe, sustainable, and nutritious food supply. Through its Knowledge Center, ADA provides current food and nutrition information for consumers, health professionals, and ADA members. Until 2012 it was known as the American Dietetic Association (ADA)

Keywords: Child nutrition, Consumer education, Dietetic technicians, Health promotion, Hotlines, Information sources, Maternal nutrition, Nutrition, Professional societies, Publications, Public health nutrition, Spanish language materials

Adolescent Employment Readiness Center (AERC)

Annotation: The Adolescent Employment Readiness Center (AERC) is a national program that helps adolescents with chronic illnesses or physical disabilities to obtain the skills required for successful employment. The center advocates early vocational guidance and education as a means of improving workforce readiness and employability among adolescents with chronic illnesses or disabilities. Services provided include referrals, publications, and reference information. Some materials are available in Spanish. An interpreter service is also available. AERC publishes a newsletter and sponsors conferences, workshops, and training programs.

Keywords: Adolescents, Chronic illnesses and disabilities, Disabilities, Employment services, Information services, Vocational education, Youth

Adolescent Pregnancy Prevention Coalition of North Carolina (APPCNC)

Annotation: The Adolescent Pregnancy Prevention Coalition of North Carolina (APPCNC) serves as a statewide clearinghouse and network for adolescent pregnancy prevention resources and helps local communities to develop prevention councils. The coalition maintains a library and resource center of more than 1,000 pamphlets, brochures, films, videotapes, curricula, national and state reports, and other materials on adolescent pregnancy issues. Services to consumers also include referrals. APPCNC sponsors conferences and training seminars, and publishes a catalog and newsletter. It also provides materials in Spanish.

Keywords: Adolescent pregnancy, Coalition, North Carolina, Prevention programs, Referals, Self help clearinghouses

AdoptUSKids

Annotation: AdoptUSKids works to raise public awareness about the need for foster and adoptive families and supports states, territories, and Tribes in their efforts to find families for children in foster care, particularly the most challenging to place. AdoptUSKids offers a variety of resources, services, and tools to both families and child welfare professionals. One of its core services is to provide technical assistance and resources to states, territories, and Tribes through the National Resource Center for Diligent Recruitment at AdoptUSKids (NRCDR).

Keywords: . Collaboration, Adoption, Adoptive parents, Children, Foster care, Foster parents, Information sources, Public service announcements

Advocacy Center for Persons with Disabilities (ACPD, Advocacy Center)

Annotation: The Advocacy Center for Persons with Disabilities, formerly the Governor's Commission on Advocacy, is a federally funded nonprofit corporation working to advance the dignity, equality, self-determination, and expressed choices of individuals with disabilities. The Center promotes, expands, protects, and seeks to assure the human and legal rights of the people through the provision of information and advocacy. The center administers five federally mandated programs: the Protection and Advocacy System for Persons with Developmental Disabilities, the Client Assistant Program, the Protection and Advocacy System for Individuals with Mental Illness, the Protection and Advocacy for Individual Rights, and the Technology Assistance Program. Services to consumers include advocacy and information. The center publishes a newsletter, sponsors training seminars, and provides materials in Spanish.

Keywords: Advocacy, Disabilities, Special health care needs

Advocates for Children and Youth (ACY)

Annotation: Advocates for Children and Youth (ACY) is a statewide nonprofit organization that educates Marylanders about the needs of children and encourages investment in good health, quality education, safe environment, and economic security of children. Activities include: educating and mobilizing Marylanders around the needs of children and their families; researching and providing information to public officials, the media, and statewide organizations on key issues affecting Maryland's children and families; identifying effective programs and services that meet the needs of children and their families and advocating for funds to implement these programs and services; and A providing legal representation to children who are having trouble staying in school. A publications list if available, and some materials are available in Spanish. The organization sponsors conferences.

Keywords: Advocacy, Children, Maryland, Public policies

Advocates for Youth (AFY)

Annotation: Advocates for Youth is dedicated to creating programs and advocating for policies that help young people make informed and responsible decisions about their reproductive and sexual health. Advocates provides information, training, and strategic assistance to youth-serving organizations, policy makers, youth activists, and the media in the United States and the developing world. Advocates publishes newsletters, as well as provider- and consumer-oriented publications on adolescent reproductive health. A publications catalog is available. Some materials are available in French, Spanish, and Portuguese.

Keywords: Adolescent pregnancy, Adolescents, Decision making skills, Information sources, Life skills, Peer education, Programs, Publications, Reproductive health, Sexual behavior, Sexuality education, Spanish language materials, Women

Agency for Healthcare Research and Quality (AHRQ)

Annotation: The Agency for Healthcare Research and Quality (AHRQ) supports research designed to improve the quality of health care, reduce its cost, and broaden access to essential services. AHRQ supports the National Guideline Clearinghouse, a public resource for evidence-based clinical practice guidelines; the National Quality Measures Clearinghouse, a public resource for evidence-based quality measures and measure sets; the Patient Safety Network, a collection of patient safety news, literature, tools, and resources; and the Effective Health Care Program, a collection of research centers working to provide evidence on health care interventions.

Keywords: Clearinghouses, Clinical medicine, Foreign language materials, Guidelines, Health care delivery, Health disparities, Health policy, Medical technology, Patient care management, Program evaluation, Referrals, Research, Research, Safety, Service delivery, Spanish language materials, State Children's Health Insurance Program, Training, Treatment outcomes

Agenesis of the Corpus Callosum Network (ACC Network)

Annotation: The Agenesis of the Corpus Callosum Network (ACC Network) has published The ACC Directory and has compiled a bibliography of articles about this disorder and others, including dysgenesis of the corpus callosum and disorders involving the underdevelopment or malformation of the corpus callosum. The organization sends information packets to individuals with these conditions, their families, and professionals. The packet includes a directory, bibliography, data analysis, articles, and other materials. The ACC Network publishes a newsletter, The Callosal Connection, and provides some materials in Spanish. The organization also provides support via telephone, mail, and electronic mail.

Keywords: Agenesis of the corpus callosum Developmental disabilities, Directories, Parent groups, Support groups

Aiding Mothers and Fathers Experiencing Neonatal Death (AMEND)

Annotation: Aiding Mothers and Fathers Experiencing Neonatal Death (AMEND) offers support and encouragement to parents who have lost an infant. Bereaved parents have one-to-one contact with a trained counselor who has also experienced a loss due to miscarriage, stillbirth, or neonatal death. Several local chapters exist without formal national affiliation. St. Louis AMEND was established in 1974. Los Angeles AMEND was established in 1977 and can be reached at P.O. Box 30, Harbor City, CA 90710-0030; (818) 887-7999. Services to consumers include publications and reference information. Some materials are available in Spanish.

Keywords: Grief, Neonatal death, Perinatal bereavement, Perinatal mortality, Pregnancy loss, Spontaneous abortion, Support groups, Parent support services

Al-Anon Family Groups (Al-Anon/Alateen)

Annotation: Al-Anon Family Groups (Al-Anon/Alateen) is a self-help fellowship that offers a program of recovery for the relatives and friends of alcoholics. Members share their experience, strength, and hope in order to solve their common problems. Al-Anon is not allied with any sect, denomination, political entity, organization, or institution. On behalf of the group it serves, the organization registers local meetings, sponsors training seminars, and develops education books, audiovisuals, booklets, and brochures about recovery from the effects of living with the disease of alcoholism. Some of these materials are available in Spanish and French. They also publish a newsletter and catalog.

