
Maternal and Child Health Library
MCH Alert: Focus on Infant Mortality is developed by the Maternal
and Child Health Library in collaboration with the National Sudden
and Unexpected Infant/Child and Pregnancy Loss Resource Center at
Georgetown University. This
and past issues are available online
at http://www.mchlibrary.info/alert/archives.html and http://www.sidscenter.org/alert/archives.html.
January 29, 2010
Special Notice: In an ongoing effort to support state and local
maternal and child health programs, the Association of SIDS and Infant
Mortality Programs (ASIP) and the Association of Maternal and Child
Health Programs (AMCHP) will co-sponsor a series of quarterly webinars
to strengthen services related to sudden unexpected infant death,
sudden infant death syndrome, infant safe sleep, and bereavement across
the United States. Topics will include research, new national
initiatives, promising practices, and policy and legislative
activities. The first webinar will be held on February 11, 2010, from
3:00 p.m. to 4:30 p.m. EST. Future webinars will be held in April,
June, and September. For more information, contact Sandra Frank (ASIP)
at sfrank@asip1.org or Jessica
Hawkins (AMCHP) at jhawkins@amchp.org
1. Tools Help Fetal and Infant Mortality Review Teams
Assess Cultural and Linguistic Competence
2. Resources from Newborn Screening e-Summit Available
3. Project Compiles Promising Practices for Addressing
Sudden and Unexpected Infant Death
4. Study Evaluates the Contributions of Maternal and
Community Education Levels in Determining Pediatric Outcomes
5. Article Assesses Impact of Pregnancy-Induced
Hypertension on Stillbirth and Neonatal Mortality
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1. TOOLS HELP FETAL AND INFANT MORTALITY REVIEW TEAMS ASSESS
CULTURAL AND LINGUISTIC COMPETENCE
The National Center for Cultural Competence (NCCC) has produced a new
instrument and a new guide to address the unique functions of fetal and
infant mortality review (FIMR) teams. NCCC developed the tools in
collaboration with the National FIMR Program, with guidance from a
national workgroup of state and local FIMR representatives, and with
support from the Health Resources and Services Administration's
Maternal and Child Health Bureau. The new tools include the following:
* The Cultural and Linguistic Competence Organizational Assessment
Instrument for Fetal and Infant Mortality Review Programs (CLCOA-FIMR)
is intended to support FIMRs to (1) plan for and incorporate culturally
and linguistically competent policies, structures, and practices in all
aspects of their work; (2) enhance the quality of case reviews and
action plans within diverse and underserved communities; and (3)
promote cultural and linguistic competence as an essential approach in
the elimination of disparities and the promotion of health and mental
health equity. The CLCOA-FIMR addresses the three core functions of
FIMRs: data gathering, case reviews, and community action. The
instrument gathers a range of data in four domains (Our World View, Who
We Are, What We Do, and How We Work) to help FIMRs identify their
strengths and areas for growth. The instrument is available at
http://www11.georgetown.edu/research/gucchd/nccc/documents/FIMR_Assessment.pdf
* A Guide for Using Cultural and Linguistic Competence Organizational
Assessment Instrument for Fetal and Infant Mortality Review Programs
reviews the benefits to FIMRs of engaging in cultural and linguistic
competence self-assessment, discusses the values and principles for
self-assessment, and delineates a four-step process for organizational
self-assessment. Additional topics include frequently asked questions,
definitions, useful steps for making the self-assessment work, and
processes for community engagement in self-assessment. The guide is
available at http://www11.georgetown.edu/research/gucchd/nccc/documents/FIMR_AssessmentGuide.pdf
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2. RESOURCES FROM NEWBORN SCREENING E-SUMMIT AVAILABLE
Newborn Screening Summit: Envisioning a Future for Newborn Screening
promoted dialogue between stakeholders in newborn screening (families,
health professionals, researchers, state program facilitators,
laboratory professionals, and others) and identified actionable steps
for improving the system. The summit was held on December 7-8, 2009, in
Bethesda, Maryland, and was sponsored by the Health Resources and
Services Administration and the Centers for Disease Control and
Prevention with support from the Jeffrey Modell Foundation. Topics
included family perspectives; technology; information and risk
communication; advocacy; storage and use of residual blood spots;
decision-making in public, population, and private health; childhood
screening; effective follow-up; health information exchange; the
newborn screening system clearinghouse, portal, and translational
network; pros and cons of consent; benefit in newborn and childhood
screening; defining abnormal; and strategic thinking about newborn
screening. The summit agenda, Webcast recording, and materials are
available from Genetic Alliance's Web site at http://www.geneticalliance.org/nbs.summit
Readers: A monograph will be produced in spring 2010 to capture major
themes of the summit.
