Field MJ, Behrman RE, eds.; Board on Health Sciences Policy, Committee on Palliative and End-of-Life Care for Children and Their Families. 2003. When children die: Improving palliative and end-of-life care for children and their families. Washington, DC: National Academies Press, 490 pp.
Annotation: This book examines what is known about the needs of children who are dying, as well as the needs of their families; the extent to which these needs are being met; and what can be done to provide more competent, compassionate, and consistent care. The book offers recommendations for involving the child and parents in treatment decisions, strengthening the organization and delivery of services, hospice care, reducing financial barriers to care, developing support programs for bereaved families, training health professionals, ethical and legal issues; and expanding the knowledge base to guide clinicians and families. Nine appendices provide information on study origins and activities, prognostication scores, assess health-related quality of life in end-of-life care, bereavement experiences, end-of-life care in emergency medical services, education in pediatric palliative care, a description of a New York state demonstration project, and committee biographical statements. The book also includes a summary, a list of reviewers, a reference list, and an index.
Contact: National Academies Press, 500 Fifth Street, N.W., Keck 360, Washington, DC 20001, Telephone: (202) 334-3313 Secondary Telephone: (888) 624-8373 Fax: (202) 334-2451 E-mail: firstname.lastname@example.org Web Site: http://www.nap.edu Available in libraries. Document Number: ISBN 0-309-08437-7.
Keywords: Bereavement, Child death, Ethics, Families, Family support, Fetal death, Financial barriers, Health care delivery, Hospice services, Infant death, Palliative treatment, Parent professional relations, Professional training, Terminal care, Terminal illness