Keywords: Alcohol abuse, Alcoholism, Educational materials, Family recovery, Substance abuse, Support groups

Alabama Department of Rehabilitation Services

Annotation: Materials are available in Spanish and Braille.

Allergy and Asthma Network/Mothers of Asthmatics (AAN/MA)

Annotation: The Allergy and Asthma Network/Mothers of Asthmatics, Inc. (AAN/MA) is a national nonprofit network of families working to overcome allergies and asthma. AANMA produces practical resources, educational materials, and programs to address the health and family needs of people with asthma and allergies. The organization provides reference information to consumers through its toll-free help line and publishes Allergy & Asthma Today magazine and the monthly newsletter MA Report. Some materials are available in Spanish.

Keywords: Allergies, Asthma, Respiratory diseases

Alliance for Healthy Homes

Annotation: The Alliance for Healthy Homes, formerly the Alliance to End Childhood Lead Poisoning, is a Washington-based national public interest organization working to protect children from lead poisoning and other housing-related health hazards. The Alliance alerts the public to the problem of childhood lead poisoning, develops strategies for prevention, oversees federal programs, and regulates and informs health professionals and political leaders of its health risks and available remedies. Areas of emphasis include primary prevention—removing sources of lead and other hazardous substances in the environment before children are exposed—and expansion of blood screening programs to identify at-risk children. The alliance also works with grassroots groups for social justice in low-income communities, providing resources through its Community Environmental Health Resource Center (see http://www.cehrc.org). Services to consumers include publications and reference information. Publications include a newsletter. Some materials are available in Spanish.

Keywords: Lead, Lead poisoning

Alstrom Syndrome International (ASI)

Annotation: Alstrom Syndrome International (ASI) provides information, networking, and emotional support for people afflicted with Alstrom Syndrome and their families. It also serves as an information resource for physicians, researchers, and any associated professionals who have an interest in Alstrom syndrome. ASI also promotes and encourages medical research with the hope of determining the cause and finding a cure for Alstrom Syndrome and related diseases. ASI publishes a quarterly newsletter and maintains a listserv for individuals (both professionals and family members) interested in Alstrom Syndrome. Materials are available in Portuguese, German, Italian, Spanish, Swedish, Dutch, Turikish and Japanese.

Keywords: Alstrom syndrome, Medical research, Support groups

Alzeimer's Association

Annotation: The Alzheimer's Association (formerly the Alzeimer's Disease and Related Disorders Association) works to conquer Alzheimer's disease, to increase public awareness of the disease, and to affect related policy decisions. The association's Library and Resource Center collects and disseminates educational materials, scientific journals, research reports, and other information in various formats (print, videotape, audiotape, microfilm, CD-ROM) for professionals in patient care, service delivery, policy development, and medical research. Publications include the quarterly Advances Newsletter. A publications catalog is available. Some publications are available in Spanish and Asian languages. ADRDA also provides referrals, and sponsors conferences and training seminars.

Keywords: Alzheimers disease, Information services

Alzheimer's Disease Education and Referral Center (ADEAR)

Annotation: Sponsored by the National Institute on Aging, the Alzheimer's Disease Education and Referral Center (ADEAR) offers referrals, information, and publications on Alzheimer's disease to patients and their families, health and service professionals, caregivers, and the public. The toll-free telephone number is answered in person by information specialists (Mon.-Fri., 8:30-5:00 p.m, EST). Publications include a catalog and a newsletter, and Spanish materials are available. Some publications are available on the Web site.

Keywords: Alzheimers disease

American Academy of Allergy, Asthma and Immunology (AAAAI)

Annotation: The American Academy of Allergy, Asthma, and Immunology (AAAAI) is a professional society of physicians specializing in allergy, asthma, and allergic diseases. The Academy enhances and supports allergy/immunology programs; fosters and disseminates research; provides advocacy and support for patients and the allergy/immunology specialists who provide their care; and provides education and information for members, other healthcare professionals, patients and the public. The Web site provides online access to brochures, allergy guides, tip sheets, research findings, and video guides. Included are school tools, parent resources, a food allergy library, The Virtual Allergist™ -- an interactive tool to help diagnose asthma and allergy symptoms -- and The National Allergy Bureau™ -- the section of the AAAAI's Aeroallergen Network that is responsible for reporting current pollen and mold spore levels to the public.

Keywords: Allergies, Asthma, Immunologic diseases, Respiratory diseases

American Academy of Child and Adolescent Psychiatry (AACAP)

Annotation: The American Academy of Child and Adolescent Psychiatry (AACAP) represents over 7,500 child and adolescent psychiatrists, physicians with at least five years of additional training beyond medical school in adult, child, and adolescent psychiatry. Academy members actively research, diagnose, and treat emotional, developmental, behavioral, and mental disorders affecting children, adolescents, and their families. The Academy provides public information, including a referral service that works with child advocacy groups, parents, teachers, and other medical and mental health professionals. Some family materials are available in Spanish, Arabic, Hebrew, Icelandic, Malaysian, Polish, Spanish, and Urdu. The academy publishes a catalog, a newsletter and a journal. The academy also sponsors conferences and training seminars.

Keywords: Adolescent mental health, Adolescents, Advocacy, Behavior, Child mental health, Children, Conferences, Foreign language materials, Guidelines, Mental health, Mental health professionals, Mental health services, Professional societies, Psychiatry, Publications, Public awareness campaigns, Referrals, Spanish language materials, Training

American Academy of Dermatology (AAD)

Annotation: Founded in 1938, the American Academy of Dermatology (AAD) is a professional society of medical doctors specializing in skin disease. The organization conducts educational programs, provides placement , and compiles statistics. Publications include a directory, a newsletter, and the Journal of the American Academy of Dermatology. Some materials are available in Spanish. ADD also maintains a listserv.

Keywords: Skin diseases

American Academy of Family Physicians (AAFP)

Annotation: The American Academy of Family Physicians (AAFP) is a national association representing family physicians, family medicine residents, and medical students that seeks to promote the science and art of family medicine and to ensure high-quality, cost-effective health care for clients of all ages. AAFP's website contains news and information on journals, continuing medical education, clinical care and research, running a practice, policy and advocacy, and careers. AAFP's patient Web site -- familydoctor.org -- features information for specific populations including women, men, parents and kids, and older adults; health tools such as a guide to over-the-counter medications; and tips for healthy living. The website can be viewed in English and Spanish.

Keywords: Child health, Conferences, Families, Immunization, Physicians, Preventive health services, Primary care, Professional societies, Professional training, Publications, Spanish language materials, Spanish language website

American Academy of Ophthalmology (AAO)

Annotation: The American Academy of Ophthalmology is a national association of ophthalmologists, Eye M.D.s who provide total eye care, including medical, surgical, and optical care. The organization is dedicated to helping the public maintain healthy eyes and good vision. It develops and disseminates a wide range of print and audiovisual instructional materials to assist ophthalmologists and other ophthalmic providers in the diagnosis and treatment of eye disease. The Academy also offers practice management programs, patient information materials, and a variety of publications including Ophthalmology, a monthly scientific journal, and EyeNet, a monthly clinical publication. A catalog is available. Some materials are available in other languages. The academy foundation also sponsors an annual meeting and consumer web site at www.eyesmart.org

Keywords: Eye care, Ophthalmologists, Professional societies, Vision disorders

American Academy of Otolaryngology-Head and Neck Surgery (AAO-HNS)

Annotation: The American Academy of Otoloaryngology-Head and Neck Surgery Foundation (AAO-HNS) is dedicated to the care of the ears, nose, throat and related structures of the head and neck. The academy provides continuing education programs that offer practitioners educational experiences that assist in broadening their understanding of otolaryngology-head and neck surgery, and also provide a foundation for continued learning. The Academy provides consumers with referrals and publishes a series of patient education leaflets on common ENT disorders, some of which are available in Spanish. Single copies are available free to the public. A catalog of products and services is published annually.

