AIM Partners: Products Developed by the Association of Maternal and Child Health Programs (AMCHP) Bibliography

AIM Partners: Products Developed by the Association of Maternal and Child Health Programs (AMCHP)

Bibliography of Materials from MCHLine^®

This bibliography of 426 items is drawn from MCHLine^®, the MCH Digital Library online catalog. It includes selected materials published in the last ten years on breastfeeding for nursing mothers returning to work as well as breastfeeding promotion in the workplace and in child care settings.

The MCH Digital Library focuses on publications from federal and state agencies, from grantees of federal and state agencies, and from professional and voluntary organizations. It contains unique materials on the history of maternal and child health in the United States, policy papers, reports, conference proceedings, manuals, survey instruments, guidelines, and curricula. The library does not collect materials on clinical medicine. Consumer health materials and commercially published materials are collected very selectively.

Displaying 426 records.

Association of Maternal and Child Health Programs. n.d.. Adolescent health system capacity assessment tool. Washington, DC: Association of Maternal and Child Health Programs, 98 pp.

Keywords: Adolescent health, Assessment, Health care systems, Program improvement, Quality assurance

Association of Maternal and Child Health Programs. 2025. Early hearing detection and intervention – Complementary programs designed to build comprehensive systems. Washington, DC: Association of Maternal and Child Health Programs, 2 pp.

Annotation: [This fact sheet describes the Early Hearing Detection and Intervention (EHDI) system, which ensures that deaf and hard-of-hearing infants and children up to age 3 are identified in a timely manner and receive appropriate follow-up services to optimize their development. The document explains that EHDI state grants were first authorized in the Newborn Infant Hearing Screening and Intervention Act of 1999 and were most recently reauthorized through the Early Hearing Detection and Intervention Act of 2022, creating complementary programs administered by both the Health Resources and Services Administration and the Centers for Disease Control and Prevention. It provides a comparison table showing how HRSA funding focuses on developing statewide screening and intervention programs while CDC funding advances states' capacity to track infants and optimize information systems.

Keywords: Child health, Early intervention, Infant health, Legislation, MCH Programs, Screening

Association of Maternal and Child Health Programs. 2025. Maternal mortality review – Powering prevention. Washington, DC: Association of Maternal and Child Health Programs, 2 pp.

Annotation: This fact sheet describes maternal mortality review as a comprehensive process to identify, review, and analyze deaths during pregnancy, childbirth, and the year postpartum to improve systems of care and prevent future tragedies. The document explains that this work is carried out by Maternal Mortality Review Committees (MMRCs), which are multidisciplinary state- or jurisdiction-based groups that conduct in-depth reviews of each death to determine critical factors and craft tailored recommendations. It describes how Congress passed the Preventing Maternal Deaths Act in 2018, which authorized the CDC's Enhancing Reviews and Surveillance to Eliminate Maternal Mortality (ERASE MM) program to provide funding and technical assistance to MMRCs in over 50 states and jurisdictions. The fact sheet outlines the alignment between MMRCs and the Title V MCH Services Block Grant, noting that MMRCs offer distinct qualitative, case-based insights that can inform Title V priority setting and planning.

Keywords: Information dissemination, Legislation, Maternal death, Maternal mortality, Prevention, Research

Association of Maternal and Child Health Programs. 2025. Medicaid – Affordable health care delivery systems and expanded coverage. Washington, DC: Association of Maternal and Child Health Programs, 2 pp.

Annotation: This fact sheet provides an overview of the Medicaid program as part of a guide to key maternal and child health investments. The document explains that Medicaid is a federal-state partnership providing health care to low-income individuals and covers nearly 19% of adult women, 41% of all births, and 50% of all children in the United States. It includes a comparative table contrasting the Medicaid program with the Title V MCH Services Block Grant to States, detailing their authorization, administration, funding mechanisms, eligibility requirements, and populations served. The fact sheet describes the required alignment and coordination between Title V and Medicaid programs, including inter-agency agreements and cooperative arrangements to maximize health services and prevent duplication of efforts.

Keywords: Interagency cooperation, MCH programs, Medicaid, Social Security Act, Title V

Association of Maternal and Child Health Programs. 2025. Newborn Screening – Timely Prevention. Washington, DC: Association of Maternal and Child Health Programs, 2 pp.

Annotation: This fact sheet describes the newborn screening (NBS) disease prevention system in the United States, involving the practice of testing every newborn for certain harmful or potentially fatal conditions that are not otherwise apparent at birth. The document explains that NBS is a coordinated system between birthing hospitals, state-based newborn screening programs, health care providers, and families, with Congress passing the original Newborn Screening Saves Lives Act in 2008 and reauthorizing it in 2014 to support the State/Cooperative Newborn Screening System Priorities Program. It notes that while every state requires NBS, each state manages its own program and screens for conditions on the Recommended Uniform Screening Panel, with 31 states and 4 U.S.-affiliated jurisdictions receiving funding through the Health Resources and Services Administration. The fact sheet describes NBS alignment with the Title V MCH Services Block Grant through supporting long-term follow-up activities and infrastructure building for children diagnosed with conditions identified through screening.

Keywords: Disease prevention, Federal programs, Neonatal screening, Newborn infants, Standards

Association of Maternal and Child Health Programs. 2025. Pregnancy risk assessment monitoring system – Informing impact, improving lives. Washington, DC: Association of Maternal and Child Health Programs, 2 pp.

Annotation: This fact sheet describes the Pregnancy Risk Assessment Monitoring System (PRAMS), a population-based surveillance system that collects state- and site-specific data on women's experiences and health before, during, and shortly after pregnancy. The document explains that PRAMS was launched in 1987 and codified into law through the 2006 PREEMIE Act, operating as a joint project between the Centers for Disease Control and Prevention and state, territorial, tribal, and local health departments. It covers PRAMS operations in 46 states, the District of Columbia, Puerto Rico, the Northern Mariana Islands, and New York City, representing about 81% of all U.S. births. The fact sheet emphasizes PRAMS' alignment with the Title V MCH Services Block Grant by providing unique state-level data that Title V programs rely on to track key maternal and infant health indicators such as postpartum depression, mental health screening, and infant safe sleep practices.

Keywords: Data collection, Data sources, Health surveys, Population surveillance, Pregnancy, Questionnaires, State surveys, Statistical data

Association of Maternal and Child Health Programs. 2025. State maternal health innovation – strengthening systems. Washington, DC: Association of Maternal and Child Health Programs, 2 pp.

Annotation: This fact sheet describes the State Maternal Health Innovation (MHI) Program, a federal investment launched in 2019 as a Special Project of Regional and National Significance by the Health Resources and Services Administration. The program supports states in building comprehensive, data-driven, and collaborative maternal health systems through competitive grants that enable states to develop tailored strategies reflecting their unique populations and care landscapes. It describes the program's alignment with the Title V MCH Services Block Grant by filling a critical gap in facilitating relationships, coordination, and innovation capacity to move state maternal health systems from fragmentation toward alignment. The fact sheet emphasizes that the State MHI Program is the only federal program funding states to weave together relationships into cohesive maternal health systems and warns that without continued funding, state alliances and innovations would stagnate while maternal health efforts would become fragmented.

Keywords: Federal programs, Funding, Grants, MCH Programs, Model programs, Service delivery systems, State initiatives

Association of Maternal and Child Health Programs. 2025. State systems development initiative – Turning data into impact. ,

Annotation: This fact sheet describes the State Systems Development Initiative (SSDI) program, which aims to improve maternal and child health outcomes in 59 states and jurisdictions by increasing capacity to collect, analyze, and use reliable data for Title V MCH Services Block Grant policy and program development. The document explains that SSDI is funded through the Special Projects of Regional and National Significance portion of the Title V Block Grant, distributing up to $100,000 annually to state and jurisdiction awardees to support expansion of data linkages, improved access to data on fair access to care, and translation of data into action. It outlines SSDI's alignment with the Title V MCH Services Block Grant by serving as the sole program supporting the data systems and capacity that Title V programs rely on for planning, implementation, and evaluation. The fact sheet emphasizes that all 59 states and jurisdictions receive SSDI support, providing examples of impact including linking datasets to improve data accuracy, expanding public health dashboards, and identifying areas with poor outcomes for targeted interventions.

Keywords: Data analysis, Data collection, Grants, MCH programs, Services delivery systems, State initiatives, Title V

Association of Maternal and Child Health Programs . 2024. Systems mapping tools to advance birth equity. Washington, DC: Association of Maternal and Child Health Programs ,

Annotation: This collection of online tools is intended to accelerate the work of communities, coalitions, and funders in strategically assessing their efforts, identifying opportunities, and committing to actions aimed at assuring conditions that lead to optimal births for all people. The tools include: (1) The Birth Equity Action Map, which describes actions needed by specific birth equity partners to improve birth and racial equity; (2) the Birth Equity Ecosystem Map, which visualizes the factors and conditions needed to achieve equitable outcomes; and (3) the Birth Equity Iceberg, which offers insights on the barriers that perpetuate inequitable outcomes and limit efforts to advance birth equity.

Link

Keywords: Barriers, Childbirth, Health care systems, Health equity, Racism

Association of Maternal and Child Health Programs. 2023. Advancing health equity and anti-racism in MCH policy. Washington, DC: Association of Maternal and Child Health Programs ,

Annotation: This e-learning module on advancing health equity and anti-racism in MCH policy is part of a series intended to provide Title V professionals with the tools, knowledge, and capacity to effectively engage in policy development, implementation, evaluation, and advocacy to ensure that policies affecting maternal and child health populations are effective, equitable, and evidence-based.

Link

Keywords: Child health, Health equity, Maternal health, Policy development, Professional education, Racism, Title V Programs

Association of Maternal and Child Health Programs; Centers for Disease Control and Prevention. 2023. CDC Review to action networking map. Atlanta, GA: Centers for Disease Control and Prevention,

Annotation: This interactive map provides links to Maternal Mortality Review Committee (MMRC) lead contacts and regional profiles that include maternal mortality statistics and an overview of MMRC work at the state, city, and jurisdictional level across the United States.

Link

Keywords: Data, Maternal mortality, State programs, Statistics

Association of Maternal and Child Health Programs; Bright Futures . 2023. Essential elements for developmental and behavioral/social/emotional screening using Bright Futures in Title V programs . Washington, DC: Association of Maternal and Child Health Programs, 11 pp.

Annotation: This tip sheet for Title V agencies outlines five essential elements for implementing developmental and behavioral health screening programs within health supervision visits. It provides guidance on promoting equity in screening, planning responses to results, communicating with families, handling confidentiality, and using appropriate screening tools and schedules based on Bright Futures guidelines. The document includes state program examples and emphasizes the importance of establishing clear protocols for referrals, particularly for non-clinical staff working in community settings. [Funded by the Health Resources and Services Administration]

Link

Keywords: Developmental screening, Guidelines, Mental health screening

Association of Maternal and Child Health Programs. 2023. Food security topics page . Washington, DC: Association of Maternal and Child Health Programs, n.a.

Annotation: This website provides an overview of food security issues and resources related to maternal and child health (MCH) programs. It defines food security and highlights racial disparities in food access, noting that Black children are almost three times more likely to live in food-insecure households compared to white children. The site emphasizes the role of Title V MCH programs in addressing social determinants of health and creating partnerships to improve food access. It includes sections on the Association of Maternal and Child Health Program's (AMCHP) projects and partnerships related to food security, such as podcast episodes, conference presentations, and learning modules. It also features a searchable database of food security practices and programs, allowing users to filter by criteria like community engagement, equity focus, location, and ethnicity/race. Brief descriptions of 19 food security initiatives from various locations are provided, covering topics like indigenous food systems, nutrition interventions, and community gardening programs.

Link

Keywords: Food consumption, Food insecurity, Food supply, Initiatives, Title V programs

Association of Maternal and Child Health Programs. 2023. Preparing for sustainability tool. Association of Maternal and Child Health Programs, 4 pp.

Annotation: This tool guides public health practitioners through planning for program sustainability. It outlines a process for articulating core values, identifying key sustainability domains, defining current and future states for each domain, and developing a comprehensive action plan. The tool provides worksheets for practitioners to draft core values, select 5-9 sustainability domains, map out current and future states, and create detailed action plans with measurable outcomes, resources needed, timelines, and responsible parties. It emphasizes that sustainability planning is an ongoing process and provides links to additional resources like the Program Sustainability Assessment Tool and Georgia Health Policy Center's Sustainability Framework.

Link

Keywords: Program planning, Public health, Sustainability

Association of Maternal and Child Health Programs . 2023. Roadmap for collaboration among Title V, home visiting, and early childhood systems programs . Washington, DC: Association of Maternal and Child Health Programs,

Annotation: This website provides a collection of resources centered around the Association of Maternal and Child Health Program's framework for collaboration among Title V, Maternal, Infant, and Early Childhood Home Visiting (MIECHV), and other Early Childhood Systems (ECS) programs. The framework focuses on systems building and provides tools for staff from each of the programs to use in aligning their program goals and resources towards a common early childhood goal. The resource is a digitally-accessible update of “A roadmap for collaboration among Title V, home visiting, and early childhood systems programs”, en electronic document developed in partnership with the U.S. Maternal and Child Health Bureau that debuted in 2020.

Link

Keywords: Early childhood development, Early childhood education, Home visiting, Service delivery systems, State programs, Title V programs

Association of Maternal and Child Health Programs . 2022-. Get affordable health coverage for you and your family: Marketplace open enrollment season is here!. Washington, DC: Association of Maternal and Child Health Programs, 2 pp.

Annotation: This fact sheet for families explains when and how to enroll in the Health Insurance Marketplace to receive affordable coverage. It explains how Affordable Care Act (ACA) Open Enrollment is a critical time to promote the opportunity for affordable health care coverage; describes what is included in the marketplace plans and what they cost; and offers step-by-step enrollment instructions. A companion document describes the ways in which Title V maternal and child health programs can promote enrollment during the ACA open season (see unique #39525)

Link

Keywords: Access to health care, Children', Enrollment, Families, Health Insurance, Medicaid, Outreach, s Health Insurance Program

Association of Maternal and Child Health Programs. 2022. A Journey to birth justice: A panel discussion with the filmmakers of aftershock. Washington, DC: Association of Maternal and Child Health Programs,

Annotation: This panel discussion on birth justice was hosted by the Association of Maternal and Child Health Programs (AMCHP) during Black Maternal Health Week and features Aftershock filmmakers Paula Eiselt and Tonya Lewis and maternal health advocate Shawnee Benton-Gibson. Health equity and antiracism in maternal and infant health are the focus on the discussion.

Link

Keywords: Blacks, Community role, Families, Fatherhood, Health equity, Maternal health, Maternal morbidity, Minority health, Racism, Social support, maternal mortality

Pettiford BD, DeLauro R, Cole T. 2022. AMCHP Board President Testimony Before House Appropriations Subcommittee. [Washington, DC]: Association of Maternal and Child Health Programs, 10 m 08 s.

Annotation: On May 26, 2022, Belinda D. Pettiford, MPH, AMCHP Board President, delivered testimony before the House Appropriations Labor, Health and Human Services, Education, and Related Agencies Subcommittee during their FY2023 Public Witness Day, advocating for $1 billion in funding for the Title V Maternal and Child Health Services Block Grant. Pettiford emphasized how these equitably distributed grants have effectively improved maternal and child health outcomes across all states and territories through evidence-based, flexible programs that deliver measurable results. Her testimony highlighted priority initiatives including maternal mortality prevention, support for families with children having special healthcare needs, and addressing healthcare inequities. Following her presentation, which occupied approximately half the allocated time, subcommittee members contributed their own observations and comments regarding the funding request.

Link

Keywords: Title V programs, Block grants, MCH programs, Government financing, Congressional hearings, Race

Association of Maternal and Child Health Programs . 2022. AMCHP future 2027: implementation plan . Washington, DC: Association of Maternal and Child Health Programs, 12 pp.

Annotation: This report outlines the strategic plan of the Association of Maternal and Child Health Programs (AMCHP) through the year 2027. Included is a summary of the six pillar areas that the association plans to target: (1) Health equity and anti-racism; (2) Policy and advocacy; (3) Communication and branding; (4) Youth and family engagement; Membership and dues; (5) Technical assistance, capacity building, and workforce; and (6) Partnerships. A description of specific goals and a timeline for completion are also provided.

Keywords: Child health, MCH programs, Maternal health, Planning, Strategic plans

2022. American Rescue Plan Act (ARPA) Innovative MCH Fund Applications. Washington, DC: Association of Maternal and Child Health Programs, 7 pp. (Issue Brief)

Annotation: AMCHP outlines its guidance on utilizing American Rescue Plan Act (ARPA) funding for Maternal and Child Health initiatives in this report from 2022. It showcases innovative state-level programs funded through COVID-19 relief, particularly focusing on telehealth services, and includes examples from multiple states such as Alaska's Virtual Home Visiting Summit and Massachusetts' Community Telehealth Kiosk. The document also provides comprehensive resources from various organizations about ARPA implementation, including funding breakdowns, policy guidance, and strategic planning tools for maximizing the impact of federal relief funds on children and families.

Link

Keywords: MCH programs, Staff development, Government financing, Covid-19, Telemedicine,

Global Health Workgroup . 2022. Amplifying birthworker models of care: June 2022 global health webinar. Washington, DC: Association of Maternal and Child Health Programs ,

Annotation: This recorded webinar provides background information on the global maternal mortlaity crisis and highlights opportunities for birth workers to intervene and alleviate the crisis. Guest presenters from international maternal and child health organizations give an overview of their practice to support pregnant and birthing people, and prevent maternal deaths. Special guests: Andrew Herrera, MPH, MBA, Executive Director of Curamericas; Mario Rodriguez Valdez Ramirez, Executive Director of Casa Maternas, Guatemala; Juany Valdez, Head Nurse of Casa Maternas, Guatemala; Nick Pearson, Founder and Co-Executive Director of Jacranda Health; Chanel Porchia-Albert, Founder of Ancient Song Doula Services.

Link

Keywords: Childbirth, Community health workers, Doulas, International health, Maternal mortality, Midwifery, Pregnancy, Prevention, Social support

Anckner S, Frye M, Salley C. 2022. August 16 Round Table: My Evaluation is Done. What’s Next?. [Washington, DC]: Association of Maternal and Child Health Programs, 1 h 1 m 50 s.

Annotation: This recorded webinar from August 16, 2022, features AMCHP's Equity, Epidemiology, and Evaluation team providing a comprehensive framework for implementing evidence-based changes in telehealth programs with an explicit focus on equity throughout the evaluation process. The presentation systematically explores the CDC Evaluation Framework and Standards—covering utility, feasibility, propriety, and accuracy standards—while incorporating concrete examples through a detailed Utah case study that demonstrates practical application of these principles. The content balances theoretical foundations with actionable implementation strategies, integrating quality improvement methodologies to help participants learn both how to design evaluations that center equity and how to effectively translate evaluation findings into meaningful program changes. The session concludes with an extensive question and answer period that addresses specific challenges faced by participants in applying equity-centered evaluation approaches to their telehealth initiatives.

Link

Keywords: Epidemiology, Telemedicine, Race, Program evaluation, Communication, Quality assurance, Utah

Martzke M, Anckner S, Lindow-Davies C, Kennedy S, Quinn M. 2022. August 18 Round Table: Working with Families Virtually. [Washington, DC]: Association of Maternal and Child Health Programs; [Washington, DC]: National Genetics Education and Family Support Center at Expecting Health, 20 m 17 s.

Annotation: This recorded webinar from August 18, 2022, features Molly Martzke, Senior Program Manager at the National Genetics Education and Family Support Center at Expecting Health, sharing insights on their shift to virtual family engagement programming during the pandemic and the sustainable practices that emerged. Martzke provides an overview of HRSA's Division of Services for Children with Special Health Needs (DSCHSN) genetics programs, including their educational initiatives, the coordination between seven regional genetics networks, and the function of the national coordinating center. The presentation highlights Expecting Health's collaborative approach with partner organizations like Parent to Parent, while introducing participants to valuable Family Center Resources including their website, podcast series, and ongoing webinars designed to support families navigating genetic conditions and services across different regions of the country.

Link

Keywords: Disaster planning, Family support services, Genetic screening, Regional genetics networks, Deafness, Hearing disorders

Anckner S, White K, Messersmith J, Campbell B, Houston T, Stredler Brown A, Meibos A, Dawson P, Purdy J. 2022. August 4 Round Table: Taking EHDI Telehealth to the Next Level. [Washington, DC]: Association of Maternal and Child Health Programs, 1 h 29 m 49 s.

Annotation: This August 4, 2022 recording features a comprehensive panel discussion on telehealth applications within Early Hearing Detection and Intervention (EHDI) programs, showcasing diverse perspectives from across North America. Bill Campbell presents on Remote Infant Auditory Brainstem Response Assessment in Ontario, highlighting improved service access despite technological challenges, while Todd Houston discusses findings from a Journal of EHDI monograph emphasizing telehealth benefits and the need for specialized training. Arlene Stredler Brown shares Colorado research on telehealth equity considerations, revealing provider and family feedback indicating a need for enhanced training in family-centered early intervention approaches. Alex Meibos provides technical insights on audiology telehealth platforms, noting that many hearing aid manufacturers offer online solutions adaptable for early intervention. Pamela Dawson contributes telehealth resource information specific to the Northeast region, and Julie Purdy rounds out the presentation with California survey data on implementing Oticon hearing aid online platforms and affordable home otoscopy options using smartphone applications, collectively demonstrating how telehealth is transforming accessibility and delivery of pediatric audiology services nationwide.

Link

Keywords: Telemedicine, Audiology, Deafness, Hearing tests, Hearing screening, Infant health, Children', s health, Program evaluation, Canada, Ohio, Colorado, Maine, New Hampshire, Vermont, California

Bright Futures National Center; Association of Maternal and Child Health Programs. 2022. Bright Futures: Applying principles of a shared plan of care for adolescents living with mental health concerns tip sheet. , 11 pp.

Annotation: This tip sheet describes 10 principles developed to form bridges between pediatric primary care and behavioral health care with a focus on adolescent social/emotional well-being. Each of the "Shared Plan of Care" (SPoC) principles apply to Bright Futures health supervision visits for adolescents who have mental health concerns. Relevant considerations, resources, and tools for health professionals are included. The principles were developed by the Association of Maternal and Child Health Programs in partnership with the Bright Futures National Center.

Link

Keywords: Adolescent health, Adolescent mental health, Guidelines , Health supervision, Preventive health services

Clark C, Frye M, Salley C. 2022. Building equity-centered evaluations. [Washington, DC]: Association of Maternal and Child Health Programs, 29 pp.

Annotation: This presentation provides an overview of the Equitable Evaluation Framework, which aims to shift evaluation processes from those defined by traditional power structures to ones centered on participant ownership and equity. It explores key principles including how evaluation work should contribute to equity, be designed with multicultural validity, and address critical questions about systemic inequities. The authors challenge conventional evaluation "orthodoxies" such as foundation-defined success metrics and reliance solely on quantitative methods, while offering telehealth program examples that demonstrate how to implement equity-centered practices. Practical strategies include disaggregating data by race to identify disparities, building community trust before project implementation, selecting evaluators with lived experience and cultural competence, and combining quantitative with qualitative methods to capture nuanced community contexts. The presentation concludes that equity-centered evaluation requires diverse teams, culturally relevant practices, and meaningful community involvement in both development and interpretation.

Presentation Slides Only

Keywords: MCH programs, Evaluation methods, Program evaluation, Health equity

Powers L, Frye M. 2022. Building out your Evaluation Plan: Mar 2022 CELC Training Webinar. [Washington, DC]: Association of Maternal and Child Health Programs, 25 m 38 s. (Training Workshop)

Annotation: In March 2022, AMCHP's Evidence and Implementation team held this training session, delivering a comprehensive presentation on evaluation methodologies specifically tailored for program assessment. The session explores various evaluation plan types while emphasizing strategies to integrate equity principles throughout the evaluation process. Presenters review essential evaluation tools including logic models and aim statements, with particular attention to developing effective evaluation questions through a structured approach. The content also introduces measurement tables as practical instruments for planning and visualizing evaluation activities. The presentation balances theoretical frameworks with practical application, culminating in an interactive evaluation activity that allows participants to apply the concepts discussed. This resource serves as a reference for public health professionals seeking to implement equitable, evidence-based evaluation approaches within their programs.

Link

Keywords: Program evaluation, Race, Assessment tools, Epidemiology, Staff development

Powis L, Krisowaty L. 2022. (Cutting Edge Learning Community) - Moving from Evaluation to Quality Improvement: June 2022 CELC Training Webinar. [Washington, DC]: Association of Maternal and Child Health Programs Innovation Hub, 33 m 47 s. (CELC Quarterly Training)

Annotation: This June 2022 recording features AMCHP's Evidence and Implementation team demonstrating how organizations can leverage evaluation data to drive quality improvement initiatives, with particular emphasis on identifying underlying root causes of issues. The presentation introduces and provides practical demonstrations of two complementary root cause analysis methodologies—the Fishbone Diagram and the 5 Whys technique—showing not only how each works independently but also how they can be effectively used in tandem for comprehensive analysis. Viewers will gain enhanced understanding of the evaluation-improvement connection, appreciate the critical importance of root cause identification in solving organizational challenges, and learn the practical application of these analytical tools through clear explanations and comparative demonstrations.

Link

Keywords: Staff development, MCH programs, Data analysis, Program evaluation, Quality assessment

2022. Fact Sheet: National Mental Health Hotlines. [Washington, DC]: Association of Maternal and Child Health Programs; [Rockville, MD]: Health Resources & Services Administration; [Rockville, MD]: Substance Abuse and Mental Health Services Administration, 1 pp.

Annotation: This document compares two national mental health hotlines: the Maternal Mental Health Hotline (1-833-9-HELP4MOMS) and the 988 National Suicide Prevention Lifeline. The Maternal Mental Health Hotline, launched in May 2022 and funded by HRSA, provides non-crisis support specifically for pregnant and postpartum people with 24/7 service in English and Spanish. The 988 hotline, launched in July 2022 and funded by SAMHSA, serves as a crisis line for anyone experiencing suicidal thoughts or mental health crises, operating through a network of over 200 centers with multiple communication channels. Both services offer language translation and provide referrals to local resources.

Link

Keywords: Maternal mental health, Hotlines, Mental health services

2022. FY23 Friends of Title V Maternal and Child Health Services Block Grant Sign-on Letter. Washington, DC: Association of Maternal and Child Health Programs, 4 pp.

Annotation: This April 2022 letter from the FRIENDS of the Title V Maternal and Child Health Services Program, signed by over 100 healthcare organizations, urges Congressional appropriations leaders to allocate $1 billion for the Title V MCH Block Grant in FY2023. The letter emphasizes the grant's critical role in serving 60 million people in FY2020, including 93% of pregnant people and 98% of infants nationwide, highlighting its importance in reducing maternal and infant mortality, advancing health equity, and supporting COVID-19 response efforts. The signatories argue that increased funding is needed to rebuild and strengthen maternal and child health infrastructure following pandemic-related strains.

Link

Keywords: MCH programs, Block grants, Government funding

Leahy M. 2022. How to Plan an Accessible Virtual Event. [Washington, DC]: Association of Maternal and Child Health Programs, 20 m.

Annotation: This 20-minute course, "How to Plan an Accessible Virtual Event," was developed by AMCHP's Maura Leahy as part of her CDC E-Learning Institute Fellowship, employing evidence-based approaches in e-learning, adult learning theory, and instructional design. While created for Maternal & Child Health professionals, the course offers valuable insights for all public health practitioners seeking to enhance virtual event accessibility. Participants require a free CDC TRAIN account and will learn to: identify and replace complex terminology with plain language in promotional materials; master three key components of effective alternative text for images; and understand the process for securing live captioning services for virtual events.

Link

Keywords: MCH programs, Title V programs, Decision making skills, MCH training programs, Training materials

Association of Maternal and Child Health Programs; American College of Obstetricians and Gynecologists; the Louisiana Department of Health; Florida Department of Health. 2022. Implementing the “Care for pregnant and postpartum people with substance use disorder” patient safety bundle: Opportunities for state public health. Washington, DC: Association of Maternal and Child Health Programs ,

Annotation: In this webinar, subject matter experts present on 1) the Alliance for Innovation on Maternal Health’s (AIM) patient safety bundle for perinatal people with substance use disorders, and 2) the role of public health agencies, perinatal quality collaboratives, and community organizations in supporting the implementation of the AIM bundle in their state. Speakers include representatives from the American College of Obstetricians and Gynecologists (ACOG), the Louisiana Department of Health, and the Florida Department of Health.

Link

Keywords: Guidelines, Perinatal care, Postpartum women, Pregnant women, Preventive health services, Public health , Quality assurance, Safety, State initiatives, Substance abusing pregnant women, Substance use disorders

Lloyd S, Ushry A, Ladley A, Reeves L. . 2022. Implementing the “Care for Pregnant and Postpartum People with Substance Use Disorder” Patient Safety Bundle: Opportunities for State Public Health. [Arlington, VA]: Association of State and Territorial Health Officials; [Washington, DC]: Association of Maternal and Child Health Programs, 57 m 08 s.

Annotation: This April 21, 2022 recording features subject matter experts from ACOG and the Louisiana and Florida Departments of Health presenting on the Alliance for Innovation on Maternal Health's (AIM) patient safety bundle designed specifically for perinatal individuals with substance use disorders. The webinar comprehensively outlines the critical implementation roles of public health agencies, perinatal quality collaboratives, and community organizations while introducing the bundle's framework and integration with maternal mental health initiatives. Through practical case studies from Florida and Louisiana, presenters share valuable implementation processes, best practices, and lessons learned for effectively deploying the safety bundle within hospital systems. The session particularly emphasizes strategies for establishing meaningful partnerships with community-rooted organizations to enhance implementation success, offering attendees concrete guidance on adapting these evidence-based approaches to address substance use disorders among perinatal populations in their respective states.

Link

Keywords: Mental health, MCH programs, Louisiana, Florida, Public health, Perinatal health, Perinatal addiction, Substance abuse, Staff development, Pregnant women, Postpartum women,

Levinson D, McKeon R, Draper J. 2022. Making the Call for MCH: Exploring the Maternal Mental Health Hotline and the 988 Crisis Lifeline. [Washington, DC]: Association of Maternal and Child Health Programs; [Arlington, VA]: Association of State and Territorial Health Officials, 58 m 25 s.

Annotation: In this virtual learning session hosted by AMCHP and ASTHO, attendees explored critical mental health resources designed to support maternal and child health populations, focusing on the National Maternal Mental Health Hotline and the 988 Suicide Prevention Crisis Lifeline. The panel featured prominent experts including Dr. John Draper from Vibrant Emotional Health who oversees the National Suicide Prevention Lifeline, Dawn Levinson representing the Maternal and Child Health Bureau as their Behavioral Health Lead, and Richard McKeon who heads SAMHSA's Suicide Prevention Branch. The session highlighted how these national crisis response systems operate, examined their unique approaches to addressing mental health needs among different populations, and presented strategic opportunities for state and territorial public health agencies to form partnerships that enhance resource promotion, improve service coordination, and ultimately strengthen mental health support systems for mothers, children, and families throughout their communities. Downloadable materials includ slide deck, speaker biographies, and handouts.

Link

Keywords: Maternal mental health, Hotlines, Mental health services, Children', s mental health, Suicide prevention, Partnerships

Frew B, White K (Facilitator), McVicar S, Stone S, Kirschner K, Culpepper B, Messersmith J. 2022. May 12 Virtual Round Table: Taking EHDI Telehealth to the Next Level - Opportunities for State Public Health. [Washington, DC]: Association of Maternal and Child Health Programs, 1 h 16 m 21 s. (Virtual Round Table)

Annotation: This videorecording documents a multi-state roundtable discussion on telehealth applications for individuals with hearing impairments, drawing participation from 31 states and territories. The presenters—McVicar (Utah), Stone (Massachusetts), Kirschner (Montana), Culpepper (Georgia), and Messersmith (South Dakota)—share diverse perspectives on teleaudiology implementation within Early Hearing Detection and Intervention (EHDI) programs, including universal newborn screening initiatives. Their presentations highlight both successes and persistent challenges: while telehealth expands access to specialized audiological services, barriers remain including geographic isolation, transportation costs, equipment accessibility, parental hesitation to engage with public health systems, and technical limitations for certain procedures like cochlear implant testing. The interactive format allowed participants to pose questions directly to presenters, and concluded with the sharing of a comprehensive resource website to support ongoing telehealth advancement for hearing-impaired populations across diverse regional contexts.

Link

Keywords: Telemedicine, Deafness, Developmental screening, Children with special health care needs, Youth with special health care needs, Utah, Massachusetts, Montana, Family support services, Georgia, South Dakota, Staff development

Clark C, Frye M, Salley C. 2022. May 17 Virtual Round Table: Building Equity-Centered Evaluations. [Washington, DC]: Association of Maternal and Child Health Programs, 35 m 56 s.

Annotation: This presentation on building equity-centered evaluations from May 2022, was delivered by the AMCHP Equity, Epidemiology, & Evaluation Team. It introduces the Equitable Evaluation Framework, which aims to shift evaluation processes away from colonialism and White Supremacy toward participant ownership and equity. The presentation critiques traditional evaluation "orthodoxies" that center foundations and evaluators rather than communities, and provides practical examples through telehealth case studies. Key principles discussed include advancing equity through evaluation, ensuring multi-cultural validity and participant ownership, and examining how strategies affect different populations and systemic drivers of inequity. The material emphasizes the importance of building trust before implementation, selecting evaluators based on lived experience and cultural competence rather than just traditional credentials, and expanding definitions of credible evidence beyond just quantitative data and experimental research. Throughout, it advocates for including affected communities in evaluation development and interpretation, using culturally relevant practices, and examining fine-grained differences in how interventions impact different groups.

Link

Keywords: Telemedicine, Epidemiology, Race, Program evaluation, Staff development

Kennedy S, Lindow-Davies C. [Note: Sara Kennedy helped create the presentation but was not able to help present during this recording.]. 2022. May 31 Virtual Round Table: Working with Families Virtually [Title on opening slide: Supporting Families Virtually]. [Washington, DC]: Association of Maternal and Child Health Programs, 23 m 25 s.

Annotation: This May 31, 2022 recording features Candace Lindow-Davies, Outreach Director for Hands & Voices, detailing the organization's nationwide virtual family engagement initiatives within Early Hearing Detection and Intervention (EHDI) programs, showcasing adaptations made during and after the pandemic. Lindow-Davies comprehensively outlines their multilingual resources, including English and Spanish literature, printable Family Activity Plans for home use, and various digital tools and applications designed to support families with children who are deaf or hard of hearing. The presentation highlights a robust calendar of live virtual opportunities specifically developed to cultivate parent leadership skills, alongside ongoing virtual support systems and events that maintain community connections while addressing the unique needs of these families through accessible, remote engagement strategies that evolved from pandemic-era necessity into sustainable programming models. The slides from the presentation are available for download.

Link

Keywords: Telemedicine, Family support services, Disaster planning, Deafness, Hearing tests, Hearing screening

Association of Maternal and Child Health Programs. 2022. MCH lead poisoning prevention toolkit. Washington, DC: Association of Maternal and Child Health Programs, multiple items.

Annotation: This toolkit compiles educational, advocacy, and planning resources for public health agencies working to prevent and mitigate maternal and child lead poisoning. The web site is divided into focus areas: clinical setting, housing, childcare and schooling, community, products and industry, and family engagement and partnership. Each focus area contains strategies and action steps. There are also case studies and a full index of resources.

Program Website

Keywords: Child health, Lead poisoning, Prevention programs

Chaudhry A, Stephens J, Drane S, Patton E. 2022. Preparing for the Public Health Emergency Unwinding: The Role of MCH Populations. [Washington, DC]: Association of Maternal and Child Health Programs, 56 m.

Annotation: Recorded on October 7, 2022, this webinar discusses the unwinding of the COVID-19 public health emergency. Participants include representatives from AMCHP, the Maternal and Child Health Bureau, the Centers for Medicare and Medicaid Services, and the Kentucky Division of Maternal and Child Health (Medicaid and Title V Services). They discuss how registration for Medicaid and CHIP (Children's Health Insurance Program) increased during the pandemic, and what states have to look forward to when federal funding ends, including increased applications to state health programs. The Kentucky representatives present their plans for dealing with the change in funding and how they will meet the demands, including increased caseloads and the renewal process. Also incuded is a list of resources available for Maternal and Child Advocates from AMCHP.

Link

Keywords: Telemedicine, Covid-19, Kentucky, Medicaid, MCH programs, State Children', s Health Insurance Program, Disaster planning, Title V programs,

Association of Maternal and Child Health Programs . 2022. Promoting the 2023 ACA marketplace open enrollment: The role of state Title V programs. Washington, DC: Association of Maternal and Child Health Programs, 1 p.

Annotation: This fact sheet describes the ways in which Title V maternal and child health programs can promote enrollment during the Affordable Care Act (ACA) open season. A companion fact sheet for families explains when and how to enroll in the Health Insurance Marketplace to receive affordable coverage (see unique #39524).

Link

Keywords: Access to health care, Enrollment, Health insurance: Children', Health promotion , Title V programs, s Health Insurance Program

Powis L. . 2022. Shifting Power in Practice: Strategies for Centering People with Lived Experience When Making Evidence-Based Decisions. [Washington, DC]: Association of Maternal and Child Health Programs, 30 m.

Annotation: This 30-minute quick learn course, "Shifting Power in Practice: Strategies for Centering People with Lived Experience When Making Evidence-Based Decisions," was developed by AMCHP staff member Laura Powis as part of her CDC E-Learning Institute Fellowship. Grounded in best practices of e-learning, adult learning theory, and instructional design, the course helps participants understand the integration of contextual, experiential, and research evidence when evaluating practice effectiveness and appropriateness for specific populations. While primarily designed for Title V professionals, the content is equally valuable for local MCH professionals and advocates working to improve maternal and child health outcomes. The course strengthens critical thinking skills for comprehensive evidence consideration through an equity lens and introduces a practical Six Considerations Planning Tool that participants apply to a case study, ensuring people with lived experience remain central to evidence-based decision-making processes. The course is accessible through a free CDC TRAIN account, reflecting AMCHP's commitment to developing capacity among MCH professionals to implement more inclusive and equitable approaches to program planning and evaluation.

Link

Keywords: MCH programs, Title V programs, Decision making skills, MCH training programs, Training materials

Chaudhry A, Aarons-Mele M. 2022. Social Media Training for MCH Professionals. [Washington, DC]: Association of Maternal and Child Health Programs, 59 m 04 s; 58 m 44 s.

Annotation: These training sessions for Maternal and Child Health (MCH) professionals, recorded on February 15th and 22nd, 2022, offer a comprehensive guide to leveraging social media effectively. Presented by an expert with experience working with high-profile clients like Malala and President Obama, the training is divided into two sessions: "Platforms for a Purpose" and "Campaigns that Count." The first session covers developing marketing strategies, understanding audience relationships, selecting appropriate platforms based on demographics, influencer marketing, and case studies, concluding with an extensive Q&A. The second session builds on this foundation, addressing website development, campaign creation, brand voice establishment, resource allocation across multiple channels, strategic platform selection with posting schedules, and metrics for measuring success, again ending with audience questions. Together, these sessions provide practical guidance for MCH professionals to effectively integrate social media into their programmatic and policy initiatives.

Link

Keywords: Social media [suggested keyword], Administrative policies, Title V programs, Communication, Marketing

2022. State Harm Reduction Strategies: Improving Outcomes for Reproductive-Aged Women Who Use Substances. [Washington, DC]: Association of Maternal and Child Health Programs; [Washington, DC]: National Association of State and Alcohol Drug Abuse Directors ,

Annotation: This website presents a comprehensive overview of state harm reduction strategies aimed at improving outcomes for reproductive-aged women who use substances, developed as a collaborative project between AMCHP and NASADAD (National Association of State and Alcohol Drug Abuse Directors). The site outlines the critical context of substance use disorders (SUDs) in the United States, noting that women comprise 40% of individuals with SUDs and are most vulnerable during their reproductive years. It explains harm reduction approaches, which include practices like naloxone distribution, SBIRT (Screening, Brief Intervention and Referral to Treatment), medication-assisted treatment, and syringe services programs. The website addresses COVID-19's impact on harm reduction services and provides an extensive glossary of relevant terms and acronyms. It also includes state-by-state profiles highlighting successful collaborations between state Maternal and Child Health programs and alcohol and drug abuse agencies, with particular attention to evidence-based practices and replicable strategies for future implementation.

Link

Keywords: MCH programs, Title V programs, Mental health, Substance abusing mothers, Substance abusing pregnant women, Substance abuse prevention programs, Alabama, Colorado, Connecticut, Florida, Iowa, Nevada, New Jersey, Pennsylvania, Rhode Island, Vermont

Association of Maternal and Child Health Programs. 2022. The Unwinding of the COVID-19 public health emergency: Opportunities for Title V programs to protect coverage for children and families during the Medicaid redetermination process. Washington, DC: Association of Maternal and Child Health Programs, 5 pp.

Annotation: This fact sheet explains how Title V maternal and child health (MCH) programs can actively engage state Medicaid agencies and work with state and local partners to ensure that Medicaid-eligible recipients continue to receive adequate health coverage once the COVID-19 federal public health emergency (PHE) funding ceases. The fact sheet focuses on the challenges posed by the required redetermination of Medicaid eligibility; the staff-intensive enrollment process; and the number of at-risk recipients whose job status changed during the pandemic.

Link

Keywords: Access to care, Communicable diseases, Emergencies, Enrollment, Federal programs, Health Insurance, Medicaid, Public health, Title V, Virus diseases

Chaudhry A, Alker J, Brooks T, Carano S. 2022. Unwinding the COVID-19 Public Health Emergency: Implications for Medicaid Coverage for MCH. [Washington, DC]: Association of Maternal and Child Health Programs, 58 m 10 s.

Annotation: On March 2nd, 2022, AMCHP hosted a panel discussion featuring experts from Georgetown University's Center for Children and Families (CCF) addressing critical challenges surrounding the anticipated expiration of COVID-19 Medicaid continuous eligibility provisions. This recording of the session explores the implications of this policy change for maternal and child health populations and outlines strategic opportunities for state advocates to preserve the significant Medicaid coverage gains achieved during the pandemic. Panelists engage in timely analysis regarding the potential duration of the public health emergency declaration, its relationship to continuous eligibility requirements, and corresponding impacts on beneficiary coverage. The discussion provides valuable context and practical advocacy approaches for stakeholders working to maintain healthcare access for vulnerable populations during the transition away from pandemic-era coverage protections, offering insights particularly relevant to maternal and child health professionals seeking to mitigate coverage disruptions.

Link

Keywords: Covid 19, Medicaid, MCH programs, Title V programs, Staff development

Powis L, Frye M. 2022. Using Evidence to Drive Incremental Change: Sept 2022 CELC Training Webinar. [Washington, DC]: Association of Maternal and Child Health Programs, 36 m 05 s.

