MCH Alert: Focus on Infant Mortality


Maternal and Child Health Library

MCH Alert: Focus on Infant Mortality is developed by the Maternal and Child Health Library in collaboration with the National Sudden and Unexpected Infant/Child and Pregnancy Loss Resource Center at Georgetown University. This and past issues are available online at http://www.mchlibrary.info/alert/archives.html and http://www.sidscenter.org/alert/archives.html.


January 29, 2010

Special Notice: In an ongoing effort to support state and local maternal and child health programs, the Association of SIDS and Infant Mortality Programs (ASIP) and the Association of Maternal and Child Health Programs (AMCHP) will co-sponsor a series of quarterly webinars to strengthen services related to sudden unexpected infant death, sudden infant death syndrome, infant safe sleep, and bereavement across the United States. Topics will include research, new national initiatives, promising practices, and policy and legislative activities. The first webinar will be held on February 11, 2010, from 3:00 p.m. to 4:30 p.m. EST. Future webinars will be held in April, June, and September. For more information, contact Sandra Frank (ASIP) at sfrank@asip1.org or Jessica Hawkins (AMCHP) at jhawkins@amchp.org

1. Tools Help Fetal and Infant Mortality Review Teams Assess Cultural and Linguistic Competence
2. Resources from Newborn Screening e-Summit Available
3. Project Compiles Promising Practices for Addressing Sudden and Unexpected Infant Death
4. Study Evaluates the Contributions of Maternal and Community Education Levels in Determining Pediatric Outcomes
5. Article Assesses Impact of Pregnancy-Induced Hypertension on Stillbirth and Neonatal Mortality

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1. TOOLS HELP FETAL AND INFANT MORTALITY REVIEW TEAMS ASSESS CULTURAL AND LINGUISTIC COMPETENCE

The National Center for Cultural Competence (NCCC) has produced a new instrument and a new guide to address the unique functions of fetal and infant mortality review (FIMR) teams. NCCC developed the tools in collaboration with the National FIMR Program, with guidance from a national workgroup of state and local FIMR representatives, and with support from the Health Resources and Services Administration's Maternal and Child Health Bureau. The new tools include the following:

* The Cultural and Linguistic Competence Organizational Assessment Instrument for Fetal and Infant Mortality Review Programs (CLCOA-FIMR) is intended to support FIMRs to (1) plan for and incorporate culturally and linguistically competent policies, structures, and practices in all aspects of their work; (2) enhance the quality of case reviews and action plans within diverse and underserved communities; and (3) promote cultural and linguistic competence as an essential approach in the elimination of disparities and the promotion of health and mental health equity. The CLCOA-FIMR addresses the three core functions of FIMRs: data gathering, case reviews, and community action. The instrument gathers a range of data in four domains (Our World View, Who We Are, What We Do, and How We Work) to help FIMRs identify their strengths and areas for growth. The instrument is available at
http://www11.georgetown.edu/research/gucchd/nccc/documents/FIMR_Assessment.pdf

* A Guide for Using Cultural and Linguistic Competence Organizational Assessment Instrument for Fetal and Infant Mortality Review Programs reviews the benefits to FIMRs of engaging in cultural and linguistic competence self-assessment, discusses the values and principles for self-assessment, and delineates a four-step process for organizational self-assessment. Additional topics include frequently asked questions, definitions, useful steps for making the self-assessment work, and processes for community engagement in self-assessment. The guide is available at http://www11.georgetown.edu/research/gucchd/nccc/documents/FIMR_AssessmentGuide.pdf

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2. RESOURCES FROM NEWBORN SCREENING E-SUMMIT AVAILABLE

Newborn Screening Summit: Envisioning a Future for Newborn Screening promoted dialogue between stakeholders in newborn screening (families, health professionals, researchers, state program facilitators, laboratory professionals, and others) and identified actionable steps for improving the system. The summit was held on December 7-8, 2009, in Bethesda, Maryland, and was sponsored by the Health Resources and Services Administration and the Centers for Disease Control and Prevention with support from the Jeffrey Modell Foundation. Topics included family perspectives; technology; information and risk communication; advocacy; storage and use of residual blood spots; decision-making in public, population, and private health; childhood screening; effective follow-up; health information exchange; the newborn screening system clearinghouse, portal, and translational network; pros and cons of consent; benefit in newborn and childhood screening; defining abnormal; and strategic thinking about newborn screening. The summit agenda, Webcast recording, and materials are available from Genetic Alliance's Web site at http://www.geneticalliance.org/nbs.summit

Readers: A monograph will be produced in spring 2010 to capture major themes of the summit.

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3. PROJECT COMPILES PROMISING PRACTICES FOR ADDRESSING SUDDEN AND UNEXPECTED INFANT DEATH

Project IMPACT's Promising Practices Web page is designed to support state and local professionals in their efforts to address sudden unexpected infant death (SUID) by providing information on model prevention initiatives, community programs, and bereavement services. The Web page, launched by Project IMPACT (the National Sudden and Unexpected Infant-Child Death and Pregnancy Loss Project) with support from the Health Resources and Services Administration's Maternal and Child Health Bureau, presents content contributed to date from Illinois, Louisiana, Maryland, North Carolina, Wisconsin, and the District of Columbia. The template for contributing information about community programs, as well as links to the Project IMPACT discussion list, risk-reduction resources, state contacts, and other state-specific information and resources are provided. The Web page is available at http://www.suid-im-projectimpact.org/index.php?option=com_content&view=article&id=19&Itemid=4

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4. STUDY EVALUATES THE CONTRIBUTIONS OF MATERNAL AND COMMUNITY EDUCATION LEVELS IN DETERMINING PEDIATRIC OUTCOMES

"The proportion of poorly educated adults in a child's community had a greater magnitude of effect than maternal education in determining LRI [lower-respiratory infection] risk," state the authors of a report published in the February 2010 issue of the Journal of Epidemiology and Community Health. Pneumonia is the leading cause of childhood death worldwide. Indigenous child populations in North America and Australia have elevated respiratory disease risks, and Alaska Native children have some of the highest LRI rates ever reported. Studies have found a strong association between maternal education and child survival, suggesting that maternal education may influence LRI risk. Community-level variables have been shown to modify the risk of individual-level socioeconomic variables for some pediatric outcomes, but not LRI. The study described in the article evaluated the independent contribution of maternal education and the cumulative educational attainment of adults in the child's community on LRI risk among children (under age 2) enrolled in Alaska Medicaid during 1998-2003.