Keywords: Otolaryngology, Surgery

American Academy of Pediatric Dentistry (AAPD)

Annotation: The American Academy of Pediatric Dentistry (AAPD) advocates for policies, guidelines, and programs that promote optimal oral health and oral health care for infants, children, and adolescents, including those with special health care needs (SHCNs). AAPD’s website contains guidelines and policy statements and issues of the journal, Pediatric Dentistry.

Keywords: American Academy of Pediatric Dentistry, Child health, Children with special health care needs, Consumer education, Education, Guidelines, Medical research, Oral health, Pediatric dentistry, Professional societies, Publications, Spanish language materials

American Academy of Pediatrics (AAP)

Annotation: The American Academy of Pediatrics (AAP) develops policy and educates health professionals and the public on pediatric health needs, and serves as an advocate for children, adolescents, and families by promoting legislation and community-based programs that affect their health. Publications include Red Book: Report of the Committee on Infectious Diseases, AAP News, policy statements, manuals, patient education materials, and a monthly journal, Pediatrics, as well as a publications catalog. Some resources are available in Spanish and other languages. AAP also sponsors conferences and training seminars for members.

Keywords: Adolescents, Child abuse, Child advocacy, Child care, Child health, Conferences, Immunization, Injury prevention, Pediatrics, Preventive health services, Professional societies, Professional training, Publications, Resources for professionals, Spanish language materials, Young children

American Association of Blood Banks (AABB)

Annotation: The American Association of Blood Banks (AABB) promotes the highest standards of care and service to patients, donors, other health care professionals, and the public by providing leadership in blood procurement, distribution, and other activities related to blood banking and transfusion medicine. More than 2,000 institutional members (community and hospital blood banks and hospital transfusion services) collect the nation's blood supply and transfuse more than 80 percent of the supply. Individual members include 8,000 physicians, scientists, medical technologists, administrators, blood donor recruiters, nurses, and public-spirited citizens. AABB sponsors conferences and training seminars and publishes a newsletter and journal. Some materials are available in Spanish and French and one publication in available in Japanese.

Keywords: AIDS, Blood banks, Cardiovascular diseases, Hematologic diseases, Hepatitis, HIV

American Association of Kidney Patients (AAKP)

Annotation: The American Association of Kidney Patients (AAKP) works to educate and support kidney patients and their family members. Its mission is to improve the lives of fellow kidney patients and their families by helping them deal with the physical, emotional and social impact of kidney disease. Members are people on hemodialysis or peritoneal dialysis, people with kidney transplants, their families and friends, and professionals in the dialysis field. Publications include a newsletter, a bimonthly magazine and a magazine for those who may be at risk for kidney disease. Several materials are available in Spanish. The organization sponsors conferences and hosts an annual convention.

Keywords: Chronic kidney failure, Dialysis, Kidney diseases, Organ transplantation, Patient education

American Association of Nurse Anesthetists (AANA)

Annotation: American Association of Nurse Anesthetists offers services to consumers that include publications and reference information. Some materials are available in Spanish. The organization publishes a newsletter and a journal and sponsors conferences and training seminars.

Keywords: Anesthesiology, Nurses

American Association of Retired Persons, Grandparent Information Center (AARP GIC)

Annotation: The AARP Grandparent Information Center provides information and resources to help grandparents who are the primary caregivers to their grandchildren cope with their caregiving roles. Its goals are to provide grandparents with information and referrals; to increase public awareness about grandparents raising grandchildren and the obstacles facing these families; to work with and provide assistance to agencies and groups helping these families; to examine issues and seek solutions; and to facilitate cooperation between the aging, children, family, and legal systems to assist these families. The center publishes a quarterly newsletter, Grandcare News, and other materials (some in Spanish).

Keywords: Grandparents, Parenting

American Association of Suicidology (AAS)

Annotation: The American Association of Suicidology (AAS) is a nonprofit organization that strives to understand and prevent suicide through research, public awareness programs, and education and training for professionals and volunteers. Members include mental health professionals, researchers, suicide prevention and crisis intervention centers, school districts, crisis center volunteers, and survivors of suicide. Services to consumers include referrals, publications, and reference information. Some materials are available in Spanish. AAS also maintains a listserv and develops public service announcements and pamphlets on suicide prevention, and members work with the media as consultants and participants in stories involving suicide-related issues. Publications include a bi-monthly journal, Suicide and Life-Threatening Behaviors; a quarterly newsletter, Newslink; a quarterly newsletter, Surviving Suicide; and conference proceedings.

Keywords: Attempted suicide, Crisis intervention, Health education, Information services, Mental health, Public awareness campaigns, Suicide, Suicide prevention, Training

American Behcet's Disease Association (ABDA)

American Cancer Society (ACS)

Annotation: The American Cancer Society (ACS) is a nationwide community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer through research, education, advocacy, and service. The society provides educational materials and information for patients, their families, and professionals. Some publications are available in Spanish and in Asian languages (Chinese, Korean, and Vietnamese).

Keywords: Cancer, Information sources, Medical research, Public awareness materials

American Celiac Society, Dietary Support Coalition (ACS/DSC)

Annotation: The American Celiac Society/Dietary Support Coalition (ACS/DSC) provides educational and informational materials on lactose-free, gluten-free diets to patients, physicians, nutritionists, and others. The society responds to information requests, provides referrals to support groups, publishes a newsletter, hosts a list serve, sponsors educational conferences and meetings on celiac desease(Sprue, Non-Tropical Sprue, Tropical Sprue), Dermatitis Herpetiformis, Crohn's Disease, Lactose Intolerance, Wheat Intolerance, and various autoimmune diseases, and supports research on celiac sprue disease and other dietary disorders. Membership is open to all individuals with dietary problems, family and friends of these individuals, medical professionals, and anyone interested in learning more about these dietary problems and promoting the ideals of our organization. Materials are available in Spanish and Italian.

Keywords: Celiac disease, Diet therapy, Gluten intolerance, Lactose intolerance, Restricted diets, Support groups

American College of Nurse-Midwives (ACNM)

Annotation: The American College of Nurse-Midwives (ACNM) is the professional organization for nurse-midwives in the United States. Its mission is to support midwives, advance the practice of midwifery, and achieve optimal, equitable health outcomes for the people and communities midwives serve. The organization provides professional practice materials, continuing education opportunities, and legislative updates. The peer-reviewed Journal of Nurse-Midwifery and Women's Health is ACNM's official journal.

Keywords: Childbirth, Conferences, Ethics, Family planning, Labor, Nurse midwives, Postpartum care, Prenatal care, Professional societies, Publications, Reproductive health, Standards

American College of Obstetricians and Gynecologists (ACOG)

Annotation: The American College of Obstetricians and Gynecologists (ACOG) is a professional membership organization for obstetrician–gynecologists. The College produces practice guidelines for health care professionals and educational materials for patients; provides practice management and career support; facilitates programs and initiatives to improve women’s health; and advocates for members and patients. Health topics of interest include pregnancy, prenatal care; childbirth, postpartum care, immunization, reproductive health, health equity, adolescent health, breastfeeding, preventive care, domestic violence, and smoking cessation, among others. Committee opinions, consensus guidelines, patient education,and online CME course work are among the materials available on the website (some free-of-charge). ACOG hosts an online store; publishes Obstetrics & Gynecology (a peer-reviewed journal), and hosts an annual conference.