Annotation: In September 2022, AMCHP's Evidence and Implementation team reviewed the components of process evaluation and introduces the stages of practice implementation. In this video presentation, the team also demonstrates the uses of a PDSA (Plan Do Study Act) cycle in developing an implementation plan.

Link

Keywords: Epidemiology, Staff development, Process evaluation, Program evaluation

Kwong MW. 2022. Virtual Round Table: National, State & Territorial Telehealth Policy & Infrastructure. [Washington, DC]: Association of Maternal and Child Health Programs, 36 m 09 s. (Virtual Round Table)

Annotation: In March 2022, the Center for Connected Health Policy (CCHP) held this session on telehealth policy updates, focusing on changes made during COVID-19 and beyond. It details Medicare and Medicaid policy changes, including waivers for geographic limitations, expanded provider lists, and additional service codes. The presentation outlines the 2022 Physician Fee Schedule updates, which include significant changes to mental health services via telehealth, Remote Therapeutic Monitoring codes, and other modifications. It also covers state-level policies, noting that as of Fall 2021, all 50 states and DC reimburse for live video telehealth in Medicaid, 22 states reimburse for store-and-forward, 28 states cover remote patient monitoring, and 22 states allow audio-only services. Additionally, it mentions that 43 states and DC have private payer telehealth laws, with 20 states having payment parity requirements. Slides from the presentation are available for download.

Link

Keywords: Telemedicine, Health policy, Disaster planning, Pandemics, Covid-19

White K, Hoffman J, Messersmith J. 2022. Virtual Round Table: Taking EHDI Telehealth to the Next Level. [Washington, DC]: Association of Maternal and Child Health Programs, 35 m 41 s.

Annotation: This March 24, 2022 recording features presentations from Dr. Karl White, Director of the National Center for Hearing Assessment and Management (NCHAM), and Dr. Jessica Messersmith, Professor of Communicative Sciences and Disorders at the University of South Dakota, examining post-COVID advancements in tele-audiology technology and implementation. White and colleague Hoffman outline NCHAM's comprehensive tele-audiology support systems, including planning tools, training programs, and technical assistance provided via Zoom, while Messersmith details specialized applications for pediatric diagnosis utilizing a hub-and-spoke service model where central facilities with specialized expertise support satellite locations staffed by technicians. The presentation covers practical considerations for site selection and setup, including necessary equipment and software specifications, while frankly addressing rural healthcare barriers in South Dakota such as poverty, geographic isolation, and workforce shortages of qualified audiologists. The recording concludes by highlighting available training resources for healthcare providers seeking to establish or expand tele-audiology services in underserved communities.

Link

Keywords: Telemedicine, Deafness, Developmental screening, Children with special health care needs, Youth with special health care needs, Infant health, Infants with special health care needs, South Dakota, Utah

Association of Maternal and Child Health Programs. 2022. Virtual round table: Building equity-centered evaluations. Washington, DC: Association of Maternal and Child Health Programs,

Annotation: This webinar features three presenters who describe the Equitable Evaluation Framework and explain how equitable evaluation activities can be applied to telehealth work. Included are telehealth examples based on equitable evaluation. The recording is from the virtual roundtable presented on May 17, 2022 by the Association of Maternal and Child Health Program's Equity, Epidemiology, & Evaluation Team,

Keywords: Cultural sensitivity, Evaluation , Health equity, Telehealth, Telemedicine

Association of Maternal and Child Health Programs. 2022. Virtual round table: Evaluating telehealth with an equity lens. Washington, DC: Association of Maternal and Child Health Programs,

Annotation: During this 20 minute virtual round table, presenters from the Association of Maternal and Child Health (AMCHP) discuss the role that telehealth played in addressing equity and access to care during the pandemic and how an equity lens can be used to evaluate telehealth practices moving forward.

Keywords: Access to care, Evaluation , Health equity, Racial factors, Telehealth, Telemedicine

Dye T, Levinson D, McKeon R, Draper J. 2022. Writing Workshop for MCH Journal Supplement on Public Health Approaches to Perinatal Substance Use. [Washington, DC]: Association of Maternal and Child Health Programs; [Arlington, VA]: Association of State and Territorial Health Officials, 1 h 02 m 32 s.

Annotation: In this Writing and Publishing Workshop held on July 22, Dr. Timothy Dye, Editor-in-Chief of the Maternal and Child Health Journal, provided comprehensive guidance for authors preparing submissions for the upcoming supplement on "Public Health Approaches to Perinatal Substance Use," a collaborative initiative between AMCHP and ASTHO. The session equipped participants with practical writing strategies and publication guidelines, explored various manuscript formats through examples from previous issues, and detailed the peer review response process essential for successful publication. Dr. Dye emphasized the importance of effective scientific storytelling techniques to enhance manuscript impact, offering participants valuable insights into structuring compelling narratives that effectively communicate research findings while meeting the journal's editorial standards. This workshop served as a critical resource for researchers and practitioners working to contribute to the scholarly discourse on perinatal substance use interventions through public health frameworks.

Link

Keywords: Suicide prevention, Federal MCH services, Perinatal depression, Perinatal services, Mental health services

Moss H, Bussanich P. 2021. 2021 Autism Acceptance Month Coffee Talk Presentation Recording: Transition and Employment [Other title: Transition and Employment: Neurodiversity at Work]. [Washington, DC]: Association of Maternal and Child Health Programs, SPHARC, 40 m 22 s. (SPHARC Coffee Talk)

Annotation: In April 2021, Haley Moss, Esq., gave a Coffee Talk focusing on autism employment and transition. The presentation covers key topics including autism statistics (1 in 54 children, 2.2% of adult population), the business benefits of neurodiversity (citing SAP's $40 million cost-saving solution and 28% higher revenues for inclusive companies), employment challenges (including hiring biases and communication barriers), disclosure strategies (timing options and resources), interview preparation (accommodations and challenges), and self-advocacy in the workplace. The content emphasizes creating inclusive workplace cultures, practical accommodation strategies (noting most cost less than $500), and the importance of neurodiversity in leadership positions, with a strong focus on strengths-based approaches and the need for systemic change from top-down to create truly inclusive work environments.

Link

Keywords: Autism, Work force, Staff development

Brown LXZ, Hovarth Williams J, Bussanich P. 2021. 2021 Autism Acceptance Month Coffee Talk Recording: Disability, Gender, and Race [Title on resource: SPHARK Coffee Talk #2: Intersection of Disability, Gender and Race]. [Washington, DC]: Association of Maternal and Child Health Programs, SPHARC, 1 h 03 m 23 s. (SPHARC Coffee Talk)

Annotation: This transcript documents a coffee talk discussion hosted by AMCHP's State Public Health Autism Resource Center, featuring speakers Lydia X. Z. Brown and Dr. Jessica Horvath Williams discussing the intersections of disability, race, and gender oppression. The speakers explore how ableism operates as a foundational system of oppression that intersects with and reinforces other forms of marginalization, particularly focusing on how disability is used to dehumanize various marginalized groups. They delve into complex topics including respectability politics, privilege, guilt, and the responsibilities of those with relative privilege in advocacy spaces. The discussion emphasizes the importance of understanding how environmental racism and systemic oppression create and exacerbate disability in marginalized communities, while also addressing how to navigate spaces and conversations about marginalization when one holds both privileged and marginalized identities, concluding with guidance on appropriate ways to redirect opportunities to more representative voices within affected communities.

Link

Keywords: Race, Gender, Autism, Developmental disabilities,

Wood K, Olson K, Sharpe J, Fleck M, Hine J, Bussanich P (facilitator). 2021. 2021 Autism Acceptance Month Coffee Talk Recording: Reaching Families Through Telemedicine [Title on resource: SPHARC Coffee Talk #1: Reaching Families Through Telemedicine: Vanderbilt's Early Assessment, Intervention, and Part C Mentorship Program for ASD]. [Washington, DC]: Association of Maternal and Child Health Programs, SPHARC; Nashville, TN: Vanderbilt University Medical Center, Vanderbilt Kennedy Center, 1 h 00 m 18 s. (SPHARC Coffee Talk)

Annotation: One of a series of four Coffee Talks given in April 2021, this presentation discusses Vanderbilt's TRIAD (Treatment and Research Institute for Autism Spectrum Disorders) program. The presentation covers the implementation and evaluation of telemedicine services for autism assessment and intervention, particularly focusing on reaching underserved rural communities. It outlines the program's development from 2014-2019, including their tele-diagnostic consultation service model, the TELE-ASD-PEDS assessment tool (Telemedicine-based ASD Assessment in Toddlers), and outcome data comparing in-person, hybrid, and telemedicine-only service delivery methods. Data from a satisfaction survey compares effectiveness across all delivery methods in terms of treatment fidelity, communication improvements, the discussion covers the benefits of telemedicine services, such as reduced wait times, increased accessibility, and cost savings for families. The program's TEAM Opp initiative specifically focuses on building capacity in rural and under-resourced areas by partnering with local agencies and training developmental therapists, with satisfaction surveys indicating strong positive feedback from both providers and caregivers regarding the telehealth services.

Link

Keywords: Autism, Early intervention, Telemedicine, Assessment, Underserved communities, Tennessee, Mentors

Association of Maternal and Child Health Programs . 2021. Addressing mental health in BIPOC communities: Key cultural considerations for MCH. Washington, DC: Association of Maternal and Child Health Programs,

Annotation: This webinar focuses on maternal mental health within a cultural context, highlighting factors to consider when addressing the mental health needs of Black, Indigenous, and People of Color (BIPOC) in underserved communities. Culturally-sensitive approaches to MCH services that address postpartum depression and other mental health concerns are discussed by a variety of panelists during the hour-long video presentation.

Link

Keywords: Access to care, Cultural barriers, Cultural factors, Health equity, MCH services, Maternal health, Mental health, Postpartum depression, Racial factors, Risk factors, Service delivery

Association of Maternal and Child Health Programs. 2021. AMCHP family engagement & partnership guiding principles & values. Washington, DC: Association of Maternal and Child Health Programs, 1 pp.

Annotation: This document outlines the Association of Maternal and Child Health Programs' (AMCHP's) guiding principles and values for family engagement and partnership, structured in two main sections. The first section describes key principles about family leaders, recognizing them as essential partners who bring unique expertise, visionary perspectives, and the ability to question the status quo while looking beyond their own family's experiences. The second section details AMCHP's responsibilities in fostering authentic partnerships, emphasizing the organization's commitment to respectful listening, mutual respect, open communication, comprehensive support (including training and accommodations), and the integration of family leaders in decision-making at program and policy levels.

Link

Keywords: MCH programs, Family centered health care, Family centered services, Collaboration, Social values, Family engagement

Taft K, Webber D, Garrett K, Whitaker T, Wenger C, Chodron G, Winters I. 2021. Assessing and Addressing Priorities and Inequities in Developmental Monitoring and Early Identification: Strategies from the Act Early COVID-19 Response Efforts. [Washington, DC]: Association of Maternal and Child Health Programs, 1 h 00 m 24 s.

Annotation: This workshop focuses on assessing current early childhood systems to identify both strengths and gaps in early developmental screening processes, establishing key priorities within systems and programs to ensure equitable health outcomes for all children, and providing practical applications of "Learn the Signs. Act Early." (LTSAE) resources that participants can implement in their work. Participants will gain valuable insights into improving developmental monitoring practices, addressing systemic barriers to early identification, and implementing evidence-based strategies that promote timely interventions for children with developmental concerns, ultimately working toward a more responsive and effective early childhood system that supports optimal development for all children.

Link

Powis L. 2021. Big P little P policy overview. [Washington, DC]: Association of Maternal and Child Health Programs, Innovation Hub,

Annotation: This video explains the differences between big P and little p policy in public health settings. It discusses how big P policy refers to government-enacted policies at federal, state, and local levels through legislative, judicial, or executive branches, while little p policy encompasses policies developed outside government entities, including workplace policies, nonprofit guidelines, and program implementation protocols. The video provides interactive examples for viewers to distinguish between the two types and highlights the role of Title V programs in influencing policy through advocacy, development, implementation, and stakeholder engagement. It also references the CDC's policy process as a systematic approach to addressing public health problems and encourages public health professionals to recognize their participation in policy work regardless of their formal role. Length: 3 minutes, 7 seconds.

Link

Keywords: State policies, Health policies, Administrative policies, Guidelines, Title V programs

Chaudhry A, Collins S, Northrup A. 2021. Coffee chat with AMCHP policy experts: Opportunities for maternal health with a new administration and congress. [Washington, DC]: Association of Maternal and Child Health Programs, 49 m 57 s.

Annotation: In this informal Q&A coffee chat format, AMCHP policy experts discuss key developments in national health policy following the administrative transition, with particular focus on potential changes to the Affordable Care Act and Medicaid. A significant portion of the discussion centers on efforts to extend postpartum Medicaid coverage from 60 days to one year through the American Rescue Plan's state option, which would require state plan amendments for implementation. The experts also address critical issues of racial inequities in maternal and child healthcare delivery and examine the implications of the Anti-Racism in Public Health Act, offering insights into the future landscape of maternal health policy from 2021 onward.

Link

Keywords: Health policies, Social policies, Medicaid, Maternal health, Children', s health, Health insurance programs, Race

Powers L, Krisowaty L. 2021. Describing your practice to inform evaluation planning: Dec 2021 CELC Training Webinar. [Washington, DC]: Association of Maternal and Child Health Programs,

Annotation: This recording features the Association of Maternal and Child Health Programs' Evidence and Implementation Team discussing the critical role of clearly defined practices in successful evaluation and implementation planning. The presentation outlines fundamental tools for practice description, specifically focusing on aim statements and logic models, and demonstrates how these elements inform evaluation questions. it follows a structured agenda that begins with a topic introduction, provides detailed overviews of aim statements and logic models, includes a practical case study with breakout discussions, and concludes by exploring how these planning tools can be effectively translated into evaluation questions. Length: 48 miniutes, 53 seconds.

Link

Keywords: Perinatal health, Staff development, MCH programs, Program evaluation, Goals, Epidemiology

Powis L, Zink A, Thomas C, Gellin B. 2021. Earning trust and building vaccine confidence in Alaska. [Washington, DC]: Association of Maternal and Child Health Programs,

Annotation: In this recording from April 2021, AMCHP's Global Health Workgroup provides information on the growth of vaccine hesitancy as it pertains to the COVID-19 pandemic and introduces guest presenters from global and domestic organizations that address vaccine hesitancy in their practice. Guest presenters provide context and examples from their COVID-19 responses and explain their strategies in combating vaccine hesitancy in their communities. Special guests include Anne Zink, MD, FACEP, Chief Medical Officer for the State of Alaska; Cecelia Thomas, JD, Senior Government Relations Manager, Trust for America's Health; Bruce Gellin, MD, MPH, President, Global Immunization, Sabin Vaccine Institute. Length: 1 hour, 17 minutes.

Link

Keywords: Global health, Covid-19, Alaska, Vaccines, Immunization programs

[Association of Maternal and Child Health Programs]. 2021. Emergency preparedness and response: Maternal and infant health resources. [Washington, DC: Association of Maternal and Child Health Programs], 3 pp.

Annotation: This resource guide presents emergency preparedness and response materials focused on maternal and infant health. It provides links to tools, guidance documents, and training opportunities for public health professionals addressing the needs of pregnant women and infants during disasters. The guide is organized into two main sections: a collection of toolkits and resources addressing topics such as post-disaster surveillance indicators, pregnancy estimation, and contraception access during emergencies; and a comprehensive listing of trainings and webinars from organizations including CDC, FEMA, EPA, and academic institutions. Each training entry includes information on source agency, content description, duration, and continuing education availability. The document is intended for participants in the Association of Maternal & Child Health Programs (AMCHP) Action Learning Collaborative and includes resources relevant to various disaster types including hurricanes, wildfires, and public health emergencies.

Link

Keywords: Maternal health, Infant health, Disaster planning, Federal MCH programs, Pregnant women, Postpartum women, Resource materials, Disaster planning, Title V programs,

Powis L. 2021. Evidence informed policy track overview: Sharing your policy work, building the MCH evidence-base. [Washington, DC]: Association of Maternal and Child Health Programs, 9 m 4 s.

Annotation: This video explains the Evidence and Inform Policy Track of the AMCHP MCH Innovations Database, a platform designed to share effective maternal and child health practices and policies. It describes how the database has expanded to include both "big P" and "little p" policies, with submissions evaluated along four dimensions: evidence, equity, relevance, and impact. The video outlines three designation categories—policy development, policy implementation, and policy evaluation—detailing the criteria for each, and provides practical examples to help users determine which track best suits their submission. Benefits of submitting to the database include sharing successes with peers, receiving national recognition, increasing credibility, documenting work, receiving expert feedback, and creating opportunities for technical assistance and future funding. The video concludes by previewing a forthcoming presentation from a state professional about their submission experience.

Link

Keywords: MCH programs, Health policies, Evaluation, Model programs, Title V programs

Association of Maternal and Child Health Programs. 2021. Family delegate guide. [Washington, DC]: Association of Maternal and Child Health Programs, 14 pp.

Annotation: This document outlines AMCHP's guiding principles and values for family engagement and partnership, structured in two main sections. The first section describes key principles about family leaders, recognizing them as essential partners who bring unique expertise, visionary perspectives, and the ability to question the status quo while looking beyond their own family's experiences. The second section details AMCHP's responsibilities in fostering authentic partnerships, emphasizing the organization's commitment to respectful listening, mutual respect, open communication, comprehensive support (including training and accommodations), and the integration of family leaders in decision-making at program and policy levels.

Link

Keywords: Family engagement, Collaboration, MCH programs, Family centered services, Administrative policies, Title V programs

Bailey D, Colburn S, Farley R. 2021. Family representatives seats on AMCHP Board of Directors [Set of 3 videos that run consecutively on YouTube]. [Washington, DC]: Association of Maternal and Child Health Programs,

Annotation: Through a series of three connected video interviews, current and former family representatives on AMCHP's Board of Directors share their experiences serving in these dedicated board positions, which are a key component of AMCHP's commitment to family engagement and partnership. The interviewees discuss their enthusiasm for the role, highlighting both the opportunities they've encountered and the vital importance of incorporating family perspectives at the board level. Their testimonials emphasize how these designated family representative seats ensure that family voices actively contribute to AMCHP's organizational governance and decision-making processes, while also exploring potential ways to further strengthen these partnerships.

Link

Keywords: Family engagement, Collaboration, MCH programs, Family centered services, Administrative policies, Title V programs, Arkansas,

Association of State and Territorial Health Officials; Association of Maternal and Child Health Programs. 2021. Integrating mental and primary care for perinatal people. Washington, DC: Association of Maternal and Child Health Programs,

Annotation: In this video presentation, Dr. Nancy Byatt shares information on MCPAP-- the Massachusetts Child Pscychiatry for Moms program--which provides consultation to health care providers regarding behavioral/mental health and safe medications for pregnant or breastfeeding patients. MCPAP also helps to connect people to support groups and community-based services and serves as an example of behavioral and primary care integration that can be replicated.

Link

Keywords: Behavioral medicine, Depression, Maternal health, Mental health, Model programs, Perinatal health, Primary care, Service integration

Association of Maternal & Child Health Programs, Association of Women’s Health, Obstetric, and Neonatal Nurses, CityMatCH, National Healthy Start Association,National Institute for Children’s Health Quality, Arthur R. James. 2021. Joint organizational commitment to anti-racism and racial equity. Washington, DC: Association of Maternal and Child Health Programs, 4 pp.

Annotation: This is a joint declaration of organizational commitment to antiracism and racial equality by the following five organizations: The Association of Maternal and Child Health Programs (AMCHP), Association of Women's Health, Obstetric and Neonatal Nurses (AWHONN), CityMatCH, National Healthy Start Association (NHSA), and the National Institute for Children's Health Quality (NICHQ). The statement includes background information,foundation principles, and a joint commitment to examine internal organizational processes, promote and influence external work, and develop and release communication in support of antiracism and racial equity.

Keywords: Communication , Health equity, Health promotion, Racial factors, Racism

2021. Learn the signs. Act Early. AMCHP's State Systems Grant: Eight Years in Review. [Washington, DC]: Association of Maternal and Child Health Programs, 17 pp. (Issue Brief)

Annotation: This report discusses the "Learn the Signs. Act Early" (LTSAE) state systems grant program's impact on improving early identification and intervention for children with Autism Spectrum Disorder and developmental disabilities. It examines three key impact areas: 1) engaging stakeholders and strengthening partnerships across 29 states, 2) training and raising awareness among key stakeholders in 28 states, and 3) developing statewide systems improvements. The document provides detailed case studies from multiple states, including Virginia's success in developing diagnostic teams, Mississippi's statewide coordination efforts, and Massachusetts' multilingual outreach program. While states faced challenges like budget constraints and system coordination, the grant program successfully built state capacity for early identification and service coordination through formalized developmental monitoring, stakeholder engagement, and increased awareness among caregivers and providers.

Link

Keywords: MCH programs, State grants, Autism, Developmental screening, Developmental disabilities, Early intervention

Association of Maternal and Child Health Programs; Association of State and Territorial Health Officials. 2021. Maternal mental heallth systems change and IMD exclusion waivers . ,

Annotation: This webinar (1) describes how systems changes in maternal mental health and substance use disorders can lead to increases in diagnosis and treatment rates; (2) identifies opportunities to use the "Medicaid Institutions for Mental Disease (IMD) Exclusion" to improve treatment of mental health and substance use disorders in MCH populations; and (3) discusses the process by which Virginia leveraged a Medicaid IMD waiver to improve access to care and treatment for reproductive age women.

Link

Keywords: Access to care, Maternal health, Medicaid, Mental health, Model programs, Postpartum depression, Substance abuse, Virginia

2021. MCH Workforce Priorities: Thematic Analysis of 2020 Title V Block Grant Applications. [Washington, DC]: Association of Maternal and Child Health Programs, 7 pp.

Annotation: Based on an analysis of 2020 Title V Block Grant applications across 59 jurisdictions, this report outlines three major MCH workforce priorities: 1) advancing anti-oppressive, equity-centered practices through initiatives like implicit bias training and cultural competency development, 2) enhancing data infrastructure and evidence-based decision making capabilities through improved systems and staff training, and 3) strengthening community-based workforce investments through partnerships with healthcare providers, schools, and local organizations. The analysis focuses specifically on professionals directly or contractually supported by federal Title V Block Grant funds and draws from multiple sections of the grant applications, including Federal Title V Funds, MCH Success Stories, Jurisdiction Overview, Workforce Development, and Technical Assistance.

Link

Keywords: MCH programs, Title V programs, Block grants, Grants management, Proposal writing

Association of Maternal and Child Health Programs; Georgia Health Policy Center. 2021. Medicaid options for states during COVID-19: Considerations for children and youth with special health care needs. Washington, DC: Association of Maternal and Child Health Programs,

Annotation: This fact sheet explores Medicaid policy options for states to meet the needs of children and youth with special health care eneds (CYSHCN) during the COVID-19 public health emergency (PHE) and discusses how future rollbacks of PHE modifications may affect CYSHCN populations.

Link

Keywords: Adolescents with special health care needs, Children with special health care needs, Children', Communicable diseases, Emergencies, Medicaid, Policy development, State health insurance programs, Virus diseases, Youth, s health insurance program

Association of Maternal and Child Health Programs . 2021. National Performance Measure (NPM) Implementation Toolkits. Washington, DC: Association of Maternal and Child Health Programs,

Annotation: This series of toolkits provides specific evidence-based practices, reports, publications, and resources that can be adapted and used by maternal and child health (MCH) professionals. Each toolkit focuses on a specific Title V National Performance Measure (NPM), including NPM 1 Well woman visit, NPM 2 Low-risk cesarean delivery, NPM 3 Perinatal regionalization, NPM 4 Breastfeeding, NPM 5 Safe sleep, NPM 6 Developmental screening, NPM 7 Injury prevention, NPM 8 Physical activity, NPM 9 Bullying, NPM 10 Adolescent well visit, NPM 11 Medical home, NPM 12 Transition, NPM 13 Preventative dental visit, NPM 14 Smoking cessation, and NPM 15 Adequate insurance. Each toolkit includes evidence-informed strategies that Title V programs can use to address their MCH priorities.

Link

Keywords: Measures, Resources for professionals , State MCH programs, Title V programs

Gonzales J. 2021. New Mexico evidence-informed policy track submission. [Washington, DC]: Association of Maternal and Child Health Programs, Innovation Hub,

Annotation: This video details New Mexico's journey in developing comprehensive policies for substance-exposed newborns, specifically highlighting how the state worked to align with the 2016 Comprehensive Addiction and Recovery Act (CARA)'s amendments to the Child Abuse Prevention and Treatment Act (CAPTA). The process culminated in the 2019 passage of HB230, which mandates hospitals to create Plans of Care for affected infants and families, with the Children, Youth and Families Department (CYFD) providing guidance to hospitals, insurers, and other stakeholders. Length: 8 minutes, 25 seconds.

Link

Keywords: New Mexico, Patient care planning, Substance abusing pregnant women, Substance exposed infants, Substance abusing women, State policies, Evaluation, Title V programs

Association of Maternal and Child Health Programs. 2021. Perinatal cannabis use in the era of increasing legalization: Considerations for state MCH programs. [Washington, DC]: Association of Maternal and Child Health Programs, 28 pp.

Annotation: This report synthesizes the challenges faced by Maternal and Child Health (MCH) programs in addressing perinatal cannabis use, particularly as legalization expands across jurisdictions. The report highlights multiple intersecting issues, including widespread misinformation, growing industry influence, pandemic-related budget limitations, and racial disparities in both substance use reporting and criminalization. While emphasizing MCH programs' crucial role in tackling these challenges through educational initiatives, data surveillance, and policy development, it strongly advocates for non-punitive approaches that maintain family unity. The report concludes with a comprehensive resource compilation, categorized by state and resource type, encompassing toolkits, educational materials for various audiences, public health campaign materials, data resources, and policy guidelines, with many resources available in multiple languages to support equitable and inclusive approaches to addressing perinatal cannabis use.

Link

Keywords: Marijuana, Perinatal health, MCH programs, Mental health, Infant health, Substance using mothers

Association of Maternal and Child Health Programs . 2021. Perinatal cannabis use in the era of increasing legalization: Considerations for state MCH programs. Washington, DC: Association of Maternal and Child Health Programs , 28 pp.

Annotation: This issue brief is a call to action for maternal and child health (MCH) professionals to be leaders in designing and implementing public health approaches to minimize the potential harms of perinatal cannabis (marijuana) use. The brief describes trends in Cannabis use among pregnant people, addresses the changing policy landscape, and discusses the racial implications of criminalizing the use of drugs among pregnant people and mothers. State MCH program approaches to help prevent eprinatal cannabis use are included.

Link

Keywords: Cannabis, Illicit drugs, Marijuana, Maternal health, Models, Perinatal care, Pregnancy, Prevention, Substance use

Corona A, Leahy M, Taft K. 2021. Roadmap of Collaboration among Title V, Home Visiting, and Early Childhood Systems Programs: Accelerating Improvements in Early Childhood Outcomes. [Washington, DC]: Association of Maternal and Child Health Programs, 44 pp.

Annotation: This report outlines AMCHP's framework for collaboration among Title V, Maternal, Infant, and Early Childhood Home Visiting (MIECHV), and Early Childhood Systems (ECS) programs, which was developed with HRSA MCHB and updated in 2021-2023. The resource includes analysis of facilitators and barriers to collaboration, a refined framework for program alignment, case studies from Guam, Indiana, Louisiana, and Mississippi, and tools for implementing collaborative strategies. It's designed for program administrators and public health professionals, focusing on systems-building approaches to optimize statewide early childhood systems through improved coordination between Title V MCH Services Block Grant, MIECHV Program, and ECCS Program initiatives.

Link

Keywords: MCH programs, Title V programs, Block grants, Children', s health, Home visiting programs, Early intervention, Guam, Louisiana, Mississippi, Indiana

Myrick Y, Bussanich Falion P (facilitator). . 2021. Slides only: 2021 Autism Acceptance Month Coffee Talk Recording: Celebrating Neurodiversity. [Washington, DC]: Association of Maternal and Child Health Programs, SPHARC, 9 pp. (SPHARC Coffee Talk)

Annotation: Taken from a Coffee Talk presentation given in April 2021 by Yetta Myrick of DC Autism Parents for AMCHP/SPARC's Autism Acceptance Month, these slides summarize the talk, covering key topics including autism statistics (noting the CDC's 2020 finding of 1 in 54 children being diagnosed with ASD and equal prevalence among black and white children, though with racial disparities in age of evaluation), neurodiversity concepts, and practical tools such as the Charting the LifeCourse Framework developed by the University of Missouri-Kansas City's Institute for Human Development, along with guidelines for supporting self-advocacy through approaches like presuming competence, enabling choice-making, and teaching safety skills, concluding with resources from the CDC's "Learn the Signs. Act Early." program and the LifeCourse Tools website.

Link

Keywords: Autism, Work force

2021. State and Territory Policy Strategies Supporting MCH During COVID-19 (National Governors Association). [Washington, DC]: Association of Maternal and Child Health Programs, 1 pp.

Annotation: This report presents survey results showing state and territory policy strategies for supporting maternal and child health during COVID-19. The data indicates varying levels of implementation across multiple initiatives, including creating auxiliary maternity units, supporting birthing options, requiring implicit bias training, covering telehealth services, and tracking quality measures. The policies particularly focus on ensuring equity in birthing options for populations affected by racial/ethnic and socioeconomic disparities, with specific attention to data collection, vaccination strategies, and expanding healthcare professional scope of practice.

Link

Keywords: Covid-19, Pregnant women, Postpartum women, Infant health, State policies, Surveys, Telemedicine

Powis L, Burns B (a couple of other unacknowledged people here). 2021. Strategies for engaging people with lived experience: Sept 2021 CELC Training Webinar. [Washington, DC]: Association of Maternal and Child Health Programs, 53 m 55 s.

Annotation: In this video presentation, AMCHP's Evidence and Implementation team discusses practical approaches for incorporating partners, families, and individuals with lived experience into program development and evaluation processes, with careful consideration of organizational resources and capabilities. Featured speaker Becky Burns, who serves as the Statewide Coordinator for Wisconsin Children and Youth with Special Health Care Needs, shares insights on implementing these engagement strategies effectively while working within the constraints of available organizational capacity.

Link

Keywords: Children with special health care needs, Youth with special health care needs, Epidemiology, Program evaluation, Staff development, Family support services

Burkhard J, Matthews K, Cohen J. 2021. Supporting the Maternal Behavioral Health Workforce [Title on work: Recruiting, Funding, and Training an Effective and Innovative Maternal Behavioral Health Workforce]. [Washington, DC]: Association of Maternal and Child Health Programs; [Arlington, VA]: Association of State and Territorial Health Officials, 56 m 39 s.

Annotation: This presentation features Joy Burkhard and Kay Matthews, founders of 2020 Mom and Shades of Blue respectively, who outline strategies for strengthening the maternal behavioral health workforce through effective recruitment, funding, training, and retention approaches. Working with multidisciplinary teams from Nevada, Missouri, and Indiana, they aim to showcase best practices, explore diverse funding sources, and highlight innovative programs addressing maternal behavioral health needs. The speakers emphasize the critical nature of this work, noting that maternal mental health remains severely underserved with one-third of Americans living in mental health professional shortage areas, while primary care and obstetrical/gynecological services face similar resource gaps.

Link

Keywords: Staff development, Work force, Behavioral medicine, Recruitment, Retention, Nevada, Missouri, Indiana, Texas

Powis L, Schaffer K, Krishnakumar J, Delgado-Lopez C, Dimatteto J. 2021. The Intersection of climate change & maternal and child health: Nov 2021 Global Health Webinar. [Washington, DC]: Association of Maternal and Child Health Programs, 1 h 33 m 00 s.

Annotation: This recording of AMCHP's 2021 Global Health Workgroup defines climate justice and discusses the impact of climate change on maternal and child health. Guest speakers present on the impact of climate change in their populations of interest and outline how their activities promote maternal and child health and climate justice. Guests include Jyotsna Krishnakumar, Director, Community Well Being Programme, WASH, Keystone Foundation; Camille Delgado-Lopez, Epidemiologist, Surveillance for Emerging Threats to Mothers and Babies, Children with Special Needs Divison, Puerto Rico Health Department; Jack Dimatteto, Legistative Assistant for US Congress; and Representative Lauren Underwood, Black Maternal Health Caucus.

Link

Keywords: Race, Global health, Climate change, Maternal health, Children', s health, Cultural diversity, Puerto Rico,

2021. Tip Sheet: How can Title V Programs Support Pediatric Health Care Professionals in Addressing Social Determinants of Health?. [Washington, DC]: Association of Maternal and Child Health Programs, 3 pp.

Annotation: This tip sheet outlines potential roles for Title V Maternal and Child Health (MCH) programs, highlighting specific examples of state-level collaborations. It features case studies including DC's Joyful Food Markets partnership with Martha's Table for food access, Florida and Iowa's workforce development initiatives for motivational interviewing training, New Mexico's Medical Home Portal for bilingual health resources, and Minnesota's Help Me Connect program for connecting families to early childhood services. The document emphasizes Title V programs' capacity to establish shared decision-making through partnerships with state AAP chapters, Medicaid programs, and other agencies to improve child and adolescent health outcomes.

Link

Keywords: Title V programs, Bright Futures, Pediatric care, Social determinants of health, Collaboration

Association of Maternal and Child Health Programs and National Maternal and Child Oral Health Resource Center. [2020]. AMCHP's implementation toolkit for National performance measure 13: 13.1: Percent of women who had a preventive dental visit during pregnancy; 13.2: Percent of children and adolescents, ages 1 through 17, who had a preventive dental visit in the past year. Washington, DC: Association of Maternal and Child Health Programs,

Annotation: This toolkit for Title V program staff and other stakeholders provides information to help address national performance measure 13.1 (preventive dental visits for pregnant women) and 13.2 (preventive dental visits for children and adolescents ages 1–17). The strategic approaches described in the toolkit are informed by evidence and include resources from national and state organizations. The approaches are divided into categories, with relevant resources listed for each. [Funded by the Maternal and Child Health Bureau]

Keywords: Adolescent health, Oral health, Pregnant women, Prevention, Title V programs

Association of Maternal and Child Health Programs . 2020 . Equity in telehealth policy: A framework to evaluate how policy can support the use of telehealth to improve health equity in MCH public health systems . Washington, DC: Association of Maternal and Child Health Programs , 10 pp.

Annotation: This issue brief provides a definition of equity in telehealth, describes four dimensions of equity in telehealth policy, and provides case study examples of how these dimensions can be applied when assessing the equity impacts of a given maternal and child health (MCH) telehealth policy solution.

Keywords: Health care delivery, Health equity, MCH services, Policy, Public health, Telecommunications, Telehealth, Telemedicine

Corona A, Leahy M, Taft K. 2020. A roadmap for collaboration among Title V, home visiting, and early childhood systems programs: Accelerating improvements in early childhood outcomes. Washington, DC: Association of Maternal and Child Health Programs, 30 pp.

Annotation: This document makes recommendations for improved program alignment among Title V, home visiting, and early childhood systems programs and suggests steps to take for collaborative action planning. A case study of the Indiana State Department of Health's internal organizational structure for improved early childhood collaboration is included.

2023 Update

Keywords: Early childhood development, Early childhood education, Home visiting, Service delivery systems, State programs, Title V programs

Association of Maternal and Child Health Programs. 2020. ACA open enrollment season 2021: What families need to know about enrolling in marketplace coverage. Washington, DC: Association of Maternal and Child Health Programs; , 2 pp.

Annotation: This fact sheet provides essential information about the Affordable Care Act (ACA) Open Enrollment period for 2021, explaining how families can enroll in health insurance coverage through the Health Insurance Marketplace (healthcare.gov). It outlines key details including the enrollment period, the different levels of coverage available, and financial assistance options like cost-sharing reductions. The document also explains how individuals can get enrollment assistance through local helpers and phone support, and describes Special Enrollment Periods (SEPs) that allow people to sign up outside the standard enrollment window when they experience qualifying life events such as job loss, marriage, or having a baby. Additionally, it notes that Medicaid and CHIP enrollment is available year-round and reminds readers that some states may have different enrollment periods or special COVID-19 related enrollment options through their state-specific marketplaces.

Association of Maternal and Child Health Programs. 2020. AMCHP mental health talking points. Washington, DC: Association of Maternal and Child Health Programs, 2 pp.

Annotation: This brief report expresses AMCHP's commitment to responding to mental health and substance use disorders within the MCH population. The talking points provide a high-level overview of AMCHP's member experiences, behavioral health project portfolio, and mental health related activities in AMCHP's strategic plan.

Link

Keywords: Mental health, Substance abuse, MCH programs,

Association of Maternal and Child Health Programs. 2020. AMCHP's implementation toolkit for National Performance Measure 1: Percent of women with a past year preventive visit. Washington, DC: Association of Maternal and Child Health Programs, multiple items.

Link

Keywords: Model programs, Prevention, Resources for professionals, State programs, Title V programs, Women', s health

Association of Maternal and Child Health Programs. 2020. AMCHP's implementation toolkit for performance measure 13: 13.1: Percent of women who had a preventive dental visit during pregnancy; 13.2: Percent of children and adolescents, ages 1 through 17, who had a preventive dental visit in the past year. Washington, DC: Association of Maternal and Child Health Programs, 1 web resource.

Link

Keywords: Adolescent health, Oral health, Pregnant women, Prevention, Title V programs

Krisowaty L (facilitator), Acharya K (moderator), Tremmel Freeman L, Ogbolu Y, Sawyer M. 2020. Blue Marble thinking: How global perspectives can help address local challenges. Washington, DC: Association of Maternal and Child Health Programs,

Annotation: This webinar explores the concept of "blue marble thinking" - using global perspectives to address local maternal and child health challenges in the U.S. Linda Chriswadi introduces the session, noting that AMCHP has started a global evidence-based practice initiative to identify and share culturally appropriate best practices from around the world. Moderator Kirobi Acharya from the Robert Wood Johnson Foundation explains how blue marble thinking helps us see new possibilities by looking beyond our borders, using the example of German prisons that focus on dignity and reintegration. Three panelists share their experiences: Lori Trummel Freeman discusses NACHCHO's work identifying global solutions to address health equity issues like maternal mortality and substance use disorders; Dr. Yolanda Ogbolu describes adapting Brazil's Saúde Criança program to strengthen social connections for families in West Baltimore; and Melissa Sawyer explains how Youth Empowerment Project in New Orleans implemented Brazil's biocentric education model to improve youth employment readiness. The panelists discuss participant feedback, COVID-19 adaptations, and advice for others interested in adopting global programs, emphasizing the need to be open to new approaches, engage communities meaningfully, and develop multi-year sustainability plans to successfully integrate international models. Length: 56 minutes, 36 seconds.

Link

Keywords: Global health, Thinking, International perspectives

Corona A, Jones J, Mason M, Chacon S, White P, McManus P, Allen M, Janies K. 2020. Bright Futures presents: Resources, strategies, and experiences to advance NPMs 11 & 12. [Itasca IL; Washington DC]: American Academy of Pediatrics, Bright Futures,

Annotation: In this video presentation from Bright Futures, the presenters showcase initiatives and resources related to medical homes and care transitions, featuring specific examples from Virginia's Got Transition family toolkit and New Mexico's family-centered medical home programs. Representatives from Resource Centers share comprehensive overviews of their National Performance Measures (NPMs) related work, followed by detailed state presentations. The content includes an overview of Bright Futures, with particular attention to its medical home components and the newly released 4th edition Resource Kit, along with its website containing extensive state and community resources. The presentation also covers implementation tools focusing on social determinants of health and highlights AMCHP's implementation toolkits, providing practical guidance for program development and execution. Length: 1 hour, 32 mins.

Link

Keywords: Bright Futures, Medical home, Case studies, New Mexico, Virginia, Transition planning, Family centered health care, Children with Special Health Care Needs, Title V, Autism

Association of Maternal and Child Health Programs; Bright Futures, American Academy of Pediatrics. 2020. Bright Futures Presents: Resources, Strategies, and Experiences to Advance NPMs 11 & 12. Washington, DC: Association of Maternal and Child Health Programs,

Annotation: This webinar highlights the Bright Futures health supervision guidelines that correlate to national performance measure (NPM) 11-- the percent of children who have a medical home -- and NPM 12-- the percent of children who successfully transition to adult health care. Included are state implementation stories, collaborative efforts, statewide strategies, resources, and tools that address NPMs 11 and 12.

Link

Keywords: Adolescent health, Child health, Disease prevention, Guidelines, Health promotion, Measures, Medical home, Transition planning

Association of Maternal and Child Health Programs. 2020. Bright Futures resources for state Title V maternal & child health programs. [Washington, DC]: Association of Maternal and Child Health Programs, 1 pp.

Annotation: This brief and informative document presents a comprehensive resource list for state Title V Maternal & Child Health Programs implementing Bright Futures guidelines, organized into several key categories. The resources include practical implementation tools (like tip sheets and implementation stories), issue briefs on topics such as oral health and well-child visits, webinars focused on health equity and social determinants of health, and AMCHP Pulse newsletter articles addressing COVID-19 response. The list also includes core Bright Futures materials (Guidelines 4th Edition and Tool Kit) and additional resources through partnerships with organizations like the American Academy of Pediatrics, providing access to technical assistance, medical home resources, oral health initiatives, and adolescent health care support. This compilation serves as a one-stop reference guide for Title V programs seeking to implement and enhance their use of Bright Futures guidelines in improving child and family health outcomes.

Link

Keywords: Resource materials, Information resources, Bright Futures, Title V programs, MCH programs, Block grants

Association of Maternal and Child Health Programs. 2020. Bright Futures: How Title V programs evolve from guidelines to action. [Washington, DC]: Association of Maternal and Child Health Programs, 5 pp. (Issue Brief)

Annotation: This issue brief examines how state Title V programs utilize the Bright Futures Guidelines, a comprehensive set of evidence-driven standards developed since 1994 for children's preventive healthcare from birth through age 21. The document reviews findings from fiscal year 2019 Block Grant applications, which show that 33 of 59 states and jurisdictions use Bright Futures in three main ways: as a quality improvement tool (exemplified by Wyoming's efforts to improve EPSDT rates and establish an Implementation Task Force), as the evidence-driven national standard for clinical care (demonstrated by North Carolina's integration into multiple programs including CMARC and school health centers), and as a workforce development resource (illustrated by Mississippi's work to enhance provider capacity and awareness of developmental screening best practices). These examples demonstrate how the Guidelines serve as a versatile tool that helps states improve clinical primary care quality across various settings including schools, community health centers, and homes, while supporting specific National Performance Measures and ensuring consistent standards of care for infants, children, adolescents, and children with special healthcare needs.

Link

Keywords: Title V programs, MCH programs, Case studies, Bright Futures, Guidelines

2020. CDC emergency preparedness and response communication resources. Atlanta, GA: Centers for Disease Control and Prevention, 2 pp.