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3. PROJECT COMPILES PROMISING PRACTICES FOR ADDRESSING SUDDEN AND
UNEXPECTED INFANT DEATH
Project IMPACT's Promising Practices Web page is designed to support
state and local professionals in their efforts to address sudden
unexpected infant death (SUID) by providing information on model
prevention initiatives, community programs, and bereavement services.
The Web page, launched by Project IMPACT (the National Sudden and
Unexpected Infant-Child Death and Pregnancy Loss Project) with support
from the Health Resources and Services Administration's Maternal and
Child Health Bureau, presents content contributed to date from
Illinois, Louisiana, Maryland, North Carolina, Wisconsin, and the
District of Columbia. The template for contributing information about
community programs, as well as links to the Project IMPACT discussion
list, risk-reduction resources, state contacts, and other
state-specific information and resources are provided. The Web page is
available at http://www.suid-im-projectimpact.org/index.php?option=com_content&view=article&id=19&Itemid=4
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4. STUDY EVALUATES THE CONTRIBUTIONS OF MATERNAL AND COMMUNITY
EDUCATION LEVELS IN DETERMINING PEDIATRIC OUTCOMES
"The proportion of poorly educated adults in a child's community had a
greater magnitude of effect than maternal education in determining LRI
[lower-respiratory infection] risk," state the authors of a report
published in the February 2010 issue of the Journal of Epidemiology and
Community Health. Pneumonia is the leading cause of childhood death
worldwide. Indigenous child populations in North America and Australia
have elevated respiratory disease risks, and Alaska Native children
have some of the highest LRI rates ever reported. Studies have found a
strong association between maternal education and child survival,
suggesting that maternal education may influence LRI risk.
Community-level variables have been shown to modify the risk of
individual-level socioeconomic variables for some pediatric outcomes,
but not LRI. The study described in the article evaluated the
independent contribution of maternal education and the cumulative
educational attainment of adults in the child's community on LRI risk
among children (under age 2) enrolled in Alaska Medicaid during
1998-2003.
The Alaska Division of Medical Assistance provided data for all
children under age 2 enrolled in Medicaid for the period October 1,
1998, through June 30, 2003. It also provided an outcomes database
containing provider, inpatient facility, and outpatient clinic approved
billing claims. Four additional databases were merged into the Medicaid
database: the Alaska Bureau of Vital Statistics provided a
birth-certificate file containing information on maternal education as
well as other birth, infant, and parental characteristics; the
Department of Labor provided census data for all communities in Alaska,
including demographic variables; the Alaska Department of Environmental
Conservation provided data on the proportion of households in each
Alaska community with piped water or water received from covered haul
vehicles; and the Alaska State Medical Association provided information
on physician and hospital location by community. Separate databases of
individuals (level 1) nested within communities (level 2) were also
constructed.
Children were followed for all of their recorded days of enrollment
through age 2. The researchers first estimated the effect of level 1
and level 2 variables on LRI risk. Next, they estimated the independent
and cross-level effects of level 1 and level 2 predictors on LRI risk.
Separate analyses assessed outpatient and inpatient LRI. In the final
analyses, the primary level 1 risk factor was maternal education. The
primary level 2 risk factor of interest was the proportion of adults
with less than a 7th-grade education.
The authors found that
- Between communities, the median outpatient LRI incidence rate was
42 per 100 child-years, while the inpatient rate was 6.3.
- Maternal education predicted inpatient and outpatient LRI risk
independently of other factors.
- At the community level, a high proportion of poorly educated
adults was more predictive of inpatient and outpatient LRI risk,
independent of the presence of other variables.
- For both inpatient and outpatient LRI outcomes, lower maternal
education and a higher proportion of adults in a community with less
than a 7th-grade education increased the likelihood of inpatient and
outpatient LRI in a dose-response manner.