Keywords: American College of Obstetricians and Gynecologists, Breastfeeding, Childbirth, Contraception, Domestic violence, Gynecology, Health education, Legislation, Obstetrics, Postpartum care, Pregnancy, Prenatal care, Professional education, Professional ethics, Professional societies, Publications, Reproductive health, Vaccines, Women's health

American College of Physicians (ACP)

Annotation: The American College of Physicians (ACP) is a national organization of physician specialists who apply scientific knowledge and clinical expertise to the diagnosis, treatment, and compassionate care of adults across the spectrum from health to complex illness. Members comprise internists, internal medicine subspecialists, medical students, residents, and fellows. ACP works to enhance the quality and effectiveness of health care by fostering excellence and professionalism in the practice of medicine. The website provides information about membership, continuing medical education and maintenance of certification, and meetings and courses. Clinical information, practice resources, and advocacy services are also provided.

Keywords: Health services, Internal medicine, Physicians, Professional societies

American Council for Drug Education (ACDE)

Annotation: The American Council for Drug Education (ACDE) works to curb drug abuse by informing and motivating the public. The council has launched educational campaigns targeted to specific high-risk audiences and has developed and distributed more than 60 publications and five videotapes. In addition, it produces a catalog and newsletter and provides consumers with referrals and reference information, some available in Spanish.

Keywords: Drug abuse, Drug education, High risk groups, Substance abuse

American Dental Hygienists' Association (ADHA)

Annotation: The American Dental Hygienists’ Association (ADHA) works to advance the art and science of dental hygiene, promote standards of education and practice in the profession, and provide professional support and educational programs. ADHA’s website provides information about the association’s annual meeting and periodicals, Access and Journal of Dental Hygiene. These and other ADHA resources address issues and opportunities for public health advocacy, education, and research.

Keywords: Associations, Child health, Conferences, Dental health, Dental hygienists, Oral health, Professional education, Professional societies, Publications, Spanish language materials, Training materials

American Diabetes Association (ADA)

Annotation: The American Diabetes Association (ADA) promotes research on the prevention and cure of diabetes and works to improve the well-being of people with diabetes and their families. Publications include Clinical Diabetes, Diabetes, Diabetes Care, Diabetes Forecast, Diabetes Spectrum, andDiabetes Advisor. The association also publishes a catalog. Some materials are available in Spanish. ADA also sponsors conferences and workshops.

Keywords: Diabetes, Insulin, Metabolic diseases, Spanish language materials

American Foundation for AIDS Research (AmfAR)

Annotation: The American Foundation for AIDS Research (amfAR), founded in 1985, is an independent nonprofit organization dedicated to supporting AIDS research, AIDS prevention and treatment education initiatives, and advocacy for sound AIDS-related public policy. The public policy program is currently engaged in efforts to secure necessary increases in funding for HIV/AIDS research, including vaccine and microbicide research; implement a comprehensive national prevention strategy, including repeal of the current ban on federal funding for syringe exchange programs; expand access to care and treatment; and protect the civil rights of all people affected by HIV/AIDS. amfAR has awarded grants to research teams worldwide. It is funded by voluntary contributions from individuals, foundation, and corporations. The foundation publishes the twice-yearly amfAR Global Link, a comprehensive source of information on HIV/AIDS treatments and clinical trials, available in paperback and in an online interactive database format at amfAR's Web site. amfAR also sponsors conferences, seminars, and "think tanks." Materials are available in Spanish.

Keywords: AIDS, AIDS related complex, Foundations, HIV

American Heart Association (AHA)

Annotation: The American Heart Association (AHA) is a national voluntary health agency whose mission is to reduce disability and death from cardiovascular diseases and stroke. AHA provides services and resources for healthcare professionals as well as patients and families. The association compiles statistics, offers advocacy services, provides continuing education courses, promotes physical activity and healthy eating, sponsors conferences and Web sessions, and publishes information and educational materials, including scientific findings, heart-healthy cookbooks for consumers, and electronic PDA programs for healthcare professionals.

Keywords: Advocacy, Cardiovascular diseases, Consumer materials, Continuing education, Health promotion, Heart diseases, Legislation, Medical education, Nutrition, Physical activity, Prevention programs, Spanish language materials, Statistics

American Humane Association, Children's Services (AHA)

Annotation: The Children's Services of the American Humane Association (AHA) ensures that effective child protective service systems are in place in every part of America. The association provides comprehensive training for professionals (social workers, physicians, teachers, law enforcement personnel, nurses, and judges), provides expert evaluation and technical assistance to community and statewide child protective programs, and promotes national standards for programs to protect children from abuse and neglect. Publications include professional resources for frontline workers, child welfare professionals, administrators, legislators, and the general public. Some materials are available in Spanish.

Keywords: Child abuse, Child neglect, Child protection agencies, Child protective services, Information services, Technical assistance, Training

American Institute of Ultrasound in Medicine (AIUM)

Annotation: The American Institute of Ultrasound in Medicine (AIUM) was founded in 1951 to advance the art and science of ultrasound in medicine and research. Its annual convention offers educational courses, scientific sessions, and commercial and scientific exhibits. Publications include the monthly Journal of Ultrasound in Medicine, a monthly newsletter, guidelines for ultrasound examinations, catalogs, journals, and educational videotapes. AIUM provides some Spanish materials and sponsors conferences, seminars, and workshops.

Keywords: Medical research, Prenatal diagnosis, Ultrasonography

American Kidney Fund (AKF)

Annotation: The American Kidney Fund is a national, non-profit voluntary health organization providing direct financial aid to needy kidney patients, transplant recipients and donors to help cover the cost of treatment-specific expenses. Grants are available to assist patients afford medication, transportation, emergency transient dialysis, and special diet needs diet. In addition, the Fund supports public and professional education, kidney donor development and sponsors clinical scientist nephrology fellowship awards. AKF publishes a newsletter and many brochures about kidney diseases and its treatment, including selections in Spanish. The organization also sponsors conferences. Eligibility for financial assistance must be demonstrated by filing an application, available through the patient's renal social worker or nephrologist.

Keywords: Chronic kidney failure, Dialysis, Financial support, Kidney diseases, Organ transplantation

American Lung Association (ALA)

Annotation: The American Lung Association (ALA) is a voluntary health organization dedicated to the prevention, cure, and control of all types of lung disease through public health education, advocacy, and research. ALA monitors air quality and publishes reports that detail the effects of tobacco, pollutants, and other environmental factors on the air, our communities, and our world. The Web site provides access to downloadable reports; indepth resources related to lung health, lung disease, and air quality at home, at school, outdoors, and at work. Anyone can register to receive ALA's free electronic newsletters.

Keywords: Asthma, Infants, Public health education, Lung diseases, Prevention, Respiratory distress syndrome, SIDS, Smoking during pregnancy

American Lung Association of Wisconsin

Annotation: American Lung Association of Wisconsin provides referrals, Inquiry responses, reference Information, and publications, including a newsletter. Some resources are available in Spanish and Hmong. The association also sponsors conferences, training seminars, and workshops.