Annotation: This document catalogs the Center for Disease Control's emergency preparedness and response communication resources, organized into two main sections. The first section lists general communication tools and guides, including a COVID-19 toolkit for pregnant people and new parents, access and functional needs resources, a communication resource center for state and local partners, public health media library, emergency partnership networks (EPIC), crisis communication guidelines (CERC), health equity strategies, and various communication playbooks and indices. The second section focuses specifically on maternal and infant health preparedness resources, providing safety messages and guidance for pregnant, postpartum, and breastfeeding women during disasters, including information about natural disasters, COVID-19, infant feeding, chronic disease management, radiation emergencies, and hurricane preparedness, with some materials available in Spanish.

Link

Keywords: Disaster planning, Information resources, Family support services, Communication

Rettinger S. 2020. Certification for Iowa family peer support specialists. [Coralville, IA: Iowa Peer Workforce Collaboration], 14 pp.

Annotation: This presentation details the certification program for Family Navigators in Iowa, including its online curriculum covering 13 domains (from System of Care to Trauma-Informed Care), assessment methodology using a four-level proficiency scale (Aware to Proficient), and pilot project results showing significant growth in participant proficiency. The slides outline the program's formal certification and examination requirements, along with the reasons why certification (or recertification) should be sought. Positive outcomes of the program are also discussed, noting increased professional confidence and knowledge base among participants, while highlighting the Division's support through covering certification costs. This presentation was given at the 2020 AMCHP/SPARC Peer to Peer Exchange.

Presentation Slides Only

Keywords: Iowa, Children with special health care needs, Family support services, Staff development

Swanson-Holm R, Rettinger S, . 2020. Development of Iowa's Family Navigator Model. [Iowa City, IA: The University of Iowa Division of Child and Community Health, Child Health Specialty Clinics], 25 pp.

Annotation: This presentation from the Peer to Peer Exchange meeting hosted by AMCHP/SPHARC in 2020 that meeting outlines a comprehensive framework for developing and strengthening family-professional partnerships in healthcare systems, particularly focusing on the transition from basic family engagement to true partnership. The slides describe multiple levels of family participation, from individual care planning to policy-level involvement through programs like the AMCHP Leadership Lab and Family Delegate Program.They emphasizes six core principles of family-professional partnerships and outline engagement opportunities at individual, community, and policy levels.

Presentation Slides Only

Keywords: Iowa, Children with special health care needs, Parent education,

Association of Maternal and Child Health Programs. 2020. Equity in telehealth policy framework. Washington, DC: Association of Maternal and Child Health Programs; , 10 pp.

Annotation: In this policy brief, AMCHP presents a framework for evaluating telehealth policies through an equity lens in maternal and child health (MCH) public health systems. The framework defines equity in telehealth as ensuring all individuals have fair access to virtual care tailored to their needs, with a focus on four key dimensions: financial access (addressing cost barriers), equipment & capacity (ensuring access to necessary devices and connectivity), accessibility of care (providing appropriate accommodations), and high-need populations (prioritizing historically marginalized communities, especially BIPOC). The document illustrates these principles through case studies from various states, including North Carolina's expansion of virtual family planning services, Alaska's support for family caregivers, Washington's provision of free Zoom licenses to providers, Connecticut's extension of Birth-to-Three services, and Minnesota's broadening of telehealth provider eligibility to include doulas and community health workers.

Keywords: Title V programs, Federal MCH programs, Block grants, Race, Infant health, Preterm birth, Telemedicine, North Carolina, Alaska, Washington, Connecticut, Minnesota

Association of Maternal and Child Health Programs . 2020. Guidance for providing breastfeeding support in emergency shelters. Washington, DC: Association of Maternal and Child Health Programs , 2 pp.

Annotation: This document provides guidelines and procedures for supporting breastfeeding women in both general population and medical needs emergency shelters in the state of South Carolina.

Link

Keywords: Breastfeeding, Emergencies, Guidelines, Lactation, Shelters, South Carolina

Association of Maternal and Child Health Programs. 2020. Housing as a platform for treatment and recovery: Opportunities for Title V at the intersection of stable housing, mental health, and substance use. [Washington, DC]: Association of Maternal and Child Health Programs, 14 pp. (Issue Brief)

Annotation: This issue brief from the Association of Maternal & Child Health Programs examines the intersection of housing instability, mental health, and substance use disorders (SUD) among maternal and child health populations. It highlights how homelessness disproportionately affects women and children, with 33% of the U.S. homeless population being families with children, and describes how housing instability both contributes to and is exacerbated by mental illness and SUD. The document outlines various housing intervention models, from prevention to permanent supportive housing, including Recovery Housing and Housing First approaches, and emphasizes the importance of cross-system collaborations between healthcare and housing partners. It presents successful state initiatives and partnerships between Title V programs, Medicaid agencies, child welfare departments, and housing authorities, such as Massachusetts' FOR Families program and North Carolina's Healthy Opportunities Pilot. The brief concludes with specific strategies for Title V programs to address these intersecting challenges, including promoting housing instability screening in healthcare settings, partnering with housing authorities, and ensuring home visitors are equipped with appropriate tools and resources.

Link

Keywords: Mental health, Title V programs, Block grants, Housing, Homelessness, Substance abuse, Family centered services

Association of Maternal and Child Health Programs. 2020. Housing as a platform for treatment and recovery: Opportunities for Title V at the intersection of stable housing, mental health, and substance use . Washington, DC: Association of Maternal and Child Health Programs, 14 pp.

Annotation: This issue brief provides an overview of the scope and impact of homelessness; the association between homelessness, mental illness, and substance use disorders (SUD); states’ efforts to integrate health care and housing services; and strategies that the Title V Maternal and Child Health Services Block Grant can use to serve vulnerable women and families facing homelessness and behavioral health disorders.

Link

Keywords: Homelessness, Housing, Model programs, Service integration, State MCH programs, Title V programs

Wightman R, Latendresse G, . 2020. Innovative approaches to mental health & substance use disorder care during COVID-19. Washington, DC: Association of Maternal and Child Health Programs; [Arlington, VA]: Association of State and Territorial Health Officials,

Annotation: This webinar highlights two innovative telehealth programs developed to address mental health and substance use disorders during the COVID-19 pandemic. The first presentation by Dr. Rachel Whitman describes Rhode Island's 24/7 buprenorphine hotline, which provides telephone-based treatment for opioid use disorder without requiring video capability, making it accessible to vulnerable populations with limited technology access. The second presentation by Dr. Gwen Latendresse showcases Utah's project to implement universal electronic screening for perinatal depression in rural public health districts and provide telehealth group therapy sessions for women with mild to moderate symptoms. Both speakers emphasize how the pandemic accelerated telehealth adoption while simultaneously creating greater barriers to care access. They address equity concerns, highlighting the importance of audio-only options to reach marginalized populations, and discuss program outcomes, future goals, and lessons learned about expanding telehealth for behavioral health treatment.

Link

Keywords: Rhode Island, Utah, Telemedicine, Pregnant women, Postpartum women, Mental health, Substance abuse, Covid-19 (suggested keyword), Case studies, Infant health, Washington, New Mexico, Iowa, Arkansas, South Carolina, Northern Mariana Islands, Native Americans

University of Iowa Division of Child and Community Health . 2020. Iowa Family Leadership Training Institute brochure. [Iowa City, IA]: The University of Iowa Division of Child and Community Health, Child Health Specialty Clinics, 2 pp.

Annotation: This brochure describes the Iowa Family Leadership Training Institute (IFLTI), a program offering leadership training for parents and primary caregivers of children with special health care needs. It outlines the program's four in-person sessions focused on developing leadership and advocacy skills across individual, community, and policy levels, using the Maternal and Child Health Leadership Competencies framework. Key components include training topics such as disability history, servant leadership, storytelling, and policy advocacy, along with mentored Community Service Projects that provide practical application of learned skills (e.g., installing adult changing tables and creating safety presentations for first responders).

Link

Keywords: Iowa, Children with special health care needs, Materials for parents, Parent education,

2020. Iowa family peer support specialist scope of practice. [Coralville, IA: Iowa Peer Workforce Collaboration], 2 pp.

Annotation: These guidelines were developed by a Curriculum Workgroup in June 2016, reviewed by FPSS Advisory in July 2016, and field-tested by FPSS practitioners and their supervisors in March 2017, with the program being administered through the University of Iowa Healthcare's Iowa Peer Support Training Program. This report outlines the comprehensive scope of practice for Family Peer Support Specialists (FPSS) in Iowa, organized into five main categories. It outlines comprehensive professional guidelines starting with core ethical responsibilities and professionalism, followed by family engagement strategies, teaching and support methods, advocacy and resource navigation, and additional optional training opportunities. Notable elements include maintaining confidentiality, utilizing personal lived experience, practicing trauma-informed care, providing documentation, supporting families through various systems, and offering practical assistance.

Link

Keywords: Iowa, Children with special health care needs, Family support services, Staff development

Brenneman D. 2020. Iowa Family Peer Support Specialist Training Program. [Iowa City, IA]: The University of Iowa Division of Child and Community Health, Child Health Specialty Clinics, 23 pp.

Annotation: This slide presentation outlines key aspects of the Iowa Family Leadership Training Institute (IFLTI), focusing on three main areas: community service projects, the importance of recruiting diverse family leaders, and post-training engagement activities. The presentation uses data from the 2016 National Survey of Children's Health to justify the program's continuation, showing that only 79.5% of Iowa families consistently demonstrate all four qualities of family resilience (talking together, problem-solving, recognizing strengths, and maintaining hope). It includes participant data from 2016-2020, refers to the Innovation Station toolkit, and lists a panel of program participants, providing a comprehensive overview of the program's structure, impact, and ongoing development.

Presentation Slides

Keywords: Iowa, Children with special health care needs, Parent education,

Brenneman D, Cook J. 2020. Iowa family peer support specialist training program: Overview. [Coralville, IA: Iowa Peer Workforce Collaboration], 28 pp.

Annotation: From the 2020 AMCHP/SPARC Peer to Peer Exchange, this presentation outlines the comprehensive training program for Family Peer Support Specialists (FPSS) in Iowa, detailing four key components: a 25-hour in-person skills training covering essential topics like cultural responsiveness, boundaries, and advocacy; specific training tools including active listening skills and the "assertion sandwich" technique for communication; supervisor training focusing on workforce management and best practices; and continuing education opportunities in areas such as ethics, mental health, and trauma. The slides also describe the development of a credentialing process through the Iowa Board of Certification, noting that Iowa is among the few states offering FPSS credentials, with the program's role including training verification and exam administration. This structured approach ensures that FPSS professionals receive comprehensive preparation for supporting families while maintaining professional standards and continuing professional development.

Presentation Slides Only

Keywords: Iowa, Children with special health care needs, Family support services, Staff development

Hertel E, Swanson-Holm R. 2020. Iowa Regional Autism Assistance Program. [Iowa City, IA: The University of Iowa Division of Child and Community Health, Child Health Specialty Clinics], 21 pp.

Annotation: From the 2020AMCHP/SPHARC Peer to Peer Exchange, this presentation outlines key resources and initiatives for early childhood development screening and autism awareness, centered around the "Learn the Signs. Act Early" health education campaign. It describes various educational materials available, including autism fact sheets (translated into multiple languages including Spanish, French, Arabic, and Karen), a transition handbook covering healthcare management topics, and free parent resources such as developmental milestone checklists and a tracker app that covers four domains of development (social/emotional, language/communication, cognitive, and movement/physical development). The document also explains the role of Act Early Ambassadors, who serve as state representatives to promote early identification of developmental delays and disabilities by integrating these resources into systems serving young children and their families, with information available through the CDC website.

Presentation Slides Only

Keywords: Iowa, Children with special health care needs, Autism,

Association of Maternal and Child Health Programs. 2020. Iowa's Title V CYSHCN program: Using the national standards to build Family leadership and partnership. [Washington, DC]: Association of Maternal and Child Health Programs; [Portland, ME]: National Academy of State Health Policy, 3 pp.

Annotation: This case study examines how Iowa's Title V Children and Youth with Special Health Care Needs (CYSHCN) program has implemented the National Standards for Systems of Care to build family leadership and partnerships. The program, influenced by disability rights advocate Julie Beckett (mother of Katie Beckett, for whom the Medicaid waiver was named), uses the National Standards as a framework to ensure families are active partners in decision-making at all levels of care. Key initiatives include the Iowa Family Leadership Training Institute (IFLTI), which has trained over 50 parents and caregivers since 2016 in advocacy skills, and the Iowa Family Advisory Council (FAC), established in 2014 to guide policies and programs. The program utilizes both Version 1.0 and 2.0 of the National Standards to help families advocate within health systems and to assess program performance, with a particular focus on ensuring culturally and linguistically appropriate care coordination. The case study also demonstrates how embedding these standards throughout practices helps promote family perspectives in care systems and supports peer-to-peer family support networks.

Link

Keywords: Title V programs, Standards, Case studies, Iowa, Family support services, Children with special health care needs

Association of Maternal and Child Health Programs. 2020. Partnership assessment and relationship profile. Washington, DC: Association of Maternal and Child Health Programs, 5 pp.

Annotation: The purpose of the Partnership Assessment and Relationship Profile is to identify strengths and areas of needed growth across partners serving CYSHCN (Children and Youth with Special Health Care Needs). The tool is designed to aid partners working in systems that serve CYSHCN to do the following: identify previous and current collaborations among partners serving CYSHCN; determine the broad strengths and barriers to collaborations; create a plan to build on partnership-related strengths; and address identified barriers.

Link

Keywords: Children with special health care needs, Assessment tools, Collaboration, Standards

Willard J. 2020. Partnership with Title V. [Iowa City, IA: The University of Iowa Division of Child and Community Health, Child Health Specialty Clinics], 28 pp.

Annotation: These presentation slides outline partnership strategies and opportunities within Iowa's Title V Maternal and Child Health Block Grant program, specifically focusing on Children and Youth with Special Health Care Needs (CYSHCN). They describe Iowa's unique structure, where the CYSHCN program is housed within the University of Iowa, and details their 2021-2026 priorities. The presentation provides guidance for other states on developing partnerships with Title V programs, emphasizing the importance of reviewing state Block Grant applications to identify partnership opportunities, and suggests focusing on specific sections like the Needs Assessment and State Action Plan for Children and CYSHCN populations.

Presentation Slides

Keywords: Children with special health care needs, Title V programs, Iowa

Association of Maternal and Child Health Programs; Georgia Health Policy Center. 2020. Promoting access to care for women of reproductive age with mental health and substance use disorders in rural communities . Washington, DC: Association of Maternal and Child Health Programs, 12 pp.

Annotation: This issue brief addresses barriers to adequate health care in rural communities for women of reproductive age with mental health and substance use disorders. The brief discusses social determinants that play a significant role in health outcomes (e.g., rising unemployment, unreliable transportation, inadequate housing, and low rates of health insurance coverage) and addresses the complex needs of women in rural settings who have limited access to medical treatment. Included are examples of state and federal programs designed to increase access to care and improve care coordination for vulnerable women of reproductive age, including pregnant women.

Link

Keywords: Access to care, Intervention, Mental disorders, Model programs, Reproductive health, Rural health, Rural population, Substance use disorders, Women', s health

2020. Rhode Island's Title V CYSHCN program: Using the national standards to guide improvements in statewide care coordination. [Washington, DC]: Association of Maternal and Child Health Programs; [Portland, ME]: National Academy of State Health Policy, 3 pp.

Annotation: In an effort to improve statewide care coordination, Rhode Island's Title V Maternal and Child Health program utilized the National Standards for Systems of Care for Children and Youth with Special Health Care Needs (CYSHCN). This case study illustrates how the state implemented these standards through two main initiatives: the Patient-Centered Medical Home for Kids (PCMH-Kids) program launched in 2015, which adapted adult care models to better serve children's unique needs, and improvements to specialty care coordination through Medicaid managed care. The National Standards provided an evidence-based framework that helped stakeholders understand the importance of family-centered, comprehensive care coordination, identified key barriers (such as limited communication between coordinators and reimbursement issues), and guided policy changes. Rhode Island's experience demonstrates how the National Standards can serve as an effective tool for achieving shared understanding among partners and implementing improved care coordination systems, with particular emphasis on family engagement and access to community-based services.

Link

Keywords: Rhode Island, Title V programs, State CSHCN programs, Standards, Case studies, Children with special health care needs, Youth with special health care needs

Association of Maternal and Child Health Programs. 2020. Screening, brief intervention and referral to treatment (SBIRT) for pregnant and postpartum women: Opportunities for state MCH programs. [Washington, DC]: Association of Maternal and Child Health Programs; The National Association of State Alcohol and Drug Abuse Directors, 14 pp. (Issue Brief)

Annotation: This issue brief outlines the implementation of Screening, Brief Intervention, and Referral to Treatment (SBIRT) for pregnant and postpartum women with substance use disorders. SBIRT is an evidence-based practice endorsed by major health organizations that includes three key components: universal screening using validated tools, brief intervention through short conversations using motivational interviewing techniques, and referral to treatment when needed. The brief details how various states, including Iowa, Kansas, and South Carolina, have implemented SBIRT programs through partnerships, training initiatives, and innovative delivery methods such as text-based screening in waiting rooms. It addresses practical considerations including billing codes, mandatory reporting requirements, and provides extensive resources including validated screening tools (such as T-ACE, TWEAK, and 4Ps) and implementation toolkits. The guide emphasizes opportunities for Maternal and Child Health programs to advance SBIRT usage through provider partnerships, training programs, and policy advocacy, while noting that the approach has shown significant effectiveness in reducing substance use, with studies showing reductions in alcohol use (35.6%), heavy drinking (43.4%), and illicit drug use (75.8%).

Link

Keywords: Title V Programs, MCH programs, Pregnant women, Postpartum women, Substance use screening, Perinatal care, Substance abusing pregnant women

Association of Maternal and Child Health Programs; National Association of State Alcohol and Drug Abuse Directors. 2020. Screening, Brief Intervention and Referral to Treatment (SBIRT) for Pregnant and Postpartum Women: Opportunities for State MCH Programs . Washington, DC: Association of Maternal and Child Health Programs, 14 pp.

Annotation: This issue brief describes the Screening, Brief Intervention, and Referral to Treatment (SBIRT) model for pregnant and postpartum women with substance use disorders and explains how this treatment model can be integrated into care delivery.

Link

Keywords: Drug abuse programs, Model programs, Postpartum women, Pregnant women, Screening, Service integration., Substance abuse, Substance abuse prevention, Substance abuse treatment services

Patterson K (facilitator), Kearly A, Oputa J, Doyle M, Guille C. 2020. Telehealth approaches for treating SUD in maternal and child populations . [Washington, DC]: Association of Maternal and Child Health Programs; [Arlington, VA]: Association of State and Territorial Health Officials, 52 m 09 s. (ASTHOConnects)

Annotation: This video recording aims to explore comprehensive telehealth applications in maternal and child healthcare, particularly focusing on four key telehealth modalities and their potential to enhance care delivery. The content examines how various states have implemented telehealth solutions for both provider training and improving behavioral health services for maternal and child populations. Through comparative analysis of traditional care versus telehealth approaches and discussion of adoption factors, the presentation demonstrates practical strategies for state and territorial health agencies to effectively leverage telehealth technology in improving behavioral health outcomes for mothers and children.

Link

Keywords: Telemedicine, Substance abuse, Maternal health, Infant health, Mental health, Staff development, Case studies, Substance abusing mothers, Montana, Connecticut, New Hampshire, South Carolina,

Association of Maternal and Child Health Programs. 2020. Telehealth capacity in MCH public health systems environmental scan. [Washington, DC]: Association of Maternal and Child Health Programs, 15 pp.

Annotation: This environmental scan report examines the telehealth capacity of maternal and child health public health systems in response to the COVID-19 pandemic. The report presents findings from interviews with 57 representatives from 39 programs across 26 states and 2 territories, focusing on Title V and Children and Youth with Special Health Care Needs programs, home visiting services, newborn screening functions, and early hearing detection and intervention. Key findings include significant variance in telehealth implementation levels across jurisdictions, widespread connectivity challenges for families and programs, positive perceptions of telehealth as a viable service modality despite current challenges, lack of evidence to inform decision-making about telehealth continuation and expansion, and need for improved mechanisms to connect providers with available training resources. Program-specific sections detail current telehealth usage, capacity challenges, gaps in services, and opportunities catalyzed by the pandemic, highlighting both successes and barriers encountered in rapidly transitioning to remote service delivery models.

Link

Keywords: Telemedicine, Title V programs, Public health services, MCH programs, National surveys

Association of Maternal and Child Health Programs . 2020. Telehealth capacity of maternal & child health public health systems in response to the COVID-19 pandemic: environmental scan . Washington, DC: Association of Maternal and Child Health Programs , 15 pp.

Annotation: This environmental scan summarizes themes that emerged during interviews with key informants on the implementation of telehealth solutions during the COVID-19 pandemic. The brief describes several themes that emerged across multiple programs: (1) There is significant variance in the level of telehealth implementation occurring across jurisdictions; (2) Systemic and widespread connectivity issues exist for families and some programs; (3) There is a lack of evidence by which to make decisions about if and how to continue or expand telehealth to best meet families’ needs; and (4) Improved mechanisms are needed to connect available educational and training resources with the providers and staff who need them, when they need them. Contributors include representatives from Title V and children and youth with special health care needs (CYSHCN) programs, newborn screening functions, and maternal, infant, and early childhood home visiting (MIECHV) services.

Keywords: Barriers, Child health, Children with special health needs, Health care delivery, Interviews, Maternal health, Telecommunications, Telemedicine, Youth

Hanley M, Brenneman D, Charlot R, Escoto A. 2020. The impact of the Iowa Family Leadership Training Institute on families, communities, and systems. [Iowa City, IA]: The University of Iowa Division of Child and Community Health, Child Health Specialty Clinics, 1 pp.

Annotation: This poster presents findings from an evaluation of the Iowa Family Leadership Training Institute (IFLTI), a program that provides training to parents and primary caregivers of children and youth with special health care needs to develop leadership and advocacy skills. The poster describes the program's objectives, methodology, and results from interviews with 15 IFLTI graduates and pre/post-assessments. Key findings demonstrate that participants gained improved individual leadership skills (100% reported at least one leadership opportunity after completion), increased community impact (including better identification of community needs), enhanced system-level advocacy (73% reported increased involvement with legislators), and stronger partner collaboration.

Link

Keywords: Children with special health care needs, Iowa, Title V programs, Staff development, Collaboration

Association of Maternal and Child Health Programs. 2020. Title V Data integration tip sheet: Data privacy and security. Washington, DC: Association of Maternal and Child Health Programs, 1 pp. (Tip Sheet)

Annotation: This tip sheet outlines essential guidelines for Title V programs when integrating their data into Early Childhood Integrated Data Systems (ECIDS), with a focus on data privacy and security measures. It contains key recommendations and guidance emphasizes for protecting sensitive information through proper administrative, physical, and technical safeguards while ensuring data accuracy and reliability. The document provides critical checkpoints for Title V programs to maintain data integrity and confidentiality when participating in integrated data systems, and includes references to additional privacy and security resources and tools for implementation.

Link

Keywords: Confidentiality, Data collection, Title V programs, Children with special health care needs

Filzen A, Prosch N, Romeo A. 2020. Title V diverse partnerships & collaborations. Washington, DC: Association of Maternal and Child Health Programs, 9 pp.

Annotation: This report from AMCHP discusses how Title V Maternal and Child Health (MCH) programs can develop diverse partnerships to improve health outcomes and address social determinants of health. It presents several case studies demonstrating successful collaboration strategies, including: Arkansas's partnership with African American fraternities (Brothers United) to promote safe sleep practices and reduce infant mortality disparities; Utah's adaptation of the national MotherToBaby program to provide pregnancy and breastfeeding information in rural areas; Mississippi's collaboration with faith-based organizations to provide dental services through a mobile unit; and South Dakota's Park Prescription initiative that partners with healthcare providers to promote physical activity in state parks. Each case study illustrates different partnership strategies: intentional collaboration with community partners, leveraging national initiatives for local impact, integrating programming within faith-based communities, and aligning efforts across government and health systems to address health disparities and improve access to care for underserved populations.

Link

Keywords: Title V programs, Federal MCH programs, Block grants, Case studies, Infant mortality, Race, Collaboration, Community based programs, Mississippi, South Dakota, Arkansas, Utah

Foretia B. 2020. What global health means to AMCHP. [Washington, DC]: Association of Maternal and Child Health Programs, 1 m 5 s.

Annotation: In this promotional video for AMCHP's 2021 conference themed "Global Meets Local," Program Analyst Bejan Foretia discusses AMCHP's perspective on global health, which focuses on achieving health equity and enhancing wellbeing for all people worldwide. The video emphasizes how the COVID-19 pandemic served as a powerful reminder that global health challenges transcend borders, highlighting the interconnected nature of public health across the international community. While advertising the conference, the video underscores the critical importance of taking a global approach to health equity.

Link

Keywords: MCH programs, Global health

Adolescent and Young Adult National Resource Center. 2019-. #ScreenToInterveneForAYAs: Adolescent and Young Adult Behavioral Health Blog. Washington, DC: Association of Maternal and Child Health Programs,

Annotation: This blog provides a space for state Title V maternal and child health professionals and their partners to learn about efforts to build better preventive care systems for optimal adolescent and young adult wellbeing across the country.

Link

Keywords: Behavior, Adolescent health, Behavioral medicine, Communication, Prevention programs, Social media, State Title V programs, State initiatives, Young adults

Association of Maternal and Child Health Programs. 2019. AMCHP's implementation toolkit for National Performance Measure 10: Number of adolescents, ages 12 through 17, with a preventive medical visit in the past year. Washington, DC: Association of Maternal and Child Health Programs, multiple items.

Annotation: This toolkit contains examples of strategies state Title V programs can use to address National Performance Measure 10: Number of adolescents, ages 12 through 17, with a preventive medical visit in the past year Strategies are listed in these categories: (1) improve access and uptake of preventive services;; (2) improve quality of preventive services; (3) improve statesystems-level policies and practices; and (4) positive youth development. [Funded by the Maternal and Child Health Bureau]

Link

Keywords: Adolescents, Health supervision, Model programs, Resources for professionals, State programs, Title V programs

Association of Maternal and Child Health Programs. 2019. AMCHP's implementation toolkit for National Performance Measure 12: Percent of adolescents with and without special health care needs who received services necessary to make transitions to adult care. Washington, DC: Association of Maternal and Child Health Programs, multiple items.

Annotation: This toolkit contains examples of strategies state Title V programs can use to address National Performance Measure 12: Percent of adolescents with and without special health care needs who received services necessary to make transitions to adult care. Strategies are listed in these categories: (1) youth and family education and leadership development; (2) health care professional workforce development; (3) care coordination; (4) communications and social media; and (5) measurement and assessment. [Funded by the Maternal and Child Health Bureau]

Link

Keywords: Adolescents, Model programs, Resources for professionals, Special health care needs, State programs, Title V programs, Transition to adult services, Young adults

Association of Maternal and Child Health Programs. 2019. AMCHP's implementation toolkit for National Performance Measure 6: Percent of children, ages 9 through 35 months, who received a developmental screening using a parent-completed screening tool in the past year. Washington, DC: Association of Maternal and Child Health Programs, multiple items.

Annotation: This toolkit contains examples of strategies state Title V programs can use to address National Performance Measure 6, percent of children, ages 9 through 35 months, who received a developmental screening using a parent-completed screening tool in the past year. Strategies are listed in these categories: (1) data collection, measurement, and existing landscape; (2) policy research, development, and implementation; (3) systems coordination; (4) technical assistance and training; (5) education, engagement, and resource development; and (6) other program strategies. [Funded by the Maternal and Child Health Bureau]

Keywords: Children, Developmental screening, Infants, Model programs, Resources for professionals, State programs, Title V programs

Association of Maternal and Child Health Programs. 2019. AMCHP's implementation toolkit for National Performance Measure 9: Percent of adolescents, ages 12 through 17, who are bullied or who bully others. Washington, DC: Association of Maternal and Child Health Programs, multiple items.

Annotation: This toolkit contains examples of strategies state Title V programs can use to address National Performance Measure 9, percent of adolescents, ages 12 through 17, who are bullied or who bully others. Strategies are listed in these categories: (1) assessment; (2) communication efforts; (3) implementation of evidence-based practices; (4) technical assistance and training; (5) policy and systems approaches; and (6) other program strategies. [Funded by the Maternal and Child Health Bureau]

Link

Keywords: Adolescents, Bullying, Model programs, Resources for professionals, State programs, Title V programs

Association of Maternal and Child Health Programs. 2019. Collaborations Between State Title V Maternal and Child Health Programs and Medicaid. Washington, DC: Association of Maternal and Child Health Programs, 9 pp.

Annotation: This paper outlines strategies for strengthening collaborations between state Title V Maternal and Child Health (MCH) programs and Medicaid, which share a mission to improve women's and children's health but operate under different structures and resources. The document emphasizes six key strategies: examining Medicaid's context; building relationships based on shared missions; leading with value propositions rather than mandates; assessing interagency agreements (IAAs); utilizing technical assistance resources; and highlighting successes. Through case studies from West Virginia and Wisconsin, the document illustrates successful collaborations, including quality assurance initiatives for children with special health care needs, prenatal care coordination, and data sharing.

Link

Keywords: Title V programs, Medicaid, Grants, Collaboration, Interagency cooperation,

Association of Maternal and Child Health Programs. 2019. How can Title V MCH programs support pediatric health care professionals in addressing social determinants of health?. Washington, DC: Association of Maternal and Child Health Programs, 3 pp.

Annotation: This tip sheet highlights various ways in which Title V programs can form partnerships with state agencies and work in tandem with pediatric health professionals to address social determinants of health and improve child health outcomes. Included are examples of innovative Title V programs in Iowa, Florida, New Mexico, Minnesota, and the District of Columbia. The recommendations are based on The American Academy of Pediatrics (AAP) Bright Futures: Guidelines for Health Supervision of Infants, Children, and Adolescents, 4th Edition.

Keywords: Adolescent health, Child health, Guidelines, Health equity, Pediatric care, Preventive health services, Social factors, Title V Programs

Bussanich P. 2019. Integrating Title V data into Early Childhood Integrated Data Systems (ECIDs) at the Help Me Grow Forum 2019. Washington, DC: Association of Maternal and Child Health Programs, 61 pp.

Annotation: This presentation focuses on integrating Title V data into Early Childhood Integrated Data Systems (ECIDS) to improve services for children and youth with special health care needs. It outlines the relationship between Title V MCH (Maternal and Child Health) programs and Help Me Grow initiatives, highlighting their shared focus on developmental screening and early intervention. The presenter, Paige Bussanich from the Association of Maternal & Child Health Programs (AMCHP), explains how data integration can enhance cross-system collaboration and improve outcomes for children. The slides cover the structure of Title V programs, performance measurement frameworks, and current state efforts in data integration. The presentation also includes information about AMCHP's Title V Data Integration Toolkit and available technical assistance resources, with examples of successful state collaborations between Title V and Help Me Grow programs in Alabama, Vermont, and Wyoming. The final portion introduces data storytelling as a method to effectively communicate findings from integrated data systems.

Slide Deck Only

Keywords: Title V programs, Data collection, Data analysis, State CHSCN programs, Developmental screening, Vermont

Bussanich P, Corona A, Leahy M, Taft K, Tage S. 2019. Learn the signs. Act Early. AMCHP's state systems grant: Eight years (2011-2018) in review. Washington, DC: Association of Maternal and Child Health Programs, 1 pp.

Annotation: This poster uses colorful maps and other graphics to summarize an eight-year review (2011-2018) of AMCHP's "Learn the Signs. Act Early" (LTSAE) state systems grant program, which aimed to strengthen early identification and service coordination for children with autism spectrum disorder and other developmental disabilities (ASD/DD). The analysis, based on an environmental scan of program documents and a survey of grant leads from 31 states (91% response rate), demonstrates the program's success in building state and community capacity through various approaches, including developing state autism plans, increasing legislative awareness, and creating multilingual educational programming. The initiative, part of the CDC's Act Early Initiative launched in 2007, has supported 34 states and jurisdictions through AMCHP's partnership with the Association of University Centers on Disabilities (AUCD), providing not only funding but also technical assistance and interstate collaboration opportunities, ultimately showing that while implementation approaches varied across states, successful strategies could be adapted and replicated to improve developmental monitoring and screening systems.

Link

Keywords: Title V programs, Autism, Data analysis, State grants, State CHSCN programs

Association of Maternal and Child Health Programs. 2019. Learn the signs. Act early. AMCHP's state systems grant: Eight years (2011-2019) in review. Washington, DC: Association of Maternal and Child Health Programs, 17 pp. (Issue Brief)

Annotation: This issue brief highlights the successes, challenges, and lessons learned from the CDC's Learn the Signs. Act Early. (LTSAE) state systems grant program spanning eight years (2011-2019). Administered by the Association of Maternal & Child Health Programs in partnership with the Association of University Centers on Disabilities, the program funded 34 states to strengthen early identification and coordination of services for children with autism spectrum disorder and developmental disabilities. The document outlines three key impact areas: formalizing developmental monitoring as a priority, activating stakeholders and strengthening partnerships, and increasing awareness among caregivers and providers. Through state-specific case studies and survey data from grantees, the brief demonstrates how even modest funding ($10,000-$20,000 per state) led to sustainable system improvements, innovative cross-sector collaborations, and enhanced capacity to monitor development and connect families to early intervention services. The brief also addresses implementation challenges and emphasizes the critical role of relationship-building and family engagement in sustaining these efforts beyond the grant period.

Link

Keywords: Title V programs, Autism, State CHSCN programs, Grants, Case studies, Nebraska, Mississippi, Virginia, Montana, Oklahoma, California, New Mexico, Massachusetts

Burkhard J, Fournier D, Harrell A. 2019. Maternal mental health systems change & IMD exclusion waivers. Washington, DC: Association of Maternal and Child Health Programs; [Arlington, VA]: Association of State and Territorial Health Officials,

Annotation: This webinar describes how maternal mental health and substance use disorder (MH/SUD) systems change can lead to increases in diagnosis and treatment rates; identifies opportunities to utilize the lifting of the "Medicaid Institutions for Mental Disease (IMD) Exclusion" to improve treatment of mental health and substance use disorders in MCH populations; and discusses the process by which Virginia leveraged a Medicaid IMD waiver to improve access to care and treatment for MH/SUD in reproductive age women. Length: 60 minutes, 9 seconds.

Link

Keywords: Mental health, Pregnant women, Substance abusing mothers, Access to care, MCH services, Maternal health, Virginia

National MCH Workforce Development Center, Association of Maternal and Child Health Programs, MCH Navigator. 2019. MCH needs assessment toolkit. Chapel Hill, NC: National MCH Workforce Development Center; Washington, DC: Association of Maternal and Child Health Programs and MCH Navigator,

Annotation: This toolkit helps state Title V programs to begin to understand the complexity of challenges to the maternal and child health (MCH) system, identify needs, and select priority areas of focus. It provides webinars, trainings, and tools for states to use in each step of the process.

Link

Keywords: Child health, Health care systems, Maternal health, Needs assessment, State programs, Title V programs

Casey-Lockyer M. 2019. MCH throughout the disaster cycle. [Washington, DC]: American Red Cross, 34 pp.

Annotation: This presentation from the American Red Cross outlines best practices and key considerations for disaster response and recovery planning, with a particular focus on supporting individuals with functional needs and disabilities. It emphasizes the importance of partnerships, such as the collaboration between Protection and Advocacy (P&A) agencies and the Red Cross, and highlights the need for inclusive community planning that addresses continuity of services, long-term recovery, and resource coordination. Using Puerto Rico's long-term recovery efforts as an example, the document describes specific initiatives like installing solar panels for schools and community wells, and supporting micro-agriculture and health centers. It concludes with planning considerations that stress the importance of integrated community planning, real-world exercise evaluation, and consideration of functional needs support services throughout all disaster phases, providing various resources for further guidance on inclusive emergency planning and response.

Link

Keywords: Disaster planning, Shelters, Maternal health services, Child health services, Puerto Rico

2019. Parents Need Insurance Coverage Too. Washington, DC: Association of Maternal and Child Health Programs; Itasca, IL: American Academy of Pediatrics, 1 pp.

Annotation: This fact sheet promotes the importance of insurance coverage for parents and caregivers, emphasizing that healthcare professionals who treat children also care about the wellbeing of the adults in their lives. It directs readers to access additional resources through aap.org/CaregiverInsurance/Resource and acknowledges funding support from the Health Resources and Services Administration's (HRSA) Alliance for Innovation on Maternal and Child Health program under grant UC4MC28034.

Link

Keywords: Parents, Caregivers, Health insurance, Information resources

Association of Maternal and Child Health Programs; March of Dimes. 2019. Preparing for the future: Zika & long-term implications for systems of care. Washington, DC: Association of Maternal and Child Health Programs; [Arlington, VA]: March of Dimes, 8 pp.

Annotation: Based on data from the U.S. Zika Pregnancy and Infant Registry (USZPIR) and a 2019 multidisciplinary leadership meeting organized by AMCHP, March of Dimes, and CDC, this report outlines the long-term challenges and preparedness needs for supporting children and families affected by the Zika virus. It highlights that approximately 14% of infants born to mothers with confirmed or possible Zika infection experienced health problems, requiring comprehensive, long-term support across multiple systems. The document identifies seven key areas for systems improvement, and for each area, it provides detailed recommendations for both individual/family needs and systems-level responses, emphasizing the importance of sustainable healthcare coverage, coordinated care systems, cultural competency, and ongoing surveillance. The report concludes that states must assess and strengthen their infrastructure, leverage existing programs, and foster collaborative partnerships to better serve both Zika-affected families and all children with special healthcare needs.

Link

Keywords: Title V programs, Children with special health care needs, Disaster planning, Health screening, Congenital abnormalities, Infant health, Maternal health

2019. State Poster Presentations from 2019 SPHARC Peer-to-Peer Exchange. [Washington, DC]: State Public Health Autism Resource Center , 9 pp.

Annotation: Taken from the 2019 SPHARC (State Health Autism Resource Center) Peer-to-Peer Exchange, this poster presents state-by-state profiles of autism spectrum disorder (ASD) initiatives and programs across multiple U.S. states including Wisconsin, Washington, Rhode Island, Ohio, New Hampshire, Minnesota, Maryland, Georgia, and Delaware. Each state profile includes unique state facts, data collection methods, quality improvement (QI) initiatives, and community engagement strategies. Common themes across states include efforts to address disparities in ASD screening and diagnosis, particularly among underserved and diverse populations; implementation of family navigation programs; use of data-driven approaches to identify service gaps; development of culturally competent services; and strategies to improve early identification and intervention. The profiles highlight various successful approaches such as Wisconsin's rural service delivery models, Minnesota's ADDM Network participation, Georgia's insurance coverage expansion through "Ava's Law," and Delaware's M-CHAT-R provider training pilot, while also acknowledging challenges including provider shortages, language barriers, and geographic access disparities.

Link

Keywords: Autism, State CHSCN programs, Data analysis, Wisconsin, Washington, Rhode Island, Ohio, New Hampshire, Minnesota, Maryland, Georgia, Delaware

Association of Maternal and Child Health Programs; March of Dimes. 2019. The value of Title V in emergency preparedness and response. Washington, DC: Association of Maternal and Child Health Programs; [Arlington, VA]: March of Dimes, 4 pp.

Annotation: This report examines the critical role of Title V Maternal and Child Health (MCH) and Children and Youth with Special Health Care Needs (CYSHCN) programs in emergency preparedness and response, using lessons learned from the 2016 Zika virus outbreak. Based on a virtual focus group with seven state Title V programs, the analysis highlights Title V's unique value through its expertise in working with pregnant women and infants, established provider networks, care coordination infrastructure, and effective communication channels. The authors present specific examples of successful state responses, such as Virginia's care coordination services, California's provider training initiatives, Florida's cross-divisional collaboration, and Puerto Rico's regional pediatric research centers. The report also identifies key challenges, including the need to track asymptomatic infants and maintain strong communication networks, and provides practical tips for Title V programs to ensure their integration into emergency preparedness and response processes, emphasizing the importance of clear protocols, strong communication systems, and demonstrating Title V's unique value in addressing MCH population needs during public health emergencies.

Link

Keywords: Title V programs, Disaster planning, Federal MCH programs, Infant health, Maternal health, California, Florida, Virginia, Puerto Rico

2019. Tip sheet: How to start a telehealth program. Washington, DC: Association of Maternal and Child Health Programs, 6 pp. (Tip Sheet)

Annotation: This information package provides a comprehensive guide for organizations planning to implement a telehealth program, using the example of behavioral health services for children with autism ages 2-18. It outlines key initial considerations through a series of essential questions, including identifying the target population, addressing specific barriers to care, determining service delivery locations, assessing payer coverage policies, evaluating technology requirements, and considering community support. The document also details six additional considerations for program implementation: utilizing Telehealth Resource Centers for guidance; securing funding sources for start-up costs; finding qualified providers; developing efficient workflows; ensuring staff buy-in through early involvement and adequate training; and providing education to families and caregivers. The example case demonstrates how these elements come together under specific Medicaid requirements, emphasizing the importance of meeting criteria for live video services, approved service locations (FQHCs - Federally Qualified Health Centers - and schools), and provider licensing requirements.

Link

Keywords: Telemedicine, Title V programs, Family support services,

Center for Connected Health Policy. 2019. Tip sheet: Selecting a telehealth provider. Washington, DC: Association of Maternal and Child Health Programs, 4 pp. (Tip Sheet)

Annotation: This tip sheet for providers supporting parents or caregivers offers guidance on selecting appropriate telehealth providers, particularly for specialized services like pediatric psychiatry for children with autism. It emphasizes the importance of thorough provider vetting through licensing boards, health plan networks, and specific board guidelines for telehealth services. The document pays special attention to autism diagnosis via telehealth, comparing different assessment tools: the M-CHAT (Modified Checklist for Autism in Toddlers) and CARS (Childhood Autism Rating Scale) screenings are noted as being well-suited for telehealth delivery, while the ADOS-2 (Autism Diagnostic Observation Schedule-Second Edition) diagnostic tool presents more challenges due to its interactive nature, requiring additional preparation and parent training to be administered remotely. Considerations for selecting providers-- e.g., technical setup quality and ability to maintain effective rapport with young patients-- are included.

Link

Keywords: Resources for professionals, Telemedicine, Title V programs, Family support services, Family centered care, Autism

2019. Tip sheet: Selecting telehealth technology. Washington, DC: Association of Maternal and Child Health Programs, 4 pp. (Tip Sheet)

Annotation: This tip sheet provides guidance on key technical and implementation considerations for establishing telehealth services, focusing on three main modalities: live video (real-time audiovisual communication), store-and-forward (electronic transmission of medical information), and remote patient monitoring (RPM). It outlines ten essential considerations in the assessment of choosing the correct technology and provides links to resources that can provide technical assistance.