- The absolute LRI risk associated with birth to a less-educated
mother was blunted after controlling for the low educational status of
the community. Conversely, the protective effect associated with birth
to a well-educated mother was substantially reduced if community
educational status was low.
"Although the mechanisms for the association between maternal [and]
community education and LRI remain unknown . . . the strong association
and dose-response effect suggest that improving education may reduce
LRI outcomes regardless of the baseline education level," the authors
conclude.
Gessner BD, Chimonas M-AR, Grady SC. 2010. It takes a village:
Community education predicts paediatric lower-respiratory infection
risk better than maternal education. Journal of Epidemiology and
Community Health 64(2):130-135. Abstract available at http://jech.bmj.com/cgi/content/abstract/64/2/130-a?etoc
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5. ARTICLE ASSESSES IMPACT OF PREGNANCY-INDUCED HYPERTENSION ON
STILLBIRTH AND NEONATAL MORTALITY
"Our findings suggest that women with second and higher-order births
following PIH [pregnancy-induced hypertension] have a higher risk of
stillbirth than first-order births following PIH, particularly among
black women," write the authors of an article published in the January
2010 issue of Epidemiology. Hypertensive disorders of pregnancy
complicate 5 to 8 percent of pregnancies and are associated with
increased risks of perinatal morbidity and mortality and maternal
morbidity. Preeclampsia, part of the spectrum of PIH, is typically a
disease of the first pregnancy, with a reduction in incidence among
multiparas, but the occurrence of PIH in one pregnancy is a strong
predictor of recurrence in the next, and recurrent PIH is associated
with substantially higher risks of adverse perinatal outcomes. In the
study described in this article, the authors compared births in
1990-1991 to those in 2003-2004, among black women and white women.
These data do not allow a distinction between preeclampsia and
hypertension without proteinuria, and the authors therefore used
pregnancy-induced hypertension, comprising hypertension with and
without proteinuria, as the outcome of interest.
The authors used the U.S. linked natality and infant mortality data for
the period 1990-2004 to carry out a population-based study of 57
million singleton live births and stillbirths (24-46 weeks' gestation).
Infant deaths were not linked to the corresponding live births in the
1992-1994 period. To provide the most recent estimates, the authors
focused their analysis on the period 2003-2004, using 1990-1991 as
comparison.
The authors found that
- PIH increased from 3.0 percent in 1990-1991 to 3.8 percent in
2003-2004.
- Differences in rates of stillbirth and neonatal mortality between
women with and without PIH were greater in 1990-1991 than in 2003-2004.
This was true for both first and higher-order births.
- PIH was associated with a higher risk of stillbirth, especially
among second and higher-order births, both in the 1990-1991 and the
2003-2004 periods.
- The risk of neonatal death following PIH was also elevated,
although the difference between first and higher-order births was less
marked.
- Black women had consistently higher mortality rates, and
PIH-associated stillbirth was more likely among multiparous black woman
compared with multiparous white women.
The authors conclude that "the elevated risk of mortality in
multiparous women may be due to more severe disease or to the
underlying characteristics of multiparas. Attempts should be made to
explore this in studies where these predictors are available."
Ananth CV, Basso O. 2010. Impact of pregnancy-induced hypertension on
stillbirth and neonatal mortality. Epidemiology 21(1):118-123. Abstract
available at http://journals.lww.com/epidem/Abstract/2010/01000/Impact_of_Pregnancy_induced_Hypertension_on.20.aspx
Readers: More information is available from the following MCH Library
resources:
- Infant Mortality and Pregnancy Loss: Knowledge Path at
http://www.mchlibrary.info/KnowledgePaths/kp_infmort.html
- Pregnancy and Preconception: Knowledge Path at
http://www.mchlibrary.info/KnowledgePaths/kp_pregnancy.html
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MCH Alert © 1998-2010 by National Center for Education in Maternal
and
Child Health and Georgetown University. MCH Alert: Focus on Infant
Mortality is produced by
Maternal and Child Health Library at the National Center for Education
in Maternal and Child Health at Georgetown University under its
cooperative agreements
(U02MC00001 and U48MC08717) with the Maternal and Child Health Bureau,
Health
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MANAGING EDITOR: Jolene Bertness
CO-EDITOR: Tracy Lopez
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MCH Alert
Maternal and Child Health Library
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