American Medical Association, Adolescent Health Program (AMA)

Annotation: The American Medical Association (AMA) Program on Child and Adolescent Health works to improve the health status of youth. Activities include the AMA National Coalition on Adolescent Health, adolescent health online Web site, Child Health Initiative, Healthy People 2010 activities, and a youth violence project. Services to consumers include reference information. Some materials are available in Spanish.

Keywords: Adolescent health, Prevention services, Professional societies

American Occupational Therapy Association (AOTA)

Annotation: The American Occupational Therapy Association (AOTA) meets the needs of people whose lives have been disrupted by injury or illness, developmental problems, the aging process, or social or psychological difficulties by promoting their involvement in therapeutic tasks to improve function, performance capacity, and the ability to cope with the demands of daily life. Members include occupational therapists, occupational therapy assistants, and occupational therapy students. The association conducts research, compiles statistics, publishes the American Journal of Occupational Therapy, and produces catalogs, books, monographs, and a semimonthly magazine, OT Practice. The association also sponsors conferences and training seminars, and workshops. Some materials are available in Spanish.

Keywords: Occupational therapy, Support groups, Professional societies

American Optometric Association (AOA)

Annotation: The American Optometric Association (AOA), founded in 1898, works to improve the quality, availability, and accessibility of eye care, vision care, and related health care. The association promotes standards of patient care and represents the optometric profession to government and other health care-related organizations. Publications include three periodicals: Journal of the American Optometric Association, American Optometric Association News, and Optometric Economics. The organization also sponsors conferences and training seminars. The association maintians offices in St. Louis, MO and metropolitan Washington, DC. Some materials are available in Spanish.

Keywords: Eye care, Optometry, Patient care, Standards, Vision screening

American Osteopathic Association (AOA)

Annotation: The American Osteopathic Association (AOA) is a membership organization for doctors of osteopathic medicine. It is organized to advance the philosophy and practice of osteopathic medicine by promoting excellence in education, research, and the delivery of quality and cost-effective health care in a distinct, unified profession. Services to consumers include referrals and publications. Some materials are available in Spanish. AOA publishes a journal and sponsors conferences.

Keywords: Health promotion, Osteopathic medicine, Primary Care

American Parkinson Disease Association (APDA)

Annotation: The American Parkinson Disease Association (APDA) funds medical research, organizes support group chapters, and provides information and referral services to patients, their families, and the public. Publications include Be Active, Good Nutrition and Coping with Parkinson Disease, Parkinson's Disease Handbook (in English and Spanish), Speaking Effectively, and a quarterly newsletter. The association also provides materials in Spanish, Italian, Chinese and Japanese languages. The association sponsors conferences. The association's West Coast office is located at 10850 Wilshire Boulevard, Suite 730, Los Angeles, CVA 90024, (800) 908-2732.

Keywords: Medical research, Support groups, Information services, Nervous system diseases, Parkinson disease

American Physical Therapy Association (APTA)

Annotation: The American Physical Therapy Association (APTA) is a professional organization of 70,000 physical therapists, physical therapist assistants, and students throughout the United States. The association helps physical therapists to maintain the quality and integrity of their profession by providing ways for them to exchange information and improve their skills. Activities include accreditation, professional development, quality assurance, research, and information dissemination. Services to consumers include publications and reference information. Spanish materials are available. The Association publishes a catalog, magazine, journal, newsletters, an e-mail news service, and reference materials, and also sponsors conferences and training seminars.

Keywords: ???Rehabilitation???, Information services,, Physical therapy

American Pseudo-Obstruction and Hirschsprung's Disease Society (APHS)

Annotation: The American Pseudo-Obstruction and Hirschsprung's Disease Society (APHS) was formed to answer the needs of families, patients, and health care professionals facing the many challenges posed by gastrointestinal motility disorders in infants and children. Since 1988, APHS, formerly the North American Pediatric Pseudoobstruction Society, has been developing programs to address its objectives of research, education, and family support. APHS promotes public awareness of gastrointestinal motility disorders; these include, but are not limited to, chronic intestinal pseudo-obstruction, Hirschsprung's disease, and gastroesophageal reflux (GER). Services to consumers include referrals, publications, and reference information. Publications include brochures and a newsletter (issued three times a year). Some materials are available in Spanish. APHS also sponsors an annual conference.

Keywords: Gastrointestinal Motility Disorder, Intestinal Pseudo-Obstruction Syndrome

American Psychological Association (APA)

Annotation: The American Psychological Association (APA) is a scientific and professional society of psychologists that works to advance psychology as a science, a profession, and a means of promoting health, education and the human welfare. Students may participate as affiliates. Publications include newsletters, catalogs, journals, abstracts, and many other materials. APA also sponsors conferences and workshops.

Keywords: Advocacy, Behavioral sciences, Conferences, Consumer education, Information sources, Mental health, Mental health services, Postpartum depression, Professional societies, Psychologists, Psychology, Publications, Resource centers, Spanish language materials, Training

American Red Cross (ARC)

Annotation: The American Red Cross (ARC) and its local chapters provide blood services, volunteer training for hospitals and other community agencies, and services for children and youth. Services to consumers include referrals, publications, and reference information. Publications include pamphlets, brochures, and books on health and safety education, community disaster preparedness, babysitting, and baby and child care. Some materials are available in Spanish. Local chapters offer water safety programs, first aid and emergency training, birth classes, adult and youth health and safety courses, and community involvement activities.

Keywords: Blood banks, Childbirth education, Child care, Educational materials, Emergency medical services for children, Emergency services, Health education, Information services, Training

American Sexual Health Association (ASHA)

Annotation: The American Sexual Health Association (ASHA) is a nonprofit organization that works to improve the health of individuals, families, and communities, with a focus on sexual health and sexually transmitted diseases (STDs). Through education, research, and public policy the association produces multifaceted programs addressing the most prevalent STDs. ASHA produces a variety of books, pamphlets, information packets, and other educational materials for patients, health providers, parents, teachers, and organizations.

Keywords: AIDS, Herpes genitalis, Hotlines, Human papillomavirus, Immunization, Prevention programs, Public health, Public policy, Sexual health, Sexually transmitted diseases

American Sickle Cell Anemia Association (ASCAA)

Annotation: The American Sickle Cell Anemia Association (ASCAA) provides education, testing, and counseling to populations at risk for sickle cell anemia and its hemoglobinopathy variants. Counseling, education, and testing are also provided to the bilingual population. Services to consumers include referrals, reference information, and publications. Materials are provided in Spanish and Asian languages.

Keywords: Hematologic diseases, Hemoglobinopathies, Sickle cell disease

American Sleep Association (ASA)

Annotation: The American Sleep Association (ASA) is a national organization that focuses on improving public awareness of sleep disorders and sleep health, promoting sleep medicine research, and providing a portal for communication between patients, healthcare professionals, and scientists. ASA provides online information for professionals, technologists, patients, and the general public, including material about sleep problems in children and the diagnosis and treatment of sleep disorders. The association also produces a newsletter, and provides access to research abstracts, a directory of sleep labs, and online support groups, chat rooms, and message boards. Information is available in Spanish. ASA is a member-driven public service project that depends on volunteer efforts. Membership is free to those who register online.

Keywords: Public awareness campaigns, Research, Sleep, Sleep deprivation, Sleep disorders

American Society for Deaf Children (ASDC)

Annotation: The American Society for Deaf Children (ASDC) provides information and support to parents and families of deaf or hearing-impaired children. The society offers assistance with educational or legal problems related to rearing a hearing-impaired child. Services are also provided to the public. Publications include a journal and a quarterly newsletter, The Endeavor. Some materials are available in Spanish, and the ASDC sponsors a biennial convention, a "First Year Free" program, and a listserv.