Link

Keywords: Telemedicine, Technology, Title V programs

2019. Tip sheet: Telehealth policy issues. Washington, DC: Association of Maternal and Child Health Programs, 6 pp. (Tip Sheet)

Annotation: This tip sheet outline seven key non-reimbursement policy considerations for organizations implementing telehealth programs. The areas covered include: licensing requirements and state compacts for healthcare providers; licensing board guidelines; credentialing and privileging procedures, including CMS's (The Center for Medicare and Medicaid Services) proxy credentialing option; etc. For each topic, the document provides detailed guidance on regulatory compliance, emphasizing that policies vary by state and that organizations must navigate both federal and state requirements. Particular attention is given to the complexities of cross-state practice, controlled substance prescribing under the Ryan Haight Act, and the varying roles FQHCs (Federally Qualified Health Clinics) and RHCs (Rural Health Clinics) can play in telehealth delivery depending on Medicare and state Medicaid policies.

Link

Keywords: Telemedicine, Title V programs, Regulations, Policies

Association of State and Territorial Health Officials PRISM Learning Community . 2019. Universal Screening and Testing of Pregnant Women. Arlington: VA: Association of State and Territorial Health Officials ,

Annotation: This virtual learning session explores the logistical, legislative, and legal issues surrounding universal screening for substance use in pregnant and parenting women and their newborns. Examples of screening tests for substance abuse, state initiatives in support of universal screening, the legal aspects of substance use, and legislative measures that address universal screening are among the topics discussed by various panelists during this 50-minute presentation.

Link

Keywords: Alcohol abuse, Fetal alcohol symptom, Infants, MCH Programs , Mental health, Model programs, Perinatal care, Pregnant women, Prevention services, Screening tests, State initiatives, Substance abuse, Substance use screening

Association of Maternal and Child Health Programs; Association of State and Territorial Health Officials. 2019. Universal screening and testing of pregnant women. Washington, DC: Association of Maternal and Child Health Programs; [Arlington, VA]:: Association of State and Territorial Health Officials,

Annotation: The inaugural virtual session of the PRISM (Promoting Innovation in State & Territorial MCH Policymaking) Learning Community focused on the complex challenges surrounding universal substance use screening for pregnant and parenting women and their newborns. This comprehensive session examined the critical intersection of logistical implementation, legislative frameworks, and legal considerations that healthcare providers and policymakers must navigate when developing and implementing screening protocols. By addressing these multifaceted aspects, the session provided participants with essential insights into creating effective, equitable, and legally sound screening programs that serve both maternal and infant health needs while respecting patient rights and privacy concerns. Length: 50 minutes, 8 seconds.

Link

Keywords: Maternal health, Mental health, Substance abuse, Substance use screening, Substance abusing mothers, Children', s health, Substance exposed infants

Corona A, Bussanich P. 2019. Using data and quality improvement to address health equity for children with autism spectrum disorder and other developmental disabilities. Washington, DC: Association of Maternal and Child Health Programs, 23 pp.

Annotation: This PowerPoint presentation discusses health equity considerations in autism spectrum disorder and developmental disabilities (ASD/DD) services, emphasizing the importance of understanding both how and why disparities affect different groups based on race, ethnicity, socioeconomic status, and geographic location. It presents two key takeaways: first, that prevalence data must be viewed through an equity lens using frameworks like the Equitable Evaluation Framework, and second, that solutions often already exist within communities and require input from compensated local context experts and impacted leaders. The presentation illustrates these points through Wisconsin's community-centered approach and emphasizes the value of community expertise in identifying and scaling up existing assets. The slides include embedded videos and links to additional resources.

Keywords: Title V programs, Autism, State CHSCN programs, Staff development, Health care system, Process evaluation, Data collection, Wisconsin

Durkin M. 2019. Using Data to Identify Disparities in Autism Prevalence and Access to Services. Madison, WI: University of Wisconsin-Madison, 34 pp.

Annotation: This presentation provides an in-depth analysis of autism spectrum disorder (ASD) prevalence and disparities in access to services in the United States. Dr. Maureen Durkin from the University of Wisconsin-Madison examines epidemiological data from the CDC's Autism and Developmental Disabilities Monitoring (ADDM) Network to highlight significant increases in autism prevalence over time, from 1 in 150 children in 2000 to 1 in 59 in 2014. The presentation explores racial, ethnic, and socioeconomic disparities in autism identification, showing that white children and those from higher socioeconomic backgrounds are more likely to receive ASD diagnoses compared to Black and Hispanic children. Dr. Durkin presents evidence suggesting these disparities are largely due to inequities in access to developmental assessments and healthcare services rather than true differences in prevalence. The presentation highlights the high costs associated with autism diagnosis and treatment, the unpreparedness of service delivery systems to meet growing needs, and emphasizes the importance of ongoing monitoring, early detection, and strategies to enhance healthcare access and equity for all children with ASD.

Link

Keywords: Access to care, Autism, Screening, Wisconsin, Title V programs, State CHSCN programs, Socioeconomic status, Colorado, Wisconsin

Fleischfresser S. 2019. Wisconsin Team Introduction and Presentation. Madison, WI: University of Wisconsin-Madison; Madison, WI: Waisman Center, 45 pp.

Annotation: From the 2019 Peer-to-Peer Exchange, this presentation outlines Wisconsin's initiatives in early childhood data systems and quality improvement efforts. It begins with the state's five Essential Policy Questions developed during their feasibility study, focusing on children's school readiness, program access, service quality, outcome effectiveness, and economic returns on early childhood investments. Included are descriptions of the Wisconsin's Engaged Community Quality Improvement (ECQuIP) sites in three regions, with a detailed focus on the Northwoods ECQuIP site's journey from establishing the Vilas County Family Resource Coalition to developing partnerships with Ascension Healthcare and building capacity for autism spectrum disorder (ASD) services, including diagnostic capabilities, interprofessional practice, and telemedicine options.

Presentation Slides

Keywords: Wisconsin, Title V programs, State CHSCN programs, Data collection,

Association of Maternal and Child Health Programs. 2019. Words matter: The use of language in destigmatizing mental illness. Washington, DC: Association of Maternal and Child Health Programs, 56 m 35 s.

Annotation: This webinar discusses the impact of stigma on mental health, with a focus on recognizing and reducing stigma. The presenters define stigma as a set of negative and unfair beliefs that devalue individuals with mental illness, and distinguish between public/social stigma and perceived/self stigma. They emphasize how stigma creates barriers to accessing services and contributes to unmet mental health needs. The session features three panelists: a program coordinator from the National Alliance on Mental Illness who discusses their educational programs and advocacy efforts; a parent and advocate who shares personal experiences raising a child with mental health challenges and the stigma encountered; and a maternal wellness manager who describes Colorado's public awareness campaigns addressing maternal mental health stigma. The webinar includes group discussions about effective strategies for destigmatization and highlights the importance of integrating mental health with physical health, increasing mental health literacy, and embedding mental health services in various settings.

Link

Keywords: Title V programs, Mental health,

Association of Maternal and Child Health Programs. 2018. AMCHP's implementation toolkit for National Performance Measure 4: (A) Percent of infants who are ever breastfed; (B) percent of infants breastfed exclusively through 6 months. Washington, DC: Association of Maternal and Child Health Programs, multiple items.

Annotation: This toolkit contains examples of strategies state Title V programs can use to address National Performance Measure 4, (A) Percent of infants who are ever breastfed; (B) percent of infants breastfed exclusively through 6 months. Strategies are listed in these categories: (1) policy and system approaches; (2) training and education; (3) community-driven resources; (4) increasing access to services; (5) culturally tailored resources; (6) data and metrics; and (7) safe sleep and breastfeeding. [Funded by the Maternal and Child Health Bureau]

Link

Keywords: Breastfeeding, Infants, Model programs, Resources for professionals, State programs, Title V programs

Association of Maternal and Child Health Programs. 2018. Bright Futures: An essential resource for advancing the Title V national performance measures. Washington, DC: Association of Maternal and Child Health Programs, 10 pp.

Annotation: This issue brief provides an overview of the Bright Futures guidelines and how the guidelines correlate with the Title V National Performance Measures.

Link

Keywords: Adolescent health, Block grants, Bright Futures, Child development, Child health, Child health supervision, Health promotion, Infant health, Measures, Model programs, Pediatric care, Policy development, Preventive health services, Program planning, Resources for professionals, Service delivery systems, Title V programs

Hall-Lande J, Askhir A, Dalbec B, Gulaid A. 2018. Building a network of community leaders to support early developmental screening: Minnesota Act Early delegate network in diverse cultural communities. [Minneapolis, MN]: Minnesota Autism Developmental Disabilities Monitoring Network; Minnesota Act Early; Minnesota Department of Health; University of Minnesota Institute on Community Integration, Research and Training Center on Community Living, 1 pp.

Annotation: This poster illustrates how the Minnesota Act Early and the Minnesota Department of Health cooperated to increase early childhood developmental screenings in their state. It outlines how the project trained parent leaders from Hmong, Somali, and Latino communities to promote awareness of developmental milestones and early intervention services. The document highlights the project's components, including recruitment of community leaders, customized cultural materials, and outreach through various channels such as radio stations and community events. The project involved partnerships between the Minnesota Department of Health, University of Minnesota, and several community organizations to integrate culturally appropriate developmental screening messages across diverse communities.

Link

Keywords: Minnesota, Developmental screening, State CSHCN programs, Posters, Family support services, Children', s health

2018. Consejo asesor juvenil operations guide (en espanol). [San Juan, PR]: Departamento de Salud de Puerto Rico, Consejo Asesor Juvenil, 7 pp.

Annotation: This Spanish-language document is the operational guide for the Youth Advisory Council (CAJ) under the Puerto Rico Department of Health, amended on June 16, 2018. It provides the council's mission and vision, emphasizing its role in representing Puerto Rican youth to promote accessible health information and community well-being. The guide details membership terms, meeting attendance, decision-making processes, and participation in activities. It also outlines the responsibilities of three key committees: Community Work, Communication, and Education, each tasked with specific duties to engage with the community, manage internal and external communication, and educate on health issues. The guide was revised and approved with amendments, emphasizing collaboration and youth participation in health initiatives.

Link

Keywords: Puerto Rico, Spanish language materials, Adolescent health

Tage S, Corona A, Bussanich P. 2018. Creating connections through telehealth: Linking children and their families, self-advocates, and providers. Washington, DC: Association of Maternal and Child Health Programs, State Public Health Autism Resource Center, 1 pp.

Annotation: This infographic discusses the lessons learned from the 2018 SPHARC Peer-to-Peer Exchange on using telehealth to connect children and their families, self-advocates, and providers for individuals with Autism Spectrum Disorder (ASD) and Developmental Disabilities (DD). Discussion points include the advantages of and barriers to telehealth, as well as the need for early and continuous intervention services. Lessons emphasize the importance of meaningful inclusion of self-advocates, addressing the unique challenges of family advocates, and showcasing innovative state grantee solutions. The document concludes with priority action items for states and the need to explore culturally competent care solutions to address the needs of diverse communities.

Link

Keywords: Autism, Telemedicine, Family support services, Delaware, Rhode Island, Washington, Wisconsin, Maryland, Iowa, New Hampshire, Minnesota, Texas, Virginia

Washington State Department of Health. 2018. Creating connections: Addressing the needs of children with autism and other developmental disabilities using telehealth. [Tumwater, WA]: Washington State Department of Health, 6 pp.

Annotation: This 2017 report from Washington State's AS3D (Autism Spectrum Disorders and Other Developmental Disabilities) Initiative examines the potential for expanding telehealth services for children with autism spectrum disorders and other developmental disabilities. The assessment, which included provider capacity surveys, key informant interviews, and family/caregiver feedback, the reveals significant barriers to telehealth implementation. Despite these challenges, both providers and caregivers expressed interest in telehealth and the document highlights the benefits that can be achieved by the successful implementation of a telehealth program.

Link

Keywords: Telehealth, Washington, Autism, State CHSCN programs, Surveys, Family support services, Children', s health

Honsberger K. 2018. Crosswalk to National Committee for Quality Assurance primary care medical home recognition. Washington, DC: Association of Maternal and Child Health Programs; [Portland, ME; Washington, DC]: National Academy for State Health Policy, 24 pp.

Annotation: This comprehensive guide, authored by Kate Honsberger, MPH, examines the complex landscape of healthcare delivery for Children and Youth with Special Health Care Needs (CYSHCN) in the context of evolving Medicaid managed care systems. The text addresses several key aspects of the issue, including the prevalence of CYSHCN (approximately 14 million U.S. children), their unique challenges in accessing coordinated care across multiple sectors, and significant disparities in healthcare access particularly affecting low-income and minority populations. The guide outlines two major frameworks - the National Standards for Systems of Care for CYSHCN and the NCQA Primary Care Medical Home Recognition program - and describes a crosswalk tool developed to align these standards within Medicaid managed care systems. The document emphasizes the critical importance of integrating CYSHCN-specific needs into healthcare policy and practice, highlighting how states and health plans can utilize the crosswalk tool to enhance care quality while maintaining compliance with NCQA standards, ultimately promoting more effective healthcare delivery for this vulnerable population.

Link

Keywords: Title V programs, CHSCN programs, Medical home, Medicaid, Managed care, Children', s Health

Bussanich P, Hirai A, Reuland C, . 2018. Developmental screening alignment: National performance measure 6 data and strategies. Washington, DC: Association of Maternal and Child Health Programs, 58 pp.

Annotation: These presentation slides focus on National Performance Measure 6 (Developmental Screening) and its associated evidence-based resources and technical assistance opportunities. The content covers evidence analysis findings regarding developmental screening quality improvement initiatives, highlighting that healthcare setting interventions and systems-level approaches show effectiveness, while noting that further research is needed for provider training and home visiting programs. It includes information about new evidence tools and resources available through MCH websites, and details the availability of technical assistance from Georgetown University and the National MCH Workforce Development Center. The presentation concludes with contact information for key personnel from AMCHP, HRSA/MCHB, and the Oregon Pediatric Improvement Partnership, along with an evaluation link for attendees.

Link

Keywords: Developmental screening, Autism, Case Studies, Oregon,

Hirai A, U.S. Maternal and Child Health Bureau; Reuland C, Oregon Pediatric Improvement Partnership . 2018. Developmental screening alignment: National performance measure 6 data and strategies. Washington, DC: Association of Maternal and Child Health Programs, 58 pp.

Annotation: This webinar presents data, resources, and strategies for state programs that focus on increasing developmental screening (national performance measure 6) among children ages 9 months through 71 months. Included are highlights of the multi-pronged approach to developmental screening used in Oregon and descriptions of NPM 6 resources available from the State Public Health Autism Resource Center and the U.S. Health Resources and Services Administration.

Link

Keywords: Children, Children with special health care needs, Development screening, Measures, Oregon, State initiatives, Statistical data

Association of Maternal and Child Health Programs. 2018. Family navigation implementation strategies in Title V and community-based programs. Washington, DC: Association of Maternal and Child Health Programs, 12 pp. (Issue Brief)

Annotation: This issue brief examines family navigation strategies implemented in Title V and community-based programs to support children and youth with special health care needs and their families. It describes how family navigators help families overcome barriers in the healthcare system by providing psychosocial support, coordinating services, and offering education. The document highlights findings from an environmental scan of Title V programs, showing that 56 of 59 Title V programs use some form of family navigation, with the majority focusing on children with special health care needs. Case studies from five states (Delaware, Iowa, Rhode Island, Washington, and Wisconsin) detail how they implemented, funded, and sustained family navigation programs, particularly for children with autism spectrum disorder and developmental disabilities. The brief concludes with next steps for advancing family navigation and emphasizes the importance of culturally sensitive communication when working with diverse families.

Link

Keywords: Standards, State CHSCN programs, Title V Programs, Autism, Case Studies, Delaware, Iowa, Rhode Island, Washington, Wisconsin,

Association of Maternal and Child Health Programs. 2018. Family navigation implementation strategies: Improving systems of care. Washington, DC: Association of Maternal and Child Health Programs, 11 pp. (Issue brief)

Annotation: This issue brief describes family navigation, an evidence-informed strategy intended to guide families through and around barriers in the health care system so that they may overcome obstacles faced when accessing or receiving care. It highlights how family navigation programs are being implemented across the United States and shares specific states’ examples of family navigation programs and activities in state systems of care, including state Title V Maternal and Child Health (MCH) programs and community-based programs. [Funded by the Maternal and Child Health Bureau]

Keywords: Children with special health care needs, Families, Health care systems, State programs

Association of Maternal and Child Health Programs. 2018. Guide to Title V data integration use cases. Washington, DC: Association of Maternal and Child Health Programs, 3 pp.

Annotation: This document from the Title V Data Integration Toolkit explains the development and use of data integration "use cases" for Title V maternal and child health programs working with Early Childhood Integrated Data Systems (ECIDS). It describes how use cases help determine which data elements, timeframes, and geographic boundaries are needed to answer specific program questions. The document outlines key considerations including data element integration requirements, analytic considerations, computed variables, data suppression techniques to protect privacy, and data quality assessment. It also explains the importance of the Common Education Data Standards (CEDS) framework, which provides standardized terminology and tools to facilitate data sharing across different systems.

Link

Keywords: Children', s health, s health, Data analysis, MCH training, Children'

Bishop A. 2018. How to hire a youth advisor. [Denver, CO]: Colorado Department of Public Health and Environment, 12 pp.

Annotation: This assessment tool provides organizations with a framework for implementing the Youth Advisor Model, which involves hiring young people (ages 16-21) to contribute their expertise on youth culture to organizational programs. The document includes a detailed organizational readiness assessment with sections covering program growth, youth advisor roles, organizational culture, processes, and necessary resources. It offers essential definitions related to positive youth development, outlines discussion questions for team reflection, and provides a detailed checklist for evaluating readiness in areas such as staff training, workspace allocation, and policy development. The assessment emphasizes the importance of addressing all identified gaps before hiring youth advisors and includes a progress evaluation tool to monitor implementation success over time. The document concludes with guidance on next steps and contact information for additional support resources through the Colorado Department of Public Health and Environment.

Link

Keywords: Colorado, Adolescent health, Advisory committees

2018. Icebreakers for youth advisory council meetings. Sl. : sn., 17 pp.

Annotation: This guide contains sixteen icebreakers to help facilitators of Rhode Island Department of Health Advisory Meetings to create effective meetings and group bonding. Each activity has recommendations for the size of the group for which it will be most applicable, as well as a list of materials needed and the type of leadership opportunity each event will provide. The icebreakers listed here are based on ideas generated from trainings, camps, theater groups, and other events.

Link

Keywords: Adolescent health, Advisory committees, Rhode Island

Bussanich P, Corona A. 2018. Leveraging partnerships to build better systems of care for early childhood development. Washington, DC: Association of Maternal and Child Health Programs, 24 pp.

Annotation: This presentation from AMCHP (Association of Maternal & Child Health Programs) discusses leveraging partnerships between Title V and Head Start to build better systems of care for early childhood development. It explains the role of Title V as the nation's longest-standing public health legislation focused on improving maternal and child health, including children with special health care needs. The presentation highlights how AMCHP supports states in addressing developmental screening through training, systems coordination, and data integration, with specific focus on National Performance Measure 6 (percent of children receiving developmental screening). The session addresses opportunities for cross-system collaboration, tools for aligning early childhood programs, and understanding developmental screening's role within comprehensive systems of early childhood services. Presenters Paige Bussanich and Anna Corona share resources including eLearning modules, data integration toolkits, and examples of successful state collaborations.

Link

Keywords: Early Childhood Development, Title V Programs, Head Start, Kentucky, North Carolina, Rhode Island

Association of Maternal and Child Health Programs. 2018. Maternal and child health workforce needs. Washington, DC: Association of Maternal and Child Health Programs, 8 pp.

Annotation: This infographic presents an analysis of the maternal and child health (MCH) workforce in the United States, drawing insights from the Public Health Workforce Interests and Needs Survey (PH WINS) 2017. The report discusses the makeup of the MCH workforce (highly educated, predominantly female, and facing significant turnover) and points both to areas where skill levels are high and where improvements are needed. The analysis highlights the need for targeted training and professional development to address these gaps, particularly as the workforce faces challenges around low pay, lack of advancement opportunities, and an aging demographic. These insights can inform workforce development strategies to support and retain the vital MCH workforce.

Link

Keywords: MCH programs, MCH nurses, Surveys, Nursing staff, Health personnel

2018. New Mexico's Title V CYSHSN program: Using the national standards as a framework for educating stakeholders. Washington, DC: Association of Maternal and Child Health Programs; [Portland, ME; Washington, DC]: National Academy for State Health Policy, 2 pp.

Annotation: This case study describes New Mexico's implementation of the National Standards for Systems of Care for Children and Youth with Special Health Care Needs (CYSHCN). It explains how the state's Title V program, housed within the Department of Health's Family Health Bureau, integrated these standards into its framework and action plans. The document highlights New Mexico's participation in an Action Learning Collaborative that brought together diverse stakeholders from Medicaid, managed care organizations, the family-to-family organization, and the Quality Improvement Partnership to establish common objectives. These objectives included developing a standard CYSHCN definition for Medicaid contracts, creating youth transition best practices, expanding family engagement, and strengthening medical homes with better care coordination. Key lessons learned and recommendations for next steps are included.

Link

Keywords: Title V Programs, New Mexico, Standards, Family Support Services, Medical Home, State CHSCN programs, Staff Development

2018. New York's Title V CYSHCN program: Using the national standards as a framework for action planning and data analysis. Washington, DC: Association of Maternal and Child Health Programs; [Portland, ME; Washington, DC]: National Academy for State Health Policy, 2 pp.

Annotation: This case study examines how New York State's Title V program leveraged the National Standards for Systems of Care for Children and Youth with Special Health Care Needs (CYSHCN) as a framework for improving healthcare delivery and system analysis. Operating through the Division of Family Health within the New York State Department of Health, the program conducted an extensive systems mapping project that included interviews with over 130 diverse families of CYSHCN. This comprehensive analysis revealed the primary needs for improvement, and highlights how New York aligned its improvement efforts with both the National Standards and other guidelines like the American Academy of Pediatrics' Bright Futures, while emphasizing family engagement as a core principle. The state found that linking their work to the National Standards enhanced stakeholder support and plans to continue using this framework to strengthen their healthcare system, ensuring consistency, equal access, and comprehensive support for CYSHCN and their families.

Link

Keywords: Title V Programs, New York, Standards, Data Analysis, Family Support Services, CHSCN programs

Bussanich P, Taft K. 2018. Partnering with Title V programs to integrate child welfare data into early childhood integrated data systems (ECIDS). Washington, DC: Association of Maternal and Child Health Programs;, 60 pp.

Annotation: These presentation slides focus on introducing the Association of Maternal and Child Health Programs (AMCHP's) Title V Data Integration toolkit to the child welfare community through interactive activities designed to support partnerships between agencies and Title V programs aimed at integrating child welfare data into early childhood integrated data systems (ECIDS) and learning best practices to identify needs and tailor programs aimed at improving family health. The presentation's core objectives center on identifying cross-system collaboration opportunities and understanding how data integration fits into comprehensive service systems for optimal family outcomes.

Link

Keywords: Children', s health, Adolescent health, Developmental screening, Child welfare, s health, Data analysis, MCH training, Children'

Honsberger K, VanLandeghem K. 2018. Serving children and youth with special health care needs in Medicaid managed care: Contracting language and the contracting process. Washington, DC: Association of Maternal and Child Health Programs; [Portland, ME; Washington, DC]: National Academy for State Health Policy, 21 pp.

Annotation: This report discusses the role of Medicaid managed care in serving children and youth with special health care needs (CYSHCN), highlighting the fact that over 40 states now enroll at least some CYSHCN in managed care plans as they seek to control costs and improve care quality. The document examines how four states (Texas, Virginia, Michigan, and Maryland) use specific contract language and management strategies to ensure managed care organizations (MCOs) effectively serve CYSHCN populations. Also discussed are key provisions around identification/assessment, access to care, medical homes, care coordination, and quality assurance, with detailed examples from each state's contracts. The document emphasizes that both strong contract language and active contract management are essential for ensuring MCOs meet the unique needs of CYSHCN, who comprise about 15% of U.S. children and require more frequent provider access, increased hospitalizations, and multiple medications compared to typical children.

Link

Keywords: Title V programs, CHSCN programs, Medical home, Medicaid, Managed care, Children', s Health, Regulations, Texas, Maryland, Virginia, Michigan

2018. State poster presentations from 2018 SPHARC peer-to-peer exchange. [Washington, DC]: State Public Health Autism Resource Center , 9 pp.

Annotation: These posters were presented at the 2018 annual SPHARC (State Public Health Autism Resource Center) Peer-to-Peer Exchange. 9 states discuss issues in telehealth, including their strengths, challenges, and strategies in their efforts to supply telehealth to their constituents. Each state panel is also given the opportunity to express an interesting fact about their state and what they hope to gain during this meeting.

Link

Keywords: Autism, Title V programs, CSHCN programs, Wisconsin, Washington, Virginia, Texas, Rhode Island, New Hampshire, Minnesota, Iowa, Delaware, Children', s health

Corona A. 2018. State systems for parent-engaged developmental monitoring: A review of eight years of state system-level grantee work. Washington, DC: Association of Maternal and Child Health Programs, 16 pp.

Annotation: This presentation reviews eight years of state system-level grantee work through the Learn the Signs. Act Early. (LTSAE) initiative focused on improving parent-engaged developmental monitoring. It examines how the Association of Maternal & Child Health Programs (AMCHP) provided grants to states to strengthen early identification systems for developmental delays and disabilities, including autism. The presentation identifies three key impact points: increased awareness among caregivers and providers about developmental monitoring, activated stakeholders and strengthened partnerships, and formalized developmental monitoring as a priority. It showcases case studies from Massachusetts, Oklahoma, and Virginia demonstrating successful approaches to integrating LTSAE developmental monitoring tools into state systems. Survey results indicate high rates of success, with 94% of grantees meeting their objectives and maintaining sustainable efforts. The presentation concludes by highlighting freely available LTSAE resources that can be integrated into existing early childhood systems.

Link

Keywords: Developmental screening, Autism, Grants, State CHSCN programs, Case Studies, Massachusetts, Oklahoma, Virginia

Bussanich P, Tage S. 2018. Systems coordination for the early identification of autism spectrum disorder and other developmental disabilities: Seven years of lessons learned. Washington, DC: Association of Maternal and Child Health Programs, 21 pp.

Annotation: This presentation from the Association of Maternal & Child Health Programs (AMCHP) discusses seven years of lessons learned in systems coordination for the early identification of Autism Spectrum Disorder and other developmental disabilities. It shares insights from the CDC's "Learn the Signs. Act Early." (LTSAE) initiative and state system-level grant work. The presentation highlights efforts across multiple states including Massachusetts, New Jersey, and Tennessee, showcasing various approaches to developmental monitoring and screening. It emphasizes the importance of early identification of developmental delays, explaining the distinction between developmental surveillance/monitoring and developmental screening. Key accomplishments include creating culturally competent resources, training healthcare providers, establishing partnerships, and integrating developmental monitoring tools into state systems. The presentation concludes with lessons learned about strengthening partnerships and implementing strategies that achieve both short and long-term goals to improve early identification services for children with ASD/DD.

Link

Keywords: Developmental screening, Autism, Grants, Massachusetts, New Jersey, Tennessee

Kwong MW. 2018. Telehealth reimbursement. [West Sacramento, CA]: Center for Connected Health Policy, 35 pp.

Annotation: This presentation by Mario Guttierez, Executive Director of the Center for Connected Health Policy (CCHP), focuses on telehealth reimbursement and its evolving landscape, particularly in relation to Medicare and state policies. The discussion highlights the role of telehealth in enhancing healthcare delivery, public health, and health education using digital telecommunication technologies, with the aim of improving health outcomes and equitable access to quality, affordable care.

Presentation Slides

Keywords: Telemedicine, Reimbursement, Health policy, Public policy, Regulations

Association of Maternal and Child Health Programs. 2018. The Power of Prevention: The Cost Effectiveness of Maternal & Child Health Interventions. Washington, DC: Association of Maternal and Child Health Programs, 17 pp.

Annotation: This issue brief provides strategies and examples of how the Title V program's focus on preventative efforts can lead to long-term health benefits and cost-savings. Preconception care, cesarean-section reduction, prenatal care, maternal smoking cessation newborn screening, breastfeeding promotion, healthy early childhood development, access to medical homes, immunization promotion, and childhood injury prevention are among the preventive measures addressed.

Link

Keywords: Child health, Cost containment, Cost effectiveness, Maternal health, Prevention programs, Prevention services, State MCH Programs, Title V programs, Women', s health

2018. Tips for families on working with the national standards. Washington, DC: Association of Maternal and Child Health Programs; [Portland, ME; Washington, DC]: National Academy for State Health Policy, 2 pp. (A Critical Tool to Improve Systems of Care for Children and Youth with Special Health Care Needs)

Annotation: This document provides guidance for families on using the National Standards for Systems of Care for Children and Youth with Special Health Care Needs (CYSHCN). It explains that these standards offer a framework for families, health policymakers, providers, and insurers to collaboratively improve care systems for CYSHCN. The document emphasizes the importance of these standards, noting that one in five U.S. children have special health care needs, yet four out of five CYSHCN families report not receiving care in a well-functioning system. It outlines practical ways families can use the standards as advocacy tools, including countering policies that overlook CYSHCN needs, promoting family partnerships in health-related services, and sharing knowledge with other families. The second page highlights successful implementation examples from Iowa, Georgia, Kansas, and Minnesota, and describes available resources including assessment tools, communication materials, and online toolkits to help families work with the standards to improve care systems.

Link

Keywords: State CHSCN programs, Standards, Family Centered Health Care, State CHSCN programs, Case Studies, Iowa, Georgia, Kansas, Minnesota

2018. Tips for health care providers on implementing the national standards. Washington, DC: Association of Maternal and Child Health Programs; [Portland, ME; Washington, DC]: National Academy for State Health Policy, 2 pp. (A Critical Tool to Improve Systems of Care for Children and Youth with Special Health Care Needs)

Annotation: This tip sheet outlines how healthcare providers can utilize the National Standards for Systems of Care for Children and Youth with Special Health Care Needs (CYSHCN) to improve service delivery. It provides specific guidance for providers on implementing the Standards, which emphasize the importance of family partnership in decision-making and evidence-based care delivery. The Standards serve as a comprehensive framework designed to foster collaboration between healthcare providers, health plans, and state health programs to ensure coordinated, family-centered care.

Link

Keywords: Standards, State CHSCN programs, Health Care Providers, Case Studies, Georgia, Delaware, Kansas, Massachusetts

2018. Tips for health plans on implementing the national standards. Washington, DC: Association of Maternal and Child Health Programs; [Portland, ME; Washington, DC]: National Academy for State Health Policy, 2 pp. (A Critical Tool to Improve Systems of Care for Children and Youth with Special Health Care Needs)

Annotation: This tip sheet provides guidance for health plans on implementing the National Standards for Systems of Care for Children and Youth with Special Health Care Needs (CYSHCN). It explains that these standards offer a framework for ensuring comprehensive, coordinated, family-centered care, noting that while one in five U.S. children has special health care needs, four out of five CYSHCN families report not receiving care in a well-functioning system. The tip sheet outlines specific ways health plans can use the standards, including developing managed care programs to meet unique needs, coordinating with all entities providing care, improving enrollment and transition processes, and creating appropriate benefit plans. The second page highlights successful implementation examples from Delaware, Massachusetts, and Virginia, and describes available resources for health plans including assessment tools, a NCQA crosswalk, Medicaid managed care contracting tools, and quality measurement resources. The document directs readers to online toolkits and a mobile-friendly site for accessing these materials.

Link

Keywords: Standards, State CHSCN programs, Delaware, Massachusetts, Virginia, Assessment Tools, Medicaid

Association of Maternal and Child Health Programs; National Academy for State Health Policy . 2018. Tips for Medicaid on implementing the national standards. Washington, DC: Association of Maternal and Child Health Programs, 2 pp.

Annotation: This tip sheet explains how Medicaid programs can implement national standards to improve systems of care for children and youth with special health care needs. Included are examples from successful state programs and a list of additional resources.

Link

Keywords: Adolescents with special health care needs, Children with special health care needs, Health care systems, Medicaid, Standards

Association of Maternal and Child Health Programs;. 2018. Title V and newborn screening: State performance measures and long-term follow-Up. Washington, DC: Association of Maternal and Child Health Programs;, 6 pp. (Issue Brief)

Annotation: This report is a comprehensive analysis of how Title V Maternal and Child Health (MCH) Services Block Grant programs support newborn screening initiatives in the United States. It examines the various ways Title V programs integrate newborn screening into their state-level priorities and action plans, including adopting specific performance measures related to newborn screening. The document also explores the long-term follow-up activities conducted by Title V programs, such as care coordination through medical homes, ensuring evidence-based treatment, and ongoing data surveillance and evaluation. The findings illustrate the critical role Title V programs play in building and maintaining coordinated systems of care for children and youth with special health care needs identified through newborn screening, including providing essential services, tracking outcomes, and driving continuous quality improvement.

Link

Keywords: Title V programs, Developmental screening, Infant health, Performance measures

Association of Maternal and Child Health Programs . 2018. Title V and Newborn Screening: State Performance Measures and Long-Term Follow-Up. Washington, DC: Association of Maternal and Child Health Programs, 6 pp.

Annotation: This issue brief describes an environmental scan of states and jurisdictions that adopted state performance measures related to newborn screening in their application for a federal Title V Block Grant. Included is an overview of newborn screening long-term follow-up activities documented in the fiscal year 2018 block grant applications entered in the Title V Information System.

Link

Keywords: MCH programs, Measures, Neonatal screening, Performance measurement, State Initiatives

2018. Title V data integration state example: Kentucky. Washington, DC: Association of Maternal and Child Health Programs, 3 pp.

Annotation: This report discusses the Title V Data Integration Toolkit, focusing on Kentucky's experience with integrating early childhood and public health data into their state's longitudinal data system. In 2015, KCEWS (Kentucky Center for Education and Workforce Statistics) collaborated with GOEC (Governor’s Office of Early Childhood) and the Early Childhood Advisory Council to develop a county-level "Early Childhood Profile" using KLDS (Kentucky’s Longitudinal Data System) data. This profile combines integrated data with data planned for future integration, covering areas such as kindergarten readiness, child care capacity, and early childhood indicators on family, health, and social services. It includes public health data from programs like HANDS home visitation, WIC, and First Steps early intervention. Key takeaways from Kentucky's experience include demonstrating the value of integrated data early, prioritizing privacy and confidentiality, ensuring data sources understand how their data will be used, and learning from other states' experiences with public health data integration.

Link

Keywords: Title V programs, Data collection, Data analysis, Public health agencies, Kentucky, MCH training, Children', s health

Association of Maternal and Child Health Programs. 2018. Title V data integration state example: North Carolina. Washington, DC: Association of Maternal and Child Health Programs, 4 pp.

Annotation: This report describes North Carolina's Early Childhood Integrated Data System (NC ECIDS) as part of the Title V Data Integration Toolkit. It details how the state built this advanced data system with Race to the Top - Early Learning Challenge funding in 2012 and later secured ongoing state funding. The system integrates data from multiple public programs including early childhood education, social services, and public health sources such as SNAP and Child Protective Services, with plans to add WIC data in the future. The report explains the governance structure, which includes an Executive Committee and Program Management Committee with representation from contributing agencies, and outlines the data request and approval process. NC ECIDS generates standard and customizable reports that show unduplicated counts of children receiving services, allowing users to analyze program participation patterns and demographic data.

Link

Keywords: Title V programs, Data collection, Data analysis, Public health agencies, North Carolina, MCH training, Children', s health.

Association of Maternal and Child Health Programs. 2018. Title V data integration state example: Rhode Island. Washington, DC: Association of Maternal and Child Health Programs, 4 pp.

Annotation: This document describes Rhode Island's public health data integration systems as part of the Title V Data Integration Toolkit. It details two main systems: the RI DataHUB, a statewide longitudinal data system managed by the University of Rhode Island that integrates public health data with education and other social services data; and KIDSNET, a universal database for young children managed by the Rhode Island Department of Health that assigns unique identifiers at birth and tracks health services. The document explains how these systems facilitate data sharing across programs, manage privacy concerns through appropriate agreements and HIPAA compliance, and generate both individual-level reports for service providers and aggregate data for public use.

Link

Keywords: Title V programs, Data collection, Data analysis, Public health agencies, Rhode Island, MCH training, Children', s health

Association of Maternal and Child Health Programs. 2018. Title V data integration tip sheet: Getting a seat at the table. Washington, DC: Association of Maternal and Child Health Programs, 1 pp.

Annotation: This guide expresses the fundamental need for Title V programs to clearly articulate their purpose, participation objectives, and potential contributions in partnering with an ECIDS (Early Childhood Integrated Data System). The tip sheet provides guidance for Title V programs on how to communicate their aims and the value they can bring to an ECIDS, as well as the questions they should ask the ECIDS representative concerning data sharing and how data is handled. It concludes with a resource section providing tools for stakeholder engagement, communication planning, and strategic integration into healthcare planning activities.

Link

Keywords: Title V programs, Data analysis, Children', s health

Association of Maternal and Child Health Programs. 2018. Title V data integration tip sheet: Obtaining leadership support. Washington, DC: Association of Maternal and Child Health Programs, 1 pp.

Annotation: One of several from AMCHP that deals with Title V Data Integration, this tip sheet emphasizes the critical role of leadership in successfully integrating Title V data into an Early Childhood Integrated Data System (ECIDS). The document emphasizes that genuine engagement through discussion, debate, and shared problem-solving helps Title V programs recognize the value proposition of ECIDS participation, thereby increasing stakeholder investment in data integration initiatives. Included are links to resources and tools for obtaining leadership support on data integration.

Link

Keywords: Title V programs, Data analysis, Children', s health, MCH training, Administration

Association of Maternal and Child Health Programs. 2018. Title V data integration tip sheet: Parental consent. Washington, DC: Association of Maternal and Child Health Programs, 1 pp.

Annotation: This tip sheet on Title V and parental consent outlines essential guidelines for effectively integrating Title V data into an Early Childhood Integrated Data System (ECIDS) while respecting family preferences regarding data sharing. It emphasizes best practice in informing parents of privacy rights and their options concerning decision making. Title V programs are encouraged to thoroughly review relevant federal, state, local, and internal regulations as well as the ECIDS Data Governance Manual to ensure compliance with parental consent requirements. The guide includes a list of resources and tools for dealing with issues of parental consent.

Link

Keywords: Title V programs, Data analysis, Children', s health, Parental consent, MCH training,

Association of Maternal and Child Health Programs. 2018. Title V data integration tip sheet: Purpose and vision statement. Washington, DC: Association of Maternal and Child Health Programs, 1 pp.

Annotation: In this tip sheet, AMCHP (Association of Maternal and Child Health Programs) provides guidance on creating a purpose and vision statement for Title V programs integrating their data into Early Childhood Integrated Data Systems (ECIDS). This document is meant to serve as a guide throughout the planning, implementation, and continuous improvement phases. The guide outlines the components of an effective purpose and vision statement and explains how data sharing can improve population health and primary care, support public health professionals and organizations, and ultimately lead to better outcomes for children and families. Included in the guide are references to additional resources and tools for developing purpose and vision statements in the context of early childhood data systems.

Link

Keywords: Title V programs, Data analysis, Children', s health, MCH training

Association of Maternal and Child Health Programs. 2018. Title V data integration tip sheet: Return on investment. Washington, DC: Association of Maternal and Child Health Programs, 1 pp.

Annotation: This tip sheet from AMCHP provides guidance on integrating Title V data into the Early Childhood Integrated Data Systems (ECIDS), emphasizing the importance of establishing a return on investment (ROI) for Title V programs. The document recommends early engagement between leadership from both the Title V program and ECIDS to discuss ROI and suggests several ways in which ROI can be measured. The importance of documenting and regularly reviewing the ROI is also stressed. The guide incoporates links to presentations on creating a statewide longitudinal data system (SLDS) for further information.

Link

Keywords: Title V programs, Data collection, Data analysis, MCH training, Children', s health

Association of Maternal and Child Health Programs. 2018. Title V data integration use case: Autism. Washington, DC: Association of Maternal and Child Health Programs, 24 pp.

Annotation: This report outlines the Title V Data Integration Toolkit's use case for autism. It highlights the increasing incidence of autism and the importance of early identification, diagnosis, and intervention. The document emphasizes how autism data can help Title V programs improve screening opportunities and services and notes that Title V programs participating in ECIDS can access autism data for strategic planning. It provides guidance on analyzing autism data, highlighting the importance of considering the 2013 DSM V criteria changes and adapting analysis to state-specific needs. Overall, this use case aims to help Title V programs use ECIDS data to gain insights into autism diagnosis, early intervention, and service provision in their states.

Link

Keywords: Autism, Children', s health, Data analysis, MCH training

Association of Maternal and Child Health Programs. 2018. Title V data integration use case: Community-based services. Washington, DC: Association of Maternal and Child Health Programs, 38 pp.

Annotation: This report focuses on the Title V Data Integration Toolkit's use case for analyzing community-based services data through Early Childhood Integrated Data Systems (ECIDS). It emphasizes the importance of coordinated and integrated community-based services for children and families, highlighting how data integration can help Title V programs track referrals, monitor progress, and inform decision-making. The report suggests that Title V programs should request a current list of data sources from ECIDS to understand what data can be included in each analysis, and encourages Title V programs to adapt the information to fit their state's specific needs and potentially analyze data by various factors such as time, geographic area, or demographic variables. Overall, this use case aims to help Title V programs leverage ECIDS data to gain insights into community-based services, their utilization, and their impact on children's readiness for kindergarten and overall well-being.

Link

Keywords: Title V programs, Data collection, Data analysis, Public health agencies, Community based services, Children', s health, MCH training

2018. Title V data integration use case: Developmental screening. Washington, DC: Association of Maternal and Child Health Programs, 13 pp.

Annotation: This report outlines a use case for Title V programs to leverage Early Childhood Integrated Data Systems (ECIDS) to analyze developmental screening data for children from birth through age 5. The document is part of the Title V Data Integration Toolkit and focuses on two key questions: how many children are receiving developmental screenings using parent-completed tools, and how many are achieving five-domain developmental health based on these screenings. The document provides detailed guidance on analytic considerations, including the importance of defining which screening tools to analyze, understanding data sources within the ECIDS, and determining how to handle multiple screenings for individual children. A comprehensive list of recommended data elements is provided, including child identifiers, demographic information, and screening-related data. Examples of data visualization are provided using fictitious data, showing how to present overall screening rates and breakdowns by age categories.

Link

Keywords: Title V programs, Data collection, Data analysis, Public health agencies, Developmental screening, Data integration, MCH training, Children', s health

Association of Maternal and Child Health Programs and Adolescent and Young Adult Health National Resource Center. 2018. Transforming heath care for adolescents and young adults: Change package concepts, strategies, and materials to improve access to and quality of preventive service visits. Washington, DC: Association of Maternal and Child Health Programs and Adolescent and Young Adult Health National Resource Center,

Annotation: This set of slides describes change concepts and implementation strategies for increasing awareness, knowledge and perceived benefit of the annual well-visit (AWV) for adolescents and young adults. Initial slides are narrated via audio, rest are visual only.

Keywords: Adolescents, Health supervision, Program improvement, Young adults

Washington State Department of Health. 2018. Washington state telehealth capacity assessment: Family/caregiver perspectives on telehealth in Washington. [Tumwater, WA]: Washington State Department of Health, 2 pp.