The Alaska Division of Medical Assistance provided data for all children under age 2 enrolled in Medicaid for the period October 1, 1998, through June 30, 2003. It also provided an outcomes database containing provider, inpatient facility, and outpatient clinic approved billing claims. Four additional databases were merged into the Medicaid database: the Alaska Bureau of Vital Statistics provided a birth-certificate file containing information on maternal education as well as other birth, infant, and parental characteristics; the Department of Labor provided census data for all communities in Alaska, including demographic variables; the Alaska Department of Environmental Conservation provided data on the proportion of households in each Alaska community with piped water or water received from covered haul vehicles; and the Alaska State Medical Association provided information on physician and hospital location by community. Separate databases of individuals (level 1) nested within communities (level 2) were also constructed.

Children were followed for all of their recorded days of enrollment through age 2. The researchers first estimated the effect of level 1 and level 2 variables on LRI risk. Next, they estimated the independent and cross-level effects of level 1 and level 2 predictors on LRI risk. Separate analyses assessed outpatient and inpatient LRI. In the final analyses, the primary level 1 risk factor was maternal education. The primary level 2 risk factor of interest was the proportion of adults with less than a 7th-grade education.

The authors found that
"Although the mechanisms for the association between maternal [and] community education and LRI remain unknown . . . the strong association and dose-response effect suggest that improving education may reduce LRI outcomes regardless of the baseline education level," the authors conclude.

Gessner BD, Chimonas M-AR, Grady SC. 2010. It takes a village: Community education predicts paediatric lower-respiratory infection risk better than maternal education. Journal of Epidemiology and Community Health 64(2):130-135. Abstract available at http://jech.bmj.com/cgi/content/abstract/64/2/130-a?etoc

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5. ARTICLE ASSESSES IMPACT OF PREGNANCY-INDUCED HYPERTENSION ON STILLBIRTH AND NEONATAL MORTALITY

"Our findings suggest that women with second and higher-order births following PIH [pregnancy-induced hypertension] have a higher risk of stillbirth than first-order births following PIH, particularly among black women," write the authors of an article published in the January 2010 issue of Epidemiology. Hypertensive disorders of pregnancy complicate 5 to 8 percent of pregnancies and are associated with increased risks of perinatal morbidity and mortality and maternal morbidity. Preeclampsia, part of the spectrum of PIH, is typically a disease of the first pregnancy, with a reduction in incidence among multiparas, but the occurrence of PIH in one pregnancy is a strong predictor of recurrence in the next, and recurrent PIH is associated with substantially higher risks of adverse perinatal outcomes. In the study described in this article, the authors compared births in 1990-1991 to those in 2003-2004, among black women and white women. These data do not allow a distinction between preeclampsia and hypertension without proteinuria, and the authors therefore used pregnancy-induced hypertension, comprising hypertension with and without proteinuria, as the outcome of interest.

The authors used the U.S. linked natality and infant mortality data for the period 1990-2004 to carry out a population-based study of 57 million singleton live births and stillbirths (24-46 weeks' gestation). Infant deaths were not linked to the corresponding live births in the 1992-1994 period. To provide the most recent estimates, the authors focused their analysis on the period 2003-2004, using 1990-1991 as comparison.

The authors found that
The authors conclude that "the elevated risk of mortality in multiparous women may be due to more severe disease or to the underlying characteristics of multiparas. Attempts should be made to explore this in studies where these predictors are available."

Ananth CV, Basso O. 2010. Impact of pregnancy-induced hypertension on stillbirth and neonatal mortality. Epidemiology 21(1):118-123. Abstract available at http://journals.lww.com/epidem/Abstract/2010/01000/Impact_of_Pregnancy_induced_Hypertension_on.20.aspx

Readers: More information is available from the following MCH Library resources:

- Infant Mortality and Pregnancy Loss: Knowledge Path at
http://www.mchlibrary.info/KnowledgePaths/kp_infmort.html

- Pregnancy and Preconception: Knowledge Path at
http://www.mchlibrary.info/KnowledgePaths/kp_pregnancy.html

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MCH Alert © 1998-2010 by National Center for Education in Maternal and Child Health and Georgetown University. MCH Alert: Focus on Infant Mortality is produced by Maternal and Child Health Library at the National Center for Education in Maternal and Child Health at Georgetown University under its cooperative agreements (U02MC00001 and U48MC08717) with the Maternal and Child Health Bureau, Health Resources and Services Administration, U.S. Department of Health and Human Services. The Maternal and Child Health Bureau reserves a royalty-free, nonexclusive, and irrevocable right to use the work for federal purposes and to authorize others to use the work for federal purposes.
 
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MANAGING EDITOR: Jolene Bertness
CO-EDITOR: Tracy Lopez
COPYEDITOR/WRITER: Ruth Barzel
LIST ADMINISTRATOR: Beth DeFrancis Sun

MCH Alert
Maternal and Child Health Library
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