Keywords: Civil rights, Deafness, Disabilities, Family support services, Hearing disorders, Information services, Parent groups

American Society for Reproductive Medicine (ASRM)

Annotation: The American Society for Reproductive Medicine (ASRM), formerly known as the American Fertility Society, seeks to extend knowledge of all aspects of fertility and reproduction. Members include gynecologists, obstetricians, urologists, reproductive endocrinologists, veterinarians, research workers, and others interested in the reproductive health of humans and animals. Services to consumers include referrals, publications, and reference information. ASRM sponsors conferences, training seminars, and workshops and publishes a newsletter and a journal. Some materials are available n Spanish.

Keywords: Fertility, Infertility, Pregnancy, Reproduction, Reproductive technologies

American Society of Dentistry for Children (ASDC)

Annotation: The American Society of Dentistry for Children (ASDC) is a professional organization of pediatric dentists and general practitioners. ASDC sponsors an annual conference and two educational seminars annually, conducts a fellowship program, leads and rewards professional development efforts, and supports research and education in pediatric dentistry through its foundation. Publications include the Journal of Dentistry for Children, the ASDC Newsletter, and a catalog of educational and marketing materials. They also provide materials in Spanish.

Keywords: Child health, Oral health, Pediatric dentistry, Pediatric dentists

American Speech-Language-Hearing Association (ASHA)

Annotation: The American Speech-Language-Hearing Association (ASHA) certifies professional speech-language pathologists and audiologists and accredits graduate school programs in these areas. The association conducts research in communication disorders and provides information and referrals to speech-language pathologists and audiologists. Publications include Journal of Speech and Hearing Research, American Journal of Audiology, American Journal of Speech-Language Pathology, Language, Speech and Hearing Services in the Schools, ASHA Leader and ASHA Magazine. Some publications are available in Spanish. ASHA also sponsors conference, training seminars and workshops.

Keywords: Communication disorders, Deafness, Hearing disorders, Language, Medical research, Speech, Speech disorders, Speech pathologists, Speech pathology, Speech therapy

American Tinnitus Association (ATA)

Annotation: The American Tinnitus Association (ATA) supports educational activities and conducts research on the treatment of tinnitus. The association offers information about self-help groups, provides referrals to professionals, maintains a tinnitus bibliography, provides materials in Spanish and publishes a quarterly magazine, Tinnitus Today. The ATA sponsors conferences and training seminars.

Keywords: Hearing disorders, Information services, Medical research, Spanish language materials, Tinnitus

Amputee Coalition

Annotation: The Amputee Coalition strives to empower people affected by limb loss to achieve their full potential through education, support and advocacy, and to promote limb loss prevention. The Coalition works to raise awareness about and increase practices to prevent limb loss and to ensure that no amputee feels alone through pre- and post amputation and recovery.Through its Limb Loss Resource Center, the Coalition responds to information requests, provides by topic, amputation level, and specific groups. Materials are available in English and Spanish.

Keywords: Amputees, Physical disabilities, Spanish language materials

Angelman Syndrome Foundation (ASF)

Annotation: The Angelman Syndrome Foundation (ASF)- works to advance the awareness and treatment of Angelman Syndrome. ASF provides education and information, research, and support for individuals with Angelman Syndrome, their families, and other concerned parties. Some materials are available in Spanish and in Hebrew. The Foundation hosts an electronic forum for members and sponsors a biennial National Conference to bring together Angelman families and professionals.

Keywords: Angelman syndrome

Any Baby Can (ABC)

Annotation: Established in 1982, Any Baby Can (ABC) is a networking effort to link all services for high-risk babies and children with developmental delays in San Antonio and Austin, Texas, and in the surrounding region. The organization also provides support services for families in crisis situations and sponsors A Vision for Children Center advocacy and networking coalition as well as training seminars. Any Baby Can has been nationally recognized for innovative efforts that include the ABC Baby Helpline, Crisis Fund for Infants, and intergenerational Family Friends. Any Baby Can created the Texas Respite Resource Network, Children's Transplant Association of Texas, the Sudden Infant Death Syndrome Support Group of San Antonio, and the Tiny Trax program for very low birth weight babies. Publications include a quarterly newsletter, brochures, and a childhood development checklist. Some materials are available in Spanish.

Keywords: Advocacy, Early intervention, Family support, High risk infants, Infant stimulation, Support groups, Texas

Aplastic Anemia & MDS International Foundation (AA&MDSIF)

Annotation: Founded in 1983, the Aplastic Anemia & MDS International Foundation (AA&MDSIF) is a nonprofit charitable organization with the following mission: to serve as a resource for patient assistance and emotional support; to provide educational materials and updated medical information; and to financially support research to find effective treatment for aplastic anemia (AA), myelodysplastic syndromes (MDS), and other related bone marrow failure diseases. Services to consumers include inquiry responses, publications, and reference information. Some materials are available in Spanish, French, and other languages. The foundation publishes a newsletter and sponsors conferences.

Keywords: Blood and lymphatic diseases, Fanconis anemia, Neural tube defects

Arc of the United States

Annotation: The Arc of the United States, formerly the Association for Retarded Citizens of the United States, works to prevent and ameliorate mental retardation and to improve the quality of life for children and adults with mental retardation and their families. The Arc's state and local chapters provide services or advocate for services for people with mental retardation throughout the United States. The association provides information, publications, and referrals to parents, organizations, and communities to assist them in meeting the needs of people with mental retardation.

Keywords: Mental retardation, Support groups, Information dissemination

Arkansas State Library (ADH)

Annotation: The Arkansas State Library provides referrals, publications and reference information to consumers. Some materials are available in Spanish. They also publish a newsletter and sponsor conferences, training seminars and workshops.

Keywords: Arkansas, Libraries, State agencies

Arthritis Answers/Arthritis Foundation (AF)

Annotation: The Arthritis Answers information line offers referrals, publications, and reference information to consumers. Some materials are available in Spanish. Publications include a magazine, a bulletin for health professionals, a newsletter for children with arthritis and their parents, booklets, and books. The Arthritis Foundation sponsors conferences, training seminars, and workshops.

Keywords: Arthritis, Musculoskeletal diseases, Skin diseases, Women's Health

ASPIRA Association

Annotation: ASPIRA Association is a national Hispanic leadership development organization that offers leadership and educational opportunities to Puerto Rican and other Latino adolescents. It sponsors a national health careers program that encourages Hispanic youth to prepare for careers in health-related fields, operates demonstration projects in Hispanic communities and has designed and implemented afterschool educational programs. Materials are available in Spanish.

Keywords: Adolescents, Child care, Hispanic Americans, Minority groups, Outreach

Association for Childhood Education International (ACEI)

Annotation: The Association for Childhood Education International (ACEI) is a not-for-profit professional educational organization whose mission is to promote and support in the global community the optimal education and development of children, from infancy through middle childhood, and to influence the professional growth of educators, and the efforts of others who are committed to the needs of children in a changing society. The association provides publications for consumers; some of the information is in Spanish. Publications include a catalogue, a newsletter, a journal, and several books. The association conducts conferences and workshops.

Keywords: Child care, Children rights,, Early childhood education

Association for Children with Down Syndrome (ACDS)

Annotation: The Association for Children with Down Syndrome (ACDS) Strives to provide an environment that helps infants, toddlers, and preschool children with Down syndrome to participate in mainstream school and community activities through its early intervention and pre-school service. In addition to conducting research, ACDS provides resources, referrals, and programs for children 5-21 with Down syndrome and helps educate the community through workshops, conferences, and publications (including the bimonthly ACDS Newsletter). A catalog of publications and audiovisual materials is available, and materials are provided in Spanish. ACDS also provides residential services to young adults with Down Syndrome and other developmental disabilities.