Annotation: This report from the Washington State Department of Health provides insights into how telehealth can improve access to services for children with autism spectrum disorder and other developmental disabilities, particularly in underserved and rural areas. Funded by the AS3D (Autism Spectrum Disorders and Other Developmental Disabilities) federal grant, the goal of this initiative is to increase early diagnosis and service entry for these populations by leveraging telehealth. To better understand how families access and use telehealth, a survey was conducted in 2017, focusing on caregiver access to technology, interest in telehealth, and the barriers they face. The survey analyzed responses from 118 caregivers, with 94.4% being mothers and 42% on Medicaid insurance. Survey respondents discuss barriers and benefits of telehealth care, their child’s engagement with telehealth compared to in-person visits, insurance coverage, and their desire for more information on various topics. Overall, this assessment underscores the potential of telehealth to bridge gaps in service access for children with special health care needs, while highlighting the importance of addressing caregiver concerns about technology, security, and insurance coverage to ensure broader telehealth adoption.

Link

Keywords: Telehealth, Washington, Autism, State CHSCN programs, Surveys, Family support services, Children', s health

Washington State Department of Health. 2018. Washington state telehealth capacity assessment: Provider perspectives on telehealth in washington. [Tumwater, WA]: Washington State Department of Health, 2 pp.

Annotation: This document presents findings from a 2017 survey conducted by the Washington State Department of Health on telehealth capacity for autism spectrum disorder and developmental disabilities services. The assessment, part of the federal Autism Spectrum Disorder and Developmental Disabilities (AS3D) grant work, surveyed 52 healthcare providers including applied behavioral analysis (ABA) providers, Centers of Excellence for autism, and neurodevelopmental centers. Survey results show approximately one-third of respondents currently offer telehealth services, with ABA providers having the highest implementation rate (53%). The most common barrier to telehealth adoption reported by non-offering providers was lack of technical knowledge, while providers already offering telehealth cited billing/reimbursement challenges as their primary concern. Additional barriers included HIPAA compliance, patient trust, and organizational capacity for change.

Link

Keywords: Telehealth, Washington, Autism, Surveys, State CHSCN programs, Children', s health

2018. Washington's Title V CYSHCN program: Using the national standards as a framework to sustain statewide systems improvements. Washington, DC: Association of Maternal and Child Health Programs; [Portland, ME; Washington, DC]: National Academy for State Health Policy, 2 pp.

Annotation: This case study examines how Washington State's Title V Children and Youth with Special Health Care Needs (CYSHCN) program utilized the National Standards for Systems of Care as a framework to improve healthcare systems and policies. Operating through the Office of Family and Community Health Improvement, Washington's program strategically aligned its action plan with the National Standards to address barriers in healthcare access and service delivery. The program demonstrated significant influence on policy development despite lacking direct decision-making authority, primarily by fostering partnerships, providing technical assistance, and advocating for policy improvements. The case study highlights how the National Standards served as an effective educational tool for partners and new staff, providing accountability for the Title V action plan and helping identify necessary system improvements. Moving forward, Washington plans to continue using the Standards to address coverage gaps, enhance insurance authorization processes, and strengthen partnerships with family-led organizations, while maintaining a focus on leveraging Medicaid resources effectively.

Link

Keywords: Title V Programs, CHSCN programs, Health Insurance, Washington, Standards

2018. Working effectively with interpreters checklist. [Kent, WA]: Open Doors for Multicultural Families, 1 pp.

Annotation: This checklist outlines a comprehensive approach to ensure productive communication when using interpreters during meetings with parents or clients, particularly in the context of special education and disability services. It provides suggestions for the interviewer to use before, during, and after the meeting using the interpreter to ensure effective communication with the parent or client.

Link

Keywords: Cultural sensitivity, Cultural diversity, CHSCN programs, Children', s health, Adolescent health

Association of Maternal & Child Health Programs and the National Academy for State Health Policy. 2017 . National standards systems of care for children and youth with special health care needs (rev ed). Washington, DC: Association of Maternal and Child Health Programs; Portland, ME: National Academy for State Health Policy, 36 pp.

Annotation: This resource provides a set of system standards that can be used or adapted for use by various systems and organizations that serve CYSHCN. This includes state Title V programs, state Medicaid and CHIP programs, private and public health plans, pediatricians and other health care providers, family/consumer groups, as well as families themselves. Topics include (1) identification, screening, assessment, and referral; (2) eligibility and enrollment in health coverage; (3) access to care; (4) medical home; (5) community-based services and supports; (6) transition to adulthood; (7) health information technology; and (8) quality assurance and improvement.

Keywords: Adolescents with special health care needs, Children with special health care needs, Standards, Young adults

Adolescent and Young Adult Health Resource Center . 2017 . Strategies to Increase AYA Clinical Well Visits. San Francisco, CA: Adolescent and Young Adult Health Resource Center , 7 pp.

Annotation: This summary of opportunities for clinic staff and providers describes five strategies to help increase the rate of adolescent well-visits.

Link

Keywords: Adolescent health, Adolescents, Clinics, Disease prevention, Prevention services, Young adults

Iowa Department of Public Health. 2017. 5 Things teens need to know. [Des Moines, IA]: Iowa Department of Public Health, 1 pp.

Annotation: This poster from Iowa CoIIN (Collaborative Improvement and Innovation Network) enumerates 5 points on adolescent health and well visits. It was sponsored by the Iowa Department of Public Health. Further information is available via a website and a toll-free telephone number.

Link

Keywords: Iowa, Posters, Adolescents, Adolescent health services, Adolescent health promotion

2017. AYAH project overview. [Concord, NH]: New Hampshire Pediatric Improvement Program; New Hamphsire Pediatric Improvement Partnership and the NH Division of Public Health Services, Maternal and Child Health Section, 1 pp.

Annotation: This one page flyer from the New Hampshire CoIIN team provides an overview of the AYAH COIIN project, displaying clinic benefits to be part of the project. The flyer provides details on how NH Pediatric Improvement Partnership and the NH Division of Public Health Services, Maternal and Child Health Section collaborate to improve NH adolescent and young adult access to and quality of preventive health care visits.

Link

Keywords: New Hampshire, Adolescent health,

The Autism Project . 2017. Call me anything, Just don't call me late for dinner!: The evolution of family navigation in Rhode Island. . [Johnstone, RI]: The Autism Project, 33 pp.

Annotation: This PowerPoint presentation provides an overview of how family navigation services have developed in Rhode Island, focusing on the roles and impacts of three key organizations in supporting families of children with special healthcare needs, particularly those with autism. The information concerns the Autism Project's Family Support Program, the RI Department of Health's PPEP (Pediatric Practice Enhancement Project) and their interaction with RIPIN (Rhode Island Parent Information Project, an organization created by parents for families of children with special healthcare needs). The presentation details both system-level and individual-level evaluations, utilization analyses, and projections of cost savings from these integrated systems, emphasizing the importance of family support in healthcare. The evaluation framework and family support programming detailed in this document highlight the importance of integrated care systems in improving outcomes for individuals with disabilities.

Presentation Slides

Keywords: Rhode Island, Autism, Family support services

Association of Maternal and Child Health Programs . 2017. Centering Women in the Postpartum Period: Dr. Handler. Washington, DC: Association of Maternal and Child Health Programs,

Annotation: This short video features an interview with Dr. Handler-- a health practioner who emphasizes the importance of the postpartum period in a woman's life. She explains how this period is pivotal on the prenatal--interconception-well woman continuum, pointing out that new mothers often don't receive the care and attention they need. She briefly discusses new models of care that would focus on the physical and mental health of both mother and infant.

Link

Keywords: Maternal health, Postpartum care, Postpartum depression, Women', s health

Association of Maternal and Child Health Programs. 2017. Centering Women in the Postpartum Period: Heather. Washington, DC: Association of Maternal and Child Health Programs,

Annotation: This short video features an interview with Heather-- a new mother who experienced postpartum depression after giving birth to twins. She describes her health complications, both physical and emotional, including her sadness when she was unable to sustain breastfeeding beyond 5 weeks.

Link

Keywords: Childbirth, Maternal health, Mental health, Postpartum depression

A.Y.A. CoIIN Youth Participants. 2017. CHAMP chart review adolescent visits. Washington, DC: Association of Maternal and Child Health Programs; [San Francisco, CA]: Adolescent and Young Adult National Resource Center, 1 pp.

Annotation: This poster was created by youth participants of AYAH CoIIN (Adolescent and Young Adult Health Collaborative Improvement and Innovation Network) listing steps to youth-friendly healthcare. With colorful illustrations, it demonstrates the ways clinicians can create an environment and incorporate policies that will increase the comfort of their young patients.

Link

Keywords: Adolescent health, Quality assurance, Posters

2017. Communications planning and brainstorming worksheet. [Minneapolis, MN]: Konopka Institute for Best Practices in Adolescent Health [Ed.: became University of Minnesota, State Adolescent Health Resource Center, now shuttered], 3 pp.

Annotation: This worksheet serves as a template for organizing and strategizing key communication messages. It's particularly focused on promoting female referees but can be adapted for various topics. The 3-page format includes graphs and outlines to help communication professionals effectively describe their audience, segmentations, and delivery mechanisms. By clearly defining the audience, choosing the right delivery mechanisms, and evaluating the implementation, communication professionals can enhance their outreach and impact.

Link

Keywords: Minnesota, Adolescent health, Communications

Association of Maternal and Child Health Programs and National Institute for Children's Health Quality. 2017. Early childhood developmental screening and Title V: Building better systems. Washington, DC: Association of Maternal and Child Health Programs; Boston, MA: National Institute for Children's Health Quality, 13 pp. (An issue brief sharing Title V strategies and measures on National pPerformance Measure 6: Developmental screening)

Annotation: This issue brief provides insight into developmental screening activities of Maternal and Child Health Title V state programs, which are aimed at addressing the growing incidence of developmental disabilities and improving comprehensive systems and services to better support early childhood development. It describes activities of states which have chosen National Performance Measure 6 (Percentage of children, ages 9 through 71 months, receiving a developmental screening using a parent-completed screening tool), discusses challenges, and point to next steps.

Link

Keywords: Developmental screening, Measures, State programs, Title V programs

Association of Maternal and Child Health Programs; Association of State and Territorial Health Officials . 2017. Ensuring coverage for reproductive health services during the Zika virus outbreak : The critical role of Medicaid. Washington, DC: Association of Maternal and Child Health Programs; [Arlington, VA]: Association of State and Territorial Health Officials , 8 pp. (Policy Brief)

Annotation: This policy brief outlines the many ways in which Medicaid is addressing the Zika crisis, through targeted state grants, expanded benefits, and by financing family planning services for individuals of reproductive age. It examines the potential changes to Medicaid that have been proposed as part of a broader effort to repeal and replace the Patient Protection and Affordable Care Act (ACA), and the potential implications of these proposals during the Zika virus outbreak. This policy brief is released in conjunction with "Stemming the Zika Virus: The Importance of Access to Care for Women and Men of Reproductive Age." This latter brief outlines the critical role of state public health leaders and maternal and child health professionals in combatting the Zika virus; it also features specific examples of prevention and treatment efforts underway in high-risk Zika states. Used together, these briefs highlight the dual role that federal funding and state action play in addressing a public health emergency.

Link

Keywords: Maternal health, Infant health, Virus diseases, Medicaid, Reproductive health

Colorado Youth Partnership for Health. 2017. Fact sheet: The Youth Partnership for Health. [Denver, CO]: Colorado Youth Partnership for Health, 2 pp.

Annotation: This fact sheet provides information on how Colorado's Youth Partnership for Health Program utilized youth to create successful state-wide programs, and to produce a DVD and guide on creating partnerships that have been distributed across the country. The document describes how the YPH program, running since 2000, demonstrates the benefit of investment in youth-adult partnerships in public health decision-making.

Link

Keywords: Colorado, Adolescent health programs, Adolescent health promotion, Program development

Langevin D. 2017. Family support: The Autism Project's toolkit. Johnstone, RI: The Autism Project, 21 pp.

Annotation: This presentation describes The Autism Project's toolkit for family support. It outlines the program's primary goal to improve Rhode Island's system-level of care integration for children and youth with Autism Spectrum Disorder and Developmental Disabilities, and their families. The presentation details the "Creating the Connections" initiative that works across core communities in Rhode Island, strengthening existing resources through Family Support Specialists who provide navigation services, education, and direct support to families. The toolkit includes training modules, intervention methodologies, resource sharing, and family-centered approaches that emphasize listening, empathy, and responsive support tailored to individual family needs.

Presentation Slides

Keywords: Rhode Island, Autism, Family support services

Association of Maternal and Child Health Programs. 2017. Increasing access to contraception in the context of Zika preparedness: Perspectives from state and local public health sgencies. Washington, DC: Association of Maternal and Child Health Programs, 2 pp. (Issue Brief)

Annotation: This document reports on the findings of a one-day meeting convened in fall 2016 by AMCHP (Association of Maternal and Child Health Programs) to discuss state-implemented approaches to increasing access to the full range of contraceptive methods, including long-acting reversible contraception (LARC), in the context of Zika preparedness. It summarizes the seven strategies that could help increase access to birth control by facilitating partnerships between providers, insurers, and state agencies, by remove barriers to access to birth control, and more. This publication was supported by Cooperative Agreement #CDC-RFA-DP15-1507 from the Centers for Disease Control and Prevention (CDC), Division of Reproductive Health.

Link

Keywords: Maternal health, Infant health, Virus diseases, Reproductive health, Contraceptives

Iowa Adolescent and Young Adult Collaborative Improvement and Innovation Network (AYA CoIIN). 2017. Iowa CoIIN Focus Group Protocol with Youth and Parents. , 4 pp.

Annotation: This document provides the interview protocol for the focus groups that were conducted with adolescents and parents/caregivers of teenagers, used to identify their awareness about the well adolescent visit. Included are a series of prompts and questions for participants in the Iowa Adolescent and Young Adult Collaborative Improvement and Innovation Network (AYA CoIIN).

Link

Keywords: Adolescent health, Focus groups, Interventions, Parent participation, Prevention programs, Youth

Shea G. 2017. Marketing brochure. Washington, DC: Association of Maternal and Child Health Programs, 5 pp.

Annotation: This document contains various marketing posters for adolescent health clinics as well as the compilation of the findings of AYA (adolescent and young adult) responses around access and needs of care. Also included are resources that practitioners can utilize in their efforts to communicate and connect with young patients.

Link

Keywords: Adolescent health, Clinics, Posters, Marketing

2017. National standards for systems of care organizational analysis tool: Multiple-organization. [Rockville, MD]: Health Resources and Services Administration, Maternal and Child Health Bureau, 96 pp.

Annotation: The Multi-Organization Statewide Systems of Care Analysis Tool is designed to help entities and partners serving CYSHCN assess their system's structure and capacity. This includes organizations such as state Title V, Medicaid, CHIP programs, health plans, provider groups, and family organizations. The tool helps stakeholders evaluate how well their organization or system ensures access and quality care for CYSHCN by measuring their ability to implement the policies and processes outlined in the National Standards. Once completed, the results of the assessment can be shared with team members to ensure transparency and collaboration. The tool also prompts organizations to reflect on their policies, procedures, and capacity to meet the standards.

Link

Keywords: State CSHCN programs, Title V programs, Quality assessment, CSHN programs

2017. National standards for systems of care organizational analysis tool: Single-organization. [Rockville, MD]: Health Resources and Services Administration, Maternal and Child Health Bureau, 48 pp.

Annotation: The Single-Organization Statewide Systems of Care Assessment Tool is designed to help individual organizations assess their capacity to provide quality care for Children and Youth with Special Health Care Needs (CYSHCN). This tool is grounded in the National Standards for Systems of Care for CYSHCN, which outline the key components of a comprehensive system aimed at ensuring access to quality care. These standards are based on core outcomes established by the Maternal and Child Health Bureau and Health Resources and Services Administration, developed through extensive research and expert input. The tool is intended for members of a single organization, such as a state Medicaid office or a health plan. The goal is for each stakeholder group engaged in CYSHCN care to conduct this self-assessment. The results can then be shared with other organizations to collectively assess the broader system of care using the Multi-Organization Statewide Systems of Care Analysis Tool.

Link

Keywords: State CSHCN programs, Title V programs, Quality assessment, CSHN programs

Association of Maternal and Child Health Programs. 2017. National Title V children and youth with special health care needs program profile. Washington, DC: Association of Maternal and Child Health Programs, 15 pp.

Annotation: This report provides a snapshot of Title V Children and Youth with Special Health Care Needs (CYSHCN) programs across the United States. Contents include background and history of CYSHCN programs, recent changes affecting CYSHCN programs, and methods and results from an electronic survey of Title V CYSHCN directors to assess key characteristics of each state's CYSHCN program. Topics include program structure and strengths, roles in systems of care, CYSHCN program partnerships, financing of care for CYSHCN populations and emerging issues for CYSHCN programs.

Link

Keywords: Advocacy, Children with special health care needs, Community based services, Consultation, Cultural competency, Data, Family centered care, Financing, Health care delivery, Health care reform, Health care systems, Health insurance, Leadership, Medicaid managed care, Models, Networking, Pediatric care, Policy development, Program coordination, Program development, Public health infrastructure, Public private partnerships, Quality assurance, Reimbursement, Role, Standards, State MCH programs, Title V programs

Association of Maternal and Child Health Programs. 2017. Pathways to family leadership within AMCHP. Washington, DC: Association of Maternal and Child Health Programs, 5 pp.

Annotation: This document defines the term "family leader" and describes the roles for family leaders in the Association for Maternal and Child Health Programs' activities. Topics include title, eligibility criteria, selection process, timeline, and duties.

Link

Keywords: Collaboration, Community participation, Consultants, Employment, Families, Leadership, Mentors, Parent participation, Parent professional relations, Public private partnerships, Recruitment, Special health care services, State MCH programs, Teaching, Technical assistance, Title V programs, Training, Volunteers, Work force

Adolescent and Young Adult National Resource Center. 2017. Patient survey (general AYAH). Washington, DC: Association of Maternal and Child Health Programs; [San Francisco, CA]: Adolescent and Young Adult National Resource Center, 16 pp.

Annotation: This document is a survey for AYA (adolescent and young adults) patients of health care clinics. The survey asks for demographic information from the patient, as well as the reason for the visit and satisfaction with the visit itself. Some questions concern the patient's confidentiality and how / whether it was explained to them during the visit. There are separate questions for different age demographics (10-13, 14-17, and 18-25). The survey was created by the Adolescent and Young Adult Health Collaborative Improvement and Innovation Network.

Link

Keywords: Adolescent health, Quality assessment, Surveys

White I, Watson A. . 2017. Patient survey guidebook (general AYAH). Washington, DC: Association of Maternal and Child Health Programs; [San Francisco, CA]: Adolescent and Young Adult National Resource Center, 8 pp.

Annotation: This patient survey guide provides instructions on how participants of AYAH CoIIN (Adolescent and Young Adult Health Collaborative Improvement and Innovation Network) should administer the Adolescent and Young Adult (AYA) Patient Satisfaction Survey. It explains that the survey is confidential and suggests how the participants should go about recruiting patients to take the survey. The survey instrument was created in consultation and assistance with Envision New Mexico and the University of Michigan Health Systems. The AYAH National Resource Center is supported (in full or in part) by Grant # U45MC27709 from the Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau (Title V, Social Security Act), Division of Child, Adolescent and Family Health, Adolescent Health Branch.

Link

Keywords: Adolescent health, Quality assessment, Surveys

NH Pediatric Improvement Partnership. 2017. Policy summary for New Hampshire. [Concord, NH]: New Hampshire Pediatric Improvement Program, 2 pp.

Annotation: This 2-page document lists regulations concerning required physical exams for high school students who enroll in schools in Nashua and Portsmouth, NH. The CoIIN (Collaborative Improvement and Innovation Network) team provides a summary of state and city policies around wellness visits, immunization programs, and other health related practices.

Link

Keywords: New Hampshire, Adolescent health, Child health, Health policy, Educational policy

Salerno J. 2017. RAAPS risk screening assessment. [Ann Arbor, MI: Possibilities for Change], 2 pp.

Annotation: This factsheet provides information on RAAPS, a short, standardized, and validated risk screening tool designed especially for the needs of adolescents. It provides an overview of the RAAPS (Rapid Assessment for Adolescent Preventive Services) tool, a screening tool for assessing adolescent risk factors. This document points out the advantages of using it for adolescents and professionals, and draws comparisons between it and other tools (such as the AMA's GAPS and the American Academy of Pediatric's Bright Futures). The tool was created by a team of academics from the University of Michigan along with teenagers.

Link

Keywords: Health screening, Screening tests, Adolescent health, Risk assessment

2017. RAYS participation agreement. [Burlington, VT]: University of Vermont, Vermont Child Health Improvement Program; [Waterbury, VT]: Vermont Department of Public Health; , 1 pp.

Annotation: This document is a participation agreement for participants of Vermont RAYS (Raise Awareness for Youth Services). It has spaces for the signatures of students and their parents, contains a brief description of Vermont RAYS and lists the responsibilities of joining it, such as attendance at meetings, respectful behavior, being open to the opinions of others, and maintaining confidentality. The form also discusses the possibilties of financial compensation for belonging to RAYS.

Link

Keywords: Vermont, Adolescent health services

2017. RAYS Youth Council Project summary. [Burlington, VT]: University of Vermont, Vermont Child Health Improvement Program; [San Francisco, CA]: National Adolescent and Young Adult Health National Resource Center [Waterbury, VT]: Vermont Department of Public Health; , 1 pp.

Annotation: This project summary describes Vermont RAYS (Raise Awareness for Youth Services), an initiative of Vermont's Youth Health Improvement Initiative (YHII). It details the project's work in increasing adolescent well-care visits and enhancing the youth-friendliness of medical facilities by addressing barriers to access and enhancing provider training, and its aims of improving youth healthcare services in Vermont by incorporating youth perspectives and feedback into the healthcare system.

Link

Keywords: Vermont, Adolescent health services

2017. RAYS Youth Council toolkit. [Burlington, VT]: University of Vermont, Vermont Child Health Improvement Program; [Waterbury, VT]: Vermont Department of Public Health; , 2 pp.

Annotation: This toolkit outlines the purpose and activites of Vermont's youth council, RAYS (Raise Awareness for Youth Services).The document contains information and guidelines about what the council does and its rules of behavior, etc. It includes information on the mission of RAYS as well as how and how often meetings are conducted, possible future work and objectives, expected behaviors of members, the role of facilitators in the group, and how to build a safe community space.

Keywords: Vermont, Adolescent health services

The Autism Project. 2017. Rhode Island family navigator tool. [Johnstone, RI]: The Autism Project, 2 pp.

Annotation: This checklist serves as a resource for caregivers of children recently diagnosed with Autism Spectrum Disorder (ASD). It outlines emotional responses to the diagnosis, conversation starters for discussions with families, and provides essential resources and support options available in Rhode Island. This document is a tool for caregivers navigating the complexities of an ASD diagnosis. It promotes emotional processing, fosters supportive communication, and connects families to essential local resources, helping to ease the transition into understanding and managing their child's needs.

Link

Keywords: Rhode Island, Autism, Family support services

2017. Sample clinic assessment summary. [Burlington, VT]: University of Vermont, Vermont Child Health Improvement Program, 2 pp.

Annotation: This assessment tool from the Vermont Child Health Improvement Program is used to evaluate health clinics in their efforts to improve youth accessiblility. It is meant to aid members of the VT Youth Advisory Council Visit as they visit health clinics and assess their efforts to meet the needs of adolescents and young adults and make them comfortable and welcome. The summary document presents a comprehensive evaluation of a medical clinic's youth-friendliness, highlighting both positive aspects and areas for potential improvement to better serve adolescent and young adult patients.

Link

Keywords: Vermont, Adolescent health services, Clinics

2017. School nurse interview questions. [Concord, NH: New Hampshire Department of Health and Human Services; New Hampshire Pediatric Improvement Program], 2 pp.

Annotation: This document includes a list of interview questions for prospective high school nurses in Portsmouth and Nashau, New Hampshire. These questions, provided by the NH CoIIN (Collaborative Innovative and Improvement Network) Team, highlight the need for policies and perspective around student and athlete health visits. The document also includes information on the requirements of sports physicals for youth athletes as well as information on COIIN's aim of improving access to preventive health care, and the American Academy of Pediatrics recommendations for an annual health exam.

Link

Keywords: New Hampshire, Adolescent health services, Public schools, School nurses

New Mexico AYAH CoIIN. 2017. So, you're telling me poster. [New Mexico]: New Mexico AYAH CoIIN, 1 pp.

Annotation: This poster of a woman and child illustrates the fact that 14-year-olds have the right to confidential mental health care. The poster was sponsored by New Mexico AYA COIIN (Adolescent and Young Adult Health Collaborative Improvement and Innovation Network).

Link

Keywords: Adolescent health, Confidentiality, Adolescent mental health, Posters

2017. State poster presentations from 2017 SPHARC peer-to-peer exchange. [Washington, DC]: State Public Health Autism Resource Center , 9 pp.

Annotation: The posters in this document were presented at the 2017 SPHARC (State Public Health Autism Resource Center) Peer-to-Peer Exchange, hosted by Rhode Island's Autism Program. Eight states presented posters drawing attention to the challenges, strategies, and strengths concerning family navigation.

Link

Keywords: Autism, State CSHCN programs, Wisconsin, Ohio, Rhode Island, Washington, North Carolina, New Hampshire, Maryland, Iowa, Posters

Yatsco M. 2017. Stay healthy, my friends poster. [New Mexico]: New Mexico AYAH CoIIN, 1 pp.

Annotation: This poster presents" the Most Interesting Man in the World" urging people to answer questions honestly when asked by health professionals. The poster provides a youth friendly outlet to communicate the importance of honesty between the patient and provider using a popular social media meme, and was sponsored by the New Mexico AYAH CoIIN (Adolescent and Young Adult Health Collaborative Improvement and Innovation Network) and members of a youth-adult partnership.

Link

Keywords: New Mexico, Adolescent health, Posters

2017. Strategy worksheet for communications. [Minneapolis, MN]: Konopka Institute for Best Practices in Adolescent Health [Ed.: became University of Minnesota, State Adolescent Health Resource Center, now shuttered], 3 pp.

Annotation: This worksheet is designed to help organize and articulate a communications strategy focused on improving adolescent health, specifically increasing the number of adolescents receiving well visits at health clinics. It serves as a strategic guide for effectively communicating the importance of well visits for adolescents. It can be used to address the concerns of various audiences (parents, health clinic practitioners, etc.) and aims to foster greater participation in preventive health care.

Link

Keywords: Minnesota, Adolescent health, Communications

2017. Superintendent interview questions. [Concord, NH: New Hampshire Department of Health and Human Services; New Hampshire Pediatric Improvement Program], 2 pp.

Annotation: In this document, New Hampshire's CoIIN Team (Collaborative Innovative and Improvement Network) provides interview questions to verify school policies regarding student and athlete health visits; these interview questions are for prospective school superintendants in Nashua and Portsmouth, New Hampshire. After a background concerning adolescent health and how COIIN is concerned with improving access to preventive health care, and American Academy of Pediatrics recommendations for an annual health exam, it lists several questions that a prospective hire should answer.

Link

Keywords: New Hampshire, Adolescent health services, Public schools, School personnel

2017. Survey flyer. [Burlington, VT]: University of Vermont, Vermont Child Health Improvement Program; Washington, DC: Association of Maternal and Child Health Programs; [San Francisco, CA]: Adolescent and Young Adult National Resource Center, 1 pp.

Annotation: This is a poster sponsored by Vermont's Child Health Improvement Program and the Adolescent and Young Adult National Resource Center. It is intended to get feedback from young people about their patient satisfaction. It has both tear-off sheets and a code than can be used on a mobile phone.

Link

Keywords: Adolescent health, Quality assessment, Surveys, Posters

Murphy C, Grannemann K. 2017. Title V data integration introduction : A toolkit for integrating Title V data into Early Childhood Integrated Data Systems (ECIDS). Washington, DC: Association of Maternal and Child Health Programs, 9 pp.

Annotation: The Title V Data Integration Toolkit is designed to assist states in integrating Title V data into Early Childhood Integrated Data Systems (ECIDS). This toolkit provides best practices, frameworks, and use case examples to facilitate discussions on early childhood data integration at various levels, including state, county, tribal, and urban contexts. It aims to enhance maternal, child, and infant health through tailored programs based on integrated data. The toolkit is designed to complement other data integration resources, such as the SLDS ECIDS Toolkit and the DaSy Data System Framework, offering additional tools and links for further exploration.

Link

Keywords: Title V programs, Data collection, Data analysis, Early childhood education, Early childhood development

Murphy C, Grannemann K. 2017. Title V data integration toolkit. Washington, DC: Association of Maternal and Child Health Programs,

Annotation: This toolkit is a collection of resources that aims to assist states as they integrate Title V data into Early Childhood Integrated Data Systems (ECIDS). The toolkit consists of tip sheets, data integration use cases, and state examples.

Link

Keywords: Case studies, Data linkage, Early childhood development, Early childhood education, Integrated information systems, Interagency cooperation, Program coordination, Program improvement, State programs, Systems development, Title V programs

Association of Maternal and Child Health Programs. 2017. Title V early childhood data integration toolkit: Factsheet. Washington, DC: Association of Maternal and Child Health Programs, 2 pp.

Annotation: This fact sheet provides an overview of the Title V Early Childhood Data Integration toolkit. The fact sheet includes tip sheets, use cases, and state examples on integrating data into Early Childhood Integrated Data Systems (ECIDS). It includes a link to the toolkit itself, and provides information on training sessions on the Title V Data Integration Toolkit. The toolkit was created in partnership with AEM Corporation.

Link

Keywords: Title V programs, CSHCN programs, Autism, Data collection, Data analysis

University of Vermont, Vermont Child Health Improvement Program; Vermont Department of Public Health. 2017. Vermont AYAH CoIIN flyer. [Burlington, VT]: University of Vermont, Vermont Child Health Improvement Program; [Waterbury, VT]: Vermont Department of Public Health, 1 pp.

Annotation: This Vermont AYAH CoIIN flyer advertises the purpose of the Adolescent and Young Adult Health Collaborative Improvement & Innovation Network. It explains the importance of annual well visits for adolescents, and the goal of AYAH COIIN to perform quality improvement initiatives with medical practices concerning adolescent well visits. It describes the project's focus on improving both the accessibility and quality of preventive health services for adolescents and young adults, with the long-term goal of increasing well-visit rates. It also discusses Vermont's intention to create a Youth Health Advisory Council to further support these efforts, fostering youth engagement in the process.

Link

Keywords: Vermont, Adolescent health, Preventive health services

Maseroni M. 2017. Vermont RAYS application. [Burlington, VT]: University of Vermont, Vermont Child Health Improvement Program, VT RAYS (Raise Awareness for Youth Services) , 2 pp.

Annotation: Vermont provides this application for youth who would like to become a member of the Vermont RAYS (Raise Awareness for Youth Services), a youth health advisory council. It provides a brief statement concerning the goals of RAYS, a space for the signature of the youth, and for a parent or guardian if the adolescent is under the age of 18, and a link to the Youth Health Improvement Initiative (YHII).

Link

Keywords: Vermont, Adolescent health,

University of Vermont, Vermont Child Health Improvement Program. 2017. We are here for you flyer. [Burlington, VT]: University of Vermont, Vermont Child Health Improvement Program, 1 pp.

Annotation: This poster sponsored by the Vermont Child Health Improvement Program highlights types of health care available to adolescents and young adults. The flyer was created by Vermont's CoIIN (Collaborative Improvement and Innovation Network) for schools, practices and other community areas to promote the well care visit.

Link

Keywords: Adolescent health, Clinics, Posters, Adolescents, Confidentiality, Vermont

Cheyne K. 2017. Webinar on consent and confidentiality. [Des Moines, IA]: Iowa CoIIN (Collaborative Improvement and Innovation Network) on School-based Health Services; Blank Children's Hospital Unity Point Health, 58 m 17 s.

Annotation: This webinar on consent and confidentiality issues for adolescent health care providers features Dr. Ken Cheyne, medical director of Blank Children's Hospital in Des Moines, Iowa. Dr. Cheyne discusses seven different hypothetical cases dealing with issues of confidentiality in adolescent and young adult healthcare. The examples illustrate how health practitioners and clinics can use policies and personal approaches when dealing with young people and their parents, while also keeping in mind the ethical and legal requirements of consent and confidentiality. These examples are somewhat specific to the state of Iowa, as they cite what is mandated by Iowa code, but can also be helpful to practitioners in other states.

Link

Keywords: Adolescent health services, Confidentiality, Consent

University of Vermont, Vermont Child Health Improvement Program; Vermont Department of Public Health. 2017. Youth friendly clinic guide and assessment tool. [Burlington, VT]: University of Vermont, Vermont Child Health Improvement Program; [Waterbury, VT]: Vermont Department of Public Health, 2 pp.

Annotation: This document is a tool for those who are conducting assessments on health clinics for their youth friendliness. The answers to some questionscan be easily ascertained by the assessor, while others require an interview with the medical clinic staff. After each question is a space for comments and recommendations, there is also space for the overall assessment and recommendation of the clinic by the assessor.

Link

Keywords: Adolescent health, Quality assurance, Assessment, Clinics, Vermont

Iowa Department of Public Health . 2016 . Adolescent well-visits . Des Moines, IA: Iowa Department of Public Health , 1 p.

Annotation: This promotional flyer for parents describes the importance of an adolescent well visit and explains the differences between a well-visit and a sports physical examination.

Link

Keywords: Adolescent health, Health promotion, Prevention, Prevention services

2016. Addressing gaps in ASD/DD diagosis - Collaborative peer-to-peer exchange agenda. [Washington, DC]: State Public Health Autism Resource Center , 1 pp.

Annotation: This is the agenda for a multi-state meeting held on June 15, 2016 that focused on addressing gaps in autism knowledge and diagnosis. The agenda covered three main topics: diagnosis and evaluation, parent engagement and outreach, and technology and financing. The meeting included teams from Virginia, Georgia, Maryland, Minnesota, Iowa, and Michigan.

Link

Keywords: Autism, State CSHCN programs, Title V programs

New Hampshire Pediatric Improvement Partnership; Collaborative Improvement and Innovation Network (CoIIN). 2016. Adolescent and youth (AYA) assessment tour tool . Concord, NH: University of New Hampshire Pediatric Improvement Partnership., 4 pp.

Annotation: This assessment tool consists of a series of questions to ask that relate to the accessibility and friendliness of clinics that receive adolescents and youth. Included are questions related to routine visits, the physical environment, patient/provider communication, and patient empowerment. The tool is desrubed as an assessment "tour," with space for comments and recommendations after each Y/N question. [Adapted from the Vermont Child Health Improvement the physical environment, Program’s Adolescent and Youth Friendly Service Tour Clinic Environmental Assessment Tool]

Link

Keywords: Adolescent health, Assessment, Clinics, Health facilities, New Hampshire , Prevention, Quality assurance, Youth

[Association of Maternal and Child Health Programs]. 2016. Adolescent well visit report . [Washington, DC: Association of Maternal and Child Health Programs], 3 pp.

Annotation: This report summarizes a focus-group study to identify parent and adolescent levels of awareness about adolescent well visits, their knowledge about what happens during these visits, and the barriers and motivators for receiving them. Included is a list of 10 topics that should be discussed during the well checkup, according to teenagers and parents who participated in the study.

Link

Keywords: Adolescent health, Adolescents, Focus groups, Health promotion, Parents, Prevention, Prevention services, Studies

Association of Maternal and Child Health Programs. 2016. AMCHP case study: Engaging diverse populations–State examples. Washington, DC: Association of Maternal and Child Health Programs, 3 pp.

Annotation: This document describes family engagement as a critical part of Title V maternal and child health (MCH) and children and youth with special health care needs (CYSHCN) programs and ways that states are engaging diverse populations. Contents include case study examples in Kentucky and Texas. [Funded by the Maternal and Child Health Bureau]

Keywords: Case studies, Community participation, Cultural diversity, Families, Kentucky, Leadership, Public private partnerships, Role, State programs, Texas, Title V programs

Association of Maternal and Child Health Programs. 2016. AMCHP case study: Family engagement–State examples. Washington, DC: Association of Maternal and Child Health Programs, 5 pp.

Annotation: This document describes family engagement as a critical part of Title V maternal and child health (MCH) and children and youth with special health care needs (CYSHCN) programs and highlights ways that states are engaging families. Contents include case study examples in Louisiana, Michigan, and Washington. [Funded by the Maternal and Child Health Bureau]

Keywords: Case studies, Cultural diversity, Families, Leadership, Louisiana, Michigan, Participation, Public private partnerships, Role, State programs, Title V programs, Washington

Association of Maternal and Child Health Programs. 2016. AMCHP family engagement initiatives. Washington, DC: Association of Maternal and Child Health Programs, 4 pp.

Annotation: This fact sheet highlights the variety of ways that the Association of Maternal and Child Health Programs engages families across programs and policy activities. Topics include engaging family leaders as critical elements of the organization infrastructure; developing family leaders and helping them obtain the tools and resources they need to be active participants in the work force; and engaging family leaders in the development of, and a target audience for, program and policy activities.

Link

Keywords: Community participation, Families, Leadership training, Parent participation, Policy development, Professional societies, Program development, State MCH programs, Technical assistance, Title V programs, Work force

Association of Maternal and Child Health Programs. 2016. AMCHP strategic plan 2016–2018. Washington, DC: Association of Maternal and Child Health Programs, 1 p.

Annotation: This document presents the Association of Maternal and Child Health Programs' vision, mission, values, goals, and objectives for the three year period 2016–2018. Topics include increasing the capacity of states and territories to use evidence to drive policy and program design to improve maternal and child health (MCH) outcomes and health equity, developing a flexible and skilled work force, influencing the alignment of resources at the federal and state levels to improve and increase support for MCH, and increasing investments in MCH programs.

Keywords: Equal opportunities, Health care disparities, Health disparities, Policy development, Professional societies, Program development, Program improvement, State MCH programs, Strategic planning, Work force

Fletcher L, Grost L. 2016. Children and adults with Autism Spectrum Disorder Program: Expansion and telepractice. [Lansing, MI]: Michigan Department of Health and Human Services; Michigan Autism Program, 13 pp.

Annotation: This Powerpoint presentation focuses on telepractice for autism in Michigan, the elements that are required, and the successes in telemedicine, along with barriers. Included is a color map of Michigan illustrating regional healthcare networks and graphs concerning insurance for autism from pre-2012 to 2016.

Presentation Slides

Keywords: Autism, State CSHCN programs, Telemedicine, Michigan

Oswald D. 2016. Community diagnostic assessment team training. , 10 pp.

Annotation: These presentation slides are designed to equip an interdisciplinary team with the knowledge and tools necessary to conduct comprehensive diagnostic assessments in a healthcare setting. The assessments aim to provide a thorough understanding of the child's strengths and challenges concerning autism features, adhering to best practices in team collaboration. The process emphasizes the importance of engaging parents as active partners and serves as a foundation for effective interventions. The recommended approach for autism spectrum disorder (ASD) assessments involves collaboration among practitioners from various medical specialties. The ultimate goal is to enhance outcomes for the child and increase parental satisfaction. These materials outline the assessment tools to be utilized, detail training modules for medical staff, and discuss both the results of the training and the challenges encountered.

Presentation Slides

Keywords: Autism, Assessment, Diagnosis, Intervention, Training programs, Staff development

Association of Maternal and Child Health Programs; Lucile Packard Foundation for Children's Health. 2016. Creating a culture of family engagement in Title V MCH and CYSHCN programs. Washington, DC: Association of Maternal and Child Health Programs, 11 pp.

Annotation: This report provides insights from a nationwide survey conducted between late 2014 and early 2015. This survey gathered data on family engagement practices within Title V maternal and child health (MCH) and children and youth with special health care needs (CYSHCN) programs. With responses from 68% of MCH and 75% of CYSHCN programs, the report reflects on the strategies and effectiveness of family engagement in these programs. It emphasizes the importance of creating an organizational culture that prioritizes family engagement to sustain and enhance these practices over time. It also discusses various methods Title V programs use to institutionalize family engagement, such as professional development for staff, integrating family engagement into contracts and grants, and supporting family organizations through formal agreements, in-kind services, and participation in conferences.

Link

Keywords: Title V programs, State CSHCN programs, Surveys, Evaluation, Assessment

[Onyilofor C]. 2016. Data in Action: Uses of data in maternal and child health to assess, achieve, and communicate. [Washington, DC: Association of Maternal and Child Health Programs], 11 pp.

Annotation: This guide contains examples from states' health departments and nonprofits on the active use of data. Examples were selected to represent ways to collect, communicate, and use data to achieve desired outcomes and influence policy. The four main sections discuss: data collection, data analysis, data communication, and data-informed policy. The guide also contains abstracts of example programs from all around the country, with links to the full reports covering topics such as infant mortality, PRAMS (Pregnancy Risk Assessment Monitoring System) and families with children with special healthcare needs.

Link

Keywords: Title V programs, State CSHCN programs, Surveys, Evaluation, Assessment, Data collection, Data analysis, Epidemiology, Texas, Wisconsin, Alaska, Mississippi, Massachusetts, Louisiana, Nebraska, Delaware, Florida

Adolescent and Young Adult Health National Resource Center. 2016. Driver diagram: Minnesota example. [St. Paul, MN:] University of Minnesota, Adolescent Health Resource Center, 1 pp.

Annotation: This infographic provides an example of a Key Driver Diagram used as visual roadmap for project management and improvement (here, to increase rates and quality of adolescent and young adult wellness visits).The flier lists key drivers and strategies or interventions to help reach the goal of increasing the percentage of young adults attending well visits in Minnesota.

Link

Keywords: Minnesota, Adolescent health, Outcome and process assessment, Quality assessment, Program improvement

Geller N. 2016. DSM-5 and IDEA: From Prescription pad to the classroom. [Richmond, VA: Virginia Commonwealth University], 36 pp.

Annotation: This presentation highlights essential objectives for understanding and navigating the distinctions between clinical diagnosis and educational disability determination. It provides a comparative analysis of the roles of mental health professionals—such as psychiatrists and counselors—with their counterparts in school settings, including school psychologists and social workers. The presentation emphasizes the different tools utilized in each setting, contrasting clinical interviews used in the medical model with IQ tests, achievement measures, and behavioral observations employed in the educational model. The presentation also covers two critical components of an Individualized Education Program (IEP): Present Level of Performance (PLOP), describing how a student’s disability affects their involvement and progress in the general education curriculum, as well as in specific areas of need; and Writing a Behavioral Objective (a Behavioral Objective articulates a specific educational outcome expected from students and consists of three key elements: student behavior, conditions of performance, and performance criteria). The presentation also provides examples of individualized behavioral observations and goal-setting, particularly for modifying the behavior of children on the autism spectrum. These components ensure that behavioral objectives are clear, measurable, and aligned with the student’s educational goals within the IEP.

Link

Keywords: Autism, State CSHCN programs, Education, Educational policy

Association of Maternal and Child Health Programs; Lucile Packard Foundation for Children's Health. 2016. Evaluating family engagement in the Title V MCH and CYSHCN programs. Washington, DC: Association of Maternal and Child Health Programs; Palo Alto, CA : Lucile Packard Foundation for Children's Health, 5 pp.

Annotation: This report presents findings from a nationwide survey conducted by AMCHP between late 2014 and early 2015, focusing on family engagement within Title V Maternal and Child Health (MCH) and Children and Youth with Special Health Care Needs (CYSHCN) programs. The survey included responses from 68% of MCH programs and 75% of CYSHCN programs across 59 states and territories with Title V funding. The report aims to evaluate the range, depth, and effectiveness of family engagement strategies in these programs and to identify areas for improvement. It underscores the need for improved evaluation methods and greater support for family engagement initiatives. It serves as a call to action for both AMCHP and its partners to address identified gaps and challenges in engaging families effectively.

Link

Keywords: Title V programs, State CSHCN programs, Surveys, Evaluation, Assessment, Family support programs,

Association of Maternal and Child Health Programs. 2016. Family engagement in state Title V maternal and child health (MCH) and children with special health care needs (CYSHCN) programs: Results from a survey–Executive summary. Washington, DC: Association of Maternal and Child Health Programs, 11 pp.

Annotation: This document summarizes findings from a nationwide survey of maternal and child health (MCH) and children and youth with special health care needs (CYSHCN) directors about family engagement policies and practices in Title V-funded programs. The findings provide a snapshot of strategies to support meaningful family engagement, effective and innovative practices, and areas of need for improvement and technical assistance. Topics include creating a culture of family engagement, levels of family engagement, roles of family staff or consultants, family members employed as staff, sustaining and diversifying family engagement, and evaluating family engagement. An overview of the survey development and response, programmatic definitions of family, and a discussion of the results is included. A series of briefs that detail the results in specific areas are also available. [Funded in part by the Maternal and Child Health Bureau]

Keywords: Cultural diversity, Evaluation, Families, Leadership, National surveys, Participation, Public private partnerships, Role, State programs, Sustainability, Title V programs

Association of Maternal and Child Health Programs. 2016. Family engagement in state Title V MCH and CYSHCN programs: A compilation of survey results . Washington, DC: Association of Maternal and Child Health Programs; Palo Alto, CA: Lucile Packard Foundation for Children's Health, 11 pp.

Annotation: From late 2014 through early 2015, the Association of Maternal & Child Health Programs (AMCHP) conducted a nationwide survey about family engagement in Title V maternal and child health and special healthcare needs programs. This executive summary provides key findings from the survey, and is an overview of the other reports created using the same survey. It includes graphs and statistics about response rates from by region. Funding was provided by Lucile Packard Foundation for Children's Health; the U.S. Health Resources and Services Administration and the Maternal and Child Health Bureau also provided support for this project through cooperative agreement U01MC00001.

Link

Keywords: Title V programs, State CSHCN programs, Surveys, Evaluation, Assessment, Data collection, Data analysis

Association of Maternal and Child Health Programs; Lucile Packard Foundation for Children's Health. 2016. Family members employed as staff in Title V MCH and CYSHCN programs. Washington, DC: Association of Maternal and Child Health Programs; Palo Alto, CA : Lucile Packard Foundation for Children's Health, 4 pp.

Annotation: This report, published by the Association of Maternal & Child Health Programs (AMCHP) in July 2016, presents findings from a nationwide survey on the employment of family members within Title V Maternal and Child Health (MCH) and Children and Youth with Special Health Care Needs (CYSHCN) programs. The survey, conducted between late 2014 and early 2015, involved responses from 40 MCH and 44 CYSHCN programs across 59 states and territories. Insights are provided on employment mechanisms (82% of CYSHCN programs and 55% of MCH programs employ family members as staff, often through contracts with other agencies), roles and compensations (family members are employed in both full-time and part-time positions), and support mechanisms (rograms provide professional development opportunities, including training and leadership activities, as well as support for work-life balance through flexible schedules and telework options). The report emphasizes the importance of these employment practices in fostering meaningful family engagement in program planning and improvement activities.

Link

Keywords: Title V programs, State CSHCN programs, Surveys, Evaluation, Assessment

2016. Iowa High School Athletic Association state sports tournament flyer (Iowa CoIIN). [Des Moines, IA]: Iowa CoIIN (Collaborative Improvement and Innovation Network) on School-based Health Services, 1 pp.

Annotation: This poster was developed from focus groups conducted under the Iowa CoIIN (Collaborative Improvement and Innovation Network). The poster was part of Iowa's promotional outreach at the state high school athletic tournaments, and urges annual teen well visits. It includes logos for the Iowa High School Athletic Association; CATCH (Community Access to Health Care); Blank Children's Hospital UnityPoint Health; Iowa Girls High School Athletic Association; and Iowa Department of Public Health.

Link

Keywords: Iowa, Adolescent health promotion, Health screening, Parents

Association of Maternal and Child Health Programs; Lucile Packard Foundation for Children's Health. 2016. Levels of family engagement in the Title V MCH CYSHCN programs. Washington, DC: Association of Maternal and Child Health Programs; Palo Alto, CA: Lucile Packard Foundation for Children's Health, 4 pp.

Annotation: This report provides an analysis of family engagement practices, highlighting effective strategies, identifying areas needing improvement, and offering recommendations for enhancing family involvement in MCH and CYSHCN Title V programs. Family engagement is assessed across four levels: minimal engagement; specific advisory roles; broad advisory roles; and leadership roles.

Keywords: Title V programs, State CSHCN programs, Surveys, Evaluation, Assessment

Minnesota Department of Health; University of Minnesota. 2016. MN Act Early Delegate Project. [St. Paul, MN]: Minnesota Department of Health; University of Minnesota, 29 pp.

Annotation: In response to the significant growth of Minnesota's immigrant population, which accounted for 30% of the state's population increase in 2016, and the rising rates of autism within the Somali and other immigrant communities, Minnesota launched the MN Act Early Outreach program. This PowerPoint presentation details the program's development by the University of Minnesota in collaboration with the MN Department of Health. The initiative trains community delegates to educate local populations about autism screening through culturally sensitive outreach efforts. These activities occur at cultural festivals, health clinics, schools, and daycare centers. Additionally, public service announcements are broadcasted in multiple languages, including Hmong, Somali, and Spanish, over radio programs targeting these communities. The presentation also provides access to websites, podcasts, and links to Act Early training materials, offering comprehensive resources for community education and engagement.

Link

Keywords: Autism, State CSHCN programs, Minnesota

2016. New Mexico consent & confidentiality flyer. [Santa Fe, NM: New Mexico Legislature] , 1 pp.

Annotation: This flier outlines the legal regulations in New Mexico regarding the ability of minors to consent to various types of medical care without parental knowledge or consent. It specifies the age at which adolescents can take responsibility for their own care in several scenarios, including: pregnancy-related care; sexually transmitted disease treatment; mental health services; and, other medical conditions.

Link

Keywords: New Mexico, Confidentiality, Adolescents, Patient Consent

Association of Maternal and Child Health Programs. 2016. Opportunities to optimize access to prenatal care through health transformation. Washington, DC: Association of Maternal and Child Health Programs, 12 pp.

Annotation: This brief provides information about the importance of timely, quality, affordable, and adequate health care coverage during pregnancy and the role of Title V in improving coverage and access to care for pregnant women. Topics include covered preventive health services for pregnant women or women who may become pregnant under the Affordable Care Act; coverage options available for pregnant women through public, private, and safety net programs; issues and gaps in coverage; policy options and state strategies; and considerations for states.

Keywords: Access to health care, Advocacy, Barriers, Costs, Health care reform, Health insurance, Low income groups, Medicaid, Patient Protection and Affordable Care Act, Policy development, Pregnancy, Pregnant women, Prenatal care, Role, State MCH programs, Title V programs

Thomas J, Taylor S; The Parents' Place of Maryland . 2016. Parent Partners in the Medical Home. Washington, DC: Association of Maternal and Child Health Programs, 19 pp.

Annotation: These presentation slides emphasize the value of parent involvement in the medical home for children with special health care needs. A description of the benefits to pediatric practices and families; key traits of parent partners; parent partner training; and opportunities for parents within the medical home model are among the topics addressed.

Link

Keywords: Children with special health care needs, Maryland , Medical home, Models, Parent participation

Crimmins D, Kelly B, Huddleston L, O'Hara A, Wells R. 2016. Positive behavior and visual supports delivered through in-home coaching. [Atlanta, GA]: Georgia State University, Center for Leadership in Disability, 22 pp.

Annotation: These presentation slides describe a pilot project (undertaken February – December 2015) that was funded by the Maternal and Child Health program of the Georgia Department of Public Health. Its focus was on children with autism or related developmental delays receiving Part C services. The program was implemented as a series of five in-home sessions designed to supplement and complement services provided under the Individualized Family Support Plan (IFSP). The program includes in-home coaching for parents, emphasizing the reinforcement of positive routines at home and providing direct, structured, yet individualized support to families. Key features include colorful graphs illustrating program outcomes. The presentation features a sample Brief Behavior Intervention Plan and introduces an upcoming "Positive Behavior Support Parent Academy" for additional support.

Link

Keywords: Autism, State CSHCN programs, Education, Georgia

Banyan Communications. 2016. Pregnancy and oral health. Washington, DC: Association of Maternal and Child Health Programs, 1 video (1 min., 30 sec.).

Annotation: This video encourages pregnant women to make oral health a priority during pregnancy and to access preventive care. Topics include the importance of practicing good oral health habits and scheduling a dental visit during pregnancy to reduce the risk for tooth decay and gum disease. Additional topics include who to ask for help finding a dentist and who to talk to about the cost of oral health services, including services covered by Medicaid.

Link

Keywords: Financing, Health care utilization, Oral health, Oral health care, Pregnancy, Pregnant women, Preventive health services

Association of Maternal and Child Health Programs. 2016. Pregnancy and oral health. [Washington, DC]: Association of Maternal and Child Health Programs, 1 video (1 min, 30sec).

Annotation: This animated YouTube video urges expectant mothers to take care of their oral health during pregnancy. The video provides information on how they can obtain dental coverage as well as a weblink to dental coverage information at Healthcare.gov. Length: 1 minute, 30 seconds.

Link

Keywords: Pregnancy, Oral health, Videos

Association of Maternal and Child Health Programs and Lucile Packard Foundation for Children's Health. 2016. Roles of family staff or consultants within Title V MCH and CYSHCN programs. Washington, DC: Association of Maternal and Child Health Programs, 7 pp.

Annotation: This report discusses various roles, and activities within these roles, of families who are in paid positions as staff or consultants to state Title V maternal and child health (MCH) and children and youth special health care needs (CYSHCN) programs. Topics include roles for family engagement in the Title V Block Grant guidance; depth of engagement (family roles along a continuum); roles and activities by level of engagement (input, partnership, service provision, policy-level leadership); and family engagement in Title V needs assessment activities.

Link

Keywords: Collaboration, Community participation, Consultants, Employment, Families, Leadership, Mentors, Needs assessment, Parent participation, Parent professional relations, Policy development, Public private partnerships, Quality assurance, Special health care services, State MCH programs, Title V programs, Training, Work force

Swails P. 2016. Shared resource: Iowa child health connections. [Iowa City, IA]: Regional Autism Assistance Program, 13 pp.

Annotation: This presentation describes the Iowa Child Health Connections (ICHC) website, an online resource for children and youth with special health care needs (CYSHCN), their families, and providers. Developed through collaboration between Child Health Specialty Clinics (CHSC) and the Iowa Department of Public Health, the website launched in March 2016 as part of a HRSA-funded implementation grant focused on improving services for children with autism spectrum disorder and other developmental disabilities. The presentation highlights the website's interactive roadmaps for both families and providers; the information it offers on diagnosis, early childhood development, education, family support, assistive technology, and transitions; and its searchable database with over 2,000 resources available to Iowa families, which can be filtered by county, keyword, or category. The presentation slides highlights the website's user-friendly design with separate sections for parents/families and providers, and details plans for future enhancements including a YouTube channel for training videos and family stories.

Presentation Slides

Keywords: Autism, State CSHCN programs, Iowa

Association of Maternal and Child Health Programs and Family Voices. 2016. Stories of the newly enrolled: How new ACA coverage options are impacting women and families raising children with special health care needs. Washington, DC: Association of Maternal and Child Health Programs, 7 pp.

Annotation: This brief presents five case studies of women, young adults, and families, including those raising children and youth with special health care needs (CYSCHN), about enrolling in and receiving care through the Affordable Care Act (ACA) health insurance coverage. The contents illustrate some of the benefits of the ACA's new coverage options for women and families with CYSCHN and challenges that remain in closing gaps in care and ensuring appropriate coverage for vulnerable populations. Topics include ACA provider networks, autism treatment coverage; and coverage for Native Americans; immigrant and refugee women, and young adult women. [Funded by the Maternal and Child Health Bureau]

Link

Keywords: Access to health care, American Indians, Case studies, Children with special health care needs, Family centered care, Financing, Health care reform, Health insurance, Immigrants, Patient Protection and Affordable Care Act, Program improvement, Refugees, Women, Young adults

Yarbrough D. 2016. Supporting families. [Richmond, VA]: Center for Family Involvement; Virginia Commonwealth University, Partnership for People with Disabilities, 13 pp.

Annotation: These presentation materials describe the mission and vision of Virginia's Center for Family Involvement, which include aiding families in helping their children and adolescents with disabilities to lead the lives that they want. Included is information on how parents and families can become advocates, mentors and leaders in the process, and describes the direct support to families includes peer support, training, and materials provided by the Center. This presentation also discusses the process by which families can be referred into the program, how they get a family navigator, and how data is compiled (includes sample part of form), and how family impact/assessment is done. Also included is a map of Virginia with locations of the Family to Family network and a statistical of family data collected between 2014 - 2016.

Link

Keywords: State CSHCN programs, Autism, Data collection, Virginia

Association of Maternal and Child Health Programs; \Lucile Packard Foundation for Children's Health. 2016. Sustaining and diversifying family engagement in Title V MCH and CYSHCN programs. Washington, DC: Association of Maternal and Child Health Programs; Palo Alto, CA: Lucile Packard Foundation for Children's Health, 6 pp.

Annotation: This report details findings from a nationwide survey conducted by AMCHP from late 2014 to early 2015, focusing on family engagement within Title V Maternal and Child Health (MCH) and Children and Youth with Special Health Care Needs (CYSHCN) programs. The survey, which achieved responses from 68% of MCH programs and 75% of CYSHCN programs, aims to assess the methods and frequency of family input, strategies for reaching diverse populations, and the challenges and successes in sustaining family engagement.

Link

Keywords: Title V programs, State CSHCN programs, Surveys, Evaluation, Assessment

Chaudhry A, Comeau M, Dworetzky B, Hess C, Kanchinadam K, McCoy C, VanLandeghem K, Witgert K. 2016. The Affordable Care Act: A working guide for MCH professionals [upd.]. Washington, DC: Association of Maternal and Child Health Programs, 40 pp.

Annotation: This guide for maternal and child health (MCH) professionals comprises six modules that provide an overview of the Affordable Care Act (ACA) and its implications for MCH populations, ways that individuals can access health care coverage, and an explanation of covered services. Topics include the history of and initial challenges to the ACA, key provisions of the ACA, a glossary of key insurance concepts, provisions of the Patient's Bill of Rights, pathways to coverage for MCH populations, health insurance marketplaces, and benefits. [Funded by the Maternal and Child Health Bureau]

Keywords: Access to health care, Barriers, Health care reform, Health insurance, Patient Protection and Affordable Care Act, Patient rights, Preventive health services, Resources for professionals

Association of Maternal and Child Health Programs. 2016. Title V program approaches to lower non-medically indicated deliveries before 39 weeks of gestation. Washington, DC: Association of Maternal and Child Health Programs, 9 pp.

Annotation: This brief describes efforts to reduce non-medically indicated deliveries before 39 weeks and methods that Title V programs can use to improve birth outcomes. Contents include information about the health and financial implications of non-medically indicated deliveries before 39 weeks gestation; key priorities at the national level; and example strategies in California, Oklahoma, North Carolina, South Carolina, and Texas. Information about the role of Title V as conduit, expert advisor, expediter, and funder of initiatives is included.

Link

Keywords: Cesarean section, Childbirth, Collaboration, Costs, Health care reform, Infant mortality, Low income groups, Measures, Pregnant women, Program improvement, Public private partnerships, Quality assurance, Risk factors, Role, State MCH programs, Title V programs

Association of Maternal and Child Health Programs; Centers for Disease Control and Prevention . 2016. Understanding the New 2016 CDC Contraception Guidelines. Washington, DC: Association of Maternal and Child Health Programs,

Annotation: This recorded webinar explores the implications of the revised CDC contraception guidelines for state and local health departments in their efforts to improve reproductive health. Geared towards public health and maternal and child Health (MCH) professionals, the webinar was cohosted by the Centers for Disease Control and Prevention and the Association of Maternal & Child Health Programs. Featured speakers include Katharine Simmons, Division of Reproductive Health, Centers for Disease Control and Prevention; Andria Cornell, Association of Maternal and Child Health Programs; and Michelle Eglovitch, Association of Maternal and Child Health Programs.

Link

Keywords: Contraception, Family planning, Guidelines, Reproductive health

Eglovitch M (meeting facilitator), Simmons K (presenter). . 2016. Understanding the new 2016 CDC contraception guidelines. Washington, DC: Association of Maternal and Child Health Programs; [Washington, DC]: Department of Health and Human Services, Centers for Disease Control and Prevention, (Women's Health Info Series)

Annotation: Co-presented by the Association of Maternal & Child Health Programs (AMCHP) and the Centers for Disease Control and Prevention (CDC) Division of Reproductive Health, this webinar is intended to help public health and MCH professionals understand the implications of the revised CDC guidelines for state and local health departments in their efforts to improve reproductive health. The YouTube video is from a presentation on the CDC contraception guidelines given on August 25, 2016. Length: 37 minutes, 48 seconds.

Link

Keywords: Family planning, Guidelines, Centers for Disease Control and Prevention, Contraceptives

University of Vermont, Vermont Child Health Improvement Program; Vermont Department of Public Health; . 2016. Vermont Dept. of Health adolescent and youth friendly resource guide. [Burlington, VT]: University of Vermont, Vermont Child Health Improvement Program; [Waterbury VT]: Vermont Department of Public Health, 2 pp.

Annotation: This resource guide from Vermont provides resources and materials to facilitate providing high quality care to adolescents and young adults in clinical practices. It lists recommended characteristics for clinics providing health care for young adults, as well as comments and recommendations to attain those characteristics.

Link

Keywords: Vermont, Adolescent health, Adolescent mental health, Confidentiality, Homosexuality, Pregnancy, Vaccines

Teipel K. 2016. Walking in their shoes: Using development to understand what young people need from healthcare. [St. Paul, MN:] University of Minnesota, State Adolescent Health Resource Center, 30 pp.

Annotation: This presentation is intended to educate healthcare providers in Minnesota on the importance of developing youth-centered care. The document, in the form of PowerPoint slides and graphics-heavy, illustrates the need for providers to adapt their methods to the needs of adolescents and young adults.

Presentation Slides

Keywords: Minnesota, Adolescent health services, Adolescent development

Association of Maternal and Child Health Programs. 2015. AMCHP family delegate: Health reform and family leaders. Washington, DC: Association of Maternal and Child Health Programs, 2 pp.

Annotation: This document describes results from a survey of Association of Maternal and Child Health Programs' Family Delegates to assess their knowledge and needs related to health care reform. Topics include delegates' demographics and their Title V role and responsibilities; the impact of health reform on delegates' role and their understanding of health reform and access to information; delegates' learning interests and preferred learning format; and next steps (providing additional information, tools, and resources to Family Delegates to support their engagement in health reform). [Funded by the Maternal and Child Health Bureau]

Link

Keywords: Community participation, Families, Health care reform, Leadership, Learning, Needs assessment, Parent participation, Surveys, Work force

2015. Champions for change community toolkit: Native American youth being recognized . Washington, DC: Center for Native American Youth at the Aspen Institute, 27 pp.

Annotation: This document outlines the steps and strategies for creating a successful Champions for Change (CFC) program within a community. It emphasizes the importance of developing a clear message, engaging youth, identifying partners, budgeting, and spreading the word about the initiative.The CFC program was created to share ideas on how communities can recognize young Native American leaders who are driving positive change, and the toolkit highlights positive stories from Indian Country and the Native American community. It can be used to recommend a peer or young role model for recognition, organize a small, low-budget community program, or educate others on how Native American youth are stepping up as community leaders.

Link

Keywords: Adolescents, Native Americans, American Indians, Community role

Association of Maternal and Child Health Programs. 2015. Data to action: Needs assessment, performance measurement, and practice. Washington, DC: Association of Maternal and Child Health Programs, 4 pp.

Annotation: This brief describes the needs assessment process and considerations for states developing maternal and child health action plans. Topics include the context of Title V needs assessment, engaging stakeholders, identifying needs and capacity gaps, setting priorities, and finding open source best practices. Information about demonstrating impact and selecting and implementing evidence-based practices are included. [Funded by the Maternal and Child Health Bureau]

Link

Keywords: Community action, Data analysis, Data collection, Measures, Needs assessment, State programs, Title V programs

Guan K, Harrison D, Lane J. 2015. Drawing a picture: Adolescent centered medical homes. [Ann Arbor, MI]: University of Michigan Health System, Adolescent Health Initiative,

Annotation: In this video, adolescents explain what makes them feel welcome when visiting the doctor’s office. They address aspects such as physical space, policies, procedures, and priorities. The video showcases a person drawing illustrations on a whiteboard to demonstrate how a medical clinic can cater to the needs of adolescents. This includes aspects such as space planning, creating a welcoming atmosphere, providing inclusive spaces, and ensuring privacy, among others. This project was supported by the Ann Arbor Area Community Foundation Youth Council and the Michigan Department of Community Health. Length: 3 minutes, 13 seconds.

Link

Keywords: Adolescents, Medical home

Frankowski B; Vermont COIIN team . 2015. Getting the adolescent into your office: Recall remind schedule . Burlington, VT: Vermont Department of Health, 23 pp.

Annotation: This webinar slide deck describes how health care providers can effectively reach out to adolescents and young adults to schedule and attend their annual wellness visit.

Link

Keywords: Adolescent health, Health screening , Prevention, Preventive health services, Youth

Association of Maternal and Child Health Programs. 2015. Health for every mother: A maternal health resource and planning guide for states. Washington, DC: Association of Maternal and Child Health Programs, 118 pp.

Annotation: This guide for maternal and child health (MCH) programs and their partners provides a synthesis of program and policy recommendations and offers a framework to support states in identifying next steps. Contents include strategies and planning tools for strengthening maternal data systems, increasing the value of an investment in maternal health, enabling healthy living, improving access to care, ensuring high quality health care for women, and ensuring readiness and response to obstetric emergencies.

Link

Keywords: Access to health care, Emergency medical services, MCH programs, MCH services, Maternal health, Mothers, Policy development, Preventive health services, Program improvement, Program planning, Quality assurance, Systems development, Women', s health services

Hess C, Peppe K. 2015. Leading state maternal and child health programs: A guide for senior managers. Washington, DC: Association of Maternal and Child Health Programs, 134 pp.

Annotation: This guide is a comprehensive resource designed to assist senior managers overseeing state Maternal and Child Health (MCH) programs, particularly those involved with Title V of the Social Security Act. It addresses the foundational elements of MCH leadership, provides strategic guidance on managing resources, and highlights best practices for engaging with stakeholders and evaluating program effectiveness. The guide can be used as a tool for MCH professionals at all levels, providing a foundation for working in Title V. It includes background on Title V and the health insurance landscape, how data is collected and used, and information on the grant funding and process.

Link

Keywords: State agencies, State CSHCN programs, State health agencies, Staff development

Taft K. 2015. National landscape: Program and initiative to promote developmental and autism screening. Washington, DC: Association of Maternal and Child Health Programs, State Public Health Autism Resource Center, 17 pp.

Annotation: This report, developed by AMCHP’s State Public Health Autism Resource Center (SPHARC), provides an environmental scan of national and federal programs, initiatives, and efforts aimed at improving developmental and autism screening. It builds on an earlier scan and aims to compile a comprehensive overview of key initiatives with a significant national or multi-state reach and specific objectives related to developmental and autism screening. This guide is intended for use by professionals, policymakers, and organizations involved in developmental and autism screening to stay informed about relevant programs and initiatives, and it is expected to be updated as new initiatives emerge.

Link

Keywords: Autism, Federal agencies, State agencies, Developmental screening, Title V programs,

State Public Health Autism Resource Center, Association of Maternal and Child Health Programs. 2015. National Landscape: Program and Initiative to Promote Developmental and Autism Screening. Washington, DC: State Public Health Autism Resource Center, 17 pp.

Annotation: This environmental scan describes national and federal programs and initiatives aimed at improving developmental and autism screening for children.

Link

Keywords: Autism, Developmental disabilities, Developmental screening, Federal initiatives , Federal programs, National programs

Association of Maternal and Child Health Programs. 2015. Opportunities and strategies for improving preconception health through health reform: Advancing collective impact for improved health outcomes. Washington, DC: Association of Maternal and Child Health Programs, 8 pp.

Annotation: This issue brief explores how states can capitalize on the opportunities presented by health reform to improve birth outcomes, particularly through preconception health. It highlights state Title V maternal and child health programs, particularly programs in three states (Michigan, Oklahoma, and Oregon) that participated in an action learning collaborative and are working to strengthen partnerships to implement preconception health activities, enhance preventive care for women, explore financing options for preconception care services, and use data to inform policy and program development. Delaware and Colorado also are featured as states that are working toward improved access to preconception care.

Keywords: Access to health care, Collaboration, Colorado, Data, Delaware, Financing, Health care reform, Learning, Michigan, Oklahoma, Oregon, Policy development, Preconception care, Preventive health services, Program development, Program improvement, Public private partnerships, State MCH programs, Title V programs, Women', s health

Association of Maternal and Child Health Programs. 2015. Putting it all together: Case example on using CYSHCN standards and SPHARC tools and resources to develop an action plan. Washington, DC: Association of Maternal and Child Health Programs, 11 pp.

Annotation: This case example illustrates how a state Title V program – in hypothetical state X – could use existing tools and resources developed by the Association for Maternal and Child Health Programs in developing an action plan to address developmental screening rates.

Keywords: Infants with special health care needs, Children with special health care needs, Developmental screening

Association of Maternal and Child Health Programs. 2015. Resources for Title V action planning: Developmental screening strategies and measures. Washington, DC: Association of Maternal and Child Health Programs, 8 pp. plus appendices.

Annotation: This document highlights strategies, measures and resources to help Title V develop action plans to implement and improve screening and early identification systems and impact the national performance measure on developmental screening

Link

Keywords: Children with special health care needs, Developmental screening, Infants with special health care needs, Program development

Harrison D, Lane J. 2015. Teen self advocacy: How to be your own healthcare advocate. Ann Arbor, MI : University of Michigan Health System, Adolescent Health Initiative; Michigan Department of Health and Human Services,

Annotation: This videorecording offers insight on the teenage perspective in adolescent clinical care and encourages teens to advocate for the quality care they deserve as they enter adulthood. Created for teenagers to learn about their own health advocacy, it includes information on health rights for teens and a web link to Medicaid. [Supported by the Ann Arbor Area Community Foundation Youth Council and the Michigan Department of Health and Human Services.]

Link

Keywords: Adolescent health promotion, Patient advocacy,

Association of Maternal and Child Health Programs. 2015. The Patient Protection and Affordable Care Act and the Title V National Performance Measures. Washington, DC: Association of Maternal and Child Health Programs, 4 pp.

Annotation: This fact sheet for state Title V programs illustrates how the Affordable Care Act provisions relate to national performance measures (NPMs), and identifies potential opportunities to incorporate federal-level reforms into NPM planning.

Keywords: Block grants, Health care reform, Measures, Model programs, Patient Protection and Affordable Care Act, Policy development, Program planning, Program planning, Resources for professionals, State MCH programs, Title V programs, Title V programs

Colorado Department of Public Health and Environment. 2015. The value of youth advisors : Promoting promising practices to help youth and young adults reach their full potential. [Denver, CO]: Colorado Department of Public Health and Environment, 10 pp.

Annotation: This report describes the implementation and evaluation of an innovative "Youth Advisor Model" adopted by the Colorado Department of Public Health and Environment (CDPHE) in 2012, which integrates young people into state agency work to ensure programs and policies better reflect youth needs. The report includes examples of projects led by youth advisors, along with evaluations and findings related to these initiatives. It includes tables outlining the benefits and best practices associated with the model. This project was funded by the U.S. Health Resources and Services Administration (HRSA) under grant number B04MC28087, Maternal and Child Health Service.

Link

Keywords: Adolescents, Community health aides, Community development, Children and youth projects, Colorado

McCoy C, Chaudhry A. 2015. Who will be covered for what in 2015 and beyond: An overview of insurance affordability programs for maternal and child health populations existing prior to or expanded under the Affordable Care Act . Washington, DC: Association of Maternal and Child Health Programs, 6 pp.

Annotation: This policy brief is designed to assist state maternal and child health (MCH) programs in understanding insurance affordability programs not including employee-sponsored coverage. Contents include an overview of federal benefit and coverage requirements under the Affordable Care Act. Topics include federal minimum eligibility levels by income including identified and potential gaps in eligibility for MCH populations both with and without Medicaid expansion and projected minimum or essential health insurance benefits for MCH populations including children and youth with special health care needs for each of the following coverage options: Medicaid, Children's Health Insurance Plan (CHIP), insurance purchased through the health insurance marketplace (exchange), and safety net services for those remaining uninsured.

Link

Keywords: Medicaid, Expanded eligibility, Health care reform, Health insurance, Eligibility, Patient Protection and Affordable Care Act, State health insurance programs

National MCH Workforce Development Center. 2014. A snapshot of current Title V workforce needs. Washington, DC: Association of Maternal and Child Health Programs, 20 pp.

Annotation: This report discusses the current challenges and opportunities facing the maternal and child health (MCH) work force and describes the training, tools, and guidance needed to advance the MCH agenda. The report synthesizes work force challenges and broad training and technical assistance needs, and cross-references them with existing or planned resources. [Funded by the Maternal and Child Health Bureau]

Keywords: MCH programs, Needs assessment, Resource for professionals, Training, Work force

National MCH Workforce Development Center. 2014. A summary of current Title V workforce needs. [Washington, DC: Association of Maternal and Child Health Programs], 19 pp.

Annotation: This report discusses challenges and opportunities facing the maternal and child health (MCH) work force and specific needs for training and technical assistance. The report outlines work force needs in the following categories: information about health care reform, adaptive skills to lead through change, skills to work effectively within integrated systems, and skills to measure the quality and return on investment of programs. The report also includes descriptions of the types of training, tools, and evidence-informed guidance necessary to advance an MCH agenda and information on how the National MCH Workforce Development Center is addressing work force needs. [Funded by the Maternal and Child Health Bureau]

Keywords: MCH training, Needs assessment, Technical assistance, Title V programs, Work force

Association of Maternal and Child Health Programs. 2014. Connecting the dots to improve birth outcomes: Key considerations and recommendations from a national meeting. Washington, DC: Association of Maternal and Child Health Programs, 32 pp.

Keywords: Access to health care, Federal initiatives, Health status disparities, Infant mortality, Interventions, Maternal mortality, Meetings, Prevention, State programs

Association of Maternal and Child Health Programs . 2014. Coordinating efforts across the Title V MCH Services Block Grant and the Title V Family Planning Program . Washington, DC: Association of Maternal and Child Health Programs , 4 pp.

Annotation: This study examines the relationship between the Title X family planning program and Title V maternal and child health services and describes the ways in which states are able to collaborate and coordinate efforts across the two federal grant programs to reduce costs and improve health outcomes for women, families, and children.

Link

Keywords: Block grants, Family planning, Federal programs, Health care reform , Health systems, MCH services, Service integration, Title V programs

Association of Maternal and Child Health Programs. 2014. Economic analysis of LARC programs. Washington, DC: Association of Maternal and Child Health Programs, 2 pp.

Annotation: This brief summarizes the types of cost analyses, previous study methodology, and the steps associated with evaluating long acting reversible contraception (LARC) programs that demonstrate a return on investment (ROI). The brief describes differences between ROI and cost effective analyses and steps to consider for a LARC ROI analysis. Topics include defining the perspective and timeframe; identifying costs, outcomes, data sources, and estimated rates; calculating results; and messaging.

Link

Keywords: Contraceptive devices, Cost effectiveness, Economic factors, Financing, MCH programs, Program evaluation

Association of Maternal and Child Health Programs. 2014. Environmental scan: Addressing the needs of adolescents in state Title V programs. Washington, DC: Association of Maternal and Child Health Programs, 11 pp.

Annotation: This report describes findings from an environmental scanning process, in which data related to adolescents in state Title V Maternal and Child Block Grant reports were captured and analyzed in order to identify themes and conclusions and ultimately better understand state adolescent health programming under Title V. Contents include the methodology, limitations, results and analysis related to national- and state-level performance measures, and conclusions. [Funded by the Maternal and Child Health Bureau]

Keywords: Adolescents, Data collection, Measures, Outcome and process assessment, State programs, Title V programs

Association of Maternal and Child Health Programs. 2014. Environmental scan: State strategies and initiatives to improve developmental and autism screening and early identification systems. Washington, DC: Association of Maternal and Child Health Programs, 12 pp.

Annotation: This report provides initial findings of a search of state and other documents related to developmental screening activities and of the Title V Information System online database to identify states with priority needs and performance measures related to developmental screening and early identification, with a focus on children with autism spectrum disorders and developmental disabilities. It describes the Autism Cares Act and strategies to increase developmental screening and improve systems. It discusses issues of data collection, measurement, and infrastructure; coordinating systems and services; and challenges and barriers. State highlights are provided. An accompanying fact sheet lists state performance measures and objectives related to developmental screening and early identification.

Report

Keywords: Autism spectrum disorders, Child development disorders, Developmental screening, State programs

University of Michigan Health System, Adolescent Health Initiative. 2014. Health experts, meet teen experts. Ann Arbor, MI: University of Michigan Health System, Adolescent Health Initiative, 3 m 58 s.

Annotation: Targeting adolescent health experts, this videorecording provides teens’ perspectives on priorities for their own healthcare. Adolescent participants address the camera and explain how health care professionals can build trust and communicate effectively with their young patients. Key points include confidentiality, honesty and openness, and making sure that adolescent patients know their rights. foster better healthcare treatment for teenagers

Link

Keywords: Adolescent health, Adolescent health professionals

Smith H, Yadrich D, Farley R. 2014. How to select a family delegate. Washington, DC: Association of Maternal and Child Health Programs, 3 pp. (AMCHP Issue Brief)

Annotation: This issue brief discusses the role of the Family Delegate in advocating for all families in their territories (including those with special health care needs), working with both families and local systems of care as an advisor, promoter, and educator. The brief explains the importance of the Family Delegate, the process by which this person might be selected, and provides two state examples (from Kansas and Arkansas) on the selection process and the benefits of the role in their localities.

Link

Keywords: Advocacy, Family centered health care, Family support services, Title V programs, Arkansas, Kansas

Association of Maternal and Child Health Programs. 2014. Leading state maternal and child health programs: A guide for senior managers. Washington, DC: Association of Maternal and Child Health Programs, 126 pp.

Annotation: This guide provides information, tips, and resources for new senior managers responsible for the oversight or management of all or part of the Title V Maternal and Child Health (MCH) Services Block Grant and related federal and state programs. Topics include the roots and evolution of Title V, conceptual frameworks for Title V, and key concepts of MCH, and Title V at the national and state levels. Additional topics include leading through influence to achieve change; the Affordable Care Act; key players at the national and state levels; the importance of family-centered care; planning and managing resources for results; data sources and techniques; state and federal grants, budgets, and accountability; and work force development.

Keywords: Leadership, Management, Title V programs

Association of Maternal and Child Health Programs. 2014. Life course indicator: Exposure to secondhand smoke inside the home. Washington, DC: Association of Maternal and Child Health Programs, 7 pp.

Annotation: This resource describes how exposure to secondhand smoke within the home is measured, this indicator's implications for equity, its public health impact, how to leverage or realign resources to impact this measure, its use to predict an individual's health and wellness, and data criteria and quality.

Keywords: Data, Environmental exposure, Life course, Measures, Passive smoking, Tobacco

Association of Maternal and Child Health Programs. 2014. Life course indicators online tool. Washington, DC: Association of Maternal and Child Health Programs, multiple items.

Annotation: This resource presents a standardized set of indicators that can be applied to measure progress using the life course approach to improve maternal and child health. The set of life course indicators is organized by category, data source, and domain. For each indicator, the resource includes details such as a brief description, numerator, denominator, data source, similar measures in other indicator sets, and national comparison data. [Funded by the Maternal and Child Health Bureau]

Keywords: Data sources, Life course, MCH programs, Measures, Program improvement, Social indicators

Association of Maternal and Child Health Programs. 2014. MCH epidemiology methods and practice assessment. Washington, DC: Association of Maternal and Child Health Programs, 4 pp. (Issue brief)

Annotation: This issue brief reports on an assessment of the experiences, methods, approaches, and resources that strengthen and support the work of maternal and child health (MCH) epidemiologists and the field of MCH epidemiology (MCH epi). It describes a survey of epidemiologists who work for state/territory agencies and reports on their background and experiences, how MCH epi projects support Title V, use of linking or matching datasets, areas for skills development and training, and preferred resources on MCH epi practices.

Link

Keywords: Epidemiology, MCH programs, Surveys, Title V programs

Beattie H, McKeighan M, Maseroni M. 2014. Overview: Getting to Y: Youth bring meaning to the Youth Risk Behavior Survey. Montpelier VT: Vermont Agency of Education; Waterbury VT: Vermont Department of Health , 15 m 41 s.

Annotation: This video provides an overview of the "Getting to Why" initiative, a youth-led process for analyzing and responding to Youth Risk Behavior Survey data. It demonstrates how youth-adult teams in Vermont schools conduct data analysis retreats, identify community strengths and concerns, and develop action plans to address issues. The video shows students and adults engaging in activities such as asset mapping, data interpretation, and community dialogues. It highlights the leadership and civic engagement opportunities for youth, as well as the benefits of intergenerational collaboration in understanding and improving adolescent health behaviors. The video includes testimonials from student and adult participants about their experiences and the skills they gained through the process.

Link

Keywords: Adolescent behavior, Adolescent health, Community participation, Data Analysis, Initiatives, National surveys, Risk taking, School based programs

Association of Maternal and Child Health Programs. 2014. Quality improvement resources for epidemiologists. Washington, DC: Association of Maternal and Child Health Programs, 2 pp.

Annotation: This resource guide provides quality improvement (QI) resources for epidemiologists working in maternal and child health (MCH) programs. It includes background information on QI in public health, introductory materials on QI concepts and methods, practical tools and resources for implementing QI projects, examples of QI initiatives at state and local health departments, and MCH-specific QI resources. The guide highlights four common QI models used in public health practice: Lean, Six Sigma, IHI Breakthrough Series, and Kaizen. It also features a section on QI measurement and feedback specifically relevant for epidemiologists. The resource guide aims to familiarize epidemiologists with QI approaches and support their engagement in QI efforts to improve MCH programs and practices.

Link

Keywords: Epidemiology, Quality assessment, Quality assurance

Association of Maternal and Child Health Programs. 2014. Roadmap of MCH economic analysis resources. Washington, DC: Association of Maternal and Child Health Programs, 2 pp.

Annotation: This roadmap provides resources to enhance the use of economic analyses in maternal and child health (MCH) programs. It includes a glossary of terms, process guides and toolkits for conducting return on investment (ROI) analyses, case studies showcasing ROI methods for MCH programs, webinars and presentation slides on ROI approaches, tools for ROI calculations, articles demonstrating applied economic analyses of MCH interventions, and examples of economic analyses making the business case for MCH programs. The roadmap aims to increase knowledge of cost-effectiveness, cost-benefit, cost-analysis and ROI methods among MCH professionals and policymakers. It also highlights AMCHP's work supporting state teams in developing economic analyses of their MCH programs.

Link

Keywords: Cost benefit analysis, Economic factors, Information resources, MCH programs, Resources for professionals

Association of Maternal and Child Health Programs. 2014. State developmental screening and early identification performance measures. Washington, DC: Association of Maternal and Child Health Programs, 2 pp.

Annotation: This fact sheet lists performance measures and objectives related to the goals and priorities of developmental screening and early identification in states. [Funded by the Maternal and Child Health Bureau]

Keywords: Child development, Developmental screening, Early intervention, Health services delivery, Measures, Special health care services

McCoy C. 2014. State Title V program approaches to improving birth outcomes. Washington, DC: Association of Maternal and Child Health Programs, 24 pp.

Annotation: This issue brief focuses on efforts to reduce non-medically indicated deliveries before 39 weeks gestation and methods that state Title V maternal and child health (MCH) programs are using to improve birth outcomes. Topics include national and state initiatives to make lowering the number of non-medically indicated deliveries before 39 weeks a priority; the role of state Title V MCH programs in implementing quality improvement programs and payment reforms; and examples from California, North Carolina, and Texas. The appendix contains a matrix of national and regional initiatives to improve birth outcomes including a description, geographic scope, funding, and partners for each initiative.

Keywords: Childbirth, National initiatives, Prematurity, Program improvement, Quality assurance, Regional programs, Reimbursement, State MCH programs, Treatment outcome

Biddle C, Mitra D. 2014. UP for Learning’s ‘Getting to Y’ Program: Youth bringing meaning to the Youth Risk Behavior Survey evaluation. Washington, DC: Association of Maternal and Child Health Programs, 36 pp.

Annotation: This evaluation report examines UP for Learning's 'Getting to Y' program, which trains middle school youth-adult teams to analyze their school's Youth Risk Behavior Survey data. The report discusses the program's theory of change, methodology, key findings from implementing the program in Vermont middle schools, and outcomes for students and school culture. It highlights the program's success in empowering youth leaders, fostering dialogue on risk and resiliency, and creating opportunities for youth-adult partnership. The report also identifies challenges and opportunities for program improvement, particularly around action planning and supporting diverse student involvement.

Link

Keywords: Adolescent behavior, Evaluation, National Surveys, Risk taking, School based programs, Youth

State Infant Mortality Collaborative. 2013-. State infant mortality (SIM) toolkit: A standardized approach for examining infant mortality. Washington, DC: Association of Maternal and Child Health Programs, 1 v.

Annotation: This toolkit presents lessons learned from the State Infant Mortality Collaborative including experiences of and guidance from five teams relevant to the analysis and interpretation of perinatal data. Topics include the importance of infant mortality as a key indicator of population health, selecting indicators of infant mortality and data sources, methodological and statistical approaches to analyzing data and interpreting findings, and translating findings into programs and policies.