Keywords: Chromosome abnormalities, Down syndrome, Family support services, Geneticdisorders, Information services, Medical research, Mental retardation, Public awareness materials

Association of Pediatric Oncology Nurses (APON)

Annotation: Association of Pediatric Oncology Nurses offers pediatric oncology reference information to nurses, doctors and consumers. APON provides some materials in Spanish and publishes a catalog, newsletter, and journal. The association also sponsors conferences.

Keywords: Nurses, Pediatric oncology

Association of Reproductive Health Professionals (ARHP)

Association of SIDS and Infant Mortality Programs (ASIP)

Annotation: The Association of SIDS and Infant Mortality Programs (ASIP) is a multidisciplinary professional membership organization whose members provide community education, training programs, and consultation for health departments, hospitals, emergency responders, medical examiners and law enforcement. The SIDS/ID professionals in ASIP (whose work addresses Sudden Infant Death Syndrome and Other Infant Death) represent a majority of the states, in many cases including the State SIDS/ID program director. ASIP provides national leadership to establish and promote policy and practice for professionals who respond to infant and child death and is committed to bereavement support, risk reduction and prevention services.

Keywords: Infant health, Infant mortality, SIDS

Asthma and Allergy Foundation of America (AAFA)

Annotation: The Asthma and Allergy Foundation of America (AAFA) is a nonprofit organization that works to control and find a cure for asthma and allergic diseases. The foundation supports research projects, patient and public education programs, public policy and advocacy efforts, and a network of chapters and support groups. Services to consumers include referrals, reference information, and publications. AAFA produces three bimonthly newsletters—Advance (patient education), Healthlines (for adolescents with asthma), and Leader's Link for support group leaders), and provides pamphlets, books, and videotapes on asthma and allergic diseases. A catalog is also available. Some materials are available in Spanish.

Keywords: Allergies, Asthma, Medical research, Information services,, Respiratory diseases

ASTM International

Annotation: ASTM International is a nonprofit organization founded in 1898 that provides a forum for industry, consumers, government representatives, and academia to develop standards for materials, products, systems, and services. ASTM's consumer products committee develops standards for playground equipment, infant furniture, bunk beds, toys, high chairs, helmets, toy chests, toxicity testing, and safety characteristics for a variety of consumer products. The society publishes a catalog, newsletter and monthly magazine, Standardization News. Some materials are available in Spanish and Asian languages. The society sponsors workshops and training programs.

Keywords: Consumers, Injury prevention, Product safety

Attention Deficit Information Network (AD-IN)

Annotation: The Attention Deficit Information Network, Inc., is a non profit volunteer organization that offers support and information to families of children with ADD, adults with ADD, and professionals through a network of AD-IN chapters. AD-IN was founded in 1988 by several parent support group leaders on the premise of parents helping parents deal with their children with ADD. AD-IN is a community resource for information on training programs and speakers for those who work with individuals with ADD. The organization also presents conferences and workshops for parents and professionals on current issues, research and treatments for ADD. Funding for activities is derived from proceeds, grants from foundations and corporations, donations, and contributions. Publications include a calendar of ADD/LD conferences. Materials are available in Spanish.

Keywords: Attention deficit disorder, Support groups, Information services, Learning disabilities

AUA Foundation (AAU Foundation)

Annotation: The AUA Foundation is a partnership of physicians, researchers, health-care professionals, patients, caregivers, families and the public established to support and promote research, patient/public education and advocacy. Originally established in 1987 as the American Foundation for Urologic Disease (AFUD), the organization entered a new era of service in 2005 when it consolidated its programs with the American Urological Association . Information for researchers, health professionals, and patients is available via the Web site.

Keywords: Advocacy, Consumer education, Foundations, Fundraising, Health education, Infertility, Kidney diseases, Preventive health services, Reproductive health, Research, Sexual health, Urologic diseases

Autism Society

Annotation: The Autism Society (formerly the Autism Society of America) provides information and referral services, education, and increase awareness to parents and families of people with autism. The society sponsors an annual national conference on autism and promotes advocacy and education through various publications including the bimonthly newsletter Advocate. Some materials are available in Spanish, French, Chinese and Vietnamese.

Keywords: Autism, Developmental disabilities

Awake Project (AWAKE)

Annotation: The AWAKE Project (Advocacy for Women and Kids in Emergencies) provides broad based domestic violence intervention services to adult and adolescent victims of domestic/dating violence. AWAKE has initiated ongoing collegial relationships with a cadre of community agencies and individuals. Services include, but are not limited to, risk assessment and safety planning; individual counseling; assistance in securing emergency shelter; completing applications for public housing; criminal justice advocacy; support groups; ongoing outreach; and case consultation, education, and training. All services are available in English and Spanish, and interpreters are available to provide services to those who speak other languages, including ASL. All services are free of charge.

Keywords: Battered women, Child abuse, Child neglect, Domestic violence, Shelters

Batten Disease Support and Research Association (BDSRA)

Annotation: The Batten Disease Support and Research Association (BDSRA) sponsors research on Batten disease and provides support, referrals, and information to families affected by the disease. Publications include Batten Disease: Neuronal Ceroid Lipofuscinoses and a newsletter. Some materials are available in Spanish, French and other languages. BDSRA also sponsors conferences, training seminars, and workshops.

Keywords: Batten disease, Brain diseases, Medical research, Support groups, Nervous system diseases, Neuronal ceroid lipofuscinoses

Beach Center on Disability

Annotation: The Beach Center on Disability is a research and training center that focuses on families of people with disabilities. The center is funded in part by the National Institute on Disability and Rehabilitation Research, Office of Special Education and Rehabilitative Services, U.S. Department of Education, and by private endowments. Services to consumers include referrals, publications, and reference information. The center publishes a catalog and newsletter and sponsors conferences and training seminars. Some materials are available in Spanish and Asian languages. The center's Web site provides lists of groups and organizations in each state.

Keywords: Children, Developmental disabilities, Family resource centers, Family support, Technology dependence

Beginnings for Parents of Children who are Deaf or Hard of Hearing

Annotation: Beginnings for Parents of Children who are Deaf or Hard of Hearing serves families of children who are deaf or hard of hearing (0–21 years old) and concerned professionals. The organization provides parent support and information about hearing loss, including communication and educational options. Publications include videotapes, a parent manual, and brochures. Some materials are available in Spanish.

Keywords: Children, Deafness, Hearing disorders, Parent groups, Parent support services, Testing

Benign Essential Blepharospasm Research Foundation (BEBRF)

Annotation: The Benign Essential Blepharospasm Research Foundation (BEBRF) is an international clearinghouse for information on spasms of the facial musculature (blepharospasm, Meige's syndrome, and hemifacial spasms). The foundation works to eradicate blepharospasm and to support people with the disorder. Activities include sponsorship of continuing education and an annual international conference. The foundation provides referrals, publications, and reference information to consumers. Publications include Benign Essential Blepharospasm, Meige's and Other Related Disorders , a bimonthly newsletter, and a catalog of audiovisual materials. Some materials are available in Spanish. The Foundation also sponsors conferences and workshops.