Link

Keywords: Case studies, Data, Infant mortality, Information dissemination, Model programs, Needs assessment, Perinatal influences, Policy development, State MCH programs

Association of Maternal and Child Health Programs. 2013. 2013 AMCHP annual conference: Advancing the maternal and child health vision. Washington, DC: Association of Maternal and Child Health Programs,

Annotation: This web site contains video archives of plenary sessions, and selected skill-building workshops and power sessions for the Association of Maternal and Child Health Programs (AMCHP) annual conference held February 9-12, 2013 in Washington, DC. [Funded by the Maternal and Child Health Bureau]

Keywords: Conferences, MCH training

Park MJ, English A. 2013. ACA implementation: What does it mean for adolescents and young adults?. San Francisco, CA: National Adolescent and Young Adult Health Information Center; Chapel Hill, NC; Center for Adolescent Health and the Law, 35 pp.

Annotation: These slides address the implementation of the Affordable Care Act (ACA) and how it will affect adolescents and young adults. Presented during the 2013 annual meeting of the Association of Maternal and Child Health Programs (AMCHP), the slides explain why health is so important for young people; address some of the health issues that adolescents and young adults face; and describe how health care can help youth in the transition into adulthood. The slides also cover public and private insurance under ACA and describe key issues to monitor as ACA implementation moves forward. [Funded by the Maternal and Child Health Bureau]

Link

Keywords: Adolescents, Federal health insurance programs, Health care reform, Health reform, Patient Protection and Affordable Care Act, Young adults, Youth

CityMatCH, Association of Maternal and Child Health Programs, National Healthy Start Association, EveryWoman Southeast. 2013. Addressing racism's impact on infant mortality: Lessons learned from the Partnership to Eliminate Disparities in Infant Mortality. Washington, DC: Association of Maternal and Child Health Programs, 1 video (60 min., 24 sec.).

Annotation: This webinar explores the persistent gap in infant mortality between white and black infants and how to address challenges and opportunities. The experiences of 11 community and state teams and partners in addressing racism's impact on infant mortality are shared and lessons learned are described with actionable steps for programs to take. Examples are provided from California, Colorado, Connecticut, Florida, Ohio, Illinois, Louisiana, Massachusetts, Michigan, Texas, and Wisconsin.

Keywords: Blacks, Case studies, Community programs, Infant death, Infant mortality, Multimedia, Racial factors, Racism, State initiatives

Association of Maternal and Child Health Programs, National Center for Health Reform Implementation. 2013. Fact sheet: The Affordable Care Act—Outreach and enrollment. Washington, DC: Association of Maternal and Child Health Programs, 2 pp.

Annotation: This fact sheet provides an overview and suggested steps for state maternal and child health leaders as implementation of key provisions of the Patient Protection and Affordable Care Act take effect. It also provides sources and selected resources for further information on outreach, enrollment, and coverage eligibility.

Link

Keywords: State MCH programs, Eligibility, Enrollment, Health insurance, Health reform, Outreach, Patient Protection and Affordable Care Act

Association of Maternal and Child Health Programs, National Health Law Program. 2013. Health reform and insurance coverage for pregnant women. Washington, DC: Association of Maternal and Child Health Programs, National Health Law Program,

Annotation: This webcast provides information about public and private health insurance options for pregnant women under the Affordable Care Act and before the Affordable Care Act goes into effect. Medicaid, health insurance marketplaces, and Title V programs are discussed. Advocates in Maryland and Georgia describe efforts in these two states related to coverage options for pregnant women.

Keywords: Eligibility, Enrollment, Georgia, Health insurance, Health reform, Legislation, Maryland, Medicaid, Pregnant women, Social Security Act, Title V, State programs, Uninsured persons

Association of Maternal and Child Health Programs. 2013. Life course indicators tool. Washington, DC: Association of Maternal and Child Health Programs, n.a.

Annotation: This online tool provides access to 55 life course indicators that can be searched in various ways: By category (e.g., mental health, family wellbeing and reproductive life experiences), by data source (e.g., WIC program data and National Center for Education Statistics), or by domain (including risk outcome or service/capacity options) Each of the indicators includes a brief description, numerator, denominator, data source, similar measures in other indicator sets, and national comparison data, where appropriate. The site also includes a downloadable printable list and an Excel spreadsheet so that users can sort and explore the indictors on their own.

Link

Keywords: Child health, Indicators, Life course, MCH Services, Maternal health

Association of Maternal and Child Health Programs. 2013. Partnering to promote follow-up care for premature infants. Washington, DC: Association of Maternal and Child Health Programs, 6 pp. (Issue brief)

Annotation: This document provides a series of case studies on state models to support neonatal intensive care unit follow-up programs. The document also includes national resources for state Title V programs as they continue to develop and support similar programs. Models from the following states are described: Arizona, California, Colorado, Iowa, For each model, an overview is provided, followed by a discussion of partners and funding and successes and contact information.

Link

Keywords: Arizona, California, Case studies, Colorado, Costs, Family support services, Financing, Health services, Infant health, Iowa, Premature infants, Programs, State initiatives

Association of Maternal and Child Health Programs, National Initiative for Children's Healthcare Quality. 2013. Promoting healthy weight in maternal and child health populations. Washington, DC: Association of Maternal and Child Health Programs, 1 video (60 min.). (Related to 34808)

Annotation: This webinar, broadcast April 26, 2013, highlights how states and communities are working to promote healthy weight for children, women, and families. Presentations provide examples of state Title V program efforts to address healthy weight, and examples from the Collaborate for Healthy Weight initiative to address obesity at the community level.

Keywords: Children, Families, Maternal health, Multimedia, Obesity, State initiatives, Women', s health

Association of Maternal and Child Health Programs, . 2013. Promoting healthy weight: The role of Title V. Washington, DC: Association of Maternal and Child Health Programs, 15 pp.

Annotation: This brief highlights how state maternal and child health (MCH) programs are working to promote healthy weight in their states and communities by presenting an environmental scan of activities and snapshots of comprehensive state efforts. It provides an overview of Title V programs and highlights the most frequently userd strategies to address weight issues that states described in their MCH Block Grant narratives. The strategies include health promotion, education, and training efforts; data monitoring, surveillance, and evaluation; increasing collaborations and partnerships; developing and implementing policies and guidelines; and capacity and systems building. Snapshots feature one state from each of the 10 Health Resources and Services Administration regions to show the breadth of activities and roles for Title V program involvement. A list of resources is also included.

Keywords: Body weight, Collaboration, Community programs, Education, Health promotion, MCH programs, Obesity, Program evaluation, Public policy, State programs, Statistical data, Title V programs, Training, Weight management

CityMatCH, Association of Maternal and Child Health Programs, National Healthy Start Association, EveryWoman Southeast. 2013. Putting the life course concept into practice: Lessons from the Northeast Florida Healthy Start Coalition. Washington, DC: Association of Maternal and Child Health Programs, 1 video (60 min., 29 sec.). (A lifecourse theory to practice webinar)

Annotation: This webinar, broadcast June 6, 2013, discusses the life course theory and the capacity of the approach to address health inequalities for African American women as experienced by the Northeast Florida Healthy Start Coalition, The Magnolia Project. It also discusses strategies for integrating the life course approach into a community-based program, and describes challenges and opportunities to integrating this approach into daily practice.

Keywords: Audiovisual materials, Blacks, Case studies, Florida, Health care disparities, Health status disparities, Healthy Start, Life cycle, Women', s health

National Center for Education in Maternal and Child Health, Association of Maternal and Child Health Programs. 2013. Social media in the states: Providing instant access to emerging issues. Washington, DC: National Center for Education in Maternal and Child Health,

Annotation: This resource offers information about the growing importance of online information, including social media, for obtaining information about health and medical issues. The toolkit discusses how emerging issues can be tracked through social media in the states and provides links to resources, including a live feed of Twitter accounts, a list of state Facebook and Twitter accounts, and other resources to help states use social media. [Funded by the Maternal and Child Health Bureau]

Keywords: Bibliographies, Directories, Interactive media, Resources for professionals, State initiatives

Association of Maternal and Child Health Programs. 2013. State newborn screening and birth defects program roles in screening for critical congenital heart defects (CCHD). Washington, DC: Association of Maternal and Child Health Programs, 11 pp.

Annotation: This issue brief provides recommendations for planning, developing, implementing, and evaluating comprehensive critical congenital heart disease (CCHD) programs. The brief highlights efforts in Indiana, Michigan, New Jersey, and Utah to establish collaboration between programs, particularly newborn screening and birth defects programs, to effectively implement CCHD screening and follow-up. Topics include key elements of the state approaches, data considerations, and program challenges and successes. The role of the Title V MCH Services Block Grant is discussed.

Link

Keywords: Barriers, Collaboration, Congenital abnormalities, Congenital heart defects, Indiana, Michigan, Neonatal screening, New Jersey, State programs, Title V programs, Utah

Mullen C. 2013. State opportunities and strategies for breastfeeding promotion through the Affordable Care Act. Washington, DC: Association of Maternal and Child Health Programs, National Center on Health Reform Implementation, 12 pp.

Annotation: This issue brief explores how states and communities can capitalize on the opportunities presented by the Affordable Care Act to advance breastfeeding. In particular, it examines state partnerships; financing of breastfeeding support and counseling services; promoting worksite accommodations; and using the Maternal, Infant, and Early Childhood Home Visiting program to improve referral and tracking. The brief also highlights some of the best practices of state Title V maternal and child health programs and their partners and offers strategies for states interested in developing similar efforts.

Link

Keywords: Breastfeeding, Financing, Health care reform, Home visiting, Model programs, Patient Protection and Affordable Care Act, Public private partnerships, State MCH programs, Workplace

Association of Maternal and Child Health Programs. 2013. The ABCs of ACOs for MCH. Washington, DC: Association of Maternal and Child Health Programs,

Annotation: This 90-minute video training explores key considerations of the Patient Protection and Affordable Care Act (ACA) for maternal and child health populations, the role of public health in accountable care organization (ACO) implementation, and efforts to implement ACOs that have a focus on pediatric populations with an emphasis on children with special health care needs.

Webinar

Keywords: Access to health care, Children with special health care needs, Health insurance, Health reform, MCH services, MCH training, Patient Protection and Affordable Care Act, Resources for professionals, Training materials

Association of Maternal and Child Health Programs. 2013. The Patient Protection and Affordable Care Act: Summary of key maternal and child health related highlights with updates on status of implementation. Wahsington, DC: Association of Maternal and Child Health Programs, 13 pp.

Annotation: This fact sheet provides a summary of the maternal and child health (MCH) related highlights and funding announcements of the Patient Protection and Affordable Care Act (ACA) and related implementation of the law in states. Topics include descriptions of individual provisions in these categories: prevention and public health, coverage and benefits, access to health care services, workforce, other key MCH investments, and healthcare quality.

Keywords: Access to health care, Expanded eligibility, Federal health insurance programs, Financing, Health care reform, Home visiting, MCH services, Patient Protection and Affordable Care Act, Preventive health services, Quality assurance, State health insurance programs, Work force

McElwain L, Tilley P, Warren MD. 2013. The true meaning of succession planning. Washington, DC: Association of Maternal and Child Health Programs, 1 video (63 min., 39 sec.).

Annotation: This webinar, broadcast July 24, 2013, discusses identifying and grooming the next generation of leaders as an on-going part of maternal and child health program workforce development efforts designed to sustain an organization or agency’s capacity, including developing skills, knowledge, and building leadership capacity. Topics include successful succession planning strategies in the Tennessee Department of Health, the Wyoming Department of Health and the Maternal and Child Health Section, and New Hampshire’s Maternal and Child Health Program.

Keywords: Audiovisual materials, Leadership training, Public health agencies, Resources for professionals, Transition planning, Work force

Pies C. [2012]. Moving the life course work forward: Recommendations from the Life Course Town Hall Meetings. Washington, DC: Association of Maternal and Child Health Programs; Omaha, NE: CityMatCH, 10 pp.

Annotation: This report synthesizes information from two life course town hall meetings hosted by the Association of Maternal and Child Heath Programs and CityMatCH at their respective membership meetings in September 2010 and February 2011. The life course perspective encourages focus beyond the individual and individual behavior change to look more broadly at how the interplay of biological, behavioral, psychological, environmental, and social protective and risk factors contribute to health outcomes across the life span. The report provides a brief overview of the meetings, reviews key themes and recommendations identified by participants, and offers ideas for federal agencies exploring next steps as well as for states and localities seeking to either begin or continue their efforts at integrating the life course perspective into their communities and work. [Funded in part by the Maternal and Child Health Bureau]

Keywords: Behavior, Communities, Environmental influences, Federal programs, Health, Life course, Local programs, Protective factors, Psychosocial factors, Risk factors, State programs

National Center for Chronic Disease prevention and Health Promotion, Division of Reproductive Health, Association of Maternal and Child Health Programs, National Maternal Health Initiative. (2012). CDC/AMCHP assessment of maternal mortality review processes in the United States. Washington, DC: Association of Maternal and Child Health Programs; Atlanta, GA: National Center for Chronic Disease prevention and Health Promotion, Division of Reproductive Health, 1 p.

Annotation: This fact sheet provides a brief review of the Centers for Disease Control/Association of Maternal and Child Health Program's assessment of maternal mortality review process. The fact sheet provides background and presents a summary of methods and results.

Keywords: Financing, Legislation, Maternal death, Maternal mortality, Racial factors, Research, Statistical data

Association of Maternal and Child Health Programs. 2012. AMCHP 2012–2015 strategic plan. Washington, DC: Association of Maternal and Child Health Programs, 1 p.

Annotation: This document lays the foundation for the Association of Maternal and Child Health Programs' (AMCHP's) staff work and member involvement and is intended to guide all program, policy, and member services activities. Contents include AMCHP's vision, values, mission, goals, and strategies for supporting state maternal and child health programs and providing national leadership on issues affecting women and children. The plan was created for a three year period and is refreshed annually.

Keywords: Professional societies, State MCH programs, Strategic plans

Association of Maternal and Child Health Programs. 2012. Community Circle of Care [Iowa]. Washington, DC: Association of Maternal and Child Health Programs, 2 pp.

Annotation: This fact sheet provides information about Community Circle of Care, a regional systems of care site comprising a coordinated network of community-based services and supports that is organized to meet the challenges of children and adolescents with serious mental problems and disorders and their families. The fact sheet discusses the following topics: demographics; referral, diagnosis, and family history; reduction in out-of-home placements; improvement in behavior problems; and improvement in caregiver strain. Brief stories told from the points of view of adolescents who have benefited from Community of Care are also included. The service area of this project was 10 counties in northeast Iowa.

Keywords: Adolescent behavior, Adolescent mental health, Behavior problems, Child behavior, Child mental health, Community services, Diagnosis, Families, Family support services, Mental disorders, Program coordination, Programs, Referral, Service coordination, State initiatives

Association of Maternal and Child Health Programs. 2012. Forging a comprehensive initiative to improve birth outcomes and reduce infant mortality: Policy and program options for state planning. Washington, DC: Association of Maternal and Child Health Programs, 92 pp.

Annotation: This compendium is a collection of recommendations for states to address infant mortality, supplemented by action steps, examples, and case studies. Topics include implementing health-promotion efforts; improving access to health care for women before, during, and after pregnancy; and ensuring health care quality for all women and infants. The compendium also discusses implementing maternal-risk screening for all women of reproductive age, enhancing service integration for all women and infants, developing data systems to understand and inform efforts, and promoting social equity.

Link

Keywords: Infant mortality, Perinatal health, Policy, Pregnancy outcome, Pregnant women, Program improvement, Statewide planning, Women

Association of Maternal and Child Health Programs. 2012. Health reform: What is in it to promote breastfeeding?. Washington, DC: Association of Maternal and Child Health Programs, 4 pp.

Annotation: This fact sheet outlines breastfeeding provisions in the Patient Protection and Affordable Care Act (ACA) and discusses how maternal and child health programs can use the ACA to strengthen breastfeeding efforts for women. Topics include breastfeeding support, counseling, and equipment, as well as reasonable break time and appropriate space in the workplace. Sources and selected resources for further information are provided.

Link

Keywords: Breastfeeding, Health care reform, Legislation, State MCH programs, Women, Working mothers, Workplace health promotion

Association of Maternal and Child Health Programs, Association of State and Territorial Health Officials. 2012. Improving birth outcomes in the U.S.: State efforts to reduce prematurity. [Washington, DC]: Association of Maternal and Child Health Programs, 62 pp.

Annotation: These presentation slides provide examples of how states can move forward in achieving the goal of prematurity reduction. The webinar, held on July 12, 2012, outlines the Healthy Babies Initiative to decrease prematurity in the United States by 8 percent by 2014. Presenters highlight the experience and strategies of two states that have met the challenge goal (Alaska and Vermont) and one state currently working toward that goal (Oklahoma).

Keywords: Alaska, Oklahoma, Premature infants, Prematurity, Preterm birth, Prevention programs, State initiatives, Vermont

Association of Maternal and Child Health Programs. 2012. Improving maternal and child health across the life span: ACTING TODAY for healthy TOMORROWS. Washington, DC: Association of Maternal and Child Health Programs,

Annotation: This website provides access to the sessions that took place during the 2012 annual conference of the Association of Maternal and Child Health Programs (AMCHP). Included are general and plenary sessions, skills building sessions, and workshops (available in webcast, smart phone, and downloadable pdf formats). Topics explored include innovations in the field of maternal and child health; creating change for healthier outcomes; state initiatives to promote maternal and child health; and coordinating chronic disease prevention and MCH to improve health across the lifespan. The website also provides details on the 2012 AMCHP awards for leadership, the memorial lecture, scholarships, and best practices.

Keywords: Conference proceedings, Life course, MCH programs, Multimedia, State MCH programs

Association of Maternal and Child Health Programs. 2012. MCH Navigator: Introduction to an online learning portal. Washington, DC: Association of Maternal and Child Health Programs, 1 video (55 min.).

Annotation: This January 10, 2012, webinar introduces the MCH Navigator, a new learning portal that links individuals to existing open-access training, organized in areas consistent with nationally endorsed public health and maternal and child health leadership competencies. State Title V directors involved in the design and use of this professional development resource share their perspectives and ideas for future applications in public health and related community settings.

Keywords: Audiovisual materials, Leadership, MCH training programs, Public health, Resources for professionals

Association of Maternal and Child Health Programs and Centers for Disease Control and Prevention. 2012. Newborn screening recommendations for critical congenital heart disease (CCHD): Implications for state programs. Washington, DC: Association of Maternal and Child Health Programs,

Annotation: This webinar focuses on the point-of-care screening recommendations for critical congenital heart disease ((CCHD) and the potential roles of state health departments. The presentations include considerations for roles of state health departments with CCHD screening, an overview of state activities, and lessons learned from New Jersey’s experience with implementing mandated screening. The webinar recording, as well as the slides used by the presenters, can be accessed from the website.

Keywords: Congenital heart defects, Multimedia, Neonatal screening, Newborn infants, Program improvement, State programs

Association of Maternal and Child Health Programs, Association of SIDS and Infant Mortality Programs, National Fetal Infant Mortality Review. 2012. Pregnancy in the context of a woman's lifespan. [Lansing, MI]: Association of SIDS and Infant Mortality Programs, Association of Maternal and Child Health Programs, National Fetal Infant Mortality Review, 1 webinar (72 min.). (2012 SUID/SIDS webinar series)

Annotation: This webinar focuses on determinants of health over the course of a woman's lifespan and the factors that influence future health risks for mothers and babies. It describes how pregnancy is not simply an isolated event in a woman's life, but rather, pregnancy is influenced by many contextual factors that occur long before, immediately preceding, and during pregnancy. The webinar highlights the importance of optimizing women's health across the reproductive decades in efforts to minimize pregnancy risks and enhance birth outcomes. The webinar took place on September 6, 2012 and was jointly sponsored by the Association of Maternal and Child Health programs, the National Fetal Infant Mortality Review, and the Association of SIDS and Infant Mortality Programs.

Link

Keywords: Infant health, Life course, Life cycle, Multimedia, Perinatal influence, Pregnant women, Prevention, Risk factors, Women', s health

Association of Maternal and Child Health Programs. 2012. Roles for state Title V programs in building systems of care for children and youth with autism spectrum disorders. Washington, DC: Association of Maternal and Child Health Programs,

Annotation: This webcast highlights the roles for state Title V programs in building systems of care for children and youth with Autism Spectrum Disorder and Other Developmental Disabilities (ASD/DD). It outlines a range of roles for Title V as a leader, partner and facilitator; provides opportunities for peer-to-peer technical assistance; highlights ongoing challenges in data and financing and opportunities for collaborative approaches; and provides state resources and examples of leadership, outreach, and family participation to share with policy makers. The presenters provided examples from state programs to demonstrate the depth of involvement from state Title V programs and their partners. The purpose of the webcast was to help states (primarily Title V programs) determine appropriate roles and approaches to building systems of care for children and youth with ASD/DD. The full webcast recording and presenters' powerpoint slides can be downloaded from the website.

Keywords: Autism, Children, Developmental disabilities, Multimedia, State programs, Title V programs, Youth

Association of Maternal and Child Health Programs and Catalyst Center. 2012. The Affordable Care Act and children and youth with autism spectrum disorder and other developmental disabilities (rev.). Washington, DC: Association of Maternal and Child Health Programs, 12 pp. (AMCHP issue brief)

Annotation: This report describes selected provisions of the Affordable Care Act (ACA) that have implications for children and adolescents with autism spectrum disorders or other developmental disabilities(ASD/DD). The report also describes how state Title V maternal and child health (MCH) programs can maximize opportunities under the ACA to develop and strengthen systems of care for children and adolescents with ASD/DD. The report provides background on gaps in coverage faced by children and adolescents with ASD/DD and discusses affordability and adequacy of health care coverage for this population, key provisions of the ACA, health care coverage and benefits, and implications for state Title V MCH and children and youth with special health care needs program leaders. [Funded by the Maternal and Child Health Bureau]

Link

Keywords: , Adolescents with developmental disabilities, Adolescents with special health care needs, Autism, Children with developmental disabilities, Children with special health care needs, Costs, Health care systems, Health insurance, Legislation, MCH programs, Title V programs

Hawkins J, Bonzon E, Rough A. 2012. Women's Health prevention brief: The built environment. Washington, DC: Association of Maternal and Child Health Programs, 4 pp.

Annotation: This brief highlights the importance of addressing the built environment in order to improve maternal health and birth outcomes. It presents research findings on the connections between the built environment and health, including the biological and social impacts. Included are promising programs that support healthy environments at the state and local levels.

Link

Keywords: , Environmental health, Environmental influences, Maternal health, Model programs, Outcome and process assessment, Prevention, Socioeconomic factors, Women', s health

Association of Maternal and Child Health Programs and March of Dimes. 2011. A year of progress utilizing the Less Than 39 Weeks toolkit: Building successful partnerships. Washington, DC: Association of Maternal and Child Health Programs, 1 video (90 min.). (AMCHP women's health information series webinar 7)

Annotation: This 90-minute webinar, broadcast November 15, 2011, discusses how successful partnerships were built with clinicians, health departments and the March of Dimes and offers strategies to participants to implement the 39 Weeks Toolkit with their clinicians and community partners. Presentation materials are also available on the web site; these include data on preterm births, factors related to causes and prevention of elective preterm birth, how to get started, and examples of successful efforts.

Keywords: Audiovisual materials, Gestational age, Pregnancy counseling, Pregnancy outcomes, Public awareness campaigns, Third pregnancy trimester

American College of Obstetricians and Gynecologists. 2011. ACOG state legislative toolkit: Improving pregnancy outcomes–Maternal mortality reviews and standardized reporting. [Washington, DC]: American College of Obstetricians and Gynecologists, 1 v.

Annotation: This toolkit contains resources to help women's health physicians advocate for maternal mortality review (MMR) and standardized reporting to improve pregnancy outcomes in their states and communities. Contents include a sample legislative position statement, instructions for drafting a bill, a list of state MMR rates and committees, the U.S. standard certificate of death and sample certificate, and a model bill on the Standardized Vital Statistics Reporting Act.

Keywords: Advocacy, Legislation, Maternal mortality, Model programs, Pregnancy outcome, Professional standards review, Program improvement

Association of Maternal and Child Health Programs. 2011. AMCHP annual conference: Working together to improve maternal and Child health. Washington, DC: Association of Maternal and Child Health Programs, 70 pp.

Annotation: This booklet contains descriptions of sessions held at the February 12-15, 2011 conference in Washington, DC. The conference was held in conjunction with Family Voices. The booklet also describes additional meetings and activities, Capitol Hill visits, poster session participants, and exhibitors. [Funded in part by the Maternal and Child Health Bureau]

Keywords: Access to health care, Adolescent health, Association of Maternal and Child Health Programs, Child health, Conferences, Families, MCH services, Maternal health

Association of Maternal and Child Health Programs. 2011. Critical condition: How federal and state budget cuts are hurting the health of our nation's mothers and children. Washington, DC: Association of Maternal and Child Health Programs, 16 pp.

Annotation: This report shows how budget cuts, combined with the increase in the number of Americans living in poverty and those without health insurance is endangering the health of the nation’s mothers, infants and children, including those with special health care needs. It provides a snapshot of the impact federal and state budget cuts have had on maternal and child health (MCH) in a number of selected states and illustrates why Congress needs to maintain funding to state MCH programs. An overview of the Title V Maternal and Child Health Block Grant is included in the report.

Keywords: Analysis, Budgets, Child health, Children with special health needs, Costs, Federal programs, MCH programs, Maternal health, Risk factors, State MCH programs, Title V programs

Association of Maternal and Child Health Programs and State Public Health Autism Resource Center. 2011. Environmental scan: How state Title V programs are responding to autism spectrum disorder and other developmental disabilities. Washington, DC: Association of Maternal and Child Health Programs, 7 pp. (AMCHP issue brief)

Annotation: This issue brief examines the approaches that state Title V programs are taking to address the growing incidence of autism spectrum disorder and other developmental disabilities (ASD/DD) and catalogues ASD/DD activities that fit within the framework of the Maternal and Child Health Bureau (MCHB) critical indicators for children and youth with special health care needs. These indictors include the medical home, insurance and financing, early and continuous screening, easy-to-use services, family-professional partnerships, and transition to adulthood. The Information presented in the brief was obtained from the 2010 Maternal and Child Health Block Grant State Narratives contained in the Title V Information System (TVIS) online database. [Funded by the Maternal and Child Health Bureau]

Link

Keywords: Autism, Data analysis, Developmental disabilities, Measures, State programs, Title V programs

Association of Maternal and Child Health Programs. 2011. Fact sheet: State birth defects performance measures [rev. ed.]. Washington, DC: Association of Maternal and Child Health Programs, 2 pp.

Annotation: This fact sheet highlights innovative and effective ways that state Title V agencies utilize birth defects surveillance systems to improve maternal and child health. Eleven states and territories identified in the fact sheet. The state performance measure and the objective or intent are described.

Keywords: Congenital abnormalities, State initiatives, Surveillance, Title V programs

Koliba, C. 2011. Getting to Y: Vermont Youth Risk Behavior Survey Project evaluation. Montpelier, VT: The Vermont Agency of Education, 18 pp.

Annotation: This report presents findings from an evaluation of the Vermont Youth Risk Behavior Survey (YRBS) Project conducted in 2011. It describes the project components, including trainings, data analysis retreats, community dialogue nights, and action planning. The report discusses perceived impacts on participating students, schools, and communities, as well as factors contributing to the project's success and challenges faced. Key findings indicate that youth engagement in analyzing YRBS data was valuable, but sustaining student involvement and community participation were difficult. Recommendations are provided for improving future implementations of the YRBS project model in schools.

Link

Keywords: Adolescents, Adolescent behavior, National surveys, Assessment, Evaluation, State initiatives, Vermont

Association of Maternal and Child Health Programs. 2011. Health insurance exchanges: Key considerations for maternal and child health programs. Washington, DC: Association of Maternal and Child Health Programs, 5 pp.

Annotation: This issue brief highlights considerations for planning and developing health insurance exchanges (mechanisms for purchasing health insurance coverage) to ensure the unique needs of women, children, and families are addressed. The brief describes exchange implementation and operations, approval, and review. Recommendations for Title V are presented within the following areas: exchange governing boards, stakeholder consultation, enrollment, required consumer assistance tools, education and outreach, treatment of a direct primary care medical home, establishment of exchange network adequacy standards, and essential community providers. Other provisions that have specific implications for the work of state MCH programs are also addressed including enrollment periods, pediatric dental benefit, qualified health plan minimum certification standards, and child only health plan.

Keywords: Health care reform, Health insurance, Program development, Program planning, State MCH programs

Association of SIDS and Infant Mortality Programs and Association of Maternal and Child Health Programs. 2011. Infant sleep position and bedsharing: Using PRAMS to impact programs and policy. Lansing, MI: Association of SIDS and Infant Mortality Programs; Washington, DC: Association of Maternal and Child Health Programs, (ASIP/AMCHP webinar series no. 5)

Annotation: This webinar, held on June 29, 2011, is the fifth in a series of quarterly webinars to strengthen sudden unexpected infant death (SUID), sudden infant death syndrome (SIDS), infant safe sleep, and bereavement services across the United States. It focuses on the use of Pregnancy Risk Assessment Monitoring System (PRAMS) data to inform program planning and research on sudden infant death. Topics include a review of PRAMS' history and methodology, and data on maternal behaviors that influence or impact SIDS and SUID; findings from a Florida study of linked birth certificate and PRAMS data on infant mortality and racial disparities in SUID; and examples of how states are using PRAMS data in SIDS and SUID prevention programs. A question and answer session is also included. [Funded by the Maternal and Child Health Bureau]

Keywords: Case studies, Infant death, Infant health, Infant mortality, PRAMS, Pregnancy, Research methodology, Risk management, SIDS, SUID, State programs, Statistical data

Association of State and Territorial Dental Directors and Association of Maternal and Child Health Programs. 2011. Opportunities for collaboration between state oral health and maternal and child health programs to improve early childhood oral health. Sparks, NV: Association of State and Territorial Dental Directors, 9 pp.

Annotation: This brief discusses efforts to integrate oral health activities and information into state maternal and child health (MCH) early childhood programs to improve oral health status. The brief focuses on MCH state-level early childhood programs relevant to oral health, specifically the Early Childhood Comprehensive System (ECCS) and the Maternal, Infant, and Early Childhood Home Visiting Program. The brief also presents examples of oral health integration into state ECCS programs, other opportunities to collaborate with state MCH programs, and resources. [Funded by the Maternal and Child Health Bureau]

Keywords: Collaboration, Early childhood development, Federal MCH programs, Health agencies, Home visiting, Oral health, Service delivery systems, Service integration, State MCH programs, Young children

Association of Maternal and Child Health Programs and State Public Health Autism Resource Center. 2011. Roles for state Title V programs: Building systems of care for children and youth with autism spectrum disorder and other developmental disabilities. Washington, DC: Association of Maternal and Child Health Programs, 30 pp.

Annotation: This document presents a policy framework to help states (primarily Title V programs) determine appropriate roles and approaches to pursue in building systems of care for children and youth with autism spectrum disorders and other developmental disabilities (ASD/DD). The framework provides examples from state programs to demonstrate the breadth and depth of involvement from state Title V programs and their partners. It focuses on how state approaches to Title V programs can lead to comprehensive efforts to meet the needs of children and youth with ASD/DD and their families and how such approaches might improve systems of care for all children and youth with special health care needs (CYSHCN.) [Funded by the Maternal and Child Health Bureau]

Keywords: Autism, Children with special health needs, Developmental disabilities, Developmental disabilities programs, State programs, Systems development, Title V programs, Youth

Association of SIDS and Infant Mortality Programs and Association of Maternal and Child Health Programs. 2010. Addressing racial disparities in infant sleep practice: New perspectives and recommendations. Lansing, MI: Association of SIDS and Infant Mortality Programs; Washington, DC: Association of Maternal and Child Health Programs, (ASIP/AMCHP webinar series no. 4)

Annotation: This webinar was held on December 9, 2010, as the fourth in a series of quarterly webinars to strengthen sudden unexpected infant death (SUID), sudden infant death syndrome (SIDS), infant safe sleep, and bereavement services across the United States. It focuses on new perspectives and recommendations related to addressing racial disparities in infant sleep practices. Topics include the National Infant Sleep Position Study, barriers to following the supine sleep position recommendation, the influence of mothers' beliefs on infant sleep position, and infant sleep location. The webinar also includes a brief discussion of the National SAFE Study. [Funded by the Maternal and Child Health Bureau]

Link

Keywords: Infant death, Infant health, Parenting attitudes, Prevention, Preventive health services, Racial factors, Research, Risk factors, SIDS, Safety, Sleep position

Association of Maternal and Child Health Programs. 2010. AMCHP white paper: Making the case—A comprehensive systems approach for adolescent health and well-being. Washingotn, DC: Association of Maternal and Child Health Programs, 14 pp.

Annotation: This white paper seeks to raise awareness and stimulate consensus building among members of the Association of Maternal and Child Health Programs, Title V programs, and partners regarding the need for a comprehensive systems approach to adolescent health. The paper discusses the theory behind systems thinking (a holistic approach that recognizes that component parts of a system are interrelated and that incorporating many parts of a system can produce more creative, flexible, and responsive approaches); maternal and child health (MCH) programs and early childhood comprehensive systems( ECCS); applying ECCS principles and models to the adolescent population; adolescent health; adolescent development and well-being; family involvement, crucial systems, services, and resources for adolescents; MCH programs as innovators for a comprehensive approach to adolescent health and well-being; and the MCH call for a comprehensive system for adolescent health.

Keywords: Adolescent development, Adolescent health, Comprehensive health care, Families, Health care systems, MCH programs, Service delivery systems, Systems development

Association of Maternal and Child Health Programs. 2010. Celebrating the legacy, shaping the future: 75 years of state and federal partnership to improve maternal and child health. Washington, DC: Association of Maternal and Child Health Programs, 40 pp.

Annotation: This booklet discusses the Title V maternal and child health (MCH) block grant, which is part of Title V of the Social Security Act. The booklet provides an overview of the block grant (including discussion of what state and territorial program do, what works in improving MCH, and family participation in state and territorial MCH programs); looks back at the history of the block grant; presents an MCH leadership timeline; and discusses challenges, opportunities, and shaping the future. [Funded i part by the Maternal and Child Health Bureau]

Keywords: Anniversaries, Block grants, Child health, Families, History, Leadership, MCH programs, Social Security Act, Title V, State MCH programs, Women', s health

Comeau M. 2010. Health care reform: What's in it for children and youth with special health care needs. Washington, DC: Association of Maternal and Child Health Programs; Boston, MA: Catalyst Center, 8 pp.

Annotation: This fact sheet describes provisions in the Patient Protection and Affordable Care Act (ACA) designed to improve the coverage and financing of care for children with special health care needs. It describes how the new legislation includes provisions to (1) reduce the number of children with special needs who do not have public or private insurance coverage; (2) enhance benefits for those children whose health insurance coverage is inadequate to meet their needs; (3) increase the options available to finance care coordination, home modifications, and other wrap-around services; and (4) promote stronger, more comprehensive systems of care. The fact sheet also describes the role of state MCH programs in carrying out the new regulations. A list of selected resources is included.

Keywords: Children with special health care needs, Federal legislation, Program improvement, State MCH programs

Association of Maternal and Child Health Programs. 2010. Health reform: What's in it for adolescents?. Washington, DC: Association of Maternal and Child Health Programs, 6 pp.

Annotation: This fact sheet describes adolescent health provisions in the Patient Protection and Affordable Care Act (ACA) and explains how state Title V MCH programs can optimize those provisions to improve adolescent health. It describes coverage and benefits; expanded access to care; and prevention and public health provisions under ACA. Additional information sources and selected resources are also provided.

Keywords: Adolescent health, Federal legislation, Health care reform, Program improvement, State MCH programs, Title V programs

Association of Maternal and Child Health Programs. 2010. Health reform: What's in it to promote the medical home?. Washington, DC: Association of Maternal and Child Health Programs, 4 pp.

Annotation: This fact sheet describes medical home provisions in the Patient Protection and Affordable Care Act (ACA) and explains how state MCH programs can maximize those provisions to promote medical homes. It describes grants and demonstration project funding available to states; the establishment of a center for Medicare and Medicaid innovation; funding for programs that support collaborative care; and the expansion of community health centers. A list of additional information sources is included.

Keywords: Community health centers, Federal legislation, Grants, Health care reform, Medicaid, Medical home, Medicare, Program improvement, State MCH programs

Alletto M. 2010. Implementing health reform: Key provisions and opportunities for Title V MCH programs. Washington, DC: Association of Maternal and Child Health Program, 71 pp.

Annotation: This document outlines a discussion from the Association of Maternal and Child Health Program (AMCHP) Board of Directors Meeting, held on June 26, 2010, in Washington, DC. The content of the document is based on feedback gathered by AMCHP regional directors from state maternal and child health (MCH) program directors, state children with special health care needs program directors, and other state delegates throughout April and May 2010. Topics include MCH provisions in health reform, AMCHP's implementation plan and perspective, immediate and long-term opportunities, and challenges. Opportunities and challenges for state MCH programs are addressed in the areas of insurance coverage expansion, benefits package and insurance reform, health system improvements, and public health and prevention investments. Information about state roles and key dates, as well as additional resources, are provided. [Funded by the Maternal and Child Health Bureau]

Keywords: Federal legislation, Financing, Health care reform, Health care systems, Health insurance, Program improvement, State MCH programs

Center for Native American Youth . 2010. Native American Youth 101. Washington, DC: Aspen Institute , 10 pp.

Annotation: This report provides an overview and examples of key Native Youth priorities, including health promotion, injury prevention, safety, education, and juvenile justice.

Link

Keywords: Alaska Natives, Education, Juvenile justice, Native Americans, Safety, Youth Health promotion

Association of SIDS and Infant Mortality Programs and Association of Maternal and Child Health Programs. 2010. New research into sudden infant death: Unraveling the mystery of SIDS. Lansing, MI: Association of SIDS and Infant Mortality Programs; Washington, DC: Association of Maternal and Child Health Programs, (ASIP/AMCHP webinar series no. 2)

Annotation: This webinar was held on May 20, 2010, as the second in a series of quarterly webinars to strengthen sudden unexpected infant death (SUID), sudden infant death syndrome (SIDS), infant safe sleep, and bereavement services across the United States. Topics include the role of the postmortem evaluation in research into SIDS and serotonergic deficiencies in SIDS. Audio recordings, presentation slides, and links to additional resources are provided. [Funded by the Maternal and Child Health Bureau]

Link

Keywords: Evaluation, Infant death, Multimedia, Research, SIDS

Association of SIDS and Infant Mortality Programs and Association of Maternal and Child Health Programs. 2010. Opportunities in health reform to prevent infant death. Lansing, MI: Association of SIDS and Infant Mortality Programs; Washington, DC: Association of Maternal and Child Health Programs, (ASIP/AMCHP webinar series no. 3)

Annotation: This webinar was held on September 16, 2010, as the third in a series of quarterly webinars to strengthen sudden unexpected infant death (SUID), sudden infant death syndrome (SIDS), infant safe sleep, and bereavement services across the United States. Topics include (1) opportunities for maternal and child health under health reform legislation, (2) promoting preconception and interconception health through improved insurance coverage and benefits, (3) optimizing home visiting program investments, and (4) leveraging investments from the Prevention and Public Health Fund. [Funded by the Maternal and Child Health Bureau]

Link

Keywords: Federal legislation, Health care reform, Infant death, Preventive health services, Program improvement, SIDS

Association of Maternal and Child Health Programs. 2010. State profiles in comprehensive family participation. Washington, DC: Association of Maternal and Child Health Programs, 12 pp.

Annotation: This brief provides examples of initiatives and strategies implemented by state Title V Maternal and Child Health (MCH) and Children and Youth with Special Health Care Needs (CYSHCN) programs to ensure strong family participation (FP) within their programs. The brief summarizes how Colorado, Missouri, New Hampshire, New York, Oregon, and Washington approach FP, including insights, successes, and challenges. Topics include the history of FP, partnerships, strategies to involve and compensate families, training and technical assistance, the value of the CYSHCN performance measure, FP in MCH, pressures on Title V MCH programs, barriers to FP, lessons learned, and future plans. [Funded by the Maternal and Child Health Bureau]

Link

Keywords: Barriers, Collaboration, Community participation, Employment, Families, Measurement, Parent participation, Parent professional relations, Public private partnerships, Recruitment, Special health care services, State MCH programs, Technical assistance, Title V programs, Training, Work force

Association of SIDS and Infant Mortality Programs and Association of Maternal and Child Health Programs. 2010. Sudden unexpected infant death (SUID): Research, success and challenges. Lansing, MI: Association of SIDS and Infant Mortality Programs; Washington, DC: Association of Maternal and Child Health Programs, (ASIP/AMCHP webinar series no. 1)

Annotation: This webinar was held on February 11, 2010, as the first in a series of quarterly webinars to strengthen sudden unexpected infant death (SUID), sudden infant death syndrome (SIDS), infant safe sleep, and bereavement services across the United States. Topics include the role of the postmortem evaluation in SIDS research and successes and challenges in addressing SIDS and SUID. [Funded by the Maternal and Child Health Bureau]

Link

Keywords: Infant death, Policy development, Preventive health services, Research, SIDS

Association of Maternal and Child Health Programs . 2010. The Healthy Women, Healthy Babies Program: A Delaware case study . Washington, DC: Association of Maternal and Child Health Programs, 2 pp.

Annotation: This case study demonstrates how Delaware's Healthy Women, Healthy Babies (HWHB) program addresses the state's maternal and child health priorities. It describes how its health department's preventive, psychosocial, preconception, prenatal, and nutritional care services for women fit into the HWHB conceptional framework and contribute to improved health outcomes over the life course, from infancy through adulthood.

Link

Keywords: Delaware, Infant mortality, MCH services, Models, Preconception care, Prenatal care, Prevention, State programs, Women', s health

Kent HM, CityMatCH, and the Association of Maternal and Child Health Programs. 2010. Women's health prevention brief: Women's health equity. Omaha, NB: CityMaCH at the University of Nebraska Medical Center , 18 pp.

Annotation: This prevention brief highlights the importance of health equity for women and points out the root causes of poor health according to four social and health development frameworks. Included are promising practices, policy examples, and recommendations to help achieve health equity for all women.

Link

Keywords: Health equity, Prevention, Women', s health

Association of Maternal and Child Health Programs. 2009. AMCHP annual conference: Launching maternal and child health—Opportunities for a new era. Washington, DC: Association of Maternal and Child Health Programs, 67 pp.

Annotation: This booklet contains descriptions of sessions held at the February 21-24, 2009 conference in Washington, DC. The booklet describes additional meetings and activities, Capitol Hill visits, poster session participants, and exhibitors. [Funded in part by the Maternal and Child Health Bureau]

Keywords: Access to health care, Adolescent health, Association of Maternal and Child Health Programs, Child health, Conferences, Families, MCH services, Maternal health

Association of Maternal and Child Health Programs. 2009. AMCHP family delegate fundamentals. Association of Maternal and Child Health Programs, 4 pp.

Annotation: This fact sheet provides information about Association of Maternal & Child Health Programs (AMCHP) family delegates (parent, relative or adult consumers of a state or territorial Title V program system who have been designated by the Title V Director to serve as voting members of the program's delegation to AMCHP). The fact sheet explains what family delegates are and provides basic information about AMCHP. It also discusses the purpose of family delegates, why they are important, how Title V programs select them, what they need to be successful, what are their responsibilities, what are some of their typical roles, and how Title V programs support families in their roles as family delegates.

Link

Keywords: Families, Family support, Parents, Title V programs, Child health

Association of Maternal and Child Health Programs. 2009. AMCHP strategic plan: 2009–2012. Washington, DC: Association of Maternal and Child Health Programs, 2 pp.

Annotation: This fact sheet describes the goals set forth by the Association of Maternal and Child Health Programs (AMCHP) for the years 2009-2012. Under each of the four goals outlined in AMCHP's strategic plan is a list of three of more strategies aimed at helping to achieve the goals. A full description of AMCHP, including its mission and vision, is provided as well.

Keywords: Association of Maternal and Child Health Programs, Child health, Evaluation, Goals, Health promotion, MCH programs, Program planning, Strategic plans, Women', s health

Association of Maternal and Child Health Programs. 2009. Models of care for children and youth with special health care needs: Promising models for transforming California's system of care. Washington, DC: Association of Maternal and Child Health Programs, 55 pp.

Annotation: This report provides a range of models of care for children and youth with special health care needs that the Lucille Packard Foundation for Children's Health can review and discuss as a starting point for mapping out a strategy to support a transformation of the system of care. The report discusses models of care, the importance of integrated services, the medical home, care coordination, cultural competence, family-centered care and family involvement, transition, palliative and respite care, financing of care, and health information technology.

Keywords: Financing, Adolescents with special health care needs, Children with special health care needs, Cultural competence, Families, Health care systems, Medical home, Palliative treatment, Respite care, Service coordination, Service integration, Transition to independent living

National Conference of State Legislatures and Association of Maternal and Child Health Programs. 2009. Setting state health policy priorities in tough budget times. [Rockville, MD: U.S. Maternal and Child Health Bureau],

Annotation: This webcast discusses setting state priorities in the face of tight budgets. The webcast focuses on a collaborative effort among several national professional membership organizations funded by the Maternal and Child Health Bureau (MCHB) to foster collaboration among state policymakers and help them identify steps they can take together to improve the health of women, children, and families. The webcast also highlights the response of a consortium of AIM partners to challenges faced by states trying to support maternal and child health programs and set priorities, as well as the national dialogue on health care reform. The site provides video, presentation slides, transcripts, and an audio file. (AIM is a consortium of MCHB grantees.) [Funded by the Maternal and Child Health Bureau]

Keywords: Child health, Collaboration, Costs, Families, Health care reform, MCH programs, Public policy, State program, Women', s health

Alletto MM, Fraser M, Ewig B. 2009. The power of prevention for mothers and children: The cost effectiveness of maternal and child health interventions. Washington, DC: Association of Maternal and Child Health Programs, 9 pp.

Annotation: This brief summarizes effective and efficient interventions provided by state maternal and child health (MCH) programs to improve the lives of mothers, children, and families, and that merit increased national investment. Topics include the Title V MCH Block Grant program; improving birth outcomes and maternal health; breastfeeding promotion; smoking cessation for pregnant women and mothers; newborn screening; ensuring childhood immunizations; Early and Periodic Screening, Diagnosis, and Treatment (EPSDT) for all children; early childhood programs; children's access to a medical home; preventing childhood injury; promoting adolescent health; adolescent pregnancy prevention and family planning services; and screening and treatment of sexually transmitted infections.

Keywords: Adolescent health, Breastfeeding promotion, Child health, Cost effectiveness, EPSDT, Families, Immunization, Injury prevention, Maternal health, Medical home, Neonatal screening, Pregnancy outcome, Pregnant women, Prevention services, Preventive health services, Sexually transmitted diseases, Smoking cessation, Smoking during pregnancy

Association of Maternal and Child Health Programs. 2009. The role of state MCH programs in H1N1 response. Washington, DC: Association of Maternal and Child Health Programs, 2 pp. (Issue brief)

Annotation: This issue brief summarizes state MCH program involvement with H1N1 response and suggests role that the program can continue to play in preparedness and response efforts throughout the year. Topics include examples of state MCH program responses and lessons learned from the previous outbreak. Selected resources are provided for general flu information, pregnant women, infants, children, and children and youth with special health care needs. [Funded in part by the Maternal and Child Health Bureau]

Keywords: Children, Health planning, Infants, Influenza, MCH services, Pregnant women, Special health care needs, State MCH programs

Association of Maternal and Child Health Programs and CityMatCH. [2008]. AMCHP/CityMatch women's preventive health framework. [Omaha, NE]: CityMatCH, 10 pp.

Annotation: This paper outlines a number of factors that influence women's health and that state and local MCH programs can consider when implementing a women's preventive health framework to improve health for women of reproductive age. The paper lays out a framework for improving preconception and interconception health; introduces relevant conceptional frameworks; and outlines guiding principles, assumptions, and possible activities associated with this work. Finally, the paper offers evidence to support the decision to focus on achieving a healthy weight before pregnancy to improve women's health and promote safe motherhood. [Funded in part by the Maternal and Child Health Bureau]

Link

Keywords: Body weight, Health promotion, Local programs, Preconception care, Pregnancy, Prevention, Reproductive health, State programs, Weight loss, Women', s health

Association of Maternal and Child Health Programs. 2008. Implementing preconception health and health care: A California case study. Washington, DC: Association of Maternal and Child Health Programs, 4 pp.

Annotation: This paper describes the Preconception Care Council of California (PCCC), and the Every Woman, Every Time Project state wide programs and their activities, as well some local initiatives. It also discusses future activities in preconception health and health care in California.

Keywords: California, Health care, Preconception care, State MCH programs, Title V programs, Women', s health

Association of Maternal and Child Health Programs and Association of Teachers of Maternal and Child Health. 2008. Implementing the medical home model in Minnesota: A case study. Washington, DC: Association of Teachers of Maternal and Child Health, 23 pp.

Annotation: This guide, the first in a series of maternal and child health (MCH) case studies developed through a collaborative effort between the Association of Maternal and Child Health Programs and the Association of Teachers of Maternal and Child Health, is intended as a tool for teachers of public health, MCH, health policy, and health evaluation, The guide focuses on implementing the medical home model for children with special health care needs in Minnesota. Topics covered include (1) the importance of parents, (2) the importance of physicians, (3) the collaborative team, (4) the importance of funding, and (5) the future. A section on how to use the guide is included. Two appendices are also included, one discussing the medical home concept and the other providing information about meetings related to the case study held in St. Paul, Minnesota.

Keywords: Case studies, Children with special health care needs, Collaboration, Financing, Medical home, Minnesota, Parents, Physicians, State programs

Association of Maternal and Child Health Programs. 2008. State Title V Workforce Development Survey: Program profiles preliminary findings. Washington, DC: Association of Maternal and Child Health Programs, 6 pp. (Issue brief)

Annotation: This report presents preliminary descriptive data from portions of a survey of Title V maternal and child health (MCH) and children and youth with special health care needs (CYSHCN) programs conducted by the Association of Maternal and Child Health Programs between May and August 2008. The report provides a national-level look at the MCH and CYSHCN program areas, functions, and leadership.

Link

Keywords: Adolescent health, Adolescents with special health care needs, Child health, Children with special health care needs, Leadership, MCH programs, Surveys, Title V programs, Women’s health, Work force

Association of Maternal and Child Health Programs, Emerging Issues Committee, Preconception Care Work Group. 2007. Preconception health and health care. Washington, DC: Association of Maternal and Child Health Programs, 2 pp.

Annotation: This fact sheet provides information about how pregnancy outcomes are affected by a woman's health before she becomes pregnant. The fact sheets includes recommendations issued by the Centers for Disease Control and Prevention in the following areas: (1) individual responsibility across the lifespan, (2) consumer awareness, (3) preventive visits, (4) intervention for identified risks, (5) interconception care, (6) prepregancy checkup, (7) health insurance coverage for women with low incomes, (8) public health programs and strategies, (9) research, and (10) monitoring improvements. The role of maternal and child health is also discussed.

Link

Keywords: Health insurance, Intervention, Low income groups, MCH services, Preconception care, Pregnancy outcome, Prevention, Programs, Public health, Reproductive health, Research, Uninsured persons, Women', s health

Association of Maternal and Child Health Programs. 2007. State emergency planning and preparedness recommendations for maternal and child health populations. Washington, DC: Association of Maternal and Child Health Programs, 41 pp.

Annotation: This guide strives to ensure that the needs of women and children are clearly addressed as part of statewide emergency preparedness. It is designed to help states clarify their role in developing and participating in emergency preparedness plans and activities and to aid in advocating for the needs of maternal and child health (MCH) populations. Topics include defining MCH population needs, emergency preparedness overview and background, and state MCH staff in emergency preparedness planning.

Keywords: Advocacy, Children, Disaster planning, Emergencies, State programs, Women

Association of Maternal and Child Health Programs. 2006–. Women's health info series. Washington, DC: Association of Maternal and Child Health Programs, multiple items.

Annotation: These quarterly webinars showcase promising and evidence-based practices in women’s and perinatal health, highlight federal and national initiatives and resources, and allow discussion of related policy and research. Recent topics include using evidence to inform efforts to confront childhood obesity, emergency preparedness and maternal and child health, and using evidence to inform preconception health initiatives. An archive of the audio and visual presentations and related resources are available from the website.

Link

Keywords: Evidence based health care, Federal initiatives, National initiatives, Perinatal health, Policy, Research, Women', s health

Kent H, Skala J, Desmaris J. 2006. Promoting healthy weight among women of reproductive age. Washington, DC: Association of Maternal and Child Health Programs; Omaha, NE: CityMatCH, 21 pp.

Annotation: This document outlines factors that influence weight, demographics of weight among women of reproductive age, and the impact of overweight and obesity on perinatal outcomes. The paper was produced by the Association of Maternal and Child Health Programs and CityMatCH Women's Health Partnership, a project to build state and local capacity to promote safe motherhood and enhance women's health before, during, and after pregnancy. A description of the theoretical frameworks underpinning the AMCHP/CityMaTCH project efforts are presented, along with resources and community-based interventions for assisting women of reproductive age to maintain a healthy weight. Several charts illustrate frameworks for the importance of weight management of women of reproductive age. References are also provided. [Funded in part by the Maternal and Child Health Bureau]

Keywords: Guidelines, Health promotion, Models, Nutrition, Perinatal health, Physical activity, Weight management, Women', s health

Association of Maternal and Child Health Programs. 2006. State impact based on the reduction of Title V funds. Washington, DC: Association of Maternal and Child Health Programs, 6 pp.

Annotation: This fact sheet provides information about the impact on states of the reduction of federal funds allocated to Title V programs. The fact sheets includes a brief description of the impact on each state and a matrix presenting the impact in tabular form.

Keywords: Adolescent health, Adolescents with special health care needs, Child health, Children with special health care needs, Family planning, Financing, Health services, State programs, Title V programs, Training

Bacak SJ, Berg CJ, Desmarais J, Hutchins E, Locke E, eds. 2006. State maternal mortality review: Accomplishments of nine states. Atlanta, GA: Centers for Disease Control and Prevention; [Rockville, MD]: U.S. Maternal and Child Health Bureau; [Washington, DC]: Association of Maternal and Child Health Programs; [Washington, DC]: American College of Obstetricians and Gynecologists, 145 pp.

Annotation: This report describes a meeting of nine states with active maternal mortality review (MMR) committees. Topics include challenges, lessons learned, and promising practices from MMR experiences in the following areas: structure and process, data and definitions, dissemination and implementation of findings, and development and sustainability.

Keywords: Barriers, Florida, Information dissemination, Massachusetts, Maternal mortality, Michigan, New Jersey, Model programs, New Mexico, New York, North Carolina, Program development, State programs, Utah, Virginia

Association of Maternal and Child Health Programs. 2005. Adolescent and school health. Washington, DC: Association of Maternal and Child Health Programs, 2 pp. (AMCHP fact sheet)

Annotation: This fact sheet discusses the role of the Association of Maternal and Child Health Programs (AMCHP) in working with adolescent health coordinators and other maternal and child health professionals at the state level. Topics include (1) increasing awareness of adolescent health within Title V programs; (2) addressing adolescent health from a resiliency/asset approach; and (3) strengthening the capacity of Title V programs in state health agencies to partner with school and other organizations to prevent behaviors that place adolescents at risk for HIV, STDs, unintended pregnancy, and other significant health problems.

Keywords: Adolescent health, Advocacy, Association of Maternal and Child Health Programs, Collaboration, High risk adolescents, Risk taking, School health services, Social Security Act, State programs, Title V programs

Association of Maternal and Child Health Programs. 2005. AMCHP strategic plan: October 2005 - October 2009. Washington, DC: Association of Maternal and Child Health Programs,

Annotation: This fact sheet provides information about the Association of Maternal and Child Health Programs (AMCHP) strategic plan for the period October 2005-October 2009. The fact sheet discusses AMCHP's vision, mission, and history; who the organization is; goals and strategies; focus areas; and how the strategic plan will be evaluated. A visual overview of the strategic plan is also included.

Keywords: Association of Maternal and Child Health Programs, Child health, Evaluation, Goals, Strategic plans, Women', s health

Fine A, Desmarais J. 2005. Building state partnerships to improve birth outcomes: AMCHP perinatal disparities action learning lab report. Washington, DC: Association of Maternal and Child Health Programs, 13 pp.

Annotation: This report provides a brief overview of an action learning lab planned and convened by the Association of Maternal and Child Health Programs (AMCHP) to help state maternal and child health professionals and their local partners increase their knowledge of perinatal disparities and contributing factors and to assist them in creating and implementing year-long action plans for reducing these gaps in their states and territories. The report describes participants' planning process, essential elements of their collaborative activities, preliminary outcomes, and lessons learned. Three appendices include the learning lab logic model, a list of AMCHP Perinatal Disparities Project Planning and Advisory Committee 2003-2004 members, and references.

Keywords: Blacks, Collaboration, Infant mortality, Interagency cooperation, Local programs, Low birthweight, Minority health, Perinatal health, Planning, Pregnancy outcome, Preterm birth, Professional training, Racial factors, State programs

VanLandeghem K, Ruderman M, Grason H, Varela F, Silver G. 2005. CAST-5 planning guide (2nd ed.). Washington, DC: Association of Maternal and Child Health Programs; Baltimore, MD: Johns Hopkins School of Public Health, Women's and Children's Health Policy Center, 54 pp.

Annotation: This document is intended for use by states implementing Capacity Assessment for State Title V (CAST-5) tools. The document complements CAST-5 tools by providing guidance and resources to plan and manage the process. Topics include the roles of the decision maker, facilitator, and planner; planning and tailoring the process to meet state needs; preparing for the meeting; facilitating the process; and assuring momentum and measuring success. [Funded by the Maternal and Child Health Bureau]

Keywords: Assessment, Organizational change, Program planning, Public health infrastructure, Staff development, State MCH programs, Systems development

Association of Maternal and Child Health Programs. 2005. Children with special health care needs. Washington, DC: Association of Maternal and Child Health Programs, 2 pp. (AMCHP fact sheet)

Annotation: This brief fact sheet provides information about the role of the Association of Maternal and Child Health Programs in assisting families and state programs with creating and sustaining systems of care for children with special health care needs and their families through policy and legislative analysis, research, coordination of national meetings, and publications.

Keywords: Advocacy, Association of Maternal and Child Health Programs, Children with special health care needs, Family support services, State programs, Title V programs

Association of Maternal and Child Health Programs. 2005. Tune in to newborn hearing screening. Washington, DC: Association of Maternal and Child Health Programs, 2 pp. (AMCHP policy brief)

Annotation: This policy brief provides information on newborn hearing screening. It introduces the issue of children born with hearing loss, discusses the state and the federal role in providing screening, and offers recommendations.

Keywords: Federal programs, Hearing disorders, Hearing screening, Infant health, Neonatal screening, Newborn infants, State programs

Association of Maternal and Child Health Programs. 2005. Working together: The relationship between MCH Title V and Medicaid. Washington, DC: Association of Maternal and Child Health Programs, 2 pp.

Annotation: This fact sheet describes how state maternal and child health and Medicaid programs collaborate to enroll eligible families, train providers, and fill health gaps. Additional topics covered include collecting important data, and continuing collaboration.

Keywords: Collaboration, Data collection, Eligibility, Enrollment, Families, Low income groups, Medicaid, State MCH programs, Title V programs, Training

Douglas D, Bailey P, Cain L. 2004. From rural to remote America: Family health care in Alaska, Idaho, Oregon, and Washington. Washington, DC: Association of Maternal and Child Health Programs, 21 pp.

Annotation: The purpose of this report is to present the collective findings on health disparities between urban and non-urban populations from white papers produced by the states of Alaska, Idaho, Oregon, and Washington. The white papers look at barriers that rural residents face in accessing health care services. The report provides a tool to better understand the unique factors that influence health disparities and serves as a starting point for further discussion. Statistical and other information is presented in tables throughout the report. The report includes contact information for agencies in each of the four states.

Link

Keywords: Access to health care, Alaska, Barriers, Families, Idaho, Oregon, Rural population, Urban population, Washington

Association of Maternal and Child Health Programs. 2004. Making children healthy and ready to learn. Washington, DC: Association of Maternal and Child Health Programs, 2 pp. (AMCHP fact sheet)

Annotation: This fact sheet discusses the State Early Childhood Comprehensive System (SECCS), an initiative launched by the Maternal and Child Health Bureau to support the development of young children so they are healthy and ready to learn when they enter school. The fact sheet provides a snapshot of the SECCS initiative, which consists of grants to the states, and invites relevant organizations to contact their state maternal and child health director if they are interested in working on this initiative. The following critical SECCS components are described: access to health insurance and a medical home, mental health and social-emotional development, early care and education, parenting education, and family support. Next steps are also discussed.

Keywords: Child health, Early childhood development, Early childhood education, Education, Family support, Federal MCH programs, Health insurance, Initiatives, Medical home, Mental health, Parenting, School readiness

Napp D. 2004. Preventing HIV, STD, and teen pregnancy in schools: Connecting strategies—Evaluation of a national collaboration. Washington, DC: Association of Maternal and Child Health Programs, 15 pp.

Annotation: This report presents the findings from an evaluation of efforts to strengthen collaboration between state health agencies and state education agencies to support the improvement of HIV, STD, and adolescent pregnancy prevention in schools. The efforts were spearheaded by the Association of Maternal and Child Health Programs; the National Alliance of State and Territorial AIDS Directors; the National Coalition of STD Directors; and the Society of State Directors of Health, Physical Education, and Recreation, which collaborated to offer two regional stakeholder meetings and to provide follow-up technical assistance. The report includes a description of participants' satisfaction with the meetings and technical assistance, additional technical assistance needs, the extent of actions taken by states to improve collaboration, the results of these efforts, and factors that facilitated and hindered state collaboration. The report includes two appendices that contain survey questions and a telephone interview guide.

Keywords: Adolescent pregnancy, Collaboration, Education, Evaluation, HIV, Prevention programs, School health education, Sexually transmitted diseases, State health agencies, State programs, Technical assistance

Napp D. 2004. Preventing HIV, STD, and teen pregnancy in schools: Strengthening state health and education agency partnerships. Washington, DC: Association of Maternal and Child Health Programs, 25 pp.

Annotation: This report on the regional stakeholders' meeting, Preventing HIV, STD and Teen Pregnancy in Schools: Strengthening State Health and Education Agency Partnerships, held in July 2003, provides the following: (1) a summary of the processes used to plan and implement the meeting; (2) the proceedings of the meeting; and (3) a sample of the experiences shared by state participants to coordinate efforts to integrate HIV, STD, and adolescent pregnancy prevention in schools. Topics include (1) setting the stage, (2) creating a shared vision, (3) identifying our assets, (4) defining our challenges, (5) seeking solutions, (6) working with our national partners, (7) planning for action, (8) follow-up and evaluation, and (9) regional stakeholders meetings: state outcomes. Six appendices include shared vision statements, common challenges, state strategies, an action-planning worksheet, a follow-up conference call facilitator's guide, a technical assistance tracking form, and a sample matrix of state technical assistance needs.

Keywords: Adolescent health, Adolescent pregnancy, Collaboration, Education, HIV, Prevention, Program coordination, Schools, Sexually transmitted diseases, State agencies, State health agencies, State programs, Technical assistance

Association of Maternal and Child Health Programs and State Adolescent Health Coordinators Network. 2004. System capacity for adolescent health: Public health improvement tool. Washington, DC: Association of Maternal and Child Health Programs, multiple items.

Annotation: This set of assessment and discussion tools is designed to assist state maternal and child health programs in assessing six areas of capacity to support effective state adolescent health programs: commitment to adolescent health, partnerships, planning and evaluation, policy and advocacy, education and technical assistance, and surveillance and data systems. The information is divided into the following sections: (1) overview of the systems capacity project and tools, (2) planning, (3) systems capacity tool and guidance,(4) sharing lessons learned -- evaluating your efforts and ours, (5) support and resources, and (6) forms and worksheets. [Funded in part by the Maternal and Child Health Bureau]

Link

Keywords: Adolescent health, Adolescents, Advocacy, Education, Planning, Program evaluation, Public policy, State MCH programs, Technical assistance, Title V programs

Association of Maternal and Child Health Programs and Johns Hopkins University Women's and Children's Health Policy Center. 2003. Capacity assessment for state Title V (CAST-5) facilitators guide. Washington, DC: Association of Maternal and Child Health Programs, 1 v.

Annotation: This facilitators' guide is designed to complement the Capacity Assessment for State Title V (CAST-5) by providing guidance and practical resources. CAST-5 is a set of assessment and planning tools designed for state Title V Maternal and Child Health Services Block Grant Programs interested in examining their organizational capacity to carry out core maternal and child health functions. The guide includes information about (1) the role of the CAST-5 facilitator, (2) planning and tailoring the CAST-5 process to meet state needs, (3) preparing for the CAST-5 meeting, (4) facilitation the CAST-5 process, and (5) ensuring momentum and measuring success. The guide contains 13 appendices that include techniques and tips, agendas, checklists, resource lists, tools, and forms. [Funded by the Maternal and Child Health Bureau]

Link

Keywords: Assessment, Program planning, State MCH programs, Title V programs

Association of Maternal and Child Health Programs. 2003. Reaching the children: The relationship between Title V and Part C. Washington, DC: Association of Maternal and Child Health Programs, 16 pp.

Annotation: This issue brief (1) examines partnerships in 20 states between Title V of the Social Security Act and Part C of the Individuals with Disabilities Education Act that address the health needs of children with disabilities, (2) outlines models of and barriers to collaboration, and (3) provides recommendations to Congress and the federal government to support this collaboration. The brief provides background, describes the survey methods used, discusses best practices, and offers recommendations to state Title V and Part C programs and for the Maternal and Child Health Bureau, the Department of Education, and Congress. Topics include an overview of the Title V and Part C programs, a description of program eligibility criteria, identification of eligible children, the importance of collaboration between the programs, care and service coordination, the medical home, provider availability, training and recruitment, family involvement, quality assurance, program funding, and financing. The brief includes one appendix: Action Plan for Children and Youth with Special Health Care Needs and Their Families: From the President's New Freedom Initiative.

Keywords: Barriers, Case studies, Children with special health care needs, Collaboration, Early intervention, Eligibility, Federal programs, Individualized education programs, Individuals with Disabilities Education Act, Part C, Service coordination, Social Security Act, Title V, State programs, State programs

Association of Maternal and Child Health Programs. 2003. Welfare reform must protect the health of women and children. Washington, DC: Association of Maternal and Child Health Programs, 3 pp.

Annotation: This document focuses on the importance of protecting the health of women, children, and families by helping them move out of poverty. It calls on Congress to adopt the following proposals in the Temporary Assistance for Needy Families reauthorization: (1) increase funding for child care, (2) help parents care for children with special health care needs, (3) provide transitional medical assistance, (4) lift restrictions on legal immigrants, (5) prevent domestic violence, (6) expand definition of work, (7) include all families, such as children living with grandparents or other relatives, (8) build strong youth, (9) stop the "super waiver, " and (10) strengthen abstinence education.

Keywords: Abstinence, Adolescents, Child care, Child health, Children with special health care needs, Domestic violence, Families, Federal programs, Financing, Immigrants, Parents, Poverty, Temporary Assistance for Needy Families, Welfare reform, Women', s health

Fine A, Large R. 2002. A conceptual framework for adolescent health. Washington, DC: Association of Maternal and Child Health Programs, 14 pp.

Annotation: This paper outlines a vision for adolescent health and strategies and resources for implementing the vision in public health agencies and maternal and child health programs. Beginning sections include a description of the authoring organizations, the methodology used in developing the framework, and key terms and definitions. Framework topics include the importance of adolescent health, the role of public health, the relationship of adolescent health to state maternal and child and family health programs, and guiding principles for the development of a policy agenda. The paper concludes with vision statement, conclusions, and endnotes.

Keywords: Adolescent health, Adolescent health programs, Adolescents, MCH programs, Policy development, Strategic plans

Brown T, Lake K, Varela F. 2002. Meeting the needs of families: Critical elements of comprehensive care coordination in Title V children with special health care needs programs. Washington, DC: Association of Maternal and Child Health Programs, 8 pp.

Annotation: This brief provides a summary of the key goals and principles of care coordination for children with special health care needs (CSHCN) and their families, as well as a list of critical components that should be included in any comprehensive care-coordinating program. It is designed as a companion document to an earlier publication of the Association of Maternal and Child Health Programs: Care Coordination for Children with Special Health Care Needs and Their Families in the New Millennium (August 2000), which presents goals and principles of care coordination. Chapter topics include the need, different types, goals and principles, and critical elements for care coordination for CSHCN. The brief also provides examples of state Title V programs that have operationalized these key elements in Florida and Oregon. Endnotes are provided. [Funded by the Maternal and Child Health Bureau]

Keywords: Case studies, Children with special health care needs, Florida, Oregon, Service coordination, State programs, Title V programs

Whitehead L, Kagan J. 2001. Family health: The next generation of MCH?. Washington, DC: Association of Maternal and Child Health Programs, 39 pp., exec. summ. (7 pp.).

Annotation: This report is an exploration of the concept of family health and its implications for state Title V and related programs. It is divided into three sections, based on the three components of a study conducted by the Association for Maternal and Child Health Programs (AMCHP) in cooperation with the Maternal and Child Health Bureau (MCHB). The first section reports on a survey sent to Title V programs in 59 states and territories in 1999 which looked at whether and how Title V programs were addressing family health. Section two outlines the discussions at the AMCHP 2000 annual meeting which explored the role of MCH in family health. Section three summarizes case studies in 5 states (Alaska, Louisiana, Massachusetts, Rhode Island, and Utah) that had already adopted a family health approach. The report conclusion summarizes major findings and recommendations. The appendix describes each case study state's project in greater detail, including the special focus on violence prevention and infant mental health of two of them. Also provided is a separate, 7-page executive summary. [Funded by the Maternal and Child Health Bureau].

Keywords: Alaska, Case studies, Family centered care, Family health, Federal initiatives, Health promotion, Louisiana, MCH programs, Massachusetts, Mental health, Rhode Island, State programs, Title V programs, Utah, Violence prevention

Association of Maternal and Child Health Programs. 2000. Establishing a research agenda for care coordination for children with special health care needs [participant's folder]. Washington, DC: Association of Maternal and Child Health Programs, 1 v.

Annotation: This participant folder contains materials from the meeting, Establishing a Research Agenda for Care Coordination for Children with Special Health Care Needs, held on September 18-19, 2000, in Washington, DC. The folder includes an agenda, a participant list, biographical sketches of participants, and information from presentations. [Funded by the Maternal and Child Health Bureau]

Keywords: Access to health care, Children with special health care needs, Conferences, Research, Research, Service coordination

Brown T. 1999. The impact of the State Child Health Insurance Program (CHIP) on Title V children with special health care needs programs. Washington, DC: Association of Maternal and Child Health Programs, 9 pp. (AMCHP issue brief)

Annotation: This paper reports on the preliminary impact of CHIP (Child Health Insurance Program) on children with special health needs programs in the states. The paper covers these topics: state approaches to CHIP; provisions for children with special health care needs (CSHCN); the definition of CSHCN; benefits packages; mental health provisions; the Title V role; outreach roles; the use of the CHIP application to screen for disability; quality assurance; the impact of CHIP on CSHCN programs and the CSHCN population; the financial impact of CHIP on state Title V programs; care coordination; and the future of Title V CSHCN programs. [Funded by the Maternal and Child Health Bureau]

Keywords: Child health services, Children with special health care needs, Special health care services, State health insurance programs, Title V programs

Association of Maternal and Child Health Programs. 1997. Focusing on results: How state Title V children's health insurance programs can work together for healthier children. Washington, DC: Association of Maternal and Child Health Programs, 8 pp. (AMCHP issue brief)

Annotation: This issue brief was developed as a guide to planning and implementing 1997 federal legislative options under the State Children's Health Insurance Program (SCHIP) and Medicaid. The issue brief discusses child health considerations in six areas: overall design, planning, and administration; benefits and other services; service delivery systems; eligibility, outreach, and enrollment; linkages with other programs; and monitoring and evaluation. It also highlights roles that state Title V maternal and child health programs can play in planning and implementing new federal provisions to reach the ultimate goal of healthier children.

Keywords: Child health, Federal legislation, Medicaid, State Children', Title V programs, s Health Insurance Program

Association of Maternal and Child Health Programs. 1996-1999 . Title V maternal and child health programs: State profiles __. Washington, DC: Association of Maternal and Child Health Programs, annual.

Annotation: This document gives details of the State Title V maternal and child health programs from Alabama through Wyoming. Profiles include funding levels, examples of providers receiving MCH funds, numbers served, statewide initiatives and partnerships, public health activities for all women and children in the state, community-based efforts, and MCH health indicators. [Funded by the Maternal and Child Health Bureau]

Link

Keywords: MCH programs, Social Security Act, State MCH programs, Statistics, Title V

Vieth B. 1996. Shaping the future: Assuring the health of families in an era of change—Multistate discussion forum summary. Washington, DC: Association of Maternal and Child Health Programs, 15 pp.

Annotation: This paper summarizes the discussions of group sessions which were held following the plenary presentation at the 1996 annual meeting of the Association of Maternal and Child Health Programs. The discussions focused on the impact that governmental reform has had or will have on the delivery of services to women, children, children with special health needs, and families; particular attention was given to Medicaid, welfare reform, the decentralization of responsibilities and controls from the federal to state and local governments, the increased use of managed care services, and governmental reorganization and downsizing. The paper summarizes the key themes from the discussions and recommends strategies for strengthening health programs for these population groups.

Link

Keywords: Children, Children with special health care needs, Conferences, Decentralization, Families, Health services, Managed care, Medicaid, Reform, Service delivery, Service development, Social services, Welfare reform, Women

Association of Maternal and Child Health Programs. 1995. FY 1996 appropriations request for the Title V Maternal and Child Health Services block grant. Washington, DC: Association of Maternal and Child Health Programs, 1 p.

Annotation: This fact sheet summarizes the beneficial activities of the Maternal and Child Health Services Block Grant since Title V of the Social Security Act was revised in 1981. It provides estimates of the numbers of women, infants, children, and adolescents who have received assistance from programs funded by the block grant, and it encourages members of Congress to approve the appropriations request for fiscal year 1996.

Keywords: Adolescent health, Block grants, Child health, Federal MCH programs, Federal government, Government financing, Infant health, Maternal health, Proposed legislation, Social Security Act, Title V

Association of Maternal and Child Health Programs. 1995. Inventory of state managed care documents. Washington, DC: Association of Maternal and Child Health Programs, 25 pp.

Link

Keywords: Managed care, State MCH programs

Association of Maternal and Child Health Programs. 1995. The relationship between the Title V MCH Services block grant and Medicaid (Title XIX). Washington, DC: Association of Maternal and Child Health Programs, 2 pp.

Annotation: This fact sheet describes the distinct features of the MCH Services Block Grant, Title V of the Social Security Act; and Medicaid, Title XIX of that act. The fact sheet describes each program separately and then indicates how the two programs were designed to work together. It refers to a 1994 U.S. General Accounting Office report, "Medicaid Prenatal Care," which describes how well the programs work together in various states, and cites North Carolina and Washington in particular.

Keywords: Block grants, Child health, Federal MCH programs, Maternal health, Medicaid, North Carolina, Social Security Act, Title V, Social Security Act, Title XIX, State MCH programs, Washington

Association of Maternal and Child Health Programs. 1994. Health care reform and Medicaid managed care: Implications for women's and children's health and the roles of MCH/public health—Perspectives shared by state Title V program leaders at AMCHP March, 1994 annual meeting work sessions. Washington, DC: Association of Maternal and Child Health Programs, 30 pp.

Annotation: This report is a description of the work sessions held at the Association of Maternal and Child Health Programs (AMCHP) 1994 annual meeting on state initiatives in Medicaid managed care and state health care reform. There are three segments: descriptions of current MCH/public health involvement in state initiatives, speculations on the effect that managed care may have on future services to women and children, and recommendations for technical assistance and policy directives to strengthen Title V's role in reforming health care. Highlights are given for initiatives in Rhode Island (Rite Care), Tennessee (TennCare), California (MediCal), Michigan, Indiana, Massachusetts, New Hampshire, Kansas, Michigan, and Texas. Appendices include a sample participant worksheet, and a list of work session participants and discussion leaders.

Link

Keywords: Medicaid managed care, National health care reform, Public health infrastructure, State health care reform, State initiatives

Association of Maternal and Child Health Programs. 1994. Towards a smokeless future: A report on MCH program tobacco control activities described in Title V block grant applications. Washington, DC: Association of Maternal and Child Health Programs, 147 pp.

Annotation: This report presents the findings from a review of the FY 1994 Maternal and Child Health Block Grant applications to identify attention to smoking in the needs assessments and program plans contained in these documents. The report serves as a preliminary assessment of the degree to which smoking/tobacco control activities are a focus for state MCH programs, and also serves as a baseline for project evaluation and a means to identify promising state endeavors.

Keywords: Applications, Federal grants, Smoking cessation, Title V programs

Association of Maternal and Child Health Programs. 1993. Managed care for women, children, adolescents and their families: A discussion paper with recommendations for assuring improved health outcomes and roles for state MCH programs. Washington, DC: Association of Maternal and Child Health Programs, 25 pp.

Annotation: This paper contains recommendations to promote the effectiveness of managed care in contributing to improved health outcomes for women, children, and adolescents, based on the Association of Maternal and Child Health Programs' Maternal and Child Health Framework for Analyzing Health Care Reform Plans. The section on managed care issues and recommendations examines personal health services and health systems infrastructure. Another section addresses the roles for state maternal and child health programs in assuring quality managed care. [Funded by the Maternal and Child Health Bureau]

Keywords: Adolescent health promotion, Adolescent health services, Child health promotion, Child health services, Family centered services, Health care reform, MCH services, Managed care, Medicaid, Medicaid managed care, Public health infrastructure, Quality assurance, State MCH programs, Women', s health services

Association of Maternal and Child Health Programs. 1992. State MCH-Medicaid coordination: A review of Title V and Title XIX interagency agreements. Washington, DC: Association of Maternal and Child Health Programs, 147 pp. (Walker)

Annotation: This report reviews the federally recommended elements of state Title V/Title XIX interagency agreements, summarizes how individual states have incorporated these and other components in their interagency agreements, and suggests considerations for state agencies to weigh in developing interagency agreements. The appendix lists Title V/Title XIX Interagency Agreements in state-by-state summary charts. The report is intended primarily to assist state program administrators in coordination efforts.

Keywords: Interagency cooperation, Medicaid, Social Security Act, Title V, Social Security Act, Title XIX, State MCH programs

Maternal and Child Health Bureau. 1992. Understanding Title V of the Social Security Act: A guide to the provisions of federal maternal and child health services legislation after the enactment of the Omnibus Reconciliation Act (OBRA) of 1989 (P.L. 101-239). Rockville, MD: Maternal and Child Health Bureau, 15 pp.

Annotation: This brochure gives information about Title V of the Social Security Act, including authorization and appropriation levels, funding and allocation provisions, and discrimination prohibitions. It describes the block grants to the states and SPRANS Community Integrated Services Systems (CISS) discretionary grants.

Link

Keywords: Federal MCH programs, Social Security Act, Title V

Association of Maternal and Child Health Programs. 1991. Adolescent fathers: Directory of services. Washington, DC: National Center for Education in Maternal and Child Health, 147 pp.

Annotation: This national directory was developed to provide health professionals with information on program services for adolescent fathers. The directory includes a description of 114 programs, with information on program services, funding, populations served, staffing, program location, and outreach methods. All program descriptions contain a contact name, address, and phone number. The directory is organized by state and indexed by project title, geographic region, and types of services provided. The directory represents a collaborative effort by the Maternal and Child Health Bureau, the Association of Maternal and Child Health Programs, the School of Public and Environmental Affairs at Indiana University, and the National Center for Education in Maternal and Child Health. [Funded by the Maternal and Child Health Bureau]

Link

Keywords: Adolescent fathers, National directories

Association of Maternal and Child Health Programs. 1991. Maternal and child health framework for analyzing health care reform plans. Washington, DC: Association of Maternal and Child Health Programs, 6 pp.

Annotation: This fact sheet describes what the Association of Maternal and Child Health Programs believes are the essential components of service delivery and financing systems to meet the needs of all families in any national health care reform legislation. It focuses on access to care; community-based, family-centered services; consumer and family involvement in health care; and the role of federal, state, and local public health agencies. [Funded by the Maternal and Child Health Bureau]

Link

Keywords: Child health, Health care reform, Maternal health, Public health services

Association of Maternal and Child Health Programs. 1991. Meeting the challenge: A report on the first state program applications for Title V as amended by OBRA '89. Washington, DC: Association of Maternal and Child Health Programs, 33 pp.

Annotation: This report describes how state Title V programs responded to new requirements for an application for fiscal year 1991 funding. It presents findings and examples of states' approaches to presentation of information in applications, in the areas of needs assessment, plans, use of funds, provisions for medical coordination and for public review and comment. An appendix lists OBRA '89 amendments to Title V of the Social Security Act. [Funded by the Maternal and Child Health Bureau]

Keywords: Federal MCH programs, Social Security Act, Title V, State MCH programs

Association of Maternal and Child Health Programs. 1990. Building on the basics: Four approaches to enhancing MCH service delivery. Washington, DC: Association of Maternal and Child Health Programs, 22 pp.

Annotation: This report summarizes what the state Title V maternal and child health programs are doing in the areas of service delivery through home visits, integration of services through one-stop shopping, provision of toll-free numbers, and creation of handbooks for recording health problems or health service. (Research funded by the Maternal and Child Health Bureau)

Link

Keywords: Home visiting, Hotlines, Manuals, Medical records, Program coordination, State MCH programs, Surveys

Association of Maternal and Child Health Programs. 1990. Dedicated to care for children: A report on states use of OBRA 1986 earmarked Title V funds. Washington, DC: Association of Maternal and Child Health Programs, 41 pp.

Annotation: This report describes how states are using Title V funds to bolster existing service systems or to pilot new approaches to serving children with special health needs. Topics covered are: number and types of initiatives, budget allocations, needs assessment, primary care initiatives, case management and community-based services, and outcome and impact of the funds. The report also discusses problems encountered, utilizing opportunities to achieve state goals and legislative intent, and implications for national policy. [Funded by the Maternal and Child Health Bureau]

Link

Keywords: Children with special health care needs, Omnibus Budget Reconciliation Act of 1986, Social Security Act, Title V, State MCH programs

Association of Maternal and Child Health Programs. 1989. Caring for mothers and children: A report of a survey of FY 1987 state MCH program activities. Washington, DC: Association of Maternal and Child Health Programs, 121 pp.

Annotation: This report of the AMCHIP Survey of State MCH Programs is an early project of the Association's Primary Care Assistance and Accountability Project (PCAAP). It highlights the broad scope and leadership role of the state Title V programs' work in supporting and coordinating direct health services to women and children in need, including children with special health care needs, and in promoting the health and well being of all families. The report documents some of the ways in which MCH programs identify and advocate for the health needs of mothers and children, develop standards for quality care, evaluate the outcomes of program interventions, and develop linkages among programs and agencies to improve systems of health services and financing. [Funded by the Maternal and Child Health Bureau]

Keywords: Health services, Program descriptions, Program management, Program planning, State MCH programs, Title V programs

Grason HA. 1988. Analysis of state Title V MCH program reports of intended expenditures. Washington, DC: Association of Maternal and Child Health Programs, 24 pp.

Annotation: This study of reports of intended expenditures from state Title V programs seeks to provide background information about the programs; establish a baseline for project evaluation; identify common areas of strengths and weaknesses in preparation of the reports; identify potential areas of need for technical assistance; and identify possible models for report documents. A copy of the coding form used in evaluating the reports is appended. [Funded by the Maternal and Child Health Bureau]

Keywords: Program budgeting, Program evaluation, Program planning, State MCH programs, Title V programs

Association of Maternal and Child Health Programs. Adapting a program: Spotlight model for adaptation. Association of Maternal and Child Health Programs,

Annotation: This document presents the Stoplight Model for Adaptation, a tool designed to help identify, reflect on, and determine the potential impact of adaptations when implementing existing programs in new contexts. It explains the concept of adaptation in program implementation and categorizes adaptations into three levels: green (minor changes that can likely be made), yellow (moderate changes to be made with caution), and red (significant changes that should be avoided). The document provides examples of each type of adaptation and includes a step-by-step guide for applying the model, along with a practical example of its use in adapting a perinatal depression screening program. It also offers a table template for users to categorize and evaluate their intended adaptations.

Link

Keywords: MCH programs, Program development, Program improvement

Association of Maternal and Child Health Programs. Best practices. Washington, DC: Association of Maternal and Child Health Programs,

Annotation: This website contains emerging, promising, and best practices from public health programs across the United States to support state efforts to build successful maternal and child health (MCH) programs. Focus areas include preconception care, mental health, data and assessment, financing, program and system integration, workforce development, injury prevention, emergency preparedness, family involvement, and other public health issues. Contents include information on how practices are defined and selected, resources for preparing and submitting practices, and related presentations. Links to other public health programs with best practices databases or programs, evidence-based public health resources, links to MCH information and data, and evaluation resources are included.

Link

Keywords: Databases, MCH programs, Model programs, Multimedia, Program improvement, Public health programs, Resources for professionals

Association of Maternal and Child Health Programs. Innovation station. Washington, DC: Association of Maternal and Child Health Programs,

Annotation: The Innovation Station is a resource for best practice and evidence-based resources for community programs. It includes a database of emerging, promising and best practices in maternal and child health that address Title V national performance measures; information on program evaluation; the full set recordings from the Taking Action with Evidence Implementation Roadmap 10 webinar series listed by performance measure; and links to communities of practice on several topics.

Keywords: Block grants, Community programs, Databases, Evidence based health care, Measures, Model programs, Program planning, Resources for professionals, Title V programs