Keywords: Benign essential blepharospasm, Facial dystonia, Meige syndrome, Neuromuscular diseases, Support groups, Information services,, Vision disorders

Best Start Social Marketing

Annotation: Best Start Social Marketing is a nonprofit organization which distributes breastfeeding promotion materials designed specifically for economically disadvantaged women to other organizations who serve this population. A personal counseling package is available and can be combined with other mass media and print materials to create a coordinated campaign. Promotional materials include television and radio public service announcements, videotapes, posters, catalogs, journals, pamphlets, and a magazine for teens. A catalog of materials is available. Materials are available in Spanish, English-low literacy, Native-American, Anglo-American, Hispanic-American, and African-American versions.

Keywords: Breastfeeding promotion

Bethesda Communities

Annotation: Bethesda Lutheran Communities offers Christian education and residential rehabilitation services to people with mental retardation. It also offers short term and respite care, a fully accessible camp, day services, and case management. In addition to its main campus in Watertown, WI, Bethesda operates 37 community living facilities in ten states. Through its National Christian Resource Center, Bethesda offers free information and referral services nationwide, systems advocacy, resources for special religious education, staff training video modules, and workshops for religious and secular providers. Conferences and training seminars are sponsored as well. Publications include a catalog and newsletter. Some materials are available in Spanish.

Keywords: Case management Religious organizations, Developmental disabilities, Family support, Mental retardation, Respite care

Better Hearing Institute (BHI)

Annotation: The Better Hearing Institute (BHI) is a nonprofit educational organization that implements national public information programs on hearing loss and available medical, surgical, hearing aid, and rehabilitation assistance for millions with uncorrected hearing problems. Its award winning series of television, radio, and print media public service messages include many celebrities who overcame hearing loss. BHI maintains a toll-free "Hearing HelpLine" service that provides information on hearing loss and hearing help to callers in the U.S. and Canada. Publications include a catalog and a newsletter. Some materials are available in Spanish.

Keywords: Hearing disorders, Screening

Blind Childrens Center

Annotation: The Blind Children's Center publishes booklets for parents of young children who are blind or visually impaired. The booklets are available in Spanish or English and cover a variety of topics. The center maintains a toll-free telephone service and a correspondence program to provide information, resources, referrals, and support. The Center also publishes a newsletter and a catalog.

Keywords: Blindness, Children, Vision disorders

Boston Women's Health Book Collective (BWHBC)

Annotation: The Boston Women's Health Book Collective (also known as Our Bodies Ourselves) is a non-profit education, advocacy, and consulting organization. Its Women's Health Information Center maintains a resource directory of local and international feminist and women's health groups, offers links to health information via its Web site, publishes a newsletter, and has developed a Women and Health Thesaurus used in several libraries. Materials are available in Spanish, French, Chinese (Mandarin), and Vietnamese.

Keywords: Disabilities, Women, Women's health

Brady Center to Prevent Gun Violence (CPHV)

Annotation: The Brady Center to Prevent Gun Violence (CPHV), established in 1983, is a nonprofit education and research organization that works to educate the public about the scope of handgun violence in the United States and the risks and responsibilities of handgun ownership. The center developed the nation's first K–12 curriculum on gun violence prevention, now used in several major school systems. CPHV publishes a newsletter and provides publications and reference information for consumers; some materials are available in Spanish. The center also sponsors conferences and training seminars. The center does not respond to individual inquiries.

Keywords: Consumer education, Curricula, Firearms, Handguns, Injury prevention, School health education, Violence prevention, Weapons

Brain Injury Association of America (BIAA)

Annotation: Founded in 1980, the Brain Injury Association of America seeks to create a better future through brain injury prevention, research, education and advocacy. Services to consumers include inquiry responses, information packets, and referrals to local resources. Publications include The National Directory of Brain Injury Rehabilitation Services, various brochures, including the eight-part "Road to Rehabilitation" series. Some materials are available in Spanish. The association also sponsors workshops, conferences, training seminars, and Brain Surgery Awareness Month in March.

Keywords: Advocacy, Brain injuries, Support groups, Education, Injury prevention, Intervention, Long term care, Rehabilitation, Research, Therapeutics, Trauma

Brain Injury Association of Massachusetts (BIA-MA)

Annotation: The Brain Injury Association of Massachusetts (BIAMA), an affiliate of the National Brain Injury Association, works to ensure appropriate services for the care and rehabilitation of Massachusetts residents who have sustained brain injuries and their families. The association develops support systems and promotes public awareness of traumatic brain injury and its consequences. BIAMA publishes a newsletter and sponsors training seminars and conferences. Some materials are available in Spanish.

Keywords: Brain injuries, Head injuries

Breast Cancer Action (BCA)

Annotation: Breast Cancer Action (BCA) seeks to inspire and encourage the changes necessary to end the breast cancer epidemic. The organization questions common assumptions and calls for corporate accountability. BCA conducts annual town meetings, publishes a variety of materials, including a newsletter (available in both English and Spanish) and electronic e-mail alerts, recruits volunteers, conducts fundraising campaigns, and advocates for support.

Keywords: Advocacy, Breast cancer, Public awareness campaigns, Women's health

Breast Cancer Network of Strength

Annotation: The Breast Cancer Network of Strength (formerly the Y-ME National Breast Cancer Organization) offers breast cancer information, publications, peer support, survivor-staffed hotlines (interpreters available in 150 languages), a newsletter, and conferences. It publishes a newsletter and and distributes For Single Women with Breast Cancer and When the Woman You Love Has Breast Cancer, a booklet that addresses the emotional issues of men whose wives, partners, or other loved ones are diagnosed with breast cancer. A Spanish hotline and Spanish-language publications are available. The organization sponsors conferences, workshops, and training seminars.

Keywords: Breast cancer, Women's health

Breast Cancer Resource Committee (BCRC)

Annotation: The Breast Cancer Resource Committee (BCRC) is a nonprofit organization that works to educate all African-American women—urban and rural, poor and middle class, and of all educational levels—about breast cancer. The committee sponsors educational seminars and an annual symposium for 500 representatives of major black women's social and service organizations, develops motivational videos and peer counseling sessions to increase its volunteer base and to disseminate general information on breast cancer, and testifies before Congress about mammography quality assurance, increased funding for research, and access to services for low-income women. The Committee has launched the first Afrocentric support group for women with Breast cancer, Rise-Sister-Rise. This free support group meets on a monthly basis to discuss both the medical and psycho-social ramifications of having breast cancer from an African American woman's perspective. Referrals and reference information are also available in Spanish.

Keywords: Breast cancer, Women's health

Bright Futures at Georgetown University

Annotation: Bright Futures at Georgetown University provides online and print access to the Bright Futures child health supervision materials sponsored by the Maternal and Child Health Bureau, Health Resources and Services Administration. The Georgetown project serves as liaison to the Bright Futures Distribution Center; provides access to content experts and to electronic training tools; maintains historical archives; and provides distance education for Early and Periodic Screening, Diagnostic and Treatment (EPSDT) services. Some materials are available in Spanish.

Keywords: Adolescents, Bright Futures, Children, Guidelines, Health supervision, Infants, Nutrition, Oral health, Physical activity, Spanish language materials

The MCH Library is one of six special collections at Georgetown University, the nation's oldest Jesuit institution of higher education. The library is supported through foundation, private, university, state, and federal funding. This information or content and conclusions are those of the authors and should not be construed as the official position or policy of, nor should any endorsements be inferred by Georgetown University or the U.S. Government. Note: web pages whose development was supported by federal government grants are being reviewed to comply with applicable Executive Orders.